同侪意见分享:中国患者在心理健康在线支持小组中的叙述案例研究

Jack Pun, Qianwen Joyce Yu
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引用次数: 0

摘要

最近的健康传播研究已经开始关注在线疾病叙述,展示了在各种在线环境中如何使用叙述来报告患者的经历或提供医疗建议。然而,很少有研究试图探索这些网络叙事在中国语境下的交际特征。鉴于精神卫生资源不足且分布不均,加上强烈的耻辱感,越来越多的中国精神障碍患者转向在线支持小组(osg)寻求建议。我们对中国患者的生活经历或在线疾病叙述作为分享建议的人际工具的潜力了解有限。利用计算机媒介话语分析,本研究仔细研究了来自中国OSG的叙事段落,以说明精神疾病患者如何在在线咨询环境中互动。对叙事功能的详细分析揭示了osg为中国精神障碍患者提供讲故事机会的潜力,使他们能够在关系理解和支持的点对点网络中表达自己的担忧和经历。本研究还确定了在线咨询背景下叙事活动的一个明显特征——疾病博客,并说明了其发生与中国社会文化价值观的关系。本研究可以帮助提高疾病叙事作为沟通工具的意识,并促进医疗保健专业人员对患者叙事的文化敏感反应。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Sharing peer advice: A case study of Chinese patients’ narratives in an online support group for mental health

Recent health communication studies have begun to look at online illness narratives, showing how narratives are used to report patients’ experience or to offer medical advice in various online contexts. However, few studies have sought to explore the communicative features of these online narratives in the Chinese context. Given the insufficient and uneven distribution of mental health resources and the intense stigma attached, an increasing number of Chinese patients with mental disorders are turning to online support groups (OSGs) for advice. We have limited understanding of Chinese patients’ lived experience or the potential of online illness narratives to be interpersonal tools for sharing advice. Drawing on computer-mediated discourse analysis, this study scrutinises narrative passages from a Chinese OSG to illustrate how individuals with mental illness interact in an online advisory context. The detailed analysis of narrative functions unpacks the potential of OSGs to provide storytelling opportunities for Chinese patients with mental disorders, allowing them to voice their concerns and experiences within the peer-to-peer network of relational understanding and support. This study also identifies a distinct feature of narrative activities in this online advisory context – the illness blog – and illustrates how its occurrence is related to the Chinese sociocultural values. This study can help raise awareness of illness narratives as a communication tool and facilitate culturally sensitive reactions of healthcare professionals towards patients’ narratives.

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