The American journal of hospice & palliative care最新文献

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Examining Telehealth Modalities and Consultation Interventions in Palliative Care: Outcomes From an Innovative Rapid Palliative Care Inreach Division (RAPID) Program. 检查远程医疗模式和咨询干预在姑息治疗:结果从一个创新的快速姑息治疗延伸部(Rapid)计划。
IF 1.4
The American journal of hospice & palliative care Pub Date : 2026-11-01 Epub Date: 2025-11-06 DOI: 10.1177/10499091251393425
Russell Pearce, Patrick Steele, Peter Poon
{"title":"Examining Telehealth Modalities and Consultation Interventions in Palliative Care: Outcomes From an Innovative Rapid Palliative Care Inreach Division (RAPID) Program.","authors":"Russell Pearce, Patrick Steele, Peter Poon","doi":"10.1177/10499091251393425","DOIUrl":"10.1177/10499091251393425","url":null,"abstract":"<p><p>BackgroundPalliative care patients undergoing transitions between hospital and home settings encounter significant challenges, necessitating specialised support services. The Rapid Palliative Care Inreach Division (RAPID) program was implemented to facilitate this transition utilising telehealth services.ObjectivesThis study aimed to evaluate the use of telehealth modalities and their association with consultation interventions within the RAPID program.DesignA retrospective clinical audit was conducted using electronic medical record data from patients seen by the RAPID palliative care service.Setting/SubjectsThe study took place in Australia, across a metropolitan health service. Data were collected from all patients referred to the RAPID program between October 2020 and March 2022, including those discharged home from inpatient palliative care or admitted under Hospital in the Home (HITH).MeasurementsData included patient demographics, Palliative Care Outcomes Collaboration (PCOC) phase at each consultation, consultation modality (telephone, video, or in person), and intervention type (e.g. medication changes, education, referrals).ResultsA total of 201 patients received 722 consultations: 76.18% by telephone, 18.56% by video, and 5.26% in person. Patients from non-English speaking backgrounds more frequently received video and in-person reviews. Video consultations were associated with higher intervention rates, particularly in Stable and Deteriorating phases. Patients under HITH had longer service involvement and more interventions than community-discharged patients.ConclusionsThe RAPID program highlights the role of tailored telehealth in transitional palliative care. Video consultations were linked to more frequent interventions, suggesting a potential clinical benefit that warrants further research into patient-centred outcomes and optimal modality use.</p>","PeriodicalId":94222,"journal":{"name":"The American journal of hospice & palliative care","volume":" ","pages":"1173-1182"},"PeriodicalIF":1.4,"publicationDate":"2026-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145460999","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Challenges Faced by Informal Caregivers Providing Medication Management in Serious Illness: A Narrative Literature Review. 非正式照护者提供严重疾病药物管理所面临的挑战:叙述文献回顾。
IF 1.4
The American journal of hospice & palliative care Pub Date : 2026-11-01 Epub Date: 2025-09-03 DOI: 10.1177/10499091251376542
Andy Arwari
{"title":"Challenges Faced by Informal Caregivers Providing Medication Management in Serious Illness: A Narrative Literature Review.","authors":"Andy Arwari","doi":"10.1177/10499091251376542","DOIUrl":"10.1177/10499091251376542","url":null,"abstract":"<p><p>BackgroundPatients with serious illness rely on informal caregivers for most care needs. Among many complex tasks, informal caregivers are responsible for providing medication management for pain and symptom management. A task marked by a high degree physical strain while coping with feelings of grief, stress, and anxiety by the caregiver.ObjectiveThis narrative literature study aims to provide an insight into what is known about the specific challenges faced by informal caregivers providing medication management for seriously ill patients.MethodsThe search was conducted in PubMed, Scopus, CINAHL, EMBASE, PsycINFO, and Google Scholar. The final set includes 6 articles, with an additional 8 articles related to the topic.ResultsSix major themes were identified that impact informal caregiver's provision of medication management: 1. Emotional/fearfulness, 2. Physical impairments, 3. Low literacy/cognitive ability, 4. Support/communication with the healthcare team, 5. Competing responsibilities, and 6. Personhood.ConclusionsInformal caregivers are expected to provide medication management for their loved ones and are expected to do so at a quasi-professional standard without formal education in how to monitor and recognize for the intended effect or potential unexpected side effects. Healthcare teams need to ensure timely, comprehensive, and valuable education on monitoring of medication management be provided to informal caregivers. Further investigation is required to identify effective strategies and tools to help informal caregivers meet their loved ones with serious illness medication management needs.</p>","PeriodicalId":94222,"journal":{"name":"The American journal of hospice & palliative care","volume":" ","pages":"1251-1259"},"PeriodicalIF":1.4,"publicationDate":"2026-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144984552","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
The Process of Dialogue in Families With Dependent Children About Home-Based End-of-Life Care for Grandparents in Japan. 日本有受抚养子女的家庭对祖父母居家临终关怀的对话过程。
IF 1.4
The American journal of hospice & palliative care Pub Date : 2026-11-01 Epub Date: 2025-11-17 DOI: 10.1177/10499091251399811
Nagisa Yasui, Tae Kawahara, Akemi Yamazaki
{"title":"The Process of Dialogue in Families With Dependent Children About Home-Based End-of-Life Care for Grandparents in Japan.","authors":"Nagisa Yasui, Tae Kawahara, Akemi Yamazaki","doi":"10.1177/10499091251399811","DOIUrl":"10.1177/10499091251399811","url":null,"abstract":"<p><p>BackgroundThe death of a close relative has profound psychological effects on children. Dialogue between parents and their children before the death of a close relative is important for helping to reduce grief reactions in children. This study aimed to identify the process that facilitates dialogue in Japan within families with dependent children regarding grandparents' home-based end-of-life (EOL) care.MethodsInterviews using the semi-structured interviewing method were conducted between January 2022 and March 2025 with 15 parent-child dyads of families with dependent children who had participated in the home-based EOL care of a grandparent. The participants consisted of children aged 9 to 22 years and their parents (sandwich generation caregivers). The collected data were analyzed using the grounded theory approach.ResultsFour categories-[Efforts made to openly share information], [Common understanding related to lifestyle readjustments], [Collaborative experience of facing the EOL stage of a grandparent], and [Sharing feelings about the approaching death of a grandparent]-and 12 subcategories emerged as the process of facilitating dialogue in families with dependent children related to the home-based EOL care of a grandparent. Early, honest sharing about the grandparent's condition enabled families to readjust routines and build shared understanding, which supported parent-child collaboration and reciprocal emotion-sharing, advancing reflective, anticipatory dialogue of home-based EOL care.ConclusionsDialogue was enabled by four processes (open information sharing, shared understanding of lifestyle readjustments, collaborative caregiving, and sharing emotions about impending death) that provide levers for interprofessional home-care teams supporting families with dependent children during EOL care.</p>","PeriodicalId":94222,"journal":{"name":"The American journal of hospice & palliative care","volume":" ","pages":"1183-1192"},"PeriodicalIF":1.4,"publicationDate":"2026-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145544802","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Home-Based Palliative Care for Patients With Non-Cancer Diagnoses: Clinical Characteristics, Symptom Burden, and Service Delivery. 非癌症诊断患者的家庭姑息治疗:临床特征、症状负担和服务提供。
IF 1.4
The American journal of hospice & palliative care Pub Date : 2026-11-01 Epub Date: 2025-09-19 DOI: 10.1177/10499091251382180
Mônica Isaura Corrêa, Igor de Oliveira Claber Siqueira, Sonia Souza, Eduardo Bruera, Ana Paula Drummond-Lage
{"title":"Home-Based Palliative Care for Patients With Non-Cancer Diagnoses: Clinical Characteristics, Symptom Burden, and Service Delivery.","authors":"Mônica Isaura Corrêa, Igor de Oliveira Claber Siqueira, Sonia Souza, Eduardo Bruera, Ana Paula Drummond-Lage","doi":"10.1177/10499091251382180","DOIUrl":"10.1177/10499091251382180","url":null,"abstract":"<p><p>IntroductionPopulation aging has contributed to the increased prevalence of chronic non-communicable and disabling diseases, increasing the demand for home-based palliative care.ObjectiveTo describe the sociodemographic, clinical, and care profile of patients with non-cancer treated by a Home Care Service in Palliative Care (SAD-CP) of the Unified Health System, who died within 10 years.MethodsThis is a cross-sectional study based on the analysis of medical records of non-oncology patients treated by a SAD-CP in Brazil. Sociodemographic, clinical, functional, and service-use-related variables were collected. Variables were used in absolute and relative frequencies, and medians and interquartile ranges. Survival analysis included the Kaplan-Meier curve.ResultsAmong the 248 patients included, the main referral reasons to SAD-CP were neurological (25.4%) and circulatory (21.7%). The mean age was 80.8 years, with most patients being female (50.8%). At admission, 45.5% had a PPS score ≤30. The median length of stay was 50 days. Care was marked by frequent visits, with medians of 1.74 regular (scheduled), 1.25 nursing, 0.49 medical, and 0.18 emergency (unplanned) visits per day. All patients died at home, with deaths distributed evenly throughout the day.ConclusionPatients with non-cancer conditions admitted to SAD-CP care often present with a high burden of comorbidities and marked functional impairment. The association between lower PPS scores and higher service intensity highlights the need to adapt care to functional status and prognosis. With multidisciplinary support, home death can be successfully achieved. These findings underscore the urgency of strengthening public policies and expanding palliative care services.</p>","PeriodicalId":94222,"journal":{"name":"The American journal of hospice & palliative care","volume":" ","pages":"1230-1237"},"PeriodicalIF":1.4,"publicationDate":"2026-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145093152","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
The Effects of Learning About Deathbed Visions (DBVs) on Students' Knowledge About DBVs and Levels of Death Anxiety. 临终幻象学习对学生临终幻象知识及死亡焦虑水平的影响
IF 1.4
The American journal of hospice & palliative care Pub Date : 2026-11-01 Epub Date: 2025-09-30 DOI: 10.1177/10499091251384613
Stephen Claxton-Oldfield, Makayla Boudreau, Eliza Nobes
{"title":"The Effects of Learning About Deathbed Visions (DBVs) on Students' Knowledge About DBVs and Levels of Death Anxiety.","authors":"Stephen Claxton-Oldfield, Makayla Boudreau, Eliza Nobes","doi":"10.1177/10499091251384613","DOIUrl":"10.1177/10499091251384613","url":null,"abstract":"<p><p>The purpose of this study was to examine the effects of learning about deathbed visions (DBVs) on undergraduate students' knowledge about DBVs and their levels of death anxiety. Twenty-two students were randomly assigned to a training group (received a 20-minute lecture and slides on DBVs) and 28 students served as an equivalent control (no training) group. Both groups completed a fear of death scale and a DBV knowledge questionnaire on two occasions (approximately one week before and immediately after the training group received the training). Participants in the training group experienced a significant increase in knowledge about DBVs following training compared to the no training group which showed virtually no change in knowledge about DBVs from pre- to post-test. No effect of training on participants' levels of death anxiety was found. Suggestions for future research are offered.</p>","PeriodicalId":94222,"journal":{"name":"The American journal of hospice & palliative care","volume":" ","pages":"1244-1250"},"PeriodicalIF":1.4,"publicationDate":"2026-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145202637","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Legacy-Oriented Interventions for Supporting Family Bereavement and Psychosocial Adaptation in Pediatric Palliative Care: A Systematic Review. 在儿童姑息治疗中支持家庭丧亲和心理社会适应的遗产导向干预:系统回顾。
IF 1.4
The American journal of hospice & palliative care Pub Date : 2026-11-01 Epub Date: 2025-09-24 DOI: 10.1177/10499091251383152
Daniela Jesus-Ferreira, Paulo Reis-Pina
{"title":"Legacy-Oriented Interventions for Supporting Family Bereavement and Psychosocial Adaptation in Pediatric Palliative Care: A Systematic Review.","authors":"Daniela Jesus-Ferreira, Paulo Reis-Pina","doi":"10.1177/10499091251383152","DOIUrl":"10.1177/10499091251383152","url":null,"abstract":"<p><p>BackgroundLegacy-oriented interventions (LOI) are increasingly integrated into pediatric palliative care (PPC) to support children and their families during serious illness and bereavement. However, its impact on family grief and psychosocial outcomes remains insufficiently explored.ObjectivesThis systematic review evaluated the effects of LOI on children and families receiving PPC.MethodsA systematic search was conducted in PubMed, Scopus, and Web of Science up to February 28, 2025. Eligible studies included children and families in PPC settings. Outcomes of interest encompassed relational and memorialization, psychosocial adaptation, family/care system, and clinical domains. Quality appraisal and narrative synthesis were performed.ResultsNine qualitative studies met inclusion criteria, all conducted in the United States of America with 164 participants. Eight studies were rated as high quality and one as moderate. LOI facilitated emotional connection with the child, supported coping and meaning-making, and fostered sustained relationships with healthcare professionals. Several interventions were adapted to cultural or spiritual contexts. The effectiveness of LOI varied by type of legacy (tangible vs intangible) and the family's stage of bereavement. Few studies explored symptom control or broader social outcomes.ConclusionsLOI appear to provide valuable psychosocial support for families in PPC, particularly by sustaining emotional bonds and promoting grief adaptation. Nevertheless, the evidence base is limited to small, qualitative studies from a single country. Further research in diverse cultural settings, employing longitudinal and mixed-method designs, is needed to inform clinical practice and policy.</p>","PeriodicalId":94222,"journal":{"name":"The American journal of hospice & palliative care","volume":" ","pages":"1260-1274"},"PeriodicalIF":1.4,"publicationDate":"2026-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13598306/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145133087","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Affirming Healthcare Experiences Among Older Black- and White-Identifying Gay Men Living With Serious Illness: A Qualitative Study in the Deep South. 确认老年黑人和白人同性恋者的医疗保健经历:一项在南方腹地的定性研究。
IF 1.4
The American journal of hospice & palliative care Pub Date : 2026-11-01 Epub Date: 2025-10-03 DOI: 10.1177/10499091251380779
Korijna Valenti, Michael Barnett, Stacy Smallwood, Ronit Elk
{"title":"Affirming Healthcare Experiences Among Older Black- and White-Identifying Gay Men Living With Serious Illness: A Qualitative Study in the Deep South.","authors":"Korijna Valenti, Michael Barnett, Stacy Smallwood, Ronit Elk","doi":"10.1177/10499091251380779","DOIUrl":"10.1177/10499091251380779","url":null,"abstract":"<p><p><b>Background:</b> Older gay men living with serious illness often face challenges related to identity, disclosure, and relational recognition in healthcare settings. These challenges are particularly acute in the Deep South, where affirming care remains inconsistent, and disparities persist.<b>Objective:</b> To examine serious illness care experiences among older Black- and White-identifying gay men and their caregivers, with attention to how communication, inclusion, and identity disclosure shaped patient-clinician interactions.<b>Design:</b> Using a community-based participatory research framework, we partnered equitably with a Community Advisory Board of older gay men to guide study design, interview development, recruitment, and analysis. Semi-structured interviews were conducted with 16 participants (11 patients and 5 caregivers), intentionally sampling both Black- and White-identifying gay men. Reflexive thematic analysis was used to identify patterns in care experiences.<b>Results:</b> Three main themes were identified: (1) Experiences of Inclusion and Visibility, (2) Positive Communication, and (3) Sharing Sexuality and Effect on Care. Participants described moments of interpersonal connection and respect that fostered trust and comfort. Clear communication, honesty, and opportunities to ask questions were critical in navigating medical decisions. Discussions of sexual orientation were context-dependent and often shaped by perceptions of safety. Recognition of chosen family members, particularly partners, was central to participants' sense of dignity and affirmation in care.<b>Conclusions:</b> Findings highlight the importance of visibility, clinician-patient communication, and relationship recognition in serious illness care for older gay men. Culturally responsive, identity-affirming practices are essential to delivering equitable palliative and hospice care, particularly in underserved regions of the U.S. South.</p>","PeriodicalId":94222,"journal":{"name":"The American journal of hospice & palliative care","volume":" ","pages":"1159-1172"},"PeriodicalIF":1.4,"publicationDate":"2026-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145214994","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Lived Experiences and Meanings of End-of-Life Dreams and Visions Among Patients with Advanced Cancer: An Interpretative Phenomenological Analysis of Meaning, Connection, and Self-Continuity. 晚期癌症患者临终梦和幻象的生活经验和意义:意义、联系和自我连续性的解释性现象学分析。
IF 1.4
The American journal of hospice & palliative care Pub Date : 2026-10-26 DOI: 10.1177/10499091261500744
Amirhossein Rajabiun, Sayed Mohammad Hossein Mousavi Nasab, Dariush Boostani
{"title":"Lived Experiences and Meanings of End-of-Life Dreams and Visions Among Patients with Advanced Cancer: An Interpretative Phenomenological Analysis of Meaning, Connection, and Self-Continuity.","authors":"Amirhossein Rajabiun, Sayed Mohammad Hossein Mousavi Nasab, Dariush Boostani","doi":"10.1177/10499091261500744","DOIUrl":"https://doi.org/10.1177/10499091261500744","url":null,"abstract":"<p><p>End-of-life dreams and visions (ELDVs) are meaningful subjective experiences commonly reported by dying patients. While prior research has shown their emotional and existential value, evidence from non-Western settings remains scarce. This study explored the lived experiences and meanings of ELDVs among Iranian patients with advanced cancer.Using Interpretative Phenomenological Analysis (IPA), eleven patients who had experienced at least one ELDV were recruited via purposive sampling. Semi-structured interviews were analyzed through within-case and cross-case procedures to identify emergent themes.Three superordinate themes emerged. First, Reconstructing the Meaning of Death: From Threat to Peace and Tolerability showed how participants reframed death from fear and uncertainty into acceptance, transition, rest, and relief. Second, Family Support and Emotional Bonds in Relieving Suffering and Maintaining Connection underscored the role of family presence, memories, and attachment in easing distress and preserving identity. Third, Dream-Like Experiences, Perceptual Phenomena, and Altered States of Consciousness captured sensory-rich encounters with deceased loved ones, symbolic imagery, altered consciousness, and meaningful bodily sensations. ELDVs were woven into personal narratives, cultural meanings, spiritual frameworks, and coping processes.These findings indicate that ELDVs among Iranian patients with advanced cancer are complex experiences at the intersection of body, relationships, identity, and meaning. Rather than mere unusual perceptions, they may support emotional regulation, meaning-making, and self-continuity in end-of-life care.</p>","PeriodicalId":94222,"journal":{"name":"The American journal of hospice & palliative care","volume":" ","pages":"10499091261500744"},"PeriodicalIF":1.4,"publicationDate":"2026-10-26","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"149279172","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Early Experience of a Dedicated Outpatient Palliative Hepatology Clinic: Referral Patterns, Patient Characteristics, and Outcomes. 一个专门的门诊姑息性肝病诊所的早期经验:转诊模式、患者特征和结果。
IF 1.4
The American journal of hospice & palliative care Pub Date : 2026-10-23 DOI: 10.1177/10499091261503180
Tulio L Correa, Christina Tran, Justin-James Chua, Jennifer Denike, Jane O Schell, Shari Rogal
{"title":"Early Experience of a Dedicated Outpatient Palliative Hepatology Clinic: Referral Patterns, Patient Characteristics, and Outcomes.","authors":"Tulio L Correa, Christina Tran, Justin-James Chua, Jennifer Denike, Jane O Schell, Shari Rogal","doi":"10.1177/10499091261503180","DOIUrl":"https://doi.org/10.1177/10499091261503180","url":null,"abstract":"<p><p>Background and AimsDedicated outpatient palliative hepatology clinics remain uncommon despite the substantial symptom burden of advanced liver disease. We describe the early experience of a newly established outpatient palliative hepatology clinic.MethodsWe retrospectively reviewed patients scheduled for an initial consultation during the first months of clinic operation. Demographic and clinical characteristics, referral indications and sources, symptoms, advance care planning, follow-up, and outcomes were collected from the electronic medical record and summarized using descriptive statistics.ResultsAmong 26 scheduled patients, median age was 60 years (IQR, 41-71), median MELD 3.0 was 21 (IQR, 14-30), and 23 (89%) had prior cirrhosis-related hospitalization(s). Common referral indications included supportive care needs (81%), goals-of-care discussions (65%), and symptom management (39%). Referrals primarily came from hepatology/gastroenterology (54%) and inpatient palliative care (31%). Eighteen patients (69%) attended; 4 (15%) died before their scheduled appointment. Among those evaluated, pain and nausea were most common (56% each). Goals-of-care discussions occurred in 67%, advance directives were discussed in 72%, and surrogate decision makers in 83%. During a median follow-up of 192 days, 61% returned for follow-up and 33% died. Median time from the initial clinic visit to death was 51 days.ConclusionsPatients referred to our palliative hepatology clinic had advanced disease and substantial supportive care needs. High rates of goals-of-care and advance care planning among those evaluated highlight the potential value of dedicated palliative hepatology clinics.</p>","PeriodicalId":94222,"journal":{"name":"The American journal of hospice & palliative care","volume":" ","pages":"10499091261503180"},"PeriodicalIF":1.4,"publicationDate":"2026-10-23","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"149248248","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Which Fellowship Experiences Matter Most? A Graduate Survey of Perceived Training Value. 哪些团契经历最重要?大学生培训价值感知调查。
IF 1.4
The American journal of hospice & palliative care Pub Date : 2026-10-23 DOI: 10.1177/10499091261502756
Grecia Aldana Singleton, Ahsan Azhar, Joannis Baez Gonzalez, Kayley M Ancy, Kimberson Tanco, Yvonne Heung, Daniel Gilbey, Cheuk Hong Leung, Clark R Andersen, Stephen Nkeonye, Rony Dev, Eduardo Bruera
{"title":"Which Fellowship Experiences Matter Most? A Graduate Survey of Perceived Training Value.","authors":"Grecia Aldana Singleton, Ahsan Azhar, Joannis Baez Gonzalez, Kayley M Ancy, Kimberson Tanco, Yvonne Heung, Daniel Gilbey, Cheuk Hong Leung, Clark R Andersen, Stephen Nkeonye, Rony Dev, Eduardo Bruera","doi":"10.1177/10499091261502756","DOIUrl":"https://doi.org/10.1177/10499091261502756","url":null,"abstract":"<p><p>ObjectiveTo identify which fellowship training experiences Hospice and Palliative Medicine (HPM) graduates perceived as most valuable.MethodsAnonymous survey of graduates who completed an HPM fellowship at The University of Texas MD Anderson Cancer Center between July 1, 2001 to June 30, 2024. The survey consisted of 42 questions focused on HPM fellows' educational experience. The value of didactic lectures, clinical rotations, and their perception of clinical workload were assessed.ResultsOf 109 total surveys, 68 were completed (62% response rate). Most HPM graduates surveyed (75%) are still practicing palliative medicine. The majority (74%) of graduates were currently working in academic centers. Almost all physicians (97%) rated the HPM fellowship useful. Nearly all physicians surveyed (97%) agreed that their HPM fellowship training adequately prepared them for their current job. Acute palliative care unit rotation was rated as the most useful educational experience for learning several core competencies. Chief Round was rated as the most useful didactic lecture, and most graduates (66%) found being on call useful. There was variability in graduates' perception of workload, with higher burden reported by those not practicing palliative medicine (<i>P</i> = 0.025) and female gender (<i>P</i> = 0.04). Perceived training gaps included experience with non-cancer patients, limited hospice rotations, and desire for more training in goals of care discussions.ConclusionsGraduates reported favorable perceptions of their fellowship training, with Palliative Care Unit rotation and interactive open ended classroom discussions identified as the most valuable. These findings inform future fellowship curriculum planning and ensure access to meaningful clinical experiences.</p>","PeriodicalId":94222,"journal":{"name":"The American journal of hospice & palliative care","volume":" ","pages":"10499091261502756"},"PeriodicalIF":1.4,"publicationDate":"2026-10-23","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"149248156","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
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