The American journal of hospice & palliative care最新文献

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Differential Effects of an Integrated Community-Based End-Of-Life Support Team (ICEST) Model for Terminally Ill Older Adults on Spousal and Adult-Children Caregivers. 以社区为基础的生命末期综合支持团队(ICEST)模式对临终老年人的配偶和成年子女照顾者的不同影响》(Differential Effects of an Integrated Community-Based End-Of-Life Support Team (ICEST) Model for Terminally Illiors Olderults on Spousal and Adult-Children Caregivers.
The American journal of hospice & palliative care Pub Date : 2025-08-01 Epub Date: 2024-08-08 DOI: 10.1177/10499091241268992
Amy Yin Man Chow, Anna Yan Zhang, Kelly Tsz Ching Wong, Iris Kwan Ning Chan, Genevieve Ataa Fordjour, Xuechen Xiong, Vivian Waiqun Lou, Cecilia Lai Wan Chan
{"title":"Differential Effects of an Integrated Community-Based End-Of-Life Support Team (ICEST) Model for Terminally Ill Older Adults on Spousal and Adult-Children Caregivers.","authors":"Amy Yin Man Chow, Anna Yan Zhang, Kelly Tsz Ching Wong, Iris Kwan Ning Chan, Genevieve Ataa Fordjour, Xuechen Xiong, Vivian Waiqun Lou, Cecilia Lai Wan Chan","doi":"10.1177/10499091241268992","DOIUrl":"10.1177/10499091241268992","url":null,"abstract":"<p><p><b>Backgrounds:</b> Family caregivers (FCs) play an essential role in delivering home-based end-of-life care. However, little is known about FCs'' experiences when undertaking this role. The integrated community end-of-life support team (ICEST) is a needs-driven, home-based, family-centered care model in Hong Kong. We evaluated its effects on FCs and compared outcomes for spouses and adult children. <b>Method:</b> A multicenter pre-post-test study was conducted. Eligible participants were primary FCs of terminally ill older adults (age ≥ 60) who had a life expectancy of ≤12 months. Baseline (T<sub>0</sub>) and three-month post-intervention (T<sub>1</sub>) outcome measures included FCs'' caregiving strain, psychological distress, perceived external support, intimate relationships, and communications regarding care planning. <b>Results:</b> A sample of 628 FCs were enrolled at T<sub>0,</sub> and 40.0% completed the T<sub>1</sub> assessments. The ICEST model was effective in reducing caregiving strain, depression, and worries about patients, whilst there were improvements in agreement about care planning with patients, and perceived external supports. At T<sub>0</sub>, spouses held more negative perceptions of caregiving and faced fewer adjustment demands than adult children. Compared with spouses, adult children were more intimate with patients. Between T<sub>0</sub> and T<sub>1</sub>, spouses experienced a greater reduction in worries about patients, than adult children. <b>Conclusions:</b> The ICEST model contributed to better outcomes, individually and relationally, for FCs, regardless of relationship type. Spouses and adult children faced different challenges while delivering home-based end-of-life care. Effective interventions should modify the negative perceptions of caregiving in spousal caregivers and enable adult children to deal with multiple tasks and complex expectations.</p>","PeriodicalId":94222,"journal":{"name":"The American journal of hospice & palliative care","volume":" ","pages":"775-784"},"PeriodicalIF":0.0,"publicationDate":"2025-08-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12138144/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141904100","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Malnutrition is Associated With Fatigue and Anxiety in Advanced Cancer Patients Admitted to Home Palliative Care. 营养不良与接受家庭姑息治疗的晚期癌症患者的疲劳和焦虑有关。
The American journal of hospice & palliative care Pub Date : 2025-08-01 Epub Date: 2024-08-27 DOI: 10.1177/10499091241278924
Sebastiano Mercadante, Giuseppe Massimo Bellavia, Flavio Fusco, Lucia Adamoli, Carla Scibilia, Alessio Lo Cascio, Alessandra Casuccio
{"title":"Malnutrition is Associated With Fatigue and Anxiety in Advanced Cancer Patients Admitted to Home Palliative Care.","authors":"Sebastiano Mercadante, Giuseppe Massimo Bellavia, Flavio Fusco, Lucia Adamoli, Carla Scibilia, Alessio Lo Cascio, Alessandra Casuccio","doi":"10.1177/10499091241278924","DOIUrl":"10.1177/10499091241278924","url":null,"abstract":"<p><p>ObjectiveInformation regarding the nutrition profile of advanced cancer patients followed at home is lacking. The aim of this study was to assess the nutritional status of patients who were admitted to specialized home palliative care, and examine eventual factors associated with malnutrition.DesignCross-sectional. Setting/subject: patients who were admitted to 2 specialized home palliative care programs.ParticipantsA consecutive sample of patients admitted to home care was selected. Depression, anxiety, nausea, poor appetite, and poor well-being were measured by numerical scale 0-10. Mini nutritional assessment form (MNA-SF), fatigue assessment scale (FAS), and sarcopenia by SARC-F. were performed. The use of drugs used for anorexia, including corticosteroids, progestins, or others, was recorded.ResultsData of 135 patients were analyzed. Sixty-eight per cent and 77% of patients resulted to be malnourished and sarcopenic. In the multivariate regression analysis, anxiety (<i>P</i> = 0.036) and total FAS (<i>P</i> = 0.013) were independently associated with malnutrition. Fifty-five per cent of patients were receiving corticosteroids or megestol acetate. No significant associations with parameters examined were found.ConclusionThe majority of advanced cancer patients admitted to home palliative care were malnourished independently of the primary tumor diagnosis. Indeed, fatigue and anxiety were independently associated with malnutrition.</p>","PeriodicalId":94222,"journal":{"name":"The American journal of hospice & palliative care","volume":" ","pages":"756-760"},"PeriodicalIF":0.0,"publicationDate":"2025-08-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142074908","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Nurse-Led Advance Care Planning in Adults in the U.S.- A Scoping Review. 美国由护士主导的成人预先护理规划--范围界定综述。
The American journal of hospice & palliative care Pub Date : 2025-08-01 Epub Date: 2024-08-19 DOI: 10.1177/10499091241276009
Kofi Gyasi Agyei, Ahmed-Rufai Yahaya, Emmanuel Dapilah, Sally A Norton
{"title":"Nurse-Led Advance Care Planning in Adults in the U.S.- A Scoping Review.","authors":"Kofi Gyasi Agyei, Ahmed-Rufai Yahaya, Emmanuel Dapilah, Sally A Norton","doi":"10.1177/10499091241276009","DOIUrl":"10.1177/10499091241276009","url":null,"abstract":"<p><p>BackgroundAdvance care planning involves discussing individuals' future medical treatment and care preferences. Nurses, due to their close relationships with patients and families, may be well-positioned to lead these discussions. Exploring the components and characteristics of nurse-led ACP interventions is essential for enhancing their implementation, effectiveness, and sustainability.ObjectiveThis scoping review aimed to explore the characteristics of nurse-led ACP interventions in adult patients, identify the populations and settings where these interventions have been utilized, and the outcomes of these interventions in the U.S.MethodsA scoping review was conducted following Arksey and O'Malley's five-stage framework. Using keywords related to nurse-led ACP interventions, a comprehensive search was performed across PubMed, Web of Science, CINAHL, EMBASE, and PsycINFO databases.ResultsTwelve studies met the inclusion criteria. These studies were conducted in varied settings. Registered nurses, oncology nurse navigators, and other specialized nurses primarily delivered nurse-led ACP interventions. The interventions ranged from one to two sessions and utilized various models and resources such as the Five Wishes and Respecting Choices.ConclusionsNurse-led ACP interventions have shown significant positive outcomes, including increased engagement in ACP, improved attitudes towards ADs, higher completion rates of ADs, and enhanced patient-surrogate congruence. These interventions are well-received by patients and can be implemented in diverse settings. However, a general guideline regarding nurse-led ACP interventions is needed to address the specific duration, sessions, and mode of delivery required for their optimal effectiveness.</p>","PeriodicalId":94222,"journal":{"name":"The American journal of hospice & palliative care","volume":" ","pages":"801-813"},"PeriodicalIF":0.0,"publicationDate":"2025-08-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142001613","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Feasibility of Using Simulation to Evaluate Implementation Fidelity in an Advance Care Planning Pragmatic Trial. 在预先护理规划实用性试验中使用模拟来评估实施忠实性的可行性。
The American journal of hospice & palliative care Pub Date : 2025-08-01 Epub Date: 2024-09-03 DOI: 10.1177/10499091241282087
Valerie T Cotter, Danetta H Sloan, Daniel L Scerpella, Kelly M Smith, Martha Abshire Saylor, Jennifer L Wolff
{"title":"Feasibility of Using Simulation to Evaluate Implementation Fidelity in an Advance Care Planning Pragmatic Trial.","authors":"Valerie T Cotter, Danetta H Sloan, Daniel L Scerpella, Kelly M Smith, Martha Abshire Saylor, Jennifer L Wolff","doi":"10.1177/10499091241282087","DOIUrl":"10.1177/10499091241282087","url":null,"abstract":"<p><p><b>Background and Objectives:</b> Traditional methods of fidelity monitoring are not possible in pragmatic trials in real-world clinical settings. We describe our approach to monitoring and reinforcing the fidelity to ACP conversations for a hard-to-reach subpopulation by using standardized patients in a pragmatic trial. <b>Research Design and Methods:</b> We developed standardized patient scenarios grounded in the Respecting Choices First Steps™ Advance Care Planning curriculum to provide an opportunity to reinforce and assess ACP facilitator competency. Scenarios represented one-on-one encounters. The first case was a standardized patient with cognitive impairment and the second case involved a standardized patient with dementia and their care partner. A previously validated fidelity checklist was used to score skills and behaviors observed during simulations including encounter set-up, ACP topics, and general communication. Simulations involved voice teleconferencing to align primary modality of ACP in the pragmatic trial. <b>Results:</b> Six facilitators completed two standardized patient cases each. Overall fidelity scores were moderately high (78.8% ± 11.7; 63.4 - 95.6) for the case with cognitive impairment and for the case with the patient with dementia and care partner (76.2% ± 13.0; 54.4 - 91.5). <b>Discussion and Implications:</b> Simulation using standardized patients supported fidelity monitoring and provided coachable feedback to support facilitator competency. Our study can help inform future research and training related to advance care planning in older adults living with Alzheimer's disease and related disorders.</p>","PeriodicalId":94222,"journal":{"name":"The American journal of hospice & palliative care","volume":" ","pages":"785-791"},"PeriodicalIF":0.0,"publicationDate":"2025-08-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142127782","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Certified Child Life Specialists in Hospice and Palliative Care Organizations: A State of the Profession. 安宁疗护与姑息关怀机构中的认证儿童生命专家:行业现状。
The American journal of hospice & palliative care Pub Date : 2025-08-01 Epub Date: 2024-11-12 DOI: 10.1177/10499091241300126
Jennifer Mangers-Deans, Alyssa Friedberg, Kimberly Downing, Lisa C Lindley
{"title":"Certified Child Life Specialists in Hospice and Palliative Care Organizations: A State of the Profession.","authors":"Jennifer Mangers-Deans, Alyssa Friedberg, Kimberly Downing, Lisa C Lindley","doi":"10.1177/10499091241300126","DOIUrl":"10.1177/10499091241300126","url":null,"abstract":"<p><p>BackgroundCertified Child Life Specialists (CCLSs) provide developmentally appropriate psychosocial care to children to promote positive coping. However, little is known about the current professional landscape and opportunities for professional growth, especially in hospice and palliative care.ObjectivesTo conduct a needs assessment among CCLS and examine the role in hospice and palliative care.MethodsCCLSs were surveyed on their experience and needs in providing care in hospice and palliative care organizations. The online survey contained questions about demographics and work environment. The survey included multiple choice, yes/no, and open-ended questions. Descriptive statistics were generated from the survey items and comments/open-ended questions were coded and assessed for themes.ResultsAmong the 191 respondents, most were females (96.3%), under 40 years of age (63.8%), Caucasian (87.4%), and non-Hispanic (95.3%) with under 12 years of full-time work experience (57.0%). CCLSs commonly worked in urban/suburban (67.5%) pediatric programs (62.3%) with clients ranging from perinatal (33.5%) to adult caregivers of children (60.2%). Themes from the open-ended questions were: (a) role clarification, (b) staffing, (c) funding, (d) training/education, (e) professionality, and (f) self-care.ConclusionsKey insights into the profession, along with challenges and opportunities of working within the hospice and palliative care setting were identified. The findings highlighted the unique need for professional development among CCLSs.</p>","PeriodicalId":94222,"journal":{"name":"The American journal of hospice & palliative care","volume":" ","pages":"728-734"},"PeriodicalIF":0.0,"publicationDate":"2025-08-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142635326","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Effectiveness and Feasibility of Home-Based Palliative Care Interventions for Geriatric Oncology Patients: A Systematic Review Using Narrative Synthesis. 针对老年肿瘤患者的居家姑息关怀干预措施的有效性和可行性:采用叙事综合法的系统性综述。
The American journal of hospice & palliative care Pub Date : 2025-08-01 Epub Date: 2024-08-28 DOI: 10.1177/10499091241277882
Nikolaos Vlachopoulos, Georgios Kontogiannis, Dimitra Iosifina Papageorgiou, Emmanouil Symvoulakis, Anna-Bettina Haidich, Emmanouil Smyrnakis
{"title":"Effectiveness and Feasibility of Home-Based Palliative Care Interventions for Geriatric Oncology Patients: A Systematic Review Using Narrative Synthesis.","authors":"Nikolaos Vlachopoulos, Georgios Kontogiannis, Dimitra Iosifina Papageorgiou, Emmanouil Symvoulakis, Anna-Bettina Haidich, Emmanouil Smyrnakis","doi":"10.1177/10499091241277882","DOIUrl":"10.1177/10499091241277882","url":null,"abstract":"<p><p>BackgroundDue to an urgent need to develop palliative care services for geriatric patients with advanced cancer, an overview of available information regarding home-based palliative care interventions would be valuable.AimTo summarize current literature for interventions targeted to homebound, older patients with incurable cancer, and investigate whether these patients can be benefited from home-based palliative care and achieve improved outcomes.DesignA search strategy consisting of terms related to home care, palliation, oncology, and geriatrics was employed. A protocol following PRISMA guidelines was prospectively uploaded at PROSPERO (ID = CRD42023404675).Data sourcesPubmed (MEDLINE), Cochrane Central Register of Controlled Trials (CENTRAL), ClinicalTrials.gov, and Epistemonikos.org databases were searched from inception until the present day. Eligibility criteria were selected based on the research question, the population of interest, and the research design. The Risk of Bias Assessment Tool version 2 (RoB-2) was used to appraise study quality.ResultsA total of 10 articles including 871 patients (out of 1236 titles and 141 fully-reviewed texts) were selected. Four studies assessed exercise interventions, two evaluated multi-component home-care models, two focused on supervision services, and two had nutrition and activity components. Eight studies reported improved outcomes in either specified or mixed cancer geriatric populations.ConclusionsThere is a scarcity of clinical trials regarding home-based palliative care for geriatric oncology patients, resulting in poor information and a lack of evidence. At-home interventions seem feasible and have a positive effect on pain management and functional status, but more high-quality studies are required.</p>","PeriodicalId":94222,"journal":{"name":"The American journal of hospice & palliative care","volume":" ","pages":"826-839"},"PeriodicalIF":0.0,"publicationDate":"2025-08-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142094359","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Palliative Care Experiences Among Adults From Underrepresented Racial and Ethnic Groups in the United States: A Scoping Review. 美国代表性不足的种族和族裔群体的成年人的姑息关怀经历:范围审查》。
The American journal of hospice & palliative care Pub Date : 2025-08-01 Epub Date: 2024-08-14 DOI: 10.1177/10499091241273403
Elisha Baafi Oduro, Amy Jackson, Yunting Fu, Joan G Carpenter
{"title":"Palliative Care Experiences Among Adults From Underrepresented Racial and Ethnic Groups in the United States: A Scoping Review.","authors":"Elisha Baafi Oduro, Amy Jackson, Yunting Fu, Joan G Carpenter","doi":"10.1177/10499091241273403","DOIUrl":"10.1177/10499091241273403","url":null,"abstract":"<p><p>BackgroundPatients from underrepresented racial and ethnic groups (URGs) in the United States (US) experience disparities in accessing palliative care (PC) at the end of life (EOL). Additionally, little effort has been made to understand their experiences with PC.ObjectivesTo identify and synthesize existing literature on PC experiences among adults from URGs in nursing homes, community settings, and hospitals in the US.MethodsGuided by the Joanna Briggs Institute methodological recommendation and Preferred Reporting Items for Systematic Reviews and Meta-Analyses Extension for Scoping Reviews, we conducted a scoping review. We searched PubMed, EMBASE, CINAHL, Scopus, and ProQuest Dissertations & Theses Global from inception to January 2024.ResultsWe included five studies representing Hispanic/Latino, American Indian, African/Black American, and Chinese individuals. Data were organized around two themes: navigating PC pathway and choices and practices during PC. Navigating PC pathway theme highlights that despite the several barriers URGs face when accessing PC, they seek PC services due to their limited formal family assistance in managing their chronic conditions and pain. The choices and practices during PC theme emphasize the roles URG family members play in EOL care, the patient's care preferences, and their spiritual practices and beliefs related to EOL care.ConclusionThis scoping review reveals limited literature about URG experiences with PC and highlights the need for more studies to focus on making PC services more accessible to URGs and providing culturally sensitive care to meet the needs of the diverse growing US population.</p>","PeriodicalId":94222,"journal":{"name":"The American journal of hospice & palliative care","volume":" ","pages":"735-745"},"PeriodicalIF":0.0,"publicationDate":"2025-08-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141977598","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
A Scoping Review of the Barriers and Facilitators to Clinician Engagement in Hospital-Based Palliative Care in Australian Hospitals. 澳大利亚医院临床医生参与医院姑息关怀的障碍和促进因素的范围界定研究。
The American journal of hospice & palliative care Pub Date : 2025-08-01 Epub Date: 2024-10-01 DOI: 10.1177/10499091241287559
Edward Meehan, Catriona Parker, Darshini Ayton, Naomi Katz, Michelle Gold, Yufei Wang, Dasuni Ralapanawa, Xin Kwok, Jane Banaszak-Holl
{"title":"A Scoping Review of the Barriers and Facilitators to Clinician Engagement in Hospital-Based Palliative Care in Australian Hospitals.","authors":"Edward Meehan, Catriona Parker, Darshini Ayton, Naomi Katz, Michelle Gold, Yufei Wang, Dasuni Ralapanawa, Xin Kwok, Jane Banaszak-Holl","doi":"10.1177/10499091241287559","DOIUrl":"10.1177/10499091241287559","url":null,"abstract":"<p><p><b>Background:</b> Current research has shown that inpatient palliative care (PC) services are under-utilized, poorly integrated, and frequently introduced too late during inpatient hospital stays. The aim of this study was to identify a comprehensive list of multi-disciplinary facilitators and barriers to inpatient PC in Australian hospitals through a scoping literature review. <b>Methods:</b> This review identified articles published since 2000 from 3 electronic databases (CINAHL Plus, MEDLINE and Embase), which included discussion of collaboration among non-palliative care clinicians and palliative care professionals in Australian hospitals. We used an inductive approach to identifying key domains of barriers and facilitators. <b>Results:</b> Thirty-four articles met inclusion criteria following full text review. Barriers and facilitators were categorized in 7 domains: (1) Patient concerns, (2) Family concerns, (3) Clinician knowledge, education, and experience in palliative care, (4) Recognition and acceptance of prognosis when a patient was dying or needing end of life treatment, (5) Reconciliation of individual and professional values around PC, (6) Clinician access to resources for PC in the hospital, and (7) Communication between the PC team and ward clinicians. Each domain included potentially substantial barriers to PC delivery and practice. However, given the small sample sizes and specialized settings of many included studies, it was difficult to draw conclusions on the relative significance of different barriers across hospitals. <b>Conclusion:</b> This review identified a number of barriers and facilitators across studies. Subsequent research needs to more comprehensively compare factors impacting PC use in order to improve implementation of PC across hospital settings.</p>","PeriodicalId":94222,"journal":{"name":"The American journal of hospice & palliative care","volume":" ","pages":"814-825"},"PeriodicalIF":0.0,"publicationDate":"2025-08-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12138149/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142335552","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
The Sowers of Seeds: A Qualitative Analysis of the Role of Palliative Care Educators in Facilitating Goals-of-Care Conversations and Palliative Care Referrals. 播种者:对姑息关怀教育者在促进关怀目标对话和姑息关怀转诊中的作用的定性分析。
The American journal of hospice & palliative care Pub Date : 2025-08-01 Epub Date: 2024-08-28 DOI: 10.1177/10499091241267917
Seth N Zupanc, Lisa M Quintiliani, Amy M LeClair, Michael K Paasche-Orlow, Angelo Volandes, Akhila Penumarthy, Lori Henault, Jennifer E Itty, Aretha D Davis, Joshua R Lakin
{"title":"The Sowers of Seeds: A Qualitative Analysis of the Role of Palliative Care Educators in Facilitating Goals-of-Care Conversations and Palliative Care Referrals.","authors":"Seth N Zupanc, Lisa M Quintiliani, Amy M LeClair, Michael K Paasche-Orlow, Angelo Volandes, Akhila Penumarthy, Lori Henault, Jennifer E Itty, Aretha D Davis, Joshua R Lakin","doi":"10.1177/10499091241267917","DOIUrl":"10.1177/10499091241267917","url":null,"abstract":"<p><p>BackgroundOptimal care for seriously ill and older patients often involves advance care planning (ACP), goals-of-care (GOC) conversations, and specialty palliative care consultation, three sometimes overlapping, yet distinct practices. Insufficient staffing and investment in these areas have limited their availability.ObjectivesWe explored the facilitators and barriers to successful implementation of the VIDEO-PCE trial. The intervention aimed to increase patient engagement in ACP, GOC, and by establishing Palliative Care Educators, a new clinical role integrated into existing hospital wards.DesignThis qualitative interview study employed a semi-structured interview guide tailored to the interviewee's clinical role. The interviews elicited perceptions of the facilitators and barriers to integration of palliative care educators (PCEs) into existing workflows. We developed deductive codes a priori and inductive codes as we coded interview transcripts.Setting/SubjectsMedical/surgical floor clinical colleagues, palliative care team members, and PCEs from both participating sites were interviewed.ResultsTwenty-four individuals were interviewed (12 clinical staff of medical and surgical wards, seven palliative care team members, and five PCEs). Four themes were identified: (1) The work completed by the PCEs provided a foundation for future palliative care involvement; (2) Constituting the new role in practice required revision and creativity; (3) Communication was important to providing continuity of care; and (4) Establishing trust catalyzed the acceptance of the role.ConclusionThe creation and implementation of a new role within existing clinical workflows posed some challenges but were felt to relieve staff from some work burden and allow more patients to engage in ACP and GOC conversations.Trial RegistrationClinicalTrials.gov Identifier: NCT04857060.</p>","PeriodicalId":94222,"journal":{"name":"The American journal of hospice & palliative care","volume":" ","pages":"761-768"},"PeriodicalIF":0.0,"publicationDate":"2025-08-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12138154/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142086453","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
End-Of-Life Cancer Patients' Dignity Perception Before and During COVID-19 Pandemic. 癌症临终患者在 COVID-19 大流行之前和期间的尊严感知。
The American journal of hospice & palliative care Pub Date : 2025-08-01 Epub Date: 2024-07-24 DOI: 10.1177/10499091241267878
Andrea Bovero, Francesca Cotardo, Erika Tuberosa, Sara Carletto, Francesco Oliva
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