Disclosure Practices in Muslim Patients and the Impact on End-of-Life Care: A Narrative Review.

Mona Tareen
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Abstract

Context: Non-disclosure practices hold significant weight in end-of-life care for Muslim communities, where cultural and religious beliefs are deeply intertwined with healthcare decision-making. This narrative review explores the complexities of medical decision-making and disclosure practices among terminally ill Muslim patients, examining how these factors shape palliative care delivery. Objectives: The primary objective of this review is to investigate the impact of non-disclosure practices on end-of-life care in Muslim populations, focusing on key themes that influence medical decision-making. Additionally, the review identifies ways in which Healthcare Provider (HCP) can navigate these culturally sensitive issues to enhance care. Methods: A comprehensive narrative review was conducted, utilizing articles from CINHAL, PsychINFO, Scopus, and PubMed databases published between 2009 and 2024. An initial search yielded 2025 articles. After applying inclusion and exclusion criteria, 12 studies were included for analysis. The SANRA guidelines for narrative reviews were followed, and the SPIDER framework was used for qualitative synthesis. Results: Of the 2041 articles initially retrieved, 2014 were excluded after screening, 8 were duplicates, and 7 full texts were excluded for not meeting the inclusion criteria. The final review included 12 studies. Three key themes emerged: (1) cultural, religious, and emotional factors driving requests for non-disclosure, (2) the prominent role of family in medical decision-making, and (3) healthcare provider communication challenges contributing to disparities in palliative care access. Conclusion: Non-disclosure practices present significant barriers to effective palliative care in Muslim communities. To improve care outcomes, culturally competent communication strategies and family-centered decision-making models are crucial.

穆斯林患者的信息披露做法及其对临终关怀的影响:叙述性综述。
背景:在穆斯林群体中,文化和宗教信仰与医疗决策密切相关,因此不披露信息的做法在临终关怀中占有重要地位。这篇叙事性综述探讨了穆斯林临终病人医疗决策和信息披露做法的复杂性,研究了这些因素如何影响姑息治疗的提供。目的:本综述的主要目的是研究不公开做法对穆斯林人群临终关怀的影响,重点关注影响医疗决策的关键主题。此外,该综述还确定了医疗保健提供者(HCP)如何处理这些文化敏感问题,以加强护理工作。方法:利用 2009 年至 2024 年间在 CINHAL、PsychINFO、Scopus 和 PubMed 数据库中发表的文章进行了全面的叙述性综述。初步搜索共获得 2025 篇文章。在应用纳入和排除标准后,有 12 项研究被纳入进行分析。研究遵循了叙事性综述的 SANRA 指南,并使用 SPIDER 框架进行定性综合。结果:在最初检索到的 2041 篇文章中,2014 篇经筛选后被排除,8 篇为重复文章,7 篇全文因不符合纳入标准而被排除。最终综述包括 12 项研究。出现了三个关键主题:(1) 文化、宗教和情感因素导致的不披露请求;(2) 家庭在医疗决策中的突出作用;(3) 医疗服务提供者在沟通方面的挑战导致姑息关怀获取方面的差异。结论:在穆斯林社区,不披露信息的做法严重阻碍了有效的姑息关怀。为了改善护理效果,具有文化能力的沟通策略和以家庭为中心的决策模式至关重要。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
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