Anthropology & Medicine最新文献_第6页

Bodies and orientations. Perspectives and strategies among service users in psychosocial rehabilitation housing facilities in Denmark. 身体和方向。丹麦社会心理康复住房设施服务使用者的观点和策略。

IF 1.8 4区社会学

Anthropology & Medicine Pub Date : 2023-03-01 DOI: 10.1080/13648470.2023.2181573

Anne Mia Steno

引用次数: 0

'Small' data, isolated populations, and new categories of rare diseases in Finland and Poland. 芬兰和波兰的“小”数据、孤立人群和罕见疾病新类别。

IF 1.8 4区社会学

Anthropology & Medicine Pub Date : 2023-03-01 DOI: 10.1080/13648470.2022.2152633

Małgorzata Rajtar

{"title":"'Small' data, isolated populations, and new categories of rare diseases in Finland and Poland.","authors":"Małgorzata Rajtar","doi":"10.1080/13648470.2022.2152633","DOIUrl":"https://doi.org/10.1080/13648470.2022.2152633","url":null,"abstract":"Health policy and academic discourses on rare diseases and people with rare conditions frequently employ terms such as 'low prevalence' and 'unique' to characterize the smallness of the population under consideration and to justify targeted action toward these patient groups. This paper draws from recent anthropological scholarship on smallness and data, ethnographic research in Finland and Poland, as well as document and media analysis to examine how data is utilized in the context of isolated populations that are considered sites of rare diseases in these two countries. Specifically, this paper juxtaposes the notion of Finnish Disease Heritage (FDH) with that of a 'Kashubian gene' in Poland. The concept of FDH was developed by Finnish researchers in the 1970s; it encompasses almost forty rare hereditary diseases that are significantly more prevalent in Finland than elsewhere globally. On the other hand, the notion of the 'Kashubian gene' was first utilized by the media and some members of the Polish medical community around 2008. Based on 'unstable' data gathered during genetic research, the term referred to the high prevalence of a rare metabolic disorder (Long-Chain 3-Hydroxyacyl-CoA Dehydrogenase (LCHAD) deficiency) among Kashubians, an ethnic minority that resides in Northern Poland's Pomerania region. Whereas FDH facilitated the production and branding of 'a unique Finnish genetic identity' (Tupasela 2016b, 61), the notion of the 'Kashubian gene' has engendered health policy interventions targeting members of this ethnic minority and has contributed to stigmatizing practices carried out against Kashubians.","PeriodicalId":8240,"journal":{"name":"Anthropology & Medicine","volume":"30 1","pages":"1-16"},"PeriodicalIF":1.8,"publicationDate":"2023-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9164671","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

'Only parents can understand the problems and needs of children with thalassaemia': parental activism for thalassaemia care in Northern India. “只有父母才能理解地中海贫血儿童的问题和需求”:印度北部地中海贫血护理的父母行动主义。

IF 1.8 4区社会学

Anthropology & Medicine Pub Date : 2023-03-01 DOI: 10.1080/13648470.2023.2180258

Maya Unnithan, Chhaya Pachauli, Sangeeta Chattoo, Karl Atkin

{"title":"'Only parents can understand the problems and needs of children with thalassaemia': parental activism for thalassaemia care in Northern India.","authors":"Maya Unnithan, Chhaya Pachauli, Sangeeta Chattoo, Karl Atkin","doi":"10.1080/13648470.2023.2180258","DOIUrl":"https://doi.org/10.1080/13648470.2023.2180258","url":null,"abstract":"Evolving knowledge of genetics and improved clinical care have re-shaped life choices for those suffering from chronic, incurable conditions and their families. Yet the realisation of care requires complex navigation to access vital therapies which is often difficult for individuals or their family carers. In the article, we explore the struggles and strategies of parents of children with thalassemia (a genetically inherited blood disorder) in a North Indian city, who have come together to ensure better long-term health of their children. A focus on the ways in which families come together and remain apart in their quest for guaranteed access to life-saving substances such as filtered blood, provides insight into the diversity of bio-social strategies at work. It is not only family relationships and kinship, we suggest, but bio-sociality itself which is reshaped with the advent of new rights-based languages, evolving therapies and state support which hold out new possibilities for young people with thalassemia to live as normal a life-course as possible.","PeriodicalId":8240,"journal":{"name":"Anthropology & Medicine","volume":"30 1","pages":"48-63"},"PeriodicalIF":1.8,"publicationDate":"2023-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9168192","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Biomedical treatment and divine assistance: complementary reproductive itineraries among catholic women users of assisted reproduction technology in Argentina. 生物医学治疗和神的帮助:阿根廷天主教妇女辅助生殖技术使用者的辅助生殖行程。

IF 1.8 4区社会学

Anthropology & Medicine Pub Date : 2022-12-01 DOI: 10.1080/13648470.2022.2144804

Ana Lucia Olmos Alvarez, María Cecilia Johnson

{"title":"Biomedical treatment and divine assistance: complementary reproductive itineraries among catholic women users of assisted reproduction technology in Argentina.","authors":"Ana Lucia Olmos Alvarez, María Cecilia Johnson","doi":"10.1080/13648470.2022.2144804","DOIUrl":"https://doi.org/10.1080/13648470.2022.2144804","url":null,"abstract":"This paper explores how Catholic women in Argentina use assisted reproduction technologies (ARTs), and particularly the way in which they resort to biomedicine and religion as complementary sources of knowledge, support and assistance during reproductive treatments. It is concerned about the role of the Catholic religion in local reproductive itineraries, seeing that Catholicism has such significant social, political and cultural influence in the country. Drawing on a qualitative and ethnographic study of Catholic spaces of worship, a maternity hospital and in-depth interviews with former users from three metropolitan areas in Argentina, we examine how reproductive itineraries involve the users' agency in building health resources from religion, with reference to biomedicine. The data reveal that women address religion as an affective, social and therapeutic recourse intertwined with biomedical power. These findings highlight the multiple and complex forms reproduction acquires in specific social, cultural and normative contexts, and contribute to discussing the complementarity between religion and biomedicine in health experiences.","PeriodicalId":8240,"journal":{"name":"Anthropology & Medicine","volume":"29 4","pages":"383-398"},"PeriodicalIF":1.8,"publicationDate":"2022-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10538429","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

The woman who chose the terreiro. Lay care and medical landscapes in mental health care in Rio de Janeiro. 选择特雷罗的女人。里约热内卢精神卫生保健的护理和医疗景观。

IF 1.8 4区社会学

Anthropology & Medicine Pub Date : 2022-12-01 DOI: 10.1080/13648470.2022.2144131

Manuela R Müller, Francisco Ortega, Angel Martínez-Hernáez

{"title":"The woman who chose the terreiro. Lay care and medical landscapes in mental health care in Rio de Janeiro.","authors":"Manuela R Müller, Francisco Ortega, Angel Martínez-Hernáez","doi":"10.1080/13648470.2022.2144131","DOIUrl":"https://doi.org/10.1080/13648470.2022.2144131","url":null,"abstract":"Brazilian mental health care reform understands mental health as a complex social process. There is a large literature production within the country focused on deinstitutionalization policy, social determinants of mental health and human rights, however, with little recognition beyond Latin American borders. In addition, cultural dimensions of mental suffering have been neglected in Brazilian debates which limits an expanded understanding of health care and users' inclusion. This paper aims to discuss the role of cultural determinants in mental health care in Brazil. We followed a patient in the city of Rio de Janeiro who opted for therapy based on her religious beliefs-using ayahuasca in the context of the Afro Brazilian religion of Umbanda-over the treatment-as-usual in mental health. We draw on the notions of autoatención (self, domestic, and group-care in lay contexts) and medical landscapes to examine how therapeutic negotiations reflect embodied cultural traits and both social and political determinants shaping therapeutic spaces. We argue that recognizing sociocultural differences and therapeutic negotiations are key elements in making a more inclusive health practice. Moreover, this recognition enables identifying and reasoning the broader social processes framing health practices. This debate is relevant to the Brazilian mental health context and to other scenarios, especially those where local and global knowledge and practices in mental health are entangled.","PeriodicalId":8240,"journal":{"name":"Anthropology & Medicine","volume":"29 4","pages":"351-366"},"PeriodicalIF":1.8,"publicationDate":"2022-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9104378","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Nature cure and public health: illness narratives, medical efficacy, and existential suffering. 自然疗法和公共卫生:疾病叙事，医疗功效，和存在的痛苦。

IF 1.8 4区社会学

Anthropology & Medicine Pub Date : 2022-12-01 DOI: 10.1080/13648470.2022.2106412

Joseph S Alter

{"title":"Nature cure and public health: illness narratives, medical efficacy, and existential suffering.","authors":"Joseph S Alter","doi":"10.1080/13648470.2022.2106412","DOIUrl":"https://doi.org/10.1080/13648470.2022.2106412","url":null,"abstract":"Nature cure is a globalized system of nineteenth century European medicine that developed synergistically in opposition to biomedicine, and that has become popular in India. This essay examines the question of how anthropologists should understand claims that all diseases can be cured with earth, air, sunlight, water and raw food. The question is complicated by a paradox of relativism deeply embedded in the desire to find cures, to articulate those cures as panaceas, and to the way illness narratives personalize and essentialize contexts of meaning that resolve sickness and suffering with experiential healing. Focused on suffering that motivates people to experiment on themselves and engage in exotic cures, this essay presents an argument for extending skepticism concerning claims of efficacy to a politics of medicine and public health that is ecological rather than phenomenological, medical or biological. Suffering, as well as empathy for those who suffer, transforms radically relativized personal convictions into forms of embodied, existential activism that relate to, but extend beyond, the hegemony of biomedicine and institutionalized public health.","PeriodicalId":8240,"journal":{"name":"Anthropology & Medicine","volume":"29 4","pages":"399-413"},"PeriodicalIF":1.8,"publicationDate":"2022-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10538853","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

The work of reform: a critical examination of health policy. 改革工作:对卫生政策的批判性审查。

IF 1.8 4区社会学

Anthropology & Medicine Pub Date : 2022-12-01 DOI: 10.1080/13648470.2022.2144805

Na'amah Razon, Alissa Bernstein Sideman

{"title":"The work of reform: a critical examination of health policy.","authors":"Na'amah Razon, Alissa Bernstein Sideman","doi":"10.1080/13648470.2022.2144805","DOIUrl":"https://doi.org/10.1080/13648470.2022.2144805","url":null,"abstract":"Anthropologists have critically examined a range of reforms from education and land to finance and health. Yet the predominant way of looking at reforms has been through a lens focused on neoliberal governance. For example, prior studies of health reforms focus on insurance, financing, and access to care. Yet, seeing reform in this way fails to attend to other types of cultural work at play when calling a policy or law a reform. In this paper, we draw on ethnographic research on health policy reforms in Israel and Bolivia to examine the concept of reform and the work it does within national movements. We argue that while the language of reform often signals change or novelty, reforms also carry forward historical continuities and reifications of the past. By delving into the past and its relationship with ongoing health reforms, we attend to how reforms can reinforce and maintain health inequities in some cases, while creating a national language for new possibilities in others. Reform, as we will discuss in this paper, is not only about political ideology, neoliberal governance, or on-the-ground policy implementation, but centrally it is about representations of aspirations, and about crafting relationships between past, present, and future.","PeriodicalId":8240,"journal":{"name":"Anthropology & Medicine","volume":"29 4","pages":"414-429"},"PeriodicalIF":1.8,"publicationDate":"2022-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://ftp.ncbi.nlm.nih.gov/pub/pmc/oa_pdf/33/6e/nihms-1883716.PMC10075328.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9320923","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Latinx immigrant experiences with chronic illness management in Central Texas: reframing agency and liminality through nepantla. 德州中部拉丁移民的慢性病管理经验:透过nepantla重新建构代理与限制。

IF 1.8 4区社会学

Anthropology & Medicine Pub Date : 2022-12-01 DOI: 10.1080/13648470.2022.2144803

Scott J Spivey Provencio

{"title":"Latinx immigrant experiences with chronic illness management in Central Texas: reframing agency and liminality through nepantla.","authors":"Scott J Spivey Provencio","doi":"10.1080/13648470.2022.2144803","DOIUrl":"https://doi.org/10.1080/13648470.2022.2144803","url":null,"abstract":"Immigrant rights have become increasingly contentious and partisan issues in the United States, and especially within the U.S. healthcare system. It is particularly essential to pay attention to Latinx immigrants-the largest immigrant and uninsured population in the United States. Latinx immigrants face many structural and legal challenges that may impact their biomedical healthcare access and treatment, creating a state of liminality or in-betweenness, especially when managing a chronic illness such as diabetes, hypertension, or arthritis. Using qualitative methods at a free healthcare clinic in Central Texas, the study reveals how the chronic illness narrative becomes inextricable from the immigrant narrative for this particular group, and how a unique 'dual-liminality' emerges from living with both an immigrant status and chronic condition. This study also introduces how Gloria Anzaldúa's theory of nepantla can be used to push existing understandings of migrant liminality in medical anthropology by reframing the experiences of U.S. Latinx immigrants with chronic illness as ones of opportunity. Nepantla functions as a novel theoretical lens to better understand how Latinx immigrants may regain agency in their chronic illness management and promote social change by helping others in similar situations.","PeriodicalId":8240,"journal":{"name":"Anthropology & Medicine","volume":"29 4","pages":"367-382"},"PeriodicalIF":1.8,"publicationDate":"2022-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10540016","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Apophatic love, contagion, and surveillance: Orthodox Christian responses to the global pandemic. 冷漠的爱、传染和监视:东正教对全球大流行的反应。

IF 1.8 4区社会学

Anthropology & Medicine Pub Date : 2022-12-01 DOI: 10.1080/13648470.2022.2080180

Timothy Carroll, Nicholas Lackenby, Jenia Gorbanenko

{"title":"Apophatic love, contagion, and surveillance: Orthodox Christian responses to the global pandemic.","authors":"Timothy Carroll, Nicholas Lackenby, Jenia Gorbanenko","doi":"10.1080/13648470.2022.2080180","DOIUrl":"https://doi.org/10.1080/13648470.2022.2080180","url":null,"abstract":"As the COVID-19 pandemic hit, Orthodox Christians globally reacted to the possibility of contagion and risk in dialogue with theological positions about materials, their own long history which includes surviving previous pandemics and plagues, governmental and civil expectations and edicts, and pious - but often unofficial - understandings about protection and the sacrality of religious artefacts and the space of the temple. This article draws upon primary ethnographic research amongst Orthodox Christians in the UK, Serbia, Greece and Russia, as well as news articles about and primary ecclesiastical documents from Orthodox Churches more widely, to highlight commonalities and divergences in Orthodox Christian responses to the pandemic. Examining both the theological basis, and socio-political differences, this article considers how the Orthodox theology of apophaticism and relationality impacts wider discourses of contagion (both positive and negative), and consequently compliance with public health initiatives. Comparison across diverse Orthodox settings suggests that Orthodox Christians are concerned with the neighbour - both in terms of who may be watching (and reporting) them, and who may fall sick because of them.","PeriodicalId":8240,"journal":{"name":"Anthropology & Medicine","volume":"29 4","pages":"430-445"},"PeriodicalIF":1.8,"publicationDate":"2022-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9101973","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 1

Good enough mothers: practicing nurture and motherhood in Chiapas, Mexico 足够好的母亲:在墨西哥恰帕斯州实践养育和母性

IF 1.8 4区社会学

Anthropology & Medicine Pub Date : 2022-10-02 DOI: 10.1080/13648470.2022.2075321

Rosamund Greiner

引用次数: 1