Amyotrophic Lateral Sclerosis最新文献

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Review of Making Livable Worlds: Afro-Puerto Rican Women Building Environmental Justice by Hilda Lloréns (University of Washington Press) 《创造宜居世界:非裔波多黎各妇女建设环境正义》一书书评,希尔达·洛尔萨姆斯著(华盛顿大学出版社)
Amyotrophic Lateral Sclerosis Pub Date : 2023-01-01 DOI: 10.25158/l12.1.17
Donna Elizabeth Hayles
{"title":"Review of Making Livable Worlds: Afro-Puerto Rican Women Building Environmental Justice by Hilda Lloréns (University of Washington Press)","authors":"Donna Elizabeth Hayles","doi":"10.25158/l12.1.17","DOIUrl":"https://doi.org/10.25158/l12.1.17","url":null,"abstract":"This review examines Hilda Lloréns’s research into the role that Afro-Puerto Rican women play in advocating for environmental justice and building a sustainable environment in the Puerto Rican archipelago, particularly after the devastation left behind by Hurricanes Irma and Maria in 2017, and the subsequent catastrophic effects of COVID-19 in 2020. Lloréns shows that Afro-Puerto Rican women are able to survive in the face of racial and ecological discriminations and marginalizations, and their survival is emblematic of Puerto Rico’s own survival. The author devotes the entirety of her book to show that as an \"ethnographer of home,\" as she calls herself, it is essential for people to create livable worlds within which they can survive. Survival in the midst of catastrophic climate change is difficult, Lloréns argues, primarily because Puerto Ricans are often on the receiving end of austerity measures that make their existence tenuous, at best. These austerity measures typically come after a climatic event, and result in limited access to clean water, food, electricity, healthcare, housing, and education, which only serve to exacerbate the desperation that many on the island feel. While this desperation was widespread across the island after the hurricanes in 2017, residents in the southeastern region of the island (predominantly Afro-Puerto Ricans) were even more affected. Lloréns shows how these people used their limited resources to cull an existence out of a seemingly hostile land and create a community that sustained them. Lloréns draws on personal experiences, the experiences of her family, ethnography, anthropology, and interviews to show how vital it is to examine Puerto Rico not as a homogenous space but rather as a heterogeneous one with its unique complexities. And by centering the work and experiences of Black Puerto Ricans, Lloréns gives voice to a group that is largely left on the margins of society, but who demonstrates the importance of building community as a sustaining entity.\u0000","PeriodicalId":7777,"journal":{"name":"Amyotrophic Lateral Sclerosis","volume":"41 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"86481007","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Review of Vulgar Beauty: Acting Chinese in the Global Sensorium by Mila Zuo (Duke University Press) 《俗美评论:全球感官中的中国表演》左米拉著(杜克大学出版社)
Amyotrophic Lateral Sclerosis Pub Date : 2023-01-01 DOI: 10.25158/l12.1.23
E. N. Schmoll
{"title":"Review of Vulgar Beauty: Acting Chinese in the Global Sensorium by Mila Zuo (Duke University Press)","authors":"E. N. Schmoll","doi":"10.25158/l12.1.23","DOIUrl":"https://doi.org/10.25158/l12.1.23","url":null,"abstract":"In 'Vulgar Beauty: Acting Chinese in the Global Sensorium,' Mila Zuo examines how female Chinese actors perform \"vulgar beauty\" as a way of \"worlding\" to create community and belonging through affective shocks, and specifically, to produce feelings of Chineseness. By using the sense of taste, and specifically the flavors bitter, salty, pungent, sweet, and sour, as a framework, Zuo delves into close readings of television and cinematic case studies to look at the different ways vulgar beauty is deployed by these actors. In its analysis, this book offers a reconceptualization of feminine beauty outside of white western dictates and suggests that (vulgar) beauty can be utilized as a potentially disruptive and transformative force, specifically in destabilizing racial and patriarchal power structures.\u0000","PeriodicalId":7777,"journal":{"name":"Amyotrophic Lateral Sclerosis","volume":"1 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"83090814","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Review of Fates of the Performative: From the Linguistic Turn to the New Materialism by Jeffrey T. Nealon (University of Minnesota Press) 《行为的命运:从语言学转向新唯物主义》杰弗里·t·尼隆著(明尼苏达大学出版社)
Amyotrophic Lateral Sclerosis Pub Date : 2023-01-01 DOI: 10.25158/l12.1.16
Abigail Culpepper
{"title":"Review of Fates of the Performative: From the Linguistic Turn to the New Materialism by Jeffrey T. Nealon (University of Minnesota Press)","authors":"Abigail Culpepper","doi":"10.25158/l12.1.16","DOIUrl":"https://doi.org/10.25158/l12.1.16","url":null,"abstract":"Jeffrey T. Nealon’s 'Fates of the Performative: From the Linguistic Turn to the New Materialism' crafts a history of performativity within contemporary theoretical thought. Through the structure of a genealogy, Nealon examines the nascence of performativity and its intersection with biopolitics and neoliberalism to predict not only the future of the performative, but also to imagine new avenues of criticism within the humanities.\u0000","PeriodicalId":7777,"journal":{"name":"Amyotrophic Lateral Sclerosis","volume":"30 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"84649317","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Roundtable 圆桌会议
Amyotrophic Lateral Sclerosis Pub Date : 2022-12-01 DOI: 10.25158/l11.2.15
S. Chatterjee, K. Grossman, R. Jobson, Kristen Kowlessar, River Rossi
{"title":"Roundtable","authors":"S. Chatterjee, K. Grossman, R. Jobson, Kristen Kowlessar, River Rossi","doi":"10.25158/l11.2.15","DOIUrl":"https://doi.org/10.25158/l11.2.15","url":null,"abstract":"This roundtable shares the first-hand experiences of five crip, disabled, Mad, and/or neurodivergent doctoral students navigating academia in so-called Canada during the COVID-19 pandemic. While we discuss and theorize our experiences of ableism, structural oppression, and inaccessibility in the academy, we also highlight the world-building experiences of solidarity that have emerged for us in crip community, and in particular among fellow crip graduate students. We consider the ways that crip students open up potential for new ways of learning and being by challenging dominant norms of academic productivity, and we also consider what is lost when these students are pushed out of academic spaces. By engaging in 'collective refusal' of the conditions that harm disabled and otherwise marginalized students, new possibilities emerge for connection, community, and radical change. The virtual conversation transcribed here took place over Discord, email, and Google Docs in autumn of 2021 and early winter 2022. This piece embraces multi-tonality, that is, a range of different voices and ways of writing, speaking, and communicating. It is a conversational piece that intentionally blends varied approaches to knowledge-sharing: polemic, citationally-grounded, and personal anecdotes drawn from our diverse lived experiences. There are a number of different themes woven throughout the text, including anecdotes and personal history, solidarity, ableism in the academy, pessimism/failure, community/interdependence/intimacy, and utopia/futurity/demands for the future. While not intended to provide policy guidance or step-by-step instructions for changing academic culture, we also begin to sketch out some of our dreams for an alternative future for disabled scholars. We discuss imagined futures and possibilities, and ask, is a truly crip and/or accessible academic institution possible?\u0000","PeriodicalId":7777,"journal":{"name":"Amyotrophic Lateral Sclerosis","volume":"1 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2022-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"81955994","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
“Companionship and a Little Fun”: Investigating Working Women’s Leisure Aboard a Hudson River Steamboat, July 1919 “陪伴和一点乐趣”:调查哈德逊河汽船上职业妇女的休闲,1919年7月
Amyotrophic Lateral Sclerosis Pub Date : 2022-12-01 DOI: 10.25158/l11.2.4
Austin Gallas
{"title":"“Companionship and a Little Fun”: Investigating Working Women’s Leisure Aboard a Hudson River Steamboat, July 1919","authors":"Austin Gallas","doi":"10.25158/l11.2.4","DOIUrl":"https://doi.org/10.25158/l11.2.4","url":null,"abstract":"This article provides an in-depth consideration of a single report penned on the night of July 27, 1919 by a private detective employed by New York City's Committee of Fourteen (1905–1932), an influential anti-vice and police reform organization. A close reading of the undercover sleuth's account, which details his experiences, subjective judgments, and general observations regarding moral and social conditions while aboard the Benjamin B. Odell, a palatial Hudson River steamboat, enables us to enrich our grasp of the courtship and pleasure-seeking practices popular among working women and men active in New York City's heterosocial and largely segregated amusement landscape during the so-called 'Red Summer.' Specifically, the report reveals how wage-earning women articulated femininity and sought individual freedoms, companionship, pleasure, and romance via Hudson River steamboat excursions. The relatively unsupervised atmosphere of such trips was appealing to some working women because it represented an affordable way to attain companionship, prohibited forms of amusement and entertainment, and sexual gratification, a way that sidestepped many of the reputational hazards typically associated with the search for such goods among mainland leisure spaces. Such opportunities were particularly valuable given the crackdowns on public sexuality and late-night amusement spaces that had followed America's entry into World War I in 1917 and the advent of 'wartime prohibition' on July 1, 1919. The article also supplies important contextual information required for proper appreciation of the investigation report in question, including a discussion of the methods and goals of the Committee of Fourteen and a brief overview of prior efforts by Progressive Era urban moral authorities to uncover and control 'white slavery,' gambling, and other 'vices' witnessed aboard steamboat excursions operating in and around New York, Chicago, and other coastal cities.\u0000","PeriodicalId":7777,"journal":{"name":"Amyotrophic Lateral Sclerosis","volume":"47 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2022-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"75095208","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Security Blanket 安全保障
Amyotrophic Lateral Sclerosis Pub Date : 2022-12-01 DOI: 10.25158/l11.2.20
Rebecca M. Long
{"title":"Security Blanket","authors":"Rebecca M. Long","doi":"10.25158/l11.2.20","DOIUrl":"https://doi.org/10.25158/l11.2.20","url":null,"abstract":"This article presents neuroqueer knitting as a cripistemological practice in the context of the COVID-19 pandemic, during which the author realized that knitting was part of how they moved through trauma. Tracing the process of making a blanket during part of the pandemic, a time in which they were also relocating, the author argues that knitting offers a knowledge-making practice aligned with their autistic ways of being in the world. Treating this blanket as theoretical material, the author uses it to challenge ableist ideas of autistic people as lacking the capacity to narrate their experiences. Instead, this blanket is used to reflect alternative modes of knowing that document the author's continued existence and survival in moments of trauma and upheaval.\u0000","PeriodicalId":7777,"journal":{"name":"Amyotrophic Lateral Sclerosis","volume":"20 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2022-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"80856861","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Watchmen, Copaganda, and Abolition Futurities in US Television 美国电视中的守望者、政治宣传和废奴主义
Amyotrophic Lateral Sclerosis Pub Date : 2022-12-01 DOI: 10.25158/l11.2.2
Jessica Hatrick, Olivia González
{"title":"Watchmen, Copaganda, and Abolition Futurities in US Television","authors":"Jessica Hatrick, Olivia González","doi":"10.25158/l11.2.2","DOIUrl":"https://doi.org/10.25158/l11.2.2","url":null,"abstract":"Through this article, we examine the history and conventions of copaganda in the United States, and critically consider how HBO's Watchmen has responded to and represented the historical relationship between policing and white supremacy. We argue that while Watchmen works to explicitly critique the history of white supremacist violence in US policing, the show reproduces several copaganda conventions. Watchmen depicts central law enforcement characters who commit violence as heroes, uplifts the main police character as an eventually almighty arbiter of justice, portrays white supremacist law enforcement characters as anomalous individual infiltrators (a.k.a. 'bad apples'), and was created in collaboration with various members of law enforcement. After presenting this case study in contemporary copaganda, we consider how science fiction series can more meaningfully respond to the movement for police and prison abolition through representing abolitionist futures.\u0000","PeriodicalId":7777,"journal":{"name":"Amyotrophic Lateral Sclerosis","volume":"62 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2022-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"86646352","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
assembly required 装配要求
Amyotrophic Lateral Sclerosis Pub Date : 2022-12-01 DOI: 10.1021/cen-v081n002.p004
Sav Schlauderaff
{"title":"assembly required","authors":"Sav Schlauderaff","doi":"10.1021/cen-v081n002.p004","DOIUrl":"https://doi.org/10.1021/cen-v081n002.p004","url":null,"abstract":"This piece stitches and layers together a mix of photographs, poetry, and reflections to tell a story—my story—of c-PTSD, grief, (chosen) family, and my constant yearning to exist fully as myself.\u0000","PeriodicalId":7777,"journal":{"name":"Amyotrophic Lateral Sclerosis","volume":"1 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2022-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"79915167","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Personal Protective Purple Daikon Equipment 紫色白萝卜个人防护装备
Amyotrophic Lateral Sclerosis Pub Date : 2022-12-01 DOI: 10.25158/l11.2.11
Julie Dind
{"title":"Personal Protective Purple Daikon Equipment","authors":"Julie Dind","doi":"10.25158/l11.2.11","DOIUrl":"https://doi.org/10.25158/l11.2.11","url":null,"abstract":"During the Spring semester 2020, I took an art class at the Rhode Island School of Design. 'Personal Protective Purple Daikon Equipment: A Handbook' was my final project for the class. Part zine, part Zoom performance experiment, part autistic meltdown, the project bears witness to my anger, isolation and fear during the lockdown. It is both a commentary on academia and the constant demand to 'make use' of every experience—to continue academic life as usual even during a pandemic that saw so many disabled people die—as well as a handbook for making one's own Personal Protective Purple Daikon Equipment (PPPDE) at home and an absurdist manifesto. As a research-creation project, the Personal Protective Purple Daikon Equipment offers a snapshot of a moment in (crip) time, that of the first state-sanctioned lockdown and of the early days of the pandemic.\u0000","PeriodicalId":7777,"journal":{"name":"Amyotrophic Lateral Sclerosis","volume":"7 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2022-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"85615038","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Coalition-In-Progress Coalition-In-Progress
Amyotrophic Lateral Sclerosis Pub Date : 2022-12-01 DOI: 10.25158/l11.2.9
Erin Kuri, Antoinette, A. K., B. Chase, C. Scott, Doreen Kalifer, H. Dougall, Marie, Nicholas Herd, P. A. I., P. S., R., S. Simone, C. Jones, A. F. Schormans
{"title":"Coalition-In-Progress","authors":"Erin Kuri, Antoinette, A. K., B. Chase, C. Scott, Doreen Kalifer, H. Dougall, Marie, Nicholas Herd, P. A. I., P. S., R., S. Simone, C. Jones, A. F. Schormans","doi":"10.25158/l11.2.9","DOIUrl":"https://doi.org/10.25158/l11.2.9","url":null,"abstract":"For institutional survivors and their younger peers labelled/with intellectual disability, the COVID-19 pandemic and its related lockdowns carry over past experiences under government-directed isolation and mandatory medical interventions. The sudden convergence of past and present necropolitical ableism in labeled persons' lives colours this crisis, as we—a group of survivors, younger labeled people (who have not lived in institutions), and researcher/allies—attempt to simply stay in touch amid digital divides that cut off our once vibrant, interdependent in-person activities. No longer able to gather, and with limited Internet (or no) access, we resist social abandonment through phone calls. During phone conversations we discuss the affective contours of this time: grief over the past, loss of agency, restrictive rules in group homes, the dynamics of protest, fear sparked by public health orders, and a mix of anxiety and hope about the future. Taking this telephone-based dialogue as evidence of our lives in these times, we present a brief body of collectively written found poetry, a form of poetic inquiry composed of phone call snippets. This piece, coauthored by twenty members of the 'DiStory: Disability Then and Now' project in Toronto, Canada, offers a snapshot of coalition-in-process, keeping in touch amid a crisis that threatens our togetherness and—for some more than others—our lives. Following Braidotti, we couch this found poetry in a brief commentary on our slow, in-progress attempt to 'co-construct a different platform of becoming' with one another amid a divergence of historical and contemporary inequities.","PeriodicalId":7777,"journal":{"name":"Amyotrophic Lateral Sclerosis","volume":"51 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2022-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"78754742","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
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