Amyotrophic Lateral Sclerosis最新文献_第4页

Chronic Illness Wisdom is Both/And 慢性疾病的智慧是兼而有之

Amyotrophic Lateral Sclerosis Pub Date : 2022-12-01 DOI: 10.25158/l11.2.17

C. Cutler

引用次数: 0

Review of Poetic Operations: Trans of Color Art in Digital Media by micha cárdenas (Duke University Press) 诗歌操作回顾:色彩艺术在数字媒体中的转换micha cárdenas(杜克大学出版社)

Amyotrophic Lateral Sclerosis Pub Date : 2022-12-01 DOI: 10.25158/l11.2.30

Shano Liang, M. DeAnda

引用次数: 1

On Navigating Paranoia, Repair, and Ambivalence as Crip Pandemic Affects, Or, I’m So Paranoid, I Think Your COVID Test Is About Me 在流感大流行影响下，如何驾驭偏执、修复和矛盾心理，或者，我太偏执了，我认为你的COVID测试是关于我的

Amyotrophic Lateral Sclerosis Pub Date : 2022-12-01 DOI: 10.25158/l11.2.13

Jiya Pandya

{"title":"On Navigating Paranoia, Repair, and Ambivalence as Crip Pandemic Affects, Or, I’m So Paranoid, I Think Your COVID Test Is About Me","authors":"Jiya Pandya","doi":"10.25158/l11.2.13","DOIUrl":"https://doi.org/10.25158/l11.2.13","url":null,"abstract":"How do my 'hermeneutics of suspicion' color this current crisis? In this auto-theoretical essay, I reflect upon the blend of judgment, suspicion, and paranoia that have settled into my body-mind this past year, and how these feelings shape my engagement with people, institutions, and systems. I have been taught that 'judgment' is an essential aspect of immigrant and crip safety. Recently, it has become my (crip)epistemology, and I cannot decide whether this is for better or worse. On the one hand, suspicion is productive. It has kept me and my loved ones alive in a time of deliberate death. On the other, it frustrates, disrupting my capacity for connection. I check my temperature constantly, I hear the guilt in my voice when my family in India tell me they have not left the apartment in months, I spend precious time with friends calculating their risk relative to mine, I go to protests but am afraid of the consequences of my solidarity. Drawing on Eve Sedgwick's essay on paranoid reading practices, Patricia Stuelke's Ruse of Repair, Sianne Ngai's work on ugly feelings, Nikolas Rose's analyses of somatic ethics, and Mel Chen's theory of racialized toxins, I explore the modalities that paranoia has both enabled and disabled for me. I examine my ambivalent relationship with repair—some reparative practices like mutual aid sustain queer/crip/immigrant community while others like cure constrict our lives. This piece aims to tease out the tensions latent in crip worldmaking between suspicion and generosity, public health and communal care, and paranoia and repair.\u0000","PeriodicalId":7777,"journal":{"name":"Amyotrophic Lateral Sclerosis","volume":"s3-29 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2022-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"90820562","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Crip Pandemic Conversation 瘸腿大流行对话

Amyotrophic Lateral Sclerosis Pub Date : 2022-12-01 DOI: 10.25158/l11.2.6

Alyson Patsavas, Theodora Danylevich, Margaret Fink, Aimi Hamraie, M. Khúc, Sandie Yi, Corbin Outlaw

{"title":"Crip Pandemic Conversation","authors":"Alyson Patsavas, Theodora Danylevich, Margaret Fink, Aimi Hamraie, M. Khúc, Sandie Yi, Corbin Outlaw","doi":"10.25158/l11.2.6","DOIUrl":"https://doi.org/10.25158/l11.2.6","url":null,"abstract":"'Crip Pandemic Conversation: Textures, Tools, and Recipes,' brings together experts whose scholarship, curation, organizing and artistic work centers crip insights and creativity to reflect on the work that 'Crip Pandemic Life: A Tapestry' undertakes. Margaret Fink, Aimi Hamraie, Mimi Khúc, and Sandie Yi each discuss how the pandemic impacted their work, and they join section co-editors Alyson Patsavas and Theodora Danylevich in discussing the tapestry's content. Their conversation pulls out some of the most salient threads of the work: smallness, grief, care, community-building, tenderness, and pandemic coping tools. 'Crip Pandemic Conversation: Textures, Tools, and Recipes' includes an unedited video recording of a Zoom roundtable session, a lightly edited text version of the conversation, and a glossary of terms that appear in the discussion, as a contextualizing access tool located at the bottom of the document. In choosing a preferred way of engaging with the content, we invite readers to consider, as the roundtable participants themselves do, how access (transcripts, zoom recordings, and captions) produces its own caring archive and knowledge-making practices.\u0000","PeriodicalId":7777,"journal":{"name":"Amyotrophic Lateral Sclerosis","volume":"3 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2022-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"79093983","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

August 2020 2020年8月

Amyotrophic Lateral Sclerosis Pub Date : 2022-12-01 DOI: 10.25158/l11.2.18

Jennifer Scuro

引用次数: 0

A Dialogue and Reflection about the Masks for Crips Project 关于“为瘸子戴面具”计划的对话与反思

Amyotrophic Lateral Sclerosis Pub Date : 2022-12-01 DOI: 10.25158/l11.2.10

Alison Kopit, Chunfang Yi

{"title":"A Dialogue and Reflection about the Masks for Crips Project","authors":"Alison Kopit, Chunfang Yi","doi":"10.25158/l11.2.10","DOIUrl":"https://doi.org/10.25158/l11.2.10","url":null,"abstract":"Masks for Crips was a mutual aid project that centered the Chicago disability community. Alison Kopit and Chun-shan (Sandie) Yi began the project at the onset of the COVID-19 pandemic, and it ran from March 2020 through July 2020. Early in the pandemic, when personal protective equipment (PPE) was difficult to come by and the state was not caring for those most impacted by the pandemic—disabled people, essential workers, people living in congregate facilities, and unhoused people, to name a few—the project provided homemade masks to disabled people and their care teams in the Chicagoland area. Masks for Crips addressed an infrastructural gap and disability community need in an urgent way, and provided information about how to use and care for masks, as well as best practices for reducing risk surrounding COVID-19. The project was born through text message-based conversation in March 2020 as Alison and Sandie held space for each other by sending memes, texts, and support informally. From those moments of connection, they proceeded to expand outward and develop a mutual aid project that delivered about 300 masks, start to finish. The project brought together delivery and mask-making volunteers while serving as a means of connection and an expression of disabled care during an isolating time.\u0000","PeriodicalId":7777,"journal":{"name":"Amyotrophic Lateral Sclerosis","volume":"87 10 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2022-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"83450214","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Surviving and Thriving: Queer Crip Pilipinx Kapwa Dream Worlds in Animal Crossing New Horizons 生存和繁荣:酷儿瘸子菲律宾人Kapwa梦想世界动物穿越新视野

Amyotrophic Lateral Sclerosis Pub Date : 2022-12-01 DOI: 10.25158/l11.2.7

Paulina Abustan

{"title":"Surviving and Thriving: Queer Crip Pilipinx Kapwa Dream Worlds in Animal Crossing New Horizons","authors":"Paulina Abustan","doi":"10.25158/l11.2.7","DOIUrl":"https://doi.org/10.25158/l11.2.7","url":null,"abstract":"As a queer, crip, genderfluid, and diasporic Pilipinx scholar-activist-educator, my ancestors, communities, and I live at the intersections of multiple sites of oppression and resistance. As someone who is sick, disabled, and neurodivergent, I experienced anxiety, depression, and chronic bodymind pain before the pandemic and even more during the pandemic. Nintendo Switch's Animal Crossing New Horizons (ACNH) video game kept me afloat during uncertain times. ACNH opened up a whole new alternative universe for me to live in. I meditated more when escaping to my scenic and calming virtual island. I relaxed more when fishing, catching butterflies, and hearing the tranquil ocean waves crash within the game. Building my dream world within my ACNH virtual game contributed to me surviving and fostering deeper friendships with fellow sick, disabled, neurodivergent, queer, transgender, Black, Indigenous, and/or people of color (BIPOC) friends. ACNH became a safe way for us to socialize and it continues to be a source of joy for many of us. I highlight how my experiences with ACNH allowed me to cultivate queer, crip, and decolonial Pilipinx Kapwa dream worlds where all beings including people, animals, land, water, and air thrive together.\u0000","PeriodicalId":7777,"journal":{"name":"Amyotrophic Lateral Sclerosis","volume":"79 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2022-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"88264918","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 1

How Do You Grieve During an Apocalypse? 在天启中你如何悲伤?

Amyotrophic Lateral Sclerosis Pub Date : 2022-12-01 DOI: 10.25158/l11.2.12

Jessie Male

引用次数: 0

The Queer Aut of Failure 失败的奇怪原因

Amyotrophic Lateral Sclerosis Pub Date : 2022-12-01 DOI: 10.25158/l11.2.14

[sarah] Cavar

{"title":"The Queer Aut of Failure","authors":"[sarah] Cavar","doi":"10.25158/l11.2.14","DOIUrl":"https://doi.org/10.25158/l11.2.14","url":null,"abstract":"I, a Mad, autistic, multiply-disabled person, began my PhD in Cultural Studies in September of 2020. I started to make my home in graduate school during the COVID-19 pandemic, fully online, and I've excelled, calling into question normative assumptions of in-person socialization, education, and collaboration as superior to their virtual counterparts. In this article, I reflect on the cripistemic pedagogies of failure that facilitated a neuroqueered and transMaddened transition to Zoom-based graduate life. I will also consider email, text messages, and video calls as equalizing mediums in which both formal and fugitive spaces can open for queercrip collaboration across borders, timezones, and access needs. Lastly, I will tell the stories of technological 'failures' that I have experienced—miscommunications, failing internet, time delays—as generative possibilities rather than indictments of a non-normative learning. Necessarily imperfect and rife with humorous, intriguing, and profoundly human failures, as well as surprising and generative openings, pandemic education has ushered in new queercrip, transMad, ways of knowing and teaching that have uniquely benefitted me. Far from a circumscribed or lacking educational landscape, I argue, post-COVID academia is filled with pedagogical and epistemological openings, holes through which new disabled and Mad scholars, myself included, can make ourselves a beautifully imperfect home space. I invite you inside.\u0000","PeriodicalId":7777,"journal":{"name":"Amyotrophic Lateral Sclerosis","volume":"60 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2022-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"77176794","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Autistic, Surviving, and Thriving Under COVID-19 在COVID-19下，自闭症，生存和繁荣

Amyotrophic Lateral Sclerosis Pub Date : 2022-12-01 DOI: 10.25158/l11.2.8

The Re•Storying Autism Collective, Sherri Liska, K. Singer, E. Gillespie, S. Peters, P. Douglas

{"title":"Autistic, Surviving, and Thriving Under COVID-19","authors":"The Re•Storying Autism Collective, Sherri Liska, K. Singer, E. Gillespie, S. Peters, P. Douglas","doi":"10.25158/l11.2.8","DOIUrl":"https://doi.org/10.25158/l11.2.8","url":null,"abstract":"This article takes up Mia Mingus' call to 'leave evidence' of how we have lived, loved, cared, and resisted under ableist neoliberalism and necropolitics during COVID-19. We include images of artistic work from activist zines created online during the COVID-19 pandemic and led by the Re•Storying Autism Collective. The zines evidence lived experiences of crisis and heightening systemic and intersectional injustices, as well as resistance through activist art, crip community, crip knowledges, digital research creation, and the forging of collective hope for radically inclusive autistic futures—what zine maker Emily Gillespie calls 'The neurodivergent, Mad, accessible, Basic Income Revolution.' We frame the images of artistic work with a coauthored description of the Collective's dream to create neurodivergent art, do creative research, and work for disability justice under COVID-19. The zine project was a gesture of radical hope during crisis and a dream for future possibilities infused with crip knowledges that have always been here. We contend that activist digital artmaking is a powerful way to archive, theorize, feel, resist, co-produce, and crip knowledge, and a way to dream collectively that emerged through the crisis of COVID-19. This is a new, collective, affective, and aesthetic form of evidence and call for 'forgetting' ableist capitalist colonialism and Enlightenment modes of subjectivity and knowledge production that target different bodies to exploit, debilitate, and/or eliminate, and to objectify and flatten what it means to be and become human and to thrive together.\u0000","PeriodicalId":7777,"journal":{"name":"Amyotrophic Lateral Sclerosis","volume":"10 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2022-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"88379430","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0