Amyotrophic Lateral Sclerosis最新文献

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For Graduate Students, When the Sadness is Unbelievable 研究生,当悲伤是难以置信的
Amyotrophic Lateral Sclerosis Pub Date : 2023-06-01 DOI: 10.25158/l12.1.13
Kim Fernandes
{"title":"For Graduate Students, When the Sadness is Unbelievable","authors":"Kim Fernandes","doi":"10.25158/l12.1.13","DOIUrl":"https://doi.org/10.25158/l12.1.13","url":null,"abstract":"This essay is a meditation on the place of grief in graduate student life, an accounting for the ways that the pandemic has shaped research and the work that disabled graduate students have had to do to stay afloat. I begin by meandering through the grief of a family bereavement into the range of other kinds of crip grief that emerged at the start of the COVID-19 pandemic. Thinking with grief across scales, I ask the following questions: what might it mean to research and to write when our fields of inquiry shift even as they are being studied? How might we hold on to hope as a political practice even as undercurrents of grief work to wash it away? Where and how might we find and work with methodologies and practices that prioritize our embodied experiences during precarious, difficult times? Drawing on Melissa Kapadia’s work on chronic illness methodology and Gökce Günel, Saiba Varma, and Chika Watanabe’s manifesto for patchwork ethnography, I attend to the place of patchwork as a survival strategy for and beyond field research. Ultimately, this essay works with grief’s non-linearity, patching together memories and experiences to document one experience of the early years of the pandemic as means of making the aloneness of our graduate journeys less commonplace.\u0000","PeriodicalId":7777,"journal":{"name":"Amyotrophic Lateral Sclerosis","volume":"48 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2023-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"87438473","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
DISTORIES
Amyotrophic Lateral Sclerosis Pub Date : 2023-06-01 DOI: 10.25158/l12.1.9
Distories
{"title":"DISTORIES","authors":"Distories","doi":"10.25158/l12.1.9","DOIUrl":"https://doi.org/10.25158/l12.1.9","url":null,"abstract":"DISTORIES is a small open-source and open-access Instagram zine project, gathering testimonies from disabled contributors. This project began in the context of the summer of 2021, as mask mandates and general precautions around COVID-19 were being relaxed. Each chapter of the zine is introduced by a question, framing stories and snapshots of experience as well as demands, affirmations, and dreams shared by contributors. The project was stewarded by geunsaeng ahn from September 2021 to July 2022.\u0000","PeriodicalId":7777,"journal":{"name":"Amyotrophic Lateral Sclerosis","volume":"3 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2023-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"78876884","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
"It Means Possibility" “它意味着可能性”
Amyotrophic Lateral Sclerosis Pub Date : 2023-06-01 DOI: 10.25158/l12.1.3
Nathan Burns
{"title":"\"It Means Possibility\"","authors":"Nathan Burns","doi":"10.25158/l12.1.3","DOIUrl":"https://doi.org/10.25158/l12.1.3","url":null,"abstract":"Following the cataclysmic AIDS epidemic in the 1990s, a defiant embrace of the word \"queer\" and new technology sparked an influx of films by independent filmmakers that were later termed \"New Queer Cinema.\" As a product of its time, New Queer Cinema interrogates the heteronormativity it conflicts with and thus breeds a reimagining of what queer film can look like. The conflict between queer identity and its heteronormative surroundings drives distance between queer individuals and their communities, as well as larger social structures. This distance leads to a sense of isolation. This article explores themes of isolation within select New Queer Cinema films and offers a potential reference point from which we can understand queer life and cultural production in the midst of yet another global illness—COVID-19. Gus Van Sant’s 'My Own Private Idaho' (1991) highlights isolation from heteronormative social structures, particularly the nuclear family unit. Cheryl Dunye’s 'The Watermelon Woman' (1996) focuses on a curation of queer kinship as a survival tactic in the face of this isolation. Gregg Araki’s 'Totally Fucked Up' (1993) and Thomas Bezucha’s 'Big Eden' (2000) both explore themes of self-imposed isolation. 'Totally Fucked Up' provides an essential New Queer Cinema perspective of this phenomenon; meanwhile, 'Big Eden' challenges assumptions that queer individuals are destined to be isolated by imagining a future in which this is not the case. Themes of isolation are essential to the New Queer Cinema genre as a product of its circumstances. Yet, it also provides a basis from which the possibilities of future queer cinema and culture can be imagined. Understanding this relationship is critical as we begin to understand the effects of structural and social isolation on the queer community as exacerbated by COVID-19.\u0000","PeriodicalId":7777,"journal":{"name":"Amyotrophic Lateral Sclerosis","volume":"158 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2023-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"86352154","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
For the Moment, I Am Not Scrolling 此刻,我没有滚动屏幕
Amyotrophic Lateral Sclerosis Pub Date : 2023-06-01 DOI: 10.25158/l12.1.15
A. Culp, Claudia Skinner, Adi Kuntsman, E. Miyake, Tero Karppi
{"title":"For the Moment, I Am Not Scrolling","authors":"A. Culp, Claudia Skinner, Adi Kuntsman, E. Miyake, Tero Karppi","doi":"10.25158/l12.1.15","DOIUrl":"https://doi.org/10.25158/l12.1.15","url":null,"abstract":"Andrew Culp and Cultural Studies Association’s New Media and Digital Cultures Working Group Co-Chair Claudia Skinner take a look into Adi Kuntsman and Esperanza Miyake’s new book Paradoxes of Digital Disengagement: In Search of the Opt-Out Button, published by University of Westminster Press (2022). This podcast is accompanied by a scholarly commentary by Tero Karppi.\u0000","PeriodicalId":7777,"journal":{"name":"Amyotrophic Lateral Sclerosis","volume":"130 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2023-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"85772355","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Review of Elite Capture: How the Powerful Took Over Identity Politics (And Everything Else) by Olúfẹmi O. Táíwò (Haymarket Books / Pluto Press) 《精英俘获:权力如何接管身份政治(以及其他一切)》(Olúfẹmi O. Táíwò, Haymarket Books / Pluto Press)书评
Amyotrophic Lateral Sclerosis Pub Date : 2023-05-01 DOI: 10.25158/l12.1.21
Hunter Hilinski
{"title":"Review of Elite Capture: How the Powerful Took Over Identity Politics (And Everything Else) by Olúfẹmi O. Táíwò (Haymarket Books / Pluto Press)","authors":"Hunter Hilinski","doi":"10.25158/l12.1.21","DOIUrl":"https://doi.org/10.25158/l12.1.21","url":null,"abstract":"The discourse surrounding identity politics has become fraught with misunderstanding and co-optation by forces across the political spectrum. What was once a radical discourse initiated by the queer, Black, and Indigenous feminists of the Combahee River Collective has become a movement defined by incapacity, stigmatization, and misinterpretation. Olúfẹ́mi O. Táíwò sets out to clarify the nature of the identity politics movement and its relationship to the powerful institutions and individuals which have misappropriated the original radicalism of this idea to serve their own political gains. Through a materialist and narrative approach to identity politics and social critique, Táíwò argues that the problem is not with identity politics as such, but a specific power called \"elite capture,\" which stifles the potential latent in identity politics and genuine leftist social organizing. He concludes that, rather than deferring responsibility and accepting symbolic gestures of empty representation, we must begin to construct a new politics and a new house altogether.\u0000","PeriodicalId":7777,"journal":{"name":"Amyotrophic Lateral Sclerosis","volume":"18 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2023-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"81577364","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Review of The Breaks: An Essay by Julietta Singh (Coffee House Press) 《休息:茱莉亚塔·辛格随笔》书评(咖啡馆出版社)
Amyotrophic Lateral Sclerosis Pub Date : 2023-05-01 DOI: 10.25158/l12.1.22
P. Suresh
{"title":"Review of The Breaks: An Essay by Julietta Singh (Coffee House Press)","authors":"P. Suresh","doi":"10.25158/l12.1.22","DOIUrl":"https://doi.org/10.25158/l12.1.22","url":null,"abstract":"Julietta Singh uses an epistolary tradition to meditate on pressing challenges in the contemporary moment. She fixates on a resounding theme: how must we break from existing systems to truly center the most vulnerable in our institutions and epistemologies? In a long-form letter to her six-year-old daughter, Singh reflects on queer life and architecture, family trauma, radicalization, and collective mobilization.\u0000","PeriodicalId":7777,"journal":{"name":"Amyotrophic Lateral Sclerosis","volume":"15 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2023-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"90689355","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
The Black Shoals Dossier 黑浅滩档案
Amyotrophic Lateral Sclerosis Pub Date : 2023-04-01 DOI: 10.25158/l12.1.5
T. King, S. Latty, Stephanie Lumsden, Karyn Recollet, Megan Scribe
{"title":"The Black Shoals Dossier","authors":"T. King, S. Latty, Stephanie Lumsden, Karyn Recollet, Megan Scribe","doi":"10.25158/l12.1.5","DOIUrl":"https://doi.org/10.25158/l12.1.5","url":null,"abstract":"This dossier collects four reflections on 'The Black Shoals: Offshore Formations of Black and Native Studies' (2019) with responses by its author Tiffany Lethabo King. This dossier is based on an American Studies Association 2021 roundtable organized by Beenash Jafri.\u0000","PeriodicalId":7777,"journal":{"name":"Amyotrophic Lateral Sclerosis","volume":"32 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2023-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"83130555","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Review of Spectacle and Diversity: Transnational Media and Global Culture by Lee Artz (Routledge) 《奇观与多样性:跨国媒体与全球文化》李·阿尔茨(劳特利奇出版社)
Amyotrophic Lateral Sclerosis Pub Date : 2023-04-01 DOI: 10.25158/l12.1.20
Brittney Jimenez-Bayardo
{"title":"Review of Spectacle and Diversity: Transnational Media and Global Culture by Lee Artz (Routledge)","authors":"Brittney Jimenez-Bayardo","doi":"10.25158/l12.1.20","DOIUrl":"https://doi.org/10.25158/l12.1.20","url":null,"abstract":"Lee Artz’s Spectacle and Diversity: Transnational Media and Global Culture brings to our attention the ways transnational media has created representations of global culture. By analyzing examples of nations with transnational media networks he acknowledges how each nation’s media culture has become a reflection of transnational ideals. Artz critiques the transnational ideals that benefit elites and the careful fusing of the themes such as self-interest, social mobility, and individual successes into media to maintain the status quo. The book concludes with a plea for a non-capitalist international movement to bring forth a new media wave, which might benefit the interests of humanity.\u0000","PeriodicalId":7777,"journal":{"name":"Amyotrophic Lateral Sclerosis","volume":"21 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2023-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"78205987","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Review of Warring Visions: Photography and Vietnam by Thy Phu (Duke University Press) 《交战的视野:摄影与越南》(杜克大学出版社)
Amyotrophic Lateral Sclerosis Pub Date : 2023-03-01 DOI: 10.25158/l12.1.19
Collin Hawley
{"title":"Review of Warring Visions: Photography and Vietnam by Thy Phu (Duke University Press)","authors":"Collin Hawley","doi":"10.25158/l12.1.19","DOIUrl":"https://doi.org/10.25158/l12.1.19","url":null,"abstract":"Thy Phu’s Warring Visions: Photography and Vietnam draws on archives of the Vietnam War that center Vietnamese perspectives to complicate the historical and contemporary visual representation of Vietnamese identities that have been filtered through the Western narrative of the Vietnam War. Her book emphasizes the significance of typically denigrated visual materials including propaganda and vernacular photographs. She focuses on the complex deployment and reception of photographic objects as politicized symbols, sources of memorialization, and identity formation.\u0000","PeriodicalId":7777,"journal":{"name":"Amyotrophic Lateral Sclerosis","volume":"70 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2023-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"76007277","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Review of Media and the Affective Life of Slavery by Allison Paige (University of Minnesota Press) 《媒体与奴隶情感生活评论》艾莉森·佩奇著(明尼苏达大学出版社)
Amyotrophic Lateral Sclerosis Pub Date : 2023-02-01 DOI: 10.25158/l12.1.18
Michael L. Thomas
{"title":"Review of Media and the Affective Life of Slavery by Allison Paige (University of Minnesota Press)","authors":"Michael L. Thomas","doi":"10.25158/l12.1.18","DOIUrl":"https://doi.org/10.25158/l12.1.18","url":null,"abstract":"In 'Media and the Affective Life of Slavery,' Allison Page interrogates how media culture from the 1960s to the present has mobilized the legacy of slavery for affective governance, or \"the production and management of affect and emotion to align with governing rationalities\" (6). Throughout the book, Page’s analysis succeeds in providing a rich mapping of the converging interests of state actors, media producers, educational organizations, and other stakeholders as they narrate their own desire to manage emotions in the wake of the civil rights movement and to maintain white supremacist order.\u0000","PeriodicalId":7777,"journal":{"name":"Amyotrophic Lateral Sclerosis","volume":"47 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2023-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"73780747","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
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