Issues in comprehensive pediatric nursing最新文献_第9页

The costs of caring for a child with an autism spectrum disorder. 照顾一个自闭症谱系障碍儿童的费用。

Issues in comprehensive pediatric nursing Pub Date : 2012-01-01 DOI: 10.3109/01460862.2012.645407

Paula C Fletcher, Roula Markoulakis, Pamela J Bryden

{"title":"The costs of caring for a child with an autism spectrum disorder.","authors":"Paula C Fletcher, Roula Markoulakis, Pamela J Bryden","doi":"10.3109/01460862.2012.645407","DOIUrl":"https://doi.org/10.3109/01460862.2012.645407","url":null,"abstract":"Background: The primary purpose of this exploratory autism research was to examine the lived experiences of female primary caregivers of children with an autism spectrum disorder (ASD). Methods: Specifically the costs and benefits of the primary caregivers’ experiences were examined through semi-structured one-one-one interviews. The specific focus of this paper was to examine the costs of caring for a child with an ASD, whereby costs did not refer solely to monetary costs, but were related to all aspects of the caregivers’ lives. Interviews were completed with 8 mothers of children that had been formally diagnosed with an ASD. Results: Undoubtedly all family members within the family unit were affected by a child’s diagnosis with ASD as evidenced by the costs revealed by mothers. The subthemes derived from the theme of costs included the following: financial and work costs, costs to the health of family, social costs, and costs to overall family life. The results from this research provide evidence of the challenges associated with caring for a child with an ASD. Conclusions: It is anticipated that the insights provided by these mothers can act as a source of support for others faced with a similar situation. Additionally health care professionals may be able to use the knowledge gained from such qualitative endeavors in order to help parents cope more effectively with their caregiving responsibilities associated with children with ASDs. The mothers within this study are remarkable women that, for the most part, were able to rise above the negatives/costs associated with caring for a child with an ASD and find the silver linings amidst the turmoil. As remarkable as these women are in the daily struggles they face with their children, it is evident that more resources and support are required to assist these women and their families.","PeriodicalId":75953,"journal":{"name":"Issues in comprehensive pediatric nursing","volume":"35 1","pages":"45-69"},"PeriodicalIF":0.0,"publicationDate":"2012-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.3109/01460862.2012.645407","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"30390994","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 76

Mexican American mothers' eating and child feeding behaviors. 墨西哥裔美国母亲的饮食和儿童喂养行为。

Issues in comprehensive pediatric nursing Pub Date : 2012-01-01 DOI: 10.3109/01460862.2012.646462

Trina Aguirre, Diane Brage Hudson, Kim Weber, Bunny Pozehl, Linda Boeckner, Susan Wilhelm

{"title":"Mexican American mothers' eating and child feeding behaviors.","authors":"Trina Aguirre, Diane Brage Hudson, Kim Weber, Bunny Pozehl, Linda Boeckner, Susan Wilhelm","doi":"10.3109/01460862.2012.646462","DOIUrl":"https://doi.org/10.3109/01460862.2012.646462","url":null,"abstract":"Objective: The purpose of this study of Mexican-American mothers of 2-6 year old children was to explore the relationships among maternal attitude, perceived behavioral controls, mother's intent, mother's regulation of her own Simple Carbohydrate Intake (SCI), and mother's child feeding behaviors. The overall objective was to increase understanding of the complex process of intention to eat healthy.Methods: A prospective exploratory design using a convenience sample of a cohort of 82 Mexican-American mothers was used in this study. Structured questionnaires were selected to measure cognitive restraint, disinhibition, hunger, intent to regulate SCI, and mothers' monitoring, restricting, and pressuring of children's diets. Descriptive statistics and correlations were analyzed for each relationship.Results: The relationships between disinhibition, hunger, cognitive restraint, and the intent variable were significant. More than half of these mothers reported limiting soda and candy for themselves. According to the Food Frequency Questionnaire, mothers were regulating only one-third of simple carbohydrate items they intended to regulate. Significant relationships were found between mothers' regulation of her specific SCI and her control of child feeding behaviors including pressuring, monitoring, and restricting.Conclusion: The findings support the idea that mother's eating behaviors, attitudes, and intent may affect how they feed their pre-school children. Nurses need to develop and test interventions targeted at educating Mexican-American mothers about healthy food choices and healthy child feeding behaviors.","PeriodicalId":75953,"journal":{"name":"Issues in comprehensive pediatric nursing","volume":"35 1","pages":"4-23"},"PeriodicalIF":0.0,"publicationDate":"2012-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.3109/01460862.2012.646462","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"30390992","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 11

Risk-taking behaviors engaged in by early adolescents while on school property. 青少年早期在校园里的冒险行为。

Issues in comprehensive pediatric nursing Pub Date : 2012-01-01 DOI: 10.3109/01460862.2012.678261

Sharon D Horner, Lynn Rew, Adama Brown

{"title":"Risk-taking behaviors engaged in by early adolescents while on school property.","authors":"Sharon D Horner, Lynn Rew, Adama Brown","doi":"10.3109/01460862.2012.678261","DOIUrl":"https://doi.org/10.3109/01460862.2012.678261","url":null,"abstract":"Purpose: This longitudinal study was guided by a Youth Resilience Framework. The study purpose was to examine the influence of protective resources, contextual factors, and risk factors in middle childhood (grades 4-6) on health-risk behaviors (e.g., smoking cigarettes, using marijuana, drinking alcohol, carrying a weapon) engaged in on school property by early adolescents (grade 7) who live in rural central Texas.Methods: Students in grades 4 to 6, a majority of whom were Mexican American (54.3%) and male (56.4%), completed surveys annually until the 7th grade. Generalized estimating equations were run to determine predictors of 7th graders' health-risk behaviors on school property.Results: Engaging in healthy behaviors, knowing others cared about them, and having a sense of competence in middle childhood (grades 4-6) were found to be protective factors, while having a large family size and the expectation that they would not complete school were found to be risk factors for engaging in health risk behaviors in 7th grade.Practice implications: These findings show the influence of family and schools as environments that can offer protection from health-risk behaviors in early adolescence.","PeriodicalId":75953,"journal":{"name":"Issues in comprehensive pediatric nursing","volume":"35 2","pages":"90-110"},"PeriodicalIF":0.0,"publicationDate":"2012-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.3109/01460862.2012.678261","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"40193685","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 9

Parental stress in families of children with a genetic disorder/disability and the resiliency model of family stress, adjustment, and adaptation. 遗传疾病/残疾儿童家庭中的父母压力和家庭压力、调整和适应的弹性模型。

Issues in comprehensive pediatric nursing Pub Date : 2012-01-01 DOI: 10.3109/01460862.2012.646479

Heather R Hall, Susan L Neely-Barnes, J Carolyn Graff, Taylor E Krcek, Ruth J Roberts, Jane S Hankins

{"title":"Parental stress in families of children with a genetic disorder/disability and the resiliency model of family stress, adjustment, and adaptation.","authors":"Heather R Hall, Susan L Neely-Barnes, J Carolyn Graff, Taylor E Krcek, Ruth J Roberts, Jane S Hankins","doi":"10.3109/01460862.2012.646479","DOIUrl":"https://doi.org/10.3109/01460862.2012.646479","url":null,"abstract":"Background: Research suggests that parents of children with disabilities endure increased amounts of stress but also experience positive outcomes.Purpose: To further investigate findings from focus group interviews that explored parental stress in families of children with disabilities using a sequential mixed methods design.Method: This study sought to model parental stress using the McCubbin and McCubbin (1993) Resiliency Model of Stress, Adjustment, and Adaptation using qualitative and quantitative data collected sequentially. Twenty-five parents of children with autism spectrum disorder, cerebral palsy, Down syndrome, and sickle cell disease participated in a 2-step study that encompassed qualitative followed by quantitative data ascertainment.Results: Parents who quantitatively experienced high stress or low stress used different behavioral themes to describe their experience qualitatively. Positive appraisals, resources, and ability to engage in problem solving and coping were associated with family resiliency.","PeriodicalId":75953,"journal":{"name":"Issues in comprehensive pediatric nursing","volume":"35 1","pages":"24-44"},"PeriodicalIF":0.0,"publicationDate":"2012-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.3109/01460862.2012.646479","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"30390993","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 87

Taking care of my baby: mexican-american mothers in the neonatal intensive care unit. 照顾我的孩子:新生儿重症监护病房里的墨西哥裔美国母亲。

Issues in comprehensive pediatric nursing Pub Date : 2012-01-01 DOI: 10.3109/01460862.2012.709435

Lisa M Cleveland, Sharon D Horner

{"title":"Taking care of my baby: mexican-american mothers in the neonatal intensive care unit.","authors":"Lisa M Cleveland, Sharon D Horner","doi":"10.3109/01460862.2012.709435","DOIUrl":"https://doi.org/10.3109/01460862.2012.709435","url":null,"abstract":"Objectives: The admission of an infant to the neonatal intensive care unit (NICU) can produce significant stress for mothers and may contribute to a difficult transition following discharge. Past research has primarily focused on Caucasian women. Mexican-Americans are the fastest growing ethnic population in the U.S. with the highest fertility rate; therefore, the purpose of this grounded theory study was to gain a better understanding of the NICU experience for Mexican-American mothers.Methods: Fifteen women were recruited and data were collected through semi-structured interviews.Results: A theoretical model, taking care of my baby, was developed. The mothers' experiences began with the unexpected event of having an infant admitted to the NICU and played out in a context that fluctuated between being supportive (making meaningful connections) or inhibitive (struggling to mother). The women developed strategies to help them take care of their babies during the NICU stay: balancing responsibilities, leaving part of me with my baby, and watching over. The process concluded in one of two ways: bringing my baby home or losing my baby.Conclusion: These findings offer insight for neonatal nurses who provide care for Mexican-American NICU mothers and may help inform their practice. Further research is needed with this growing population to ensure supportive nursing care and influence positive outcomes.","PeriodicalId":75953,"journal":{"name":"Issues in comprehensive pediatric nursing","volume":"35 3-4","pages":"163-75"},"PeriodicalIF":0.0,"publicationDate":"2012-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.3109/01460862.2012.709435","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"31036721","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 9

Families of children with autism: behaviors of children, community support and coping. 自闭症儿童家庭:儿童行为、社区支持和应对。

Issues in comprehensive pediatric nursing Pub Date : 2012-01-01 DOI: 10.3109/01460862.2012.678263

Heather R Hall

{"title":"Families of children with autism: behaviors of children, community support and coping.","authors":"Heather R Hall","doi":"10.3109/01460862.2012.678263","DOIUrl":"https://doi.org/10.3109/01460862.2012.678263","url":null,"abstract":"Background: The diagnosis of autism for children (from birth to age 21) continues to increase, with the current rate being 1 in 110 children in the US. Besides financial strain, families often experience reduced quality of life due to disruptive behaviors related to autism. Research indicates that social support for families of children with autism improves family coping and adaptation.Method: A descriptive, correlational, cross-sectional study was conducted with 38 parents of children with autism. Using the McCubbin and Patterson (1983) model of family behavior, associations among behaviors of children with autism, community support for family, and family coping were analyzed.Results: Findings of this study indicate an association between increased community supports and increased family coping strategies (r=.451; p=.005). Results also suggest the levels of disruptive behaviors associated with autism vary, community support can be but is not always helpful, and that the family's ability to cope with the challenges of autism is important to the family.","PeriodicalId":75953,"journal":{"name":"Issues in comprehensive pediatric nursing","volume":"35 2","pages":"111-32"},"PeriodicalIF":0.0,"publicationDate":"2012-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.3109/01460862.2012.678263","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"40193111","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 48

Nature of communication: voices of 11-14 year old African-American girls and their mothers in regard to talking about sex. 交流的本质:11-14岁非裔美国女孩和她们的母亲谈论性的声音。

Issues in comprehensive pediatric nursing Pub Date : 2012-01-01 DOI: 10.3109/01460862.2012.678260

Teri Aronowitz, Ethel Agbeshie

{"title":"Nature of communication: voices of 11-14 year old African-American girls and their mothers in regard to talking about sex.","authors":"Teri Aronowitz, Ethel Agbeshie","doi":"10.3109/01460862.2012.678260","DOIUrl":"https://doi.org/10.3109/01460862.2012.678260","url":null,"abstract":"Background: Within the female population between the ages of 13 and 19, African Americans (AA) made up 70% of the cases of HIV seroconversionwithin the US in 2006. In light of this health disparity, prevention strategies should begin prior to age 13. The primary sex educator in families is the mother. Examining how mothers communicate with their daughters about sex and how their daughters respond could help healthcare professionals develop interventions to decrease this population's sexual risk.Objective: This qualitative study explored what AA mothers say to their daughters about sex, in what context the discussions occur, and how the daughters respond to their mothers' messages.Methods: Forty-two mother-daughter dyads were recruited from 4 inner-city community centers. Seven separate groups were conducted with mothers and daughters (ages 11-14) using focus group methodology and principles of Participatory Action Research.Results: Four codes emerged from the data, reflecting both verbal and nonverbal sexual communication. These were: level of disclosure; mixed messages; emotional tone; and knowing.Conclusions: Both becoming less reactive and more knowledgeable about her daughter's information processing may facilitat mother to create an environment that provide a positive emotional tone. This can then lead to increasing the daughter's comfort in initiatin a conversation with her mother about her intimate feelings and experiences.Implications: Findings from this study could assist in developing interventions geared towards open sexual communication with the goal of delaying sexual debut.","PeriodicalId":75953,"journal":{"name":"Issues in comprehensive pediatric nursing","volume":"35 2","pages":"75-89"},"PeriodicalIF":0.0,"publicationDate":"2012-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.3109/01460862.2012.678260","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"40193684","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 21

Maladaptive behaviors of children with autism: parent support, stress, and coping. 自闭症儿童的适应不良行为:父母支持、压力和应对。

Issues in comprehensive pediatric nursing Pub Date : 2012-01-01 DOI: 10.3109/01460862.2012.734210

Heather R Hall, J Carolyn Graff

{"title":"Maladaptive behaviors of children with autism: parent support, stress, and coping.","authors":"Heather R Hall, J Carolyn Graff","doi":"10.3109/01460862.2012.734210","DOIUrl":"https://doi.org/10.3109/01460862.2012.734210","url":null,"abstract":"Background: The estimated prevalence of Autism Spectrum Disorder (ASD) is one in 88. Autism Spectrum Disorders are nearly five times more common among boys than girls. Children with autism may develop a variety of socially unacceptable maladaptive behaviors beyond the defining symptoms of the spectrum disorder.Aims: It is necessary to conduct research to examine maladaptive behaviors of children with autism, family supports, parental stress, and parental coping.Methods: Data used were collected during an earlier descriptive, correlational, cross-sectional study. Using the Double ABCX Model of family behavior as the framework, this study evaluated parents' views of the adaptive behaviors of their children diagnosed with autism using the networks of support for their family, parental stress, and parental coping patterns.Results: Results indicate an association between increased Internalizing maladaptive behaviors and increased parental stress (r = .547, p = .000).Conclusions: The findings of this study suggest that parents of children with autism report that their children have clinically significant maladaptive behaviors. Healthcare providers could use results from this study to provide appropriate intervention for maladaptive behaviors to support children with autism and their families.","PeriodicalId":75953,"journal":{"name":"Issues in comprehensive pediatric nursing","volume":"35 3-4","pages":"194-214"},"PeriodicalIF":0.0,"publicationDate":"2012-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.3109/01460862.2012.734210","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"31039277","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 87

Sudden cardiac arrest in schools: the role of the school nurse in AED program implementation. 学校心脏骤停:学校护士在AED项目实施中的作用。

Issues in comprehensive pediatric nursing Pub Date : 2012-01-01 DOI: 10.3109/01460862.2012.708214

Sharon Boudreaux, Lisa Broussard

引用次数: 8

Effects of an internet intervention on mothers' psychological, parenting, and health care utilization outcomes. 网络干预对母亲心理、育儿和医疗保健利用结果的影响

Issues in comprehensive pediatric nursing Pub Date : 2012-01-01 DOI: 10.3109/01460862.2012.734211

Diane Brage Hudson, Christie Campbell-Grossman, Melody Hertzog

{"title":"Effects of an internet intervention on mothers' psychological, parenting, and health care utilization outcomes.","authors":"Diane Brage Hudson, Christie Campbell-Grossman, Melody Hertzog","doi":"10.3109/01460862.2012.734211","DOIUrl":"https://doi.org/10.3109/01460862.2012.734211","url":null,"abstract":"Aims and objectives: The purpose of this pilot study was to test the effects of an Internet-based intervention, the New Mothers Network, on single, low-income, adolescent, African American mothers' psychological, parenting, and health care utilization outcomes.Background: The study was based on social support theory.Methods: For mothers in the Intervention Group, MSNTV™ was installed in subjects' homes and connected to the Internet. Data were collected at 1 week, 6 weeks, 3 months, and 6 months following the infant's birth.Results: For infant health services utilization, 70.6% of those in the Control Group took their infant to the emergency room at least once during the study compared to 35.7% of mothers in the Intervention Group. The New Mothers Network allowed mothers to share their experiences and acquire information from nurses about caring for themselves and their infants.Conclusion: The New Mothers Network Web site is well poised for nursing driven social support intervention via the Internet, even though access devices are evolving over time.","PeriodicalId":75953,"journal":{"name":"Issues in comprehensive pediatric nursing","volume":"35 3-4","pages":"176-93"},"PeriodicalIF":0.0,"publicationDate":"2012-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.3109/01460862.2012.734211","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"31036722","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 33