Journal of recovery in mental health最新文献

{"title":"\"My Mother Makes Films to Cope with Her Demons\": Confronting Normality","authors":"Shabnam Sukhdev","doi":"10.33137/jrmh.v7i2.43070","DOIUrl":"https://doi.org/10.33137/jrmh.v7i2.43070","url":null,"abstract":"My daughter’s mental health condition had raised several questions about her diagnosis and recovery, and I wanted to make a film about it.  I had a rich family archive which I choose to call a ‘record’ of all that was going on around me. In addition, I was carrying my own lived experience and several years of struggle with my daughter’s condition: her hospitalizations and encounters with her doctors and therapists.  I was filming her because I didn’t know how else to cope with my situation.  I couldn’t watch the 2007 footage that I had shot during her episode until ten years after.  I began questioning the ethical reasons for documenting my daughter in that state; I also wanted to investigate the circumstances that led to her diagnosis.  Would she have ever been diagnosed if we had continued to live in India?  Could the triggers be related to her being the product of a broken home?  How can family history of mental illness be controlled?  Can the impact of illness be reversed?  Is mental illness a reality or is it a construct of society?  What is Normal?  How can my daughter claim agency in charting strategies for her own wellness?  How can she participate effectively in mainstream communities overcoming the stigma and labels?  Can art truly be instrumental in coping with mental illness and facilitate the healing process?  I could address some of the questions in the film, while others continue to be a driving force in our commitment to advocacy work through film screenings and panels.[1] This has not only proven to be a very empowering experience for both my daughter and myself, but also strengthened our relationship beyond the filial bond – giving us a strong purpose outside of our immediate circle of concern. \u0000  \u0000[1] You will find on-line links to several panels since the film’s release in 2021.","PeriodicalId":73927,"journal":{"name":"Journal of recovery in mental health","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2024-04-12","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140710795","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Mindful Moments for Family Caregivers","authors":"Mireille De Reland","doi":"10.33137/jrmh.v7i2.42806","DOIUrl":"https://doi.org/10.33137/jrmh.v7i2.42806","url":null,"abstract":"","PeriodicalId":73927,"journal":{"name":"Journal of recovery in mental health","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2024-04-12","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140711787","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"co-production of an intervention facilitating informal caregivers to support adults at risk of suicide and serious self-harm: a brief report","authors":"Deborah Frances","doi":"10.33137/jrmh.v7i2.42803","DOIUrl":"https://doi.org/10.33137/jrmh.v7i2.42803","url":null,"abstract":"The recovery model in mental healthcare increasingly recognises suicidal behaviour as an interpersonal issue, with caregivers seen as essential in prevention.  In the UK, as in other parts of the world, there is growing consensus in policies, guidelines and academic research towards carer involvement in a person’s mental healthcare, yet inconsistency in practice remain commonplace. \u0000In response to the theme of poor family involvement consistently identified in reports into deaths by suicide in Devon (UK), Devon Partnership NHS Trust has developed Stronger Together, a training programme for carers of suicidal adults.  The programme, co-produced with carers and service users, also includes a collaborative learning component with healthcare staff. \u0000This report explores the programme's co-production and my personal involvement.  Co-production shaped Stronger Together, aligning it with national policy and research findings.  Its co-delivery and co-learning approach uniquely addresses carers' needs and fosters staff-carer collaboration.  Learning from this initiative could help other mental health trusts foster a culture of carer collaboration, potentially improving patient safety, reducing caregiver burden and enhancing support for patients and families to reduce deaths by suicide.  It also strengthens the case for co-production of training that effectively meets the needs of participants and delivers on its outcomes.","PeriodicalId":73927,"journal":{"name":"Journal of recovery in mental health","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2024-04-12","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140709194","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Caregiver Mental Health: A Crucial Piece of the Recovery Puzzle","authors":"Loretta Karikari","doi":"10.33137/jrmh.v7i2.42805","DOIUrl":"https://doi.org/10.33137/jrmh.v7i2.42805","url":null,"abstract":"Caregiver Mental Health: A Crucial Piece of the Recovery Puzzle \u0000The role of a caregiver is multifaceted, encompassing physical, emotional, and sometimes financial responsibilities. Caregivers, whether family members or friends, find themselves navigating various emotions, uncertainties, and responsibilities. The stressors of caregiving and the emotional burden erode their own mental well-being, creating a silent crisis that is left out of the caregiver narrative. \u0000Studies reveal that caregivers grapple with anxiety, depression, and burnout. Poor mental health is well documented in the caregiving literature. \u0000One crucial avenue for support lies in psychoeducational programs tailored to caregivers. These initiatives offer practical tools to manage stress, enhance communication, and manage overall mental health. By equipping caregivers with knowledge, we empower them to navigate the challenges with greater understanding and confidence. \u0000Peer support networks represent another vital facet of caregiver well-being. Establishing communities where caregivers can share experiences, exchange coping strategies, and find solace in shared understanding is paramount. Breaking the isolation barrier can significantly alleviate the emotional burden on caregivers, creating a sense of belonging in a community that comprehends their unique struggles. \u0000Yet, the responsibility does not rest solely on caregivers and their communities. Institutions and policymakers must step forward to enact supportive measures. By addressing systemic barriers, we acknowledge the societal responsibility to nurture the mental health of those who selflessly nurture others. \u0000In nurturing the mental health of caregivers, we fortify the backbone of the recovery process, ensuring a more resilient, compassionate, and sustainable path forward. \u0000  \u0000  \u0000 ","PeriodicalId":73927,"journal":{"name":"Journal of recovery in mental health","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2024-04-12","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140710675","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"NAMI Family-to-Family Program Focuses on Family Caregiver Needs","authors":"Elaine Miller","doi":"10.33137/jrmh.v7i2.43072","DOIUrl":"https://doi.org/10.33137/jrmh.v7i2.43072","url":null,"abstract":"National Alliance on Mental Illness (NAMI) Family-to-Family Program now being offered at Ontario Shores in virtual format, including how and where it was designed, its duration, the class topics, and how it helps family caregivers.  Participant testimonials are shared in the article as well as how to register for the course for those interested in taking it.","PeriodicalId":73927,"journal":{"name":"Journal of recovery in mental health","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2024-04-12","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140711095","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Aging Well Together: Promoting Brain Health for Aging Individuals with IDD and Their Families","authors":"Serrina Philip","doi":"10.33137/jrmh.v7i2.43071","DOIUrl":"https://doi.org/10.33137/jrmh.v7i2.43071","url":null,"abstract":"Adults with intellectual and developmental disabilities (IDD) have been historically excluded from participating in aging-focused research, continue to experience barriers accessing appropriate health care, and encounter distinct challenges as they age compared to people without IDD. These challenges and their effects often extend to their immediate support system, including family caregivers, including parents, siblings, and other kin. Family caregivers, often in the role of 'perpetual caregivers,' can struggle to support aging adults with IDD as they also concurrently experience the effects of their own aging, potentially hindering their ability to provide lifelong care. As parents age, the burden of care may shift to others within this support network such as siblings who, due to various constraints (e.g., geographic location, personal obligations, and financial restrictions) can also experience challenging caregiving responsibilities. Research on the mental health of family caregivers has predominantly focused either on the impact of caregiving among parents of people with IDD (and to a lesser extent on siblings) or on late-life caregivers of aging adults without IDD. This leaves a significant gap in understanding how to support caregivers during mid-late adulthood as their family member with IDD ages or as they themselves undergo age-related changes.     \u0000In this paper, we provide a brief overview of research on family caregiving of older adults with IDD, followed by a description of a national effort, The Brain Health-IDD initiative. This initiative aims to develop strategies that will support the promotion of brain health in aging adults with IDD and their family caregivers. As part of this effort, family caregivers, both siblings and parents of adults with IDD are working together with researchers and clinicians to co-design, co-deliver and evaluate a virtual education program for families.   \u0000 The paper concludes by reflecting on the program's importance from the perspective of sibling and parent caregivers. This inclusive approach emphasizes the broader responsibility of supporting families navigating the challenges of disability and aging in mid-late adulthood, highlighting the need for support and awareness across all levels of care.     \u0000 ","PeriodicalId":73927,"journal":{"name":"Journal of recovery in mental health","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2024-04-12","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140710234","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Editorial: Caregiving Challenges and Opportunities in Canada","authors":"Mary Chiu","doi":"10.33137/jrmh.v7i2.43068","DOIUrl":"https://doi.org/10.33137/jrmh.v7i2.43068","url":null,"abstract":"","PeriodicalId":73927,"journal":{"name":"Journal of recovery in mental health","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2024-04-12","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140709111","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Who Care for our Caregivers? Building the Evidence For Change","authors":"Lauren Bates","doi":"10.33137/jrmh.v7i2.43069","DOIUrl":"https://doi.org/10.33137/jrmh.v7i2.43069","url":null,"abstract":"Unpaid caregivers are in distress. Almost two thirds (63%) of caregivers are at the breaking point – but feel they have no choice but to continue on (Spotlight Report: 2022). While caregivers find their role meaningful and know that they play a crucial role in sustaining our health, social and long-term care systems, they also feel invisible and unvalued, struggling with only ad hoc support. The Ontario Caregiver Coalition, a grassroots non-profit coalition of caregivers and the organizations that support them, is advocating for recognition and support for the family, friends and neighbours whose unpaid care is the hidden backbone of Ontario’s health system.","PeriodicalId":73927,"journal":{"name":"Journal of recovery in mental health","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2024-04-12","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140711727","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"A Parental Perspective On A Diagnosis Of Schizophrenia","authors":"Shane Christensen","doi":"10.33137/jrmh.v7i2.42757","DOIUrl":"https://doi.org/10.33137/jrmh.v7i2.42757","url":null,"abstract":"","PeriodicalId":73927,"journal":{"name":"Journal of recovery in mental health","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2024-04-12","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140711274","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Feasibility, validity and reliability of the Dutch translation of INCRESE (INCRESE-NL) inventory to characterize mental health recovery narratives","authors":"Mitch Nicolaas Lases, J. Bruins, Fiona Ng, S. Rennick-Egglestone, Joy Llewellyn-Beardsley, Mike Slade, N. van Sambeek, Floortje E Scheepers, Ingrid D C van Balkom, Stynke Castelein","doi":"10.33137/jrmh.v7i1.39398","DOIUrl":"https://doi.org/10.33137/jrmh.v7i1.39398","url":null,"abstract":"Objective: Methods for characterizing mental health recovery narratives are needed to enable the selection of helpful narratives which can support the recovery processes of other people. The Inventory of Characteristics of Recovery Stories (INCRESE) is an existing English-language tool to characterize recovery narratives, which is not available in Dutch. The aims of this study were to create a Dutch translation of INCRESE and to evaluate the feasibility of sustained and routine use, as well as its validity and reliability. \u0000Research design and methods: INCRESE was translated into Dutch (INCRESE-NL) using an established translation methodology. Six coders with different professional backgrounds rated 30 purposively selected Dutch narratives using INCRESE-NL and then completed an evaluation survey. Feasibility was assessed qualitatively and content validity both qualitatively and quantitatively. Gwet’s AC1 agreement coefficient was used to calculate intercoder reliability.   \u0000Results: Coders evaluated INCRESE-NL as a suitable instrument to capture important characteristics of recovery narratives with an acceptable administrative burden. The content validity index was sufficient for 5/7 sections of INCRESE-NL. Most items were found to be clear and suitable for capturing the corresponding characteristic, although some missed strict coding rules or clear descriptions, especially in section 4 on narrative characteristics. Gwet’s AC1 could be calculated for 67/77 items, of which 62 scored sufficient and five scored below threshold. Gwet’s AC1 coefficients corresponded well with the original INCRESE Fleiss Kappa values.   \u0000Conclusions: INCRESE-NL has sufficient feasibility, validity and reliability and can be used to characterize Dutch recovery narratives.","PeriodicalId":73927,"journal":{"name":"Journal of recovery in mental health","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2024-01-30","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140482005","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}