{"title":"Applying Theoretical Perspectives and Activism to Understand and Combat Mental Health Stigma","authors":"Sarah Sawaf","doi":"10.33137/jrmh.v5i2.37860","DOIUrl":"https://doi.org/10.33137/jrmh.v5i2.37860","url":null,"abstract":"Mental health-related stigma results in individual, communal, and societal consequences such as stereotypical thoughts, prejudiced feelings and attitudes, discriminatory behaviours, social injustice, and inequity toward individuals with mental health issues. As a result, individuals living with mental illness often experience decreased self-esteem, loss of identity, isolation, exacerbated mental illness, internalized self-stigma, housing and employment discrimination, academic challenges, and barriers in various aspects of life. Research indicated that stigma continues to persist despite increased knowledge about mental health, expanded treatment options, and an abundance of mental health promotion and stigma reduction programs. Thus, we must further examine mental health-related stigma from various theoretical conceptualizations to understand its persistence. This paper applied two theoretical frameworks: Social Learning Theory and Sociological Imagination Theory to better understand mental health stigma. It argues that activism aids in reducing mental health stigma. This paper also suggests that program developers of future mental health stigma reduction efforts should apply activism into their initiatives to promote social justice and equity for people living with mental disorders. ","PeriodicalId":73927,"journal":{"name":"Journal of recovery in mental health","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2022-07-07","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"49424126","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Imran Ali, A. Benkwitz, P. McDonald, Katherine A Allen, A. Glover
{"title":"Reflections on Co-production, Lived Experience and the Shared Learning Environment within the Development and Early Delivery of a Recovery College.","authors":"Imran Ali, A. Benkwitz, P. McDonald, Katherine A Allen, A. Glover","doi":"10.33137/jrmh.v5i2.37890","DOIUrl":"https://doi.org/10.33137/jrmh.v5i2.37890","url":null,"abstract":"Objective: This study sought to explore and value the experiences of the service users, staff, carers and volunteers who were involved in the development and early establishment of a recovery college in a large mental health Trust in the United Kingdom. \u0000Research Design and Methods: This qualitative study used Interpretative Phenomenological Analysis (IPA) to explore the experiences of 25 participants who were involved in the design, development and early delivery phases of the recovery college. Data was collected using face-to-face semi-structured interviews. \u0000Results: The findings discuss a number of key features relating to participants’ experiences of the development of the recovery college, with the central themes being: 1) co-production; 2) lived experience; and 3) the shared learning environment. \u0000Conclusions: Key recommendations for those seeking to develop their own recovery college include: i) co-production is essential, but there are both philosophical and practical considerations; ii) lived experience is valuable, but it needs to be valued and supported within both the recovery college and the host organisation; and iii) the shared learning environment and educational approach of the college is vital and needs equity of opportunity between the service users, staff, carers and volunteers involved.","PeriodicalId":73927,"journal":{"name":"Journal of recovery in mental health","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2022-07-07","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"42433091","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Diego André Hortêncio Ortega Dos Santos, Graziela Reis, M. Costa, Claudio E. M. Banzato, Chyrell D Bellamy, M. O'Connell, Heather McDonald-Bellamy, L. Davidson, R. Onocko-Campos
{"title":"Qualitative Study to Support Future Implementation of Peer Support in a Psychiatric Emergency Room Service in Campinas, Brazil","authors":"Diego André Hortêncio Ortega Dos Santos, Graziela Reis, M. Costa, Claudio E. M. Banzato, Chyrell D Bellamy, M. O'Connell, Heather McDonald-Bellamy, L. Davidson, R. Onocko-Campos","doi":"10.33137/jrmh.v5i2.38178","DOIUrl":"https://doi.org/10.33137/jrmh.v5i2.38178","url":null,"abstract":"Abstract \u0000 \u0000Objective: This article describes the findings from a qualitative study conducted in a psychiatric emergency room at the Hospital of the State University of Campinas (Unicamp). Two focus groups collect data from people with serious mental illness (SMI) and professionals from hospital-based psychiatric services (HBPS) to explore challenges and opportunities for future implementation of peer support on Unicamp psychiatric emergency room service in Campinas Brazil. Research Design: The study was conducted in Campinas, Brazil, in January 2020. Volunteers formed two focus groups (n = 10) and discussed relevant questions to implement a peer-based model on the ER psychiatric unit. Methods: Thematic Analysis was used for this study. The sessions were recorded and later transcribed, and data were analyzed and organized in Themes. Results: The research team grouped four themes from the client's perceptions of challenges: lack of access to mental health services, lack of care, treatment voiceless, self-perception about stigma. The client's perceptions of opportunities generate two themes: trust and relationships and appraisal of emotional network and support. The professional's perceptions developed four themes of challenges described as sustainability and adherence to treatment, living with serious mental illness, ER professional roles and limits, and implementation of peer support in the ER. The professional's perceptions of opportunities generated two themes: understanding peer support roles and the positive impact of peer support in the ER. Conclusions: The qualitative data highlights the need for peer support working in the ER psychiatric unit. Also suggested the relevance of large-scale research to build strategies to future implement peer support on the ER psychiatric unit. \u0000Keywords: \u0000Qualitative research, peer support, people with serious mental illness, mental health workers.","PeriodicalId":73927,"journal":{"name":"Journal of recovery in mental health","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2022-07-07","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"49162400","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Caroline Yeo, Stefan Rennick-Egglestone, Victoria Armstrong, Marit Borg, Ashleigh Charles, Laurie Hare Duke, Joy Llewellyn-Beardsley, Fiona Ng, Kristian Pollock, Scott Pomberth, Rianna Walcott, Mike Slade
{"title":"The Influence of Curator Goals on Collections of Lived Experience Narratives: A Qualitative Study.","authors":"Caroline Yeo, Stefan Rennick-Egglestone, Victoria Armstrong, Marit Borg, Ashleigh Charles, Laurie Hare Duke, Joy Llewellyn-Beardsley, Fiona Ng, Kristian Pollock, Scott Pomberth, Rianna Walcott, Mike Slade","doi":"","DOIUrl":"","url":null,"abstract":"<p><strong>Objective: </strong>The aim of this study was to investigate how curator goals influence the design of curation processes for collections of mental health lived experience narratives. The objectives were (1) to characterize the goals of a range of curators of existing collections, and (2) to identify specific working practices impacted by these goals.</p><p><strong>Research design and methods: </strong>Thirty semi-structured interviews were conducted with a purposive sample of curators of collections of lived experience narratives. Thematic analysis was conducted. Goals and impacts on working practice were tabulated, and narrative summaries were constructed to describe the relation between the two.</p><p><strong>Results: </strong>Curators interviewed were from seven countries (Brazil, Canada, Hong Kong, India, Italy, UK, USA), and 60% had lived experience of mental health service usage. Participants discussed eight goals that inspired their work: fighting stigma, campaigning for change in service provision, educating about mental health and recovery, supporting others in their recovery journey, critiquing psychiatry, influencing policy, marketing health services, and reframing mental illness. These goals influenced how decisions were made about inclusion of narratives, editing of narrative content, withdrawal rights, and anonymization.</p><p><strong>Conclusions: </strong>Our work will support the development of curatorship as a professional practice by shaping training for curators, helping curators reflect on the outcomes they would like to achieve, and helping individuals planning a collection to reflect on their motivations. We argue that transparency is an essential orientation for curators. Transparency allows narrators to make an informed choice about donating a narrative. It allows policy makers to understand the influences on a collection and hence treat it as a source of collective evidence.</p>","PeriodicalId":73927,"journal":{"name":"Journal of recovery in mental health","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2021-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7612150/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"39788700","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Mark Pearson, Stefan Rennick-Egglestone, Gary Winship
{"title":"How Can Poetry Support the Understanding of Psychotic Experiences? - A Conceptual Review.","authors":"Mark Pearson, Stefan Rennick-Egglestone, Gary Winship","doi":"","DOIUrl":"","url":null,"abstract":"<p><strong>Objective: </strong>The therapeutic application of poetry for those who have experienced psychosis remains under researched and potentially undervalued. This paper presents a conceptual review exploring the relationship between poetry and psychosis, based on a synthesis of existing literature.</p><p><strong>Research design and methods: </strong>The review identified papers from a range of sources and disciplines. Initial searches were undertaken using databases CINAHL, PsycINFO and ASSIA; this search was then followed up with a library search for key texts and a further search for associated grey literature involving exploring blogs and conference presentations. The data was then synthesized based on methods from both narrative review and thematic analysis to generate a conceptual framework.</p><p><strong>Results: </strong>The results reveal a conceptual framework comprised of three domains: i) psychotic language as meaningful poetics, ii) poetry as an expression of psychosis and iii) poetic exchange as therapeutic practice. The conceptual framework proposes that not only can psychosis be understood as meaningful poetics, but also that poetry may offer meaningful linguistic opportunities to aid the expression and narration of self and experiences. The potential for extending our understanding of the poetry in this way is analogous to forms of talking therapy, and this may be a base for extending understanding and communicative practice for a range of mental health professions.</p><p><strong>Conclusion: </strong>The conceptual framework suggests a novel understanding of psychosis in relation to poetry, moving away from traditional biomedical paradigms and placing importance upon individual narratives.</p>","PeriodicalId":73927,"journal":{"name":"Journal of recovery in mental health","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2020-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7612154/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"39788701","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Joy Llewellyn-Beardsley, Skye Barbic, Stefan Rennick-Egglestone, Fiona Ng, James Roe, Ada Hui, Donna Franklin, Emilia Deakin, Laurie Hare-Duke, Mike Slade
{"title":"INCRESE: Development of an Inventory to Characterize Recorded Mental Health Recovery Narratives.","authors":"Joy Llewellyn-Beardsley, Skye Barbic, Stefan Rennick-Egglestone, Fiona Ng, James Roe, Ada Hui, Donna Franklin, Emilia Deakin, Laurie Hare-Duke, Mike Slade","doi":"","DOIUrl":"","url":null,"abstract":"<p><strong>Objective: </strong>Mental health recovery narratives are increasingly used in clinical practice, public health campaigns, and as directly-accessed online resources. No instrument exists to describe characteristics of individual recovery narratives. The aims were to develop and evaluate an inventory to characterize recorded recovery narratives.</p><p><strong>Research design and methods: </strong>A preliminary version of the Inventory of Characteristics of Recovery Stories (INCRESE) was generated from an existing theory-base. Feasibility and acceptability were evaluated by two coders each rating 30 purposively-selected narratives. A refined version was produced and a formal evaluation conducted. Reliability was assessed by four coders each rating 95 purposively-selected narratives. Inter-coder reliability was assessed using Fleiss's kappa coefficients; test-retest reliability was assessed using intra-class correlation coefficients (ICCs).</p><p><strong>Results: </strong>Multiple refinements to description, coding categories, and language were made. Data completeness was high, and no floor or ceiling effects were found. Intercoder reliability ranged from moderate (k=0.58) to perfect (k=1.00) agreement. Test-retest reliability ranged from moderate (ICC=0.57) to complete (ICC=1.00) agreement. The final INCRESE comprises 77 items spanning five sections: Narrative Eligibility; Narrative Mode; Narrator Characteristics; Narrative Characteristics; Narrative Content.</p><p><strong>Conclusion: </strong>INCRESE is the first evaluated tool to characterize mental health recovery narratives. It addresses current concerns around normative recovery narratives being used to promote compulsory wellness, e.g. by identifying narratives that reject diagnosis as an explanatory model and those with non-upward trajectories. INCRESE can be used to establish the diversity of a narrative collection and will be used in the NEON trials (ISRCTN11152837, ISRCTN63197153, ISRCTN76355273) to allow a recommender system to match narratives to participants.</p>","PeriodicalId":73927,"journal":{"name":"Journal of recovery in mental health","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2020-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7612151/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"39788699","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}