Journal of applied research in intellectual disabilities : JARID最新文献_第7页

The Impact of the Birth of a Child with Intellectual Disabilities on Pre-Existing Parental Christian Faith from the Perspective of Parents Who Have Parented Their Child to Adulthood. 智障儿童的出生对父母既有基督教信仰的影响——从养育孩子到成年的父母的视角。

Journal of applied research in intellectual disabilities : JARID Pub Date : 2015-11-01 Epub Date: 2015-03-30 DOI: 10.1111/jar.12147

Susannah Baines, Chris Hatton

{"title":"The Impact of the Birth of a Child with Intellectual Disabilities on Pre-Existing Parental Christian Faith from the Perspective of Parents Who Have Parented Their Child to Adulthood.","authors":"Susannah Baines, Chris Hatton","doi":"10.1111/jar.12147","DOIUrl":"https://doi.org/10.1111/jar.12147","url":null,"abstract":"Background: Faith in the lives of UK families with an adult with intellectual disabilities is an under-researched area with little existing literature. Research in the United States with Christian parents suggests that they draw on their faith for coping (Rogers-Dulan 1998) and for understanding (Skinner et al. 1999).Methods: In this study, grounded theory methodology has been used to examine the impact on pre-existing parental faith of the birth of a child with intellectual disabilities from the perspective of parents who have parented their children to adulthood. Seventeen parents or couples took part in semistructured qualitative interviews about their faith.Results: The majority of parents after their child were diagnosed with intellectual disabilities went through a period of flux when they questioned the role of God in the disability.Conclusions: The positive or negative connotations of the attempts at meaning-making did not impact on the eventual outcome for the parents. They eventually put such existential questions aside, accepted their child, and continued in their faith. The implications of the research for health professionals, church organizations and researchers are considered.","PeriodicalId":73610,"journal":{"name":"Journal of applied research in intellectual disabilities : JARID","volume":"28 6","pages":"524-35"},"PeriodicalIF":0.0,"publicationDate":"2015-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1111/jar.12147","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"33172328","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 2

Validity of the Family Quality of Life Survey-2006. 二零零六年家庭生活质素调查的有效性。

Journal of applied research in intellectual disabilities : JARID Pub Date : 2015-11-01 Epub Date: 2015-04-27 DOI: 10.1111/jar.12141

Adrienne Perry, Barry Isaacs

{"title":"Validity of the Family Quality of Life Survey-2006.","authors":"Adrienne Perry, Barry Isaacs","doi":"10.1111/jar.12141","DOIUrl":"https://doi.org/10.1111/jar.12141","url":null,"abstract":"Background: Family Quality of Life (FQOL) is an important construct in the Intellectual Disabilities field. Several measures exist, including one developed by an international group, the Family Quality of Life Survey-2006 (FQOLS-2006; Brown et al.2006). However, the psychometric properties of this measure have yet to be fully investigated. This study was designed to examine its concurrent validity compared to the well established Beach Center FQOL Scale.Materials and methods: In a sample of 62 families of school-aged Canadian children with intellectual disability and/or autism spectrum disorder, both the FQOLS-2006 and the Beach Center FQOL scale were administered and the scores compared.Results: The total scores of the two measures were strongly correlated, as were particular subscales that would be expected to correlate. However, there were several surprising correlations as well.Conclusions: The FQOLS-2006 shows good concurrent validity relative to the Beach Center scale, although some domains show unexpected relationships, suggesting further research is needed.","PeriodicalId":73610,"journal":{"name":"Journal of applied research in intellectual disabilities : JARID","volume":"28 6","pages":"584-8"},"PeriodicalIF":0.0,"publicationDate":"2015-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1111/jar.12141","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"33132562","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 33

The Effectiveness of Intensive Interaction, A Systematic Literature Review. 强化互动的有效性，系统的文献综述。

Journal of applied research in intellectual disabilities : JARID Pub Date : 2015-11-01 Epub Date: 2015-01-07 DOI: 10.1111/jar.12138

Nick Hutchinson, Anna Bodicoat

{"title":"The Effectiveness of Intensive Interaction, A Systematic Literature Review.","authors":"Nick Hutchinson, Anna Bodicoat","doi":"10.1111/jar.12138","DOIUrl":"https://doi.org/10.1111/jar.12138","url":null,"abstract":"Background: Intensive Interaction is an approach used for communicating with people with profound and multiple intellectual disabilities or autism. It has gained increased recognition as a helpful technique, but the evidence has not been systematically reviewed.Method: Computerized and hand searches of the literature were conducted using synonyms for 'intellectual disabilities', 'autism' and 'intensive interaction'.Results: Fifteen quantitative and three qualitative papers were identified examining the efficacy of the approach with participants across the age range in both educational and residential settings.Conclusions: Studies were limited by the quality of reporting and difficulties conducting good quality, ethically sound research with participants with PMID. Staff support should be considered in training to aid implementation of interventions. Studies attempted to investigate whether Intensive Interaction builds social interactions or reduces repetitive or self-injurious behaviour. More research needs to be conducted before conclusions can be drawn regarding the efficacy of this approach.","PeriodicalId":73610,"journal":{"name":"Journal of applied research in intellectual disabilities : JARID","volume":"28 6","pages":"437-54"},"PeriodicalIF":0.0,"publicationDate":"2015-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1111/jar.12138","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"32954802","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 22

The GO4KIDDS Brief Adaptive Scale. GO4KIDDS简要自适应量表。

Journal of applied research in intellectual disabilities : JARID Pub Date : 2015-11-01 Epub Date: 2015-04-06 DOI: 10.1111/jar.12143

Adrienne Perry, Azin Taheri, Victoria Ting, Jonathan Weiss

{"title":"The GO4KIDDS Brief Adaptive Scale.","authors":"Adrienne Perry, Azin Taheri, Victoria Ting, Jonathan Weiss","doi":"10.1111/jar.12143","DOIUrl":"https://doi.org/10.1111/jar.12143","url":null,"abstract":"Background: Accurate measurement of adaptive behaviour is important in both clinical and research contexts. While several good clinical measures exist, as well as brief research measures for adults with intellectual disability, there is need for a brief and efficient measure for research with children and youth. We present preliminary psychometric properties of a new scale we developed for such purposes, the GO4KIDDS Brief Adaptive Behaviour Scale.Materials and methods: A large sample (n = 432) of parents of youth (aged 3-20) with intellectual disability and/or ASD completed an online survey that included the new scale. A subsample of these parents (n = 204) also completed the Scales of Independent Behavior-Revised Short Form (Scales of Independent Behavior-Revised Comprehensive Manual, 1996 and Riverside Publishing).Results: The new scale has good internal consistency and correlates strongly with the Scales of Independent Behavior, thus supporting its reliability and validity.Conclusions: Although we do not recommend its use for clinical purposes, the GO4KIDDS Brief Adaptive Behaviour Scale may be useful for survey research with parents of children and youth with developmental disabilities.","PeriodicalId":73610,"journal":{"name":"Journal of applied research in intellectual disabilities : JARID","volume":"28 6","pages":"594-7"},"PeriodicalIF":0.0,"publicationDate":"2015-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1111/jar.12143","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"33192355","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 20

The Behaviour Problems Inventory-Short Form: Reliability and Factorial Validity in Adults with Intellectual Disabilities. 行为问题量表简表:智力障碍成人的信度和析因效度。

Journal of applied research in intellectual disabilities : JARID Pub Date : 2015-11-01 Epub Date: 2015-03-10 DOI: 10.1111/jar.12152

Andréa N Mascitelli, Johannes Rojahn, Vias C Nicolaides, Linda Moore, Richard P Hastings, Ceri Christian-Jones

{"title":"The Behaviour Problems Inventory-Short Form: Reliability and Factorial Validity in Adults with Intellectual Disabilities.","authors":"Andréa N Mascitelli, Johannes Rojahn, Vias C Nicolaides, Linda Moore, Richard P Hastings, Ceri Christian-Jones","doi":"10.1111/jar.12152","DOIUrl":"https://doi.org/10.1111/jar.12152","url":null,"abstract":"Background: The Behaviour Problems Inventory-Short Form (BPI-S) is a spin-off of the BPI-01 that was empirically developed from a large BPI-01 data set. In this study, the reliability and factorial validity of the BPI-S was investigated for the first time on newly collected data from adults with intellectual disabilities.Methods: The sample consisted of 232 adults with intellectual disabilities who represented all levels of intellectual functioning. They were recruited at several day programs in the USA (n = 148) and the UK (n = 84).Results: We found acceptable reliability in terms of internal consistency, inter-rater agreement and test-retest reliability. Confirmatory factor analysis validated the three BPI-S subscale structure.Conclusions: We corroborated the factor structure underly-ing the three subscales and found the BPI-S to have adequate to good psychometric properties in a newly collected sample of adults with intellectual disabilities.","PeriodicalId":73610,"journal":{"name":"Journal of applied research in intellectual disabilities : JARID","volume":"28 6","pages":"561-71"},"PeriodicalIF":0.0,"publicationDate":"2015-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1111/jar.12152","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"32995523","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 33

Exploring Carers' Judgements of Responsibility and Control in Response to the Challenging Behaviour of People with Intellectual Disabilities. 探讨照顾者在面对智障人士的挑战行为时的责任及控制判断。

Journal of applied research in intellectual disabilities : JARID Pub Date : 2015-11-01 Epub Date: 2015-03-05 DOI: 10.1111/jar.12146

Sophie Williams, Dave Dagnan, Jacqui Rodgers, Mark Freeston

{"title":"Exploring Carers' Judgements of Responsibility and Control in Response to the Challenging Behaviour of People with Intellectual Disabilities.","authors":"Sophie Williams, Dave Dagnan, Jacqui Rodgers, Mark Freeston","doi":"10.1111/jar.12146","DOIUrl":"https://doi.org/10.1111/jar.12146","url":null,"abstract":"Background: This study examines Weiner's recent cognitive emotional model which makes a distinction between judgements of control and responsibility and emphasizes the moderation of control by 'mitigating' factors.Method: In response to four vignettes describing two conditions of control (high or low) and mitigating factors (present or absent), questionnaires rating judgements of responsibility and emotional responses (anger and sympathy) were completed by 52 care staff.Results: Analysis of the data for sympathy demonstrated that attributions of control were moderated by communication ability and that the effect of control upon sympathy was mediated by the judgement of responsibility.Conclusions: The data offer tentative support Weiner's account of the mitigation of control attributions in making responsibility judgements and their subsequent effects on emotional responses. Implications for research and clinical work are discussed.","PeriodicalId":73610,"journal":{"name":"Journal of applied research in intellectual disabilities : JARID","volume":"28 6","pages":"589-93"},"PeriodicalIF":0.0,"publicationDate":"2015-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1111/jar.12146","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"33115712","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 4

'Transitions are Scary for our Kids, and They're Scary for us': Family Member and Youth Perspectives on the Challenges of Transitioning to Adulthood with Autism. “过渡对我们的孩子来说是可怕的，他们对我们来说也是可怕的”:家庭成员和青少年对自闭症成年人过渡挑战的看法。

Journal of applied research in intellectual disabilities : JARID Pub Date : 2015-11-01 Epub Date: 2015-03-05 DOI: 10.1111/jar.12150

Nancy C Cheak-Zamora, Michelle Teti, Jennifer First

{"title":"'Transitions are Scary for our Kids, and They're Scary for us': Family Member and Youth Perspectives on the Challenges of Transitioning to Adulthood with Autism.","authors":"Nancy C Cheak-Zamora, Michelle Teti, Jennifer First","doi":"10.1111/jar.12150","DOIUrl":"https://doi.org/10.1111/jar.12150","url":null,"abstract":"Background: Adolescents with autism spectrum disorder (ASD) face many challenges as they age into adulthood. Because little is known about the perspectives of caregivers and youth during this critical transition, this study explored their social, educational, and vocational needs and experiences.Method: Two focus groups were conducted with youth with ASD (n = 13) and two focus groups were conducted with their caregivers (n = 19), where theme analysis strategies derived from Grounded Theory were utilized to identify themes.Results: Both groups experienced fear and anxiety about transitioning, unmet needs were also high, leaving caregivers struggling to fill gaps. Most caregivers and youth reported lacking individualized services. Caregivers faced difficulty in motivating youth and creating opportunities for education and employment. Although youth have future goals, they were unaware of steps needed to accomplish them and hesitant to talk to caregivers.Conclusions: Findings indicate considerable unmet needs for caregivers and youth with ASD. Perspectives of both groups should be considered when developing programmes and educating providers.","PeriodicalId":73610,"journal":{"name":"Journal of applied research in intellectual disabilities : JARID","volume":"28 6","pages":"548-60"},"PeriodicalIF":0.0,"publicationDate":"2015-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1111/jar.12150","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"32996515","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 117

Systematic Reviews of the Health or Health care of People with Intellectual Disabilities: A Systematic Review to Identify Gaps in the Evidence Base. 智障人士健康或卫生保健的系统评价:一项识别证据基础差距的系统评价。

Journal of applied research in intellectual disabilities : JARID Pub Date : 2015-11-01 Epub Date: 2015-03-31 DOI: 10.1111/jar.12149

Janet Robertson, Chris Hatton, Susannah Baines, Eric Emerson

{"title":"Systematic Reviews of the Health or Health care of People with Intellectual Disabilities: A Systematic Review to Identify Gaps in the Evidence Base.","authors":"Janet Robertson, Chris Hatton, Susannah Baines, Eric Emerson","doi":"10.1111/jar.12149","DOIUrl":"https://doi.org/10.1111/jar.12149","url":null,"abstract":"Background: Systematic reviews are important in evaluating evidence concerning the health of people with intellectual disabilities. This study conducts a systematic review to identify strengths and gaps in this evidence.Method: Electronic literature searches and email requests identified systematic reviews published in English from 2008 to 2013 on the health or health care of people with intellectual disabilities. Reviews were categorized using ICD-10 chapter headings and information extracted regarding methods, number of studies reviewed and findings.Results: Ninety-four reviews were identified: 52 related to ICD-10 Chapter V: Mental or behavioural disorders, 28 to Chapter XXI: Factors influencing health status and contact with services, and 14 related to other chapters or encompassed multiple chapters. Nine reviews were 'empty'. No reviews were found for many ICD-10 chapter headings.Conclusions: Systematic reviews are heavily weighted towards mental health, with little coverage of several areas important to the health and mortality of people with intellectual disabilities.","PeriodicalId":73610,"journal":{"name":"Journal of applied research in intellectual disabilities : JARID","volume":"28 6","pages":"455-523"},"PeriodicalIF":0.0,"publicationDate":"2015-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1111/jar.12149","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"33176185","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 52

Risk and Resilience Factors in the Mental Health and Well-Being of Women with Intellectual Disability. 智力残疾妇女心理健康和福祉的风险和复原力因素。

Journal of applied research in intellectual disabilities : JARID Pub Date : 2015-11-01 Epub Date: 2015-04-10 DOI: 10.1111/jar.12153

Jennifer Ann Conder, Brigit Frances Mirfin-Veitch, Sue Gates

{"title":"Risk and Resilience Factors in the Mental Health and Well-Being of Women with Intellectual Disability.","authors":"Jennifer Ann Conder, Brigit Frances Mirfin-Veitch, Sue Gates","doi":"10.1111/jar.12153","DOIUrl":"https://doi.org/10.1111/jar.12153","url":null,"abstract":"Background: Women with intellectual disability are thought to be at increased risk of mental illness, yet little is known about resiliency factors supporting women's mental health. This article reports on such factors drawn from a study that aimed to address how women with intellectual disability experience their mental health and well-being.Materials and methods: Utilizing a broad qualitative approach, 25 New Zealand women, aged 21-65 years were interviewed about their life from childhood to the present, including, where relevant, their experience of mental illness. Data were analysed using a general inductive approach.Results: Resiliency factors aligned with the theme 'keeping mentally well', subthemes of which were as follows: the importance of relationships with family and friends; keeping busy; and autonomy and happiness. Challenges for resiliency could be seen in the theme 'mental illness' where subthemes of abuse, long-term stress and medication were identified.Conclusions: Many of the women demonstrated remarkable resiliency, despite setbacks and exposure to risks, provided they were nested within a supportive context. Those women who experienced major mental illness shared evidence of both higher risk factors and less support available at crucial times.","PeriodicalId":73610,"journal":{"name":"Journal of applied research in intellectual disabilities : JARID","volume":"28 6","pages":"572-83"},"PeriodicalIF":0.0,"publicationDate":"2015-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1111/jar.12153","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"33085365","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 20

Mothers and Fathers at Play with their Children with Down Syndrome: Influence on Child Exploratory and Symbolic Activity. 父母与唐氏综合症儿童的游戏:对儿童探索性和象征性活动的影响。

Journal of applied research in intellectual disabilities : JARID Pub Date : 2010-11-01 Epub Date: 2010-04-14

Simona de Falco, Gianluca Esposito, Paola Venuti, Marc H Bornstein

{"title":"Mothers and Fathers at Play with their Children with Down Syndrome: Influence on Child Exploratory and Symbolic Activity.","authors":"Simona de Falco, Gianluca Esposito, Paola Venuti, Marc H Bornstein","doi":"","DOIUrl":"","url":null,"abstract":"BACKGROUND: Through play children exercise their emerging mental abilities, and for their part, when in collaborative play, caregivers often adjust their behaviours to assist their children's progress. In this study, we focused on comparisons between play of Down Syndrome (DS) children with their two parents as well as on comparisons between the two parents' play behaviours. METHOD: Altogether 40 parent-child dyads participated: 20 children with DS (M age = 36.14 months) with their mothers and separately with their fathers. We coded participants' play behaviours during child solitary and mother-child and father-child collaborative sessions. RESULTS: Although children increased exploratory play from solitary to collaborative sessions with both parents, symbolic play increased only during joint play with fathers. Fathers displayed less symbolic and more exploratory activity compared to mothers. Mothers and fathers alike were attuned to their children, although fathers showed a higher degree of attunement. CONCLUSIONS: This study shows that maternal and paternal contributions to DS child play skills are positive but different. During collaborative play children received specific and nonoverlapping scaffolding from their two parents, and fathers' contributions were unique.","PeriodicalId":73610,"journal":{"name":"Journal of applied research in intellectual disabilities : JARID","volume":"23 6","pages":"597-605"},"PeriodicalIF":0.0,"publicationDate":"2010-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3530190/pdf/nihms405416.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"40200477","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0