Journal of applied research in intellectual disabilities : JARID最新文献_第6页

Agency, social and healthcare supports for adults with intellectual disability at the end of life in out-of-home, non-institutional community residences in Western nations: A literature review. 机构、社会和医疗保健支持在西方国家的智力残疾成人在家庭外，非机构社区住宅生命结束:文献综述。

Journal of applied research in intellectual disabilities : JARID Pub Date : 2017-11-01 Epub Date: 2017-06-06 DOI: 10.1111/jar.12374

Teresa T Moro, Teresa A Savage, Sarah Gehlert

{"title":"Agency, social and healthcare supports for adults with intellectual disability at the end of life in out-of-home, non-institutional community residences in Western nations: A literature review.","authors":"Teresa T Moro, Teresa A Savage, Sarah Gehlert","doi":"10.1111/jar.12374","DOIUrl":"https://doi.org/10.1111/jar.12374","url":null,"abstract":"Background: The nature and quality of end-of-life care received by adults with intellectual disabilities in out-of-home, non-institutional community agency residences in Western nations is not well understood.Method: A range of databases and search engines were used to locate conceptual, clinical and research articles from relevant peer-reviewed journals.Results: The present authors present a literature review of the agency, social and healthcare supports that impact end-of-life care for adults with intellectual disabilities. More information is needed about where people with intellectual disabilities are living at the very end of life and where they die.Conclusions: The support needs for adults with intellectual disabilities will change over time, particularly at the end of life. There are some areas, such as removing barriers to providing services, staff training, partnerships between agencies and palliative care providers, and advocacy, where further research may help to improve the end-of-life care for adults with intellectual disabilities.","PeriodicalId":73610,"journal":{"name":"Journal of applied research in intellectual disabilities : JARID","volume":"30 6","pages":"1045-1056"},"PeriodicalIF":0.0,"publicationDate":"2017-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1111/jar.12374","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"35063779","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 12

Assessing knowledge and attitudes about end of life: Evaluation of three instruments designed for adults with intellectual disability. 评估关于生命终结的知识和态度:评估为智力残疾的成人设计的三种工具。

Journal of applied research in intellectual disabilities : JARID Pub Date : 2017-11-01 Epub Date: 2017-05-24 DOI: 10.1111/jar.12358

R J Stancliffe, M Y Wiese, S Read, G Jeltes, J M Clayton

{"title":"Assessing knowledge and attitudes about end of life: Evaluation of three instruments designed for adults with intellectual disability.","authors":"R J Stancliffe, M Y Wiese, S Read, G Jeltes, J M Clayton","doi":"10.1111/jar.12358","DOIUrl":"https://doi.org/10.1111/jar.12358","url":null,"abstract":"Background: This paper examines the development and psychometric characteristics of three instruments about end of life, designed for use with adults with intellectual disability (ID). Respectively, the instruments assess understanding of the concept of death, end-of-life planning, and fear of death.Methods: Part 1: instruments were developed or adapted, and pilot tested with 11 adults with ID and 2 disability staff. Part 2: 39 adults with ID and 40 disability staff were assessed on all three instruments.Results: We evaluated comprehensibility, internal consistency, inter-rater reliability, subscale: total score correlations, missing data, and withdrawal. Psychometric findings were mostly good. Overall, 23% of participants with ID withdrew at some point. This outcome may have been as much due to assessment fatigue as to sensitive content. There were no adverse events.Conclusions: People with ID can reliably complete assessments about end-of-life. Generally, each instrument was found to be comprehensible, reliable and valid.","PeriodicalId":73610,"journal":{"name":"Journal of applied research in intellectual disabilities : JARID","volume":"30 6","pages":"1076-1088"},"PeriodicalIF":0.0,"publicationDate":"2017-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1111/jar.12358","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"35028118","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 13

Intensive Interaction Training for Paid Carers: 'Looking, Looking and Find Out When They Want to Relate to You'. 针对付费护工的强化互动培训:“寻找，寻找，发现他们何时想与你建立联系”。

Journal of applied research in intellectual disabilities : JARID Pub Date : 2017-07-01 Epub Date: 2016-06-08 DOI: 10.1111/jar.12259

Maninder K Nagra, Rose White, Afua Appiah, Kelly Rayner

引用次数: 5

Stakeholders' Perspectives towards the Use of the Comprehensive Health Assessment Program (CHAP) for Adults with Intellectual Disabilities in Manitoba. 利益相关者对马尼托巴省使用智力残疾成人综合健康评估方案的看法。

Journal of applied research in intellectual disabilities : JARID Pub Date : 2017-07-01 Epub Date: 2016-06-09 DOI: 10.1111/jar.12261

Shahin Shooshtari, Beverley Temple, Celeste Waldman, Sneha Abraham, Héléne Ouellette-Kuntz, Nicholas Lennox

{"title":"Stakeholders' Perspectives towards the Use of the Comprehensive Health Assessment Program (CHAP) for Adults with Intellectual Disabilities in Manitoba.","authors":"Shahin Shooshtari, Beverley Temple, Celeste Waldman, Sneha Abraham, Héléne Ouellette-Kuntz, Nicholas Lennox","doi":"10.1111/jar.12261","DOIUrl":"https://doi.org/10.1111/jar.12261","url":null,"abstract":"Background: No standardized tool is used in Canada for comprehensive health assessments of adults with intellectual disabilities. This study was conducted to determine the feasibility of implementing the Comprehensive Health Assessment Program (CHAP) in Manitoba, Canada.Method: This was a qualitative study using a purposive sample of physicians, nurse practitioners, support workers and families. Data were collected through individual interviews and focus groups and were analysed using content analysis.Results: Use of the CHAP was perceived as beneficial for persons with intellectual disabilities. Improved continuity of care was of the reported benefits. Six barriers for the future implementation of the CHAP were identified including the time required to complete the CHAP, and the perceived lack of physicians' willingness to do comprehensive assessments.Conclusion: The future implementation of the CHAP was strongly supported. For its successful implementation, training of healthcare professionals and support staff and change in regulations and policies were recommended.","PeriodicalId":73610,"journal":{"name":"Journal of applied research in intellectual disabilities : JARID","volume":"30 4","pages":"672-683"},"PeriodicalIF":0.0,"publicationDate":"2017-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1111/jar.12261","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"34560219","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 10

Groups for Parents with Intellectual Disabilities: A Qualitative Analysis of Experiences. 智障父母群体:经验的定性分析。

Journal of applied research in intellectual disabilities : JARID Pub Date : 2017-07-01 Epub Date: 2016-05-11 DOI: 10.1111/jar.12258

Marie Gustavsson, Mikaela Starke

{"title":"Groups for Parents with Intellectual Disabilities: A Qualitative Analysis of Experiences.","authors":"Marie Gustavsson, Mikaela Starke","doi":"10.1111/jar.12258","DOIUrl":"https://doi.org/10.1111/jar.12258","url":null,"abstract":"Background: Parents with intellectual disabilities (IDs) are often socially isolated and need support.Materials and methods: This qualitative study is based on participant observations of a group for parents with with intellectual disabilities. Data were categorized and interpreted in the framework of social capital and symbolic interactionism.Results: Being a part of the parent group provided parents with a social network, which had the potential to be supportive in everyday life. The social workers in the group were seen as allies, and parents appeared to trust them and felt they could seek advice and tell them about their personal problems. The parents sometimes asked for advice about how to handle contacts with other professionals in their everyday life. The parents valued the social contact with the other parents.Conclusions: The group provided the parents with the opportunity to meet both other parents and two social workers. The group gave a greater number of social relations, adding to the parents' social capital and helping to reduce social isolation.","PeriodicalId":73610,"journal":{"name":"Journal of applied research in intellectual disabilities : JARID","volume":"30 4","pages":"638-647"},"PeriodicalIF":0.0,"publicationDate":"2017-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1111/jar.12258","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"34538595","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 7

Associations Among Vocabulary, Executive Function Skills and Empathy in Individuals with Autism Spectrum Disorder. 自闭症谱系障碍词汇、执行功能技能与共情的关系

Journal of applied research in intellectual disabilities : JARID Pub Date : 2017-07-01 Epub Date: 2016-05-02 DOI: 10.1111/jar.12257

JoAnne Cascia, Jason J Barr

{"title":"Associations Among Vocabulary, Executive Function Skills and Empathy in Individuals with Autism Spectrum Disorder.","authors":"JoAnne Cascia, Jason J Barr","doi":"10.1111/jar.12257","DOIUrl":"https://doi.org/10.1111/jar.12257","url":null,"abstract":"Background: Individuals with autism spectrum disorder (ASD) have been characterized as having deficits in social communication and empathy which present difficulties in the areas of social reciprocity, sharing of emotions and developing and maintaining relationships. This study explores the associations between vocabulary, executive function skills and empathy in individuals with ASD.Method: A survey study with a purposive sample was used. Twenty adolescents with ASD completed receptive and expressive vocabulary assessments while their parent and teacher completed executive function and empathy scales.Results: Results indicated that higher vocabulary and executive function skills were associated with higher empathy. Nonparametric analyses also showed that executive function mediated the association between empathy and vocabulary. Differences between parent and teacher responses were also explored.Conclusions: The results suggest that targeting vocabulary and executive function skills prior to, or in conjunction with, social skills in educational and therapeutic settings may prove beneficial.","PeriodicalId":73610,"journal":{"name":"Journal of applied research in intellectual disabilities : JARID","volume":"30 4","pages":"627-637"},"PeriodicalIF":0.0,"publicationDate":"2017-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1111/jar.12257","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"34449241","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 15

Evaluating the Performance Improvement Preferences of Disability Service Managers: An Exploratory Study Using Gilbert's Behavior Engineering Model. 残障服务管理者绩效改进偏好评估:基于吉尔伯特行为工程模型的探索性研究。

Journal of applied research in intellectual disabilities : JARID Pub Date : 2017-07-01 Epub Date: 2016-06-09 DOI: 10.1111/jar.12260

John R Wooderson, Monica Cuskelly, Kim A Meyer

{"title":"Evaluating the Performance Improvement Preferences of Disability Service Managers: An Exploratory Study Using Gilbert's Behavior Engineering Model.","authors":"John R Wooderson, Monica Cuskelly, Kim A Meyer","doi":"10.1111/jar.12260","DOIUrl":"https://doi.org/10.1111/jar.12260","url":null,"abstract":"Background: Front-line managers play an important role in managing the performance of staff working in services for people with intellectual disability, but little is known about the practices they prefer to use to improve staff performance and whether these align with what research has shown to be effective.Method: This study comprised two phases. First, the present authors tested the validity and reliability of a short questionnaire designed to evaluate managers' preferences for performance improvement practices. Then, the present authors collected and analysed responses from 175 managers working in disability services in Queensland, Australia.Results: The questionnaire demonstrated good content validity, concurrent validity and test-retest reliability. The participants believed strategies related to changing employee individual characteristics to be more effective than strategies aimed at improving environmental factors.Conclusions: This study provides important considerations regarding the professional development needs of front-line managers working in organizations that provide services to people with intellectual disability.","PeriodicalId":73610,"journal":{"name":"Journal of applied research in intellectual disabilities : JARID","volume":"30 4","pages":"661-671"},"PeriodicalIF":0.0,"publicationDate":"2017-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1111/jar.12260","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"34560215","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 3

Evaluating a Research Training Programme for People with Intellectual Disabilities Participating in Inclusive Research: The Views of Participants. 评估智障人士参与包容性研究的研究训练计划:参与者的意见。

Journal of applied research in intellectual disabilities : JARID Pub Date : 2017-07-01 Epub Date: 2016-06-09 DOI: 10.1111/jar.12262

Judit Fullana, Maria Pallisera, Elena Català, Carolina Puyalto

{"title":"Evaluating a Research Training Programme for People with Intellectual Disabilities Participating in Inclusive Research: The Views of Participants.","authors":"Judit Fullana, Maria Pallisera, Elena Català, Carolina Puyalto","doi":"10.1111/jar.12262","DOIUrl":"https://doi.org/10.1111/jar.12262","url":null,"abstract":"Background: This article presents the results of evaluating a research training programme aimed at developing the skills of people with intellectual disabilities to actively participate in inclusive research.Methods: The present authors opted for a responsive approach to evaluation, using a combination of interviews, questionnaires and focus groups to gather information on the views of students, trainers and members of the research team regarding how the programme progressed, the learning achieved and participants' satisfaction with the programme.Results: The evaluation showed that most of the participants were satisfied with the programme and provided guidelines for planning contents and materials, demonstrating the usefulness of these types of programme in constructing the research group and empowering people with intellectual disabilities to participate in research.Conclusions: The evaluation revealed that the programme had been a positive social experience that fostered interest in lifelong learning for people with intellectual disabilities.","PeriodicalId":73610,"journal":{"name":"Journal of applied research in intellectual disabilities : JARID","volume":"30 4","pages":"684-695"},"PeriodicalIF":0.0,"publicationDate":"2017-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1111/jar.12262","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"34452726","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 12

Life after release from prison: The experience of ex-offenders with intellectual disabilities. 出狱后的生活:有智力障碍的前罪犯的经历。

Journal of applied research in intellectual disabilities : JARID Pub Date : 2016-07-01 DOI: 10.1111/jar.12661

Pak Chiu, P. Triantafyllopoulou, G. Murphy

{"title":"Life after release from prison: The experience of ex-offenders with intellectual disabilities.","authors":"Pak Chiu, P. Triantafyllopoulou, G. Murphy","doi":"10.1111/jar.12661","DOIUrl":"https://doi.org/10.1111/jar.12661","url":null,"abstract":"BACKGROUND\u0000In the UK, little is known about the experience of ex-prisoners with intellectual disabilities.\u0000\u0000\u0000METHOD\u0000A qualitative study was therefore conducted to investigate what life is like for ten men with intellectual disabilities who left prison at least 9 months previously. Semi-structured interviews were employed to explore the men's views of post-prison life, including opportunities/challenges and support received from services.\u0000\u0000\u0000RESULTS\u0000Through interpretative phenomenological analysis, four over-arching themes were constructed: the nature of support and services, the difficulty of staying out of trouble, the importance of family and the need to act the \"tough guy\". The participants reported being extremely under-supported. They were often hostile about staff who they felt were too focused on their previous crime.\u0000\u0000\u0000CONCLUSIONS\u0000In general, men were very under-supported and the upheavals of post-prison lives appeared to be \"normalized\" by them. Better understanding of their lives within their social context would benefit their community re-entry.","PeriodicalId":73610,"journal":{"name":"Journal of applied research in intellectual disabilities : JARID","volume":"15 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2016-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"87740903","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 4

An Exploratory Investigation of the Role of Parenting Stress in Relationship Focused Intervention. 父母压力在关系聚焦干预中作用的探索性研究。

Journal of applied research in intellectual disabilities : JARID Pub Date : 2015-11-01 Epub Date: 2015-03-01 DOI: 10.1111/jar.12148

Turki Alquraini, Gerald Mahoney

{"title":"An Exploratory Investigation of the Role of Parenting Stress in Relationship Focused Intervention.","authors":"Turki Alquraini, Gerald Mahoney","doi":"10.1111/jar.12148","DOIUrl":"https://doi.org/10.1111/jar.12148","url":null,"abstract":"Background: Mothers of young children with Pervasive Developmental Disorders (PDD) and other disabilities (DD) have been reported to experience high levels of stress. This investigation examined the effects of parental stress on mothers' participation in a Relationship Focused intervention (RFI).Methods: Mothers and young children who had either PDD (n = 18) or DD (n = 26) received weekly RF intervention for one year.Results: Pre-post comparisons indicated significant increases in mothers' responsiveness and children's development and social emotional functioning. Intervention effects were greater for mothers of children with PDD than for mothers of children with DD. There were three findings related to the role parenting stress. First, high levels of parenting stress did not interfere with mothers' ability to learn RFI strategies; second, there were non-significant decreases in parenting stress during intervention; third, parenting stress enhanced the effects of mothers' responsiveness on children.Conclusion: High levels of parenting stress does not appear to interfere with parent participation in RFI.","PeriodicalId":73610,"journal":{"name":"Journal of applied research in intellectual disabilities : JARID","volume":"28 6","pages":"536-47"},"PeriodicalIF":0.0,"publicationDate":"2015-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1111/jar.12148","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"33093709","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 8