JMIR infodemiology最新文献

{"title":"#GenderAffirmingHormoneTherapy and Health Information on TikTok: Thematic Content Analysis.","authors":"Julia Rose Beatini, Nora Yanyi Sun, Julianna K Coleman, Maetal E Haas-Kogan, Andrea Pelletier, Deborah Bartz, Alex Sogomon Keuroghlian","doi":"10.2196/66845","DOIUrl":"https://doi.org/10.2196/66845","url":null,"abstract":"<p><strong>Background: </strong>Transgender and gender diverse people often turn to online platforms for information and support regarding gender-affirming hormone therapy (GAHT); however, analysis of this social media content remains scarce.</p><p><strong>Objective: </strong>We characterized GAHT-related videos on TikTok to highlight the implications relevant to GAHT prescribers.</p><p><strong>Methods: </strong>We used a web scraper to identify TikTok videos posted under the hashtags #genderaffirminghormonetherapy and #genderaffirminghormones as of November 2023. We identified recurrent themes via qualitative content analysis and assessed health education videos with the Patient Education Materials Assessment Tool for Audiovisual Materials (PEMAT-A/V) scale and a modified Currency, Relevance, Authority, Accuracy, and Purpose (CRAAP) test.</p><p><strong>Results: </strong>Out of 69 videos extracted, 71% (49/69) were created by GAHT users, 24.6% (17/69) were created by health care workers, and 21.7% (15/69) were created to provide health education. Themes included physical changes on testosterone, GAHT access, and combating misinformation and stigma surrounding GAHT. Health education videos scored highly on PEMAT-A/V items assessing understandability (mean 88.3%, SD 11.3%) and lower on actionability (mean 60.0%, SD 45.8%). On the CRAAP test, videos scored highly on the relevance, authority, and purpose domains but lower on the currency and accuracy domains.</p><p><strong>Conclusions: </strong>Discussions of GAHT on TikTok build community among transgender and gender diverse users, provide a platform for digital activism and resistance against legislation that limits GAHT access, and foster patient-provider dialogue. Educational videos are highly understandable and are created by reliable sources, but they vary in terms of currency and quality of supporting evidence, and they lack in actionability.</p>","PeriodicalId":73554,"journal":{"name":"JMIR infodemiology","volume":"5 ","pages":"e66845"},"PeriodicalIF":3.5,"publicationDate":"2025-04-29","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12054967/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144058023","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Large-Scale Deep Learning-Enabled Infodemiological Analysis of Substance Use Patterns on Social Media: Insights From the COVID-19 Pandemic.","authors":"Julina Maharjan, Jianfeng Zhu, Jennifer King, NhatHai Phan, Deric Kenne, Ruoming Jin","doi":"10.2196/59076","DOIUrl":"https://doi.org/10.2196/59076","url":null,"abstract":"&lt;p&gt;&lt;strong&gt;Background: &lt;/strong&gt;The COVID-19 pandemic intensified the challenges associated with mental health and substance use (SU), with societal and economic upheavals leading to heightened stress and increased reliance on drugs as a coping mechanism. Centers for Disease Control and Prevention data from June 2020 showed that 13% of Americans used substances more frequently due to pandemic-related stress, accompanied by an 18% rise in drug overdoses early in the year. Simultaneously, a significant increase in social media engagement provided unique insights into these trends. Our study analyzed social media data from January 2019 to December 2021 to identify changes in SU patterns across the pandemic timeline, aiming to inform effective public health interventions.&lt;/p&gt;&lt;p&gt;&lt;strong&gt;Objective: &lt;/strong&gt;This study aims to analyze SU from large-scale social media data during the COVID-19 pandemic, including the prepandemic and postpandemic periods as baseline and consequence periods. The objective was to examine the patterns related to a broader spectrum of drug types with underlying themes, aiming to provide a more comprehensive understanding of SU trends during the COVID-19 pandemic.&lt;/p&gt;&lt;p&gt;&lt;strong&gt;Methods: &lt;/strong&gt;We leveraged a deep learning model, Robustly Optimized Bidirectional Encoder Representations from Transformers Pretraining Approach (RoBERTa), to analyze 1.13 billion Twitter (subsequently rebranded X) posts from January 2019 to December 2021, aiming to identify SU posts. The model's performance was enhanced by a human-in-the-loop strategy that subsequently enriched the annotated data used during the fine-tuning phase. To gain insights into SU trends over the study period, we applied a range of statistical techniques, including trend analysis, k-means clustering, topic modeling, and thematic analysis. In addition, we integrated the system into a real-time application designed for monitoring and preventing SU within specific geographic locations.&lt;/p&gt;&lt;p&gt;&lt;strong&gt;Results: &lt;/strong&gt;Our research identified 9 million SU posts in the studied period. Compared to 2019 and 2021, the most substantial display of SU-related posts occurred in 2020, with a sharp 21% increase within 3 days of the global COVID-19 pandemic declaration. Alcohol and cannabinoids remained the most discussed substances throughout the research period. The pandemic particularly influenced the rise in nonillicit substances, such as alcohol, prescription medication, and cannabinoids. In addition, thematic analysis highlighted COVID-19, mental health, and economic stress as the leading issues that contributed to the influx of substance-related posts during the study period.&lt;/p&gt;&lt;p&gt;&lt;strong&gt;Conclusions: &lt;/strong&gt;This study demonstrates the potential of leveraging social media data for real-time detection of SU trends during global crises. By uncovering how factors such as mental health and economic stress drive SU spikes, particularly in alcohol and prescription medication, we offer ","PeriodicalId":73554,"journal":{"name":"JMIR infodemiology","volume":"5 ","pages":"e59076"},"PeriodicalIF":3.5,"publicationDate":"2025-04-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12046268/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144008603","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Exploring the Use of Social Media for Activism by Mexican Nongovernmental Organizations Using Posts From the 16 Days of Activism Against Gender-Based Violence Campaign: Thematic Content Analysis.","authors":"Marian Marian, Ramona L Pérez, Elizabeth Reed, Samantha Hurst, Rebecka Lundgren, Amanda C McClain, Kathryn M Barker","doi":"10.2196/67368","DOIUrl":"https://doi.org/10.2196/67368","url":null,"abstract":"<p><strong>Background: </strong>In the past decade, hashtag feminism has emerged in Mexico as a prevalent strategy to build social movements against gender-based violence (GBV). For example, during the global \"16 Days of Activism Against GBV\" campaign held between November 25 and December 10 each year, Mexico-based nongovernmental organizations (NGOs) turn to X (formerly known as Twitter) to share messages. Despite this prevalence, there is limited research on the type of information shared by these NGO activists on social media and the public's engagement with these messages.</p><p><strong>Objective: </strong>This study aims to explore the themes covered by Mexican NGOs on X and examine what types of messages related to GBV potentially resonated more with the public.</p><p><strong>Methods: </strong>We collated and reviewed posts (commonly known as tweets) published in Spanish on the platform X by Mexico-based NGOs between November 25 and December 10 of 2020, 2021, and 2022, a period when digital interactions increased during the COVID-19 pandemic. We then extracted posts using the following 4 hashtags: #16días, #16DiasdeActivismo, or #16DíasdeActivismo; #25N or #25Noviembre; #DiaNaranja or #DíaNaranja; and #PintaElMundoDeNaranja. We subsequently assessed the number of likes each post had and retained the top 200 posts from each year with the highest number of likes. We used the iterative content analysis process and the inductive 6-step qualitative thematic analysis method in NVivo software to code and analyze the final 600 posts.</p><p><strong>Results: </strong>Five themes emerged from the 16 Days of Activism Against GBV campaigns, covering both knowledge-sharing and activism-generating messages as follows: (1) activism and how to be an activist, (2) types of GBV most commonly highlighted in posts, (3) changing public discourse surrounding GBV, (4) GBV as a violation of human rights, and (5) the COVID-19 pandemic's impact on GBV. Most of the messages on these posts exclusively mentioned women and younger girls, while a few included adolescents. Gaps in the representation of vulnerable populations were also found.</p><p><strong>Conclusions: </strong>The posts from this campaign that were highly liked by the public reflect some of the most significant societal issues currently present in the country. Our results could help guide further GBV campaigns. Still, further research related to hashtag feminism by Mexico-based NGOs on GBV is needed to understand the population that NGOs reach and how the messages shared on these campaigns translate into activism on online and offline social media platforms.</p>","PeriodicalId":73554,"journal":{"name":"JMIR infodemiology","volume":"5 ","pages":"e67368"},"PeriodicalIF":3.5,"publicationDate":"2025-04-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12046259/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144025759","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Evolutionary Trend of Dental Health Care Information on Chinese Social Media Platforms During 2018-2022: Retrospective Observational Study.","authors":"Zhiyu Zhu, Zhiyun Ye, Qian Wang, Ruomei Li, Hairui Li, Weiming Guo, Zhenxia Li, Lunguo Xia, Bing Fang","doi":"10.2196/55065","DOIUrl":"https://doi.org/10.2196/55065","url":null,"abstract":"<p><strong>Background: </strong>Social media holds an increasingly significant position in contemporary society, wherein evolving public perspectives are mirrored by changing information. However, there remains a lack of comprehensive analysis regarding the nature and evolution of dental health care information on Chinese social media platforms (SMPs) despite extensive user engagement and voluminous content.</p><p><strong>Objective: </strong>This study aimed to probe into the nature and evolution of dental health care information on Chinese SMPs from 2018 to 2022, providing valuable insights into the evolving digital public perception of dental health for dental practitioners, investigators, and educators.</p><p><strong>Methods: </strong>This study was conducted on 3 major Chinese SMPs: Weibo, WeChat, and Zhihu. Data from March 1 to 31 in 2018, 2020, and 2022 were sampled to construct a social media original database (ODB), from which the most popular long-text posts (N=180) were selected to create an analysis database (ADB). Natural language processing (NLP) tools were used to assist tracking topic trends, and word frequencies were analyzed. The DISCERN health information quality assessment questionnaire was used for information quality evaluation.</p><p><strong>Results: </strong>The number of Weibo posts in the ODB increased approximately fourfold during the observation period, with discussion of orthodontic topics showing the fastest growth, surpassing that of general dentistry after 2020. In the ADB, the engagement of content on Weibo and Zhihu also displayed an upward trend. The overall information quality of long-text posts on the 3 platforms was moderate or low. Of the long-text posts, 143 (79.4%) were written by nonprofessionals, and 105 (58.3%) shared personal medical experiences. On Weibo and WeChat, long-text posts authored by health care professionals had higher DISCERN scores (Weibo P=.04; WeChat P=.02), but there was a negative correlation between engagement and DISCERN scores (Weibo tau-b [τb]=-0.45, P=.01; WeChat τb=-0.30, P=.02).</p><p><strong>Conclusions: </strong>There was a significant increase in the dissemination and evolution of public interest in dental health care information on Chinese social media during 2018-2022. However, the quality of the most popular long-text posts was rated as moderate or low, which may mislead patients and the public.</p>","PeriodicalId":73554,"journal":{"name":"JMIR infodemiology","volume":"5 ","pages":"e55065"},"PeriodicalIF":3.5,"publicationDate":"2025-04-10","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12022532/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144058116","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Online Information About Side Effects and Safety Concerns of Semaglutide: Mixed Methods Study of YouTube Videos.","authors":"Andy Wai Kan Yeung, Fabian Peter Hammerle, Sybille Behrens, Maima Matin, Michel-Edwar Mickael, Olena Litvinova, Emil D Parvanov, Maria Kletecka-Pulker, Atanas G Atanasov","doi":"10.2196/59767","DOIUrl":"10.2196/59767","url":null,"abstract":"<p><strong>Background: </strong>Social media has been extensively used by the public to seek information and share views on health issues. Recently, the proper and off-label use of semaglutide drugs for weight loss has attracted huge media attention and led to temporary supply shortages.</p><p><strong>Objective: </strong>The aim of this study was to perform a content analysis on English YouTube (Google) videos related to semaglutide.</p><p><strong>Methods: </strong>YouTube was searched with the words semaglutide, Ozempic, Wegovy, and Rybelsus. The first 30 full-length videos (videos without a time limit) and 30 shorts (videos that are no longer than 1 minute) resulting from each search word were recorded. After discounting duplicates resulting from multiple searches, a total of 96 full-length videos and 93 shorts were analyzed. Video content was evaluated by 3 tools, that is, a custom checklist, a Global Quality Score (GQS), and Modified DISCERN. Readability and sentiment of the transcripts were also assessed.</p><p><strong>Results: </strong>There was no significant difference in the mean number of views between full-length videos and shorts (mean 288,563.1, SD 513,598.3 vs mean 188,465.2, SD 780,376.2, P=.30). The former had better content quality in terms of GQS, Modified DISCERN, and the number of mentioned points from the custom checklist (all P<.001). The transcript readability of both types of videos was at a fairly easy level and mainly had a neutral tone. Full-length videos from health sources had a higher content quality in terms of GQS and Modified DISCERN (both P<.001) than their counterparts.</p><p><strong>Conclusions: </strong>The analyzed videos lacked coverage of several important aspects, including the lack of long-term data, the persistence of side effects due to the long half-life of semaglutide, and the risk of counterfeit drugs. It is crucial for the public to be aware that videos cannot replace consultations with physicians.</p>","PeriodicalId":73554,"journal":{"name":"JMIR infodemiology","volume":"5 ","pages":"e59767"},"PeriodicalIF":3.5,"publicationDate":"2025-04-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12015341/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143813132","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Appropriateness of Web-Based Resources for Home Blood Pressure Measurement and Their Alignment With Guideline Recommendations, Readability, and End User Involvement: Environmental Scan of Web-Based Resources.","authors":"Eleanor Clapham, Dean Picone, Samuel Carmichael, Carissa Bonner, Niamh Chapman","doi":"10.2196/55248","DOIUrl":"10.2196/55248","url":null,"abstract":"<p><strong>Background: </strong>High blood pressure (≥140/90 mm Hg) is the most prominent mortality risk factor worldwide. Home blood pressure measurement (HBPM) is recommended for blood pressure (BP) management. HBPM is most effective to improve BP management when delivered with patient education. It is unknown whether web-based resources are appropriate for patient education for HBPM. Patient education should provide accurate, evidence-based information, communicate at an eighth grade reading level, and involve end users in development to meet the needs of adults of all health literacy levels. Using these criteria, this study aimed to determine the appropriateness of web-based HBPM resources.</p><p><strong>Objective: </strong>This study aimed to determine whether web-based resources are appropriate for HBPM education based on three research questions: (1) Do web-based resources provide evidence-based information that aligns with guideline recommendations? (2) Do they communicate at an appropriate reading level? (3) Do they involve end users in their development?</p><p><strong>Methods: </strong>An environmental scan of web-based resources for HBPM was conducted on Google (October 2022) using search terms developed with consumers (n=6). Resources were included if they were identified on the first page of the search findings, not paywalled, and in English. Resource appropriateness was appraised based on three criteria: (1) alignment of resource content to 23 recommendations for HBPM from 6 international guidelines, (2) being at an appropriate grade reading level as determined by a health literacy assessment software, and (3) having evidence of end user involvement in resource development.</p><p><strong>Results: </strong>None of the identified resources (n=24) aligned with all 23 of the guideline recommendations. All resources aligned with the recommendation to measure BP when seated, while few aligned with the recommendation to use a validated BP device (n=9, 38%). All resources exceeded the recommended eighth grade reading level (mean 11.8, range 8.8-17.0) and none reported evidence of patient end user involvement in development.</p><p><strong>Conclusions: </strong>None of the web-based resources met the criteria for appropriate education to support adults to measure BP at home. Resources should be developed with end users using health literacy tools and multimodal communication methods to ensure they are appropriate to meet the needs of patients.</p>","PeriodicalId":73554,"journal":{"name":"JMIR infodemiology","volume":"5 ","pages":"e55248"},"PeriodicalIF":3.5,"publicationDate":"2025-04-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12006778/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143782251","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Mental Health and Coping Strategies of Health Communicators Who Faced Online Abuse During the COVID-19 Pandemic: Mixed Methods Study.","authors":"Lisa Wight, Chris Tenove, Saima Hirani, Heidi Tworek","doi":"10.2196/68483","DOIUrl":"10.2196/68483","url":null,"abstract":"&lt;p&gt;&lt;strong&gt;Background: &lt;/strong&gt;During the COVID-19 pandemic, health experts used social media platforms to share information and advocate for policies. Many of them faced online abuse, which some reported took a toll on their mental health and well-being. Variation in the impacts of online abuse on mental health, well-being, and professional efficacy suggest that health communicators may differ in their coping strategies and ultimately their resilience to such abuse.&lt;/p&gt;&lt;p&gt;&lt;strong&gt;Objective: &lt;/strong&gt;We aimed to explore the impacts of online abuse on health communicators' mental health and well-being as well as their emotion- and problem-focused coping strategies.&lt;/p&gt;&lt;p&gt;&lt;strong&gt;Methods: &lt;/strong&gt;We recruited health communicators (public health officials, medical practitioners, and university-based researchers) in Canada who engaged in professional online communication during the COVID-19 pandemic. In phase 1, semistructured interviews were conducted with 35 health communicators. In phase 2, online questionnaires were completed by 34 individuals before participating in workshops. Purposive recruitment resulted in significant inclusion of those who self-identified as racialized or women. Interview and workshop data were subjected to inductive and deductive coding techniques to generate themes. Descriptive statistics were calculated for selected questionnaire questions.&lt;/p&gt;&lt;p&gt;&lt;strong&gt;Results: &lt;/strong&gt;In total, 94% (33/35) of interviewees and 82% (28/34) of questionnaire respondents reported experiencing online abuse during the study period (2020-2022). Most health communicators mentioned facing an emotional and psychological toll, including symptoms of depression and anxiety. Racialized and women health communicators faced abuse that emphasized their ethnicity, gender identity, and physical appearance. Health communicators' most common emotion-focused coping strategies were withdrawing from social media platforms, avoiding social media platforms altogether, and accepting online abuse as unavoidable. Common problem-focused coping strategies included blocking or unfriending hostile accounts, changing online behavior, formal help-seeking, and seeking peer support. Due to the impacts of online abuse on participants' mental health and well-being, 41% (14/34) of the questionnaire respondents seriously contemplated quitting health communication, while 53% (18/34) reduced or suspended their online presence. Our findings suggest that health communicators who used problem-focused coping strategies were more likely to remain active online, demonstrating significant professional resilience.&lt;/p&gt;&lt;p&gt;&lt;strong&gt;Conclusions: &lt;/strong&gt;Although health communicators in our study implemented various emotion- and problem-focused coping strategies, they still faced challenges in dealing with the impacts of online abuse. Our findings reveal the limitations of individual coping strategies, suggesting the need for effective formal organizational policies to support those who ","PeriodicalId":73554,"journal":{"name":"JMIR infodemiology","volume":"5 ","pages":"e68483"},"PeriodicalIF":3.5,"publicationDate":"2025-04-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12004020/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143774534","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Breast Cancer Vlogs on YouTube: Descriptive and Content Analyses.","authors":"Nina Morena, Elly Dimya Htite, Yitzchok Ahisar, Victoria Hayman, Carrie A Rentschler, Ari N Meguerditchian","doi":"10.2196/66812","DOIUrl":"10.2196/66812","url":null,"abstract":"<p><strong>Background: </strong>Many women with breast cancer document their experiences in YouTube vlogs, which may serve as peer-to-peer and community support.</p><p><strong>Objective: </strong>This study aimed to determine (1) the forms of content about breast cancer that tend to be discussed in vlogs, (2) the reasons why women choose to vlog their breast cancer experiences, and (3) the potential for breast cancer vlogs to serve as an alternative or complement to peer-to-peer support as well as a site of digital community overall.</p><p><strong>Methods: </strong>YouTube was searched in incognito mode in November 2023 using the search terms \"breast cancer vlog.\" A maximum of 10 videos/creator were included based on viewership and date created. Video characteristics collected included title; length; number of views, likes, comments; and playlist inclusion. Videos were assessed for sponsorship; presence of explanation and discussion on breast cancer; type of content; and themes. Creator characteristics included age, location, and engagement approaches. Descriptive and content analyses were performed to analyze video content and potential areas where peer-to-peer support may be provided.</p><p><strong>Results: </strong>Ninety vlogs by 13 creators were included, all from personal accounts. The mean (SD) video length, number of views, and number of comments were 21.4 (9.1) minutes, 266,780 (534,465), and 1485 (3422), respectively. Of the 90 videos, 35 (39%) included hashtags, and 11 (12%) included paid sponsorships. The most common filming location was the home (87/90; 97%), followed by the hospital (28/90; 31%) and car (19/90; 21%). Home vlogs were most often set in the living room (43/90; 44%), bedroom (32/90; 33%), or kitchen (20/90; 21%). Thirty-four of 60 videos (57%) included treatment visuals and physical findings. Creators addressed motivation for vlogging in 44/90 videos (49%); the two most common reasons were wanting to build a community and helping others. In 42/90 videos (47%), creators explicitly expressed emotion. Most common themes were treatment (77/90; 86%), mental health (73/90; 81%), adverse effects (65/90; 72%), appearance (57/90; 63%), and family relationships (33/90; 37%). Patient-directed advice was offered in 52/90 videos (58%), mostly on treatment-related issues. In 51/90 videos (57%), creators provided explicit treatment definitions. Chemotherapy was discussed in 63/90 videos (70%); surgery in 52/90 (58%), primarily mastectomy; radiation in 27/90 (30%); and general adverse effects in 64/90 (71%). Twenty-two of 90 videos (24%) were about a new diagnosis. When mentioned (40/90; 44%), the most common creator location was the United States. When mentioned (27/90; 30%), the most common age was 20-29 years.</p><p><strong>Conclusions: </strong>The dedication to building community support by vlog creators, and the personal nature of their storytelling, may make vlogs a potential resource for peer-to-peer support.</p>","PeriodicalId":73554,"journal":{"name":"JMIR infodemiology","volume":"5 ","pages":"e66812"},"PeriodicalIF":3.5,"publicationDate":"2025-03-31","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11975118/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143756240","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Understanding Interventions to Address Infodemics Through Epidemiological, Socioecological, and Environmental Health Models: Framework Analysis.","authors":"Jennifer N John, Sara Gorman, David Scales","doi":"10.2196/67119","DOIUrl":"10.2196/67119","url":null,"abstract":"<p><strong>Background: </strong>The COVID-19 pandemic was accompanied by a barrage of false, misleading, and manipulated information that inhibited effective pandemic response and led to thousands of preventable deaths. Recognition of the urgent public health threat posed by this infodemic led to the development of numerous infodemic management interventions by a wide range of actors. The need to respond rapidly and with limited information sometimes came at the expense of strategy and conceptual rigor. Given limited funding for public health communication and growing politicization of countermisinformation efforts, responses to future infodemics should be informed by a systematic and conceptually grounded evaluation of the successes and shortcomings of existing interventions to ensure credibility of the field and evidence-based action.</p><p><strong>Objectives: </strong>This study sought to identify gaps and opportunities in existing infodemic management interventions and to assess the use of public health frameworks to structure responses to infodemics.</p><p><strong>Methods: </strong>We expanded a previously developed dataset of infodemic management interventions, spanning guidelines, policies, and tools from governments, academic institutions, nonprofits, media companies, and other organizations, with 379 interventions included in total. We applied framework analysis to describe and interpret patterns within these interventions through their alignment with codes derived from 3 frameworks selected for their prominence in public health and infodemic-related scholarly discourse: the epidemiological model, the socioecological model, and the environmental health framework.</p><p><strong>Results: </strong>The epidemiological model revealed the need for rigorous, transparent risk assessments to triage misinformation. The socioecological model demonstrated an opportunity for greater coordination across levels of influence, with only 11% of interventions receiving multiple socioecological codes, and more robust partnerships with existing organizations. The environmental health framework showed that sustained approaches that comprehensively address all influences on the information environment are needed, representing only 19% of the dataset.</p><p><strong>Conclusions: </strong>Responses to future infodemics would benefit from cross-sector coordination, adoption of measurable and meaningful goals, and alignment with public health frameworks, which provide critical conceptual grounding for infodemic response approaches and ensure comprehensiveness of approach. Beyond individual interventions, a funded coordination mechanism can provide overarching strategic direction and promote collaboration.</p>","PeriodicalId":73554,"journal":{"name":"JMIR infodemiology","volume":"5 ","pages":"e67119"},"PeriodicalIF":3.5,"publicationDate":"2025-03-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11957468/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143702495","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Exploring the Use of Social Media for Medical Problem Solving by Analyzing the Subreddit r/medical_advice: Quantitative Analysis.","authors":"Xiyu Zhao, Victor Yang, Arjun Menta, Jacob Blum, Padmini Ranasinghe","doi":"10.2196/56116","DOIUrl":"10.2196/56116","url":null,"abstract":"&lt;p&gt;&lt;strong&gt;Background: &lt;/strong&gt;The advent of the internet has transformed the landscape of health information acquisition and sharing. Reddit has become a hub for such activities, such as the subreddit r/medical_advice, affecting patients' knowledge and decision-making. While the popularity of these platforms is recognized, research into the interactions and content within these communities remains sparse. Understanding the dynamics of these platforms is crucial for improving online health information quality.&lt;/p&gt;&lt;p&gt;&lt;strong&gt;Objective: &lt;/strong&gt;This study aims to quantitatively analyze the subreddit r/medical_advice to characterize the medical questions posed and the demographics of individuals providing answers. Insights into the subreddit's user engagement, information-seeking behavior, and the quality of shared information will contribute to the existing body of literature on health information seeking in the digital era.&lt;/p&gt;&lt;p&gt;&lt;strong&gt;Methods: &lt;/strong&gt;A cross-sectional study was conducted, examining all posts and top comments from r/medical_advice since its creation on October 1, 2011. Data were collected on March 2, 2023, from pushhift.io, and the analysis included post and author flairs, scores, and engagement metrics. Statistical analyses were performed using RStudio and GraphPad Prism 9.0.&lt;/p&gt;&lt;p&gt;&lt;strong&gt;Results: &lt;/strong&gt;From October 2011 to March 2023, a total of 201,680 posts and 721,882 comments were analyzed. After excluding autogenerated posts and comments, 194,678 posts and 528,383 comments remained for analysis. A total of 41% (77,529/194,678) of posts had no user flairs, while only 0.1% (108/194,678) of posts were made by verified medical professionals. The average engagement per post was a score of 2 (SD 7.03) and 3.32 (SD 4.89) comments. In period 2, urgent questions and those with level-10 pain reported higher engagement, with significant differences in scores and comments based on flair type (P&lt;.001). Period 3 saw the highest engagement in posts related to pregnancy and the lowest in posts about bones, joints, or ligaments. Media inclusion significantly increased engagement, with video posts receiving the highest interaction (P&lt;.001).&lt;/p&gt;&lt;p&gt;&lt;strong&gt;Conclusions: &lt;/strong&gt;The study reveals a significant engagement with r/medical_advice, with user interactions influenced by the type of query and the inclusion of visual media. High engagement with posts about pregnancy and urgent medical queries reflects a focused public interest and the subreddit's role as a preliminary health information resource. The predominance of nonverified medical professionals providing information highlights a shift toward community-based knowledge exchange, though it raises questions about the reliability of the information. Future research should explore cross-platform behaviors and the impact of misinformation on public health. Effective moderation and the involvement of verified medical professionals are recommended to enhance the subreddit's role a","PeriodicalId":73554,"journal":{"name":"JMIR infodemiology","volume":"5 ","pages":"e56116"},"PeriodicalIF":3.5,"publicationDate":"2025-03-20","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11969121/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143671547","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}