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Towards a more inclusive child and adolescent mental health research: Bridging gaps through neuro-affirmative, transdiagnostic, and participatory frameworks 迈向更具包容性的儿童和青少年心理健康研究:通过神经平权、跨诊断和参与性框架弥合差距
JCPP advances Pub Date : 2025-05-16 DOI: 10.1002/jcv2.70015
Alessio Bellato, Asilay Seker
{"title":"Towards a more inclusive child and adolescent mental health research: Bridging gaps through neuro-affirmative, transdiagnostic, and participatory frameworks","authors":"Alessio Bellato,&nbsp;Asilay Seker","doi":"10.1002/jcv2.70015","DOIUrl":"https://doi.org/10.1002/jcv2.70015","url":null,"abstract":"<p>The field of child and adolescent mental health research is currently undergoing important shifts. In line with its mission to support accessible child mental health science for all, JCPP Advances has included 12 studies in its June 2025 issue, eight of which are presented in this editorial. These articles reflect how recent changes are influencing research in the field. These include the adoption of transdiagnostic frameworks to better understand shared mechanisms across diagnostic categories, and the growing use of participatory research to involve children, young people, and families in the design of assessments and interventions. The highlighted papers examine emotion regulation in autism, longitudinal pathways to psychopathology, the role of family dynamics and prosocial behaviours, and the development of accessible, inclusive tools and interventions. Together, they showcase how the field is evolving to become more developmentally informed, inclusive, and responsive to the real-world needs of young people and their support networks.</p>","PeriodicalId":73542,"journal":{"name":"JCPP advances","volume":"5 2","pages":""},"PeriodicalIF":0.0,"publicationDate":"2025-05-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1002/jcv2.70015","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144264711","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Editorial: A granular approach to internalizing disorders in adolescents: Examining developmental pathways and environmental influences to identify high-risk youth 社论:青少年内化障碍的细粒度方法:检查发育途径和环境影响以确定高危青少年
JCPP advances Pub Date : 2025-03-02 DOI: 10.1002/jcv2.70000
Pablo Vidal-Ribas
{"title":"Editorial: A granular approach to internalizing disorders in adolescents: Examining developmental pathways and environmental influences to identify high-risk youth","authors":"Pablo Vidal-Ribas","doi":"10.1002/jcv2.70000","DOIUrl":"https://doi.org/10.1002/jcv2.70000","url":null,"abstract":"<p>Adolescence is a critical developmental period during which internalizing disorders, such as depression and anxiety, frequently emerge. This editorial highlights six studies from this issue that investigate the complex interplay of genetic, physiological, cognitive, social, and environmental factors contributing to these disorders. By employing robust methods, these studies inform on mechanisms and trajectories, enhancing the identification of high-risk individuals for targeted interventions. Together, these studies emphasize the importance of nuanced, multi-factorial approaches in advancing research and practice in adolescent internalizing psychopathology. Nevertheless, future research must prioritize diverse samples, dynamic longitudinal designs, and multi-informant approaches to increase generalizability and impact.</p>","PeriodicalId":73542,"journal":{"name":"JCPP advances","volume":"5 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2025-03-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1002/jcv2.70000","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143571256","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Mortality in adolescents after therapeutic intervention for self-harm: A systematic review and meta-analysis. 青少年自我伤害治疗干预后的死亡率:系统回顾和荟萃分析。
JCPP advances Pub Date : 2025-01-23 DOI: 10.1002/jcv2.12302
Faraz Mughal, Paul Young, Daniel Stahl, Joan R Asarnow, Dennis Ougrin
{"title":"Mortality in adolescents after therapeutic intervention for self-harm: A systematic review and meta-analysis.","authors":"Faraz Mughal, Paul Young, Daniel Stahl, Joan R Asarnow, Dennis Ougrin","doi":"10.1002/jcv2.12302","DOIUrl":"https://doi.org/10.1002/jcv2.12302","url":null,"abstract":"<p><strong>Background: </strong>Self-harm in adolescents is an international concern. Evidence highlights that therapeutic intervention (TI), such as cognitive behaviour therapy informed treatments, after self-harm leads to reduced self-harm repetition. However, there is no prior literature about the effects of TI on future mortality in adolescents. We examined the effect of TI on mortality rates in adolescents across RCTs.</p><p><strong>Methods: </strong>This review was reported in accordance with PRISMA guidance. MEDLINE, EMBASE, PsycINFO, and Cochrane Library were searched to 19 June 2024. Two authors independently screened titles, abstracts, and full texts against predefined criteria. RCTs were included if they compared a TI versus a comparator in adolescents up to 18 years with at least one prior self-harm episode. There was no lower age limit. For the pooled effect size of mortality, the DerSimonian-Laird method was used, and a random effects model for self-harm and suicide attempts. The primary outcome was intra or post-trial mortality in adolescent post TI, and the effect of TIs on self-harm including attempted suicide episodes were secondary outcomes. Analyses were done in Stata.</p><p><strong>Results: </strong>Twenty-four trials of TIs consisting of 3470 randomised adolescents were included. The pooled risk difference for mortality of participants in the TI group was 0.002 (95% CI -0.003 to 0.008, <i>p</i> = 0.42). There were 6 deaths in the TI group compared to 15 deaths in the comparator group. The pooled risk difference for TI on repeat self-harm was -0.07 (95% CI -0.132 to -0.007, <i>p</i> = 0.028), and -0.05 (95% CI -0.086 to -0.007, <i>p</i> = 0.022) for suicide attempts compared to comparator.</p><p><strong>Conclusions: </strong>This review found no significant impact of TIs on future mortality in adolescents. We also demonstrated that TIs can reduce suicide attempts which can lead to substantial benefits for adolescents, families, and clinical services.</p>","PeriodicalId":73542,"journal":{"name":"JCPP advances","volume":" ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2025-01-23","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7617579/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144059945","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Interventions for siblings of children and young people with mental health conditions: A systematic review 对有精神健康问题的儿童和青少年兄弟姐妹的干预措施:一项系统综述
JCPP advances Pub Date : 2025-01-23 DOI: 10.1002/jcv2.12300
Irena Tetkovic, Joanna K. Anderson, Danielle Brocklebank, Jessica O’Logbon, Anne-Marie Burn, Tamsin J. Ford
{"title":"Interventions for siblings of children and young people with mental health conditions: A systematic review","authors":"Irena Tetkovic,&nbsp;Joanna K. Anderson,&nbsp;Danielle Brocklebank,&nbsp;Jessica O’Logbon,&nbsp;Anne-Marie Burn,&nbsp;Tamsin J. Ford","doi":"10.1002/jcv2.12300","DOIUrl":"https://doi.org/10.1002/jcv2.12300","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>Childhood mental health conditions typically affect the entire family, including siblings, however there is a lack of research investigating interventions supporting siblings.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>The review was prospectively registered with PROSPERO (CRD42022377163). We conducted systematic searches of 7 databases (Medline, EMBASE, PsycINFO, Child and Developmental and Adolescent Studies, Applied Social Science Index and Abstracts, Education Research Information Centre, and British Eduction Index) for studies evaluating interventions for children and young people (CYP) with siblings presenting with mental health conditions from January 1980 to August 2024. We included interventions for young people aged 4 to 24 years who have a sibling with a mental health condition, with symptoms and impact lasting at least 3 months. Quality of reporting was assessed using the Critical Appraisal Skills Programme qualitative checklist for qualitative and the Effective Public Health Project Practice quality assessment Tool for quantitative studies.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>We identified 4 eligible studies; 2 of family-based treatment and the other of drop-in group support from 2469 studies that were screened in total. Quantitative results were rated weak for three out of four studies, while qualitative results were rated moderate for two studies, and high for one study. The two studies of sibling support groups reported high acceptability.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusion</h3>\u0000 \u0000 <p>The evidence for the effectiveness of interventions for siblings of CYP with mental health conditions is limited in both size and quality, highlighting a significant gap in research and practice. We cannot draw definitive conclusions from the available evidence, but it suggests support groups have potential to improve sibling outcomes. Additional research is required to determine sibling mental health trajectories and to identify risk and resilience factors possibly influencing poorer mental health outcomes. Clinicians should be mindful of potential effects of mental health conditions on other family members and encourage parents to communicate openly with siblings about family dynamics and the challenges they may face.</p>\u0000 </section>\u0000 </div>","PeriodicalId":73542,"journal":{"name":"JCPP advances","volume":"5 2","pages":""},"PeriodicalIF":0.0,"publicationDate":"2025-01-23","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1002/jcv2.12300","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144264704","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Camouflaging in neurodivergent and neurotypical girls at the transition to adolescence and its relationship to mental health: A participatory methods research study 向青春期过渡的神经分裂女孩和神经畸形女孩的伪装及其与心理健康的关系:参与式方法研究
JCPP advances Pub Date : 2024-12-17 DOI: 10.1002/jcv2.12294
Ailbhe McKinney, Sarah O’Brien, Jacqueline A. Maybin, Stella W. Y. Chan, Simone Richer, Sinead Rhodes
{"title":"Camouflaging in neurodivergent and neurotypical girls at the transition to adolescence and its relationship to mental health: A participatory methods research study","authors":"Ailbhe McKinney,&nbsp;Sarah O’Brien,&nbsp;Jacqueline A. Maybin,&nbsp;Stella W. Y. Chan,&nbsp;Simone Richer,&nbsp;Sinead Rhodes","doi":"10.1002/jcv2.12294","DOIUrl":"10.1002/jcv2.12294","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>Adolescent girls with diagnoses of autism, ADHD and/or developmental coordination disorder (DCD) are at higher risk for mental health problems than boys with the same diagnoses and neurotypical girls. These girls are called neurodivergent here, though neurodivergence includes a broader range of diagnoses. One possible reason for this mental health disparity could be camouflaging, a coping strategy used more by girls. Camouflaging is when the individual pretends to be neurotypical, often involving substantial effort. This study aims to understand: (a) if the use of camouflaging has started by early adolescence, (b) how components of camouflaging (assimilation, masking, and compensation) present at this age, (c) if age predicts camouflaging and (d) what is the relationship with mental health.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p><b>Participatory methods:</b> A co-production team of 15 adult neurodivergent women co-produced the project and ranked camouflaging as their most important research theme.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <p><b>Main Study:</b> Participants were 119 girls (70 neurodivergent, 49 neurotypical) aged 11–14 years. A transdiagnostic approach was adopted and the neurodivergent group had a diagnosis of autism, ADHD and/or DCD. Girls completed self-report measures of camouflaging, anxiety, and depression in an online meeting with a researcher.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Neurodivergent and neurotypical girls presented similarly on two components of camouflaging namely masking and compensation, components related to presenting in a socially acceptable way and mimicry. Groups differed on the assimilation component, which is related to trying to fit in and involves the feelings of pretending/acting. Age had a medium effect on camouflaging with higher levels of camouflaging observed in older girls. Camouflaging scores strongly predicted anxiety and depression scores in both groups.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusions</h3>\u0000 \u0000 <p>The use of camouflaging, specifically assimilation, is evident in a transdiagnostic sample of 11–14 year old neurodivergent girls. Importantly, the strong relationship between camouflaging and poor mental health is present at this early age, substantiating the co-production team's insights.</p>\u0000 </section>\u0000 </div>","PeriodicalId":73542,"journal":{"name":"JCPP advances","volume":"4 4","pages":""},"PeriodicalIF":0.0,"publicationDate":"2024-12-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11669776/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142904243","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Cultivating participatory processes in self-harm app development: A case-study and working methodology 在自我伤害应用程序开发中培养参与性过程:案例研究和工作方法。
JCPP advances Pub Date : 2024-12-11 DOI: 10.1002/jcv2.12295
Camilla M. Babbage, Joanna Lockwood, Lily Roberts, Josimar Mendes, Chris Greenhalgh, Lucy-Paige Willingham, Emmanuel Wokomah, Rebecca Woodcock, Petr Slovak, Ellen Townsend, the Digital Youth research team
{"title":"Cultivating participatory processes in self-harm app development: A case-study and working methodology","authors":"Camilla M. Babbage,&nbsp;Joanna Lockwood,&nbsp;Lily Roberts,&nbsp;Josimar Mendes,&nbsp;Chris Greenhalgh,&nbsp;Lucy-Paige Willingham,&nbsp;Emmanuel Wokomah,&nbsp;Rebecca Woodcock,&nbsp;Petr Slovak,&nbsp;Ellen Townsend,&nbsp;the Digital Youth research team","doi":"10.1002/jcv2.12295","DOIUrl":"10.1002/jcv2.12295","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>Self-harm and suicide related behaviours are increasing in young people, and clinical support is not adequately meeting needs. Improved approaches to assessment and the clinical management of self-harm will result from codesign processes and include greater shared decision-making between young people and practitioners. The CaTS-App (an adapted digital version of the existing Card-Sort Task for Self-harm research tool) aims to facilitate a collaborative understanding of adolescent self-harm and support decision-making within clinical settings. The codevelopment of a digital, clinical tool which meets the needs of multiple stakeholders requires careful consideration.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>We present a case-study describing the participatory aspects of the development of the CaTS-App, which included comprehensive patient involvement, research activities and coproduction with diverse young people aged 17–24 with lived experience of self-harm. We share our processes and activities to deliver safe, engaging, sustainable, ethical and responsible participatory practice and co-created knowledge, in the codevelopment of the CaTS-App.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Activities spanned a 48-month period in both face-to-face and online settings. Example processes and activities are provided in narrative, tabular and diagrammatic form, alongside discussion of the rationale for choices made. A summary methodology is also shared to stimulate continued discussion and development of participatory approaches in digital mental health.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusions</h3>\u0000 \u0000 <p>The paper contributes important insight and practical detail for the delivery of genuine participatory processes in digital mental health development when working with a population who may be considered vulnerable.</p>\u0000 </section>\u0000 </div>","PeriodicalId":73542,"journal":{"name":"JCPP advances","volume":"4 4","pages":""},"PeriodicalIF":0.0,"publicationDate":"2024-12-11","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11669782/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142904260","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
No decision about me, without me: Collaborating with young people in mental health research 没有我,就没有我:与年轻人合作进行心理健康研究。
JCPP advances Pub Date : 2024-12-11 DOI: 10.1002/jcv2.12291
Alex Lloyd, Tom (Chin-Han) Wu, Laura Lucas, Adeola Agunbiade, Romana Saleh, Pasco Fearon, Essi Viding
{"title":"No decision about me, without me: Collaborating with young people in mental health research","authors":"Alex Lloyd,&nbsp;Tom (Chin-Han) Wu,&nbsp;Laura Lucas,&nbsp;Adeola Agunbiade,&nbsp;Romana Saleh,&nbsp;Pasco Fearon,&nbsp;Essi Viding","doi":"10.1002/jcv2.12291","DOIUrl":"10.1002/jcv2.12291","url":null,"abstract":"<p>Involving young people with lived experience in youth mental health research is important. In recognition of the value of collaborating with experts by experience, international funders are increasingly mandating that mental health research is developed by teams that include individuals from the population of study. Yet, research into how Patient Public Involvement, specifically co-production and co-design, is implemented in youth mental health research is limited to date. The current review examined this question and identified common practices for collaborating with experts by experience in young people's mental health research. Academic databases were systematically searched for studies that had involved young people in mental health research, had described these activities, and had reported some demographic information about the experts by experience. From a total of 2130 studies that were screened, 37 studies were eligible for inclusion. The use of co-production and co-design spanned a wide range of topics, including interventions, digital support tools and psychometric studies. Interactive workshops were the primary method of engaging experts by experience, although some studies utilised interviews or focus groups. From the reviewed studies we identified common methodological practices including: Scene setting, utilising a cyclical process, ensuring appropriate engagement and recognition of the cultural context. We draw on these findings to suggest common methods for conducting co-production and co-design activities, and emphasise the importance of ensuring experts by experience are respected and safeguarded throughout their collaboration in research. We also outline areas that deserve future attention and development, and include a response from two young people aged 16–18 and their suggestions for improving and extending co-production methods.</p>","PeriodicalId":73542,"journal":{"name":"JCPP advances","volume":"4 4","pages":""},"PeriodicalIF":0.0,"publicationDate":"2024-12-11","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11669772/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142904279","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Deepening the participation of neurodivergent youth in qualitative mental health research: Co-development of a general approach and the evaluation of its implementation in a study on emotion 深化神经分化青年在质性心理健康研究中的参与:一种通用方法的共同发展及其在情绪研究中的实施评估。
JCPP advances Pub Date : 2024-12-07 DOI: 10.1002/jcv2.12287
Myrofora Kakoulidou, Georgia Pavlopoulou, Susie Chandler, Steve Lukito, Maciej Matejko, Isabel Jackson, Beta Balwani, Tiegan Boyens, Dorian Poulton, Luke Harvey-Nguyen, Zoe Glen, Archie Wilson, Elisa Ly, Elizabeth Macauley, Sylvan Baker, Georgina Bullen, Edmund J. S. Sonuga-Barke, RE-STAR team
{"title":"Deepening the participation of neurodivergent youth in qualitative mental health research: Co-development of a general approach and the evaluation of its implementation in a study on emotion","authors":"Myrofora Kakoulidou,&nbsp;Georgia Pavlopoulou,&nbsp;Susie Chandler,&nbsp;Steve Lukito,&nbsp;Maciej Matejko,&nbsp;Isabel Jackson,&nbsp;Beta Balwani,&nbsp;Tiegan Boyens,&nbsp;Dorian Poulton,&nbsp;Luke Harvey-Nguyen,&nbsp;Zoe Glen,&nbsp;Archie Wilson,&nbsp;Elisa Ly,&nbsp;Elizabeth Macauley,&nbsp;Sylvan Baker,&nbsp;Georgina Bullen,&nbsp;Edmund J. S. Sonuga-Barke,&nbsp;RE-STAR team","doi":"10.1002/jcv2.12287","DOIUrl":"10.1002/jcv2.12287","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>There is a growing expectation that neurodivergent young people, such as those with diagnoses of attention-deficit/hyperactivity disorder (ADHD) and/or autism, should play a central role in shaping research on neurodevelopmental conditions. However, currently, their involvement is typically limited to arms-length advice. To address this, the <i>Regulating Emotions-Strengthening Adolescent Resilience</i> (RE-STAR) programme has co-developed a framework for deepening the involvement of neurodivergent participants in translational research. Here we apply this to build, implement and evaluate a new approach to participatory qualitative research.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>Development – Building on the track record of successful collaboration between RE-STAR academic researchers (ARs) and its Youth Researcher Panel (Y-RP), a cycle of meetings was convened to co-develop a collaborative protocol for the participatory approach. Implementation – ARs and Y-RPers applied the general protocol to study a specific topic. This involved co-designing and co-delivering an interview schedule to study the emotional experiences of 12 adolescents with diagnoses of ADHD and/or autism and then co-analysing the interviews. Evaluation – ARs, Y-RPers and interviewees shared their reflections on the participatory approach and its implementation, during interviews (<i>N</i> = 36) and short open-ended surveys (<i>N</i> = 22).</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Development - The protocol for the participatory approach gave detailed advice on how to engage Y-RP members (or equivalent) in the co-design, co-delivery and co-analysis of interviews. Implementation - The approach was successfully implemented by ARs and Y-RPers working together to co-design an interview to study the emotional lives of adolescents with diagnoses of ADHD and/or autism, co-deliver it and then co-analyse the interview scripts. Evaluation - The implementation experience of the Y-RP, ARs and interviewees was characterised by common themes relating to (a) adapting research methods and making practical adjustments; (b) taking on new roles, adding value to research and (c) valuing neurodivergent characteristics.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusions</h3>\u0000 \u0000 <p>This new RE-STAR protocol proved feasible to implement in a way that was generally perceived, from multiple perspectives, to add depth and authenticity to research into the experiences of neurodivergent young people.</p>\u0000 </section>\u0000 </div>","PeriodicalId":73542,"journal":{"name":"JCPP advances","volume":"4 4","pages":""},"PeriodicalIF":0.0,"publicationDate":"2024-12-07","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11669790/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142904262","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Participatory research in child psychology & psychiatry: Embracing untidiness to break new ground 儿童心理学和精神病学的参与式研究:拥抱邋遢,开辟新天地。
JCPP advances Pub Date : 2024-12-04 DOI: 10.1002/jcv2.12284
Andrea MacLeod, Ifigeneia Manitsa, Stephane De Brito
{"title":"Participatory research in child psychology & psychiatry: Embracing untidiness to break new ground","authors":"Andrea MacLeod,&nbsp;Ifigeneia Manitsa,&nbsp;Stephane De Brito","doi":"10.1002/jcv2.12284","DOIUrl":"10.1002/jcv2.12284","url":null,"abstract":"<p>We are pleased to present our Special Issue on Participatory Research. In this editorial, we outline how the disability rights movement has been instrumental to the development of participatory approaches, before giving consideration to some of the debates and criticisms associated with participatory research in practice. We summarise the contributions offered by the studies within this issue and propose four areas of consideration, drawn from the body of included research, to inform future developments.</p>","PeriodicalId":73542,"journal":{"name":"JCPP advances","volume":"4 4","pages":""},"PeriodicalIF":0.0,"publicationDate":"2024-12-04","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11669778/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142904283","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Reconceptualising emotion dysregulation in the context of middle childhood: A scoping review of reviews 重新定义童年中期的情绪失调:综述的范围综述
JCPP advances Pub Date : 2024-11-29 DOI: 10.1002/jcv2.12296
Evelyn Mary-Ann Antony, Nadin Beckmann, Steve Higgins
{"title":"Reconceptualising emotion dysregulation in the context of middle childhood: A scoping review of reviews","authors":"Evelyn Mary-Ann Antony,&nbsp;Nadin Beckmann,&nbsp;Steve Higgins","doi":"10.1002/jcv2.12296","DOIUrl":"https://doi.org/10.1002/jcv2.12296","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>Recent research has suggested that emotion dysregulation (ED) is a key mechanism which explains the associations between mental health illnesses, including attention deficit hyperactivity disorder and internalising problems, among youth. However, literature reviews have led to mixed and inconclusive findings on the conceptualisations of ED. Specifically, understanding ED in the context of middle childhood, otherwise known as ‘the forgotten years’, may be crucial, as it serves as a significant developmental stage, where children develop a sense of self and rationalise their emotions. This scoping review aims to address the present challenge of conceptualising ED during middle childhood.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>ProQuest, PsycINFO, Scopus and Web of Science were searched in October 2024. Articles were included if ED and emotional dysregulation (including positive emotions) were conceptualised, if the paper was a review (i.e., scoping, literature, meta-analysis etc), participants of the target age range (6–12-year) were in the sample, and papers were in English. Studies were excluded if the sample included other age groups, such as infants and pre-schoolers, alongside focussing on other phenomena, such as self-regulation.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>The current scoping review explored the conceptualisations drawn from research studies conducted in the United States, Germany, Austria, France, and Australia. 11 studies were included in this review and two key themes were extrapolated (a) issues with processing emotions (i.e., emotion generation/reactivity) and (b) issues with adopting appropriate emotion regulation strategies and the failure in doing so, leading to issues in attaining goal-directed behaviours.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusions</h3>\u0000 \u0000 <p>The findings support the importance of considering how ED should be measured, based on holistic perspectives of the mechanism, alongside clinical screening for emotional deficits at earlier stages of life.</p>\u0000 </section>\u0000 </div>","PeriodicalId":73542,"journal":{"name":"JCPP advances","volume":"5 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2024-11-29","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1002/jcv2.12296","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143571389","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
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