Amanda Gahlot, Grace Richardson, Patricia Librea, Grace J Kim
{"title":"Clinician and patient experiences with shared decision-making to promote daily arm use for individuals with chronic stroke: an exploratory qualitative study.","authors":"Amanda Gahlot, Grace Richardson, Patricia Librea, Grace J Kim","doi":"10.3389/fresc.2024.1414878","DOIUrl":"10.3389/fresc.2024.1414878","url":null,"abstract":"<p><strong>Purpose: </strong>To explore the attitudes and experiences of clinicians and individuals with chronic stroke on the use of shared decision-making (SDM) during upper extremity rehabilitation to improve daily arm use in the home environment. Specifically, we aimed to describe clinician and client perspectives regarding the facilitators and barriers to using SDM within the context of a self-directed upper extremity intervention for individuals living in the community with chronic stroke.</p><p><strong>Methods: </strong>Data were collected within the context of an interventional study examining the feasibility of the Use My Arm-Remote intervention. Focus group interviews were conducted with the clinicians (<i>n</i> = 3) providing the intervention and individual semi-structured interviews with the participants (<i>n</i> = 15) of the study. All interview data were collected after the end of the intervention period. Data were analyzed using thematic analysis.</p><p><strong>Results: </strong>The following themes were identified: (1) Equal partnership; (2) Enhancing clinician confidence; and (3) This is different. Facilitators and barriers were identified within each theme. Key facilitators for clinicians were competence with SDM and patient characteristics; while facilitators for patients were open and trusting relationships with clinicians and personalized experience. Key barriers to SDM for clinicians were lack of expertise in SDM and participant buy in; while patients identified a lack of foundational knowledge of stroke rehabilitation as a potential barrier.</p><p><strong>Conclusions: </strong>Key barriers were analyzed using the consolidated framework for advancing implementation science to interpret results and identify strategies for enhancing the implementation of SDM in a virtual setting. The CFIR-ERIC tool highlighted the need for targeted educational meetings and materials to address the training and educational needs of both clinicians and patients for future iterations of this intervention.</p>","PeriodicalId":73102,"journal":{"name":"Frontiers in rehabilitation sciences","volume":null,"pages":null},"PeriodicalIF":1.3,"publicationDate":"2024-09-19","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11446894/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142373711","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Physical therapist management and coordination of care to prevent pathological hip fracture from metastatic disease: a case report.","authors":"Athena Manzino, Christopher Wilson","doi":"10.3389/fresc.2024.1384782","DOIUrl":"10.3389/fresc.2024.1384782","url":null,"abstract":"<p><strong>Background: </strong>Bone metastases are common in patients with progressive cancer and often present in long bones, leading to adverse events such as pathologic fractures. In the acute care setting, physical therapists (PTs) may be the initial providers who identify symptoms associated with fracture risk and communicate concerns to help prevent such adverse events.</p><p><strong>Case description: </strong>A 39-year-old female patient with metastatic breast cancer was admitted to the hospital due to uncontrolled pain. She had a history of bone metastases to the left femur; however, no restrictions or precautions were noted during the initial PT examination. During this initial PT examination, she reported worsening hip pain with weight-bearing activities.</p><p><strong>Outcomes: </strong>With the PT's recognition of red flag symptoms, an MRI was completed, which revealed extensive metastatic disease in her left femur with concern for an imminent fracture; as a result, prophylactic fixation was performed. Her functional abilities improved after surgery and consistent therapeutic intervention, allowing her to achieve a level of independence sufficient to return home safely.</p><p><strong>Discussion and conclusion: </strong>This case demonstrates the successful identification of imminent fracture risk by a PT in a patient with metastatic breast cancer, as well as the therapeutic management that accompanied this process in the acute care setting.</p>","PeriodicalId":73102,"journal":{"name":"Frontiers in rehabilitation sciences","volume":null,"pages":null},"PeriodicalIF":1.3,"publicationDate":"2024-09-19","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11446967/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142373714","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Mette Kaasgaard, Uffe Bodtger, Søren T Skou, Stephen Clift, Ole Hilberg, Daniel Bech Rasmussen, Anders Løkke
{"title":"Long-term self-reported attendance in exercise training or lung choir and status of quality of life following initial pulmonary rehabilitation for COPD.","authors":"Mette Kaasgaard, Uffe Bodtger, Søren T Skou, Stephen Clift, Ole Hilberg, Daniel Bech Rasmussen, Anders Løkke","doi":"10.3389/fresc.2024.1447765","DOIUrl":"10.3389/fresc.2024.1447765","url":null,"abstract":"<p><strong>Background: </strong>Both adherence rates to pulmonary rehabilitation (PR) programmes and long-term attendance in exercise training after PR remain a challenge. In our previous randomised controlled trial (RCT), effects were positively associated with a dose-response pattern, regardless of whether PR contained conventional physical exercise training (PExT) or Singing for Lung Health (SLH) as a training modality within a 10 weeks' PR programme for chronic obstructive pulmonary disease (COPD). However, long-term status of this RCT cohort remains unknown. In this study, we investigated whether current status (=attendance in supervised exercise training or a lung choir and scoring in quality of life (QoL)) was related to initial PR completion, randomisation, or adherence.</p><p><strong>Methods: </strong>We collected data via telephone, using a researcher-developed questionnaire on current self-reported attendance in supervised exercise training or a lung choir and on perceived benefits of the initial RCT intervention. Additionally, we used COPD-validated questionnaires (primarily: QoL (measure: St George's Respiratory Questionnaire; SGRQ).</p><p><strong>Results: </strong>In 2023 (i.e., mean/median 4.7 years after initial PR), surviving participants were contacted (<i>n</i> = 196; 73% of 270), and 160 (82% of 196) were included. Out of the included participants, 30 (19%) had not completed initial PR. Compared to the initial PR-completers, non-completers reported less current attendance in exercise training or lung choir (24% vs. 46%, <i>p</i> = 0.03) but SGRQ scores were comparable. Yet, those who attended exercise training or lung choir at present (<i>n</i> = 66/160; 41% out of 160) reported better QoL score than those with no current attendance (SGRQ; Attending: 39.9 ± 15.4; Not attending: 43.1 ± 16.7; <i>p</i> = 0.02). Neither having had SLH instead of PExT, nor adherence level during initial PR, was related to current attendance or to QoL scores.</p><p><strong>Conclusion: </strong>This study indicates that long-term self-reported attendance and current QoL scores are positively related to initial completion of a PR programme. Surprisingly, neither initial PR content (PExT or SLH) nor initial PR adherence was related to long-term outcomes. We suggest that future PR programmes include special attention to those who do not complete PR to support long-term attendance and QoL status.</p>","PeriodicalId":73102,"journal":{"name":"Frontiers in rehabilitation sciences","volume":null,"pages":null},"PeriodicalIF":1.3,"publicationDate":"2024-09-19","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11446877/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142373713","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Editorial: Rehabilitation within the context of palliative care.","authors":"Marcos Montagnini, Christopher M Wilson","doi":"10.3389/fresc.2024.1490057","DOIUrl":"10.3389/fresc.2024.1490057","url":null,"abstract":"","PeriodicalId":73102,"journal":{"name":"Frontiers in rehabilitation sciences","volume":null,"pages":null},"PeriodicalIF":1.3,"publicationDate":"2024-09-18","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11445227/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142367699","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Caroline Gault-Colas, Maud Pradines, Marjolaine Baude, Jean-Michel Gracies
{"title":"Exceptional improvement in chronic stroke through Guided Self-rehabilitation Contract: a case report study.","authors":"Caroline Gault-Colas, Maud Pradines, Marjolaine Baude, Jean-Michel Gracies","doi":"10.3389/fresc.2024.1385483","DOIUrl":"10.3389/fresc.2024.1385483","url":null,"abstract":"<p><p>A 44-year-old woman suffered a carotid dissection causing a deep and superficial right middle cerebral artery stroke in October 2013, despite undergoing thrombolysis and thrombectomy. Sixteen months later, massive left upper extremity impairment persisted. She then agreed to embark upon a guided self-rehabilitation contract (GSC). This GSC is a moral contract where the physician or therapist identifies specific muscles, particularly hypo-extensible and disabling that act as antagonists to functional activities. The physician or therapist then teaches and prescribes quantified daily high-load self-stretch postures for these muscles, alternating with repeated maximal amplitude movement exercises against their resistance. In turn, the patient commits to practicing the prescribed program and to delivering a diary of the stretch postures and alternating movement exercises performed each day. Over 4 years of GSC, the patient practiced upon prescription against a total of seven upper limb antagonists to common functional movements: shoulder extensors, shoulder internal rotators, elbow flexors, elbow pronators, wrist and finger flexors, and interossei muscles. She manually filled up her diary 99% of the days. Each day, she practiced an average of 20 min of high-load static self-stretch per muscle, alternating with about 50 maximal active efforts against the resistance of each targeted muscle's resistance. Overall, her mean static self-stretch time was 81 ± 2 (mean ± SEM) min/day, and her mean number of active maximal efforts was 285 ± 78/day, for a total daily self-rehabilitation time of over 2 h a day. Five years after her stroke, she had recovered all left upper extremity use in daily activities and resumed her previous job as a nurse's aide. She now spontaneously uses her left hand in most tasks. Functional MRI (March 2020) demonstrated bilateral primary motor and motor supplementary area activation upon left-hand exercise. Prolonged static self-stretch increased muscle extensibility (muscle plasticity) while maximal amplitude, alternating movement training reduced co-contraction in these muscles (neural plasticity). The Modified Frenchay Scale assessment was video-recorded by the clinician at each visit, allowing qualitative and quantitative evaluation of the functional capacities. The two videos of the first and last clinic visits have been uploaded and are available.</p>","PeriodicalId":73102,"journal":{"name":"Frontiers in rehabilitation sciences","volume":null,"pages":null},"PeriodicalIF":1.3,"publicationDate":"2024-09-18","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11447270/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142373712","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Laura A Rice, Malaak Yehya, Jennifer Yi, Stephen Koziel, Elizabeth W Peterson
{"title":"Translation, extension, and evaluation of usability, usefulness, and safety of a fall prevention and management program for people living with spinal cord injury and multiple sclerosis who use wheelchairs or scooters full time.","authors":"Laura A Rice, Malaak Yehya, Jennifer Yi, Stephen Koziel, Elizabeth W Peterson","doi":"10.3389/fresc.2024.1406938","DOIUrl":"10.3389/fresc.2024.1406938","url":null,"abstract":"<p><strong>Background: </strong>Falls are prevalent among people living with Multiple Sclerosis (PwMS) and Spinal Cord Injury (PwSCI) who use wheelchairs or scooters (WC/S) full time, however, there is a scarcity of evidence-based fall prevention and management programs.</p><p><strong>Objective: </strong>To describe the systematic translation of an in-person fall prevention and management program (Individualized Reduction Of FaLLs - iROLL) for PwMS to an online platform, extending its scope to include PwSCI, and to evaluate the preliminary useability, usefulness, and safety of the intervention.</p><p><strong>Methods: </strong>iROLL was systematically translated to an online platform (iROLL-O). PwMS and PwSCI who use a WC/S full time, experienced at least one fall within the past 36 months, and could transfer independently or with minimal to moderate assistance, enrolled in iROLL-O. Usability, usefulness, and safety were evaluated through 1:1 semi-structured interviews, gathering feedback on: perceived impact of the intervention on falls and functional mobility, program experiences, adverse events, and recommendations for improvement.</p><p><strong>Results: </strong>Five participants successfully completed the iROLL-O program. No safety concerns were raised by participants. Themes emerging from the semi-structured interviews included: (1) barriers and facilitators to program access, (2) motivation for participation, (3) program outcomes, and (4) program content and structure. Participants reported reduced concerns about falling, enhanced functional mobility skills, and highlighted the supportive nature of synchronous group meetings for learning.</p><p><strong>Conclusion: </strong>No adverse events occurred during the implementation of iROLL-O and participants found the program to be useable and useful. Further testing is needed to examine efficacy among a large and diverse population.</p>","PeriodicalId":73102,"journal":{"name":"Frontiers in rehabilitation sciences","volume":null,"pages":null},"PeriodicalIF":1.3,"publicationDate":"2024-09-18","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11448123/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142373715","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Błażej Cieślik, Justyna Mazurek, Robert Gajda, Joanna Szczepańska-Gieracha
{"title":"Editorial: Advances in physical and psychosocial telecare: promises and pitfalls.","authors":"Błażej Cieślik, Justyna Mazurek, Robert Gajda, Joanna Szczepańska-Gieracha","doi":"10.3389/fresc.2024.1490739","DOIUrl":"https://doi.org/10.3389/fresc.2024.1490739","url":null,"abstract":"","PeriodicalId":73102,"journal":{"name":"Frontiers in rehabilitation sciences","volume":null,"pages":null},"PeriodicalIF":1.3,"publicationDate":"2024-09-13","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11427910/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142333797","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Liane Simon, Friederike Gölz, Olaf Schenk, Thorsten Bührmann, Mathias Kauff, Olaf Kraus de Camargo, Stefanus Snyman, George Lüers, Britta Wulfhorst
{"title":"The international classification of functioning, disability and health in clinical practice, research findings and their impact on training and education.","authors":"Liane Simon, Friederike Gölz, Olaf Schenk, Thorsten Bührmann, Mathias Kauff, Olaf Kraus de Camargo, Stefanus Snyman, George Lüers, Britta Wulfhorst","doi":"10.3389/fresc.2024.1420498","DOIUrl":"https://doi.org/10.3389/fresc.2024.1420498","url":null,"abstract":"<p><p>At the ICF Research Institute (at MSH Medical School Hamburg) multiprofessional experts collaborate on various research projects with a focus on bio-psycho-social health and education. Initially, the main goal was monitoring and evaluating the implementation of the International Classification of Functioning, Disability and Health (ICF) in clinical practice. Over time and based on the initial findings, the research group started developing new approaches to support training and education of health professionals in the use of the ICF. As a result, substantial changes have recently been made in the curriculum and structure of several courses to improve and expand interprofessional teaching at the MSH Medical School Hamburg (MSH). Furthermore, creative didactic approaches in combination with interprofessional education have been developed.</p>","PeriodicalId":73102,"journal":{"name":"Frontiers in rehabilitation sciences","volume":null,"pages":null},"PeriodicalIF":1.3,"publicationDate":"2024-09-12","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11424612/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142333801","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Rachael M Chait, Julia Ossi, Brett M Colbert, Eric Huang, Juliann Gilchrist, Thais Garcia, Sharon Andrade-Bucknor, Azizi Seixas
{"title":"Impact of reduced group size on patient adherence and functional outcomes in cardiac rehabilitation: insights from a COVID-19 pandemic natural experiment.","authors":"Rachael M Chait, Julia Ossi, Brett M Colbert, Eric Huang, Juliann Gilchrist, Thais Garcia, Sharon Andrade-Bucknor, Azizi Seixas","doi":"10.3389/fresc.2024.1465790","DOIUrl":"https://doi.org/10.3389/fresc.2024.1465790","url":null,"abstract":"<p><strong>Introduction: </strong>Cardiac rehabilitation (CR) adherence and functional outcomes were measured after COVID-19 regulations reduced group sizes to one-on-one, modeling a natural experiment.</p><p><strong>Methods: </strong>A retrospective analysis using a natural experiment model measured participants in 12 weeks of CR during the 17 months before and after a COVID-19-related closure was conducted. The age, sex, race, ethnicity, and referral diagnoses of the pre-COVID-19 closure and post-COVID-19 closure groups were analyzed using a student's unpaired T-test. Adherence (completion rate of CR) and functional outcomes [change in six-minute walk test (6MWT)] were assessed between the two groups using unpaired two-tailed student T tests in GraphPad Prism and confidence intervals were calculated with the Baptista-Pike method.</p><p><strong>Results: </strong>There were 204 patients in the pre-COVID-19 group and 51 patients in the post-COVID-19 group, due to the smaller group sizes in the post-COVID-19 group, with no significant differences in baseline characteristics between the groups. The pre-COVID-19 group had a higher patient-to-provider ratio [2.8 patients/provider (SD 0.74)] relative to the post-COVID-19 group [0.4 patients/provider (SD 0.12); <i>p </i>< 0.0001]. The post-COVID-19 group had a higher completion rate than pre-COVID-19 group [75% vs. 21%; OR 10.9 (95% CI, 5.3-21.3, <i>p </i>< 0.0001)]. Among those that completed CR, there was no significant difference between groups in 6MWT improvement [+377.9 ft. (<i>n</i> = 47; SD 275.67 ft.) vs. +346.9 ft. (<i>n</i> = 38; SD 196.27 ft.); <i>p </i>= 0.59].</p><p><strong>Discussion: </strong>The reduction in group size to one-on-one was associated with 10 times higher odds of CR completion. Among those that completed CR, functional outcomes were not influenced by group size. Thus, pursuit of one-on-one sessions may improve CR adherence.</p>","PeriodicalId":73102,"journal":{"name":"Frontiers in rehabilitation sciences","volume":null,"pages":null},"PeriodicalIF":1.3,"publicationDate":"2024-09-11","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11422353/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142333798","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Inclusion-light or innovation of inclusion: modes of innovation and exnovation for the German vocational rehabilitation and participation system.","authors":"Jana York, Jan Jochmaring","doi":"10.3389/fresc.2024.1436003","DOIUrl":"https://doi.org/10.3389/fresc.2024.1436003","url":null,"abstract":"<p><p>This paper examines the German system of vocational rehabilitation and participation from a system- and innovation-theoretical perspective. The German system of vocational rehabilitation and participation, with its established special systems for participation in the labor market, is facing a - long overdue - reorientation. The article presents central instruments of the vocational rehabilitation system based on legal foundations, official labor market statistics, and current research findings. The authors compare the legal requirements for an inclusive work environment with the actual employment situation of people with disabilities and highlight a central dilemma of inclusion. Two modes of innovation and exnovation in the vocational rehabilitation system are proposed and critically discussed to resolve the dilemma.</p>","PeriodicalId":73102,"journal":{"name":"Frontiers in rehabilitation sciences","volume":null,"pages":null},"PeriodicalIF":1.3,"publicationDate":"2024-09-10","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11420156/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142333799","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}