Dementia (London, England)最新文献_第9页

Development and prima facie validation of the Dementia-Specific Ethical Self-Efficacy scale for professional caregivers. 痴呆症专业护理人员道德自我效能量表的开发和初步验证。

Dementia (London, England) Pub Date : 2024-08-01 Epub Date: 2024-06-14 DOI: 10.1177/14713012241262833

Frederik Schou-Juul, Lucca-Mathilde Thorup Ferm, Ida Rübot Boje, Jens Elmelund Rise, Sofie Smedegaard Skov, Christian Ritz, Sigurd Lauridsen

{"title":"Development and prima facie validation of the Dementia-Specific Ethical Self-Efficacy scale for professional caregivers.","authors":"Frederik Schou-Juul, Lucca-Mathilde Thorup Ferm, Ida Rübot Boje, Jens Elmelund Rise, Sofie Smedegaard Skov, Christian Ritz, Sigurd Lauridsen","doi":"10.1177/14713012241262833","DOIUrl":"10.1177/14713012241262833","url":null,"abstract":"Aim: To develop and validate a scale for measuring professional caregivers' ethical self-efficacy in dementia care.Background: Professional caregivers of people with dementia make ethical decisions on a day-to-day basis, and it is important that they feel confident when doing so. Moreover, confidence, or self-efficacy, influences caregivers' behaviour and well-being and may be a predictor of competence. However, there is no scale for measuring ethical self-efficacy. This study aims to fill this gap.Methods: This study concerns the development and prima facie validation of the Dementia-Specific Ethical Self-Efficacy (DemESE) scale. During development, we identified dementia-specific ethical principles and generated items representing ethical conflicts of principles. In the subsequent validation, we administered the scale to experts and professional caregivers in dementia care. We assessed the relevance of the scale using a content validity index and tested validity and reliability using Cronbach's alpha. To further enhance validity, we compared the scale with analogous self-efficacy scales using Pearson's correlation coefficient.Results: The quantitative testing of DemESE revealed that the scale exhibited acceptable levels of internal consistency and reliability. This finding was supported by Cronbach's alpha. In addition, the content validity index and Pearson correlation coefficient provided evidence of the scale's relevance and validity.Conclusion: The results suggest that DemESE is a promising tool for assessing professional caregivers' ethical self-efficacy in dementia care and may be used to measure ethical self-efficacy - that is, confidence in ethical decision-making in dementia care.","PeriodicalId":72778,"journal":{"name":"Dementia (London, England)","volume":" ","pages":"1036-1051"},"PeriodicalIF":0.0,"publicationDate":"2024-08-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141322048","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

A pilot study of an intergenerational program for people in residential aged care with cognitive impairment and children from a co-located early learning centre during COVID-19. 在 COVID-19 期间，为有认知障碍的居家养老护理人员和来自同地早期学习中心的儿童开展了一项代际计划试点研究。

Dementia (London, England) Pub Date : 2024-08-01 Epub Date: 2024-02-19 DOI: 10.1177/14713012241235378

Nathan M D'Cunha, Helen Holloway, Breanna Cave, Stephanie Mulhall, Annaliese Blair, Katrina Anderson, Daniela Castro De Jong, Susan Kurrle, Stephen Isbel

{"title":"A pilot study of an intergenerational program for people in residential aged care with cognitive impairment and children from a co-located early learning centre during COVID-19.","authors":"Nathan M D'Cunha, Helen Holloway, Breanna Cave, Stephanie Mulhall, Annaliese Blair, Katrina Anderson, Daniela Castro De Jong, Susan Kurrle, Stephen Isbel","doi":"10.1177/14713012241235378","DOIUrl":"10.1177/14713012241235378","url":null,"abstract":"Intergenerational programs in residential aged care may improve well-being and combat loneliness and social isolation in older people with cognitive impairment. This pilot study investigated the effects of a semi-structured intergenerational group, including children from a co-located early learning centre and people living in residential aged care with cognitive impairment. This 9-week study used a mixed methods pre- and post-program design. Sessions were designed and delivered once per week by Occupational Therapists and took into account residents' interests and children's developmental needs and interests, identified in pre-program interviews. Nine older people with cognitive impairment and 13 children participated. The program was well attended despite disruptions and complications caused by COVID-19 and weather conditions. Older people valued the opportunity to engage with the children. Children were observed to gain confidence in communicating and forming friendships with older people with different levels of ability. There did not appear to be any change in loneliness or neuropsychiatric symptoms. The intergenerational program benefited participants and received strong support from family members and staff of the early learning centre and aged care home.","PeriodicalId":72778,"journal":{"name":"Dementia (London, England)","volume":" ","pages":"927-948"},"PeriodicalIF":0.0,"publicationDate":"2024-08-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11290022/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139906986","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Erratum to "living with dementia in aotearoa (LiDiA): A feasibility study for a dementia prevalence study in māori and non-māori living in New Zealand". 奥特亚罗瓦痴呆症患者生活（LiDiA）：新西兰毛利人和非毛利人痴呆症患病率研究的可行性研究"。

Dementia (London, England) Pub Date : 2024-08-01 DOI: 10.1177/14713012241261117

引用次数: 0

An ethnography of mealtime care for people living with dementia in care homes. 对护理院中痴呆症患者用餐护理的人种学研究。

Dementia (London, England) Pub Date : 2024-08-01 Epub Date: 2024-02-21 DOI: 10.1177/14713012241234160

James Faraday, Clare Abley, Joanne M Patterson, Catherine Exley

{"title":"An ethnography of mealtime care for people living with dementia in care homes.","authors":"James Faraday, Clare Abley, Joanne M Patterson, Catherine Exley","doi":"10.1177/14713012241234160","DOIUrl":"10.1177/14713012241234160","url":null,"abstract":"Many people living with dementia have difficulties at mealtimes, which can result in serious complications for physical and mental health, leading to hospital admissions and even death. However, current training in mealtime care for staff working with this population has been found to be poorly reported, with variable effectiveness. It is essential that care home staff are able to provide good care at mealtimes. This study used ethnography to explore current practice in mealtime care for this population, identify good practice, and understand the factors influencing mealtime care. Approximately 28 h of mealtime observations were conducted in two UK care homes with diverse characteristics. Observations focused on interactions between care staff and residents living with dementia. Twenty-five semi-structured interviews were carried out with care home staff, family carers, and visiting health and social care professionals, to explore mealtime care from their perspectives. A constant comparative approach was taken, to probe emergent findings and explore topics in greater depth. Key thematic categories were identified, including: tensions in mealtime care; the symbolic nature of mealtime care; navigating tensions via a person-centred approach; contextual constraints on mealtime care; and teamwork in mealtime care. The findings indicated that a person-centred approach helps carers to find the right balance between apparently competing priorities, and teamwork is instrumental in overcoming contextual constraints. This evidence has contributed to development of a training intervention for care home staff. Future research should investigate the feasibility of mealtime care training in care homes.","PeriodicalId":72778,"journal":{"name":"Dementia (London, England)","volume":" ","pages":"907-926"},"PeriodicalIF":0.0,"publicationDate":"2024-08-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11290025/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139914210","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Care needs of people with dementia in Tanzania and associated impact on carers: A cross-sectional, observational study. 坦桑尼亚痴呆症患者的护理需求及对护理者的相关影响：一项横断面观察研究。

Dementia (London, England) Pub Date : 2024-08-01 Epub Date: 2024-06-17 DOI: 10.1177/14713012241262570

May Alice Galbraith-Olive, Ssenku Safic, Lawtiko Mwaipopo, Alex Ernest, William Keith Gray, Sarah Urasa, Catherine Dotchin, Emily Fisher, Aimee Spector, Richard Walker

{"title":"Care needs of people with dementia in Tanzania and associated impact on carers: A cross-sectional, observational study.","authors":"May Alice Galbraith-Olive, Ssenku Safic, Lawtiko Mwaipopo, Alex Ernest, William Keith Gray, Sarah Urasa, Catherine Dotchin, Emily Fisher, Aimee Spector, Richard Walker","doi":"10.1177/14713012241262570","DOIUrl":"10.1177/14713012241262570","url":null,"abstract":"Objectives: This study aimed to understand the care needs, care arrangements and burden of care for people with dementia in Northern Tanzania. Methods: This was a cross-sectional, observational study. People with dementia and their carers (n = 53) were recruited from an outpatient clinic, and data on carer burden and independence in activities of daily living were collected. Associations with carer burden and characteristics were explored through non-parametric tests and regression analyses. Results: Thirty-six carers were female (68%). Levels of impairment in instrumental activities of daily living were high, with a median score of 38 out of 44 on the Identification and Intervention for Dementia in Elderly Africans - Instrumental Activities of Daily Living (IDEA-IADL). Carer burden was moderate with a median Zarit Burden Interview (ZBI) score of 46 out of 88. Being a female carer was associated with higher carer burden (odds ratio 3.68, 95% CI 1.04-12.99). Discussion: Carer burden was found to be higher than in previous studies based in low-and-middle income countries. Further research is needed to explore this difference, and to identify interventions to support care needs and reduce carer burden.","PeriodicalId":72778,"journal":{"name":"Dementia (London, England)","volume":" ","pages":"1021-1035"},"PeriodicalIF":0.0,"publicationDate":"2024-08-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141422076","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

The experiences of caring for someone with dementia and a learning disability: A qualitative systematic review. 照顾痴呆症患者和学习障碍者的经历：定性系统综述。

Dementia (London, England) Pub Date : 2024-07-01 Epub Date: 2024-01-03 DOI: 10.1177/14713012231225797

Michelle Hughes, Kerry Hanna, Akpevwoghene Wiles, Ellie Taylor, Clarissa Giebel

{"title":"The experiences of caring for someone with dementia and a learning disability: A qualitative systematic review.","authors":"Michelle Hughes, Kerry Hanna, Akpevwoghene Wiles, Ellie Taylor, Clarissa Giebel","doi":"10.1177/14713012231225797","DOIUrl":"10.1177/14713012231225797","url":null,"abstract":"Background: The life expectancy of people with a learning disability is increasing and with this comes a greater risk of developing dementia. Dementia poses new challenges for both family and formal learning disability carers as they try to support dementia's progressive nature and quality of life for their care recipient. This qualitative systematic review explores the evidence base of family and formal carers' experiences and needs of caring for someone with both a learning disability and dementia.Methods: Six electronic databases (PubMed, PsycINFO, Cochrane Library, Prospero, Scopus, CINAHL), were searched in May 2022, utilising a predefined search strategy. Thirteen papers fulfilled inclusion criteria and were included in in the review.Results: Thematic synthesis was used to explore and synthesise the qualitative findings of the studies. Four conceptual themes were identified following analysis: Knowledge and skills, Accessing support, Repercussions of dementia for carers, Influences of continuity of caring role.Conclusion: There are significant training and educational needs for all carers who support the dual diagnosis of dementia and learning disability. Differences between family and formal carers relate to the organisational support and process available to formal carers. Parity across services combined with sufficiently trained carers may support dementia diagnosis and improve quality of care provided. Further research is needed to address environmental, and economic barriers carers face to facilitate ageing in place for their care recipients.","PeriodicalId":72778,"journal":{"name":"Dementia (London, England)","volume":" ","pages":"817-849"},"PeriodicalIF":0.0,"publicationDate":"2024-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11163849/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139089574","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Reflections on co-production: Developing a dementia research funding application with a diverse lived experience group. 关于共同生产的思考：与具有不同生活经验的群体共同开发痴呆症研究资金申请。

Dementia (London, England) Pub Date : 2024-07-01 Epub Date: 2024-02-06 DOI: 10.1177/14713012241231916

Sarah Griffiths, Martin Robertson, Chandrika Kaviraj, Firoza Davies, Marie McDevitt, Al Richards, Marcelline Russell

{"title":"Reflections on co-production: Developing a dementia research funding application with a diverse lived experience group.","authors":"Sarah Griffiths, Martin Robertson, Chandrika Kaviraj, Firoza Davies, Marie McDevitt, Al Richards, Marcelline Russell","doi":"10.1177/14713012241231916","DOIUrl":"10.1177/14713012241231916","url":null,"abstract":"Introduction and Background to Study: Published work on dementia research co-production focuses on developing health and social care interventions. Less is written about practicalities and experiences of co-producing dementia research funding applications. UK public contributors are typically from white middle class populations. Widening involvement is essential for co-produced research that meaningfully addresses health inequalities. We provide an example of a diverse lived experience group co-producing a dementia research funding application. An NIHR Dementia Career Development award funded PPIE work to develop a broad research idea. A culturally diverse lived experience group consisted of one person living with dementia, four carers and one former carer. Virtual group sessions drew on each person's unique experiences and expertise. Two co-leads collaborated closely with the researcher. Methods: We reflected on our experiences of diversity and inclusion within the group, based on a coproduced set of questions to guide reflection. Written records of reflections were captured and refined by the group. Results: We structured reflections into three overarching categories: Diversity and inclusion, Benefits to group members and Challenges. The group felt empowered, heard, and like equals in the process. Members valued diversity and mutual learning within the group. Involvement of co-leads was seen as democratic and inclusive. Some members felt Equality, Diversity and Inclusion (EDI) discussions were challenging. Discussion and Conclusions: We share valuable lessons learned in the process, including suggestions for facilitating EDI discussions, building in funding for time and travel to support relationship building, and ensuring PPIE remuneration processes are accessible and streamlined.","PeriodicalId":72778,"journal":{"name":"Dementia (London, England)","volume":" ","pages":"709-723"},"PeriodicalIF":0.0,"publicationDate":"2024-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11163838/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139698952","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Life story templates in dementia care: Ambiguous direction and purpose. 痴呆症护理中的生命故事模板：模糊的方向和目的。

Dementia (London, England) Pub Date : 2024-07-01 Epub Date: 2024-01-04 DOI: 10.1177/14713012231224545

Glenn Möllergren, Tove Harnett

{"title":"Life story templates in dementia care: Ambiguous direction and purpose.","authors":"Glenn Möllergren, Tove Harnett","doi":"10.1177/14713012231224545","DOIUrl":"10.1177/14713012231224545","url":null,"abstract":"Background: The use of life stories in dementia care has been described as a way of seeing every person as an individual, looking beyond their dementia. Life stories have become synonymous with high-quality care, while in Sweden their mere existence in dementia care settings is taken to indicate quality in national comparisons. Such life stories are often standardised, generated by a family member answering predetermined questions in a template.Aim and methods: Using a constructionist approach, this study will (1) chart what versions of a person's life story the templates produce, and (2) establish the intended purpose of such life stories, as communicated by the templates. This study departs from the assumption that life story templates communicate something about the conceptions of people living with dementia. The thematic analysis used data comprising 30 blank templates, totalling about 1,700 questions.Findings: The life story templates were found to generate two very different versions of the individual: (1) a person before symptoms of dementia or (2) a patient with dementia. We also found contradictions about what information should be included, whose life story it was, and the intended use.Discussion: Despite strong pressure on dementia care providers to collect life stories from residents, the life story templates they use are without clear direction, ideology, or purpose. The lack of direction is key given that life stories can be considered actants that shape assumptions about people with dementia and construct realities in dementia care settings. We highlight the need to develop ethical guidelines for life story template design, matched with guidelines for their intended use.","PeriodicalId":72778,"journal":{"name":"Dementia (London, England)","volume":" ","pages":"741-756"},"PeriodicalIF":0.0,"publicationDate":"2024-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11163841/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139089573","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Assessment of dementia knowledge in Indian speech-language pathology students. 印度语言病理学学生痴呆症知识评估。

Dementia (London, England) Pub Date : 2024-07-01 Epub Date: 2024-02-01 DOI: 10.1177/14713012241231145

Pooja Chandrashekar, Hema Nagaraj

{"title":"Assessment of dementia knowledge in Indian speech-language pathology students.","authors":"Pooja Chandrashekar, Hema Nagaraj","doi":"10.1177/14713012241231145","DOIUrl":"10.1177/14713012241231145","url":null,"abstract":"Objectives: Speech-language pathologists (SLPs) have a crucial role in assisting individuals with dementia due to the communication and swallowing challenges associated with the disease. As the number of dementia cases rises in India at an increasing rate, investigating the level of dementia knowledge of SLP students can offer insight into the preparedness of the healthcare system to meet this emerging demand.Method: A cross-sectional survey was conducted on SLP students pursuing their final year undergraduate, postgraduate and doctoral degrees from four universities across India. Dementia knowledge was assessed using the Dementia Knowledge Assessment Scale (DKAS) and information about previous dementia exposure (both formal and informal) was collected. The collected data were analysed using quantitative methods.Results: A total of 220 students (64.70% response rate) completed the survey. Overall dementia knowledge was inadequate with an average score of 22.08 ± 10.06. Previous dementia exposure among the students was also found to be low and did not affect dementia knowledge scores.Discussion: Despite the fundamental role SLPs play in the care of individuals with dementia, the lack of knowledge in this area emphasizes the need for enhancing dementia training programs through educational curricula and clinical placements.","PeriodicalId":72778,"journal":{"name":"Dementia (London, England)","volume":" ","pages":"800-816"},"PeriodicalIF":0.0,"publicationDate":"2024-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139652315","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Sources and perceptions of hope: A qualitative study involving younger people with dementia. 希望的来源和看法：一项涉及年轻痴呆症患者的定性研究。

Dementia (London, England) Pub Date : 2024-07-01 Epub Date: 2024-05-07 DOI: 10.1177/14713012241247460

Jane Pritchard, Ruth Bartlett

{"title":"Sources and perceptions of hope: A qualitative study involving younger people with dementia.","authors":"Jane Pritchard, Ruth Bartlett","doi":"10.1177/14713012241247460","DOIUrl":"10.1177/14713012241247460","url":null,"abstract":"Hope is an important but overlooked phenomenon in dementia studies. Few studies have examined how people with dementia experience or perceive hope, possibly because it is seen as a diagnosis without hope. In this article, we report on a doctoral study, the aim of which was to examine the phenomenon of hope from the perspective of younger people with dementia to generate new understanding and enable community-based healthcare professionals to support well-being. The study was conducted in the Midlands, England, and used a modified diary-interview method. Six participants were given a camera and asked to take pictures of whatever made them feel hopeful. During a post-diary semi-structured interview, a conversation about hope took place. Interviews were transcribed and interpreted using the 'Voice-Centred Relational Method'. Findings show that hope is important to younger people with dementia. Sources of hope were the surrounding environment, keeping connected, taking action, and drawing on internal resources. An over-arching theme was 'defying dementia' and participants demonstrated resistance to negative stereotypes. Living with dementia did not curtail hope, although it could be weakened when participants felt 'cast adrift' by services. The In vivo codes generated were fear of dementia, threats to identity, disconnection from others, and frustrations and restrictions. It is concluded that hope should be a more central part of practice-based conversations with people with dementia.","PeriodicalId":72778,"journal":{"name":"Dementia (London, England)","volume":" ","pages":"757-778"},"PeriodicalIF":0.0,"publicationDate":"2024-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140872388","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0