Dementia (London, England)最新文献

{"title":"Caring for an older person with dementia: Behavioral problems in the eyes of family caregivers and migrant home care workers.","authors":"Liat Ayalon, Natalie Ulitsa, Anna-Eva Nebowsky, Mark Schweda, Milena von Kutzleben","doi":"10.1177/14713012251323661","DOIUrl":"10.1177/14713012251323661","url":null,"abstract":"<p><p>The present study addresses the perspectives of Israeli family caregivers and migrant care workers on behavioral problems of persons with dementia. We thematically analyzed interviews with 21 migrant home care workers and 17 family members. Three main themes reported by both family members and migrant home care workers were identified. The first theme concerned the main challenges associated with caring for a person with dementia. The second theme concerned the management of the care recipient's behavioral problems. The last theme concerned the relationship between family members and the migrant home care worker in the context of the care provided to a family member with dementia. Our findings stress that the different stakeholders have quite similar perspectives concerning what the most challenging behaviors associated with dementia are as well as ways to address them. Moreover, both family members and migrant home care workers recognize the role of family members as mediators and as those who ensure adequate working relations of the migrant care workers and thus, are directly responsible for protecting the mental and physical wellbeing of the worker. Policy stakeholders and clinicians responsible for this caregiving arrangement should use these insights to better prepare family members and migrant home care workers for this caregiving context and the challenges it brings.</p>","PeriodicalId":72778,"journal":{"name":"Dementia (London, England)","volume":" ","pages":"884-901"},"PeriodicalIF":0.0,"publicationDate":"2025-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12171054/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143517585","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Fire risk and safety for people living with dementia at home: A narrative review of international literature and case study of fire and rescue services in England.","authors":"Tiffeny James, Andrew Clark","doi":"10.1177/14713012251320251","DOIUrl":"10.1177/14713012251320251","url":null,"abstract":"<p><p><b>Background:</b> Most people living with dementia prefer to continue living at home. However, as dementia progresses, people may become more susceptible to risk including cooking accidents that can lead to fire. This is a common concern cited by people living with dementia, family carers, and healthcare professionals, but research in this area is lacking. <b>Methods:</b> To identify initiatives, interventions, and guidance around fire safety for people living with dementia at home, first we conducted a narrative review of international literature. Next, we used England as a case study by searching all English fire and rescue services websites. We also sent Freedom of Information requests to all services to explore what information is held about fire incidents involving people living with dementia in England. <b>Findings:</b> Eight peer-reviewed articles were eligible for inclusion. Existing literature suggests that assistive technologies such as stove shut-off devices can be difficult for people living with dementia to use and cause additional problems and risks. All English fire services offer 'Home Fire Safety Visits', designed to help those vulnerable to fire identify and reduce risk at home however, only four specify that people living with dementia are eligible. Eleven services and two UK dementia charities have produced fire safety guidance for people living with dementia in England. Dementia awareness training in one fire service increased support offered to people living with dementia including provision of assistive technologies. Fire services in England do not record dementia status routinely and methodological issues mean that available data is unlikely to be accurate. <b>Conclusions:</b> There is scope for developing standardised dementia fire safety guidance and awareness training. Further research is needed to explore what types of assistive technologies people affected by dementia want and would find acceptable. We conclude with suggestions for fire safety policy, practice, and future research for England and internationally.</p>","PeriodicalId":72778,"journal":{"name":"Dementia (London, England)","volume":" ","pages":"977-995"},"PeriodicalIF":0.0,"publicationDate":"2025-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12171083/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143415863","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Efficacy and impact of spousal support groups in enhancing the well-being of caring in early onset dementia: Lessons learned from the ACE Alzheimer center Barcelona.","authors":"Pilar Cañabate, Itziar de Rojas, Guitart Marina, Mariola Moreno, Silvia Preckler, Susanna Seguer, Gabriel Martínez, America Morera, Maitee Rosende-Roca, Franco Emanuel Appiani, Juan Pablo Tartari, Liliana Vargas, Mario Ricciardi, Diana Maria Ariton Smera, Gemma Ortega, Angela Sanabria, Ana Espinosa, Alba Pérez-Cordón, Natalia Muñoz, Nuria Lleonart, Sergi Valero, Montserrat Alegret, Vanesa Pytel, Anna Riera, Agustín Ruiz, Miren Jone Gurrutxaga, Lluís Tárraga, Marta Marquié, Yahveth Cantero-Fortiz, Mercè Boada","doi":"10.1177/14713012251339364","DOIUrl":"10.1177/14713012251339364","url":null,"abstract":"<p><p><b>Background:</b> The group intervention aimed at caregivers of persons with dementia is regarded as an effective tool for support and education. However, these groups do not specifically cater to caregivers of individuals with spouses affected by young-onset dementia. <b>Objective:</b> To assess the effectiveness of a support and training group specifically targeted towards spouses of individuals with young onset dementia and its impact on reducing caregiver burden. <b>Participants and Methods:</b> Participants were recruited from a single memory clinic in Catalonia, Spain. The Zarit Burden Interview (ZBI) was utilized to evaluate caregiver burden both before and after participation in the support groups and a combined quantitative and qualitative analysis approach was employed. <b>Results:</b> A total of 77 caregivers were included and assessed, comprising 45.5% females with a mean age of 55 years and 54.5% males with a mean age of 63 years. While the overall caregiver burden, as measured by the ZBI, did not exhibit a significant reduction following participation in the group sessions, a notable decrease in ZBI scores was observed among caregivers with the highest burden at baseline. Three key stages were identified throughout the sessions: (1) discussions pertaining to the type of dementia and its associated changes; (2) the provision of care and attention to spouses along with the exchange of information among participants; and (3) identification of caregivers' needs. <b>Conclusions:</b> The subgroup of caregivers of persons with young onset dementia who exhibited the highest burden at baseline derived the greatest benefit from the support groups. Various qualitative indicators.</p>","PeriodicalId":72778,"journal":{"name":"Dementia (London, England)","volume":" ","pages":"955-976"},"PeriodicalIF":0.0,"publicationDate":"2025-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144013004","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Cognitive stimulation in non-memory led dementias: A scoping review.","authors":"Chiara Lousley, Joshua Stott, Caroline Fearn, Céline El Baou, Suman Kurana, Emilie V Brotherhood, Aimee Spector","doi":"10.1177/14713012251342018","DOIUrl":"10.1177/14713012251342018","url":null,"abstract":"<p><p>ObjectivesCognitive stimulation is a non-pharmacological approach to support cognitive and social functioning in people with dementia. This review aimed to evaluate the evidence for the feasibility of cognitive stimulation in people with non-memory led dementias, and whether adaptations may accommodate individuals' primary symptoms.MethodsWe conducted a scoping review, searching five databases (PsycINFO, MedLINE, EMBASE, Web of Science and Cinhal Plus) for cognitive stimulation studies in people with non-memory led dementias specifically.ResultsEight studies met the inclusion criteria, focusing on Parkinson's related dementia (<i>N</i> = 7), and posterior cortical atrophy (<i>N</i> = 1). The studies included, five quantitative and three mixed-methods designs. Six studies reported on the effects of cognitive stimulation interventions on domains such as cognition and mood. The findings on cognitive stimulation for non-memory led dementias were generally mixed and were limited by studies with small sample sizes.ConclusionsThis review indicated the limited research on cognitive stimulation interventions for non-memory led dementias, with adaptations primarily focussed on just Parkinson's related dementia. Future research could expand on existing adaptations for Parkinson's related dementia by gathering additional insights from individuals with other non-memory led dementias, for example, posterior cortical atrophy, frontotemporal dementia and primary progressive aphasia, along with input from their caregivers and dementia care professionals. This approach may help adapt cognitive stimulation interventions to meet the unique cognitive needs associated with diverse dementia profiles.</p>","PeriodicalId":72778,"journal":{"name":"Dementia (London, England)","volume":" ","pages":"996-1019"},"PeriodicalIF":0.0,"publicationDate":"2025-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144014215","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Population Attributable Fraction of Modifiable Risk Factors for Dementia in Turkey.","authors":"Bugra Taygun Gulle, Busra Tozduman","doi":"10.1177/14713012251357162","DOIUrl":"https://doi.org/10.1177/14713012251357162","url":null,"abstract":"<p><p>Dementia affects approximately 55 million people globally, with modifiable risk factors contributing significantly to its prevalence. While global studies have explored these factors, no research has applied the Lancet Commission's framework to the Turkish population. This study aims to estimate the population attributable fractions (PAFs) of 14 modifiable dementia risk factors in Turkey, using the updated 2024 Lancet Commission framework. Data from the 2022 Turkey Health Survey, a nationally representative dataset, were used to calculate prevalences. The 14 risk factors were categorized into early life (low education), midlife (e.g., physical inactivity, obesity, depression), and later life (e.g., social isolation, air pollution, untreated vision loss). PAFs were computed using relative risks from meta-analyses and the Lancet Commission report. Principal Component Analysis and communalities were applied to account for intercorrelations between factors. The overall weighted PAF for Turkey was 49.9%, indicating that nearly half of dementia cases could be prevented through targeted interventions. Physical inactivity was the leading midlife factor, while social isolation and low education were the most significant contributors in later and early life stages, respectively. Gender-specific analysis revealed higher PAFs in women (54.2%) compared to men (44.3%), driven by differences in physical inactivity, depression, and social isolation. This study highlights the significant preventable burden of dementia in Turkey and underscores the importance of culturally tailored, gender-sensitive interventions. Addressing modifiable risk factors, particularly physical inactivity and social isolation, is critical to reducing dementia prevalence and informing public health strategies.</p>","PeriodicalId":72778,"journal":{"name":"Dementia (London, England)","volume":" ","pages":"14713012251357162"},"PeriodicalIF":0.0,"publicationDate":"2025-06-29","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144531378","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Attitudes to Brain Health and Dementia Amongst the Chinese Population Living in the UK.","authors":"Richard Cheston, Mei Champ, Jennifer N W Lim","doi":"10.1177/14713012251356529","DOIUrl":"10.1177/14713012251356529","url":null,"abstract":"<p><p><b>Background:</b> Just under half a million people who identify as Chinese or Chinese-British are living in the UK. Chinese migrants have a distinctive linguistic and cultural heritage and are likely to differ from the wider UK population in their attitudes to dementia care. However, to date no studies have explored this area. This study aimed to compare attitudes to dementia amongst Chinese people and the wider UK population using a translated version of the 2023 Dementia Attitudes Monitor survey (DAM). <b>Methods:</b> We translated the DAM into Simplified and Traditional Chinese and distributed this through an online survey. In total 84 UK based participants (65 women and 19 men) completed the survey. We weighted data by age and sex. <b>Results:</b> We identified important differences between Chinese participants and the wider UK population. Chinese participants were more likely to report that they would find it hard to talk to someone with dementia and that they would not feel comfortable telling people outside their close family if they were to be diagnosed. Higher levels of knowledge about dementia were associated with increased reluctance to tell people outside their family. Chinese participants were equally willing to take a test that could tell them whether they were in the early stages of dementia, even before symptoms showed. They were also more likely to report that they would want to know information in midlife about their risk of developing dementia later on. <b>Conclusion:</b> This paper is the first to report knowledge about brain functioning and dementia within the UK-based Chinese community. Chinese people are highly motivated to reduce their dementia risk - but to do so requires specific public health programmes that are adapted to meet the specific needs of Chinese communities.</p>","PeriodicalId":72778,"journal":{"name":"Dementia (London, England)","volume":" ","pages":"14713012251356529"},"PeriodicalIF":2.2,"publicationDate":"2025-06-29","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12508493/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144531376","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Relationships Between Cultural Perspectives and Family Caregiver Burden in the Dementia Population.","authors":"Payton Adams, David A S Kaufman","doi":"10.1177/14713012251356733","DOIUrl":"https://doi.org/10.1177/14713012251356733","url":null,"abstract":"<p><p>Dementia diagnoses are increasing in the United States, causing impairments across multiple domains of functioning. Informal care provided by family caregivers can benefit those with declining cognitive function. However, this can lead to subjective and objective caregiver burden. As the United States' population becomes more diverse, literature on these topics does not fully account for cultural characteristics. The current study examined the association between key variables including cultural identity (individualism/collectivism), coping styles, and caregiver burden. A sample of 253 family caregivers of those with dementia (ages 20-78) completed a survey through Prolific, an online research platform. Sociodemographic characteristics consisted of varying racial identities, gender identities, and socioeconomic statuses. Measures included several rating scales, and statistical analyses examined the relationships between these variables. Maladaptive and adaptive coping strategies are important to the dementia family caregiver population in relation to subjective caregiver burden, which has implications for predicting health outcomes. Results demonstrated imperative considerations in the link between individualism and subjective caregiver burden. Follow-up subgroup analyses on three demographic factors displayed supplementary informative patterns. This study is one of the first widespread explorations to move towards understanding the distinctive relationships between sociocultural characteristics of caregivers. These complexities should continue to be examined to help inform effective, yet culturally competent, community-based interventions tailored towards family caregivers managing difficulties presented by a dementia diagnosis. Findings are applicable to concrete clinical directions, and a future study could test an intervention that focuses on increasing adaptive strategies, while decreasing maladaptive strategies.</p>","PeriodicalId":72778,"journal":{"name":"Dementia (London, England)","volume":" ","pages":"14713012251356733"},"PeriodicalIF":0.0,"publicationDate":"2025-06-29","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144531379","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Management of Co-existing Dementia and Hearing Loss in Social Care Settings: A Focus Group Study.","authors":"Emma E Broome, Alice Green","doi":"10.1177/14713012251356010","DOIUrl":"https://doi.org/10.1177/14713012251356010","url":null,"abstract":"<p><p><b>Background and Objectives:</b> Dementia and hearing loss are highly prevalent and increase in prevalence and severity with age. Hearing loss is often overlooked in people living with dementia, resulting in under-diagnosis and lack of appropriate management. Both conditions present substantial challenges for individuals and healthcare systems more broadly. The presence of both conditions can mask each other, presenting challenges for both diagnosis, treatment and support. The aim of this study was to qualitatively explore the experience, needs and opinions of how to manage hearing loss in people living with dementia in social care settings from multiple perspectives. <b>Research Design and Methods:</b> A qualitative study using focus groups with key stakeholder groups was conducted. Data were analysed using thematic analysis. Participants included seven social care professionals (aged 25-68), six informal carers (aged 56-92) and one person living with dementia and hearing loss (aged 69) (m = 21%, f = 79%). <b>Results:</b> Five themes were identified: (i) inclusion; (ii) communication, (iii) hearing aids, (iv) health services and (v) training of care staff. <b>Discussion and Implications:</b> Findings highlight the need for comprehensive training to help support the management of hearing loss in people living with dementia. Training on the use and maintenance of hearing aids would be particularly valuable for staff. Due to the progressive nature of both conditions, individuals in receipt of social care should be reviewed regularly to ensure that care needs are adapted to suit the progressive nature of the conditions.</p>","PeriodicalId":72778,"journal":{"name":"Dementia (London, England)","volume":" ","pages":"14713012251356010"},"PeriodicalIF":0.0,"publicationDate":"2025-06-28","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144531377","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Dementia Risk Reduction Education Programs and Resources for Indigenous Peoples of Canada, Aotearoa New Zealand, United States of America and Australia: A Scoping Review.","authors":"Valda Wallace, Kathryn Meldrum, Yvonne Hornby-Turner, Rachel Quigley, Sarah Russell, Edward Strivens","doi":"10.1177/14713012251355004","DOIUrl":"10.1177/14713012251355004","url":null,"abstract":"<p><p>Educational health promotion programs and resources support people to make informed decisions and change their behaviours. Dementia, a name for a group of degenerative brain diseases, affects over 55 million people across the globe. Currently, dementia risk reduction (DRR) is a global health priority as dementia has no known cure. Consequently, educational programs and resources that focus on DRR respond to the global health priority by targeting potentially modifiable risk factors. A project currently being undertaken by the research team is focussed on supporting DRR in Aboriginal and Torres Strait Islander Peoples' primary care settings in Queensland, Australia. One strategy adopted by the research team is to identify safe and appropriate DRR programs and resources that could be integrated into primary care settings. Consequently, the aim of this scoping review was to identify and determine the quality of DRR programs or resources that have been developed or used with Indigenous peoples of Canada, Aotearoa New Zealand, the United States of America, and Australia. The Joanna Briggs method for scoping reviews was used to identify programs and resources developed with, for and by Indigenous peoples of the target countries. Appropriate databases including CINAHL and Medline as well as Google searches for grey literature published in English since 2010 were used to identify sources. Eleven sources were identified. One source was a published article, the other ten resources were videos (n = 5), websites (n = 2) and electronic written resources (n = 3). Given the paucity of evidence of DRR programs and resources currently available for Indigenous peoples the following recommendations are made for future development. They need to: (1). Be firmly grounded in Indigenous health promotion principles and theoretical frameworks and co-designed with, by and for Indigenous peoples. (2). Provide information about how dementia risk can be reduced; and (3). Linked with chronic disease interventions.</p>","PeriodicalId":72778,"journal":{"name":"Dementia (London, England)","volume":" ","pages":"14713012251355004"},"PeriodicalIF":0.0,"publicationDate":"2025-06-26","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144499687","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Enhancing Person-Centred Dementia Care Through Self-Experience: European Perspectives From a Qualitative Study.","authors":"Janina Wittmann, Gabriele Meyer, Fania C M Dassen, Kealan Forristal, Louise Hopper, Niels Janssen, Marianna Riello, Marjolein de Vugt, Anja Bieber","doi":"10.1177/14713012251353552","DOIUrl":"https://doi.org/10.1177/14713012251353552","url":null,"abstract":"<p><p>Understanding the perspectives of people with dementia is crucial for providing person-centred care. Self-experience practices in caregiver training could foster empathy by simulating conditions individuals may encounter. This European study examines the potential contribution of self-experience practices to improving understanding and empathy towards people with dementia. A qualitative approach within the interpretative paradigm was employed to investigate perspectives on self-experience practices in dementia care through focus groups and individual interviews. Participants were people with dementia, informal caregivers, and professionals with experience in simulation-based dementia training and/or communication tools. Transcripts from Germany, Ireland, Italy, and the Netherlands underwent qualitative content analysis and thematic synthesis. Six analytical themes emerged across all target groups and countries, indicating the possibility of enhancing dementia care through self-experience. Themes cover the rationale and impact of these practices, required content and strategies, training procedures, target groups, implementation issues, and barriers and facilitators. Tailoring the training and supportive environment are crucial, but ethical and implementation issues must also be considered to ensure effectiveness and integrity. Integration of self-experience practices suggests benefits in skill acquisition, care strategies, and theoretical understanding. Further research is needed to reach an international consensus for self-experience dementia training practices.</p>","PeriodicalId":72778,"journal":{"name":"Dementia (London, England)","volume":" ","pages":"14713012251353552"},"PeriodicalIF":0.0,"publicationDate":"2025-06-19","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144327960","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}