Health Policy最新文献_第5页

Responsive patient care in Israel: A qualitative study of hospital rules and regulations 以色列的病人护理服务：对医院规章制度的定性研究。

IF 3.6 3区医学

Health Policy Pub Date : 2024-09-26 DOI: 10.1016/j.healthpol.2024.105170

Keren Semyonov-Tal

{"title":"Responsive patient care in Israel: A qualitative study of hospital rules and regulations","authors":"Keren Semyonov-Tal","doi":"10.1016/j.healthpol.2024.105170","DOIUrl":"10.1016/j.healthpol.2024.105170","url":null,"abstract":"<div><div>Hospital rules and regulations can contribute to standardizing care, streamlining processes, and improving the quality of care. Over the past decade, hospitals in Israel have introduced written rules and regulations for staff that provide guidance on quality control, patient safety, and the patient-provider relationship. This study aimed to explore how these written guidelines, when implemented, can promote responsive care for inpatients. Using a thematic analysis, the study analyzed the content of staff guidelines from six Israeli hospitals. The analysis found that hospital rules and regulations provide similar, relatively precise instructions with regard to improving the responsiveness to and dignity of care of patients. The guidelines address three essential aspects of responsiveness - disclosing medical information and respecting the patients’ autonomy and physical space. The guidelines highlight that healthcare providers should implement security measures to safeguard medical information, respect patients' autonomy, involve patients in decision-making, and provide adequate physical space to maintain their privacy and modesty. The guidelines contribute to ensuring patients’ legal and ethical rights. Policymakers should consider introducing and implementing the dimensions of responsiveness that were stressed by Israeli hospitals' rules and regulations. Further research is needed to confirm the relevance of the various rules and regulations for improving the quality of care provided to patients.</div></div>","PeriodicalId":55067,"journal":{"name":"Health Policy","volume":"149 ","pages":"Article 105170"},"PeriodicalIF":3.6,"publicationDate":"2024-09-26","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142376340","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Investigating the relationship between health and gender equality: What role do maternal, reproductive, and sexual health services play? 调查健康与性别平等之间的关系：孕产妇保健、生殖保健和性保健服务发挥什么作用？

IF 3.6 3区医学

Health Policy Pub Date : 2024-09-25 DOI: 10.1016/j.healthpol.2024.105171

Yuxi Wang , Aleksandra Torbica

{"title":"Investigating the relationship between health and gender equality: What role do maternal, reproductive, and sexual health services play?","authors":"Yuxi Wang , Aleksandra Torbica","doi":"10.1016/j.healthpol.2024.105171","DOIUrl":"10.1016/j.healthpol.2024.105171","url":null,"abstract":"<div><div>Examining the causal nexus between health services and gender equality is of paramount significance in policy formulation and academic inquiry. This paper concentrates on maternal, sexual, and reproductive health, offering a critical narrative review of empirical research exploring the causal relationship between enhanced women's health, stemming from either overall healthcare amelioration or specific interventions, and broader gender equality objectives. A conceptual framework is devised to elucidate the causal pathways between health and gender equality across various dimensions. The final review encompasses 30 empirical papers, revealing both direct and indirect effects of improved maternal, reproductive, and sexual health outcomes on labour participation and educational investment, with fertility decisions and autonomy serving as primary intermediary factors. Evidence predominantly indicates that interventions like contraception, family planning, and abortion policies yield enduring effects beyond health, influencing reproductive choices. Specific medical procedures, such as caesarean deliveries and sterilization, also impact fertility and labour market outcomes. Furthermore, public healthcare infrastructure contributes to combating gender-based violence by facilitating incident reporting and access to protection. Recognizing, documenting, and monitoring these co-benefits arising from improved women's health are pivotal for delineating future health sector priorities and advancing the global gender equality and sustainable development agenda.</div></div>","PeriodicalId":55067,"journal":{"name":"Health Policy","volume":"149 ","pages":"Article 105171"},"PeriodicalIF":3.6,"publicationDate":"2024-09-25","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142378637","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Exploring assisted dying policies for mature minors: A cross jurisdiction comparison of the Netherlands, Belgium & Canada 探索针对成年未成年人的协助死亡政策：荷兰、比利时和加拿大的跨司法管辖区比较。

IF 3.6 3区医学

Health Policy Pub Date : 2024-09-24 DOI: 10.1016/j.healthpol.2024.105172

Sydney Campbell , Alexandra Cernat , Avram Denburg , Fiona Moola , Jeremy Petch , Jennifer Gibson

{"title":"Exploring assisted dying policies for mature minors: A cross jurisdiction comparison of the Netherlands, Belgium & Canada","authors":"Sydney Campbell , Alexandra Cernat , Avram Denburg , Fiona Moola , Jeremy Petch , Jennifer Gibson","doi":"10.1016/j.healthpol.2024.105172","DOIUrl":"10.1016/j.healthpol.2024.105172","url":null,"abstract":"<div><div>Medical Assistance in Dying (MAID) was decriminalized in Canada in 2016 for individuals 18 years or older who met eligibility criteria. Currently, individuals younger than 18 years are legally permitted to access an assisted death in the Netherlands and Belgium, but not in Canada. To-date, no work has compared factors shaping the policy processes and outcomes in these three countries. Therefore, our objective was to explore the legalities of assisted dying for minors in the Netherlands and Belgium, along with how each jurisdiction arrived at their respective policies and why the trajectory differed in Canada. After screening and compiling peer-reviewed and grey literature, we used Yanow's interpretive method for comparative work to review included materials. We framed findings using Hajer's discourse coalition theory. The Dutch and Belgian contexts relied upon a parliamentary approach in legalizing assisted dying for mature minors that emphasized suffering, whereas Canada's approach was initiated by a Supreme Court of Canada decision and emphasized human rights. While the Netherlands and Belgium viewed mature minors as capable to make decisions about assisted dying, the Canadian position on mature minors’ decisional capacity with respect to assisted dying remains unsettled. This work contributes to understanding how context and sociopolitical values shape assisted dying legislations and treatment of mature minors, while highlighting areas requiring further study amid ongoing debate in Canada.</div></div>","PeriodicalId":55067,"journal":{"name":"Health Policy","volume":"149 ","pages":"Article 105172"},"PeriodicalIF":3.6,"publicationDate":"2024-09-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142332745","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Health effects of introducing an unconditional child benefit in Poland: Evidence from a difference in differences analysis 波兰引入无条件儿童福利对健康的影响：差异分析的证据

IF 3.6 3区医学

Health Policy Pub Date : 2024-09-21 DOI: 10.1016/j.healthpol.2024.105169

Michal Brzezinski, Artur Yaniuk

{"title":"Health effects of introducing an unconditional child benefit in Poland: Evidence from a difference in differences analysis","authors":"Michal Brzezinski, Artur Yaniuk","doi":"10.1016/j.healthpol.2024.105169","DOIUrl":"10.1016/j.healthpol.2024.105169","url":null,"abstract":"<div><div>The association between income and health is well-documented, yet the impact of unconditional child benefits on health in high-income countries remains unclear. This study evaluates the health effects of a generous unconditional child transfer introduced in Poland in 2016. We employed a difference-in-differences methodology using 2010–2019 data from the European Union Statistics on Income and Living Conditions (EU-SILC). Our analysis compared health outcomes between parents eligible for the child benefit and a control group of childless individuals and parents of ineligible children. The introduction of the child benefit was associated with a 2.7 percentage point increase in reporting very good self-perceived health among beneficiaries. The improvement was more significant among the lower-income half, and there was a notable decrease in unmet medical and dental needs by 1.4 percentage points. The policy significantly improved health outcomes, suggesting the potential of unconditional cash transfers to enhance health in high-income countries, particularly for economically disadvantaged groups.</div></div>","PeriodicalId":55067,"journal":{"name":"Health Policy","volume":"149 ","pages":"Article 105169"},"PeriodicalIF":3.6,"publicationDate":"2024-09-21","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142326929","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Freedom of choice for specialized consultation in Portugal: An observational analysis of response to hospital quality 葡萄牙专科门诊的自由选择：对医院质量反应的观察分析

IF 3.6 3区医学

Health Policy Pub Date : 2024-09-17 DOI: 10.1016/j.healthpol.2024.105163

Joana Vales , Joana Cima , Julian Perelman

{"title":"Freedom of choice for specialized consultation in Portugal: An observational analysis of response to hospital quality","authors":"Joana Vales , Joana Cima , Julian Perelman","doi":"10.1016/j.healthpol.2024.105163","DOIUrl":"10.1016/j.healthpol.2024.105163","url":null,"abstract":"<div><h3>Background</h3><p>Portugal introduced freedom of choice for initial specialist consultations in 2016 to boost quality via competition. However, for tangible benefits, specialized care demand must be quality-elastic. This research probes the relation between choosing hospital out the residence area and their quality traits.</p></div><div><h3>Methods</h3><p>We used data for all primary consultation requests from primary care centres to hospitals from 1/1/2017 to 31/12/2018 (<em>n</em> = 3,346,335). We modelled the choice of a hospital as a function of its quality characteristics, adjusting for area-based socioeconomic variables using logistic regressions.</p></div><div><h3>Results</h3><p>Results indicate that patients and their general practitioners consider quality indicators when choosing a hospital. Higher mortality, longer waiting times and higher readmission rates at the hospital of origin were positively associated with the patient's choice. Freedom of choice is less used when the distance to the hospital of origin increases. Similar patterns were observed for larger hospitals and those with academic status.</p></div><div><h3>Discussion</h3><p>This study underscores the relevance of quality considerations in hospital selection by both patients and their general practitioners (GPs). The implications are two-fold. Firstly, improving quality appears as a factor to increase attractiveness, so that hospital competition may lead to improved health outcomes. Secondly, it highlights that hospital financing should include an activity dimension in which “money follows the patient”, otherwise no financial incentive exists to improve quality. Hence, the current hospital financing model and the limited possibility to choose in certain areas limit the potential of quality improvement based on enhanced attractivity. Decision makers should be aware that quality is a driver of patient choice, as our study demonstrates, and adapt the system to take advantage of this reality.</p></div>","PeriodicalId":55067,"journal":{"name":"Health Policy","volume":"149 ","pages":"Article 105163"},"PeriodicalIF":3.6,"publicationDate":"2024-09-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142241318","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

The impact of NHS outsourcing of elective care to the independent sector on outcomes for patients, healthcare professionals and the United Kingdom health care system: A rapid narrative review of literature 英国国家医疗服务系统（NHS）将择期医疗服务外包给独立机构对患者、医护人员和英国医疗系统的影响：快速文献综述。

IF 3.6 3区医学

Health Policy Pub Date : 2024-09-16 DOI: 10.1016/j.healthpol.2024.105166

Simon Fletcher , Oya Eddama , Michael Anderson , Rachel Meacock , Vasudha Wattal , Pauline Allen , Stephen Peckham

{"title":"The impact of NHS outsourcing of elective care to the independent sector on outcomes for patients, healthcare professionals and the United Kingdom health care system: A rapid narrative review of literature","authors":"Simon Fletcher , Oya Eddama , Michael Anderson , Rachel Meacock , Vasudha Wattal , Pauline Allen , Stephen Peckham","doi":"10.1016/j.healthpol.2024.105166","DOIUrl":"10.1016/j.healthpol.2024.105166","url":null,"abstract":"<div><div>The NHS is increasingly turning to the independent sector, primarily to alleviate elective care backlogs. However, implications for the healthcare system, patients and staff are not well understood.</div><div>This paper provides a rapid narrative review of research evidence on NHS-funded elective care in the independent sector (IS) and the impact on patients, professionals, and the health care system. The aim was to identify the volume and evaluate the quality of the literature whilst providing a narrative synthesis.</div><div>Studies were identified through Medline, CINAHL, Econlit, PubMed, Web of Science and Scopus. The quality of the included studies was assessed in relation to study design, sample size, relevance, methodology and methodological strength, outcomes and outcome reporting, and risk of bias.</div><div>Our review included 40 studies of mixed quality. Many studies used quantitative data to analyse outcome trends across and between sectors. Independent sector providers (ISPs) can provide high-volume and low-complexity elective care of equivalent quality to the NHS, whilst reducing waiting times in certain contexts. However it is clear that the provision of NHS-funded elective care in the IS has a range of implications for public provision. These surround access and outcome inequalities, financial sustainability and NHS workforce impacts. It will subsequently be important for future empirical work to incorporate these caveats, providing a more nuanced interpretation of quantitative improvements.</div></div>","PeriodicalId":55067,"journal":{"name":"Health Policy","volume":"150 ","pages":"Article 105166"},"PeriodicalIF":3.6,"publicationDate":"2024-09-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142407219","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Enhancing rural community engagement through palliative care networks: A scoping review 通过姑息关怀网络加强农村社区参与：范围界定审查

IF 3.6 3区医学

Health Policy Pub Date : 2024-09-14 DOI: 10.1016/j.healthpol.2024.105165

Lina María Vargas-Escobar , Erwin Hernando Hernández-Rincón , Marta Ximena León-Delgado , Sofia Elizabeth Muñoz-Medina , Nidia Mantilla-Manoslava , Juan Esteban Correa-Morales , Jose David Amorocho-Morales , Miguel Antonio Sánchez-Cárdenas

{"title":"Enhancing rural community engagement through palliative care networks: A scoping review","authors":"Lina María Vargas-Escobar , Erwin Hernando Hernández-Rincón , Marta Ximena León-Delgado , Sofia Elizabeth Muñoz-Medina , Nidia Mantilla-Manoslava , Juan Esteban Correa-Morales , Jose David Amorocho-Morales , Miguel Antonio Sánchez-Cárdenas","doi":"10.1016/j.healthpol.2024.105165","DOIUrl":"10.1016/j.healthpol.2024.105165","url":null,"abstract":"<div><p>Palliative care is a crucial discipline that alleviates suffering and enhances the quality of life for patients with life-limiting illnesses and their families. However, there is gap globally between the need for and availability of these services. Integrated health service networks offer a promising solution to address this gap in rural areas, by coordinating care across different levels and sectors. This scoping review aimed at identifying the key characteristics of palliative care networks in rural communities. A broad search without time limits was conducted in four databases. Analysis and synthesis were conducted using Latent Dirichlet Allocation topic modeling. Sixteen studies were included, revealing four key themes regarding the development of palliative care networks in rural areas: community engagement is essential to secure the reach of rural networks, tailored approaches acknowledging diversity enrich these networks, team-centric efforts involving stakeholder coordination ensure successful implementation, and a multifaceted approach—empowering non-traditional stakeholders and incorporating technology resources into primary health services—dynamizes palliative care delivery in rural areas. These findings underscore the potential of collaborative and innovative approaches to enhance the accessibility and effectiveness of palliative care in underserved rural communities. Further cost-effectiveness studies are warranted to better understand the impact these strategies can have on health systems.</p></div>","PeriodicalId":55067,"journal":{"name":"Health Policy","volume":"149 ","pages":"Article 105165"},"PeriodicalIF":3.6,"publicationDate":"2024-09-14","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S0168851024001751/pdfft?md5=055aac68c7df71e3cd4fbbad5142865c&pid=1-s2.0-S0168851024001751-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142241320","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Development of a practical framework and indicators for monitoring integrated long-term health and care needs and service use 为监测长期健康和护理综合需求及服务使用情况制定实用框架和指标

IF 3.6 3区医学

Health Policy Pub Date : 2024-09-14 DOI: 10.1016/j.healthpol.2024.105167

Hongsoo Kim , Nan-He Yoon , Dongmin Seo , Yoon Kim

{"title":"Development of a practical framework and indicators for monitoring integrated long-term health and care needs and service use","authors":"Hongsoo Kim , Nan-He Yoon , Dongmin Seo , Yoon Kim","doi":"10.1016/j.healthpol.2024.105167","DOIUrl":"10.1016/j.healthpol.2024.105167","url":null,"abstract":"<div><div>This case study presents an evidence-building approach to support policy planning for integrated health and care delivery for older adults. We developed an integrated needs-assessment framework to monitor the complex long-term medical and care needs of older individuals, using routinely collected, standardized needs-assessment and utilization data from the public health and long-term care (LTC) insurance systems in South Korea. We also developed a set of misuse indicators and analyzed service utilization patterns, while accounting for their varying types of needs. Approximately 11 % of older Koreans were identified as having complex long-term medical and care needs, which were categorized into four distinct need groups. More than one-third of those in the higher-medical/lower-care needs group stayed in LTC hospitals for six months or more during the year, and about one-third of those in the higher-medical/higher-care needs group inappropriately resided in LTC facilities, where medical services are limited. The newly developed integrated needs-assessment framework and misuse indicator set provide practical tools for monitoring the extent and nature of complex needs, as well as patterns of over- or under-utilization of health and care services over time. The empirical evidence gathered here highlights the need for reforms in South Korea's health and LTC systems.</div></div>","PeriodicalId":55067,"journal":{"name":"Health Policy","volume":"149 ","pages":"Article 105167"},"PeriodicalIF":3.6,"publicationDate":"2024-09-14","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142318532","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Drug company methodologies used for reporting in the UK pharmaceutical industry payment transparency database between 2015 and 2019: A content analysis 2015 年至 2019 年英国制药业支付透明度数据库中用于报告的制药公司方法：内容分析

IF 3.6 3区医学

Health Policy Pub Date : 2024-09-13 DOI: 10.1016/j.healthpol.2024.105155

James Larkin , Britta Matthes , Mohamed Azribi , Conor Kearns , Shai Mulinari , Emily Rickard , Frank Moriarty , Tom Fahey , Piotr Ozieranski

{"title":"Drug company methodologies used for reporting in the UK pharmaceutical industry payment transparency database between 2015 and 2019: A content analysis","authors":"James Larkin , Britta Matthes , Mohamed Azribi , Conor Kearns , Shai Mulinari , Emily Rickard , Frank Moriarty , Tom Fahey , Piotr Ozieranski","doi":"10.1016/j.healthpol.2024.105155","DOIUrl":"10.1016/j.healthpol.2024.105155","url":null,"abstract":"<div><p>Pharmaceutical companies spend hundreds of millions of pounds on marketing/R&D-related payments annually to healthcare organisations and healthcare professionals. UK pharmaceutical industry self-regulatory bodies require member companies who sign up to their code of conduct to publish details of their payments. They are also required to publish the methodologies underlying these payments, namely methodological notes. This study aimed to analyse UK pharmaceutical companies’ methodological notes and their adherence to the Association of the British Pharmaceutical Industry code of conduct and other relevant guidance. We conducted a content analysis of methodological notes for the years 2015, 2017 and 2019 and assessed companies’ adherence to self-regulatory bodies’ requirements and recommendations for methodology disclosure. Overall, 90 companies made payment disclosures in all three years, publishing 269 methodological notes. We found gaps in adherence to self-regulatory requirements. Only 3 (3.3 %) companies provided clear information for all self-regulatory body recommendations and regulations in all of their notes. Companies also varied in their approaches to important areas. For example, of the 244 notes with clear information on VAT management, 36.1 % (<em>N</em> = 88) included VAT, 30.3 % (<em>N</em> = 74) excluded VAT, and 33.6 % (<em>N</em> = 82) had multiple rules for VAT. There was evidence of widespread non-adherence to self-regulatory requirements. This suggests flaws with self-regulation and a need for greater enforcement of rules or consideration of a publicly mandated disclosure system.</p></div>","PeriodicalId":55067,"journal":{"name":"Health Policy","volume":"149 ","pages":"Article 105155"},"PeriodicalIF":3.6,"publicationDate":"2024-09-13","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S0168851024001659/pdfft?md5=3930c97b0726126c5af9dd67e6e39f18&pid=1-s2.0-S0168851024001659-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142274713","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

The modernisation of newborn screening as a pan-European challenge – An international delphi study 新生儿筛查现代化是一项泛欧挑战--国际德尔菲研究

IF 3.6 3区医学

Health Policy Pub Date : 2024-09-13 DOI: 10.1016/j.healthpol.2024.105162

Sandra Gillner , Gulcin Gumus , Edith Gross , Georgi Iskrov , Ralitsa Raycheva , Georgi Stefanov , Rumen Stefanov , Anne-Sophie Chalandon , Alicia Granados , Julian Nam , Andreas Clemens , Carl Rudolf Blankart

{"title":"The modernisation of newborn screening as a pan-European challenge – An international delphi study","authors":"Sandra Gillner , Gulcin Gumus , Edith Gross , Georgi Iskrov , Ralitsa Raycheva , Georgi Stefanov , Rumen Stefanov , Anne-Sophie Chalandon , Alicia Granados , Julian Nam , Andreas Clemens , Carl Rudolf Blankart","doi":"10.1016/j.healthpol.2024.105162","DOIUrl":"10.1016/j.healthpol.2024.105162","url":null,"abstract":"<div><p>Newborn screening is a public health measure to diagnose rare diseases at birth, thereby minimising negative effects of late treatment. Genomic technologies promise an unprecedented expansion of screened diseases at low cost and with transformative potential for newborn screening programmes. However, barriers to the public funding of genomic newborn screening are poorly understood, particularly in light of the heterogenous European newborn screening landscape. This study therefore aims to understand whether international newborn screening experts share a common understanding of the barriers to fund genomic newborn screening. For this purpose, we convened 21 European newborn screening experts across a range of professions and national backgrounds in a Delphi study. Stable consensus, determined via the Wilcoxon matched-pairs signed-ranks test, was found via three consecutive survey rounds for all presented barriers. Experts generally judged the scenario of genomic newborn screening being available to every newborn in seven years to be unlikely, identifying treatability and the absence of counselling and a skilled workforce as the most significant barriers to public funding. We identify value re-definition for rare disease treatments, centralisation of genomic expertise, and international research consortia as avenues for pan-European actions which build on the consensus achieved by our Delphi panel.</p></div>","PeriodicalId":55067,"journal":{"name":"Health Policy","volume":"149 ","pages":"Article 105162"},"PeriodicalIF":3.6,"publicationDate":"2024-09-13","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S0168851024001726/pdfft?md5=611a821cac48f8e22762cd2f82d05cd1&pid=1-s2.0-S0168851024001726-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142274712","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0