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Introduction to the Special Issue on Pediatric Decision-Making. 儿科决策特刊简介。
IF 1 4区 医学
Perspectives in Biology and Medicine Pub Date : 2024-01-01 DOI: 10.1353/pbm.2024.a929016
Erica K Salter
{"title":"Introduction to the Special Issue on Pediatric Decision-Making.","authors":"Erica K Salter","doi":"10.1353/pbm.2024.a929016","DOIUrl":"https://doi.org/10.1353/pbm.2024.a929016","url":null,"abstract":"","PeriodicalId":54627,"journal":{"name":"Perspectives in Biology and Medicine","volume":"67 2","pages":"181-185"},"PeriodicalIF":1.0,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141201377","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Pediatric Decision-Making for Children in State Custody. 国家监护下儿童的儿科决策。
IF 1 4区 医学
Perspectives in Biology and Medicine Pub Date : 2024-01-01 DOI: 10.1353/pbm.2024.a929024
Erin Talati Paquette, Lou Vinarcsik
{"title":"Pediatric Decision-Making for Children in State Custody.","authors":"Erin Talati Paquette, Lou Vinarcsik","doi":"10.1353/pbm.2024.a929024","DOIUrl":"https://doi.org/10.1353/pbm.2024.a929024","url":null,"abstract":"<p><p>In summer 2022, six points of consensus emerged from a symposium addressing the question, \"In the context of U.S. pediatric care, what moral precepts ought to guide parents and clinicians in medical decision making for children?\" (Salter et al. 2023). The authors of this statement wrote, however, that the points of consensus may require modification or may not apply in their entirety to children in state custody. This article addresses the consensus recommendations in the context of the thousands of children removed annually from the custody of their parents. While the consensus statements developed at the symposium provide a good starting point for decision-making in the context of these children, some alterations and nuance must be applied to attend to the specific needs of this population. The article works through what special considerations and changes ought to be made to expand the reach of the original points of consensus without neglecting the particular conditions of children in state custody, as well as their parents and caregivers.</p>","PeriodicalId":54627,"journal":{"name":"Perspectives in Biology and Medicine","volume":"67 2","pages":"290-304"},"PeriodicalIF":1.0,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141201387","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Can We Flourish Amid Our Losses? Transformative Openings in Old Age. 我们能否在失落中茁壮成长？老年期的变革开放。
IF 0.8 4区 医学
Perspectives in Biology and Medicine Pub Date : 2024-01-01 DOI: 10.1353/pbm.2024.a936220
Larry R Churchill
{"title":"Can We Flourish Amid Our Losses? Transformative Openings in Old Age.","authors":"Larry R Churchill","doi":"10.1353/pbm.2024.a936220","DOIUrl":"10.1353/pbm.2024.a936220","url":null,"abstract":"<p><p>This essay is an exploration of the transformative possibilities open to us through aging. Transformative openings are described using psychologist Abraham Maslow's notion of \"peak-experiences,\" which are both normal and common for humans. Popular cultural stereotypes of aging are examined and discarded. The experiences of loss, especially diminishments of mobility, dexterity, and mental acuity, are characteristic of aging. It is argued that these losses present novel transformative openings, especially when death and aging are viewed in dialectical relationship.</p>","PeriodicalId":54627,"journal":{"name":"Perspectives in Biology and Medicine","volume":"67 3","pages":"437-448"},"PeriodicalIF":0.8,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142156683","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Disability and the Practice of Wonder. 残疾与奇迹的实践
IF 0.8 4区 医学
Perspectives in Biology and Medicine Pub Date : 2024-01-01 DOI: 10.1353/pbm.2024.a942073
Julia Watts Belser
{"title":"Disability and the Practice of Wonder.","authors":"Julia Watts Belser","doi":"10.1353/pbm.2024.a942073","DOIUrl":"https://doi.org/10.1353/pbm.2024.a942073","url":null,"abstract":"<p><p>In her landmark volume Freakery: Cultural Spectacles of the Extraordinary Body, Rosemarie Garland-Thomson argues that the Enlightenment heralded a striking change in the way European and American thinkers conceptualized disability-away from earlier notions of disability as a marvel or wonder, toward a discourse of normalcy and deviance that framed disability as an aberration. Might returning to wonder offer us a path to approach disability differently? This article probes two risks: the way treating disabled people as wondrous can be used to objectify, turning disabled bodies into sites that matter because they spark feeling in others; and the way a call to experience wonder can figure certain feelings or modes of perception as prerequisites for a meaningful life. Considering the way that disabled writers narrate our own experience showcases wonder's possibilities: new orientations toward beauty, care, interdependence, and a sensuous engagement with the complex present of disabled people's lives.</p>","PeriodicalId":54627,"journal":{"name":"Perspectives in Biology and Medicine","volume":"67 4","pages":"517-526"},"PeriodicalIF":0.8,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142632780","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Koan: Leonard laughing. Koan：伦纳德在笑
IF 0.8 4区 医学
Perspectives in Biology and Medicine Pub Date : 2024-01-01 DOI: 10.1353/pbm.2024.a942077
Tracy Fessenden
{"title":"Koan: Leonard laughing.","authors":"Tracy Fessenden","doi":"10.1353/pbm.2024.a942077","DOIUrl":"https://doi.org/10.1353/pbm.2024.a942077","url":null,"abstract":"<p><p>Leonard Norman Primiano (1957-2021), esteemed folklorist and ethnographer of religion, relied for 16 years on assistive technology to speak. Described by an anonymous reviewer as \"our ever-vanguard of thought, work, and ethics, not to mention creativity, funkiness, and joy,\" Primiano brought a reverential delight to his vocation and inspired a reverential delight in return. This essay reflects on Primiano as a radiant example of the capacity for wonder.</p>","PeriodicalId":54627,"journal":{"name":"Perspectives in Biology and Medicine","volume":"67 4","pages":"547-555"},"PeriodicalIF":0.8,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142632797","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Setting Expectations for Ethics Theory from the Standpoint of the User. 从用户的角度设定对伦理理论的期望。
IF 0.8 4区 医学
Perspectives in Biology and Medicine Pub Date : 2024-01-01 DOI: 10.1353/pbm.2024.a936215
Eric Racine
{"title":"Setting Expectations for Ethics Theory from the Standpoint of the User.","authors":"Eric Racine","doi":"10.1353/pbm.2024.a936215","DOIUrl":"https://doi.org/10.1353/pbm.2024.a936215","url":null,"abstract":"<p><p>Ethics theory is highly valued to the point that some commentators have claimed that it has taken on a life of its own, with too much focus on the justification of moral judgment and not enough on the needs of users of such theory. Building from various personal experiences of interdisciplinary ethics collaborative developments and empirical research projects, the wisdom gleaned by others, as well as insights from pragmatist theory, this article offers five (non-exhaustive) expectations for ethics theory from the standpoint of a user. The article is intended to prompt broad reflection on expectations toward ethics theory and why user perspectives should be considered early in the development of ethics scholarship.</p>","PeriodicalId":54627,"journal":{"name":"Perspectives in Biology and Medicine","volume":"67 3","pages":"348-369"},"PeriodicalIF":0.8,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142156688","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Of Jellybeans and Morning Glories. 关于软糖和牵牛花
IF 0.8 4区 医学
Perspectives in Biology and Medicine Pub Date : 2024-01-01 DOI: 10.1353/pbm.2024.a942076
Yomi Sachiko Young
{"title":"Of Jellybeans and Morning Glories.","authors":"Yomi Sachiko Young","doi":"10.1353/pbm.2024.a942076","DOIUrl":"https://doi.org/10.1353/pbm.2024.a942076","url":null,"abstract":"<p><p>The author invites us to accompany her from sun up to sun down as she shares the routines that create a sustaining environment for her family. She describes the assistive devices, modifications to her home and vehicle, and the strong care network that enable her to mother, and to celebrate the wonder of living and thriving with her daughter.</p>","PeriodicalId":54627,"journal":{"name":"Perspectives in Biology and Medicine","volume":"67 4","pages":"541-546"},"PeriodicalIF":0.8,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142632801","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
People on Floors: Creating Relics Out of Medical Waste. 地板上的人们从医疗废物中创造文物。
IF 0.8 4区 医学
Perspectives in Biology and Medicine Pub Date : 2024-01-01 DOI: 10.1353/pbm.2024.a942078
Jaime Konerman-Sease
{"title":"People on Floors: Creating Relics Out of Medical Waste.","authors":"Jaime Konerman-Sease","doi":"10.1353/pbm.2024.a942078","DOIUrl":"https://doi.org/10.1353/pbm.2024.a942078","url":null,"abstract":"<p><p>This article examines three debates over the nature of human specimens: anatomical dissection in Victorian Britain, the question of ownership over Henrietta Lacks's cells, and recent debates over how to treat remnants of abortion. These cases reveal that specimens are deeply connected to human persons and should be considered with a particular kind of care. The author uses Andrew Solomon's concept of horizontal kinship to support reframing medical waste as \"relics\"-objects of veneration interpreted as revealing truth about the human experience. Envisioning medical waste as relics allows us to wonder at the ability of the body to provide transformative knowledge, which leads to practices of appreciation to honor the sacrifices of the body.</p>","PeriodicalId":54627,"journal":{"name":"Perspectives in Biology and Medicine","volume":"67 4","pages":"556-565"},"PeriodicalIF":0.8,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142632805","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
"Control Freaks": Evaluating Concerns of Ableism in the Perinatal Environment. "控制狂"：评估围产期环境中对能力歧视的担忧。
IF 0.8 4区 医学
Perspectives in Biology and Medicine Pub Date : 2024-01-01 DOI: 10.1353/pbm.2024.a942084
Tyler Tate
{"title":"\"Control Freaks\": Evaluating Concerns of Ableism in the Perinatal Environment.","authors":"Tyler Tate","doi":"10.1353/pbm.2024.a942084","DOIUrl":"https://doi.org/10.1353/pbm.2024.a942084","url":null,"abstract":"<p><p>This essay explores the relationship between the modern era's impulse toward control and the practices of family planning and disability-selective abortion. Drawing from experiences as a pediatric palliative care physician working within a busy fetal care program, as well as the social theory of sociologist Hartmut Rosa, the author argues that there is an unresolved cultural and professional conflict within perinatal medicine between maximizing control of the future and maximizing a culture of anti-ableism.</p>","PeriodicalId":54627,"journal":{"name":"Perspectives in Biology and Medicine","volume":"67 4","pages":"619-630"},"PeriodicalIF":0.8,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142632775","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Donning the Imaging Gown: Enchanting the Ill and Pregnant Body in Art. 穿上成像袍：在艺术中描绘病态和怀孕的身体。
IF 0.8 4区 医学
Perspectives in Biology and Medicine Pub Date : 2024-01-01 DOI: 10.1353/pbm.2024.a942075
Darian Goldin Stahl
{"title":"Donning the <i>Imaging Gown</i>: Enchanting the Ill and Pregnant Body in Art.","authors":"Darian Goldin Stahl","doi":"10.1353/pbm.2024.a942075","DOIUrl":"https://doi.org/10.1353/pbm.2024.a942075","url":null,"abstract":"<p><p>The hospital gown is a particularly charged article of clothing. For the chronically ill and disabled, the ritual of donning the gown signals a change of identity from \"person\" to \"patient.\" This essay chronicles the metamorphosis of a standard hospital gown into a work of wearable art that showcases the glittering pregnant body. Rather than thinly shrouding nakedness, this gown reveals the nude, gravid, and disabled figure as not only worthy of artistic concentration, but full of wonder and enchantment. This work emerges from the author's decade-long collaborative practice with her sister, Devan Stahl, as her experiences living under the medical gaze are compounded in the pursuit of motherhood. The Imaging Gown takes up past and present visual cultures of medicine and re-presents them with sublime sensibilities that affirm the patient perspective.</p>","PeriodicalId":54627,"journal":{"name":"Perspectives in Biology and Medicine","volume":"67 4","pages":"532-540"},"PeriodicalIF":0.8,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142632791","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
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