Journal of Child Health Care最新文献_第8页

Factors that support children and young people to express their views and to have them heard in healthcare: An inductive qualitative content analysis. 支持儿童和青少年在医疗保健中表达意见并使其意见得到倾听的因素：归纳式定性内容分析。

IF 1.9 4区医学

Journal of Child Health Care Pub Date : 2024-06-04 DOI: 10.1177/13674935241258515

Clare Davies, Donna Waters, Jennifer Fraser

{"title":"Factors that support children and young people to express their views and to have them heard in healthcare: An inductive qualitative content analysis.","authors":"Clare Davies, Donna Waters, Jennifer Fraser","doi":"10.1177/13674935241258515","DOIUrl":"https://doi.org/10.1177/13674935241258515","url":null,"abstract":"Despite development of healthcare charters supporting Article 12 of The United Nations Convention on the Rights of the Child, children and young people remain largely silenced in discussions about their healthcare. This article is based on the premise that children and young people should be able to exercise their right to express their views and be heard in all matters that affect their lives. This study examined children's and young people's experiences of expressing their views and having them heard in an Australian healthcare context. Using child-centred inquiry and 'draw, write, and tell' methods, data were collected from 20 children and young people. Five factors that supported children and young people to express their views and have their views heard were identified: time, relationships with health professionals, communication, teamwork, and family support. By paying attention to these factors, clinicians and others in health settings can better facilitate child-centred practices and support children and young people to express their views and have those views heard.","PeriodicalId":54388,"journal":{"name":"Journal of Child Health Care","volume":" ","pages":"13674935241258515"},"PeriodicalIF":1.9,"publicationDate":"2024-06-04","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141238832","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Goals of Morbidity and Mortality meetings in paediatric acute care. A qualitative case study. 儿科急症护理中发病率和死亡率会议的目标。定性案例研究。

IF 1.9 4区医学

Journal of Child Health Care Pub Date : 2024-06-04 DOI: 10.1177/13674935241249597

Emma Jeffs, Fiona Newall, Clare Delany, Sharon Kinney

{"title":"Goals of Morbidity and Mortality meetings in paediatric acute care. A qualitative case study.","authors":"Emma Jeffs, Fiona Newall, Clare Delany, Sharon Kinney","doi":"10.1177/13674935241249597","DOIUrl":"https://doi.org/10.1177/13674935241249597","url":null,"abstract":"Morbidity and Mortality meetings are conducted in varied clinical contexts including paediatrics. Widely cited as an educational or quality improvement tool, the reality is more complex. In this qualitative study, the aim was to explore the perceived goals of the paediatric acute care Morbidity and Morbidity meeting. This study used semi-structured interviews and observation within a qualitative case study methodology. Data were collected in a large paediatric quaternary hospital. Analysis generated themes related to meeting observations and the participant's interpretation of meeting goals. A total of 44 interviews were conducted with 14 nurses, 29 doctors, and 1 allied health professional. Thirty-two meetings in six clinical departments were observed. Two themes were developed: complex and nuanced goals; and tensions and contest between and within goals. Meeting goals to evaluate care, learn, support, adhere, and change and respond were sometimes in competition and had varied interpretations. Morbidity and Mortality meetings in this setting are valued and occupy a complex role which reaches beyond identification of measurable patient safety interventions. Understanding goals more fully can lead to optimised conduct and meaningful measurement of efficacy. The strength in these meetings may be the way they promote an embedded safety culture, and an informed and skilled workforce.","PeriodicalId":54388,"journal":{"name":"Journal of Child Health Care","volume":" ","pages":"13674935241249597"},"PeriodicalIF":1.9,"publicationDate":"2024-06-04","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141238833","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Are we at risk of commodifying lived experience in childhood disability research? 在儿童残疾研究中，我们是否面临着生活经验商品化的风险？

IF 1.3 4区医学

Journal of Child Health Care Pub Date : 2024-06-01 Epub Date: 2024-05-05 DOI: 10.1177/13674935241253919

Jim Reeder

引用次数: 0

An Australian survey of health professionals' perceptions of use and usefulness of electronic medical records in hospitalised children's pain care. 澳大利亚关于医疗专业人员对住院儿童疼痛护理中电子病历的使用和实用性的看法调查。

IF 1.9 4区医学

Journal of Child Health Care Pub Date : 2024-05-29 DOI: 10.1177/13674935241256254

Nicole Pope, Janelle Keyser, Dianne Crellin, Greta Palmer, Mike South, Denise Harrison

{"title":"An Australian survey of health professionals' perceptions of use and usefulness of electronic medical records in hospitalised children's pain care.","authors":"Nicole Pope, Janelle Keyser, Dianne Crellin, Greta Palmer, Mike South, Denise Harrison","doi":"10.1177/13674935241256254","DOIUrl":"https://doi.org/10.1177/13674935241256254","url":null,"abstract":"Pain in hospitalised children is common, yet inadequately treated. Electronic medical records (EMRs) can improve care quality and outcomes during hospitalisation. Little is known about how clinicians use EMRs in caring for children with pain. This national cross-sectional survey examined the perceptions of clinician-EMR users about current and potential use of EMRs in children's pain care. One hundred and ninety-four clinicians responded (n = 81, 74% nurses; n = 21, 19% doctors; n = 7, 6% other); most used Epic (n = 53/109, 49%) or Cerner (n = 42/109, 38%). Most (n = 84/113, 74%) agreed EMRs supported their initiation of pharmacological pain interventions. Fewer agreed EMRs supported initiation of physical (n = 49/113, 43%) or psychological interventions (n = 41/111, 37%). Forty-four percent reported their EMR had prompt reminders for pain care. Prompts were perceived as useful (n = 40/51, 78%). Most agreed EMRs supported pain care provision (n = 94/110, 85%) and documentation (n = 99/111, 89%). Only 39% (n = 40/102) agreed EMRs improved pain treatment, and 31% (n = 32/103) agreed EMRs improved how they involve children and families in pain care. Findings provide recommendations for EMR designs that support clinicians' understanding of the multidimensionality of children's pain and drive comprehensive assessments and treatments. This contribution will inform future translational research on harnessing technology to support child and family partnerships in care.","PeriodicalId":54388,"journal":{"name":"Journal of Child Health Care","volume":" ","pages":"13674935241256254"},"PeriodicalIF":1.9,"publicationDate":"2024-05-29","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141176663","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

'I don't want him to always be so far behind': Parental perceptions of child independence in the context of extreme prematurity; a qualitative study. 我不想让他总是落后那么多"：父母对极度早产儿独立性的看法；一项定性研究。

IF 1.3 4区医学

Journal of Child Health Care Pub Date : 2024-05-27 DOI: 10.1177/13674935241256545

Emmi Suonpera, Katie Gallagher, Neil Marlow, Anne Lanceley

{"title":"'I don't want him to always be so far behind': Parental perceptions of child independence in the context of extreme prematurity; a qualitative study.","authors":"Emmi Suonpera, Katie Gallagher, Neil Marlow, Anne Lanceley","doi":"10.1177/13674935241256545","DOIUrl":"10.1177/13674935241256545","url":null,"abstract":"This study addresses the paucity of research on parents of extremely preterm adolescents (born <27 weeks of gestation) and their experiences within the framework of parental determinism. We conducted semi-structured interviews with twenty-two mothers and one father. Data were analysed thematically, revealing three overarching themes and eight subthemes shaping parental accounts. These themes centred on parental ambitions for their children, their perceptions of their child's abilities, and the parenting behaviours employed to support parental aspirations. Parents' actions were influenced by their ambitions and the belief that they could impact their child's future independence. While some parents adopted 'trusting', non-intensive parenting behaviours, those anticipating challenges for their child's future independence resorted to intensive parenting practices. These findings align with the concept of parental determinism, emphasising the perceived causal link between present parental actions and future child outcomes. In the context of extreme prematurity, a nuanced understanding of parental perceptions regarding their child's future independence aligned with a delicate balance between hope and realistic aspiration is crucial for enhancing parental support and well-being.","PeriodicalId":54388,"journal":{"name":"Journal of Child Health Care","volume":" ","pages":"13674935241256545"},"PeriodicalIF":1.3,"publicationDate":"2024-05-27","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141154430","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Hospitalized children experience: Play heroes to build bridges between hospital days and everyday life. 住院儿童的经历：扮演英雄，在住院日和日常生活之间架起桥梁。

IF 1.9 4区医学

Journal of Child Health Care Pub Date : 2024-05-09 DOI: 10.1177/13674935241253303

Sunniva Olsen, Malene Beck, Malene Boas, Anita Pedersen, Jannie Nissen, Charlotte Simonÿ

{"title":"Hospitalized children experience: Play heroes to build bridges between hospital days and everyday life.","authors":"Sunniva Olsen, Malene Beck, Malene Boas, Anita Pedersen, Jannie Nissen, Charlotte Simonÿ","doi":"10.1177/13674935241253303","DOIUrl":"https://doi.org/10.1177/13674935241253303","url":null,"abstract":"Play has positive effects on children's well-being and development. Play heroes, in Danish, called \"Legeheltene\", have worked, for the last 7 years, to improve play and movement for hospitalized children in Danish hospitals. However, the significance of this novel Danish intervention is insufficiently researched. This phenomenological-hermeneutic study explored how children experience interacting with a play hero when hospitalized at a Danish paediatric unit. Combined observations and interviews were performed with children from two paediatric departments. Data were analyzed with inspiration from the French philosopher Paul Ricoeur. Three themes were identified: \"A sense of familiarity,\" \"From loneliness to connectedness,\" and \"Becoming more powerful.\" Children experience that interaction with play heroes is existentially meaningful. Through playful activities, children experience that they are connected to their daily lives outside the hospital and their true selves. Bridges to children's everyday lives are built, leading to an improved sense of freedom, security, and the ability to manage difficult aspects of their hospital stay. Engagement with play heroes provides children with an experience of well-being and can be a positive direction in care provided to hospitalized children.","PeriodicalId":54388,"journal":{"name":"Journal of Child Health Care","volume":" ","pages":"13674935241253303"},"PeriodicalIF":1.9,"publicationDate":"2024-05-09","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140900073","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Caregivers with limited English proficiency: Satisfaction with primary pediatric healthcare. 英语水平有限的护理人员：对初级儿科医疗服务的满意度。

IF 1.9 4区医学

Journal of Child Health Care Pub Date : 2024-05-08 DOI: 10.1177/13674935241252479

Linda Thanh Duong, My-An Tran

{"title":"Caregivers with limited English proficiency: Satisfaction with primary pediatric healthcare.","authors":"Linda Thanh Duong, My-An Tran","doi":"10.1177/13674935241252479","DOIUrl":"https://doi.org/10.1177/13674935241252479","url":null,"abstract":"With a growing 25.5 million people in the United States experiencing limited-English proficiency (LEP), there is a concern over these individuals' experiences in healthcare. Health outcomes of LEP status are well-documented for adults in hospitals; however, less is known about patient experience, pediatric populations, and primary care settings. This study investigated differences in caregiver satisfaction between families with and without LEP receiving healthcare for their child. A sample of 25,118 caregivers whose children from birth to 17 years had met with any healthcare providers in the past year was used. Analyses consisted of unpaired t-tests comparing mean satisfaction of LEP and English-proficient (EP) caregivers in the domains of how often primary healthcare providers spent enough time with the child, listened, provided specific information, demonstrated sensitivity to the family's values, and made the respondent feel like a partner. In all aspects of caregiver satisfaction, mean satisfaction scores were significantly lower for LEP caregivers than EP caregivers. The largest drops were seen in perceived time and sensitivity. These results highlight a need to ensure LEP families receive equitable and high-quality primary care services, ultimately building trust in the healthcare system and improving children's health and well-being.","PeriodicalId":54388,"journal":{"name":"Journal of Child Health Care","volume":" ","pages":"13674935241252479"},"PeriodicalIF":1.9,"publicationDate":"2024-05-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140892382","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Factors associated with healthcare transition readiness for adolescents with chronic conditions: A cross-sectional study 与患有慢性病的青少年医疗保健过渡准备相关的因素：横断面研究

IF 1.9 4区医学

Journal of Child Health Care Pub Date : 2024-04-26 DOI: 10.1177/13674935241248859

Hye Seung Hong, YeoJin Im

{"title":"Factors associated with healthcare transition readiness for adolescents with chronic conditions: A cross-sectional study","authors":"Hye Seung Hong, YeoJin Im","doi":"10.1177/13674935241248859","DOIUrl":"https://doi.org/10.1177/13674935241248859","url":null,"abstract":"Healthcare transition readiness (HCTR) plays a vital role by fostering autonomy, self-management skills, and active involvement in healthcare, leading to positive health outcomes. This study aimed to examine the factors associated with HCTR in adolescents with chronic conditions (ACCs) including adolescents’ autonomy, parental overprotection, and autonomy support from healthcare providers (HCPs). This descriptive study included 107 adolescents aged 14–19 years (median age: 17 years, IQR = 1), recruited from online communities and support groups in South Korea. Data were analyzed using hierarchical linear regression. Our research has shown that HCTR is linked to a lower level of parental overprotection (β = −0.46, 95% CI [−0.59, −0.33]) and higher levels of autonomy support from HCPs (β = 0.46, 95% CI [0.36, 0.56]). Among general characteristics, we also found that having a transfer plan to adult care (β = 0.24, 95% CI [0.04, 0.44]) is significantly associated with HCTR. This study contributes to a broader understanding of HCTR by examining its associated factors in ACC. The results emphasize the pivotal roles of parental involvement, healthcare provider support, and structured transition to adult care in enhancing HCTR. These findings underscore the need for comprehensive assistance to ensure successful healthcare transitions.","PeriodicalId":54388,"journal":{"name":"Journal of Child Health Care","volume":"51 1","pages":""},"PeriodicalIF":1.9,"publicationDate":"2024-04-26","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140801411","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Adolescents’ perspectives and experiences of accessing general practitioner services: A systematic review 青少年对全科医生服务的看法和体验：系统回顾

IF 1.9 4区医学

Journal of Child Health Care Pub Date : 2024-04-17 DOI: 10.1177/13674935241239837

Stephanie M Lawrence, Mohamad M Saab, Eileen Savage, Josephine Hegarty, Serena FitzGerald

{"title":"Adolescents’ perspectives and experiences of accessing general practitioner services: A systematic review","authors":"Stephanie M Lawrence, Mohamad M Saab, Eileen Savage, Josephine Hegarty, Serena FitzGerald","doi":"10.1177/13674935241239837","DOIUrl":"https://doi.org/10.1177/13674935241239837","url":null,"abstract":"Adolescents face issues regarding physical health, mental health, sexual health, drug and alcohol problems, stress, and peer pressure. Little is known about adolescents’ help-seeking behaviours in relation to health concerns. The general practitioner (GP) is usually the first point of contact for adolescents. The aim of this systematic review was to identify, describe, and summarize evidence on barriers and enablers experienced by adolescents when accessing GP-led primary care services. Systematic searches using four electronic databases (PsycINFO, MEDLINE, CINAHL, and SocINDEX) were conducted and the quality of the included studies was appraised. Six studies were included in this review. Findings indicate that barriers to GP access relate to trust, confidentiality, privacy, and communication. Adolescents also reported barriers such as transport, cost, and lack of information. Adolescents reported enablers being services that are sensitive to their needs, healthcare professionals who understand them, and services that are flexible regarding out of hours access. Listening to and acting on the voice of adolescents is important to developing youth-friendly services.","PeriodicalId":54388,"journal":{"name":"Journal of Child Health Care","volume":"30 1","pages":""},"PeriodicalIF":1.9,"publicationDate":"2024-04-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140608943","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

‘They don’t know what to do with our children’: Experiences and views on feeding and swallowing from parents of children who use long-term ventilation 他们不知道该拿我们的孩子怎么办"：使用长期通气的儿童的父母对喂养和吞咽的经验和看法

IF 1.9 4区医学

Journal of Child Health Care Pub Date : 2024-04-09 DOI: 10.1177/13674935241242824

Sabrena Lee, Jeanne Marshall, Michael Clarke, Christina Smith

{"title":"‘They don’t know what to do with our children’: Experiences and views on feeding and swallowing from parents of children who use long-term ventilation","authors":"Sabrena Lee, Jeanne Marshall, Michael Clarke, Christina Smith","doi":"10.1177/13674935241242824","DOIUrl":"https://doi.org/10.1177/13674935241242824","url":null,"abstract":"Increasing use of paediatric long-term ventilation (LTV) has been reported around the world over the last two decades and it is anticipated that use of this medical intervention will continue to grow. Research has shown that children who use LTV have risk factors for feeding and swallowing difficulties which result in long-term reliance on non-oral feeding methods. This Patient and Public Involvement (PPI) activity explored experiences of parents of children with LTV on their children’s feeding and swallowing journeys. Individual and group interviews with seven parents were conducted. Interview data was then analysed using content analysis. Families discussed a range of themes including impacts on their family, facilitators and barriers to feeding and swallowing journeys, speech and language therapy (SLT) support, their family’s healthcare journey in relation to quality of life and future directions for research. This study highlighted potential key areas to explore when identifying ways to improve SLT care and research in feeding and swallowing for children who use LTV.","PeriodicalId":54388,"journal":{"name":"Journal of Child Health Care","volume":"5 4 1","pages":""},"PeriodicalIF":1.9,"publicationDate":"2024-04-09","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140565199","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0