Journal of Child Health Care最新文献_第8页

Being the nurse for my child at home: A qualitative analysis of parental recognition, appraisal, and reactions to childhood cancer in Ghana. 在家里做孩子的护士：对加纳父母对儿童癌症的认识、评价和反应的定性分析。

IF 1.9 4区医学

Journal of Child Health Care Pub Date : 2023-12-28 DOI: 10.1177/13674935231225715

Adwoa Bemah Boamah Mensah, Humaima Nunoo, Kofi Boamah Mensah, Joshua Okyere, Veronica Millicent Dzomeku, Felix Apiribu, Kofi Agyenim Boateng, Comfort Asoogo, Edwina Opare-Lokko, Joe-Nat Clegg-Lamptey

{"title":"Being the nurse for my child at home: A qualitative analysis of parental recognition, appraisal, and reactions to childhood cancer in Ghana.","authors":"Adwoa Bemah Boamah Mensah, Humaima Nunoo, Kofi Boamah Mensah, Joshua Okyere, Veronica Millicent Dzomeku, Felix Apiribu, Kofi Agyenim Boateng, Comfort Asoogo, Edwina Opare-Lokko, Joe-Nat Clegg-Lamptey","doi":"10.1177/13674935231225715","DOIUrl":"https://doi.org/10.1177/13674935231225715","url":null,"abstract":"Parental involvement in childhood cancer care is of utmost importance, but the understanding of parental recognition, appraisal, and reactions to childhood cancer in settings such as Ghana is limited. We conducted an empirical phenomenological study to explore these aspects among Ghanaian parents. Twenty parents were purposively sampled to participate in semi-structured interviews between June and September 2022. All interviews were transcribed and analysed using an inductive thematic approach. We found that parents recognised symptoms through personal observation and their child's self-report, often perceiving them as non-severe. Emotional reactions upon receiving their child's cancer diagnosis included psychological distress, fear, doubts, and confusion. Enduring emotions experienced by parents were fears of disease recurrence and impending death of their child. Parents assumed the role of nurses at home, monitoring therapy effects, managing pain and symptoms, and dressing wounds. In conclusion, parents in Ghana play a crucial role in the recognition, diagnosis, and treatment pathways of childhood cancer. To enhance their ability to recognise symptoms and take timely actions, it is recommended to implement media programs and health education initiatives targeting parents.","PeriodicalId":54388,"journal":{"name":"Journal of Child Health Care","volume":" ","pages":"13674935231225715"},"PeriodicalIF":1.9,"publicationDate":"2023-12-28","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139059139","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Transgender and gender diverse youths' experiences of healthcare: A systematic review of qualitative studies. 变性和不同性别青年的医疗保健经历：定性研究的系统回顾。

IF 1.9 4区医学

Journal of Child Health Care Pub Date : 2023-12-22 DOI: 10.1177/13674935231222054

Ryan Goulding, John Goodwin, Aine O'Donovan, Mohamad M Saab

{"title":"Transgender and gender diverse youths' experiences of healthcare: A systematic review of qualitative studies.","authors":"Ryan Goulding, John Goodwin, Aine O'Donovan, Mohamad M Saab","doi":"10.1177/13674935231222054","DOIUrl":"https://doi.org/10.1177/13674935231222054","url":null,"abstract":"Transgender and gender-diverse (TGD) populations are identified as high-risk for negative healthcare outcomes. Limited data exists on experiences of TGD youths in healthcare. The review aim is to systematically review literature on healthcare experiences of TGD youths. Seven electronic databases were systematically searched for relevant studies. Pre-determined eligibility criteria were used for inclusion with a double-screening approach. Sixteen studies were included. Studies included were quality appraised, data were extracted, and findings were synthesized narratively. Four narratives were identified including experiences of: accessing care, healthcare settings and services, healthcare providers, and healthcare interventions. Long waiting times, lack of competent providers, and fear were reported as challenges to accessing gender-affirming care. Negative experiences occurred in mental health services and primary care, while school counseling and gender clinics were affirming. Puberty blockers and hormone-replacement therapy were identified as protective factors. TGD youths are at risk of negative health outcomes due to an under resourced healthcare system. Further research is needed to assess interventions implemented to improve TGD youth's experiences.","PeriodicalId":54388,"journal":{"name":"Journal of Child Health Care","volume":" ","pages":"13674935231222054"},"PeriodicalIF":1.9,"publicationDate":"2023-12-22","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138833007","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Mothers' experiences of caring for their children with liver transplantation: From sorrow to new determination. 母亲照顾肝移植子女的经历：从悲伤到新的决心

IF 1.9 4区医学

Journal of Child Health Care Pub Date : 2023-12-19 DOI: 10.1177/13674935231223767

Sooyoung Kim, Sook Jung Kang

{"title":"Mothers' experiences of caring for their children with liver transplantation: From sorrow to new determination.","authors":"Sooyoung Kim, Sook Jung Kang","doi":"10.1177/13674935231223767","DOIUrl":"https://doi.org/10.1177/13674935231223767","url":null,"abstract":"This study aims to understand mothers' dynamic experiences of caring for their children with liver transplant. A descriptive phenomenological qualitative approach was applied to this study. A total of seven mothers participated in this study. Data were collected from April 2020 to June 2020 through face-to-face interviews. Data analysis was performed using Giorgi's phenomenological method. By grouping general meaning units, 8 themes and 19 subthemes were derived. Eight themes are as follows: sorrow and distress of accepting a child's diagnosis; difficulties in deciding to undergo liver transplantation; negative emotions before and after transplant; the support system before and after liver transplantation; achieving a sense of trust toward healthcare providers; new concerns about the child's life after undergoing liver transplantation; appreciation of the experience; and new determination and expectations for future life. This study can contribute to the guideline that describes the role and daily life experiences of caregiving for other parents whose children undergo liver transplantation and nurses who work with impacted families. Healthcare providers can refer to the results to provide liver transplantation childcare and hospital-based support groups for child's family to improve nurses' communication skills.","PeriodicalId":54388,"journal":{"name":"Journal of Child Health Care","volume":" ","pages":"13674935231223767"},"PeriodicalIF":1.9,"publicationDate":"2023-12-19","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138811996","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Time to treat the climate and nature crisis as one indivisible global health emergency. 是时候将气候和自然危机作为一个不可分割的全球健康紧急事件来对待了。

IF 1.9 4区医学

Journal of Child Health Care Pub Date : 2023-12-01 Epub Date: 2023-11-01 DOI: 10.1177/13674935231209596

Kamran Abbasi, Parveen Ali, Virginia Barbour, Thomas Benfield, Kirsten Bibbins-Domingo, Stephen Hancocks, Richard Horton, Laurie Laybourn-Langton, Robert Mash, Peush Sahni, Wadeia Mohammad Sharief, Paul Yonga, Chris Zielinski

引用次数: 0

Corrigendum to "The hospital safety scale for kids: Development of a new measurement tool for hospitalized children". 勘误表“儿童医院安全量表：为住院儿童开发新的测量工具”。

IF 1.9 4区医学

Journal of Child Health Care Pub Date : 2023-12-01 Epub Date: 2023-10-03 DOI: 10.1177/13674935231203456

引用次数: 0

Time to treat the climate and nature crisis as one indivisible global health emergency. 是时候将气候和自然危机视为一个不可分割的全球卫生紧急事件了。

IF 1.9 4区医学

Journal of Child Health Care Pub Date : 2023-12-01 Epub Date: 2023-11-01 DOI: 10.1177/13674935231209596

Kamran Abbasi, Parveen Ali, Virginia Barbour, Thomas Benfield, Kirsten Bibbins-Domingo, Stephen Hancocks, Richard Horton, Laurie Laybourn-Langton, Robert Mash, Peush Sahni, Wadeia Mohammad Sharief, Paul Yonga, Chris Zielinski

引用次数: 0

I saw myself as an important piece of a jigsaw puzzle: Parents experiences of their child's anaesthesia induction. 我把自己看作一个重要的拼图:父母对孩子麻醉诱导的体验。

IF 1.9 4区医学

Journal of Child Health Care Pub Date : 2023-11-27 DOI: 10.1177/13674935231218039

Sofia Almerud Österberg, Lisbet Andersson

{"title":"I saw myself as an important piece of a jigsaw puzzle: Parents experiences of their child's anaesthesia induction.","authors":"Sofia Almerud Österberg, Lisbet Andersson","doi":"10.1177/13674935231218039","DOIUrl":"https://doi.org/10.1177/13674935231218039","url":null,"abstract":"Anxiety in children, as well as their parents, is common in high-tech environments such as an operating room. This study aimed to describe parents' experiences of being present when their child is being anaesthetised. Twenty-four parents were interviewed and data were analysed using a descriptive phenomenological approach. Findings show that being present at a child's anaesthesia and surgery is a long, continuous process that begins at home. Parents struggle to face strong emotions in a special and frightening environment, focussing on their child's well-being while trying to remain control in this situation. Security and trust are vital, but it's challenging to relinquish control in an uncertain situation. Professional caregivers can promote trust and participation, but an awareness that something can go wrong affects parents on a deep level. In conclusion, parental presence at induction of anaesthesia is important but can be overwhelming and anxiety-inducing for some parents. Parents should be seen as a resource rather than a disturbance. Overall, the healthcare system should prioritise parents' involvement and seek to create an environment where they feel supported and included.","PeriodicalId":54388,"journal":{"name":"Journal of Child Health Care","volume":" ","pages":"13674935231218039"},"PeriodicalIF":1.9,"publicationDate":"2023-11-27","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138441632","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Parent perspectives of engaging with a community paediatric clinic with linked child development supports in a disadvantaged area of Ireland. 在爱尔兰弱势地区与社区儿科诊所接触的家长观点，并提供相关的儿童发展支持。

IF 1.9 4区医学

Journal of Child Health Care Pub Date : 2023-11-13 DOI: 10.1177/13674935231210947

Lynn Buckley, Katherine Harford, Louise Gibson, Nicola Cornally, Margaret Curtin

{"title":"Parent perspectives of engaging with a community paediatric clinic with linked child development supports in a disadvantaged area of Ireland.","authors":"Lynn Buckley, Katherine Harford, Louise Gibson, Nicola Cornally, Margaret Curtin","doi":"10.1177/13674935231210947","DOIUrl":"https://doi.org/10.1177/13674935231210947","url":null,"abstract":"Parent experiences of child health services can be used to understand their value and optimise the support provision to families during critical developmental periods. A gap in the literature exists regarding parental perspectives of linked child development supports, particularly in disadvantaged areas. This study examined parent experiences of the impact and value of a community paediatric clinic (Kidscope) with linked, multi-agency supports in a disadvantaged area of Ireland. Using a qualitative analysis design, 10 parents participated in one-to-one interviews. A Community Advisory Group consulted on interview schedules. Data was thematically analysed in line with Braun & Clarke's Framework. Five themes and twenty-two sub-themes emerged. Kidscope's linked, multi-agency approach was valuable for engaging families, addressing developmental delay, supporting readiness for education, and developing parent-child relationships. Relational working and a child and family centred model of care empowered parents to become active agents in children's health. Coronavirus disease 2019, national deficits in healthcare, and staff turnover impeded service delivery. Kidscope and linked supports work in partnership to disrupt the impact exclusion from healthcare has on vulnerable children and families. This study provides evidence of an effective integrated paediatric service delivery model designed around vulnerable children and families and highlights areas for improvement.","PeriodicalId":54388,"journal":{"name":"Journal of Child Health Care","volume":" ","pages":"13674935231210947"},"PeriodicalIF":1.9,"publicationDate":"2023-11-13","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"92157337","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Gross motor trajectories of pre-term and full-term infants under different parental educational approaches. 不同父母教育方式下足月前和足月婴儿的毛运动轨迹。

IF 1.9 4区医学

Journal of Child Health Care Pub Date : 2023-11-03 DOI: 10.1177/13674935231211954

Anilsa Suraia Pedro Gaspar Francisco, Maylli Daiani Graciosa, Sheila Cristina da Silva Pacheco, Luciana Sayuri Sanada

{"title":"Gross motor trajectories of pre-term and full-term infants under different parental educational approaches.","authors":"Anilsa Suraia Pedro Gaspar Francisco, Maylli Daiani Graciosa, Sheila Cristina da Silva Pacheco, Luciana Sayuri Sanada","doi":"10.1177/13674935231211954","DOIUrl":"https://doi.org/10.1177/13674935231211954","url":null,"abstract":"This study aimed to explore motor trajectories of Brazilian pre-term and full-term infants from 3 to 12 months old whose parents participated in an educational program and had received guidance on gross motor development. Forty-eight Brazilian infants aged 3 months old were divided into Group 1 (full-term infants and their parents who received only verbal guidance, n = 14), Group 2 (full-term infants with parents who received an educative folder in addition to the same verbal guidance, n = 23), and Group 3 (preterm infants with parents who received the same verbal guidance and educative folder, n = 11). The folder had similar information to the verbal guidance; nonetheless, it helped to teach parents and allowed later consultation at home. We applied Alberta Infant Motor Scale, Affordances in Home Environment for Motor Development-Infant Scale, and a questionnaire about infants' information at 3-, 6-, 9-, and 12-months old. In longitudinal comparison, all groups showed a significant difference for AIMS variables on total score and subscales; all subitems of AHEMD-IS; and time spent in prone, supine, sitting, and standing positions. In general, no differences were found between groups. Motor trajectory, home opportunities, and parental positioning practices were similar between full-term and preterm infants with different guidance approaches.","PeriodicalId":54388,"journal":{"name":"Journal of Child Health Care","volume":" ","pages":"13674935231211954"},"PeriodicalIF":1.9,"publicationDate":"2023-11-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"71488962","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Is blood thicker than water? Perceptions on the role of stepparents in medical decisions among minors. 血浓于水吗？未成年人对继父母在医疗决策中的作用的看法。

IF 1.9 4区医学

Journal of Child Health Care Pub Date : 2023-10-26 DOI: 10.1177/13674935231211217

Manon Willekens, David De Coninck, Peter de Winter, Koen Matthijs, Steven Lierman, Ingrid Boone, Jaan Toelen

{"title":"Is blood thicker than water? Perceptions on the role of stepparents in medical decisions among minors.","authors":"Manon Willekens, David De Coninck, Peter de Winter, Koen Matthijs, Steven Lierman, Ingrid Boone, Jaan Toelen","doi":"10.1177/13674935231211217","DOIUrl":"https://doi.org/10.1177/13674935231211217","url":null,"abstract":"Alternative family configurations are becoming more prevalent, yet current legislative statutory does not support stepparents in medical decisions for their stepchildren. We investigate opinions of Belgian and Dutch adults regarding inclusion of stepparents in medical decision-making in minors. We make two observations. First, participants wanted stepparents to be involved in cases when medical information had to be shared or informed consent signed. Second, when stepparents object against previously approved medical interventions by a biological parent, respondents were less likely to support stepparents. Participants with stepchildren were likely to favour inclusion of stepparents in decision-making. Overall, our findings indicate that Belgian and Dutch adults view stepparents as potential executive actors in medical decision-making for minors, but not as primary decision-makers. This study is a first step in showing to what extent stepparents could be included in medical information and decision-making regarding stepchildren. We reflect on these findings in light of implications for medical practice and legislative shortcomings.","PeriodicalId":54388,"journal":{"name":"Journal of Child Health Care","volume":" ","pages":"13674935231211217"},"PeriodicalIF":1.9,"publicationDate":"2023-10-26","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"54232333","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0