Journal of Child Health Care最新文献_第7页

Identifying research priorities with children, youth, and families: A scoping review. 确定儿童、青年和家庭的研究重点：范围审查。

IF 1.3 4区医学

Journal of Child Health Care Pub Date : 2024-09-01 Epub Date: 2023-01-16 DOI: 10.1177/13674935231151748

Shokoufeh Modanloo, Quinn Correll, Rhonda Correll, Nathalie Major, Michelle Quinlan, Jessica Reszel, Jodi Wilding, Zhi Lin Zhou, Linda S Franck, Denise Harrison

{"title":"Identifying research priorities with children, youth, and families: A scoping review.","authors":"Shokoufeh Modanloo, Quinn Correll, Rhonda Correll, Nathalie Major, Michelle Quinlan, Jessica Reszel, Jodi Wilding, Zhi Lin Zhou, Linda S Franck, Denise Harrison","doi":"10.1177/13674935231151748","DOIUrl":"10.1177/13674935231151748","url":null,"abstract":"Increased patient advocacy has resulted in a shift toward more active patient engagement in the research. A scoping review was conducted to explore the literature on healthcare research priority settings wherein children, youths, or their families were involved in the priority-setting process. Six databases including MEDLINE, CINAHL, PsycINFO, Embase, Web of Science, and Global Health and the James Lind Alliance website were searched up until September 2019. All primary studies involving children (<18 years of age) or families in developing research priorities in health care were included. All retrieved references were uploaded into Covidence, and two independent reviewers screened the search results. Descriptive thematic analysis was used to identify common themes. A total of 30 studies with 4247 participants were included. Less than half of the participants (n = 1237, (33%) were pediatric patients and their families. A total of 455 research priorities were identified. Three common themes emerged: (i) quality of care delivery, (ii) self-efficacy in health behaviors, and (iii) community engagement in care. This scoping review revealed priority research health topics from the perspectives of children, youths, or their families. The findings may be used as a foundation for future research to improve the health outcomes of children, youths, or their families according to their identified priorities.","PeriodicalId":54388,"journal":{"name":"Journal of Child Health Care","volume":" ","pages":"592-609"},"PeriodicalIF":1.3,"publicationDate":"2024-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11459867/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10590572","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Patterns of service provision in child and adolescent mental health care in Australia. 澳大利亚儿童和青少年心理保健服务的提供模式。

IF 1.3 4区医学

Journal of Child Health Care Pub Date : 2024-09-01 Epub Date: 2022-12-20 DOI: 10.1177/13674935221146381

Luis Salvador-Carulla, Mary Anne Furst, Hossein Tabatabaei-Jafari, John Mendoza, Denise Riordan, Elizabeth Moore, Daniel Rock, Lauren Anthes, Nasser Bagheri, Jose A Salinas-Perez

{"title":"Patterns of service provision in child and adolescent mental health care in Australia.","authors":"Luis Salvador-Carulla, Mary Anne Furst, Hossein Tabatabaei-Jafari, John Mendoza, Denise Riordan, Elizabeth Moore, Daniel Rock, Lauren Anthes, Nasser Bagheri, Jose A Salinas-Perez","doi":"10.1177/13674935221146381","DOIUrl":"10.1177/13674935221146381","url":null,"abstract":"Standard description of local care provision is essential for evidence-informed planning. This study aimed to map and compare the availability and diversity of current mental health service provision for children and adolescents in Australia. We used a standardised service classification instrument, the Description and Evaluation of Services and DirectoriEs (DESDE) tool, to describe service availability in eight urban and two rural health districts in Australia. The pattern of care was compared with that available for other age groups in Australia. Outpatient care was found to be the most common type of service provision, comprising 212 (81.2%) of all services identified. Hospital care (acute and non-acute) was more available in urban than in rural areas (20 services [9.7%] vs 1 [1.8%]). The level of diversity in the types of care available for children and adolescents was lower than that for the general adult population, but slightly higher than that for older people in the same areas. Standardised comparison of the pattern of care across regions reduces ambiguity in service description and classification, enables gap analysis and can inform policy and planning.","PeriodicalId":54388,"journal":{"name":"Journal of Child Health Care","volume":" ","pages":"536-550"},"PeriodicalIF":1.3,"publicationDate":"2024-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10390601","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Home-like care: Collaboration between parents and nurses in everyday situations when children are hospitalized. 家庭式护理：儿童住院期间，家长与护士在日常生活中的合作。

IF 1.3 4区医学

Journal of Child Health Care Pub Date : 2024-09-01 Epub Date: 2023-01-06 DOI: 10.1177/13674935221149778

Hildegunn Sundal

{"title":"Home-like care: Collaboration between parents and nurses in everyday situations when children are hospitalized.","authors":"Hildegunn Sundal","doi":"10.1177/13674935221149778","DOIUrl":"10.1177/13674935221149778","url":null,"abstract":"When children are hospitalized, parents and nurses need to collaborate. This study aims to investigate how parents and nurses experience collaborating and sharing responsibilities and tasks when providing home-like care for hospitalized children in everyday situations. This qualitative study used a hermeneutic phenomenological approach with observations and interviews and was conducted in a general medical pediatric unit. Twelve parents of eleven hospitalized children between the ages of 1 and 6 years with various medical diagnoses and seventeen nurses who cared for those children participated in the study. Parents and nurses collaborated and shared responsibilities and tasks to provide home-like care for hospitalized children in everyday situations by making mealtimes seem familiar, maintaining customary sleeping patterns, adapting washing and dressing routines, and facilitating play and activity. Parents and nurses collaborated to maintain a familiar rhythm in an unfamiliar environment to enhance the children's well-being. The nurses' degree of involvement in the children's everyday situations varied from little to moderate to strong, with parents assuming the main responsibilities. Nurses' involvement in children's everyday situations was variable, depending on the complexity of the situations.","PeriodicalId":54388,"journal":{"name":"Journal of Child Health Care","volume":" ","pages":"565-577"},"PeriodicalIF":1.3,"publicationDate":"2024-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11457426/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10481997","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

The role of functional disability and social support in psychological outcomes for individuals with pediatric hypermobile ehlers-danlos syndrome. 功能性残疾和社会支持在小儿活动过度埃勒斯-丹洛斯综合征患者心理结果中的作用。

IF 1.3 4区医学

Journal of Child Health Care Pub Date : 2024-09-01 Epub Date: 2022-12-09 DOI: 10.1177/13674935221143822

Keely H Bieniak, Brad T Tinkle, Susan T Tran

{"title":"The role of functional disability and social support in psychological outcomes for individuals with pediatric hypermobile ehlers-danlos syndrome.","authors":"Keely H Bieniak, Brad T Tinkle, Susan T Tran","doi":"10.1177/13674935221143822","DOIUrl":"10.1177/13674935221143822","url":null,"abstract":"Hypermobile Ehlers-Danlos syndrome (hEDS) includes physical symptoms of chronic pain, fatigue, gastrointestinal dysfunction, and joint subluxations/dislocations. This study aims to fill a research gap regarding the psychosocial well-being in pediatric hEDS by assessing relationships between functional disability, social support, and mental health. Increased functional disability is hypothesized to be associated with increased mental health challenges, specifically anxiety and depression, and general social support is hypothesized to moderate this relationship, such that higher perceived social support will mitigate the negative psychological impacts of functional disability. Gender's influence on mental health in pediatric hEDS is also explored. Thirty-four youth with pediatric hEDS recruited from a United States Midwest multidisciplinary genetics clinic completed self-report questionnaires. Results demonstrate associations between functional disability and mental health, and social support and mental health independently; however, moderation was not found. Functional disability and social support each have a unique influence on the mental health of children with pediatric hEDS and should each receive clinical attention. Exploratory analyses into the influence of gender provide a groundwork for future studies.","PeriodicalId":54388,"journal":{"name":"Journal of Child Health Care","volume":" ","pages":"486-500"},"PeriodicalIF":1.3,"publicationDate":"2024-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10431138","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Exploring the implementation of child life services with facility dogs. 探索利用设施犬实施儿童生活服务。

IF 1.3 4区医学

Journal of Child Health Care Pub Date : 2024-09-01 Epub Date: 2022-12-16 DOI: 10.1177/13674935221146382

Emily Goldstein, Sherwood Burns-Nader, Deborah Casper, Julie Parker

{"title":"Exploring the implementation of child life services with facility dogs.","authors":"Emily Goldstein, Sherwood Burns-Nader, Deborah Casper, Julie Parker","doi":"10.1177/13674935221146382","DOIUrl":"10.1177/13674935221146382","url":null,"abstract":"Many children's hospitals around the United States have programs in which a trained facility dog goes to work daily with a psychosocial healthcare worker, typically a Certified Child Life Specialist (CCLS). CCLSs help children and their families cope with the stress of a healthcare experience by utilizing evidence-based, developmentally appropriate interventions. The purpose of this study was to explore how CCLSs incorporate facility dogs into their treatments and gain their perspectives on handling a facility dog. Participants, four CCLSs, completed a checklist, which assessed patients seen by facility dogs for 10 workdays, and a semi-structured interview. Participants primarily saw patients of ages three to five years and aided with general anxiety and coping support. Findings indicated the dog's specific training, therapeutic value, and ability to bond with patients allowed these interactions to be successful and impactful. This study provides information about the benefits of facility dogs for child life programs and presents data for programs that are considering incorporating this therapeutic modality into their services offered.","PeriodicalId":54388,"journal":{"name":"Journal of Child Health Care","volume":" ","pages":"501-513"},"PeriodicalIF":1.3,"publicationDate":"2024-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10706653","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Why are we still doing sucrose trials for newborns? 我们为什么还要对新生儿进行蔗糖试验？

IF 1.3 4区医学

Journal of Child Health Care Pub Date : 2024-09-01 Epub Date: 2024-09-09 DOI: 10.1177/13674935241280854

Denise Harrison, Melinda Cruz, Stephen McKeever

引用次数: 0

Community paediatric clinics and their role in supporting developmental outcomes and services for children living in disadvantaged communities. 社区儿科诊所及其在支持弱势社区儿童发展成果和服务方面的作用。

IF 1.3 4区医学

Journal of Child Health Care Pub Date : 2024-09-01 Epub Date: 2022-12-21 DOI: 10.1177/13674935221146008

Lynn Buckley, Louise Gibson, Katherine Harford, Nicola Cornally, Margaret Curtin

{"title":"Community paediatric clinics and their role in supporting developmental outcomes and services for children living in disadvantaged communities.","authors":"Lynn Buckley, Louise Gibson, Katherine Harford, Nicola Cornally, Margaret Curtin","doi":"10.1177/13674935221146008","DOIUrl":"10.1177/13674935221146008","url":null,"abstract":"Children living in disadvantaged communities have substantially increased risk for deleterious health and developmental outcomes. A considerable proportion of developmental delay is avoidable; however if children do not receive appropriate treatment within this critical period, damage can be irreparable. Community paediatric clinics provide medical and developmental assessment; deliver health promotion services, counselling, and advice to caregivers; and referral to services. The aim of this study was to systematically search, appraise, and synthesise the literature exploring the role of community paediatric clinics in supporting developmental outcomes and services for children living in disadvantaged communities. Electronic databases were searched using a carefully developed search strategy. Validated tools and appropriate guidelines assessed quality and confidence in evidence. Data analysis and mixed-methods synthesis was guided by the Segregated Framework for Mixed-Method Systematic Reviews. Eighteen studies were selected for inclusion. Areas of emphasis in the literature include the identification and monitoring of developmental delay; engagement of vulnerable families; relational working with children, families, and local services; referral to early intervention services; parental empowerment, practitioner capacity building; and tackling barriers to healthcare access. Through use of a child and family-centred model of care, community paediatric clinics can better meet the needs of vulnerable populations.","PeriodicalId":54388,"journal":{"name":"Journal of Child Health Care","volume":" ","pages":"658-674"},"PeriodicalIF":1.3,"publicationDate":"2024-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11457470/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10402565","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Children and young people's participation in decision-making within healthcare organisations in New Zealand: An integrative review. 新西兰儿童和青少年参与医疗机构决策的情况：综合评述。

IF 1.3 4区医学

Journal of Child Health Care Pub Date : 2024-09-01 Epub Date: 2023-02-21 DOI: 10.1177/13674935231153430

Mandie Foster, Julie Blamires, Chris Moir, Virginia Jones, Jagamaya Shrestha-Ranjit, Brie Fenton, Annette Dickinson

{"title":"Children and young people's participation in decision-making within healthcare organisations in New Zealand: An integrative review.","authors":"Mandie Foster, Julie Blamires, Chris Moir, Virginia Jones, Jagamaya Shrestha-Ranjit, Brie Fenton, Annette Dickinson","doi":"10.1177/13674935231153430","DOIUrl":"10.1177/13674935231153430","url":null,"abstract":"There is a paucity of literature on children and young people's participation in decision-making within healthcare organisations in New Zealand. This integrative review examined child self-reported peer-reviewed manuscripts and published guidelines, policy, reviews, expert opinion and legislation to explore how New Zealand children and young people participate in discussions and decision-making processes within healthcare settings and what are barriers and benefits to such participation. Four child self-reported peer-reviewed manuscripts and twelve expert opinion documents were retrieved from four electronic databases including academic, government and institutional websites. Inductive content thematic analysis generated one theme (a discourse in children and young people's participation within healthcare settings), four sub-themes, 11 categories, 93 codes and 202 findings. It is evident within this review that there is a discourse between what expert opinion are stating is required to promote children and young people's participation in discussions and decision-making processes within healthcare settings and what is occurring in practice. Despite literature reporting on how children and young people's participation and voice were essential for healthcare provision, there was sparse literature published on children and young people's participation in discussions and decision-making processes in healthcare delivery in New Zealand.","PeriodicalId":54388,"journal":{"name":"Journal of Child Health Care","volume":" ","pages":"675-692"},"PeriodicalIF":1.3,"publicationDate":"2024-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11528880/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10809565","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Experiences of siblings and parents of children with congenital heart disease and exploration of siblings' support needs. 先天性心脏病患儿的兄弟姐妹和父母的经历以及对兄弟姐妹支持需求的探索。

IF 1.3 4区医学

Journal of Child Health Care Pub Date : 2024-08-14 DOI: 10.1177/13674935241273982

Alice Sarah Schamong, Ümran Sema Seven, Ann-Kristin Folkerts, Konrad Brockmeier, Elke Kalbe

{"title":"Experiences of siblings and parents of children with congenital heart disease and exploration of siblings' support needs.","authors":"Alice Sarah Schamong, Ümran Sema Seven, Ann-Kristin Folkerts, Konrad Brockmeier, Elke Kalbe","doi":"10.1177/13674935241273982","DOIUrl":"https://doi.org/10.1177/13674935241273982","url":null,"abstract":"Research with siblings of children with congenital heart disease (CHD) is scarce, although more than one-third of them experience limitations on their quality of life. This interview study aims to explore the diagnosis-associated experience of German siblings of children with CHD, their interest in a potential intervention, and potential key topics and contextual conditions of such an intervention. Interviews with 10 siblings aged 10 to 21 and a respective parent were conducted from August to October 2021, resulting in 20 interviews. Negative experiences associated with CHD included concerns regarding hospitalization, health deterioration, and the death of the child with CHD, as well as burdens including reduced family activities, less parental attention and support, and extended family meals. Positive experiences included perceived positive consequences of CHD, such as strong family cohesion and empathy toward people with chronic illnesses. Furthermore, siblings experienced enhanced coping mechanisms, such as having conversations with friends and family about the high prevalence of CHD and successful treatment or using distractions such as entertainment or study. Siblings' reported interest in a future intervention included empathy, peer support, and studying medical information on CHD. These findings should be used for counseling and developing tailored interventions to support these siblings.","PeriodicalId":54388,"journal":{"name":"Journal of Child Health Care","volume":" ","pages":"13674935241273982"},"PeriodicalIF":1.3,"publicationDate":"2024-08-14","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141977232","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Mothers' experience seeking healthcare advice for their unsettled infants in Victoria, Australia. 澳大利亚维多利亚州母亲为躁动不安的婴儿寻求医疗建议的经历。

IF 1.3 4区医学

Journal of Child Health Care Pub Date : 2024-08-08 DOI: 10.1177/13674935241271954

Bridget Kenny, Sarah McTaggart, Rachel O'Loughlin, Branavie Ranjithakumaran, Rachel Pelly, Harriet Hiscock

{"title":"Mothers' experience seeking healthcare advice for their unsettled infants in Victoria, Australia.","authors":"Bridget Kenny, Sarah McTaggart, Rachel O'Loughlin, Branavie Ranjithakumaran, Rachel Pelly, Harriet Hiscock","doi":"10.1177/13674935241271954","DOIUrl":"https://doi.org/10.1177/13674935241271954","url":null,"abstract":"Unsettled infant behaviours are highly prevalent in the postnatal period and constitute a significant proportion of visits to healthcare services. Unsettled infant behaviours can be highly distressing for parents and are identified as a significant risk factor for postnatal depression. Understanding parents' experiences is paramount to reducing the gap between consumer expectations and service delivery. This study employed a qualitative descriptive approach to explore parents' experiences seeking healthcare advice for their infant with unsettled behaviours. Semi-structured interviews were conducted with 20 mothers. Inductive thematic analysis yielded two overarching themes: (1) 'the journey for answers', consisting of five sub-themes, and (2) 'parents' knowledge and behaviours', consisting of six sub-themes. Despite some positive interactions with healthcare services, mothers generally spoke negatively of their overall experience seeking answers and receiving care for their infant, and they felt the healthcare services they attended were not equipped to meet their needs. To address the gap between service delivery and consumer expectations, mothers relied on online communities for advice and emotional support. The findings of this study highlight several discrepancies between mothers' expectations and service delivery in the context of unsettled infant behaviours, and this paper makes recommendations to address identified shortcomings in approaches to care.","PeriodicalId":54388,"journal":{"name":"Journal of Child Health Care","volume":" ","pages":"13674935241271954"},"PeriodicalIF":1.3,"publicationDate":"2024-08-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141908319","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0