Journal of Child Health Care最新文献_第9页

Facilitators and barriers to adherence to medical recommendations among adolescents with cancer: A systematic review. 癌症青少年遵守医疗建议的推动者和障碍：一项系统综述。

IF 1.9 4区医学

Journal of Child Health Care Pub Date : 2023-10-21 DOI: 10.1177/13674935231208502

Ágata Salvador, Shivani Atul Mansuklal, Maria Moura, Carla Crespo, Luísa Barros

{"title":"Facilitators and barriers to adherence to medical recommendations among adolescents with cancer: A systematic review.","authors":"Ágata Salvador, Shivani Atul Mansuklal, Maria Moura, Carla Crespo, Luísa Barros","doi":"10.1177/13674935231208502","DOIUrl":"https://doi.org/10.1177/13674935231208502","url":null,"abstract":"We aimed to systematically review barriers/facilitators of adherence among adolescents with cancer (aged 10-24 years), following a comprehensive approach to adherence that goes beyond medication-taking. Empirical studies published in English exploring determinants of adherence to medical recommendations among adolescents with cancer were identified in MEDLINE, PsycInfo, and Web of Science, up to October 2021. Records and full-text articles were reviewed by two independent reviewers, and results were classified according to the World Health Organization's (WHO) multidimensional adherence model. Eighteen studies were included. Despite heterogeneity in the definition and measurement of adherence, literature supported barriers/facilitators at patient, treatment, condition, healthcare team/system, and social/economic levels. Specifically, patient-related factors (i.e., psychological functioning and beliefs about disease and treatment) and social-related factors (i.e., family functioning) were major determinants of adolescent adherence. Few studies were conducted, and inconsistent findings were displayed for other dimensions (i.e., healthcare team/system, treatment, and condition-related factors). Adherence is a complex and multidetermined phenomenon. More research is needed to provide critical insights for policymakers and healthcare professionals in planning practices and interventions that effectively address meaningful barriers/facilitators of adolescents' adherence.","PeriodicalId":54388,"journal":{"name":"Journal of Child Health Care","volume":" ","pages":"13674935231208502"},"PeriodicalIF":1.9,"publicationDate":"2023-10-21","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"49684997","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Feasibility, acceptability and preliminary effectiveness of a mental health drop-in centre for the siblings of young people attending a paediatric hospital. 为在儿科医院就诊的年轻人的兄弟姐妹设立心理健康救助中心的可行性、可接受性和初步有效性。

IF 1.9 4区医学

Journal of Child Health Care Pub Date : 2023-10-18 DOI: 10.1177/13674935231206895

Sophie D Bennett, Natalia Rojas, Matteo Catanzano, Anna Roach, Brian Cf Ching, Anna E Coughtrey, Isobel Heyman, Holan Liang, Lucy Project Team, Roz Shafran

{"title":"Feasibility, acceptability and preliminary effectiveness of a mental health drop-in centre for the siblings of young people attending a paediatric hospital.","authors":"Sophie D Bennett, Natalia Rojas, Matteo Catanzano, Anna Roach, Brian Cf Ching, Anna E Coughtrey, Isobel Heyman, Holan Liang, Lucy Project Team, Roz Shafran","doi":"10.1177/13674935231206895","DOIUrl":"https://doi.org/10.1177/13674935231206895","url":null,"abstract":"Siblings of children with long-term conditions (LTCs) can have significantly elevated mental health needs, but these are often overlooked. A pragmatic single-arm feasibility pilot assessed feasibility, acceptability and preliminary effectiveness of a drop-in centre in a paediatric hospital addressing mental health needs of patients with LTCs, their carers and siblings. The drop-in centre accepted self-referral and supplemented existing provision offering a suite of interventions, including signposting, diagnostic assessments and/or guided self-help. This paper reports on feasibility, acceptability and preliminary outcomes of this centre for siblings. Eighteen siblings aged 2-17 used the centre. Sixteen of their parents completed the Strengths and Difficulties Questionnaires at baseline and 6 months post-baseline, and ten completed parent-reported PedsQL across two time points. Preliminary effectiveness results demonstrated a decrease in mental health symptoms with large effect size (score reduction of 3.44, 95% CI [1.25, 5.63], d = 0.84) and small effect on quality of life, with scores increasing from a median of 69.91, 95% CI [53.57, 91.67], to a median of 80.44, 95% CI [67.39, 89.13], r = 0.11 for these siblings. 88% of parents were satisfied with this provision for their sibling child. This study highlights the feasibility and value of assessing siblings for emotional and behavioural difficulties and providing them with an accessible, effective and acceptable intervention.","PeriodicalId":54388,"journal":{"name":"Journal of Child Health Care","volume":" ","pages":"13674935231206895"},"PeriodicalIF":1.9,"publicationDate":"2023-10-18","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"41240981","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Experiences of trust in mothers of hospitalized children toward pediatric nurses. 住院儿童母亲对儿科护士的信任经历。

IF 1.9 4区医学

Journal of Child Health Care Pub Date : 2023-10-17 DOI: 10.1177/13674935231206214

Mi-Ra Kim, Sun-Mi Chae

{"title":"Experiences of trust in mothers of hospitalized children toward pediatric nurses.","authors":"Mi-Ra Kim, Sun-Mi Chae","doi":"10.1177/13674935231206214","DOIUrl":"https://doi.org/10.1177/13674935231206214","url":null,"abstract":"Trust is an essential component of qualified nursing care and correlated with mothers' satisfaction during child's hospitalization. This exploratory qualitative study was conducted to gain a better understanding of trust from mothers of hospitalized children toward pediatric nurses. Data were collected using semi-structured, in-depth interviews with eight mothers with recently hospitalized children. Collected data were analyzed using thematic analysis. As a result, three themes were identified from this study: \"assessing the trustworthiness of pediatric nurses,\" \"overcoming emotional burden caused by the child's hospitalization,\" and \"newly recognizing the importance of pediatric nurses.\" Seven sub-themes were identified. Mothers reported guilt and stress due to their responsibility as the primary caregiver when children were hospitalized. However, mothers felt empowered and gained confidence when trusting pediatric nurses, recognizing their importance, and accepting their help. The result highlights the essential nature of the mother's trust in pediatric nurses, which in turn facilitated emotional support and empowerment for the mothers. Based on this study's insights into the unique experiences of trust from mothers of hospitalized children, pediatric nurses can explore strategies to facilitate trust-building. Based on these findings, pediatric nurses can develop trust-building strategies, tools to assess the level of trust, and interventions to facilitate trust-building.","PeriodicalId":54388,"journal":{"name":"Journal of Child Health Care","volume":" ","pages":"13674935231206214"},"PeriodicalIF":1.9,"publicationDate":"2023-10-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"41240980","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Establishing priorities in child health: Giving parents and youth a voice. 确定儿童健康的优先事项：让父母和青年有发言权。

IF 1.9 4区医学

Journal of Child Health Care Pub Date : 2023-10-16 DOI: 10.1177/13674935231205041

Sarah A Elliott, Shannon D Scott, Kelsey S Wright, Lisa Hartling

{"title":"Establishing priorities in child health: Giving parents and youth a voice.","authors":"Sarah A Elliott, Shannon D Scott, Kelsey S Wright, Lisa Hartling","doi":"10.1177/13674935231205041","DOIUrl":"https://doi.org/10.1177/13674935231205041","url":null,"abstract":"Parents and youth across Alberta were engaged to identify specific research questions that are a priority to them. Two lists, containing 27 topics were developed with local parent and youth advisory groups, and sent to participants via online questionnaires. Topics were rated from one (least important) to five (most important) and ranked in order of priority. Initial questionnaires were completed by 263 (46%) parents and 308 (54%) youth. Parents rated five topics (behaviour, learning, and developmental disorders; mental health; food, environment and lifestyle; quality of health care; and vaccines) and youth rated four topics (brain and nerve health; mental health; quality of health care; and vaccines) as a high priority. Research questions stemming from 4 parent (12 [5%]) and 6 youth (21 [7%]) focus group discussions were then ranked in a second questionnaire, completed by 43 (43%) parents and 56 (56%) youth. Parents' highest ranked research question was 'What is the effect of screen time on cognition and neurodevelopment for children and adolescents?', while the highest ranked question from youth was 'What are the early signs of anxiety and depression and when should an individual seek help?'. These topics highlight areas that are important to parents and youth where funding, research, and knowledge mobilization efforts should be directed.","PeriodicalId":54388,"journal":{"name":"Journal of Child Health Care","volume":" ","pages":"13674935231205041"},"PeriodicalIF":1.9,"publicationDate":"2023-10-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"41240979","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

"A very different place from when the pandemic started": Lessons learned for improving systems of care for families of children with medical complexity. “与疫情开始时大不相同”：改善医疗复杂儿童家庭护理系统的经验教训。

IF 1.9 4区医学

Journal of Child Health Care Pub Date : 2023-09-22 DOI: 10.1177/13674935231203274

Vanessa C Fong, Jennifer Baumbusch, Koushambhi Basu Khan

{"title":"\"A very different place from when the pandemic started\": Lessons learned for improving systems of care for families of children with medical complexity.","authors":"Vanessa C Fong, Jennifer Baumbusch, Koushambhi Basu Khan","doi":"10.1177/13674935231203274","DOIUrl":"https://doi.org/10.1177/13674935231203274","url":null,"abstract":"Coronavirus disease 2019 (COVID-19) created unprecedented challenges for everyone, but especially families of children with medical complexity (MC) who rely on a comprehensive range of health and social services in their daily lives. Yet despite this, there are limited studies exploring caregiver perspectives regarding access to health and social services during the pandemic. To address this gap, we aimed to explore how health and social services can better meet the needs of children with MC and their families. Sixteen parents residing with their children with MC (from birth to 18 years) in British Columbia, Canada participated in semi-structured interviews between July 2021 and April 2022. Findings revealed two different areas to improve services for families of children with MC, those relating to technology and family-centered care. Parents prioritized expanding the use of digital communication tools to support service navigation and scheduling. Virtual platforms were viewed as being valuable for building connections with other families and their community. In terms of family-centered care, parents emphasized the importance of policies recognizing the physical, emotional, and financial needs of the family. Findings have important implications for improving services to enhance the well-being and quality of life of children with MC and their families.","PeriodicalId":54388,"journal":{"name":"Journal of Child Health Care","volume":" ","pages":"13674935231203274"},"PeriodicalIF":1.9,"publicationDate":"2023-09-22","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"41123703","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Transitioning from paediatric to adult healthcare: Exploring the practices and experiences of care providers. 从儿科医疗向成人医疗过渡：探索护理提供者的实践和经验。

IF 1.9 4区医学

Journal of Child Health Care Pub Date : 2023-09-20 DOI: 10.1177/13674935231202870

Jennifer Splane, Shelley Doucet, Alison Luke

{"title":"Transitioning from paediatric to adult healthcare: Exploring the practices and experiences of care providers.","authors":"Jennifer Splane, Shelley Doucet, Alison Luke","doi":"10.1177/13674935231202870","DOIUrl":"https://doi.org/10.1177/13674935231202870","url":null,"abstract":"Complex paediatric health conditions are increasingly associated with survival into adulthood resulting in more youth with complex care needs (CCN) transitioning from paediatric to adult healthcare. Current transition practices, when present, are disorganized, resulting in health status deterioration and complications due to unmet needs. The aim of this qualitative descriptive study is to develop a broader understanding of the current transition practices and experiences, as well as recommendations of care providers who support youth with CCN in the transition from paediatric to adult healthcare. Fifteen care providers from two Eastern Canadian provinces were interviewed using a semi-structured interview guide. The data collected were analyzed using inductive thematic analysis following the six phases outlined by Braun and Clarke (2006). The findings from this research demonstrate (1) a shortage of care providers, (2) inconsistent timing for transition initiation, and (3) lack of available community resources and services. Participant recommendations include (1) a designated transition coordinator; (2) transition policy implementation; (3) improved collaboration between and across care teams; and (4) the integration of virtual care to facilitate the transition process. The results of this study can potentially improve transition practices and policies and guide future research in this area.","PeriodicalId":54388,"journal":{"name":"Journal of Child Health Care","volume":" ","pages":"13674935231202870"},"PeriodicalIF":1.9,"publicationDate":"2023-09-20","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"41151556","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Vaccination programs for children aged up to 18 years in Europe, 2020. 2020年欧洲18岁以下儿童疫苗接种规划。

IF 1.9 4区医学

Journal of Child Health Care Pub Date : 2023-09-01 DOI: 10.1177/13674935211055294

Evgnosia Effraimidou, Dimitrios C Cassimos, Snezana Medic, Maria Topalidou, Maria Theodoridou, Helena C Maltezou

{"title":"Vaccination programs for children aged up to 18 years in Europe, 2020.","authors":"Evgnosia Effraimidou, Dimitrios C Cassimos, Snezana Medic, Maria Topalidou, Maria Theodoridou, Helena C Maltezou","doi":"10.1177/13674935211055294","DOIUrl":"https://doi.org/10.1177/13674935211055294","url":null,"abstract":"Although all European countries have vaccination policies for children, there are no comprehensive studies of pediatric vaccination programs in Europe. We studied vaccination programs for children in Europe. Vaccinations against diphtheria, tetanus, pertussis, poliomyelitis, Haemophilus influenzae type b, hepatitis B, measles, mumps, rubella, and influenza existed in 42 countries, against human papilloma virus in 41 countries, and against pneumococcus in 40 countries. In addition, the following vaccinations existed: against tuberculosis (35 countries), hepatitis A (33), meningococcus A, C, W, Y (30), rotavirus and varicella (28 countries each), meningococcus B (24), tick-born encephalitis (22), and meningococcus C (16). Mandatory vaccinations are implemented in 21 countries, mainly against diphtheria, tetanus, pertussis, poliomyelitis, H. influenzae type b, hepatitis B, measles, mumps, rubella, tuberculosis, and pneumococcus. There are significant differences among pediatric vaccination programs in Europe regarding number, schedules, indications, and regulatory frame (recommended or mandatory vaccinations). A consensus-based vaccination program for all children is needed.","PeriodicalId":54388,"journal":{"name":"Journal of Child Health Care","volume":"27 3","pages":"336-350"},"PeriodicalIF":1.9,"publicationDate":"2023-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10165373","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 3

Telemedicine and patient satisfaction during the COVID-19 pandemic: A case-control study of outpatient pediatric urology patients. COVID-19大流行期间远程医疗与患者满意度:儿科泌尿科门诊患者的病例对照研究

IF 1.9 4区医学

Journal of Child Health Care Pub Date : 2023-09-01 DOI: 10.1177/13674935211058272

Sarah A Holzman, Carol A Davis-Dao, Antoine E Khoury, Michelle A Fortier, Zeev N Kain

{"title":"Telemedicine and patient satisfaction during the COVID-19 pandemic: A case-control study of outpatient pediatric urology patients.","authors":"Sarah A Holzman, Carol A Davis-Dao, Antoine E Khoury, Michelle A Fortier, Zeev N Kain","doi":"10.1177/13674935211058272","DOIUrl":"https://doi.org/10.1177/13674935211058272","url":null,"abstract":"Telemedicine has increased during the coronavirus disease 2019 pandemic. Our objective was to determine if patient satisfaction with telemedicine differed from in-person visits in an academic pediatric urology clinic. Following outpatient telemedicine and in-person pediatric urology visits, the validated NRC Health© Patient Survey was used to assess patient experience. Patient satisfaction was assessed on a 10-point scale with scores of 9-10 considered \"satisfied\" and 1-8 considered \"not satisfied.\" Satisfaction scores between telemedicine and in-person groups were compared using McNemar's test, Wilcoxon signed rank test, and conditional logistic regression. Fifty-one patients had urology telemedicine visits during April-August 2020 and completed the NRC Health© Patient Survey. Propensity score matching was used to identify 102 in-person controls between January 2019 and March 2020. Ninety-two percent of telemedicine patients were satisfied compared to 87% of in-person patients (OR 1.7 95% CI [0.53-5.6]). Regression analysis adjusting for matching variables demonstrated that patient satisfaction was higher for telemedicine compared to in-person visits but was not statistically significant (OR 1.5 95% CI [0.43-5.6]). Patient satisfaction with telemedicine was similar to in-person visits in the pediatric urology clinic. Reduced waiting time and convenience associated with telemedicine visits provide an opportunity for telemedicine as a useful modality for pediatric urology.","PeriodicalId":54388,"journal":{"name":"Journal of Child Health Care","volume":"27 3","pages":"351-359"},"PeriodicalIF":1.9,"publicationDate":"2023-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10165375","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 10

Home environmental change for child injury prevention in Nepal: A qualitative study. 尼泊尔家庭环境变化对儿童伤害预防的影响:一项定性研究。

IF 1.9 4区医学

Journal of Child Health Care Pub Date : 2023-09-01 DOI: 10.1177/13674935211052156

Santosh Bhatta, Julie Mytton, Toity Deave

{"title":"Home environmental change for child injury prevention in Nepal: A qualitative study.","authors":"Santosh Bhatta, Julie Mytton, Toity Deave","doi":"10.1177/13674935211052156","DOIUrl":"https://doi.org/10.1177/13674935211052156","url":null,"abstract":"In Nepal, unintentional home injury is a leading reason for death and disability among pre-school children. However, there is a lack of evidence to inform culturally appropriate interventions to reduce home injuries. This study explored the potential for home environmental change at a community level to prevent unintentional home injury in children and identified the barriers to, and facilitators of, such changes. Focus groups were conducted in the Nepali language with mothers, fathers, teachers, school students and community health volunteers in rural areas of Makwanpur district in Nepal. The discussions were audio-recorded, transcribed, translated into English and analysed thematically. NVivo software was used to support coding and identification of themes. Five focus groups, involving forty-seven participants, were completed leading to the development of four themes. Overall, the findings highlight that community people perceive injuries to be a normal part of childhood and, therefore, few prevention measures were considered. Parents were, however, able to identify ways to change their environment that made it safer. Changes included removing hazards or adding safety equipment, adapting the home or restricting access to potential hazards. Barriers to implementation included limited awareness about injury hazards and risk management, poor quality housing and financial constraint. Facilitators included raising community awareness, acquiring resources and financial support and involving the family and community. Development of interventions to prevent injuries at home in pre-school children should reflect local context and culture; this is best achieved through engagement with parents.","PeriodicalId":54388,"journal":{"name":"Journal of Child Health Care","volume":"27 3","pages":"323-335"},"PeriodicalIF":1.9,"publicationDate":"2023-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10472719/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10171729","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Stuck in transit: A qualitative study of the transitional care needs of young people with epilepsy and juvenile idiopathic arthritis. 滞留在中转:一项关于青少年癫痫和青少年特发性关节炎过渡性护理需求的定性研究。

IF 1.9 4区医学

Journal of Child Health Care Pub Date : 2023-09-01 DOI: 10.1177/13674935221074777

Neil Wilson, Karen Whittaker, Janine Arnott, Lauren Burke, Michael W Beresford, Matthew Peak

引用次数: 2