Tizard Learning Disability Review最新文献_第2页

Developing an evidence base for behavioural interventions: a case study of the Headsprout® early reading programme 为行为干预建立证据基础：Headsprout® 早期阅读计划案例研究

IF 0.6

Tizard Learning Disability Review Pub Date : 2024-03-14 DOI: 10.1108/tldr-12-2023-0036

Louise D. Denne, Emily J. Roberts-Tyler, Corinna Grindle

{"title":"Developing an evidence base for behavioural interventions: a case study of the Headsprout® early reading programme","authors":"Louise D. Denne, Emily J. Roberts-Tyler, Corinna Grindle","doi":"10.1108/tldr-12-2023-0036","DOIUrl":"https://doi.org/10.1108/tldr-12-2023-0036","url":null,"abstract":"<h3>Purpose</h3>\u0000<p>Evidence-informed decision-making is considered best practice when choosing interventions in applied settings across health, social care and education. Developing that evidence base, however, is not straightforward. The pupose of this paper is to describe the process implemented by the Sharland Foundation Developmental Disabilities Applied Behavioural Research and Impact Network (SF-DDARIN) that systematically develops an evidence base for behaviorally based interventions.</p>\u0000<h3>Design/methodology/approach</h3>\u0000<p>In this case study, the progressive research steps undertaken by the SF-DDARIN to develop the evidence base for an online reading intervention, the Headsprout® Early Reading programme (HER®), which uses behavioural principles to promote learning to read, are described.</p>\u0000<h3>Findings</h3>\u0000<p>A series of discrete projects targeting gaps in the evidence base for HER<sup>®</sup> led to funding two randomised controlled trials in England, one in education and one in health and social care.</p>\u0000<h3>Originality/value</h3>\u0000<p>This case study illustrates an original, creative and effective way of collaborating across academic research departments and applied settings to extend the evidence base for a chosen intervention systematically.</p>","PeriodicalId":54179,"journal":{"name":"Tizard Learning Disability Review","volume":"77 1","pages":""},"PeriodicalIF":0.6,"publicationDate":"2024-03-14","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140150605","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Commentary on “Overcoming implementation challenges through using a train-the-trainer approach to teach numeracy in a special school setting” 关于 "在特殊学校环境中采用培训培训师的方法教授算术，克服实施挑战 "的评论

IF 0.6

Tizard Learning Disability Review Pub Date : 2024-03-14 DOI: 10.1108/tldr-11-2023-0032

Corey Peltier

{"title":"Commentary on “Overcoming implementation challenges through using a train-the-trainer approach to teach numeracy in a special school setting”","authors":"Corey Peltier","doi":"10.1108/tldr-11-2023-0032","DOIUrl":"https://doi.org/10.1108/tldr-11-2023-0032","url":null,"abstract":"<h3>Purpose</h3>\u0000<p>This commentary discusses the paper by Reardon et al. (2024; this issue) entitled, “Overcoming implementation challenges through using a train-the-trainer approach to teach numeracy in a special school setting.” This commentary outlines the necessary contribution this paper adds to the substantive area of research it is couched within while also identifying potential areas of future research to expand the understanding of this phenomenon and its impact upon practice.</p>\u0000<h3>Design/methodology/approach</h3>\u0000<p>What is fidelity of implementation, how do we measure it and how does it impact our interpretations of experimental findings? This commentary focuses specifically on the nebulous construct of fidelity in experimental studies and how this impacts experimental findings’ internal and external validity.</p>\u0000<h3>Findings</h3>\u0000<p>Although fidelity is frequently referenced as an important aspect to consider, the measurement of the construct has been critiqued in experimental studies. To understand if an intervention was “implemented as intended,” the core dimensions of the intervention must be considered in the measurement process, as well as potential confounding variables.</p>\u0000<h3>Originality/value</h3>\u0000<p>With an increased need for experimental work to inform what works, for whom and under what conditions, there becomes a need to better investigate the implementation of the intervention in these contexts – thus, fidelity must be reconceptualized. This commentary provides an overview of this dilemma with potential ideas to investigate moving forward.</p>","PeriodicalId":54179,"journal":{"name":"Tizard Learning Disability Review","volume":"22 1","pages":""},"PeriodicalIF":0.6,"publicationDate":"2024-03-14","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140150607","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Commentary on “Collective effort to enhance the quality of research evidence in intellectual and developmental disabilities: a case study of an academic-practice network” 关于 "共同努力提高智力和发育障碍研究证据的质量：学术-实践网络案例研究 "的评论

IF 0.6

Tizard Learning Disability Review Pub Date : 2024-03-13 DOI: 10.1108/tldr-11-2023-0031

Michael J. Cameron, Jenifer Shahin, Nicole Lockerman

{"title":"Commentary on “Collective effort to enhance the quality of research evidence in intellectual and developmental disabilities: a case study of an academic-practice network”","authors":"Michael J. Cameron, Jenifer Shahin, Nicole Lockerman","doi":"10.1108/tldr-11-2023-0031","DOIUrl":"https://doi.org/10.1108/tldr-11-2023-0031","url":null,"abstract":"<h3>Purpose</h3>\u0000<p>This paper aims to endorse and elaborate on the recommendations put forward by the Sharland Foundation Developmental Disabilities Applied Behavioural Research and Impact Network (SF-DDARIN), emphasising their significance in the field of developmental disabilities.</p>\u0000<h3>Design/methodology/approach</h3>\u0000<p>This paper outlines a specific point of view. The first section focuses on integrating developmental theory and advanced technology in interventions for developmental disabilities. Subsequently, the commentary explores virtual reality (VR) and generative artificial intelligence (AI) for enhancing social skills and personalising support. Finally, the piece highlights innovations like SocialWise VR and Custom Generative Pre-Trained Transformers in aligning interventions with developmental stages.</p>\u0000<h3>Findings</h3>\u0000<p>Technologies like VR and generative AI hold vast potential to revolutionise how clinicians provide timely and relevant knowledge to individuals with developmental disabilities.</p>\u0000<h3>Research limitations/implications</h3>\u0000<p>This is strictly a commentary.</p>\u0000<h3>Practical implications</h3>\u0000<p>Availability of technology.</p>\u0000<h3>Social implications</h3>\u0000<p>Both VR and generative AI will impact service delivery in a meaningful way.</p>\u0000<h3>Originality/value</h3>\u0000<p>The paper advocates for incorporating these technologies into SF-DDARIN's approach, emphasising their potential to revolutionise evidence-based interventions in developmental disabilities.</p>","PeriodicalId":54179,"journal":{"name":"Tizard Learning Disability Review","volume":"28 1","pages":""},"PeriodicalIF":0.6,"publicationDate":"2024-03-13","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140098319","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Commentary on “Implementation of an adapted handwriting without Tears® programme for children with developmental disabilities in a special education setting” 关于 "在特殊教育环境中为发育障碍儿童实施经过调整的无泪手写®计划 "的评论

IF 0.6

Tizard Learning Disability Review Pub Date : 2024-02-19 DOI: 10.1108/tldr-09-2023-0022

Luca Vascelli

引用次数: 0

Stakeholder experiences of deprescribing psychotropic medicines for challenging behaviour in people with intellectual disabilities 利益相关者对智障人士因挑战行为而停用精神药物的经验

IF 0.6

Tizard Learning Disability Review Pub Date : 2024-01-30 DOI: 10.1108/tldr-09-2023-0020

Danielle Adams, Richard P. Hastings, Ian Maidment, Chetan Shah, Peter E. Langdon

{"title":"Stakeholder experiences of deprescribing psychotropic medicines for challenging behaviour in people with intellectual disabilities","authors":"Danielle Adams, Richard P. Hastings, Ian Maidment, Chetan Shah, Peter E. Langdon","doi":"10.1108/tldr-09-2023-0020","DOIUrl":"https://doi.org/10.1108/tldr-09-2023-0020","url":null,"abstract":"<h3>Purpose</h3>\u0000<p>Evidence of overprescribing of psychotropic medicines to manage challenging behaviour in people with intellectual disabilities has led to national programmes within the UK to promote deprescribing, such as stopping the overprescribing of medication in people (with learning disabilities, autism or both). To successfully implement deprescribing initiatives, we need to understand how to engage stakeholders in the process.</p>\u0000<h3>Design/methodology/approach</h3>\u0000<p>In a published systematic review, we reported evidence about the process of deprescribing psychotropic medicines for people of all ages with intellectual disabilities and challenging behaviour. As a part of the original review, we searched for evidence about stakeholders’ experiences of the psychotropic deprescribing process, which was synthesised and reported within the current study.</p>\u0000<h3>Findings</h3>\u0000<p>Six studies were identified. Involving carers and people with intellectual disabilities, providing ongoing support and improving access to non-pharmacological interventions, including positive behaviour support, may contribute to successful outcomes, including reducing or stopping psychotropic medicines and improving quality of life. Implementing psychotropic deprescribing requires a multidisciplinary collaborative care approach and education for stakeholders.</p>\u0000<h3>Originality/value</h3>\u0000<p>There have been no previous reviews of stakeholder experiences of deprescribing psychotropic medications for people with intellectual disabilities and challenging behaviour. The existing literature is scant, and further research is needed.</p>","PeriodicalId":54179,"journal":{"name":"Tizard Learning Disability Review","volume":"16 1","pages":""},"PeriodicalIF":0.6,"publicationDate":"2024-01-30","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139583709","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Wales and Autism: the impact of philanthropy matched by ambition 威尔士和自闭症：慈善事业的影响与雄心相匹配

IF 0.6

Tizard Learning Disability Review Pub Date : 2023-12-15 DOI: 10.1108/tldr-08-2023-0016

Hugh Morgan

{"title":"Wales and Autism: the impact of philanthropy matched by ambition","authors":"Hugh Morgan","doi":"10.1108/tldr-08-2023-0016","DOIUrl":"https://doi.org/10.1108/tldr-08-2023-0016","url":null,"abstract":"<h3>Purpose</h3>\u0000<p>The purpose of this paper is to place on record the impact made on government policy and research by Autism Cymru, a small charity that existed in Wales between 2001 and 2014. The success of Autism Cymru resulted directly from philanthropic funding, applied with strategic vision and genuine ambition.</p>\u0000<h3>Design/methodology/approach</h3>\u0000<p>A retrospective, chronological viewpoint highlighting the creative process, drawing upon records held by the charity.</p>\u0000<h3>Findings</h3>\u0000<p>Autism Cymru initiated the concept and played a crucial role in steering the development of government policy for autism in Wales between 2001 and 2011. The charity also drove forward the initiative, which led to the establishment of the Wales Autism Research Centre at Cardiff University in 2010. This paper demonstrates that with astute philanthropic support, small learning disability/autism charities can elicit structural and sustainable change at the national level, leading to wide-ranging benefits for the communities they represent.</p>\u0000<h3>Originality/value</h3>\u0000<p>The strategic approach taken over 20 years ago in Wales by Autism Cymru, which led to the Welsh Government’s ASD Strategic Action Plan for Wales (Welsh Government, 2011), set in place a national policy model, which was then followed by The Scottish Strategy for Autism and the Northern Ireland Autism Strategy (Department of Health, 2013>; Scottish Government, 2011). The insightful and tenacious method used by Autism Cymru remains relevant today, demonstrating that any small charity supported by shrewd philanthropic funding can punch well above its weight by taking a planned, ambitious and strategic approach to policy, research and practice.</p>","PeriodicalId":54179,"journal":{"name":"Tizard Learning Disability Review","volume":"25 1","pages":""},"PeriodicalIF":0.6,"publicationDate":"2023-12-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138680225","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Commentary on “Wales and Autism: The Impact of Philanthropy Matched with Ambition” 威尔士与自闭症》评论：与雄心相匹配的慈善事业的影响" 评论

IF 0.6

Tizard Learning Disability Review Pub Date : 2023-12-15 DOI: 10.1108/tldr-10-2023-0024

Catherine Storey

{"title":"Commentary on “Wales and Autism: The Impact of Philanthropy Matched with Ambition”","authors":"Catherine Storey","doi":"10.1108/tldr-10-2023-0024","DOIUrl":"https://doi.org/10.1108/tldr-10-2023-0024","url":null,"abstract":"<h3>Purpose</h3>\u0000<p>This paper is a commentary that aims to address themes arising from the article by Morgan titled “Wales and Autism: The Impact of Philanthropy Matched with Ambition”.</p>\u0000<h3>Design/methodology/approach</h3>\u0000<p>This opinion piece considers the broader impact of stakeholder engagement in the field of autism, including how the dissemination of evidence-based support could be made more accessible for autistic people, their families and carers and philanthropists.</p>\u0000<h3>Findings</h3>\u0000<p>This paper highlights the link between stakeholder engagement and meaningful change in policy and practice in the field of autism. It highlights the need for philanthropists to invest in evidence-based support but highlights the difficulty in identifying and accessing such support. This piece supports the use of evidence and gap maps (EGMs) to increase the accessibility of autism research and evidence.</p>\u0000<h3>Originality/value</h3>\u0000<p>While stakeholder engagement is encouragingly rising in this field, most of the evidence is held in academic journals, which are behind paywalls and, therefore, inaccessible to many autistic people, their families, carers and associated professionals. Displaying evidence using EGMs provides an accessible way for autistic people and those who support them to identify possible avenues of support quickly and allows philanthropists to direct research funding to areas of high priority.</p>","PeriodicalId":54179,"journal":{"name":"Tizard Learning Disability Review","volume":"55 1","pages":""},"PeriodicalIF":0.6,"publicationDate":"2023-12-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138680435","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Commentary on “positive family connections: co-producing a virtual group programme for family carers of children with learning disabilities or who are autistic” “积极的家庭关系:为有学习障碍或自闭症儿童的家庭照顾者共同制作虚拟小组节目”评论

Tizard Learning Disability Review Pub Date : 2023-10-26 DOI: 10.1108/tldr-10-2023-0025

Suzy Mejía-Buenaño

引用次数: 0

Positive family connections: co-producing a virtual group programme for family carers of children with learning disabilities or who are autistic 积极的家庭联系:为有学习障碍或自闭症儿童的家庭照顾者共同制作虚拟小组节目

Tizard Learning Disability Review Pub Date : 2023-10-16 DOI: 10.1108/tldr-03-2023-0008

Joanna Griffin, Debbie Austin, John Lynham, Rasha Hafidh, Natasha Boxill, Daniel Sutherland, Samantha Flynn, Richard P. Hastings

{"title":"Positive family connections: co-producing a virtual group programme for family carers of children with learning disabilities or who are autistic","authors":"Joanna Griffin, Debbie Austin, John Lynham, Rasha Hafidh, Natasha Boxill, Daniel Sutherland, Samantha Flynn, Richard P. Hastings","doi":"10.1108/tldr-03-2023-0008","DOIUrl":"https://doi.org/10.1108/tldr-03-2023-0008","url":null,"abstract":"Purpose This paper aims to outline the process of developing a new co-produced virtual group support programme called Positive Family Connections (PFC) aimed at family carers of children with a learning disability, or who are autistic, aged between 8 and 13 years. Design/methodology/approach Development process: family carers were recruited to develop PFC prior to a feasibility randomised controlled trial being conducted (not reported in this paper). The programme was positively oriented and family systems-focused. PFC was developed by family carers, along with the research team, and designed to be delivered by family carer facilitators. The development process included several meetings to design the format and content of the programme. An initial pilot was then delivered and further amendments made to the programme in response to the pilot participants’ feedback. Findings The programme: the co-produced PFC programme involved attending six weekly sessions on Zoom; each 2-h session focused on different themes (e.g. communication and activities). Research limitations/implications Reflections on the co-production process: key ingredients of co-production included ensuring clarity on roles, positive communication and understanding of the family carers’ situation and utilising the varied skills family carers can bring to research and practise. Originality/value This is the first family systems-focused programme that the authors know of, that has been co-produced with family carers and solely delivered virtually by trained family carer facilitators from the outset.","PeriodicalId":54179,"journal":{"name":"Tizard Learning Disability Review","volume":"75 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2023-10-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"136077437","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Commentary on “What can a Family Liaison Service offer families of children with disabilities and/or developmental difficulties?” 关于“家庭联络处能为残疾和/或发育困难儿童的家庭提供什么？”的评论

IF 0.6

Tizard Learning Disability Review Pub Date : 2023-06-23 DOI: 10.1108/tldr-03-2023-0009

M. Murphy

{"title":"Commentary on “What can a Family Liaison Service offer families of children with disabilities and/or developmental difficulties?”","authors":"M. Murphy","doi":"10.1108/tldr-03-2023-0009","DOIUrl":"https://doi.org/10.1108/tldr-03-2023-0009","url":null,"abstract":"\u0000Purpose\u0000The purpose of this paper is to consider the key themes highlighted by Collins et al., in light of the wider research evidence base on informal sources of support for families of children with intellectual and developmental disabilities.\u0000\u0000\u0000Design/methodology/approach\u0000This commentary reflects on the provision of informal support services for families of children with intellectual and developmental disabilities.\u0000\u0000\u0000Findings\u0000The wider literature highlights the key role of family support in shifting negative narratives concerning parenting a child with intellectual and developmental disabilities, the impact of austerity and COVID-19 on support provision and the importance of services working effectively in collaboration to promote self-determination for families and individuals with intellectual and developmental disabilities.\u0000\u0000\u0000Originality/value\u0000Continued efforts to explore how services and informal social supports might work together in an effective manner are key to improving the quality of life of parents caring for children with intellectual and developmental disabilities.\u0000","PeriodicalId":54179,"journal":{"name":"Tizard Learning Disability Review","volume":" ","pages":""},"PeriodicalIF":0.6,"publicationDate":"2023-06-23","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"44031809","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0