Journal of clinical rheumatology : practical reports on rheumatic & musculoskeletal diseases最新文献

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Vanishing Bile Duct Syndrome During Avacopan Therapy. Avacopan治疗期间胆管综合征消失。
IF 1.8
Journal of clinical rheumatology : practical reports on rheumatic & musculoskeletal diseases Pub Date : 2026-10-01 Epub Date: 2026-08-10 DOI: 10.1097/RHU.0000000000002397
Hirotaka Yamamoto, Yoshinori Taniguchi
{"title":"Vanishing Bile Duct Syndrome During Avacopan Therapy.","authors":"Hirotaka Yamamoto, Yoshinori Taniguchi","doi":"10.1097/RHU.0000000000002397","DOIUrl":"10.1097/RHU.0000000000002397","url":null,"abstract":"","PeriodicalId":520664,"journal":{"name":"Journal of clinical rheumatology : practical reports on rheumatic & musculoskeletal diseases","volume":" ","pages":"e280"},"PeriodicalIF":1.8,"publicationDate":"2026-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148709421","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Adjusting for a Comorbidity Index That Contains the Exposure: Systemic Lupus Erythematosus and Mortality After Coronary Artery Bypass Grafting. 调整包含暴露的合并症指数:系统性红斑狼疮和冠状动脉旁路移植术后的死亡率。
IF 1.8
Brett D Cohen, Aarjuv Majmundar
{"title":"Adjusting for a Comorbidity Index That Contains the Exposure: Systemic Lupus Erythematosus and Mortality After Coronary Artery Bypass Grafting.","authors":"Brett D Cohen, Aarjuv Majmundar","doi":"10.1097/RHU.0000000000002405","DOIUrl":"https://doi.org/10.1097/RHU.0000000000002405","url":null,"abstract":"","PeriodicalId":520664,"journal":{"name":"Journal of clinical rheumatology : practical reports on rheumatic & musculoskeletal diseases","volume":" ","pages":""},"PeriodicalIF":1.8,"publicationDate":"2026-09-25","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"149083736","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Knowledge, Attitudes, and Intention Toward HPV Vaccination Among Reproductive-aged Women With Rheumatic Diseases. 风湿疾病育龄妇女接种HPV疫苗的知识、态度和意向
IF 1.8
Lorena Pérez-Barbosa, Braulio Rafael Avalos-García, Rodolfo Martínez-Canales, Paula Marcela Cuellar-Pinzón, Daniel Rodríguez-Garibay, Eva Abigaid Galindo-Calvillo, Karen Yaresi Ramos-Reza, Carolina Treviño-Sánchez, Eliezer Villaseñor-Cerda, Andrés Manuel Ortiz-Ríos, Jesús Alberto Cárdenas-de la Garza, Dionicio Ángel Galarza-Delgado, Cassandra Michele Skinner Taylor
{"title":"Knowledge, Attitudes, and Intention Toward HPV Vaccination Among Reproductive-aged Women With Rheumatic Diseases.","authors":"Lorena Pérez-Barbosa, Braulio Rafael Avalos-García, Rodolfo Martínez-Canales, Paula Marcela Cuellar-Pinzón, Daniel Rodríguez-Garibay, Eva Abigaid Galindo-Calvillo, Karen Yaresi Ramos-Reza, Carolina Treviño-Sánchez, Eliezer Villaseñor-Cerda, Andrés Manuel Ortiz-Ríos, Jesús Alberto Cárdenas-de la Garza, Dionicio Ángel Galarza-Delgado, Cassandra Michele Skinner Taylor","doi":"10.1097/RHU.0000000000002401","DOIUrl":"https://doi.org/10.1097/RHU.0000000000002401","url":null,"abstract":"<p><strong>Background/objective: </strong>This single-center, observational, and pre-post interventional study design evaluated HPV vaccination knowledge, attitudes, and intentions among reproductive-aged women with autoimmune rheumatic diseases (ARDs).</p><p><strong>Methods: </strong>Patients attending a rheumatology clinic at a university hospital in Monterrey, Mexico, completed a validated survey assessing HPV knowledge, attitudes, and vaccination intentions. Demographic and clinical data were collected cross-sectionally at baseline. Participants received a brief, standardized educational intervention on HPV infection and vaccination. The primary endpoint was vaccination intention (10-point scale) measured at baseline and immediately postintervention. Data were summarized using medians and interquartile ranges (IQR). Linear regression identified factors associated with vaccine hesitancy. Change in vaccination intention was assessed using the Wilcoxon signed-rank test.</p><p><strong>Results: </strong>One hundred ninety-four patients completed the survey. Median HPV knowledge was 7 (IQR: 4 to 9); attitudes were generally positive (median 2.1; IQR: 1.7 to 2.5). The educational intervention significantly increased vaccination intention (median 8 to 9; p=0.002). Vaccine hesitancy was independently associated with age greater than 30 years, monthly income <500 USD, education greater than high school, and no prior cervical cytology.</p><p><strong>Conclusions: </strong>Women with ARDs demonstrated favorable attitudes toward HPV vaccination but limited baseline knowledge. A single, brief educational session significantly improved vaccination intention. Primary care clinicians and rheumatologists should integrate concise, targeted HPV vaccine counseling into routine care visits to address knowledge gaps and reduce hesitancy, thereby supporting higher vaccine uptake in this high-risk population.</p>","PeriodicalId":520664,"journal":{"name":"Journal of clinical rheumatology : practical reports on rheumatic & musculoskeletal diseases","volume":" ","pages":""},"PeriodicalIF":1.8,"publicationDate":"2026-09-22","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"149027351","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Recommendations of the Argentine Society of Rheumatology for the Treatment of Patients With Rheumatoid Arthritis. Update 2025 Part II. Definitions in the Context of RA Treatment and Therapeutic Strategies for Special Situations and Comorbidities. 阿根廷风湿病学会对类风湿关节炎患者治疗的建议。更新2025第二部分。RA治疗背景下的定义以及特殊情况和合并症的治疗策略。
IF 1.8
Emilce Edith Schneeberger, Gustavo Citera, Carla Sol Maldini, Enrique Roberto Soriano Guppy, Victoria Martiré, Eduardo Fabián Mysler, Silvia Beatriz Papasidero, Rodrigo Nicolás García Salinas, Guillermo Ariel Berbotto, Gustavo Christian Casado, Carla Andrea Gobbi, Hernán Maldonado Ficco, Rodolfo Sebastián Pérez Alamino, Bernardo Antonio Pons-Estel, Javier Eduardo Rosa, Darío Scublinsky, Anastasia Secco, José Luis Velasco Zamora, María de Los Ángeles Correa, Alejandra Magdalena Babini, Edson Javier Velozo, Cecilia Adma Asnal, Tomás Cazenave, Alejandro Martínez Muñóz, María Celina de la Vega
{"title":"Recommendations of the Argentine Society of Rheumatology for the Treatment of Patients With Rheumatoid Arthritis. Update 2025 Part II. Definitions in the Context of RA Treatment and Therapeutic Strategies for Special Situations and Comorbidities.","authors":"Emilce Edith Schneeberger, Gustavo Citera, Carla Sol Maldini, Enrique Roberto Soriano Guppy, Victoria Martiré, Eduardo Fabián Mysler, Silvia Beatriz Papasidero, Rodrigo Nicolás García Salinas, Guillermo Ariel Berbotto, Gustavo Christian Casado, Carla Andrea Gobbi, Hernán Maldonado Ficco, Rodolfo Sebastián Pérez Alamino, Bernardo Antonio Pons-Estel, Javier Eduardo Rosa, Darío Scublinsky, Anastasia Secco, José Luis Velasco Zamora, María de Los Ángeles Correa, Alejandra Magdalena Babini, Edson Javier Velozo, Cecilia Adma Asnal, Tomás Cazenave, Alejandro Martínez Muñóz, María Celina de la Vega","doi":"10.1097/RHU.0000000000002388","DOIUrl":"https://doi.org/10.1097/RHU.0000000000002388","url":null,"abstract":"<p><strong>Background: </strong>In the context of treatment recommendations for rheumatoid arthritis (RA), it is important to establish definitions related to treatment adjusted in specific situations and in the presence of comorbidities.</p><p><strong>Objectives: </strong>To develop recommendations based on the best evidence regarding to the treatment of patients with RA in special situations, healthy habits, and the presence of comorbidities.</p><p><strong>Methods: </strong>A systematic literature review was conducted in PubMed, LILACS, and the Cochrane Library until April 30, 2023. Two independent methodologists selected studies. Draft statements were developed and voted on, with ≥70% agreement required for inclusion.</p><p><strong>Results: </strong>Fifty-four statements were formulated. Key recommendations include: against treatment in asymptomatic high-risk individuals without clinical arthritis (preclinical RA); the use of methotrexate in seropositive patients with imaging-detected subclinical arthritis; definitions for early RA, window of opportunity, difficult-to-treat RA, and sustained remission; guidance on DMARD during pregnancy and breastfeeding; preference for non-TNF biologics in obese patients; caution with TNFi in stage III to IV congestive heart failure; antiviral prophylaxis in chronic hepatitis B; and structured recommendations on oral hygiene and smoking cessation.</p><p><strong>Conclusions: </strong>These statements complement general RA treatment recommendations and support better patient management, based on scientific evidence and adapted to the characteristics, resources, and opportunities of our country.</p>","PeriodicalId":520664,"journal":{"name":"Journal of clinical rheumatology : practical reports on rheumatic & musculoskeletal diseases","volume":" ","pages":""},"PeriodicalIF":1.8,"publicationDate":"2026-09-21","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"149019528","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Reported Clinical Practice in Still Disease in France in 2024: A Descriptive Analysis and Comparison With Current Different National Guidelines. 2024年法国静止疾病的临床实践报告:与当前不同国家指南的描述性分析和比较
IF 1.8
Philippe Mertz, Katerina Theodoropoulou, Francisca Aguiar, Sofia Ferreira Azevedo, Karima Daghor-Abbaci, Dirk Foell, Charlotte Girard, Djohra Hadef, Wafa Hamdi, Soad Hashad, Maurine Jouret, Filipa Oliveira Ramos, Yulia Vyzhga, Sophie Georgin-Lavialle, Véronique Hentgen
{"title":"Reported Clinical Practice in Still Disease in France in 2024: A Descriptive Analysis and Comparison With Current Different National Guidelines.","authors":"Philippe Mertz, Katerina Theodoropoulou, Francisca Aguiar, Sofia Ferreira Azevedo, Karima Daghor-Abbaci, Dirk Foell, Charlotte Girard, Djohra Hadef, Wafa Hamdi, Soad Hashad, Maurine Jouret, Filipa Oliveira Ramos, Yulia Vyzhga, Sophie Georgin-Lavialle, Véronique Hentgen","doi":"10.1097/RHU.0000000000002402","DOIUrl":"https://doi.org/10.1097/RHU.0000000000002402","url":null,"abstract":"<p><strong>Objectives: </strong>Still disease, which includes systemic juvenile idiopathic arthritis (sJIA) and adult-onset Still disease (AOSD), has historically had age-related treatment differences. With the advent of bDMARDs and evolving disease knowledge, management approaches have shifted. Our study aims to describe 2024 reported clinical practices for Still disease in France, and compare them with 2017 and 2024 national guidelines to identify practice gaps.</p><p><strong>Methods: </strong>This study is a French subanalysis of the European JIR-CliPS project, which evaluates reported prescribing practices for inflammatory diseases, taking into account recommendations and socio-economic factors in the participating countries. A detailed questionnaire was distributed to French physicians through professional societies and colleges.</p><p><strong>Results: </strong>Forty-seven physicians, mainly pediatric rheumatologists, internists, and rheumatologists, participated. While national guidelines influenced therapeutic decisions in most cases, only 26.7% followed them strictly, and 78.9% perceived no significant differences in the management of sJIA and AOSD. Treatment decisions were primarily guided by disease phenotype, severity, and relapse status. The use of bDMARDs as first-line treatment remained limited for several phenotypes, and glucocorticoid tapering strategies were heterogeneous, with most physicians adjusting tapering based on clinical response rather than following a standard schedule.</p><p><strong>Conclusion: </strong>This study highlights gaps between 2024 practice and current national guidelines for Still disease, particularly in first-line bDMARD use and glucocorticoid tapering. Understanding these gaps may support standardized practice and improved management of Still disease in the future.</p>","PeriodicalId":520664,"journal":{"name":"Journal of clinical rheumatology : practical reports on rheumatic & musculoskeletal diseases","volume":" ","pages":""},"PeriodicalIF":1.8,"publicationDate":"2026-09-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"149003316","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Traumatic Prepatellar Lipohemobursa. 创伤预patellar Lipohemobursa。
IF 1.8
Leonor Garbin Savarese, Mateus de Andrade Hernandes
{"title":"Traumatic Prepatellar Lipohemobursa.","authors":"Leonor Garbin Savarese, Mateus de Andrade Hernandes","doi":"10.1097/RHU.0000000000002403","DOIUrl":"https://doi.org/10.1097/RHU.0000000000002403","url":null,"abstract":"","PeriodicalId":520664,"journal":{"name":"Journal of clinical rheumatology : practical reports on rheumatic & musculoskeletal diseases","volume":" ","pages":""},"PeriodicalIF":1.8,"publicationDate":"2026-09-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"149003308","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Pneumatic Compression-assisted Arthrocentesis in the Noneffusive Knee: Considerations on Generalizability and Clinical Context. 无积液膝关节的气压加压辅助关节穿刺:对普遍性和临床背景的考虑。
IF 1.8
Journal of clinical rheumatology : practical reports on rheumatic & musculoskeletal diseases Pub Date : 2026-09-01 Epub Date: 2026-05-11 DOI: 10.1097/RHU.0000000000002362
Bodhisatwa Choudhuri
{"title":"Pneumatic Compression-assisted Arthrocentesis in the Noneffusive Knee: Considerations on Generalizability and Clinical Context.","authors":"Bodhisatwa Choudhuri","doi":"10.1097/RHU.0000000000002362","DOIUrl":"10.1097/RHU.0000000000002362","url":null,"abstract":"","PeriodicalId":520664,"journal":{"name":"Journal of clinical rheumatology : practical reports on rheumatic & musculoskeletal diseases","volume":" ","pages":"e226"},"PeriodicalIF":1.8,"publicationDate":"2026-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147950682","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Impact of Weight on Health-Related Quality of Life in Adolescents With Autoimmune Rheumatic Conditions. 体重对自身免疫性风湿病青少年健康相关生活质量的影响
IF 1.8
Journal of clinical rheumatology : practical reports on rheumatic & musculoskeletal diseases Pub Date : 2026-09-01 Epub Date: 2026-04-01 DOI: 10.1097/RHU.0000000000002344
Onengiya Harry, Adah Freeman, Stephanie Gubish, Brittany Richard, Arezoo Movaghar
{"title":"Impact of Weight on Health-Related Quality of Life in Adolescents With Autoimmune Rheumatic Conditions.","authors":"Onengiya Harry, Adah Freeman, Stephanie Gubish, Brittany Richard, Arezoo Movaghar","doi":"10.1097/RHU.0000000000002344","DOIUrl":"10.1097/RHU.0000000000002344","url":null,"abstract":"<p><strong>Background/objective: </strong>To evaluate the impact of weight on health-related quality of life (HRQOL) in adolescents with rheumatic conditions using the Impact of Weight on Quality of Life (IWQOL)-Kids scale and explore associations with demographic and anthropometric factors.</p><p><strong>Methods: </strong>This cross-sectional study recruited adolescents aged 11 to 19 years with rheumatic conditions and their caregivers over a 12-week period during routine pediatric rheumatology visits at a Southeastern US children's hospital. Participants completed the IWQOL-Kids and parent-proxy scales, which assessed 4 subdomains (physical comfort, body esteem, social life, family relations) and a total score. Demographic and clinical data were extracted from electronic medical records. Welch ANOVA tested associations between IWQOL scores and age, sex, and weight classification.</p><p><strong>Results: </strong>Fifty-five caregiver-adolescent dyads participated (enrollment rate: ~92%). Approximately half of adolescents were overweight or obese. Mean adolescent IWQOL total score was 89±13.4, with subdomain scores highest for family relations (96.1±8.5) and lowest for body esteem (81.1±21.2). Adolescents with systemic lupus erythematosus (SLE) reported lower body esteem and physical comfort scores compared with peers. Caregivers had slightly higher total scores (92.8 vs. 89.6), although differences were not statistically significant. Welch ANOVA revealed no significant association between adolescent IWQOL scores and age, sex, or weight classification; however, caregiver scores differed significantly by adolescent weight classification ( P =0.002). Over half of participants expressed no desire for weight-based interventions.</p><p><strong>Conclusions: </strong>Weight negatively impacts body esteem in adolescents with rheumatic conditions, particularly those with SLE. Findings underscore the need for targeted interventions addressing weight-related HRQOL in this population.</p>","PeriodicalId":520664,"journal":{"name":"Journal of clinical rheumatology : practical reports on rheumatic & musculoskeletal diseases","volume":" ","pages":"176-181"},"PeriodicalIF":1.8,"publicationDate":"2026-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147597513","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Don't Miss Vasculitic Myopathy Without Elevated Creatine Phosphokinase. 不要错过没有肌酸磷酸激酶升高的血管性肌病。
IF 1.8
Journal of clinical rheumatology : practical reports on rheumatic & musculoskeletal diseases Pub Date : 2026-09-01 Epub Date: 2026-06-15 DOI: 10.1097/RHU.0000000000002384
Hirotaka Yamamoto, Yoshihiro Iwamoto
{"title":"Don't Miss Vasculitic Myopathy Without Elevated Creatine Phosphokinase.","authors":"Hirotaka Yamamoto, Yoshihiro Iwamoto","doi":"10.1097/RHU.0000000000002384","DOIUrl":"10.1097/RHU.0000000000002384","url":null,"abstract":"","PeriodicalId":520664,"journal":{"name":"Journal of clinical rheumatology : practical reports on rheumatic & musculoskeletal diseases","volume":" ","pages":"e224"},"PeriodicalIF":1.8,"publicationDate":"2026-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148261237","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
A Convergent Mixed-methods Study of the User Perspectives for an Individualized, Computerized, Collaboratively Produced, Evidence-based Patient Self-administered Systemic Lupus Erythematosus Decision Aid. 个性化、计算机化、协同生产、循证患者自我管理系统性红斑狼疮决策辅助的用户视角融合混合方法研究。
IF 1.8
Journal of clinical rheumatology : practical reports on rheumatic & musculoskeletal diseases Pub Date : 2026-09-01 Epub Date: 2026-07-29 DOI: 10.1097/RHU.0000000000002382
Jasvinder A Singh, Haiyan Qu
{"title":"A Convergent Mixed-methods Study of the User Perspectives for an Individualized, Computerized, Collaboratively Produced, Evidence-based Patient Self-administered Systemic Lupus Erythematosus Decision Aid.","authors":"Jasvinder A Singh, Haiyan Qu","doi":"10.1097/RHU.0000000000002382","DOIUrl":"10.1097/RHU.0000000000002382","url":null,"abstract":"<p><strong>Objectives: </strong>Elicit patient feedback on a computerized systemic lupus erythematosus (SLE) patient decision aid (PtDA).</p><p><strong>Methods: </strong>We embedded a mixed-methods study in a multicenter SLE PtDA implementation project at 15 US rheumatology clinics during 2019-2023. A patient self-administered survey included questions on the acceptability of information quality (6-item), the amount of information, the inclusion of enough information for decision-making, the usefulness of the SLE PtDA in decision-making, and whether it was balanced (1-item each). Qualitative assessment was with 2 open-ended questions: (1) What did you like about the decision aid? (2) What suggestions do you have to improve the decision aid?</p><p><strong>Results: </strong>A high proportion of 1895 SLE patients, 78% to 92%, rated the acceptability of the information quality of SLE PtDA as good to excellent. Of participants, 82% rated the amount of information as just right; 79% reported inclusion of enough information; 90% found it useful for making SLE therapy decisions; and the presentation of the data in the SLE PtDA was balanced for 82%. The top 3 responses about what participants liked were: (1) SLE PtDA content (39.2%), (2) positive experience (36.6%), and (3) its format and design (9.0%). The top 3 suggestions about improving the SLE PtDA were: (1) provide information about treatment options and medication (14.7%), (2) improve the design (13.6%), and (3) provide more information (5.7%).</p><p><strong>Conclusions: </strong>The SLE PtDA met patients' expectations for information amount and quality in a mixed-methods study. SLE PtDA was modified based on target population feedback.</p>","PeriodicalId":520664,"journal":{"name":"Journal of clinical rheumatology : practical reports on rheumatic & musculoskeletal diseases","volume":" ","pages":"e206-e212"},"PeriodicalIF":1.8,"publicationDate":"2026-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148650479","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
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