Research in Developmental Disabilities最新文献

{"title":"Challenging behaviour, the application of restrictive measures and psychotropic drug prescription in people with intellectual disabilities","authors":"Josien Jonker ,&nbsp;Sytse Ulbe Zuidema ,&nbsp;Gerda Margaretha de Kuijper","doi":"10.1016/j.ridd.2024.104824","DOIUrl":"10.1016/j.ridd.2024.104824","url":null,"abstract":"<div><h3>Background</h3><p>Prescribing of psychotropic drugs (PDs) and applying restrictive measures are both frequently used in managing challenging behaviour of people with intellectual disabilities (ID), which is not always according to guidelines or good clinical practice.</p></div><div><h3>Aims</h3><p>This study aimed to investigate the potential triangular relationship between challenging behaviour, the application of restrictive measures and PD prescription.</p></div><div><h3>Methods and procedures</h3><p>In this cross-sectional study, data on challenging behaviour, PD prescription and restrictive measures were collected. We defined and compared four mutually exclusive groups of participants.</p></div><div><h3>Outcomes and results</h3><p>Challenging behaviour in the group in whom one or more PD were prescribed as a restrictive measures (PDRM) was more severe than in the other three groups. More severe challenging behaviour, a higher number of antipsychotics, antidepressants and anxiolytics/hypnotics prescriptions, a lower dosage, and more application of domotics as restrictive measure was shown in the PDRM compared to the group in whom PDs were prescribed according to guidelines (PDNRM).</p></div><div><h3>Conclusions and implications</h3><p>We did not find indications for a triangular relationship of challenging behaviour, the application of restrictive measures and PD prescriptions. Future longitudinal research is needed to better understand this complex relationship and should investigate the indication and the effect of treatment.</p></div><div><h3>What this paper adds?</h3><p>This study is a first exploration of the potential triangular relationship between symptoms of challenging behaviour, psychotropic drug (PD) prescription, and the application of restrictive measures. Prescribing PDs and applying restrictive measures are two interventions which are commonly used to manage challenging behaviour in people with intellectual disabilities. Both have been subject of research separately in recent years. However, it is conceivable that the PD prescription in treatments for challenging behaviour could be a substitute for another form of a restrictive measure, for example a physical or mechanical restraint. For this purpose, we defined and compared four mutually exclusive groups of participants. We found no indication for this triangular relationship. On the other hand, we found the highest severity of challenging behaviour in the group who used PDs as restrictive measure next to other restrictive measures. Our results may suggest that both prescribing PDs and applying non-pharmacological restrictive measures are used simultaneously in managing challenging behaviour, are not sufficiently implemented or effective.</p></div>","PeriodicalId":51351,"journal":{"name":"Research in Developmental Disabilities","volume":"153 ","pages":"Article 104824"},"PeriodicalIF":2.9,"publicationDate":"2024-08-22","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142045078","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Psychological variables related to technology-mediated intervention design in autism spectrum disorder","authors":"Mihaela Chistol ,&nbsp;Maria-Doina Schipor ,&nbsp;Cristina Elena Turcu","doi":"10.1016/j.ridd.2024.104826","DOIUrl":"10.1016/j.ridd.2024.104826","url":null,"abstract":"<div><h3>Background</h3><p>Autism spectrum disorder (ASD) is a lifelong neurodevelopmental disorder characterized by persistent impairments in communication, social interaction and learning (<span><span>Hodges et al., 2020</span></span>). Because of its heterogeneous nature, ASD presents complex challenges, including social exclusion, school abandonment and limited access to health care. Technologies offer a pragmatic solution to overcome these limitations and to deliver therapeutic interventions in both physical and online environments. Studies have demonstrated that technology-mediated interventions (TMIs) have a positive impact on the development of capabilities of individuals with ASD. However, according to the European Parliament’s Research Service technologies for ASDs are less mature (European Parliament. Directorate General for Parliamentary Research Services., 2018) and the causes and effects of TMIs in ASD should be better understood.</p></div><div><h3>Aims</h3><p>Present study aimed to investigate the psychological variables related to TMIs in ASD.</p></div><div><h3>Methods and procedures</h3><p>The study employed a survey research method with a between-subjects design involving 61 adult participants comprising therapists, teachers and parents of children with ASD and it examined psychological variables related to children with ASD, factors of technology usage, and parental and educators’ experiences.</p></div><div><h3>Outcomes and results</h3><p>The analysis of the data obtained from the questionnaire focused on correlations and differences between groups, and was carried out using nonparametric tests. Kendall’s Tau B test was used to explore the relationships between variables. The Mann-Whitney nonparametric test was employed to identify differences between groups.</p></div><div><h3>Conclusions and implications</h3><p>The findings revealed numerous relationships between variables and meaningful differences between the groups investigated in terms of how technologies are perceived by stakeholders involved in ASD interventions.</p></div>","PeriodicalId":51351,"journal":{"name":"Research in Developmental Disabilities","volume":"153 ","pages":"Article 104826"},"PeriodicalIF":2.9,"publicationDate":"2024-08-21","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S0891422224001586/pdfft?md5=bd27bc5712c8feda62218c565660777e&pid=1-s2.0-S0891422224001586-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142037702","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"'Of course you crash' Parenting a young child with neurodevelopmental difficulties","authors":"Anna Fäldt,&nbsp;Karin Fängström","doi":"10.1016/j.ridd.2024.104825","DOIUrl":"10.1016/j.ridd.2024.104825","url":null,"abstract":"<div><h3>Background</h3><p>Parents of children with neurodevelopmental disorders often experience heightened levels of parenting stress and diminished well-being. However, less is known about the well-being of parents whose children exhibit symptoms of neurodevelopmental disorders without yet having a formal diagnosis.</p></div><div><h3>Aim</h3><p>This study aims to deepen our understanding of the need for support among families with young children with neurodevelopmental difficulties. Specifically, it explores parents’ perspectives concerning their children, life circumstances, and emotional experiences in parenting.</p></div><div><h3>Methods and procedures</h3><p>Qualitative semi-structured interviews were conducted with ten parents of children aged 2.5–5 years, referred to a child psychologist due to reported neurodevelopmental difficulties. The interviews were transcribed and analysed using qualitative content analysis.</p></div><div><h3>Outcomes and results</h3><p>Two themes, each containing four and three categories, respectively, emerged in the analysis: Parenting our child with neurodevelopmental difficulties is tough in so many ways and Prevent, manage and make up like a Pro.</p></div><div><h3>Conclusion and implications</h3><p>The parents express very similar challenges, difficulties and problems as parents of children with diagnosed neurodevelopmental disorders. The main difference lies in the lack of accessible support or help for these parents.</p></div><div><h3>What this paper adds</h3><p>This study provides insights into how parents of children with suspected neurodevelopmental difficulties perceive their child and their overall life circumstances. The narratives show the challenges these parents face due to their children's multifaceted difficulties, leading to a need for multi-disciplinary support from professionals. The narratives also illustrate the strong emotions that arise in parenting, which in itself indicates a need for support. The study also provides further support for the importance of parents connecting with others facing similar life circumstances. The families often feel isolated despite the need for increased informal support in terms of more adults being involved with the children.</p></div>","PeriodicalId":51351,"journal":{"name":"Research in Developmental Disabilities","volume":"153 ","pages":"Article 104825"},"PeriodicalIF":2.9,"publicationDate":"2024-08-21","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S0891422224001574/pdfft?md5=3deaf338c4760e4758f6ba9677024435&pid=1-s2.0-S0891422224001574-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142011964","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Proprioceptive intervention improves reading performance in developmental dyslexia: An eye-tracking study","authors":"Luc Virlet ,&nbsp;Laurent Sparrow ,&nbsp;Jose Barela ,&nbsp;Patrick Berquin ,&nbsp;Cedrick Bonnet","doi":"10.1016/j.ridd.2024.104813","DOIUrl":"10.1016/j.ridd.2024.104813","url":null,"abstract":"<div><p>Developmental dyslexia is characterized by difficulties in learning to read, affecting cognition and causing failure at school. Interventions for children with developmental dyslexia have focused on improving linguistic capabilities (phonics, orthographic and morphological instructions), but developmental dyslexia is accompanied by a wide variety of sensorimotor impairments. The goal of this study was to examine the effects of a proprioceptive intervention on reading performance and eye movement in children with developmental dyslexia. Nineteen children diagnosed with developmental dyslexia were randomly assigned to a regular Speech Therapy (ST) or to a Proprioceptive and Speech Intervention (PSI), in which they received both the usual speech therapy and a proprioceptive intervention aimed to correct their sensorimotor impairments (prism glasses, oral neurostimulation, insoles and breathing instructions). Silent reading performance and eye movements were measured pre- and post-intervention (after nine months). In the PSI group, reading performance improved and eye movements were smoother and faster, reaching values similar to those of children with typical reading performance. The recognition of written words also improved, indicating better lexical access. These results show that PSI might constitute a valuable tool for reading improvement children with developmental dyslexia.</p></div>","PeriodicalId":51351,"journal":{"name":"Research in Developmental Disabilities","volume":"153 ","pages":"Article 104813"},"PeriodicalIF":2.9,"publicationDate":"2024-08-19","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142006687","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Subjective well-being and social inclusion at school for students with a disability, according to their parents, in France","authors":"Françoise Guillemot ,&nbsp;Florence Lacroix,&nbsp;Isabelle Nocus","doi":"10.1016/j.ridd.2024.104814","DOIUrl":"10.1016/j.ridd.2024.104814","url":null,"abstract":"<div><h3>Background</h3><p>Providing inclusive, quality education for all children is one of the United Nations' sustainable development goals for 2030.</p></div><div><h3>Aims</h3><p>The aim of this study, carried out in France among 491 parents of children with a disability aged 3 to 18 and enrolled in ordinary schools, is to measure the well-being and social inclusion of children and to identify the factors that promote well-being and social inclusion at school.</p></div><div><h3>Methods and procedures</h3><p>The parents fill in various questionnaires relating to the well-being and social inclusion of their child, the quality of their relationship with the teacher and their satisfaction with the accommodations offered at school. They also provide information about their child and their socio-economic situation.</p></div><div><h3>Outcomes and results</h3><p>Regression analyses show that well-being and social inclusion depend on the nature of the child’s disability and decrease with age but do not significantly depend on child’s gender and academic level or social background. Furthermore, well-being and social inclusion can be significantly improved when the quality of the parent-teacher relationship and school accommodations are satisfying.</p></div><div><h3>Conclusions and implications</h3><p>The results of this study encourage the development of quality parent-teacher relationships to promote well-being at school.</p></div>","PeriodicalId":51351,"journal":{"name":"Research in Developmental Disabilities","volume":"153 ","pages":"Article 104814"},"PeriodicalIF":2.9,"publicationDate":"2024-08-14","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S089142222400146X/pdfft?md5=e5b1cf928fa3873a073af9eb07f7f70e&pid=1-s2.0-S089142222400146X-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141983869","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Needs of children with neurodevelopmental disorders and medical complexity: Caregiver perspectives","authors":"Dércia Materula ,&nbsp;Genevieve Currie ,&nbsp;Xiao Yang Jia ,&nbsp;Brittany Finlay ,&nbsp;Ai-Men Lau ,&nbsp;Catherine Richard ,&nbsp;Meridith Yohemas ,&nbsp;Myka Estes ,&nbsp;Nadine Gall ,&nbsp;Tammie Dewan ,&nbsp;Sarah MacEachern ,&nbsp;W. Ben Gibbard ,&nbsp;Jennifer D. Zwicker","doi":"10.1016/j.ridd.2024.104815","DOIUrl":"10.1016/j.ridd.2024.104815","url":null,"abstract":"<div><h3>Background</h3><p>Caregivers of children with neurodevelopmental disorders and medical complexities (NDD-MC) coordinate care across complex multisectoral systems. Often NDD-MC children have complex behaviors, however there is limited information on coordination needs for families. Aim: The objective of this mixed methods study was to understand the needs of families with NDD-MC children. Methods and Procedures: This sequential exploratory study obtained the perspectives of 67 caregivers of NDD-MC children using semi-structured interviews and validated questionnaires to measure family quality of life, care integration, and resource use. An adapted model using Maslow’s hierarchy of needs was integrated, to understand the impacts of caregiving on quality of life. Outcomes and Results: Lack of support in caring for NDD-MC children negatively impacted family quality of life, resulting in various unmet needs, including caregiver burden, behavioural challenges, financial losses, and mental health issues. Caregivers dealt with a fragmented healthcare system that offered limited support to address coordination challenges. Conclusions and Implications: The implementation of a needs-based care coordination program is recommended to consider the health, educational, and social needs of NDD-MC children and their families. Effective care for children with complex needs should tailor support for families using Maslow’s hierarchy to enhance quality of life.</p></div>","PeriodicalId":51351,"journal":{"name":"Research in Developmental Disabilities","volume":"153 ","pages":"Article 104815"},"PeriodicalIF":2.9,"publicationDate":"2024-08-13","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S0891422224001471/pdfft?md5=558a8e14c337603af6d25248c545bfc6&pid=1-s2.0-S0891422224001471-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141978217","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"An EEG frequency tagging study on biological motion perception in children with DCD","authors":"Griet Warlop ,&nbsp;Emiel Cracco ,&nbsp;Jan R. Wiersema ,&nbsp;Guido Orgs ,&nbsp;Frederik J.A. Deconinck","doi":"10.1016/j.ridd.2024.104810","DOIUrl":"10.1016/j.ridd.2024.104810","url":null,"abstract":"<div><h3>Background</h3><p>The perception of biological motion requires accurate prediction of the spatiotemporal dynamics of human movement. Research on Developmental Coordination Disorder (DCD) suggests deficits in accurate motor prediction, raising the question whether not just action execution, but also action perception is perturbed in this disorder.</p></div><div><h3>Aims</h3><p>To examine action perception by comparing the neural response to the observation of apparent biological motion in children with and without DCD.</p></div><div><h3>Methods and procedures</h3><p>Thirty-three participants with and 33 without DCD, matched based on age (13.0 ± 2.0), sex and writing hand, observed sequences of static body postures that showed either fluent or non-fluent motion, in which only the fluent condition depicted apparent biological motion. Using a recently validated paradigm combining EEG frequency tagging and apparent biological motion (Cracco et al., 2023), the perception of biological motion was contrasted with the perception of individual body postures.</p></div><div><h3>Outcomes and conclusions</h3><p>Children with DCD did not show reduced sensitivity to apparent biological motion compared with typically developing children. However, the DCD group did show a reduced brain response to repetitive visual stimuli, suggesting altered predictive processing in the perceptual domain in this group. Suggestions for further research on biological motion perception in DCD are identified.</p></div>","PeriodicalId":51351,"journal":{"name":"Research in Developmental Disabilities","volume":"153 ","pages":"Article 104810"},"PeriodicalIF":2.9,"publicationDate":"2024-08-06","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141903568","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Prevalence of developmental dyslexia among primary school children in Arab countries: a systematic review and meta-analysis","authors":"Ali Fahad Aldakhil","doi":"10.1016/j.ridd.2024.104812","DOIUrl":"10.1016/j.ridd.2024.104812","url":null,"abstract":"<div><h3>Background</h3><p>Dyslexia is one of the most common learning disabilities. It poses challenges in reading skills development and can have a lasting impact in other areas of learning.</p></div><div><h3>Aims</h3><p>To investigate the prevalence of developmental dyslexia among primary school children aged 6–13 in Arab countries, and to explore associations with gender and residency.</p></div><div><h3>Method</h3><p>Following the Strengthening the Reporting of Observational Studies in Epidemiology (STROBE) guidelines, we included studies up to December 2023 that were found in English and Arabic research database searches. Random-effects proportional meta-analyses determined the prevalence of dyslexia in Arab countries, with a direct comparison between girls and boys using odds ratios.</p></div><div><h3>Results</h3><p>The meta-analysis included 18 studies with 30,243 participants: eight studies (44 %) from Egypt, four (22 %) from Saudi Arabia, and six (34 %) from other Arab countries. The pooled prevalence of dyslexia for children aged 6–13 in these studies was 11 %. The odds ratio for girls vs. boys was 0.85 (95 %). Geographical variations were notable, with eight studies (44 %) from Asia and ten (56 %) from Africa. Eight studies (44 %) were from the Gulf region, while ten (56 %) were from non-Gulf region. Prevalence of dyslexia was significantly higher in Arab countries in Asia (24 %) than in Africa (12 %), and the prevalence in non-Gulf countries was 13 % which was nearly half in comparison to Gulf countries (24 %).</p></div><div><h3>Conclusions</h3><p>The prevalence rates of dyslexia in primary school children varies across the Arab world, with higher rates among boys, Arab countries in Asia, and Gulf countries. Further research is needed to include both genders and standardized diagnostics across more Arab countries to understand and address dyslexia effectively.</p></div>","PeriodicalId":51351,"journal":{"name":"Research in Developmental Disabilities","volume":"152 ","pages":"Article 104812"},"PeriodicalIF":2.9,"publicationDate":"2024-07-29","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141857061","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Sleep quality and daytime sleepiness amongst family caregivers of children with Spinal Muscular Atrophy","authors":"Numan Bulut ,&nbsp;Güllü Aydın Yağcıoğlu ,&nbsp;Fatma Uğur ,&nbsp;Özlem Yayıcı Köken ,&nbsp;İpek Gürbüz ,&nbsp;Öznur Yılmaz ,&nbsp;Haluk Topaloğlu ,&nbsp;Ayşe Karaduman","doi":"10.1016/j.ridd.2024.104811","DOIUrl":"10.1016/j.ridd.2024.104811","url":null,"abstract":"<div><h3>Background</h3><p>While there are limited studies focusing on sleep quality of family caregivers of children with Spinal Muscular Atrophy (SMA), there are no studies on daytime sleepiness in SMA.</p></div><div><h3>Aims</h3><p>This study aimed a) to compare the sleep quality and daytime sleepiness between caregivers of children with SMA and those of healthy peers and b) to investigate the sleep quality and daytime sleepiness of family caregivers of children with different types of SMA.</p></div><div><h3>Methods and procedures</h3><p>This study included 30 family caregivers of children with SMA (SMA Type 1:12, SMA Type 2:10, and SMA Type 3:8) and 31 family caregivers of healthy peers. Sleep quality and daytime sleepiness of family caregivers were evaluated using the Pittsburg Sleep Quality Index (PSQI) and the Epworth Sleepiness Scale (EPS), consecutively.</p></div><div><h3>Outcomes and results</h3><p>Demographic characteristics of children with SMA and healthy peers were similar (p &gt; 0.05). The mean ages of family caregivers of children with SMA and healthy peers were 36.07 ± 5.84 and 35.26 ± 5.02 years, respectively (p = 0.6). The PSQI scores of family caregivers of children with SMA (7.50 ± 3.90 points) were lower than those of healthy peers (4.09 ± 1.97 points) (p &lt; 0.001). There was no difference in PSQI scores between SMA types (p = 0.8). Also, no difference was found between SMA types and between SMA and healthy peers in terms of EPS (p &gt; 0.05).</p></div><div><h3>Conclusions and implications</h3><p>Family caregivers of children with SMA had poor sleep quality but similar daytime sleepiness compared with those of healthy peers. Among SMA types, family caregivers had similar sleep quality and daytime sleepiness. It was demonstrated that the sleep quality of family caregivers should be taken into consideration in the disease management of SMA.</p></div>","PeriodicalId":51351,"journal":{"name":"Research in Developmental Disabilities","volume":"152 ","pages":"Article 104811"},"PeriodicalIF":2.9,"publicationDate":"2024-07-26","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141767935","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Using network analysis to identify factors influencing the heath-related quality of life of parents caring for an autistic child","authors":"Daniel Shepherd ,&nbsp;Khan Buchwald ,&nbsp;Richard J. Siegert ,&nbsp;Matthieu Vignes","doi":"10.1016/j.ridd.2024.104808","DOIUrl":"10.1016/j.ridd.2024.104808","url":null,"abstract":"<div><h3>Background</h3><p>Raising an autistic child is associated with increased parenting stress relative to raising typically developing children. Increased parenting stress is associated with lower parent wellbeing, which in turn can negatively impact child wellbeing.</p></div><div><h3>Aims</h3><p>The current study sought to quantify parenting stress and parent health-related quality of life (HRQOL) in the autism context, and further understand the relationship between them by employing a relatively novel statistical method, Network Analysis.</p></div><div><h3>Methods and Procedures</h3><p>This cross-sectional study involved 476 parents of an autistic child. Parents completed an online survey requesting information on parent and child characteristics, parent’s perceptions of their autistic child’s symptoms and problem behaviours, and assessed their parenting stress and HRQOL.</p></div><div><h3>Outcomes and Results</h3><p>Relative to normative data, parent HRQOL was significantly lower in terms of physical health and mental wellbeing. The structure extracted by the Network Analysis indicated that child age and externalising behaviours were the main contributors to parenting stress, and that externalising behaviours, ASD core behavioural symptoms, and parenting stress predicted HRQOL.</p></div><div><h3>Conclusions and Implications</h3><p>Parental responses to child-related factors likely determine parent HRQOL. Findings are discussed in relation to the transactional model, emphasising the importance of both parent and child wellbeing.</p></div>","PeriodicalId":51351,"journal":{"name":"Research in Developmental Disabilities","volume":"152 ","pages":"Article 104808"},"PeriodicalIF":2.9,"publicationDate":"2024-07-26","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S0891422224001409/pdfft?md5=50d150226adc4f8d929adfb623036e79&pid=1-s2.0-S0891422224001409-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141789830","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}