Alecia Mercier , Jessica Koslouski , Sandra Chafouleas , Sophie Hall , Caroline G. Richter
{"title":"Defining and measuring emotional well-being in intellectual and developmental disabilities: A scoping review","authors":"Alecia Mercier , Jessica Koslouski , Sandra Chafouleas , Sophie Hall , Caroline G. Richter","doi":"10.1016/j.ridd.2025.105115","DOIUrl":"10.1016/j.ridd.2025.105115","url":null,"abstract":"<div><h3>Objective</h3><div>This review aimed to compile and report on existing emotional well-being (EWB) subjective report measures that have been developed, adapted, or validated on individuals with intellectual and developmental disabilities (IDD).</div></div><div><h3>Method</h3><div>Following PRISMA guidelines, this review searched three databases using search terms related to EWB, IDD, and measurement. Two independent reviewers screened titles and abstracts, then reviewed the full texts to include articles that used an EWB-related measure, had an IDD sample, and reported psychometric evidence (% agreement = 97.41, <em>k</em> = 91.92). For each included article, two coders extracted data, and an item analysis was performed to identify EWB and non-EWB items included in each located measure.</div></div><div><h3>Results</h3><div>This review identified 33 articles and 20 subjective report measures that were developed, adapted, or validated for individuals with IDD. Most existing measures focus on quality of life rather than treating EWB as a distinct, stand-alone construct, and include only a few EWB items. The included measures were mostly validated on adults and older adults with mild to moderate ID and show varying psychometric evidence across and within measures.</div></div><div><h3>Conclusions</h3><div>This review clarifies the current state of EWB measurement in individuals with IDD and provides an organized summary of existing EWB measures. These findings can guide the continued development of EWB research in the IDD population by identifying knowledge gaps and pointing to future directions. Findings also help inform the selection of subjective report measures for assessing EWB in individuals with IDD.</div></div>","PeriodicalId":51351,"journal":{"name":"Research in Developmental Disabilities","volume":"166 ","pages":"Article 105115"},"PeriodicalIF":2.6,"publicationDate":"2025-10-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145222987","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Can video prompting be used to teach employment skills to older adults with moderate to moderate-severe intellectual developmental disabilities?","authors":"Tanweer Milhem-Midlej , Sarit F.A. Szpiro","doi":"10.1016/j.ridd.2025.105112","DOIUrl":"10.1016/j.ridd.2025.105112","url":null,"abstract":"<div><h3>Background</h3><div>Being employed gives people with intellectual developmental disabilities (IDDs) a daily routine and helps them develop a range of physical, cognitive, and social skills, along with a sense of independence, but many have difficulty integrating into the work force. Assistive technologies may support employment but research on their efficacy is scarce. The study examined the impact of using video prompting on the ability of older adults with IDD to learn two new employment-related tasks.</div></div><div><h3>Method</h3><div>In this single-subject study design, we examined six adult participants (over age 50) with IDD, asking whether viewing video prompts on a tablet could help them learn novel work-related duties. We compared the completion of steps in these work tasks before the intervention, during the intervention (with prompts), and after the intervention (with no prompts).</div></div><div><h3>Results</h3><div>All participants showed the ability to learn. Accuracy in follow-up was better than in the baseline sessions, albeit with some variability: three performed the tasks correctly in follow-up when they were not given prompts, but the accuracy of the remaining three participants dropped, suggesting the utility of longer interventions.</div></div><div><h3>Conclusions</h3><div>Video prompts may promote active aging and independence in older adults with IDD by teaching new work skills.</div></div>","PeriodicalId":51351,"journal":{"name":"Research in Developmental Disabilities","volume":"166 ","pages":"Article 105112"},"PeriodicalIF":2.6,"publicationDate":"2025-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145214137","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Enhancing quality of life for individuals with disabilities in Saudi Arabia: Teachers’ perspectives on the role of leadership in inclusive education","authors":"Abdulmalik Alkhunini , Ibraheem M. Alsawalem","doi":"10.1016/j.ridd.2025.105114","DOIUrl":"10.1016/j.ridd.2025.105114","url":null,"abstract":"<div><h3>Background</h3><div>Inclusive education is pivotal to enhancing the quality of life of individuals with disabilities by ensuring equal access to educational opportunities, fostering social inclusion, and providing necessary support and resources. Successful implementation depends on a range of systemic factors, such as policy, resources, teacher training, and leadership.</div></div><div><h3>Aims</h3><div>The goals of the study were to obtain insights from elementary school teachers on the role of school leaders in implementing IE and to identify the challenges these teachers identify to successful IE implementation.</div></div><div><h3>Methods and procedure</h3><div>Data were gathered through semi-structured interviews with teachers recruited from three public primary schools. These data were supplemented by field notes and document analysis.</div></div><div><h3>Results and outcomes</h3><div>Analysis of the data identified several themes: school leaders have limited knowledge and understanding of those with disabilities, administrators lack adequate professional development and training on IE, lack of emphasis on collaboration between special and general education teachers, lack of transparency regarding how teachers are chosen for assignment to inclusive classrooms, and limited or no use of the official materials developed and provided by the Ministry of Education to implement inclusion.</div></div><div><h3>Conclusions and implications</h3><div>Certain steps should be taken to improve the implementation of IE in Saudi Arabia, including professional development on IE for administrators, greater collaboration on IE across school staff, and greater emphasis on the official IE manuals to ensure consistent and effective implementation of inclusion throughout the Saudi educational system.</div></div>","PeriodicalId":51351,"journal":{"name":"Research in Developmental Disabilities","volume":"166 ","pages":"Article 105114"},"PeriodicalIF":2.6,"publicationDate":"2025-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145214097","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Beliefs of teachers who are blind related to the use of artificial intelligence (AI) in Jordan","authors":"Eman Al-Zboon","doi":"10.1016/j.ridd.2025.105113","DOIUrl":"10.1016/j.ridd.2025.105113","url":null,"abstract":"<div><div>This qualitative study employed Interpretative Phenomenological Analysis (IPA) to explore the beliefs and lived experiences of teachers who are blind (TWB) in Jordan regarding the use of artificial intelligence (AI) in education. Data were collected through semi-structured interviews with 14 TWB and a focus group with 8 additional teachers, recruited via snowball and purposive sampling. Findings reveal that TWB actively use various AI applications, including Siri, ChatGPT, currency and image readers, screen readers, and AI-powered search engines like Google and YouTube. Key domains of AI use include daily life, environmental recognition, education, and communication, while mobility, entertainment, and teaching were less common. The study identifies multiple factors shaping AI use, such as personal characteristics, environmental and technological contexts, and socio-cultural influences. Participants reported significant barriers, including limited training, financial constraints, accessibility challenges, and misconceptions about AI. TWB offered practical suggestions to enhance AI adoption in their professional and personal lives. The study concludes with recommendations for policy, practice, and future research to better support AI integration for TWB.</div></div>","PeriodicalId":51351,"journal":{"name":"Research in Developmental Disabilities","volume":"166 ","pages":"Article 105113"},"PeriodicalIF":2.6,"publicationDate":"2025-09-30","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145183878","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Zhuolei Ding , Chuansheng Chen , Hongxia Wang , Yanjie Wang , Shudong Zhang , Mingxia Zhang
{"title":"Active control enhances memory less in children with learning disabilities compared to their typically developing peers","authors":"Zhuolei Ding , Chuansheng Chen , Hongxia Wang , Yanjie Wang , Shudong Zhang , Mingxia Zhang","doi":"10.1016/j.ridd.2025.105111","DOIUrl":"10.1016/j.ridd.2025.105111","url":null,"abstract":"<div><h3>Background</h3><div>Active control over study, which helps to optimize memory performance, has been widely observed in adults. Recently, it has been revealed that this effect develops with age in typically developing (TD) children. However, no prior studies have directly compared active control effects between children with learning disabilities (LD) and their TD peers. This study is the first to examine how these effects manifest in both groups using the rigorous experimental paradigm.</div></div><div><h3>Methods</h3><div>In this study, an active learning paradigm was adopted in which TD (<em>N</em> = 51, 28 female/ 23 male, 8–11 years, <em>M</em> = 116.52 months, <em>SD</em> = 9.60 months) and LD children (<em>N</em> = 48, 27 female/ 21 male, 8–11 years, <em>M</em> = 116.52 months, <em>SD</em> = 10.68 months) studied objects under two conditions: an active condition, where children decided the order and pacing of study, and a passive condition, where they followed a predetermined study sequence.</div></div><div><h3>Results</h3><div>It was found that active control effect increased with age in both groups. However, children with LD showed a smaller and later enhancement effect compared to their TD peers.</div></div><div><h3>Conclusion</h3><div>Children with LD experienced a smaller overall enhancement from active control, and the effect emerged later compared to their TD peers. These findings provide the first developmental evidence of differences in the benefits of active control between LD and TD children. Corresponding educational practices should be tailored to children with LD.</div></div>","PeriodicalId":51351,"journal":{"name":"Research in Developmental Disabilities","volume":"165 ","pages":"Article 105111"},"PeriodicalIF":2.6,"publicationDate":"2025-09-25","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145158097","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"An exploratory study on autistic socialization in VRChat’s social virtual environments","authors":"Vivian Darlene Grillo , Paola Venuti","doi":"10.1016/j.ridd.2025.105105","DOIUrl":"10.1016/j.ridd.2025.105105","url":null,"abstract":"<div><h3>Scope</h3><div>This qualitative exploratory study examines if and how autistic individuals navigate social virtual environments, with a focus on VRChat, a leading platform. The research aims to understand VRChat's impact on autistic users' well-being, social connectedness, and overall quality of life. Given the ongoing reconceptualization of autism, this study explores the intersection of digital and virtual technology and autistic socialization.</div></div><div><h3>Methods</h3><div>Reflexive Thematic Analysis was employed to analyze self-generated content from autistic individuals on YouTube and Reddit. A PRISMA-adapted data selection framework was utilized to systematically identify and collect publicly available content. The final dataset consisted of 30 user-generated pieces, including videos, comments, and discussions, totaling over 450 min of audiovisual material and 1500 textual messages. Data were anonymized and thematically analyzed by multiple researchers through an iterative, inductive process, ensuring the inclusion of diverse autistic perspectives. In addition, a top-down perspective to the initial inductive analysis, thanks to theoretical triangulation, ensured a comprehensive interpretation of the data.</div></div><div><h3>Results</h3><div>This paper primarily focuses on three themes (Scope of Use – Diverse Applications of VRChat; Autistic Life Experience; Overall Perceptions of VRChat) and their corresponding subthemes related to autistic users’ experiences. Findings indicate that VRChat functions as a \"virtual third place,\" offering autistic individuals a unique space for social engagement, self-expression, awareness-raising, and community building.</div><div>The platform provides a safer environment where autistic users can share personal experiences, navigate social challenges, and explore their identities in ways that may be less or not accessible in offline settings.</div></div><div><h3>Discussion</h3><div>VRChat appears to facilitate 'Autistic Socialization' by accommodating diverse communication styles and fostering a sense of belonging. Its affordances and features enable autistic users to interact in ways that support their social, sensory, and emotional well-being. Additionally, the findings suggest that VRChat serves as a platform for voicing and addressing 'Autistic Suffering,' including the socio-cultural challenges associated with neurodivergence. These insights contribute to discussions on the Double Empathy Problem and highlight the potential of virtual spaces in promoting neurodivergent social inclusion both online and offline.</div></div><div><h3>Conclusions</h3><div>Digital and virtual environments play a crucial role in supporting autistic self-narration, social connectedness, and well-being. Given the context-dependent nature of human interactions, further research is needed to explore how technology mediated communication can inform inclusive social practices in real-life settings. Future studies sho","PeriodicalId":51351,"journal":{"name":"Research in Developmental Disabilities","volume":"165 ","pages":"Article 105105"},"PeriodicalIF":2.6,"publicationDate":"2025-09-22","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145118437","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Romana Snozzi , Christoph M. Müller , Carmen L.A. Zurbriggen
{"title":"Disparities in the school placement trajectories of students with intellectual disabilities","authors":"Romana Snozzi , Christoph M. Müller , Carmen L.A. Zurbriggen","doi":"10.1016/j.ridd.2025.105110","DOIUrl":"10.1016/j.ridd.2025.105110","url":null,"abstract":"<div><h3>Background and objectives</h3><div>Students with intellectual disabilities (ID) often require extensive support. They are more frequently placed in separate settings, such as special schools, than students with other special educational needs (SEN). Although school placements are intended to meet individual needs, they may also contribute to educational disparities. This study examines the placement trajectories of students with ID.</div></div><div><h3>Methods</h3><div>We analysed longitudinal data from 3227 students who received intensive SEN support in at least one school year by tracking their placements over 11 years. 18 % had an administrative ID label reflecting the student’s primary educational support need. Using multinomial logistic regressions, we compared school placements and the number of placement transfers between students with and without the ID label. Sex and first language were included to assess for additional disparities.</div></div><div><h3>Results</h3><div>Students with the ID label were more likely to attend separate settings than those with other types of SEN, a trend that increased with age. Male students and those for whom German was their first language were more often schooled in separate settings. Male students also had higher odds of placement transfers.</div></div><div><h3>Conclusions</h3><div>This study highlights differences in school placement trajectories between students with the ID label and those with other types of SEN. Future research should explore the factors that influence placement decisions, including environmental and student characteristics.</div></div>","PeriodicalId":51351,"journal":{"name":"Research in Developmental Disabilities","volume":"165 ","pages":"Article 105110"},"PeriodicalIF":2.6,"publicationDate":"2025-09-20","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145105470","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Paulina S. Arango , Camila Sabat , Fernanda Gatica
{"title":"Parental attitudes and practices in families with siblings with and without intellectual disability: Influences of sociodemographic and child-related factors","authors":"Paulina S. Arango , Camila Sabat , Fernanda Gatica","doi":"10.1016/j.ridd.2025.105107","DOIUrl":"10.1016/j.ridd.2025.105107","url":null,"abstract":"<div><h3>Background</h3><div>Parenting styles and attitudes are a relevant factor of a child’s developmental environment. When parents raise both a child with an intellectual disability and a typically developing (TD) sibling, their approaches may differ due to factors related to the child, family, and social context. This study explored whether parenting styles and attitudes are consistent across children and examined whether sociodemographic and child-related factors explain variations in parenting behaviors.</div></div><div><h3>Method</h3><div>Ninety-five parents with one child diagnosed with intellectual disability (according to DSM-5 criteria) and a TD sibling, participated. Data analyses included t-tests, ANOVAs, and mixed-design ANOVAs to compare parenting styles and attitudes across siblings while controlling for sociodemographic factors.</div></div><div><h3>Results</h3><div>Parents reported more authoritative and less permissive parenting, and greater satisfaction and autonomy promotion with their TD child compared to their child with intellectual disability. More positive parenting attitudes and less permissiveness were observed when the etiology of intellectual disability was Down syndrome, which extended to their sibling. Attending regular schools (vs. special education) was associated with less permissive parenting. Higher SES was related to greater promotion of autonomy and, for the TD child, to more parenting satisfaction and less permissiveness.</div></div><div><h3>Conclusions</h3><div>The study provides evidence of both consistency and variation in parenting practices within families. Differences in parental attitudes and behaviors appear to be shaped not only by individual child characteristics but also by environmental factors such as school context and SES. These results suggest that parents adapt their parenting styles and attitudes between siblings, which is influenced by sociodemographic and child-related factors.</div></div>","PeriodicalId":51351,"journal":{"name":"Research in Developmental Disabilities","volume":"165 ","pages":"Article 105107"},"PeriodicalIF":2.6,"publicationDate":"2025-09-18","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145093001","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Evaluating a specialized autism spectrum disorder clinic in Qatar: A multidisciplinary model for comprehensive assessment and diagnosis","authors":"Yasser Saeed Khan , Yahia Albobali , Abdullah Amro , Prerana Saini , Lina Nour , Prem Chandra , May Jasim Almeraisi , Majid Alabdulla","doi":"10.1016/j.ridd.2025.105109","DOIUrl":"10.1016/j.ridd.2025.105109","url":null,"abstract":"<div><div>An accurate diagnosis of autism spectrum disorder (ASD) can be complex due to the high degree of phenotypical variation and the necessity to integrate information from multiple assessments by various professionals. This paper examines the implementation and effectiveness of a specialized Autism ASD Assessment Clinic within the Child and Adolescent Mental Health Service (CAMHS). The clinic addresses a critical service gap in the Middle East and North Africa (MENA) region by offering structured, comprehensive evaluations for ASD using a multidisciplinary team (MDT) model, aiming to provide comprehensive and standardized assessments for children and adolescents aged 6–17 years suspected of having ASD. The methodology involved obtaining feedback from parents/caregivers through a Likert-scale questionnaire following the completion of the assessment for children and adolescents referred to the clinic between January 2022 and December 2024. Out of 48 families who attended the appointments and completed the assessment, 27 parents/caregivers completed the feedback. High satisfaction rates with the assessment's thoroughness, professionalism of the MDT, and clarity of feedback were observed. A statistically significant inverse correlation was found between a child's age and parental satisfaction with assessment thoroughness and clarity of feedback, suggesting higher satisfaction among parents of younger children. The findings highlight the clinic's effectiveness in delivering quality care, improving early support for diagnosed individuals, and providing enhanced experience to families.</div></div>","PeriodicalId":51351,"journal":{"name":"Research in Developmental Disabilities","volume":"165 ","pages":"Article 105109"},"PeriodicalIF":2.6,"publicationDate":"2025-09-18","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145092945","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Jacinta Molini Pennacchia , Greg Bonyhady , Shirley Wong , Chris Pacheco , Dave Coghill , Mats Granlund , Christine Imms
{"title":"Making qualitative research accessible to people who have communication disability","authors":"Jacinta Molini Pennacchia , Greg Bonyhady , Shirley Wong , Chris Pacheco , Dave Coghill , Mats Granlund , Christine Imms","doi":"10.1016/j.ridd.2025.105108","DOIUrl":"10.1016/j.ridd.2025.105108","url":null,"abstract":"<div><div>People with communication disability are often excluded from participating directly in research. This systematic exclusion from relevant research has a significant impact on the field’s knowledge and limits the development of effective evidence-based practices. The purpose of this descriptive methods paper is to equip researchers with knowledge required to address the needs of people with communication disability, increasing the likelihood of their rights-based inclusion in research. In this paper, we combine what has been learned from the literature with content derived from a study that is currently underway. Using images and transcript excerpts as examples, we will describe practical methods to action recommendations. Three pillars of communication accessible research are proposed—participatory attitudes, flexibility and responsivity, and consumer involvement—which will empower researchers to make their own projects more inclusive to people with communication disability.</div></div>","PeriodicalId":51351,"journal":{"name":"Research in Developmental Disabilities","volume":"165 ","pages":"Article 105108"},"PeriodicalIF":2.6,"publicationDate":"2025-09-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145087816","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}