Research in Developmental Disabilities最新文献

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Making memories: The gestural misinformation effect in children aged 11-16-years-old with intellectual/developmental difficulties. 制造记忆:11-16 岁智力/发育障碍儿童的手势错误信息效应。
IF 2.9 2区 医学
Research in Developmental Disabilities Pub Date : 2024-09-19 DOI: 10.1016/j.ridd.2024.104828
{"title":"Making memories: The gestural misinformation effect in children aged 11-16-years-old with intellectual/developmental difficulties.","authors":"","doi":"10.1016/j.ridd.2024.104828","DOIUrl":"10.1016/j.ridd.2024.104828","url":null,"abstract":"<div><h3>Background</h3><p>In 2016, global records documented around 1 billion child abuse cases, with higher rates among children with Intellectual and Developmental Disabilities (IDD), and most recorded offenses not proceeding to court. Accurate eyewitness testimony is vital for the justice system. Yet, while children with IDD are known to be influenced by verbal misinformation, the effect of gestures on their testimony is still unknown.</p></div><div><h3>Aims</h3><p>The present study assessed the extent to which gesture can mislead children with IDD, alongside comparisons to prior research in typically developing (TD) children.</p></div><div><h3>Method</h3><p>A sample of children with moderate IDD aged 11–16 years (n = 21, <em>M</em>=12.95 years) were recruited from a UK school, and compared to TD 5–6-year-olds (n = 31, <em>M</em>=5.77 years) and 7–8-year-olds (<em>n</em> = 32, <em>M</em>=7.66 years) from previous published research. After watching a video participants underwent an interview containing 12 questions, some of which contained suggestive gestures.</p></div><div><h3>Outcomes and Implications</h3><p>Results demonstrated that in children with IDD, gesture observation significantly influenced responses given, with 18 of 21 children being misled at least once. Comparisons to TD children indicated no difference in suggestibility. This study is the first to examine how leading gestural information affects children with IDD, broadening previous research to a more representative sample for the justice system. Discussion centres on implications for police interview guidelines.</p></div>","PeriodicalId":51351,"journal":{"name":"Research in Developmental Disabilities","volume":null,"pages":null},"PeriodicalIF":2.9,"publicationDate":"2024-09-19","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S0891422224001604/pdfft?md5=eef4fabf3030855df5cb47877244b0d9&pid=1-s2.0-S0891422224001604-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142239915","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
EEG activation in preschool children: Characteristics and predictive value for current and future mental health status 学龄前儿童的脑电图激活:特征及对当前和未来心理健康状况的预测价值
IF 2.9 2区 医学
Research in Developmental Disabilities Pub Date : 2024-09-16 DOI: 10.1016/j.ridd.2024.104840
{"title":"EEG activation in preschool children: Characteristics and predictive value for current and future mental health status","authors":"","doi":"10.1016/j.ridd.2024.104840","DOIUrl":"10.1016/j.ridd.2024.104840","url":null,"abstract":"<div><h3>Background</h3><p>Previous research has characterised EEG changes associated with resting activation in primary school children and adults, while task-related activation has only been considered in adults. The current study characterises physiological activation in preschool children and examines the potential value of activation indices for predicting mental health status at two time points.</p></div><div><h3>Aims</h3><p>To investigate how resting activation and task-related activation are represented in 4- to 5-year-old preschool children and examine if these activation indices can predict current and future mental health status.</p></div><div><h3>Methods and procedures</h3><p>Frontal EEG was recorded from 81 preschool children during eyes-closed resting, eyes-open resting, and an inhibitory control task to allow calculation of activation indices. The Child Behaviour Checklist was completed by the child’s parent at this time, and again 6–8 months later after the child’s transition to kindergarten.</p></div><div><h3>Outcomes and results</h3><p>Resting activation was represented by reductions in frontal delta, theta, and alpha power in the eyes-open compared to eyes-closed condition, and an increase in frontal beta power. Task-related activation was represented by increases in frontal delta, theta, and alpha power and a decrease in beta power. Frontal delta and theta task-related activation significantly predicted externalising behaviours in both preschool and kindergarten, with stronger prediction in kindergarten.</p></div><div><h3>Conclusions and implications</h3><p>This study characterised resting and task-related activation in preschool children, and reported similar effects to those found in older children and adults for resting activation, with novel effects for task-related activation. As task-related activation indices were predictive of externalising behaviours in both preschool and kindergarten, these results have implications for early identification of children who experience externalising behavioural problems across the transition to school period.</p></div><div><h3>What does this study add?</h3><p>This study provides new data on how the fundamental physiological processes of resting and task-related activation, both of which are theorised to contribute to “upstream” processes such as executive functions and broader behaviour, are represented in the frontal EEG of preschool aged children. We also learn that the top-down task-related activation indices for delta and theta activity were predictive of current mental health status and future status after the transition to kindergarten, while the bottom-up resting activation indices were not.</p></div>","PeriodicalId":51351,"journal":{"name":"Research in Developmental Disabilities","volume":null,"pages":null},"PeriodicalIF":2.9,"publicationDate":"2024-09-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S0891422224001720/pdfft?md5=5ae8f365c00f9716a118530ed2e29ad3&pid=1-s2.0-S0891422224001720-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142239916","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
The effect of dual-task training on postural and cognitive performances in adolescents with down syndrome 双任务训练对唐氏综合征青少年姿势和认知能力的影响
IF 2.9 2区 医学
Research in Developmental Disabilities Pub Date : 2024-08-30 DOI: 10.1016/j.ridd.2024.104827
{"title":"The effect of dual-task training on postural and cognitive performances in adolescents with down syndrome","authors":"","doi":"10.1016/j.ridd.2024.104827","DOIUrl":"10.1016/j.ridd.2024.104827","url":null,"abstract":"<div><h3>Background</h3><p>The dual task training (DTT) has been shown to improve postural and cognitive performances in many populations. Therefore, it seems of interest to explore the effect of such training modality in individuals with Down syndrome (DS) presenting both cognitive and postural deficits.</p></div><div><h3>Aims</h3><p>This study explored the effect of a DTT compared to a single task training (STT) on postural and cognitive performances in adolescents with DS.</p></div><div><h3>Methods and procedures</h3><p>The center of pressure velocity (CoP<sub>Vm</sub>) and the cognitive performance in the selective word recall test were recorded under single task (ST) and DT conditions before and after 8 weeks in the STT group (STTG), the DTTG and the control group (CG).</p></div><div><h3>Outcomes and results</h3><p>Before training, CoP<sub>Vm</sub> values increased and cognitive performances decreased (p &lt; 0.001) during the DT compared to ST conditions in all groups. After training, CoP<sub>Vm</sub> decreased (p &lt; 0.001) in the DTTG and the STTG under the ST conditions. However, under DT conditions, these values decreased (p &lt; 0.001) only in the DTTG. The cognitive performance increased (p &lt; 0.001) only in the DTTG in both ST and DT conditions.</p></div><div><h3>Conclusion</h3><p>The DTT is strongly recommended to improve both postural and cognitive performances in individuals with DS notably in DT conditions.</p></div>","PeriodicalId":51351,"journal":{"name":"Research in Developmental Disabilities","volume":null,"pages":null},"PeriodicalIF":2.9,"publicationDate":"2024-08-30","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142097931","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Editorial: Advancing understanding and care for individuals with developmental disabilities in the Middle East 社论:增进对中东发育障碍人士的了解和关爱
IF 2.9 2区 医学
Research in Developmental Disabilities Pub Date : 2024-08-22 DOI: 10.1016/j.ridd.2024.104816
{"title":"Editorial: Advancing understanding and care for individuals with developmental disabilities in the Middle East","authors":"","doi":"10.1016/j.ridd.2024.104816","DOIUrl":"10.1016/j.ridd.2024.104816","url":null,"abstract":"","PeriodicalId":51351,"journal":{"name":"Research in Developmental Disabilities","volume":null,"pages":null},"PeriodicalIF":2.9,"publicationDate":"2024-08-22","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142040289","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Challenging behaviour, the application of restrictive measures and psychotropic drug prescription in people with intellectual disabilities 智障人士的挑战行为、限制性措施的应用和精神药物处方
IF 2.9 2区 医学
Research in Developmental Disabilities Pub Date : 2024-08-22 DOI: 10.1016/j.ridd.2024.104824
{"title":"Challenging behaviour, the application of restrictive measures and psychotropic drug prescription in people with intellectual disabilities","authors":"","doi":"10.1016/j.ridd.2024.104824","DOIUrl":"10.1016/j.ridd.2024.104824","url":null,"abstract":"<div><h3>Background</h3><p>Prescribing of psychotropic drugs (PDs) and applying restrictive measures are both frequently used in managing challenging behaviour of people with intellectual disabilities (ID), which is not always according to guidelines or good clinical practice.</p></div><div><h3>Aims</h3><p>This study aimed to investigate the potential triangular relationship between challenging behaviour, the application of restrictive measures and PD prescription.</p></div><div><h3>Methods and procedures</h3><p>In this cross-sectional study, data on challenging behaviour, PD prescription and restrictive measures were collected. We defined and compared four mutually exclusive groups of participants.</p></div><div><h3>Outcomes and results</h3><p>Challenging behaviour in the group in whom one or more PD were prescribed as a restrictive measures (PDRM) was more severe than in the other three groups. More severe challenging behaviour, a higher number of antipsychotics, antidepressants and anxiolytics/hypnotics prescriptions, a lower dosage, and more application of domotics as restrictive measure was shown in the PDRM compared to the group in whom PDs were prescribed according to guidelines (PDNRM).</p></div><div><h3>Conclusions and implications</h3><p>We did not find indications for a triangular relationship of challenging behaviour, the application of restrictive measures and PD prescriptions. Future longitudinal research is needed to better understand this complex relationship and should investigate the indication and the effect of treatment.</p></div><div><h3>What this paper adds?</h3><p>This study is a first exploration of the potential triangular relationship between symptoms of challenging behaviour, psychotropic drug (PD) prescription, and the application of restrictive measures. Prescribing PDs and applying restrictive measures are two interventions which are commonly used to manage challenging behaviour in people with intellectual disabilities. Both have been subject of research separately in recent years. However, it is conceivable that the PD prescription in treatments for challenging behaviour could be a substitute for another form of a restrictive measure, for example a physical or mechanical restraint. For this purpose, we defined and compared four mutually exclusive groups of participants. We found no indication for this triangular relationship. On the other hand, we found the highest severity of challenging behaviour in the group who used PDs as restrictive measure next to other restrictive measures. Our results may suggest that both prescribing PDs and applying non-pharmacological restrictive measures are used simultaneously in managing challenging behaviour, are not sufficiently implemented or effective.</p></div>","PeriodicalId":51351,"journal":{"name":"Research in Developmental Disabilities","volume":null,"pages":null},"PeriodicalIF":2.9,"publicationDate":"2024-08-22","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142045078","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Psychological variables related to technology-mediated intervention design in autism spectrum disorder 与自闭症谱系障碍技术干预设计相关的心理变量。
IF 2.9 2区 医学
Research in Developmental Disabilities Pub Date : 2024-08-21 DOI: 10.1016/j.ridd.2024.104826
{"title":"Psychological variables related to technology-mediated intervention design in autism spectrum disorder","authors":"","doi":"10.1016/j.ridd.2024.104826","DOIUrl":"10.1016/j.ridd.2024.104826","url":null,"abstract":"<div><h3>Background</h3><p>Autism spectrum disorder (ASD) is a lifelong neurodevelopmental disorder characterized by persistent impairments in communication, social interaction and learning (<span><span>Hodges et al., 2020</span></span>). Because of its heterogeneous nature, ASD presents complex challenges, including social exclusion, school abandonment and limited access to health care. Technologies offer a pragmatic solution to overcome these limitations and to deliver therapeutic interventions in both physical and online environments. Studies have demonstrated that technology-mediated interventions (TMIs) have a positive impact on the development of capabilities of individuals with ASD. However, according to the European Parliament’s Research Service technologies for ASDs are less mature (European Parliament. Directorate General for Parliamentary Research Services., 2018) and the causes and effects of TMIs in ASD should be better understood.</p></div><div><h3>Aims</h3><p>Present study aimed to investigate the psychological variables related to TMIs in ASD.</p></div><div><h3>Methods and procedures</h3><p>The study employed a survey research method with a between-subjects design involving 61 adult participants comprising therapists, teachers and parents of children with ASD and it examined psychological variables related to children with ASD, factors of technology usage, and parental and educators’ experiences.</p></div><div><h3>Outcomes and results</h3><p>The analysis of the data obtained from the questionnaire focused on correlations and differences between groups, and was carried out using nonparametric tests. Kendall’s Tau B test was used to explore the relationships between variables. The Mann-Whitney nonparametric test was employed to identify differences between groups.</p></div><div><h3>Conclusions and implications</h3><p>The findings revealed numerous relationships between variables and meaningful differences between the groups investigated in terms of how technologies are perceived by stakeholders involved in ASD interventions.</p></div>","PeriodicalId":51351,"journal":{"name":"Research in Developmental Disabilities","volume":null,"pages":null},"PeriodicalIF":2.9,"publicationDate":"2024-08-21","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S0891422224001586/pdfft?md5=bd27bc5712c8feda62218c565660777e&pid=1-s2.0-S0891422224001586-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142037702","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
'Of course you crash' Parenting a young child with neurodevelopmental difficulties 你当然会撞车" 养育有神经发育障碍的幼儿
IF 2.9 2区 医学
Research in Developmental Disabilities Pub Date : 2024-08-21 DOI: 10.1016/j.ridd.2024.104825
{"title":"'Of course you crash' Parenting a young child with neurodevelopmental difficulties","authors":"","doi":"10.1016/j.ridd.2024.104825","DOIUrl":"10.1016/j.ridd.2024.104825","url":null,"abstract":"<div><h3>Background</h3><p>Parents of children with neurodevelopmental disorders often experience heightened levels of parenting stress and diminished well-being. However, less is known about the well-being of parents whose children exhibit symptoms of neurodevelopmental disorders without yet having a formal diagnosis.</p></div><div><h3>Aim</h3><p>This study aims to deepen our understanding of the need for support among families with young children with neurodevelopmental difficulties. Specifically, it explores parents’ perspectives concerning their children, life circumstances, and emotional experiences in parenting.</p></div><div><h3>Methods and procedures</h3><p>Qualitative semi-structured interviews were conducted with ten parents of children aged 2.5–5 years, referred to a child psychologist due to reported neurodevelopmental difficulties. The interviews were transcribed and analysed using qualitative content analysis.</p></div><div><h3>Outcomes and results</h3><p>Two themes, each containing four and three categories, respectively, emerged in the analysis: Parenting our child with neurodevelopmental difficulties is tough in so many ways and Prevent, manage and make up like a Pro.</p></div><div><h3>Conclusion and implications</h3><p>The parents express very similar challenges, difficulties and problems as parents of children with diagnosed neurodevelopmental disorders. The main difference lies in the lack of accessible support or help for these parents.</p></div><div><h3>What this paper adds</h3><p>This study provides insights into how parents of children with suspected neurodevelopmental difficulties perceive their child and their overall life circumstances. The narratives show the challenges these parents face due to their children's multifaceted difficulties, leading to a need for multi-disciplinary support from professionals. The narratives also illustrate the strong emotions that arise in parenting, which in itself indicates a need for support. The study also provides further support for the importance of parents connecting with others facing similar life circumstances. The families often feel isolated despite the need for increased informal support in terms of more adults being involved with the children.</p></div>","PeriodicalId":51351,"journal":{"name":"Research in Developmental Disabilities","volume":null,"pages":null},"PeriodicalIF":2.9,"publicationDate":"2024-08-21","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S0891422224001574/pdfft?md5=3deaf338c4760e4758f6ba9677024435&pid=1-s2.0-S0891422224001574-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142011964","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Proprioceptive intervention improves reading performance in developmental dyslexia: An eye-tracking study 通过感觉干预提高发育性阅读障碍患者的阅读能力:眼动追踪研究
IF 2.9 2区 医学
Research in Developmental Disabilities Pub Date : 2024-08-19 DOI: 10.1016/j.ridd.2024.104813
{"title":"Proprioceptive intervention improves reading performance in developmental dyslexia: An eye-tracking study","authors":"","doi":"10.1016/j.ridd.2024.104813","DOIUrl":"10.1016/j.ridd.2024.104813","url":null,"abstract":"<div><p>Developmental dyslexia is characterized by difficulties in learning to read, affecting cognition and causing failure at school. Interventions for children with developmental dyslexia have focused on improving linguistic capabilities (phonics, orthographic and morphological instructions), but developmental dyslexia is accompanied by a wide variety of sensorimotor impairments. The goal of this study was to examine the effects of a proprioceptive intervention on reading performance and eye movement in children with developmental dyslexia. Nineteen children diagnosed with developmental dyslexia were randomly assigned to a regular Speech Therapy (ST) or to a Proprioceptive and Speech Intervention (PSI), in which they received both the usual speech therapy and a proprioceptive intervention aimed to correct their sensorimotor impairments (prism glasses, oral neurostimulation, insoles and breathing instructions). Silent reading performance and eye movements were measured pre- and post-intervention (after nine months). In the PSI group, reading performance improved and eye movements were smoother and faster, reaching values similar to those of children with typical reading performance. The recognition of written words also improved, indicating better lexical access. These results show that PSI might constitute a valuable tool for reading improvement children with developmental dyslexia.</p></div>","PeriodicalId":51351,"journal":{"name":"Research in Developmental Disabilities","volume":null,"pages":null},"PeriodicalIF":2.9,"publicationDate":"2024-08-19","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142006687","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Subjective well-being and social inclusion at school for students with a disability, according to their parents, in France 法国残疾学生在学校的主观幸福感和社会融入(根据其家长提供的信息)。
IF 2.9 2区 医学
Research in Developmental Disabilities Pub Date : 2024-08-14 DOI: 10.1016/j.ridd.2024.104814
{"title":"Subjective well-being and social inclusion at school for students with a disability, according to their parents, in France","authors":"","doi":"10.1016/j.ridd.2024.104814","DOIUrl":"10.1016/j.ridd.2024.104814","url":null,"abstract":"<div><h3>Background</h3><p>Providing inclusive, quality education for all children is one of the United Nations' sustainable development goals for 2030.</p></div><div><h3>Aims</h3><p>The aim of this study, carried out in France among 491 parents of children with a disability aged 3 to 18 and enrolled in ordinary schools, is to measure the well-being and social inclusion of children and to identify the factors that promote well-being and social inclusion at school.</p></div><div><h3>Methods and procedures</h3><p>The parents fill in various questionnaires relating to the well-being and social inclusion of their child, the quality of their relationship with the teacher and their satisfaction with the accommodations offered at school. They also provide information about their child and their socio-economic situation.</p></div><div><h3>Outcomes and results</h3><p>Regression analyses show that well-being and social inclusion depend on the nature of the child’s disability and decrease with age but do not significantly depend on child’s gender and academic level or social background. Furthermore, well-being and social inclusion can be significantly improved when the quality of the parent-teacher relationship and school accommodations are satisfying.</p></div><div><h3>Conclusions and implications</h3><p>The results of this study encourage the development of quality parent-teacher relationships to promote well-being at school.</p></div>","PeriodicalId":51351,"journal":{"name":"Research in Developmental Disabilities","volume":null,"pages":null},"PeriodicalIF":2.9,"publicationDate":"2024-08-14","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S089142222400146X/pdfft?md5=e5b1cf928fa3873a073af9eb07f7f70e&pid=1-s2.0-S089142222400146X-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141983869","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Needs of children with neurodevelopmental disorders and medical complexity: Caregiver perspectives 患有神经发育障碍和复杂病症的儿童的需求:照顾者的观点
IF 2.9 2区 医学
Research in Developmental Disabilities Pub Date : 2024-08-13 DOI: 10.1016/j.ridd.2024.104815
{"title":"Needs of children with neurodevelopmental disorders and medical complexity: Caregiver perspectives","authors":"","doi":"10.1016/j.ridd.2024.104815","DOIUrl":"10.1016/j.ridd.2024.104815","url":null,"abstract":"<div><h3>Background</h3><p>Caregivers of children with neurodevelopmental disorders and medical complexities (NDD-MC) coordinate care across complex multisectoral systems. Often NDD-MC children have complex behaviors, however there is limited information on coordination needs for families. Aim: The objective of this mixed methods study was to understand the needs of families with NDD-MC children. Methods and Procedures: This sequential exploratory study obtained the perspectives of 67 caregivers of NDD-MC children using semi-structured interviews and validated questionnaires to measure family quality of life, care integration, and resource use. An adapted model using Maslow’s hierarchy of needs was integrated, to understand the impacts of caregiving on quality of life. Outcomes and Results: Lack of support in caring for NDD-MC children negatively impacted family quality of life, resulting in various unmet needs, including caregiver burden, behavioural challenges, financial losses, and mental health issues. Caregivers dealt with a fragmented healthcare system that offered limited support to address coordination challenges. Conclusions and Implications: The implementation of a needs-based care coordination program is recommended to consider the health, educational, and social needs of NDD-MC children and their families. Effective care for children with complex needs should tailor support for families using Maslow’s hierarchy to enhance quality of life.</p></div>","PeriodicalId":51351,"journal":{"name":"Research in Developmental Disabilities","volume":null,"pages":null},"PeriodicalIF":2.9,"publicationDate":"2024-08-13","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S0891422224001471/pdfft?md5=558a8e14c337603af6d25248c545bfc6&pid=1-s2.0-S0891422224001471-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141978217","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
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