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Multi-Stakeholder Aged Care Research Networks: A Scoping Review. 多方利益相关者老年护理研究网络:范围综述。
IF 4.6 2区 医学
Gerontologist Pub Date : 2025-02-17 DOI: 10.1093/geront/gnae152
Anna K Gillard, Tracy McNeair, Nadine E Andrew, Terry Haines, Keith D Hill, Chris Moran, Helen Rawson, Grant Russell, Katrina M Long
{"title":"Multi-Stakeholder Aged Care Research Networks: A Scoping Review.","authors":"Anna K Gillard, Tracy McNeair, Nadine E Andrew, Terry Haines, Keith D Hill, Chris Moran, Helen Rawson, Grant Russell, Katrina M Long","doi":"10.1093/geront/gnae152","DOIUrl":"10.1093/geront/gnae152","url":null,"abstract":"<p><strong>Background and objectives: </strong>An aging population worldwide has highlighted the need for improved care in long-term aged care homes. In Australia, such homes are called Residential Aged Care homes, and reform is underway to improve the quality and safety of aged care. A key enabler of quality improvement is increasing evidence-based practice through creating a system to support research translation. Collaborative multi-stakeholder research networks offer a potential solution by bringing together stakeholders to identify evidence-to-practice gaps, co-design research and translate knowledge into practice. The aim of this scoping review was to understand the current evidence on the creation and maintenance of multi-stakeholder aged care research networks internationally, reported facilitators and barriers, and outcomes.</p><p><strong>Research design and methods: </strong>An academic literature search in 5 databases to identify existing multi-stakeholder aged care research networks. A grey literature search was conducted using Google, Google Scholar, grey literature databases, and a manual search of targeted websites.</p><p><strong>Results: </strong>10 papers and 19 web-based resources were identified, reporting on 6 multi-stakeholder research networks internationally. Enabling factors of successful networks included flexibility in structure, good governance, leveraging pre-existing research relationships, consistent and open communication, staff with dual roles in research and practice, and a focus on building long-term partnerships independent of research projects.</p><p><strong>Discussion and implications: </strong>Collaborative multi-stakeholder research networks offer promise for improving research translation in aged care. Advancing the development of impactful multi-stakeholder aged care research networks requires internationally agreed terminology for network models, clear reporting and evaluation guidelines, and dedicated infrastructure resources.</p>","PeriodicalId":51347,"journal":{"name":"Gerontologist","volume":" ","pages":""},"PeriodicalIF":4.6,"publicationDate":"2025-02-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11881226/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142548795","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Older LGBTQ+ Canadians' Experiences of Prejudice and Discrimination over the Life Course.
IF 4.6 2区 医学
Gerontologist Pub Date : 2025-02-17 DOI: 10.1093/geront/gnaf074
Laura Hurd, Raveena Mahal
{"title":"Older LGBTQ+ Canadians' Experiences of Prejudice and Discrimination over the Life Course.","authors":"Laura Hurd, Raveena Mahal","doi":"10.1093/geront/gnaf074","DOIUrl":"https://doi.org/10.1093/geront/gnaf074","url":null,"abstract":"<p><strong>Background and objectives: </strong>Amidst the growing global visibility of older lesbian, gay, bisexual, transgender, queer, and gender and sexually diverse (LGBTQ+) individuals, the predominantly American research has established that they face continued prejudice and discrimination. Yet, few studies outside of the United States have examined their life course experiences, including those related to adverse events. Building on the existing research, the present qualitative study uses a life-course perspective to explore older LGBTQ+ Canadians' experiences of prejudice and discrimination.</p><p><strong>Research design and methods: </strong>We recruited and conducted multiple, in-depth, semi-structured qualitative interviews with 30 LGBTQ+ Canadian individuals, aged 65 to 83, about their life course experiences, including if and how they had been treated differently because of their gender identities, sexual orientations, and ages. Interview transcriptions were coded and analyzed using descriptive thematic analysis.</p><p><strong>Results: </strong>All 30 participants reported traumatic and adverse experiences in patterned ways across the life course. Whereas they often faced abuse and harassment in childhood and young adulthood, they frequently reported institutionally situated prejudice and discrimination in mid-life. Despite changing laws and social norms, in later life participants were subjected to targeted mistreatment and systemic neglect and exclusion as a result of their gender identities, sexual orientations, and ages.</p><p><strong>Discussion and implications: </strong>Findings from this study corroborate previous research and shed light on the ways that prejudice and discrimination have often permeated the lives of older LGBTQ+ Canadians. The research also points to the continued and urgent need to fight bigotry through education, policy, and progressive legislation.</p>","PeriodicalId":51347,"journal":{"name":"Gerontologist","volume":" ","pages":""},"PeriodicalIF":4.6,"publicationDate":"2025-02-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143434260","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Social Relations of Older Adults with Intellectual Disabilities from a Life Course Perspective.
IF 4.6 2区 医学
Gerontologist Pub Date : 2025-02-17 DOI: 10.1093/geront/gnaf065
Lieke van Heumen, Tamar Heller, Claire van den Helder
{"title":"Social Relations of Older Adults with Intellectual Disabilities from a Life Course Perspective.","authors":"Lieke van Heumen, Tamar Heller, Claire van den Helder","doi":"10.1093/geront/gnaf065","DOIUrl":"https://doi.org/10.1093/geront/gnaf065","url":null,"abstract":"<p><strong>Background and objectives: </strong>Research has yet to seek a more complete understanding of how people aging with intellectual disabilities experience their social relations, and how their earlier life experiences impact the development of their social relations. This study investigated the experiences of older adults with intellectual disabilities with their social relations from a life course perspective.</p><p><strong>Research design and methods: </strong>A process of paired recruitment generated a sample of 12 adults with intellectual disabilities age 50 and over with at least one key support person each. Data collection consisted of in-depth qualitative life history interviews with the participants and their key support persons using lifelines.</p><p><strong>Results: </strong>Thematic analysis of the interview transcripts demonstrated that the participants' social relations facilitated positive experiences in the first parts of their lives. The participants felt their lives were disrupted by several transitions as they reached young and middle adulthood such as moving out of the family home, parental divorce and the deaths of parents. Challenging social encounters such as abuse, bullying and conflicts caused distress and negatively impacted the participants' well-being at various points in their lives. Finally, participants simultaneously expressed feelings of belonging and longing as central to their social well-being in late life.</p><p><strong>Discussion and implications: </strong>Study findings highlight complex experiences of adults with intellectual disabilities with their social relations across their lives. They promote further development of strategies for person centered planning such as social network mapping and life story work to better support adults with intellectual disabilities as they age.</p>","PeriodicalId":51347,"journal":{"name":"Gerontologist","volume":" ","pages":""},"PeriodicalIF":4.6,"publicationDate":"2025-02-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143434265","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Intergenerational Relationships and Family Support: Evidence for Health and Well-Being in Studies Supported by the National Institute on Aging. 代际关系和家庭支持:对健康和幸福的影响。
IF 4.6 2区 医学
Gerontologist Pub Date : 2025-02-17 DOI: 10.1093/geront/gnaf003
Merril Silverstein, Karen L Fingerman, J Jill Suitor
{"title":"Intergenerational Relationships and Family Support: Evidence for Health and Well-Being in Studies Supported by the National Institute on Aging.","authors":"Merril Silverstein, Karen L Fingerman, J Jill Suitor","doi":"10.1093/geront/gnaf003","DOIUrl":"10.1093/geront/gnaf003","url":null,"abstract":"<p><strong>Background and objectives: </strong>This review summarizes research projects supported by the National Institute on Aging (NIA) that have contributed scholarship on intergenerational relationships and support provided to older adults that frequently precedes, and is often complementary to, intensive caregiving.</p><p><strong>Research design and methods: </strong>We review NIA-supported projects that have almost exclusively focused on intergenerational relationships and involved primary data collections, and others making use of omnibus aging and family studies that have allowed a variety of investigations on this topic. Where the former set of studies has generated deeply phenotypic analyses-comprehensive fine-grained analyses of relational data in specialized samples-the latter set has focused on analyses of secondary data, often from national samples that include information on intergenerational relationships.</p><p><strong>Results: </strong>Early research funded by NIA addressed the factors underlying cohesion across generations, including the Longitudinal Study of Generations. Subsequent studies shed light on the dynamics of ties between siblings or across multiple generations in navigating support and affection. Studies have revealed important information about transfers of tangible and nontangible resources, loss of parent or child, and diversity by race, ethnicity, and gender.</p><p><strong>Discussion and implications: </strong>NIA funding has made important inroads in understanding a relationship that is of primary importance in individuals' lives for their health and well-being.</p>","PeriodicalId":51347,"journal":{"name":"Gerontologist","volume":" ","pages":""},"PeriodicalIF":4.6,"publicationDate":"2025-02-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142958420","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Dyadic Associations Between Self-Perceptions of Aging and Health Behaviors Among Middle-Aged and Older Couples.
IF 4.6 2区 医学
Gerontologist Pub Date : 2025-02-17 DOI: 10.1093/geront/gnaf007
Hanamori F Skoblow, Christine M Proulx
{"title":"Dyadic Associations Between Self-Perceptions of Aging and Health Behaviors Among Middle-Aged and Older Couples.","authors":"Hanamori F Skoblow, Christine M Proulx","doi":"10.1093/geront/gnaf007","DOIUrl":"10.1093/geront/gnaf007","url":null,"abstract":"<p><strong>Background and objectives: </strong>Research and theory suggest that older adults' self-perceptions of aging (SPA) are associated with their health behavior engagement. Likewise, romantic partners often play a key role in shaping each other's health behaviors. This study aims to explore the longitudinal dyadic associations between SPA and health behaviors among couples in midlife and older adulthood.</p><p><strong>Research design and methods: </strong>Data were drawn from 3,330 couples ages 50-96 (Mmen = 67.22 [9.43]; Mwomen = 65.42 [8.96]) from the Health and Retirement Study, using pooled samples from 2010/2012 to 2012/2014. We estimated actor-partner interdependence models with moderation to assess whether and to what extent a partner's SPA moderated the links between positive and negative SPA and engagement in preventive and risky health behaviors two years later.</p><p><strong>Results: </strong>Women's SPA moderated the association between men's SPA and men's risky health behaviors only when women reported extreme levels of negative or positive SPA. In contrast, men's SPA did not moderate the associations between women's SPA and women's health behaviors.</p><p><strong>Discussion and implications: </strong>This study's findings emphasize that links between SPA and health behaviors operate within the broader social environment and in the context of romantic relationships. The results highlight how couples' perceptions of aging relate to their own and their partners' health behaviors. This work contributes to the literature on the gendered and social nature of health behaviors and has implications for designing interventions targeting SPA.</p>","PeriodicalId":51347,"journal":{"name":"Gerontologist","volume":" ","pages":""},"PeriodicalIF":4.6,"publicationDate":"2025-02-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143069497","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Stressors and Resources Among Adult Child Caregivers in the Presence or Absence of Siblings.
IF 4.6 2区 医学
Gerontologist Pub Date : 2025-02-17 DOI: 10.1093/geront/gnaf006
Hanamori F Skoblow, Megan Gilligan
{"title":"Stressors and Resources Among Adult Child Caregivers in the Presence or Absence of Siblings.","authors":"Hanamori F Skoblow, Megan Gilligan","doi":"10.1093/geront/gnaf006","DOIUrl":"10.1093/geront/gnaf006","url":null,"abstract":"<p><strong>Background and objectives: </strong>Recent attention has focused on understanding later-life caregiving networks, emphasizing how multiple adult children within the same family navigate parental care. However, families with one child are increasingly common, and we know little about how adult only children experience caregiving and whether their experiences differ from those with siblings. Therefore, this study assessed differences in caregiving experiences between adult child caregivers with and without siblings and whether associations between caregiving experiences and mental health (i.e., psychological well-being and distress) vary by sibling presence.</p><p><strong>Research design and methods: </strong>We used cross-sectional data from 1,773 adult child caregivers (12% without siblings; Mage = 56.75 [9.23]) in the National Health and Aging Trends Study and National Study of Caregiving. We conducted t tests and a series of multivariate regressions with interactions to test hypotheses.</p><p><strong>Results: </strong>Adult only child caregivers reported more financial difficulty with care than respondents with siblings. The negative association between emotional difficulty of care and psychological well-being was stronger among adult children without siblings. Informal support was positively associated with psychological well-being only for adult children with siblings, although this may be accounted for by race and ethnicity.</p><p><strong>Discussion and implications: </strong>Findings suggest that adult only children may be at elevated risks of the financial difficulties and the emotional consequences of parental care provision. Further, informal support may be less protective for adult only children's well-being. Given the increasing prevalence of single-child families, more research is needed to better understand and support adult only children caring for parents.</p>","PeriodicalId":51347,"journal":{"name":"Gerontologist","volume":" ","pages":""},"PeriodicalIF":4.6,"publicationDate":"2025-02-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11881227/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143069596","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
New-to-the-Field Analysis for Alzheimer's Disease and Related Dementias Focused Administrative Supplements.
IF 4.6 2区 医学
Gerontologist Pub Date : 2025-02-17 DOI: 10.1093/geront/gnaf073
Melissa Espinoza, René Etcheberrigaray, Alyssa Tonsing-Carter
{"title":"New-to-the-Field Analysis for Alzheimer's Disease and Related Dementias Focused Administrative Supplements.","authors":"Melissa Espinoza, René Etcheberrigaray, Alyssa Tonsing-Carter","doi":"10.1093/geront/gnaf073","DOIUrl":"https://doi.org/10.1093/geront/gnaf073","url":null,"abstract":"<p><strong>Background and objectives: </strong>The \"Alzheimer's Disease and related dementias (AD/ADRD) Focused Administrative Supplements for National Institutes of Health (NIH) Grants that are not Focused on Alzheimer's Disease (AD Supplements to Non-AD awards)\" program provides funded investigators from scientific areas other than AD/ADRD with administrative supplements to parent NIH grant awards to expand their current work into AD/ADRD.</p><p><strong>Research design and methods: </strong>This analysis reviewed awardees of the supplement from fiscal years (FY) 2018 to 2022 using data obtained from NIH's internal grants administration data. The goal was to identify awardees who were new to the field (NTF) of AD/ADRD and assess outcome measures of success (subsequent applications, awards, and publications).</p><p><strong>Results: </strong>1,555 AD Supplements to Non-AD awards were awarded (16% awarded to National Institute on Aging [NIA] grants; 84% to all other NIH Institutes and Centers [ICs]). 72% of all awards went to awardees considered NTF. At the time of this analysis, administrative supplements to NTFs were awarded, on average, 3.42 years ago, so some projects have had little time to have substantial outcomes. The total awardee subsequent funding rate for all ICs was 60% (62% for NIA-only). Regarding subsequent publications across all IC NTFs, 2.8% of NIH grants led by an NTF investigator had associated publications on an AD/ADRD-relevant topic after the supplement. For NIA-only administrative supplements, 5.4% of parent grants led by NTFs had associated subsequent AD/ADRD publications.</p><p><strong>Discussion and implications: </strong>The findings suggest that AD Supplements to non-AD awards have stimulated scientific interest among investigators who were new to AD/ADRD research at the time of application and may facilitate interdisciplinary research by bringing investigators into new and/or growing areas of research.</p>","PeriodicalId":51347,"journal":{"name":"Gerontologist","volume":" ","pages":""},"PeriodicalIF":4.6,"publicationDate":"2025-02-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143434258","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Psychological resilience and cognitive functioning in Black and White men and women.
IF 4.6 2区 医学
Gerontologist Pub Date : 2025-02-17 DOI: 10.1093/geront/gnaf075
Kiana A Scambray, Emily P Morris, Jordan D Palms, Ji Hyun Lee, Ketlyne Sol, Laura B Zahodne
{"title":"Psychological resilience and cognitive functioning in Black and White men and women.","authors":"Kiana A Scambray, Emily P Morris, Jordan D Palms, Ji Hyun Lee, Ketlyne Sol, Laura B Zahodne","doi":"10.1093/geront/gnaf075","DOIUrl":"10.1093/geront/gnaf075","url":null,"abstract":"<p><strong>Background and objectives: </strong>Psychological resilience is associated with better physical and mental health, but little is known about its role in cognitive health from an intersectional perspective. This study aimed to assess the relationship between psychological resilience and cognitive function across subgroups of older non-Hispanic Black and White men and women while taking stress exposure into account.</p><p><strong>Research design and methods: </strong>453 participants (Black men=87; Black women=147; White men=98; White women=121) from the Michigan Cognitive Aging Project completed the Brief Resilience Scale and a neuropsychological battery. ANOVAs were used to assess differences in psychological resilience across the intersection of gender and race. Linear regressions assessed relationships between psychological resilience and global cognition, controlling for sociodemographics and discrimination. Interaction terms and stratified regressions characterized these relationships across intersectional groups.</p><p><strong>Results: </strong>Level of psychological resilience did not differ across intersectional groups despite differences in stress exposure. Higher resilience was associated with better global cognition in the whole sample (β= 0.12, p=.002), but this association was found only among Black men (β=0.40, p<.001).</p><p><strong>Discussion and implications: </strong>Levels of resilience did not differ between Black and White older adults, despite disproportionate stress exposure among Black older adults. Links between psychological resilience and cognition may depend on stressors and resources that are differentially patterned across intersectional groups. Psychological resilience may be particularly important for cognitive health among Black men, who are frequently underrepresented in cognitive aging research.</p>","PeriodicalId":51347,"journal":{"name":"Gerontologist","volume":" ","pages":""},"PeriodicalIF":4.6,"publicationDate":"2025-02-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143434262","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Healthy Aging in Subsidized Housing in the United States: Exploring Older Adults' Views of Service Coordination.
IF 4.6 2区 医学
Gerontologist Pub Date : 2025-02-15 DOI: 10.1093/geront/gnaf063
Alia Abiad, Jeffrey Graupner, Renée Kroplewski, Lauren J Gleason, Katherine Thompson
{"title":"Healthy Aging in Subsidized Housing in the United States: Exploring Older Adults' Views of Service Coordination.","authors":"Alia Abiad, Jeffrey Graupner, Renée Kroplewski, Lauren J Gleason, Katherine Thompson","doi":"10.1093/geront/gnaf063","DOIUrl":"https://doi.org/10.1093/geront/gnaf063","url":null,"abstract":"<p><strong>Background and objectives: </strong>Low-income older adults face many barriers to healthy aging, including housing cost burden. Publicly subsidized rental units for older adults are one affordable housing option; these typically have a service coordinator who helps tenants access community resources. Previous research has indicated that service coordinators can support resident health. However, little is known about older adults' perspectives on service coordination. Our study aimed to explore how older adults living in subsidized housing perceive the relationship between service coordinators and healthy aging.</p><p><strong>Research design and methods: </strong>We conducted five focus group discussions with residents of three subsidized housing communities for older adults, all in medically underserved urban areas. Participants, 48 in total, were asked about barriers to healthy aging, resources for healthy aging, and what role, if any, service coordinators play in supporting healthy aging. Content analysis was used to identify themes emerging from the data.</p><p><strong>Results: </strong>Data analysis yielded 90 codes and sub-codes falling under four themes: challenges in healthy aging, assets for healthy aging, perceptions of service coordinator role, and suggestions for improvement. Across focus groups, participants highlighted that service coordinators can connect residents to health-related assets. Participants also desired future opportunities to make their perspectives on healthy aging heard.</p><p><strong>Discussion and implications: </strong>Service coordinators are important, under-recognized collaborators for older adult health. Future healthcare interventions and policies should seek to support service coordinators and leverage their ability to connect older adults with healthcare professionals and community services.</p>","PeriodicalId":51347,"journal":{"name":"Gerontologist","volume":" ","pages":""},"PeriodicalIF":4.6,"publicationDate":"2025-02-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143426700","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
A Phenomenological Understanding of Aging 'Well' with Multiple Sclerosis.
IF 4.6 2区 医学
Gerontologist Pub Date : 2025-02-15 DOI: 10.1093/geront/gnaf072
Emma V Richardson, Robert W Motl
{"title":"A Phenomenological Understanding of Aging 'Well' with Multiple Sclerosis.","authors":"Emma V Richardson, Robert W Motl","doi":"10.1093/geront/gnaf072","DOIUrl":"https://doi.org/10.1093/geront/gnaf072","url":null,"abstract":"<p><strong>Background and objectives: </strong>As the life expectancy of the multiple sclerosis (MS) community increases, new innovations and understandings of what it is to age 'well' are needed. Building on a line of work exploring the meaning and experiences of aging with a disabling condition, and showing how and why people aging with MS experience this phenomenon differently, this paper progresses aging and disability literature by (re)conceptualizing what 'wellbeing' means to people aging with MS, and how wellbeing may be enhanced or compromised.</p><p><strong>Research design and methods: </strong>Working with 40 persons with MS over the age of 60, we used a Heideggerian phenomenological framework to co-construct what wellbeing meant among persons aging with MS.</p><p><strong>Results: </strong>Emphasizing the importance of the 'everdayness' of wellbeing experiences, persons aging with MS discussed how wellbeing was related to 'doing, being, and becoming; the ability to do the things they wanted to do, be the person they wanted to be, and the autonomy, opportunity, and ability to do something, or become someone, different'. The ability to be, do or become was, however, dependent on, 'the power of people', 'sociocultural privilege' and 'writing one's own health narrative'.</p><p><strong>Discussion and implications: </strong>These findings, that are contextualized within the socio-cultural boundaries of participants' situations, can help support persons with MS, families and friends, caregivers, health care professionals and interventionists that are working towards enhancing quality of life among persons aging with MS.</p>","PeriodicalId":51347,"journal":{"name":"Gerontologist","volume":" ","pages":""},"PeriodicalIF":4.6,"publicationDate":"2025-02-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143426684","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
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