Developmental Neurorehabilitation最新文献_第5页

A New Instrument to Assess Dynamic Balance in Children with Duchenne Muscular Dystrophy: Four Square Step Test and Its Validity, Reliability and Feasibility. 一种评估杜氏肌萎缩症儿童动态平衡的新仪器:四方步检验及其效度、信度和可行性。

IF 1.3 4区医学

Developmental Neurorehabilitation Pub Date : 2023-01-01 DOI: 10.1080/17518423.2022.2143924

Esra Aldirmaz, Fatma Uğur, Öznur Yilmaz, Ayşe Karaduman, İpek Alemdaroğlu-Gürbüz

{"title":"A New Instrument to Assess Dynamic Balance in Children with Duchenne Muscular Dystrophy: Four Square Step Test and Its Validity, Reliability and Feasibility.","authors":"Esra Aldirmaz, Fatma Uğur, Öznur Yilmaz, Ayşe Karaduman, İpek Alemdaroğlu-Gürbüz","doi":"10.1080/17518423.2022.2143924","DOIUrl":"https://doi.org/10.1080/17518423.2022.2143924","url":null,"abstract":"Aim: The aim of this study was to investigate validity, reliability and feasibility of the Four Square Step Test (FSST) in children with Duchenne Muscular Dystrophy (DMD).Methods: The study included 44 children with DMD aged 5-12 years. The functional level of the children was determined by using the Brooke Lower Extremity Functional Classification (BLEFC). The concurrent validity of the FSST, a dynamic balance assessment, was investigated by analyzing the association between FSST and Timed Up and Go Test (TUG), North Star Ambulatory Assessment (NSAA) and Six-Minute Walk Test (6MWT) distance. The intra- and inter-rater reliability of the FSST was determined by using the Intra Class Correlation Coefficient (ICC) while the feasibility of the test was determined by calculating the percentage of children who successfully completed the test in accordance with the test instructions.Results: The FSST score of the children (mean age 9.25 ± 2.14 years) was 11.91 ± 3.43 and the BLEFC level ranged from Level 1 (65.9%) to Level 3 (9.1%). FSST had positive, moderate relation with BLEFC (r = 0.447; p = .002); positive, strong relation with TUG (rs = 0.623), and negative, moderate correlations with NSAA (rs = -0.529) and 6MWT distance (rs = -0.592) (p < .001). Intra-rater (ICC: 0.965) and inter-rater (ICC: 0.991) reliability was \"excellent,\" and the test was feasible with successful performance of 88% children.Discussion: The FSST is a valid, reliable and feasible instrument to assess dynamic balance as well as having the ability to reflect falling risk and different functional levels of children with DMD.","PeriodicalId":51227,"journal":{"name":"Developmental Neurorehabilitation","volume":"26 1","pages":"27-36"},"PeriodicalIF":1.3,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10487949","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Emotional Well-Being of Children and Youth with Severe Motor and Communication Impairment: A Conceptual Understanding. 儿童和青少年严重运动和沟通障碍的情绪健康:一个概念上的理解。

IF 1.3 4区医学

Developmental Neurorehabilitation Pub Date : 2022-11-01 Epub Date: 2022-07-28 DOI: 10.1080/17518423.2022.2099997

Samantha Noyek, Claire Davies, Maude Champagne, Beata Batorowicz, Nora Fayed

{"title":"Emotional Well-Being of Children and Youth with Severe Motor and Communication Impairment: A Conceptual Understanding.","authors":"Samantha Noyek, Claire Davies, Maude Champagne, Beata Batorowicz, Nora Fayed","doi":"10.1080/17518423.2022.2099997","DOIUrl":"https://doi.org/10.1080/17518423.2022.2099997","url":null,"abstract":"Background: Children and youth with severe motor and communication impairment (SMCI) have difficulty providing self-expression through typical speech, writing with a paper and pencil, or using a standard keyboard. Their emotional expressions can be missed by peers and novel caregivers.Purpose: To describe the indicators and components of emotional experiences for children/youth with SMCI.Methods: Primary guardians of nine children/youth with SMCI were involved in photo/video data collection and follow-up qualitative interviews. Twenty-one familiar people (e.g., friends, family members, and/or care team) participated in semi-structured qualitative interviews.Results: A conceptual understanding of emotional well-being specific to the population has been developed consisting of nine themes, encompassed by four domains i) Core Attributes, ii) Personal Experiences, iii) Surroundings, iv) Expression and Reception.Conclusions: Emotional experiences of children/youth with SMCI are diversely expressed. Primary guardian and familiar person insight can be amplified to positively impact care and participation.","PeriodicalId":51227,"journal":{"name":"Developmental Neurorehabilitation","volume":"25 8","pages":"554-575"},"PeriodicalIF":1.3,"publicationDate":"2022-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"40554039","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Pandemic Perils and Promise: Implementation of a Virtual Parenting Intervention during COVID-19 among Children with Early Neurological Conditions. 大流行的危险与希望:在COVID-19期间对早期神经系统疾病儿童实施虚拟育儿干预。

IF 1.3 4区医学

Developmental Neurorehabilitation Pub Date : 2022-11-01 Epub Date: 2022-08-02 DOI: 10.1080/17518423.2022.2099996

Tricia S Williams, Brittany Burek, Angela Deotto, Meghan K Ford, Rivka Green, Shari L Wade

{"title":"Pandemic Perils and Promise: Implementation of a Virtual Parenting Intervention during COVID-19 among Children with Early Neurological Conditions.","authors":"Tricia S Williams, Brittany Burek, Angela Deotto, Meghan K Ford, Rivka Green, Shari L Wade","doi":"10.1080/17518423.2022.2099996","DOIUrl":"https://doi.org/10.1080/17518423.2022.2099996","url":null,"abstract":"Objective: In this study, we examined feasibility, acceptability, and preliminary efficacy of a telepsychological positive parenting intervention (I-InTERACT-North, Internet-basedInteracting Together Everyday: Recovery After Childhood Traumatic Brain Injury) during the COVID-19 pandemic among Canadian families of children at-risk for neurodevelopmental challenges given congenital or neonatal conditions. I-InTERACT-North was developed to improve behavioral and emotional outcomes in children with neurological conditions by utilizing and adapting parenting strategies from several established family-focused programmes.Methods: A pragmatic prospective pre-post single-site pilot study design was used to assess feasibility, acceptabilty, and preliminary efficacy of I-InTERACT North during the COVID-19 pandemic.Results: Thirty-five families of children ages three to nine years were referred between March 2020 and January 2021. Eighteen families enrolled, and 12 (67% adherence) completed the programme. Parents reported strong therapeutic alliance and programme acceptability with barriers due to competing time demands. Therapists reported high acceptability but perceived parental burnout. Parenting confidence (d = 0.70), and child behavior (d = 1.30) improved following the intervention.Conclusions: Results demonstrate the programme's value to families during the pandemic, while underscoring unique participation barriers. Future research and clinicial implications are discussed.","PeriodicalId":51227,"journal":{"name":"Developmental Neurorehabilitation","volume":"25 8","pages":"505-517"},"PeriodicalIF":1.3,"publicationDate":"2022-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"40595576","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 1

Clinician perspectives on the implementation of inpatient cycling-based exergames for children with cerebral palsy: A qualitative study. 临床医生对脑瘫儿童住院循环游戏实施的看法:一项定性研究。

IF 1.3 4区医学

Developmental Neurorehabilitation Pub Date : 2022-11-01 Epub Date: 2022-07-11 DOI: 10.1080/17518423.2022.2099474

Analyssa Cardenas, Marina Petrevska, Elaine Biddiss, Darcy Fehlings

{"title":"Clinician perspectives on the implementation of inpatient cycling-based exergames for children with cerebral palsy: A qualitative study.","authors":"Analyssa Cardenas, Marina Petrevska, Elaine Biddiss, Darcy Fehlings","doi":"10.1080/17518423.2022.2099474","DOIUrl":"https://doi.org/10.1080/17518423.2022.2099474","url":null,"abstract":"Objective: To understand the perspectives of key stakeholder clinicians in implementing inpatient cycling-based exergames for children with cerebral palsy (CP) into pediatric rehabilitation.Methods: Sixteen clinicians (nurses, physiotherapists, recreational therapists) that participated in a study exploring the feasibility of implementing cycling-based exergames for inpatient children with CP were interviewed. Clinicians' responses were coded using the Theoretical Domains Framework (TDF). Beliefs were generated from each response and relevant domains were identified.Results: Ten domains from the TDF were identified as relevant. Key enablers to clinician participation in future implementation included revision of clinician roles and responsibilities, the belief that children with CP will benefit from exergames, and the belief in potential applicability to other pediatric populations. Barriers included clinician limited time and exergame responsibilities not aligning with perceived clinician roles.Conclusions: This study identifies key barriers and enablers that future inpatient pediatric rehabilitation settings should consider when incorporating exergames into rehabilitation practice.","PeriodicalId":51227,"journal":{"name":"Developmental Neurorehabilitation","volume":"25 8","pages":"531-541"},"PeriodicalIF":1.3,"publicationDate":"2022-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"40593962","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Aided communication, mind understanding and co-construction of meaning. 辅助沟通，心灵理解和意义的共同构建。

IF 1.3 4区医学

Developmental Neurorehabilitation Pub Date : 2022-11-01 Epub Date: 2022-07-16 DOI: 10.1080/17518423.2022.2099030

Kristine Stadskleiv, Beata Batorowicz, Annika Dahlgren Sandberg, Kaisa Launonen, Janice Murray, Kirsi Neuvonen, Judith Oxley, Gregor Renner, Martine M Smith, Gloria Soto, Hans van Balkom, Catia Walter, Chih-Kang Yang, Stephen von Tetzchner

{"title":"Aided communication, mind understanding and co-construction of meaning.","authors":"Kristine Stadskleiv, Beata Batorowicz, Annika Dahlgren Sandberg, Kaisa Launonen, Janice Murray, Kirsi Neuvonen, Judith Oxley, Gregor Renner, Martine M Smith, Gloria Soto, Hans van Balkom, Catia Walter, Chih-Kang Yang, Stephen von Tetzchner","doi":"10.1080/17518423.2022.2099030","DOIUrl":"https://doi.org/10.1080/17518423.2022.2099030","url":null,"abstract":"Mind understanding allows for the adaptation of expressive language to a listener and is a core element when communicating new information to a communication partner. There is limited knowledge about the relationship between aided language and mind understanding. This study investigates this relationship using a communication task. The participants were 71 aided communicators using graphic symbols or spelling for expression (38/33 girls/boys) and a reference group of 40 speaking children (21/19 girls/boys), aged 5;0-15;11 years. The task was to describe, but not name, drawings to a communication partner. The partner could not see the drawing and had to infer what was depicted from the child's explanation. Dyads with aided communicators solved fewer items than reference dyads (64% vs 93%). The aided spellers presented more precise details than the symbol users (46% vs 38%). In the aided group, number of correct items correlated with verbal comprehension and age.","PeriodicalId":51227,"journal":{"name":"Developmental Neurorehabilitation","volume":"25 8","pages":"518-530"},"PeriodicalIF":1.3,"publicationDate":"2022-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"40514982","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 2

Fatigue in young patients with acquired brain injury in the rehabilitation setting: Categorizing and interpreting fatigue severity levels. 康复环境中年轻获得性脑损伤患者的疲劳:疲劳严重程度的分类和解释

IF 1.3 4区医学

Developmental Neurorehabilitation Pub Date : 2022-11-01 Epub Date: 2022-07-26 DOI: 10.1080/17518423.2022.2099994

Florian Allonsius, Frederike van Markus-Doornbosch, Arend de Kloet, Suzanne Lambregts, Thea Vliet Vlieland, Menno van der Holst

{"title":"Fatigue in young patients with acquired brain injury in the rehabilitation setting: Categorizing and interpreting fatigue severity levels.","authors":"Florian Allonsius, Frederike van Markus-Doornbosch, Arend de Kloet, Suzanne Lambregts, Thea Vliet Vlieland, Menno van der Holst","doi":"10.1080/17518423.2022.2099994","DOIUrl":"https://doi.org/10.1080/17518423.2022.2099994","url":null,"abstract":"Purpose: Fatigue in patients with acquired brain injury (ABI) is common. However, to better target fatigue, clear ways to categorize/interpret fatigue-severity in individual patients are lacking. This study aims to determine/categorize fatigue severity among children, adolescents, and young adults with ABI.Methods: This cross-sectional study included young patients admitted to outpatient rehabilitation and their parents. To determine fatigue, the PedsQL™Multidimensional-Fatigue-Scale was used (MFS, scores 0-100, lower scores = higher fatigue, patient-/parent-reported). Based on scores from a reference population, four categories were formed: \"1 = no/little fatigued\" to \"4 = severely-more fatigued.\"Results: All scores were lower than those from the reference population, with comparisons in the adolescent and young adult groups reaching statistical significance (p < .05). The proportions of patients in category 4 were: 9%/50%/58% among children/adolescents/young adults, showing that many patients were \"severely-more fatigued\"-than the reference population.Conclusions: Measuring fatigue and categorizing fatigue severity looks promising for clinical practice and could help to better target fatigue.","PeriodicalId":51227,"journal":{"name":"Developmental Neurorehabilitation","volume":"25 8","pages":"542-553"},"PeriodicalIF":1.3,"publicationDate":"2022-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"40538699","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 2

Combined Gait and Grasping in Autistic and Non-Autistic Youths. 自闭症和非自闭症青年的步态和抓握结合。

IF 1.1 4区医学

Developmental Neurorehabilitation Pub Date : 2022-10-01 Epub Date: 2022-03-15 DOI: 10.1080/17518423.2022.2052375

A H Mason, K A Pickett, A S Padilla, B G Travers

引用次数: 0

Responsiveness and Minimal Clinically Important Difference of the Chinese Version of the Motor Function Measure-32 in Children and Adolescents with Duchenne Muscular Dystrophy. 儿童和青少年杜氏肌营养不良症中文版运动功能量表-32的反应性和微小临床重要差异

IF 1.3 4区医学

Developmental Neurorehabilitation Pub Date : 2022-08-01 Epub Date: 2021-12-29 DOI: 10.1080/17518423.2021.2020352

Meihuan Huang, Turong Chen, Yujuan Wang, Chunming Zhou, Jianguo Cao, Xinguo Lu

{"title":"Responsiveness and Minimal Clinically Important Difference of the Chinese Version of the Motor Function Measure-32 in Children and Adolescents with Duchenne Muscular Dystrophy.","authors":"Meihuan Huang, Turong Chen, Yujuan Wang, Chunming Zhou, Jianguo Cao, Xinguo Lu","doi":"10.1080/17518423.2021.2020352","DOIUrl":"https://doi.org/10.1080/17518423.2021.2020352","url":null,"abstract":"Purpose: This study aimed to examine the responsiveness and minimal clinically important difference of the Motor Function Measure 32-Chinese version (MFM 32-CN) in children and adolescents with Duchenne muscular dystrophy (DMD).Methods: This observational, prospective cohort study assessed changes in motor function over 12 months using the MFM 32-CN in 108 pediatric patients with DMD.Results: Moderate to high internal responsiveness was found for MFM total, D1, and D2 scores (SRM = 0.46-0.83). Sufficient external responsiveness was observed in all MFM scores, as determined by a good correlation with the Patient Global Impression of Change (PGIC) ratings (r = 0.54-0.72, p < .01). The estimated MCID values derived from different anchor-based methods ranged from 4.7 to 6.0, with a median of 5.0 points (%).Conclusion: The MFM 32-CN demonstrates sufficient internal and external responsiveness as a measure of motor function in children and adolescents with DMD. The present study established the MCID of MFM-32 in pediatric patients with DMD.","PeriodicalId":51227,"journal":{"name":"Developmental Neurorehabilitation","volume":"25 6","pages":"370-377"},"PeriodicalIF":1.3,"publicationDate":"2022-08-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"39772281","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 3

Development and initial testing of the BABY-BISCUIT in an at-risk population. 婴儿饼干在高危人群中的开发和初步测试。

IF 1.3 4区医学

Developmental Neurorehabilitation Pub Date : 2022-08-01 Epub Date: 2021-12-28 DOI: 10.1080/17518423.2021.2018736

Johnny L Matson, Megan M Callahan, Joshua J Montrenes

{"title":"Development and initial testing of the BABY-BISCUIT in an at-risk population.","authors":"Johnny L Matson, Megan M Callahan, Joshua J Montrenes","doi":"10.1080/17518423.2021.2018736","DOIUrl":"https://doi.org/10.1080/17518423.2021.2018736","url":null,"abstract":"Purpose: Early identification of autism spectrum disorder (ASD) via screeners for diagnostic measures are a high priority. At present, there is no consensus on one screener due to the need for better sensitivity and specificity. In this study, we report on the development and utility of the BABY-BISCUIT, a six-item screener based on a modified subset of items from the Baby and Infant Screen for Children with aUtIsm Traits (BISCUIT).Methods: A sample of 504 children between 17-3 9months of age, who consisted of toddlers identified as at-risk for neurodevelopmental and other health disorders, were tested during an annual screening through the Louisiana EarlySteps program.Results: An exploratory factor analysis yielded a one-factor solution (X2 = 48.62, df = 9, p = <.001). High sensitivity (i.e., 100.0%) at the cost of reduced specificity (i.e., 33.3%, AUC = 0.957) was found for an optimal screening cutoff score of 1.Conclusions: Findings from this study suggest that the BABY-BISCUIT has the potential to be a short and easily administered screener for ASD to inform whether further ASD assessment is necessary. Further investigation of convergent validity with established ASD measures is recommended.","PeriodicalId":51227,"journal":{"name":"Developmental Neurorehabilitation","volume":"25 6","pages":"361-369"},"PeriodicalIF":1.3,"publicationDate":"2022-08-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"39770800","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Descriptive Longitudinal Analysis of Stereotypy and Corresponding Changes in Psychotropic Medication. 精神药物刻板印象及其变化的描述性纵向分析。

IF 1.3 4区医学

Developmental Neurorehabilitation Pub Date : 2022-07-01 DOI: 10.1080/17518423.2021.2011461

Drew Piersma, Marisela Aguilar, Haley Seibert, Bailey Boyle, Gabrielle Griffith, Maria G Valdovinos

{"title":"Descriptive Longitudinal Analysis of Stereotypy and Corresponding Changes in Psychotropic Medication.","authors":"Drew Piersma, Marisela Aguilar, Haley Seibert, Bailey Boyle, Gabrielle Griffith, Maria G Valdovinos","doi":"10.1080/17518423.2021.2011461","DOIUrl":"https://doi.org/10.1080/17518423.2021.2011461","url":null,"abstract":"Introduction: Psychotropic medication is often prescribed to individuals with intellectual and developmental disabilities who engage in challenging and other behavior (e.g., aggression and stereotypy, respectively), but there is limited understanding of the effects of these medications on behavior.Objective: Within the context of a larger study that evaluated the effects of psychotropic medication regimen changes on the presentation of challenging behavior, this study describes the presentation of stereotypic behavior of three individuals diagnosed with autism spectrum disorder.Methods: Stereotypy was measured during weekly, one-hour, direct observations and during the control and ignore conditions of functional analyses of challenging behavior (which were conducted following changes in psychotropic medication regimens).Results: Patterns of stereotypy varied over time, but not significantly, and at times seemed to coincide with medication changes.Discussion: Our results suggest stereotypy persists throughout adulthood; however, additional research is needed.","PeriodicalId":51227,"journal":{"name":"Developmental Neurorehabilitation","volume":"25 5","pages":"298-308"},"PeriodicalIF":1.3,"publicationDate":"2022-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9166166/pdf/nihms-1766972.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9729854","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0