Jiali Gong , Meizhen Chen , Huamin Luo , Qiuping Li
{"title":"Effects of a couple-based self-efficacy intervention on health outcomes among colorectal cancer patients and spousal caregivers: A randomized controlled trial","authors":"Jiali Gong , Meizhen Chen , Huamin Luo , Qiuping Li","doi":"10.1016/j.ejon.2024.102737","DOIUrl":"10.1016/j.ejon.2024.102737","url":null,"abstract":"<div><h3>Purpose</h3><div>This study aimed to assess the feasibility and acceptability of a couple-based self-efficacy (SE) intervention, and to examine the effects of the intervention on health outcomes for CRC couples.</div></div><div><h3>Methods</h3><div>An assessor-blinded, two-armed, randomized controlled design was used. The study randomly assigned 144 patients hospitalized for colorectal cancer to receive either the SE intervention or the usual care. SE was the primary outcome. The secondary outcomes included quality of life and mental health (positive emotions and negative emotions). Repeated measures analysis of variance was used to examine the data.</div></div><div><h3>Results</h3><div>The recruitment and retention rates were 80% and 87.5%, respectively. First, we found that patients scored significantly higher on anxiety (<em>p</em> = 0.001), depression (<em>p</em> = 0.001) and benefit findings (<em>p</em> = 0.009) than did spousal caregivers, whereas spousal caregivers scored significantly higher than patients on the quality of life (<em>p</em> < 0.001 for both physical scores and mental scores) in the SE group. Second, immediately after the intervention, the SE group showed statistically significant improvements were found in SE (<em>p</em> < 0.001 for both couples), quality of life (mental scores) (<em>p</em> = 0.002 for spousal caregivers), negative emotion (anxiety, <em>p</em> < 0.05 for both couples; depression, <em>p</em> = 0.03 for patients), and positive emotion (benefit findings) (<em>p</em> < 0.001 for both couple) when compared to the control group.</div></div><div><h3>Conclusion</h3><div>A couple-based SE intervention significantly improved SE, quality of life (mental scores), and psychological well-being, suggesting a short-term intervention effect.</div></div>","PeriodicalId":51048,"journal":{"name":"European Journal of Oncology Nursing","volume":"74 ","pages":"Article 102737"},"PeriodicalIF":2.7,"publicationDate":"2025-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142814768","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Vicky Lehmann , Stephanie Both , Henk W. Elzevier , Jacqueline Tromp , Brenda den Oudsten
{"title":"“I wanna know what to expect” - Care needs regarding sexual and reproductive health after cancer in adolescence and young adulthood (AYA) and recommendations for providers","authors":"Vicky Lehmann , Stephanie Both , Henk W. Elzevier , Jacqueline Tromp , Brenda den Oudsten","doi":"10.1016/j.ejon.2025.102791","DOIUrl":"10.1016/j.ejon.2025.102791","url":null,"abstract":"<div><h3>Purpose</h3><div>To assess care needs related to sexual and reproductive health of patients and survivors diagnosed with cancer during adolescence and young adulthood (AYA).</div></div><div><h3>Methods</h3><div>Participants (<em>N</em> = 190) were predominantly female (87.4%) and diagnosed with cancer between age 12–39 years. Common diagnoses included breast cancer (37.1%) or leukemia/lymphoma (27.2%). Cancer patients/survivors completed an online survey, which assessed care needs regarding sexual health and fertility/reproductive health. They provided written open answers, which were qualitatively analyzed.</div></div><div><h3>Results</h3><div>Care needs related to sexual health varied and included a need for more information about possible effects on sexual health, which will enable patients/survivors to better anticipate (physical and mental) side effects of cancer on sexual health. AYA patients/survivors need support from providers who normalize the topic of sex, who offer guidance in coping with numerous questions, who provide resources and practical tips and tricks, and who refer to specialists if needed. Participants would like providers to initiate conversations and communicate openly and honestly without taboo, bias, or shame. Care needs regarding reproductive health included needing support in navigating reproduction after cancer, while unmet information needs were central. This included needing information about fertility status and assessment options, reproduction/contraceptives, the safety of pregnancies, and the (im)possibility of alternatives to biological parenthood.</div></div><div><h3>Conclusion</h3><div>Communication is key in informing and supporting AYA cancer patients and survivors regarding their sexual and reproductive health. Providers should assess individual patients'/survivors’ needs and tailor information that is tangible accordingly. Additional recommendations for healthcare providers are presented.</div></div>","PeriodicalId":51048,"journal":{"name":"European Journal of Oncology Nursing","volume":"74 ","pages":"Article 102791"},"PeriodicalIF":2.7,"publicationDate":"2025-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143048440","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
H. Holm Gyldenvang , Karin Piil , Tina Helene Dahl , Tina Grace Paulsen , Charlotte Ebba Cathrina von Blixen Finecke , Ulla B. Mathiesen , Tom Møller , Christina Andersen
{"title":"Changing an exercise behaviour for physically inactive patients with breast cancer during chemotherapy- the critical role of nurse support: An implementation study","authors":"H. Holm Gyldenvang , Karin Piil , Tina Helene Dahl , Tina Grace Paulsen , Charlotte Ebba Cathrina von Blixen Finecke , Ulla B. Mathiesen , Tom Møller , Christina Andersen","doi":"10.1016/j.ejon.2025.102807","DOIUrl":"10.1016/j.ejon.2025.102807","url":null,"abstract":"<div><h3>Purpose</h3><div>This implementation study investigates the feasibility of a nurse-led pedometer intervention and motivational counselling for physically inactive people with breast cancer undergoing chemotherapy in a real-world oncology outpatient setting. It also evaluates the effectiveness of supportive conversations with specialized nurses in terms of behavior change.</div></div><div><h3>Methods</h3><div>Nurses were trained through an 8-h educational program to deliver the intervention. Patients received a pedometer at the start of chemotherapy and attended individual nurse-led counselling sessions every three weeks, focusing on activity levels, motivational factors, and goal setting. Follow-up continued until one year after baseline. The study comprises of qualitative data in form of interviews and quantitative data from a questionnaire to evaluate the feasibility.</div></div><div><h3>Results</h3><div>Twenty patients participated. Motivational counselling by nurses was seen as fundamental for increasing physical activity. Eight out of 19 patients increased or maintained the number of steps they took during chemotherapy. At one-year follow-up, 12 patients were still using the pedometer, and 16 patients felt motivated by the nurses’ conversations. Four themes emerged from interviews: 1) supportive and motivating conversations, 2) pedometers provide comfort and discomfort, 3) behavioral changes in everyday life, and 4) ownership and commitment.</div></div><div><h3>Conclusions</h3><div>Nurse-led conversations and pedometers have high impact on change health behaviors in physically inactive people undergoing oncological treatment for breast cancer. The intervention can be easily implemented as it required few resources and minor structural changes.</div></div>","PeriodicalId":51048,"journal":{"name":"European Journal of Oncology Nursing","volume":"74 ","pages":"Article 102807"},"PeriodicalIF":2.7,"publicationDate":"2025-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143061078","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Bodil Westman , Mia Bergenmar , Lena Sharp , Karin Bergkvist
{"title":"Exploring patients’ opportunities for participation in meetings with a contact nurse, prior to cancer treatment – An interview study","authors":"Bodil Westman , Mia Bergenmar , Lena Sharp , Karin Bergkvist","doi":"10.1016/j.ejon.2025.102826","DOIUrl":"10.1016/j.ejon.2025.102826","url":null,"abstract":"<div><h3>Purpose</h3><div>In Swedish cancer care, Contact Nurses (CNs), have a role to enhance the patients’ opportunities for participation through improved communication and information. The aim of this study was to explore how patients describe their opportunities for participation during the first encounter with the CN, prior to starting the cancer treatment.</div></div><div><h3>Methods</h3><div>Semi-structured interviews with 14 patients with cancer, planned for curative treatment, were performed. Purposeful sampling, based on estimated high or low activation level measured with PAM-13®, as well as gender and age, were used. The interviews were analysed, using a qualitative inductive approach.</div></div><div><h3>Results</h3><div>The overarching theme “Dealing with an entirely new life situation” encompass three categories; “Establish relationships”, “Gaining understanding of the illness” and “Taking part in treatment planning”. The relationships with the CNs as well as the understanding of what was being planned, was considered important. Having the opportunity to communicate essential matters and the adaption of the information, was also found to be of great importance. The perceived possibilities to participate in the planning of treatment and care varied, with some patients describing the plan to be predetermined, while others had a more accommodating experience.</div></div><div><h3>Conclusion</h3><div>The result highlights the importance for CNs of establishing relationships with their patients. It also points out the importance of the patients understanding of their situation. These insights emphasize the need for CNs to prioritize empathic communication, the need to adapt information to the patient's preunderstanding and to actively involve patients in their care planning, enhancing overall patient satisfaction and outcomes.</div></div>","PeriodicalId":51048,"journal":{"name":"European Journal of Oncology Nursing","volume":"75 ","pages":"Article 102826"},"PeriodicalIF":2.7,"publicationDate":"2025-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143177780","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Louise Elkjær Fløe , Josefine Maria Bruun , Jesper Grau Eriksen , Poul Videbech , Mette Asbjørn Neergaard , Anna Mygind
{"title":"Development of a supportive cancer care model for patients with CAncer and pre-existing SEvere MEntal Disorders","authors":"Louise Elkjær Fløe , Josefine Maria Bruun , Jesper Grau Eriksen , Poul Videbech , Mette Asbjørn Neergaard , Anna Mygind","doi":"10.1016/j.ejon.2024.102748","DOIUrl":"10.1016/j.ejon.2024.102748","url":null,"abstract":"<div><h3>Purpose</h3><div>Cancer patients with pre-existing severe mental disorders (SMD), including moderate to severe depression, bipolar disorder and schizophrenia, have reduced life expectancy and are less likely to receive optimal cancer treatment. The aim of this study is to develop and pilot test a supportive care model, to enhance cancer care in this population.</div></div><div><h3>Methods</h3><div>The model was developed through three phases. In phase I, a barrier analysis and prototype of the model were conducted from reviewing the literature and through 162 informal interviews with healthcare professionals, patients and patient representatives. In phase II, the prototype was refined through four workshops with a total of five cancer nurses, four clinical oncologists, three psychiatrists, two general practitioners, one psychologist, and 16 patient representatives. Thereafter, a pilot test with 13 patients was carried out, where continuous adaptations to the prototype from phase II, were made. The quantitative and qualitative data were analysed focusing on components which were prominent and able to fit into the clinical setting.</div></div><div><h3>Results</h3><div>The final CASEMED supportive cancer care model included: Early identification of psychiatric comorbidity, engagement of significant caregivers, education of the oncological HCPs, securing continuity among staff and enhanced collaboration between sectors. The latter was achieved through an online psychiatric multidisciplinary team conference where the patient's general practitioner, a psychiatrist and the patient's oncologist participated.</div></div><div><h3>Conclusion</h3><div>This study indicates that the model can be implemented in practice and has the potential to optimize cancer care for patients with cancer and pre-existing SMD. A larger feasibility study is currently being conducted.</div></div>","PeriodicalId":51048,"journal":{"name":"European Journal of Oncology Nursing","volume":"74 ","pages":"Article 102748"},"PeriodicalIF":2.7,"publicationDate":"2025-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142796561","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Yanjia Li , Jojo Cho Lee Wong , Suqi Ou , Fang Yang , Siyuan Tang , Jiarui Chen
{"title":"Intimate partner violence and its associated psychosocial factors among women with breast and/or cervical cancer in China: A cross-sectional study","authors":"Yanjia Li , Jojo Cho Lee Wong , Suqi Ou , Fang Yang , Siyuan Tang , Jiarui Chen","doi":"10.1016/j.ejon.2024.102759","DOIUrl":"10.1016/j.ejon.2024.102759","url":null,"abstract":"<div><h3>Purpose</h3><div>This study aimed to investigate the prevalence of intimate partner violence among women with breast cancer and/or cervical cancer in China and to explore its psychosocial associated factors.</div></div><div><h3>Methods</h3><div>From July to September 2023, we firstly conducted reliability and validity tests using the simplified Chinese version of the Women Abuse Screening Tool in 150 women with breast and/or cervical cancer. We then used a questionnaire comprising the Chinese version of the Women Abuse Screening Tool, Multidimensional Scale of Perceived Social Support, European Organization for Research and Treatment Quality of Life Questionnaire-Core 30, and Experiences in Close Relationships Inventory Scale in 401 women with breast and/or cervical cancer. The descriptive and inferential statistics were determined using SPSS 26.0 version.</div></div><div><h3>Results</h3><div>The prevalence of intimate partner violence in China among women with breast and/or cervical cancer was 40.9% and 49.00%, respectively. Through logistic regression analysis, we found that current work status, monthly income, diagnosis time, attachment avoidance, and quality of life were factors affecting intimate partner violence in the women with breast and/or cervical cancer.</div></div><div><h3>Conclusion</h3><div>The prevalence of intimate partner violence among women with breast and/or cervical cancer was high in China. Intimate partner violence had a negative impact on social support and quality of life among the study participants, and their attachment patterns were more inclined to attachment avoidance. As medical workers, early intimate partner violence screening and appropriate intervention measures should be undertaken to reduce the impact of intimate partner violence on women with breast and/or cervical cancer.</div></div>","PeriodicalId":51048,"journal":{"name":"European Journal of Oncology Nursing","volume":"74 ","pages":"Article 102759"},"PeriodicalIF":2.7,"publicationDate":"2025-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142873347","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Schools’ need for information from the healthcare system when balancing between educational demands and the requirements of the child diagnosed with cancer: A qualitative study","authors":"Malin Lönnerblad , Mina Sedem , Karin Enskär","doi":"10.1016/j.ejon.2025.102780","DOIUrl":"10.1016/j.ejon.2025.102780","url":null,"abstract":"<div><h3>Purpose</h3><div>To improve patient care by describing teachers' and school leaders' experiences in teaching children diagnosed with cancer, to better understand which information would be beneficial for schools to receive from the healthcare system.</div></div><div><h3>Methods</h3><div>This qualitative study was based on semi-structured interviews with 15 teachers and six school leaders in primary, secondary, and high schools in Sweden (student ages 6–18). The data was analyzed with thematic analysis.</div></div><div><h3>Results</h3><div>Three main themes were revealed: <em>a different diagnosis from other diagnoses</em>, meaning that the respondents in this study perceived the information about a cancer diagnosis differently compared to other diagnoses due to the uncertain outcome of the child's condition and survival; <em>a balancing act</em>, including a need to balance schools' educational demands with the child's needs; and <em>a desire for more information,</em> especially pedagogical and school-related information.</div></div><div><h3>Conclusions</h3><div>The emotional impact on teachers of teaching a child with cancer is significant, and the medical information provided by consultant nurses from the hospitals was very appreciated and helpful. However, educators also highlighted their need for pedagogical information. This information would preferably come from a person specialized in special educational needs for children with cancer, for example, a teacher or a special education teacher from the hospital school or the oncological team.</div></div>","PeriodicalId":51048,"journal":{"name":"European Journal of Oncology Nursing","volume":"74 ","pages":"Article 102780"},"PeriodicalIF":2.7,"publicationDate":"2025-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143015622","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Zheng Sun , Yi Zhang , Xueli Yang , Ye Wang , Qiuping Li , Jie Zhao
{"title":"A randomized controlled trial of an intervention for unmet supportive care needs addressing colorectal cancer couples","authors":"Zheng Sun , Yi Zhang , Xueli Yang , Ye Wang , Qiuping Li , Jie Zhao","doi":"10.1016/j.ejon.2025.102805","DOIUrl":"10.1016/j.ejon.2025.102805","url":null,"abstract":"<div><h3>Purpose</h3><div>Supported by the Supportive Care Needs Framework (SCNF), we developed a colorectal cancer (CRC) couple-based unmet supportive care needs (USCNs) intervention program, which has been proven to be feasible. The intention was to assess what the clinical efficacy of this intervention would be in CRC couples.</div></div><div><h3>Methods</h3><div>One hundred and sixty-eight CRC couples were randomly assigned to one of two groups: a control group (receiving normal care) or an intervention group (receiving normal care plus a five-week USCNs intervention). Information on USCNs, mutual communication, quality of life, and psychological adjustment was gathered from CRC couples both at baseline and right after the intervention. The collected data were examined using repeated measures analysis of variance (ANOVA).</div></div><div><h3>Results</h3><div>There were 135 CRC couples who completed the five-week intervention and post-intervention outcome measures (retention rate: 80.4%). Combining with the ANOVA results (p < 0.001 for both couples) and the intervention effect sizes Cohen's d (d = 0.33–0.60 for patients, d = 0.22–0.59 for spousal caregivers), the USCNs intervention is effective in improving USCNs, mutual communication, mental health, positive emotions, and negative emotions in CRC couples.</div></div><div><h3>Conclusion</h3><div>The CRC couple-based USCNs intervention effectively reduces USCNs and promotes cancer adjustment among CRC couples. This intervention can assist clinical staff in refining routine care components to enable couples to manage CRC more effectively. In the future, it will be essential to lengthen the follow-up duration to assess the efficacy of the intervention in the long term.</div></div>","PeriodicalId":51048,"journal":{"name":"European Journal of Oncology Nursing","volume":"74 ","pages":"Article 102805"},"PeriodicalIF":2.7,"publicationDate":"2025-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143061073","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Carolina Oliveira , Isabel C. Lisboa , Luciana Sotero , Ana Paula Relvas
{"title":"Behind the scenes of palliative care: Qualitative study with oncology family caregivers","authors":"Carolina Oliveira , Isabel C. Lisboa , Luciana Sotero , Ana Paula Relvas","doi":"10.1016/j.ejon.2025.102789","DOIUrl":"10.1016/j.ejon.2025.102789","url":null,"abstract":"<div><h3>Purpose</h3><div>Long-term caregiving tasks can be exhausting for family caregivers, resulting in high psychological morbidity. The study aims to explore the experiences, challenges, and strengths of family caregivers providing care for cancer patients in palliative care, in-patient or at home.</div></div><div><h3>Method</h3><div>Nine caregivers were included, predominantly women aged 34 to 70, from various regions of Portugal. They participated in four focus groups between May 2021 and May 2022, held online due to COVID-19 restrictions. A qualitative research methodology was employed, using semi-structured interviews conducted through focus groups. Data were analyzed using thematic analysis to identify key themes in caregivers' experiences.</div></div><div><h3>Results</h3><div>The study revealed several challenges, categorized into three main themes, listed in order of frequency: (lack of) communication, pain and suffering, and caregiver burden. Death emerged as a meta-category. Despite these difficulties, caregivers identified sources of strength and support that helped them cope during this time.</div></div><div><h3>Conclusions</h3><div>The findings underscore the profound impact of caregiving on family members and highlight the need for enriched support systems and interventions to reduce caregiver burden and suffering, boosting their resources. Despite its limitations, the study's diverse and rich content illustrate the value of group settings in fostering belonging and comfort among caregivers.</div></div>","PeriodicalId":51048,"journal":{"name":"European Journal of Oncology Nursing","volume":"74 ","pages":"Article 102789"},"PeriodicalIF":2.7,"publicationDate":"2025-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143061075","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Charlotte Ryan , Dervla Kelly , Rajnish K. Gupta , Hilary O Leary , Ruth Clifford , Amirhossein Jalali , Firinna McKenna Beattie , Shirley Baker , Fidelma Hackett
{"title":"Lymphoma follow-up pathway: A 10-year study to guide practice","authors":"Charlotte Ryan , Dervla Kelly , Rajnish K. Gupta , Hilary O Leary , Ruth Clifford , Amirhossein Jalali , Firinna McKenna Beattie , Shirley Baker , Fidelma Hackett","doi":"10.1016/j.ejon.2024.102757","DOIUrl":"10.1016/j.ejon.2024.102757","url":null,"abstract":"<div><h3>Purpose</h3><div>Lymphoma survivors who have received curative intent treatment are currently followed up at defined time points in medical and nurse-led clinics often indefinitely. The follow up protocol is often at the discretion of the treating physician. The aim of the study was to explore the clinical, biochemical and radiological presentation of patients with Diffuse Large B-cell Lymphoma (DLBCL) and Hodgkin Lymphoma (HL) treated with curative intent at the point of recurrence from first remission, and to understand if recurrence was detected at scheduled follow up.</div></div><div><h3>Methods</h3><div>A cross-sectional study of patients with DLBCL & HL on surveillance was carried out. Statistical analysis was performed to describe the clinical, biochemical and radiological characteristics of patients with DLBCL and HL at recurrence and to estimate the time to reoccurrence using the Kaplan–Meier estimator.</div></div><div><h3>Results</h3><div>There was a substantial number of patients with DLBCL & HL treated with curative intent on surveillance programmes (N = 226). Small numbers of this patient group relapsed (13%) with most of these occurring within 5 years of achieving remission (73%). In all cases relapse was detected at an unscheduled appointment, most often initiated by a patient reported symptom (97%).</div></div><div><h3>Conclusion</h3><div>The evidence for a benefit of routine follow-up, particularly beyond 5 years, for detecting relapse is unsupported. However, the multiple survivorship benefits of routine follow-up visits must also be considered. A personalised follow up Lymphoma pathway with direct access, provision of an end of treatment care plan, and signposting to survivorship services is recommended.</div></div>","PeriodicalId":51048,"journal":{"name":"European Journal of Oncology Nursing","volume":"74 ","pages":"Article 102757"},"PeriodicalIF":2.7,"publicationDate":"2025-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142869771","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}