Toni Ball, Liz Bailey, Conor Smyth, Jacqui Rowe, Phil Tittensor, Francesco Manfredonia
{"title":"Evaluating an epilepsy clinical nurse specialist development programme","authors":"Toni Ball, Liz Bailey, Conor Smyth, Jacqui Rowe, Phil Tittensor, Francesco Manfredonia","doi":"10.12968/bjnn.2024.20.sup1a.s6","DOIUrl":"https://doi.org/10.12968/bjnn.2024.20.sup1a.s6","url":null,"abstract":"There is a demand across the country for highly trained epilepsy specialist nurses (ESNs) due to the increasing number of patients that this long-term condition affects. It is estimated that 65 million people worldwide are affected by epilepsy. If not treated and supported effectively, epilepsy comes with high risk of mortality, comorbidities, stigma and high potential costs to the NHS. Patients who do not have access to a highly trained ESNs can be significantly and negatively affected by wrong diagnosis, gaps in knowledge when facing general care, incorrect and, on occasion, detrimental treatment options, poor epilepsy education and advocacy. Furthermore, patients living in rural areas often do not have access to large tertiary centres or neurologists with an interest in epilepsy. Due to this, access to ESNs running nurse-led clinics in smaller hospitals and community settings is vital to improving patient care. Nonetheless, there is a shortage of highly trained ESNs. The ESN development programme discussed in this article was formed as a concerted action to address recruitment challenges and widen the area and scope of care for people with an epilepsy diagnosis.","PeriodicalId":505118,"journal":{"name":"British Journal of Neuroscience Nursing","volume":"106 ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2024-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140463218","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Multiple sclerosis and lifestyle","authors":"George F Winter","doi":"10.12968/bjnn.2024.20.sup1.s32","DOIUrl":"https://doi.org/10.12968/bjnn.2024.20.sup1.s32","url":null,"abstract":"Multiple sclerosis (MS) is an inflammatory, demyelinating neurological condition that affects 2.9 million people worldwide. MS can be debilitating to those who are affected by it and can grossly affect their quality of life. In this article, the author explores the correlation between MS and lifestyle, and how diet and physical activity can alter the course of this disease in patients affected by it.","PeriodicalId":505118,"journal":{"name":"British Journal of Neuroscience Nursing","volume":"254 3","pages":""},"PeriodicalIF":0.0,"publicationDate":"2024-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140465167","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Marking 30 years of impact: looking ahead to a brighter tomorrow","authors":"Paru Naik","doi":"10.12968/bjnn.2024.20.sup1.s5","DOIUrl":"https://doi.org/10.12968/bjnn.2024.20.sup1.s5","url":null,"abstract":"","PeriodicalId":505118,"journal":{"name":"British Journal of Neuroscience Nursing","volume":"1401 ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2024-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140466971","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Nursing care competencies for multiple sclerosis","authors":"Mavis Ayer","doi":"10.12968/bjnn.2024.20.sup1.s24","DOIUrl":"https://doi.org/10.12968/bjnn.2024.20.sup1.s24","url":null,"abstract":"The UK Multiple Sclerosis Specialist Nurse Association's competency document, which was originally developed in 2008, aims to educate and increase awareness of multiple sclerosis among both specialist nurses and other non-specialist professionals. The latest document—revised in 2024—aims to showcase the most up-to-date information and serves not only as daily practice guidelines, but also promotes safe and effective practice in multiple sclerosis care.","PeriodicalId":505118,"journal":{"name":"British Journal of Neuroscience Nursing","volume":"9 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2024-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140463329","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Addressing an education need for bladder and bowel care in people with multiple sclerosis","authors":"Grace Elliott, Rita Som","doi":"10.12968/bjnn.2024.20.sup1.s16","DOIUrl":"https://doi.org/10.12968/bjnn.2024.20.sup1.s16","url":null,"abstract":"Specialist nurses could benefit from improved knowledge and understanding of the bladder and bowel symptoms experienced by people with multiple sclerosis. This article summarises a training day run by Coloplast Professional for nurses with the aim of increasing understanding and awareness of bladder and bowel issues in people with multiple sclerosis. The training day also aimed to raise the awareness of bladder and bowel issues in multiple sclerosis teams to improve patient outcomes.","PeriodicalId":505118,"journal":{"name":"British Journal of Neuroscience Nursing","volume":"913 ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2024-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140467467","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Creating and using a clinical testing tool in an epilepsy monitoring unit","authors":"Sumika Ouchida, Greg Fairbrother","doi":"10.12968/bjnn.2024.20.sup1a.s11","DOIUrl":"https://doi.org/10.12968/bjnn.2024.20.sup1a.s11","url":null,"abstract":"Video-electroencephalographic monitoring (VEM) is the gold standard for evaluating patients with epilepsy and seizures. The epilepsy monitoring unit (EMU) provides an environment in which to examine patients’ seizures using VEM, to diagnose and characterise events/seizures, and to conduct a presurgical evaluation. Seizure observation and assessment are crucial roles for clinical nurses working in the EMU. However, different institutions use different seizure assessment tools. This lack of standardisation complicates the provision of optimal care for patients with seizures. This article aims to synthesise current recommendations regarding the components of seizure assessment and describe how they have been organised to form a standardised assessment tool.","PeriodicalId":505118,"journal":{"name":"British Journal of Neuroscience Nursing","volume":"24 2","pages":""},"PeriodicalIF":0.0,"publicationDate":"2024-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140464026","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"New guidance on sodium valproate prescribing","authors":"Sue Thomas","doi":"10.12968/bjnn.2024.20.sup1a.s24","DOIUrl":"https://doi.org/10.12968/bjnn.2024.20.sup1a.s24","url":null,"abstract":"At the end of November 2023, the Medicines and Healthcare products Regulatory Agency published a UK-wide National Patient Safety Alert relating to the use of sodium valproate in men and women with epilepsy. Sue Thomas outlines the rationale for this and the implications for nurses who are caring for patients who might be taking this medication.","PeriodicalId":505118,"journal":{"name":"British Journal of Neuroscience Nursing","volume":"70 ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2024-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140464341","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Epilepsy specialist nurses: vital and valued by services and patients","authors":"Carrie Burke","doi":"10.12968/bjnn.2024.20.sup1a.s4","DOIUrl":"https://doi.org/10.12968/bjnn.2024.20.sup1a.s4","url":null,"abstract":"","PeriodicalId":505118,"journal":{"name":"British Journal of Neuroscience Nursing","volume":"161 ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2024-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140467719","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Advances in epilepsy","authors":"S. Palmer","doi":"10.12968/bjnn.2024.20.sup1a.s21","DOIUrl":"https://doi.org/10.12968/bjnn.2024.20.sup1a.s21","url":null,"abstract":"In this article, the author provides an overview of the advances made in epilepsy research and how these new therapies can positively affect the lives of those living with the condition.","PeriodicalId":505118,"journal":{"name":"British Journal of Neuroscience Nursing","volume":"43 40","pages":""},"PeriodicalIF":0.0,"publicationDate":"2024-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140464667","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}