{"title":"How and when would you like to die?","authors":"K. Dening","doi":"10.12968/bjnn.2024.20.1.5","DOIUrl":"https://doi.org/10.12968/bjnn.2024.20.1.5","url":null,"abstract":"","PeriodicalId":505118,"journal":{"name":"British Journal of Neuroscience Nursing","volume":"44 10","pages":""},"PeriodicalIF":0.0,"publicationDate":"2024-02-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140462419","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Ensuring quality of life after a craniotomy: a comparison of awake and ‘asleep’ cortical mapping","authors":"Francesca Ramadan","doi":"10.12968/bjnn.2024.20.1.20","DOIUrl":"https://doi.org/10.12968/bjnn.2024.20.1.20","url":null,"abstract":"A craniotomy is an intensive and invasive procedure, and many patients will be initially alarmed at the prospect of remaining fully or partially awake during such a major operation. Yet, the literature seems to suggest that awake craniotomies may be of greater benefit, with sustained consciousness throughout the procedure associated with improved cortical mapping and postoperative outcomes. However, as with all healthcare interventions, careful consideration of patient-related factors is key in maintaining an individual's functioning and quality of life. Francesc Ramadan elaborates.","PeriodicalId":505118,"journal":{"name":"British Journal of Neuroscience Nursing","volume":"105 ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2024-02-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140462114","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Introduction to perioperative neuroscience nursing","authors":"Scott Wilson","doi":"10.12968/bjnn.2024.20.1.29","DOIUrl":"https://doi.org/10.12968/bjnn.2024.20.1.29","url":null,"abstract":"Scott Wilson, one of the winners of BANN 2023's ‘Best clinical presentation’ award, introduces readers to perioperative neuroscience nursing through his own experience.","PeriodicalId":505118,"journal":{"name":"British Journal of Neuroscience Nursing","volume":"147 ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2024-02-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140462556","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Supporting a family living with young-onset dementia: a case study","authors":"Jules Knight, Amy Pepper","doi":"10.12968/bjnn.2024.20.1.13","DOIUrl":"https://doi.org/10.12968/bjnn.2024.20.1.13","url":null,"abstract":"In the UK, it is estimated that people living with young-onset dementia (YOD) accounts for a small, but significant, number of the total population living with dementia. The diagnosis happens at an unexpected time in one's life, and as a life-limiting condition, there are implications for the whole family, including managing employment, finances and debt, supporting dependent children and accessing age-appropriate support services. YOD causes a disproportionate burden on family members and appropriate care services can be challenging to find. The case study discussed follows a family's journey from pre-diagnosis, to subsequently engaging with the Admiral Nurse Helpline and then an Admiral Nurse in the family's locality, and considers the issues and challenges faced by them.","PeriodicalId":505118,"journal":{"name":"British Journal of Neuroscience Nursing","volume":"87 17","pages":""},"PeriodicalIF":0.0,"publicationDate":"2024-02-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140462675","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Annette Hand, Jill Wales, Glenda Cook, Alexandra Kirton
{"title":"Use of a mobile app by people with Parkinson's disease to improve self-management","authors":"Annette Hand, Jill Wales, Glenda Cook, Alexandra Kirton","doi":"10.12968/bjnn.2024.20.1.7","DOIUrl":"https://doi.org/10.12968/bjnn.2024.20.1.7","url":null,"abstract":"Parkinson's disease is a complex neurodegenerative condition. Due to the heterogeneity of symptoms that may be experienced, individualised treatment plans are essential. Hear Me Now (HMN) is an app developed for individuals with learning disabilities. Anecdotal evidence suggested people with chronic conditions, such as Parkinson's disease, might also benefit from using HMN in managing their complex health condition. This feasibility study sought to explore whether HMN was suitable for use in people with Parkinson's disease. A purposive sample of 4 people with Parkinson's were recruited. Following training, participants used the HMN app at home over 3 months. Interviews were used to explore their use of functions within the app; ease of use; any impact it had on their daily life; any barriers or facilitators to using the app. Most participants found HMN beneficial in managing their health condition. The HMN app merits further research for use in patient self-management.","PeriodicalId":505118,"journal":{"name":"British Journal of Neuroscience Nursing","volume":"42 8","pages":""},"PeriodicalIF":0.0,"publicationDate":"2024-02-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140462550","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Addressing the care and information needs of people living with advanced multiple sclerosis","authors":"Claire Winchester, Alison Whittam","doi":"10.12968/bjnn.2024.20.1.24","DOIUrl":"https://doi.org/10.12968/bjnn.2024.20.1.24","url":null,"abstract":"It is estimated that around 40000 people in the UK live with advanced multiple sclerosis (MS). These individuals experience a range of symptoms, and can often have moderate to severe impairment, with extensive care needs. In this article, the MS Trust provides relevant information on how to care for people with advanced MS, provides advice on future planning, and signposts individuals with the advanced MS, as well as their family and carers, to accessible online resources.","PeriodicalId":505118,"journal":{"name":"British Journal of Neuroscience Nursing","volume":"261 ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2024-02-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140462690","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"BANN conference: October 2024","authors":"Julie Derbyshire","doi":"10.12968/bjnn.2024.20.1.28","DOIUrl":"https://doi.org/10.12968/bjnn.2024.20.1.28","url":null,"abstract":"In this month's British Association of Neuroscience Nurses (BANN) Pages, Julie Derbyshire provides further information on the upcoming BANN conference and introduces readers to Scott Wilson, one of the winners of BANN 2023's ‘Best clinical presentation’ award.","PeriodicalId":505118,"journal":{"name":"British Journal of Neuroscience Nursing","volume":"83 14","pages":""},"PeriodicalIF":0.0,"publicationDate":"2024-02-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140462500","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Ruth Stross, Charlie Peel, Megan Roberts, Claire Winchester, Sue Thomas
{"title":"A simple and successful solution to issues relating to urinary tract infections in people with MS","authors":"Ruth Stross, Charlie Peel, Megan Roberts, Claire Winchester, Sue Thomas","doi":"10.12968/bjnn.2024.20.sup1.s6","DOIUrl":"https://doi.org/10.12968/bjnn.2024.20.sup1.s6","url":null,"abstract":"The coronavirus pandemic prompted one of the authors to develop a simple yet innovative solution to detecting urinary tract infections in people with multiple sclerosis, in order to improve their wellbeing and reduce hospital admissions. The initiative has been longer lasting, wider reaching and has had better outcomes than expected. The authors discuss the initiative, how and why it was developed, patient outcomes and limitations.","PeriodicalId":505118,"journal":{"name":"British Journal of Neuroscience Nursing","volume":"72 16","pages":""},"PeriodicalIF":0.0,"publicationDate":"2024-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140462941","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Fiona Magill, Stephen Ramsay, Gavin McDonnell, Stella Hughes
{"title":"Multiple sclerosis infusion service during the pandemic: service improvement","authors":"Fiona Magill, Stephen Ramsay, Gavin McDonnell, Stella Hughes","doi":"10.12968/bjnn.2024.20.sup1.s12","DOIUrl":"https://doi.org/10.12968/bjnn.2024.20.sup1.s12","url":null,"abstract":"Providing care to multiple sclerosis (MS) patients posed a challenge during the COVID-19 pandemic. Surge plans necessitated an abrupt change of facility for the infusion service, from an acute to a non-acute site. To assess patient satisfaction with the MS infusion service at a new location supervised by MS specialist nurses, in comparison with previous arrangements. Collection of anonymous patient surveys to assess patient demographics and levels of satisfaction across various service domains. Overall, 97% recorded a satisfaction score of ≥8/10. Key areas of improvement included difficulty parking, difficulty accessing the unit, appointment punctuality and comfort. Thematic analysis revealed several key improvement areas such as access to MS nursing knowledge, cannulation and punctuality. The urgently relocated service, with better access and specialist nursing input, was associated with improvements in patient experience. Despite unprecedented pressures, unique opportunities resulted in an overall improvement to the MS infusion service.","PeriodicalId":505118,"journal":{"name":"British Journal of Neuroscience Nursing","volume":"1402 ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2024-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140466970","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Making bladder management a priority for multiple sclerosis","authors":"Sue Thomas","doi":"10.12968/bjnn.2024.20.sup1.s27","DOIUrl":"https://doi.org/10.12968/bjnn.2024.20.sup1.s27","url":null,"abstract":"Multiple sclerosis (MS) can result in uro-neurological dysfunction, leading to a range of different urological problems that are distressing to the patient and costly for the NHS. Sue Thomas outlines why bladder management in MS needs greater focus to alleviate both negative patient experience and the financial burden of urinary dysfunction on the NHS.","PeriodicalId":505118,"journal":{"name":"British Journal of Neuroscience Nursing","volume":"98 ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2024-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140465466","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}