Ethnicity & DiseasePub Date : 2024-04-24eCollection Date: 2023-12-01DOI: 10.18865/ed.DECIPHeR.135
Shahnaz Khan, Cara Lewis, Xinzhi Zhang, Maliha Ilias, George Mensah
{"title":"Charting the Future of Health Equity Research: Lessons Learned and Future Aspirations for NHLBI's DECIPHeR Alliance.","authors":"Shahnaz Khan, Cara Lewis, Xinzhi Zhang, Maliha Ilias, George Mensah","doi":"10.18865/ed.DECIPHeR.135","DOIUrl":"10.18865/ed.DECIPHeR.135","url":null,"abstract":"<p><p>The Disparities Elimination through Coordinated Interventions to Prevent and Control Heart and Lung Disease Risk (DECIPHeR) research program, supported by the National Heart, Lung, and Blood Institute (NHLBI), focuses on developing and testing sustainable interventions to reduce heart and lung disease disparities. This perspective piece reflects on lessons learned during the planning phase (UG3) and outlines the accomplishments of the DECIPHeR Alliance. The article emphasizes the importance of a biphasic (UG3/UH3) funding mechanism, technical assistance, and collaborative subcommittees in achieving success. As DECIPHeR enters phase 2 (UH3), the article anticipates rigorously planned studies addressing social determinants of health and emphasizes the need for effective implementation strategies and equitable research frameworks. The Alliance's contributions, such as the IM4Equity framework, offer novel approaches to community-engaged health equity and implementation science research. The article explores future opportunities, including dissemination strategies, community engagement, and collaboration with diverse partners, to maximize DECIPHeR's impact on health disparities beyond cardiovascular and pulmonary health.</p>","PeriodicalId":50495,"journal":{"name":"Ethnicity & Disease","volume":null,"pages":null},"PeriodicalIF":3.4,"publicationDate":"2024-04-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11099515/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141285205","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Ethnicity & DiseasePub Date : 2024-04-24eCollection Date: 2023-12-01DOI: 10.18865/ed.DECIPHeR.6
Antoinette Schoenthaler, Doreen Colella, Franze De La Calle, Gisella Bueno, Jacalyn Nay, Masiel Garcia, George Shahin, Cristina Gago, Isaac Dapkins
{"title":"Key Principles Underlying a Research-Practice Alignment in a Federally Qualified Health Center.","authors":"Antoinette Schoenthaler, Doreen Colella, Franze De La Calle, Gisella Bueno, Jacalyn Nay, Masiel Garcia, George Shahin, Cristina Gago, Isaac Dapkins","doi":"10.18865/ed.DECIPHeR.6","DOIUrl":"10.18865/ed.DECIPHeR.6","url":null,"abstract":"<p><strong>Context: </strong>Minoritized populations such as racial and ethnic minorities and individuals of less privileged socioeconomic status experience a disproportionate burden of poor hypertension (HTN) control in the United States. Multilevel systems interventions have been shown to improve patient-level outcomes in minoritized populations; however, there remains a large translational gap in implementing these approaches into federally qualified health centers (FQHC), which serve those at highest risk of HTN-related morbidity and mortality. The paucity of purposeful collaborations between academic researchers and practice staff throughout the research process remains a significant roadblock to the timely translation of evidence to practice.</p><p><strong>Design: </strong>This commentary describes the key principles and best practices that underlie the development and sustainment of an equitable research-practice alignment, which is supporting the implementation of multilevel systems intervention for improved HTN care in a large FQHC in Brooklyn, New York. The key principles, which are derived from the central tenants of relationship development and maintenance in community-engaged participatory research, patient-centered outcomes research, and organizational alignment theory include (1) cocreation of a shared mental model, (2) bridging multilevel communication, (3) ensuring mutual accountability, and (4) creating a culture of continuous improvement.</p><p><strong>Conclusions: </strong>Together, the principles guide how the research and practice teams work together to achieve a shared goal of improving the health and well-being of minoritized patients through the provision of high quality, community-oriented HTN care. Best practices to sustain our alignment require an ongoing and deliberate investment in honest and transparent communication by all members.</p>","PeriodicalId":50495,"journal":{"name":"Ethnicity & Disease","volume":null,"pages":null},"PeriodicalIF":3.4,"publicationDate":"2024-04-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11099517/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141285264","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Ethnicity & DiseasePub Date : 2024-04-24eCollection Date: 2023-12-01DOI: 10.18865/ed.DECIPHeR.81
Farah Allouch, Katherine T Mills, Jodie Laurent, Flor Alvarado, Jeanette Gustat, Hua He, Jiang He, Keith C Ferdinand
{"title":"Perceived Religious Influence on Health Is Associated with Beneficial Health Behaviors in Members of Predominantly Black Churches.","authors":"Farah Allouch, Katherine T Mills, Jodie Laurent, Flor Alvarado, Jeanette Gustat, Hua He, Jiang He, Keith C Ferdinand","doi":"10.18865/ed.DECIPHeR.81","DOIUrl":"10.18865/ed.DECIPHeR.81","url":null,"abstract":"<p><strong>Background: </strong>Cardiovascular disease is the leading cause of death in the United States, and Black populations are disproportionately affected. Black populations also have high rates of religiosity, which may be an important health motivator, but mechanisms are unclear.</p><p><strong>Objective: </strong>We examined the relationship between perceived religious influence on health and cardiovascular health behaviors, risk factors, and confidence participating in medical care in Black church congregants.</p><p><strong>Methods: </strong>We surveyed 302 members of 13 churches with predominantly Black congregations in New Orleans, Louisiana. Participants reported if religious beliefs had an influence on their health and if they avoided harmful behaviors because of religion. Fruit and vegetable intake, physical activity, smoking status, confidence asking questions to health care providers, understanding treatment plans and self-reported hypertension, hypercholesterolemia, and diabetes were assessed. Logistic regression was used adjusting for age, sex, and education.</p><p><strong>Results: </strong>Survey respondents were 77% female with a median age of 66 years, and 72%, 56%, and 37% reported hypertension, hypercholesterolemia, and diabetes, respectively. Perceived religious influence on health was positively associated with fruit and vegetable intake, physical activity, and confidence asking questions to health care providers. Avoiding harmful behaviors because of religion was positively associated with physical activity. There was no association between perceived religious influence on health and smoking, hypertension, hypercholesterolemia, or diabetes.</p><p><strong>Conclusion: </strong>Perceived religious influence on health was associated with beneficial cardiovascular health behaviors and confidence participating in medical care. These findings can inform the design and delivery of interventions to reduce cardiovascular disease among Black religious communities.</p>","PeriodicalId":50495,"journal":{"name":"Ethnicity & Disease","volume":null,"pages":null},"PeriodicalIF":3.4,"publicationDate":"2024-04-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11099522/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141285267","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Ethnicity & DiseasePub Date : 2024-04-24eCollection Date: 2023-09-01DOI: 10.18865/ed.33.4.140
Cristina Gago, H June O'Neill, Martha Tamez, Andrea López-Cepero, José F Rodríguez-Orengo, Josiemer Mattei
{"title":"Self-Rated Health and Medically Diagnosed Chronic Disease Association among Adults in Puerto Rico.","authors":"Cristina Gago, H June O'Neill, Martha Tamez, Andrea López-Cepero, José F Rodríguez-Orengo, Josiemer Mattei","doi":"10.18865/ed.33.4.140","DOIUrl":"10.18865/ed.33.4.140","url":null,"abstract":"<p><strong>Introduction: </strong>Latinos report lower self-rated health (SRH) than non-Hispanic White persons. However, the association between SRH and medically diagnosed chronic diseases (MDCDs) remains understudied in Latino populations. This study assessed the relationship between a single-item SRH indicator and MDCD status among predominantly Latino adults in Puerto Rico.</p><p><strong>Methods: </strong>Participants (30-75 years; n=965) of the Puerto Rico Observational Study of Psychosocial, Environmental, and Chronic Disease Trends (PROSPECT) reported SRH (excellent/very good, good, or fair/poor) and MDCD (ever vs never). We performed multivariate logistic regressions to evaluate the association between SRH and MDCD, which adjusted for key socioeconomic, demographic, and behavioral confounders.</p><p><strong>Results: </strong>Twenty-seven percent of participants reported excellent/very good SRH, 39% good, and 34% fair/poor. Participants with fair/poor SRH (vs excellent/very good) were more likely to report MDCD for painful inflammation (odds ratio [OR]=4.95 [95% CI, 3.27-7.48]), kidney disease (4.64 [2.16-9.97]), sleep disorder (4.47 [2.83-7.05]), migraine headaches (4.07 [2.52-6.58]), overweight/obesity (3.84 [2.51-5.88]), depression (3.61 [2.28-5.74]), hypertension (3.59 [2.43-5.32]), high blood sugar (3.43 [2.00-5.89]), cardiovascular disease (3.13 [2.01-4.87]), anxiety (2.87 [1.85-4.44]), arthritis (2.80 [1.83-4.30]), diabetes (2.46 [1.57-3.83]), respiratory problems (2.45 [1.59-3.79]), stomach problems (2.44 [1.57-3.81]), eye disease (2.42 [1.44-4.06]), gallbladder disease (2.34 [1.35-4.05]), liver disease (2.26 [1.38-3.70]), heartburn (2.25 [1.55-3.26]), hyperlipidemia (2.10 [1.44-3.06]), and thyroid conditions (2.04 [1.30-3.21]).</p><p><strong>Conclusions: </strong>SRH may reflect MDCD burden and serve as a valid screener to efficiently identify Latino individuals in high need of clinical services. This is relevant in Puerto Rico, where chronic disease rates remain high amid limited, disparate access to health care.</p>","PeriodicalId":50495,"journal":{"name":"Ethnicity & Disease","volume":null,"pages":null},"PeriodicalIF":3.4,"publicationDate":"2024-04-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11155621/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141297201","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Ethnicity & DiseasePub Date : 2024-04-24eCollection Date: 2023-12-01DOI: 10.18865/ed.DECIPHeR.89
Katherine T Mills, Jodie Laurent, Farah Allouch, Marilyn J Payne, Jeanette Gustat, Hua He, Flor Alvarado, Andrew Anderson, Joshua D Bundy, Jing Chen, Keith C Ferdinand, Jiang He
{"title":"Engaging Predominantly Black Churches in an Intervention to Improve Cardiovascular Health and Reduce Racial Inequities.","authors":"Katherine T Mills, Jodie Laurent, Farah Allouch, Marilyn J Payne, Jeanette Gustat, Hua He, Flor Alvarado, Andrew Anderson, Joshua D Bundy, Jing Chen, Keith C Ferdinand, Jiang He","doi":"10.18865/ed.DECIPHeR.89","DOIUrl":"10.18865/ed.DECIPHeR.89","url":null,"abstract":"<p><p>Cardiovascular disease (CVD) is the leading cause of mortality in the United States and disproportionately impacts Black adults. Effective implementation of interventions to improve cardiovascular health in the Black community is needed to reduce health inequities. The Church-Based Health Intervention to Eliminate Health Inequalities in Cardiovascular Health (CHERISH) study is implementing interventions recommended by the 2019 American College of Cardiology/American Heart Association guideline on the primary prevention of CVD in Black communities to improve cardiovascular health and reduce health disparities. The recently completed 3-year planning phase of CHERISH has focused on engaging with the predominantly Black church community in New Orleans with the goals of informing study protocol development and recruiting churches for study participation. Community engagement approaches include convening a community advisory board (CAB), conducting qualitative and quantitative needs assessments, and hosting and attending church events. These activities have resulted in an engaged CAB that has contributed meaningfully to planning activities and the study protocol. The needs assessment found that while there are substantial barriers to cardiovascular health, such as knowledge, access to healthy foods, and safe spaces for physical activity, people are willing to make lifestyle changes and think that the proposed intervention components are feasible. Community engagement activities have resulted in the recruitment of 50 geographically and denominationally diverse predominantly Black churches willing to participate in the study (exceeding our goal of 42). Overall, a multicomponent approach to extensive community engagement has produced effective church enrollment for study participation and meaningful input on study design and implementation.</p>","PeriodicalId":50495,"journal":{"name":"Ethnicity & Disease","volume":null,"pages":null},"PeriodicalIF":3.4,"publicationDate":"2024-04-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11099532/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141285210","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Ethnicity & DiseasePub Date : 2024-04-24eCollection Date: 2023-09-01DOI: 10.18865/ed.33.4.150
Felicia Schanche Hodge, Rey Paolo Ernesto Roca, Christine Samuel-Nakamura, Wendie Robbins, Umme Shefa Warda
{"title":"Suicide Ideation and the Association of Chronic Disease among American Indians.","authors":"Felicia Schanche Hodge, Rey Paolo Ernesto Roca, Christine Samuel-Nakamura, Wendie Robbins, Umme Shefa Warda","doi":"10.18865/ed.33.4.150","DOIUrl":"10.18865/ed.33.4.150","url":null,"abstract":"<p><strong>Objective: </strong>To explore associations of chronic disease, perceived wellness, adverse experiences, and suicide ideation among American Indians.</p><p><strong>Methods: </strong>Thirteen California health clinic registries formed the random household survey sampling frame (N=459) during the first stage of an intervention trial on wellness. Measures included sociodemographics, wellness status, health conditions, suicide ideation, cultural connectivity (speaking tribal language, participating in cultural practices, and feeling connected to the community), and history of physical, sexual, verbal abuse and neglect in childhood, adolescence, and adulthood. Chi square and Fisher exact tests examined bivariate, unadjusted relationships, while multiple logistic regression analysis examined adjusted associations.</p><p><strong>Results: </strong>Adverse experiences, specifically physical abuse and sexual abuse, were associated with obesity in childhood. Having poor cultural connectivity was significantly associated with (1) low perceptions of wellness; (2) physical abuse in childhood and adolescence; (3) sexual abuse in childhood, adolescence, and adulthood; and (4) verbal abuse and neglect in adulthood. Poor perception of wellness was also correlated with suicide ideation.</p><p><strong>Conclusions: </strong>The relationships between suicide ideation, chronic disease, connectivity, and perception of wellness among American Indians are explored in this article.</p>","PeriodicalId":50495,"journal":{"name":"Ethnicity & Disease","volume":null,"pages":null},"PeriodicalIF":3.4,"publicationDate":"2024-04-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11155625/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141297202","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Ethnicity & DiseasePub Date : 2024-04-24eCollection Date: 2023-12-01DOI: 10.18865/ed.DECIPHeR.18
Justin D Smith, Allison J Carroll, Olutobi A Sanuade, Rebecca Johnson, Emily M Abramsohn, Hiba Abbas, Faraz S Ahmad, Alice Eggleston, Danielle Lazar, Stacy Tessler Lindau, Megan McHugh, Nivedita Mohanty, Sarah Philbin, El A Pinkerton, Linda L Rosul, James L Merle, Yacob G Tedla, Theresa L Walunas, Paris Davis, Abel Kho
{"title":"Process of Engaging Community and Scientific Partners in the Development of the CIRCL-Chicago Study Protocol.","authors":"Justin D Smith, Allison J Carroll, Olutobi A Sanuade, Rebecca Johnson, Emily M Abramsohn, Hiba Abbas, Faraz S Ahmad, Alice Eggleston, Danielle Lazar, Stacy Tessler Lindau, Megan McHugh, Nivedita Mohanty, Sarah Philbin, El A Pinkerton, Linda L Rosul, James L Merle, Yacob G Tedla, Theresa L Walunas, Paris Davis, Abel Kho","doi":"10.18865/ed.DECIPHeR.18","DOIUrl":"10.18865/ed.DECIPHeR.18","url":null,"abstract":"<p><strong>Objectives: </strong>Hypertension affects 1 in 3 adults in the United States and disproportionately affects African Americans. Kaiser Permanente demonstrated that a \"bundle\" of evidence-based interventions significantly increased blood pressure control rates. This paper describes a multiyear process of developing the protocol for a trial of the Kaiser bundle for implementation in under-resourced urban communities experiencing cardiovascular health disparities during the planning phase of this biphasic award (UG3/UH3).</p><p><strong>Methods: </strong>The protocol was developed by a collaboration of faith-based community members, representatives from community health center practice-based research networks, and academic scientists with expertise in health disparities, implementation science, community-engaged research, social care interventions, and health informatics. Scientists from the National Institutes of Health and the other grantees of the Disparities Elimination through Coordinated Interventions to Prevent and Control Heart and Lung Disease Risk (DECIPHeR) Alliance also contributed to developing our protocol.</p><p><strong>Results: </strong>The protocol is a hybrid type 3 effectiveness-implementation study using a parallel cluster randomized trial to test the impact of practice facilitation on implementation of the Kaiser bundle in community health centers compared with implementation without facilitation. A central strategy to the Kaiser bundle is to coordinate implementation via faith-based and other community organizations for recruitment and navigation of resources for health-related social risks.</p><p><strong>Conclusions: </strong>The proposed research has the potential to improve identification, diagnosis, and control of blood pressure among under-resourced communities by connecting community entities and healthcare organizations in new ways. Faith-based organizations are a trusted voice in African American communities that could be instrumental for eliminating disparities.</p>","PeriodicalId":50495,"journal":{"name":"Ethnicity & Disease","volume":null,"pages":null},"PeriodicalIF":3.4,"publicationDate":"2024-04-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11099531/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141285269","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Ethnicity & DiseasePub Date : 2024-04-24eCollection Date: 2023-09-01DOI: 10.18865/ed.33.4.194
Katrina R Ellis, Tiffany L Young, Aisha T Langford
{"title":"Family Health Equity in Chronic Disease Prevention and Management.","authors":"Katrina R Ellis, Tiffany L Young, Aisha T Langford","doi":"10.18865/ed.33.4.194","DOIUrl":"10.18865/ed.33.4.194","url":null,"abstract":"<p><strong>Introduction/purpose: </strong>Efforts to improve chronic disease outcomes among US adults highlight families, particularly support from families, as a key aspect of disease prevention and management. To date, however, an overwhelming focus on individual-level outcomes and unidirectional support (eg, from a family caregiver to an identified care recipient) belies the existence of co-occurring health concerns and interdependent care. There are increasing calls for more sophisticated and intensive family health interventions that better integrate family-level factors, processes, and outcomes to provide comprehensive family support services in health care and community-based settings.</p><p><strong>Methods: </strong>This commentary provides key considerations for advancing this work while centering family health equity and families themselves in health initiatives.</p><p><strong>Results: </strong>Several critical barriers are identified and discussed. For example, a narrow focus on family and inadequate measures of family-level disease burden make it challenging to understand how the disproportionate burden of chronic disease observed among individuals of lower socioeconomic status and certain racial and ethnic groups compounds and complicates family health experiences. In addition, limited attention to the interaction between individuals, families, and broader sociocultural factors that influence family resources and constraints, such as racism, hamper program design, implementation, and evaluation.</p><p><strong>Conclusion: </strong>To center families in efforts to reduce chronic disease disparities, it is necessary to move beyond superficial attention to the complexity of disease prevention and management within the family context. This commentary serves to enhance understanding of important drivers of family-level chronic disease outcomes, while providing important considerations for advancing research and practice.</p>","PeriodicalId":50495,"journal":{"name":"Ethnicity & Disease","volume":null,"pages":null},"PeriodicalIF":3.4,"publicationDate":"2024-04-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11155619/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141297162","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Ethnicity & DiseasePub Date : 2024-04-24eCollection Date: 2023-12-01DOI: 10.18865/ed.DECIPHeR.96
Ana Peralta-Garcia, Jodie Laurent, Alessandra N Bazzano, Marilyn J Payne, Andrew Anderson, Flor Alvarado, Keith C Ferdinand, Jiang He, Katherine T Mills
{"title":"Barriers and Facilitators to Improving Cardiovascular Health in Churches with Predominantly Black Congregations.","authors":"Ana Peralta-Garcia, Jodie Laurent, Alessandra N Bazzano, Marilyn J Payne, Andrew Anderson, Flor Alvarado, Keith C Ferdinand, Jiang He, Katherine T Mills","doi":"10.18865/ed.DECIPHeR.96","DOIUrl":"10.18865/ed.DECIPHeR.96","url":null,"abstract":"<p><strong>Objective: </strong>Black communities bear a disproportionate burden of cardiovascular disease (CVD). Barriers and facilitators for improving cardiovascular health (CVH) in churches with predominantly black congregations were explored through a qualitative needs assessment.</p><p><strong>Methods: </strong>Four focus groups with church members (n=21), 1 with wellness coordinators (n=5), and 1 with primary care providers (n=4) and 7 individual interviews with church leaders were completed in New Orleans and Bogalusa, Louisiana. Virtual, semistructured interviews and focus groups were held between October 2021 and April 2022. The Theorical Domains Framework (TDF) guided a framework analysis of transcribed data based on inductive and deductive coding to identify themes related to determinants of CVH.</p><p><strong>Results: </strong>The following four domains according to the TDF were identified as the most relevant for improving CVH: knowledge, professional role, environmental context, and emotions. Within these domains, barriers expressed by church leadership and members were a lack of knowledge of CVD, provider distrust, and little time and resources for lifestyle changes; facilitators included existing church wellness programs and social support, community resources, and willingness to improve patient-provider relationships. Primary care providers recognized a lack of effective communication and busy schedules as obstacles and the need to strengthen communication through increased patient autonomy and trust. Potential strategies to improve CVH informed by the Expert Recommendation for Implementing Change compilation of implementation strategies include education and training, task shifting, dissemination of information, culturally tailored counselling, and linkage to existing resources.</p><p><strong>Conclusions: </strong>These findings can inform the implementation of interventions for improving cardiovascular health and reducing disparities in black church communities.</p>","PeriodicalId":50495,"journal":{"name":"Ethnicity & Disease","volume":null,"pages":null},"PeriodicalIF":3.4,"publicationDate":"2024-04-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11099528/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141285204","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Ethnicity & DiseasePub Date : 2024-04-24eCollection Date: 2023-12-01DOI: 10.18865/ed.DECIPHeR.126
Sarah E Brewer, Lisa R DeCamp, Julia Reedy, Rachel Armstrong, Heather H DeKeyser, Monica J Federico, Arthur McFarlane, Gino Figlio, Amy G Huebschmann, Stanley J Szefler, Lisa Cicutto
{"title":"Developing a Social Determinants of Health Needs Assessment for Colorado Kids (SNACK) Tool for a School-Based Asthma Program: Findings from a Pilot Study.","authors":"Sarah E Brewer, Lisa R DeCamp, Julia Reedy, Rachel Armstrong, Heather H DeKeyser, Monica J Federico, Arthur McFarlane, Gino Figlio, Amy G Huebschmann, Stanley J Szefler, Lisa Cicutto","doi":"10.18865/ed.DECIPHeR.126","DOIUrl":"10.18865/ed.DECIPHeR.126","url":null,"abstract":"<p><strong>Background: </strong>School-based asthma programs effectively address poorly controlled asthma and asthma disparities, especially when coupled with screening for and addressing social determinants of health (SDOH) needs. Existing screening tools are tailored to clinical settings; therefore, we sought to develop a community-based SDOH screening tool.</p><p><strong>Design/methods: </strong>We used a four-phase iterative design process to develop and pilot a community-based screening tool. We used a modified Delphi process to identify screening tool domains, identified validated items for inclusion, and developed an appropriate tool layout for populations with limited health/general literacy. Community advisory boards reviewed and refined a draft tool. Next, we conducted a qualitative pilot test of acceptability to parents and feasibility for staff in a community health center.</p><p><strong>Results: </strong>Six domains are included in our SDOH screening tool: health care access, transportation, food insecurity, public benefits, housing, and utilities. In the pilot test, 41 screenings were completed, and 36 parents (16.7% Spanish speaking) provided feedback. Most families understood the purpose of the screening; felt that the questions were clear, appropriate, and quick to complete; and liked the pictures. The clinic's care coordinator expressed a preference for the pilot tool compared to their existing screening tool and recommended improvements to encourage honest reporting by patients.</p><p><strong>Conclusion: </strong>This community-based screening tool addresses key SDOH needs that impact asthma and is acceptable to families. The next steps are to implement the tool in school-based asthma programs to support improvements in asthma outcomes and disparities by identifying and addressing families' unmet SDOH needs.</p>","PeriodicalId":50495,"journal":{"name":"Ethnicity & Disease","volume":null,"pages":null},"PeriodicalIF":3.4,"publicationDate":"2024-04-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11099530/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141285209","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}