Patient Education and Counseling最新文献

{"title":"Content and quality of consumer websites providing information about human papillomavirus infection in patients with systemic lupus erythematosus: An environmental scan","authors":"Juan I. Ruiz ,&nbsp;Contessa Radabaugh ,&nbsp;Yimin Geng ,&nbsp;Maria E. Suarez-Almazor","doi":"10.1016/j.pec.2025.108644","DOIUrl":"10.1016/j.pec.2025.108644","url":null,"abstract":"<div><h3>Objective</h3><div>We aimed to evaluate the content and quality of websites for consumers providing information about human papillomavirus (HPV) risks in patients with systemic lupus erythematosus (SLE).</div></div><div><h3>Methods</h3><div>We conducted an environmental scan of websites for patients and the general public with information about HPV and SLE. We searched Google from inception to June 2023, using the terms “HPV” and “lupus”. We included websites with information about HPV and SLE. Two reviewers appraised the websites and collected website characteristics, and rated various attributes: completeness and comprehensiveness, accuracy, technical elements, design and aesthetics, usability, readability, and accessibility.</div></div><div><h3>Results</h3><div>We identified 16 websites for analysis. Ten (62.5 %) were commercial websites One website provided complete and comprehensive information about HPV risk, screening, and vaccination in patients with SLE; 7 (44 %) websites provided only information about the HPV vaccine. Eight websites included risk of HPV infection, cervical cancer screening, and cervical cancer risk in patients with SLE. Seventy-five percent provided information based on clinical guidelines, textbooks, peer-reviewed papers or scientific publications while the remaining were based on expert opinions. All websites were considered to have adequate design and aesthetics and were easy to navigate. Only 1 (6 %) website had a 6th-grade reading level and the other had reading levels higher than that (not appropriate for consumer websites). The overall quality scores ranged from 32 to 51 (maximum 69).</div></div><div><h3>Conclusion</h3><div>Our findings showed that most websites for patients and the general public with information about HPV and SLE did not provide complete and comprehensive information about HPV.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"133 ","pages":"Article 108644"},"PeriodicalIF":2.9,"publicationDate":"2025-01-09","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142972923","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Stigma towards functional disability and anxiety among patients with cancer: The moderating role of physicians’ behaviors","authors":"Anat Katalan ,&nbsp;Efrat Dagan ,&nbsp;Anat Drach-Zahavy","doi":"10.1016/j.pec.2025.108643","DOIUrl":"10.1016/j.pec.2025.108643","url":null,"abstract":"<div><h3>Objective</h3><div>To explore the moderating role of physicians' behaviors in medical encounters with cancer patients in the association between physicians’ public stigma towards functional disability and post-meeting patient anxiety.</div></div><div><h3>Methods</h3><div>A three time-point prospective nested study was conducted between November 2019 and July 2022 in two medical centres. Before the medical encounters, 32 physicians completed the Disability Attitudes in Health Care Scale, and 150 adult cancer patients completed the State-Trait Anxiety Inventory (STAI), pre and post medical encounters. During the medical encounters, structured ‘real-time’ observations of the physicians’ behaviors were recorded using the Four Habits Coding Scheme.</div></div><div><h3>Results</h3><div>The mixed linear analysis model revealed that the two-way interaction between stigma towards functional disability and physicians’ communication behaviors was significantly associated with post-meeting anxiety (b=.161, p &lt; .05). When physicians’ behaviors were more negative, the association between physicians’ stigma and patients’ post-meeting anxiety was stronger. Additionally, pre-meeting anxiety was positively associated with post-meeting anxiety (b=.578, p &lt; .01).</div></div><div><h3>Conclusions</h3><div>The findings highlight the positive effect of stigma and the importance of physicians' communication behaviors in alleviating patients’ anxiety associated stigma towards functional disability.</div></div><div><h3>Practice implications</h3><div>Healthcare training programs should address stigma and develop protocols encouraging healthcare professionals to request patients' to share their specific needs.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"134 ","pages":"Article 108643"},"PeriodicalIF":2.9,"publicationDate":"2025-01-06","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143015086","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Effectiveness of a Calgary-Cambridge model-based communication skills training for paediatric trainees in Sri Lanka: A nationwide pre-post intervention study using observed practices","authors":"Kavinda Dayasiri ,&nbsp;Sinnarajah Krishnapradeep ,&nbsp;Dihan Caldera ,&nbsp;Hashini Wijayasinghe ,&nbsp;Rasnayaka Mudiyanse","doi":"10.1016/j.pec.2025.108635","DOIUrl":"10.1016/j.pec.2025.108635","url":null,"abstract":"<div><h3>Objective</h3><div>To evaluate the effectiveness of a Calgary-Cambridge model-based communication skills training program for postgraduate paediatric trainees in Sri Lanka.</div></div><div><h3>Methods</h3><div>A pre-post intervention study was conducted among 133 paediatric trainees across Sri Lanka. The training program focused on relationship-building, information gathering, and information giving. Communication skills were assessed using an OSCE with simulated patients and a 12-item checklist. Paired t-tests were used to analyze score differences.</div></div><div><h3>Results</h3><div>Significant improvements were observed across all domains. Relationship-building scores increased from 13.5 to 23, information gathering from 12.6 to 20.2, and information giving from 13.3 to 24.8 (p &lt; 0.01 for all). Relationship-building correlated positively with information gathering (r = 0.626) and giving (r = 0.600, p &lt; 0.01). Trainees with prior communication training scored higher post-intervention (mean difference = 10.5, p = 0.019). No gender differences were observed.</div></div><div><h3>Conclusion</h3><div>The Calgary-Cambridge model-based training program effectively enhanced communication skills among Sri Lankan paediatric trainees.</div></div><div><h3>Practice implications</h3><div>Incorporating structured communication skills training into postgraduate curricula is essential, particularly in culturally diverse medical settings.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"133 ","pages":"Article 108635"},"PeriodicalIF":2.9,"publicationDate":"2025-01-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142967134","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"How children and adolescents with chronic pain describe their pain experiences: A qualitative systematic review","authors":"Jessica Coventry ,&nbsp;Verity Pacey ,&nbsp;Mitchell Smith ,&nbsp;Cylie M Williams ,&nbsp;Binh Ta ,&nbsp;Elizabeth Sturgiss","doi":"10.1016/j.pec.2025.108634","DOIUrl":"10.1016/j.pec.2025.108634","url":null,"abstract":"<div><h3>Purpose</h3><div>To explore how children and adolescents with chronic pain describe their pain experiences.</div></div><div><h3>Method</h3><div>A systematic search of OVID Medline, CINAHL Complete, OVID Embase and APA PsycINFO (database inception to 19th August 2024) was conducted for qualitative or mixed-method studies investigating children’s chronic pain experiences. Studies were excluded if focused on post-surgical or acute pain. Two independent reviewers screened studies, and disagreements resolved by a third reviewer. Methodological quality was assessed with the CASP checklist. Data from included studies were extracted and analysed using qualitative analysis.</div></div><div><h3>Results</h3><div>Forty studies were included, and 4 main themes were identified: 1. ‘I’m missing out because of my pain’; in which children described frustration and isolation due to missing activities. 2. ‘Things that help me to get by with my pain’; described a variety of children’s coping mechanisms. 3. ‘It hurts and no one else understands my pain’; where children felt frequently disbelieved about their pain severity, and 4. ‘I keep trying to make sense of my pain’; in which children identified ways they seek to understand the cause and possible outcomes of their pain, including accessing health care services<strong>.</strong></div></div><div><h3>Conclusions</h3><div>This review highlights how children describe their pain challenges in managing their day to day while emphasising the necessity of understanding and incorporating children’s perspectives into research and practice.</div></div><div><h3>Practice Implications</h3><div>This review found that children were primarily concerned by how their pain affects their day-to-day activities and highlights the need to equip children with multiple strategies and promote autonomy in managing their pain. Additionally, further research is warranted into the ways that children understand their pain experience and seek information about their pain.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"134 ","pages":"Article 108634"},"PeriodicalIF":2.9,"publicationDate":"2025-01-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143042914","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Developing a patient toolkit for opioid use and management through co-creation","authors":"Kuan-chin Jean Chen ,&nbsp;Lisa Graves ,&nbsp;Eleftherios Soleas ,&nbsp;Mathieu Jackson ,&nbsp;Annie Descoteaux ,&nbsp;Vanessa Balounaïck-Arowas ,&nbsp;Nada Strathearn ,&nbsp;Rob Van Hoorn ,&nbsp;Nicholas Cofie ,&nbsp;Nancy Dalgarno","doi":"10.1016/j.pec.2024.108632","DOIUrl":"10.1016/j.pec.2024.108632","url":null,"abstract":"<div><div>Canada has been experiencing an opioid use crisis, and urgent efforts are being made to stem the tide. With funding support from Health Canada, the Association of Faculties of Medicine of Canada (AFMC) recently developed a series of asynchronous online bilingual modules to educate key players across the medical education spectrum on chronic pain and opioid use. The curriculum for the modules which informed the development of the Patient-Physician Partnership Toolkit was co-created through an authentic collaboration between healthcare professionals (HCPs), and patient subject matter experts who were patients with lived experience. This discussion paper presents the methods and procedures employed in co-creating the patient toolkit with patient SMEs and presents the lessons learned for improving future partnerships.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"133 ","pages":"Article 108632"},"PeriodicalIF":2.9,"publicationDate":"2025-01-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142967127","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Physician-dominated conversations: An analysis of illness understanding discussions among patients with advanced cancer","authors":"Brigitte N. Durieux ,&nbsp;Samuel R. Zverev ,&nbsp;Nicole D. Agaronnik ,&nbsp;Joshua Davis ,&nbsp;Kathryn I. Pollak ,&nbsp;James A. Tulsky ,&nbsp;Elise Tarbi ,&nbsp;Charlotta Lindvall","doi":"10.1016/j.pec.2024.108633","DOIUrl":"10.1016/j.pec.2024.108633","url":null,"abstract":"<div><h3>Context</h3><div>Effective communication between patients and oncologists is crucial, particularly around illness understanding. When this communication is asymmetric or imbalanced, it can hinder shared decision-making and lead to suboptimal clinical outcomes.</div></div><div><h3>Objectives</h3><div>We sought to describe physician-patient speech imbalances (“asymmetry”) in illness understanding portions of discussions between oncologists and advanced cancer patients and explore potential trends related to patient characteristics.</div></div><div><h3>Methods</h3><div>Our study included 285 audio recordings of outpatient encounters between 40 oncologists and 139 patients with advanced cancer. We identified illness understanding communication via manual data annotation and analyzed clinician-patient speech ratios. For this project, a communication outcome of “asymmetry” was defined as taking place when one party spoke more than 60 % of all spoken characters related to illness understanding in the conversation. We used descriptive statistics to report frequency of asymmetric conversations by patient characteristics. We then examined whether certain patient characteristics were associated with presence of at least one asymmetric illness understanding discussion as a categorical variable.</div></div><div><h3>Results</h3><div>At the conversation level, 77 % of all illness understanding discussions were asymmetric and clinician-dominated. At the patient level, 89 % experienced asymmetric illness understanding communication. We found that non-Hispanic white patients experienced a lower rate of asymmetry across their conversations compared to patients from other racial and ethnic backgrounds (73 % of conversations vs. 82 %).</div></div><div><h3>Conclusions</h3><div>Asymmetric, clinician-dominated communication was prevalent in illness understanding discussions.</div></div><div><h3>Practice implications</h3><div>Communication balances may be a relevant factor driving disparities in cancer care. Strategies are needed to address communication imbalances in serious illness conversations and enhance communication education.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"133 ","pages":"Article 108633"},"PeriodicalIF":2.9,"publicationDate":"2025-01-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142967163","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Editorial to the special section: Argumentation in healthcare","authors":"Sarah Bigi ,&nbsp;Nanon Labrie","doi":"10.1016/j.pec.2024.108627","DOIUrl":"10.1016/j.pec.2024.108627","url":null,"abstract":"","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"133 ","pages":"Article 108627"},"PeriodicalIF":2.9,"publicationDate":"2024-12-25","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142911085","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Argumentative discourse in clinical dialogues: An interdisciplinary perspective","authors":"Sarah Bigi","doi":"10.1016/j.pec.2024.108626","DOIUrl":"10.1016/j.pec.2024.108626","url":null,"abstract":"<div><h3>Objective</h3><div>Building on existing literature, which has pointed out the acceptability of certain persuasive strategies used by specialists in clinical communication, the article aims to describe the forms and functions of argumentative discourse in clinical dialogues.</div></div><div><h3>Methods</h3><div>The article relies on classical definitions of argumentative discourse that describe argumentation as the communication process characterized by a standpoint and at least an expression of doubt, often also by the presence of arguments in favor or against the standpoint.</div></div><div><h3>Results</h3><div>Through examples from real-life cases, it is shown that besides the typical function of persuasion, argumentation in clinical dialogues may have also the function of finding agreement for the alignment of assessments and for deliberation.</div></div><div><h3>Discussion</h3><div>This implies that when analyzing argumentative discourse, wider stretches of dialogue should be taken into consideration, not limiting observations to single turns or adjacency pairs.</div></div><div><h3>Conclusion</h3><div>The article highlights the importance of correctly understanding the role argumentation can play in the medical context and offers some suggestions for the analysis of argumentative discourse in clinical dialogues, in view of study design and professionals’ training.</div></div><div><h3>Practice implications</h3><div>The article offers insights for the development of training materials in view of improving HCPs’ abilities to put forward reasons for clinical decisions.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"133 ","pages":"Article 108626"},"PeriodicalIF":2.9,"publicationDate":"2024-12-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142910977","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"An argumentation theory-based assessment tool for evaluating disinformation in health-related claims","authors":"Sara Rubinelli ,&nbsp;Nicola Diviani","doi":"10.1016/j.pec.2024.108622","DOIUrl":"10.1016/j.pec.2024.108622","url":null,"abstract":"<div><h3>Objective</h3><div>This study leverages argumentation theory to combat the growing threat of health disinformation by enhancing public competency in evaluating health-related information.</div></div><div><h3>Methods</h3><div>We systematically analyzed common persuasive tactics used in health disinformation, categorizing them into thematic groups linked to specific argument types. Based on these analyses, we developed critical questions to test the validity and strength of these arguments, resulting in an assessment tool.</div></div><div><h3>Results</h3><div>The assessment tool, formatted as a flowchart, guides users through targeted critical questions to assess the credibility of health information. It addresses tactics like data misuse, logical fallacies, and emotional manipulation, effectively improving users' ability to identify and resist misleading health claims.</div></div><div><h3>Conclusion</h3><div>Utilizing argumentation theory offers a structured framework to dissect and counteract persuasive disinformation techniques, thereby boosting public health literacy and empowering informed health decisions. The assessment tool serves as both an immediate practical tool and a long-term educational resource for building cognitive resilience.</div></div><div><h3>Practice Implications</h3><div>Our findings suggest that health institutions should regularly conduct workshops to strengthen public argumentation skills. Accessible online resources and the integration of argumentation theory into educational curricula are recommended to foster critical thinking and discernment of health information, promoting a more informed and engaged public.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"133 ","pages":"Article 108622"},"PeriodicalIF":2.9,"publicationDate":"2024-12-23","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142910976","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Anxiety about artificial intelligence from patient and doctor-physician","authors":"Wenyu Li ,&nbsp;Xueen Liu","doi":"10.1016/j.pec.2024.108619","DOIUrl":"10.1016/j.pec.2024.108619","url":null,"abstract":"<div><h3>Objective</h3><div>This paper investigates the anxiety surrounding the integration of artificial intelligence (AI) in doctor-patient interactions, analyzing the perspectives of both patients and healthcare providers to identify key concerns and potential solutions.</div></div><div><h3>Methods</h3><div>The study employs a comprehensive literature review, examining existing research on AI in healthcare, and synthesizes findings from various surveys and studies that explore the attitudes of patients and doctors towards AI applications in medical settings.</div></div><div><h3>Results</h3><div>The analysis reveals that patient anxiety encompasses algorithm aversion, robophobia, lack of humanistic care, challenges in human-machine interaction, and concerns about AI's universal applicability. Doctors' anxieties stem from fears of replacement, legal liabilities, emotional impacts of work environment changes, and technological apprehension. The paper highlights the need for patient participation, humanistic care, improved interaction methods, educational training, and policy guidelines to foster public understanding and trust in AI.</div></div><div><h3>Conclusion</h3><div>The paper concludes that addressing AI anxiety in doctor-patient relationships is crucial for successfully integrating AI in healthcare. It emphasizes the importance of respecting patient autonomy, addressing the lack of humanistic care, and improving patient-AI interaction to enhance the patient experience and reduce medical errors.</div></div><div><h3>Practice implications</h3><div>The study suggests that future research should focus on understanding the needs and concerns of patients and doctors, strengthening medical humanities education, and establishing policies to guide the ethical use of AI in medicine. It also recommends public education to enhance understanding and trust in AI to improve medical services and ensure professional development and stable work environment for doctors.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"133 ","pages":"Article 108619"},"PeriodicalIF":2.9,"publicationDate":"2024-12-22","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142899668","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}