Patient Education and Counseling最新文献

{"title":"Effects of an individual and family health literacy enhancement program for older adults with physical multimorbidity: A randomized controlled trial","authors":"Jun Shan ,&nbsp;Sirirat Panuthai","doi":"10.1016/j.pec.2025.109319","DOIUrl":"10.1016/j.pec.2025.109319","url":null,"abstract":"<div><h3>Objective</h3><div>To evaluate the efficacy of an individual and family health literacy enhancement program for older adults with hypertension and Type 2 diabetes.</div></div><div><h3>Methods</h3><div>A total of 140 community participants were randomly assigned to either the individual and family health literacy enhancement program group (n = 70) or the usual care group (n = 70). Outcomes were measured at baseline, at 2-month follow-up (self-management), and at 3-month follow-up (treatment burden, symptom burden).</div></div><div><h3>Results</h3><div>129 participants (interventional group = 64, control group = 65) completed all sessions and outcome measurements. In the Intention-To-Treat (ITT) population, there were significant improvements in self-management (t = 4.160, p = 0.000) for the intervention group. The intervention group demonstrated a significant decrease in treatment burden (t = -6.630, p = 0.000) and symptom burden (t = -2.653, p = 0.009).</div></div><div><h3>Conclusions</h3><div>This study demonstrates that the health literacy enhancement program can increase self-management and decrease both treatment burden and symptom burden among older persons with comorbid hypertension and diabetes.</div></div><div><h3>Practice implications</h3><div>The program could be incorporated into the regular service in community settings to improve chronic care management.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"141 ","pages":"Article 109319"},"PeriodicalIF":3.1,"publicationDate":"2025-08-29","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144996128","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Exploring patient-provider communication experiences of Asian Indian patients in the United States: A scoping review","authors":"Pranav Sai Nadella ,&nbsp;Ann Neville Miller ,&nbsp;Andrew Todd","doi":"10.1016/j.pec.2025.109320","DOIUrl":"10.1016/j.pec.2025.109320","url":null,"abstract":"<div><h3>Objectives</h3><div>Effective provider-patient communication directly influences patient satisfaction, treatment adherence, and health outcomes, yet the unique experiences of Asian Indians—one of the fastest-growing U.S. subpopulations—remain underexplored. This scoping review mapped existing research about patient-provider communication of Asian Indian patients in the U.S. healthcare system.</div></div><div><h3>Methods</h3><div>Five databases were searched through January 2025: APA PsycINFO, CINAHL, Communication and Mass Media, MEDLINE, and Web of Science. The Joanna Briggs Institute guidelines for scoping reviews were followed as well as PRISM-Scr reporting guidelines.</div></div><div><h3>Results</h3><div>Out of 559 records identified through data base searches and 10 by other means, 11 articles met inclusion criteria. Findings revealed a focus on first-generation immigrants, and, to a lesser extent, on women and the elderly. Communication issues examined in the included studies were respect and trust in patient-provider relationships, cultural stigma and misunderstandings, family involvement in care, provider gender and ethnic concordance, language barriers, and patient engagement and decision-making. A heavy reliance on qualitative methods such as interviews was evident.</div></div><div><h3>Conclusion</h3><div>The current evidence base remains fragmented, with methodological limitations. These gaps are not just academic concerns; they also have direct consequences for health equity, treatment adherence, and patient safety. As the Asian Indian population continues to grow, research investigating culturally competent, evidence-based communication strategies will be essential to delivering effective patient-centered care.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"141 ","pages":"Article 109320"},"PeriodicalIF":3.1,"publicationDate":"2025-08-29","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144918031","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"A mixed-methods study of communication preferences and experiences from diagnosis to death as reported by patients with advanced cancer and their family caregivers","authors":"Meghan C. Martinez ,&nbsp;Ellis C. Dillon ,&nbsp;Amandeep K. Grewal ,&nbsp;Alyssa Valdez ,&nbsp;Su-Ying Liang ,&nbsp;Harold S. Luft ,&nbsp;Natalia Colocci ,&nbsp;Steve Lai ,&nbsp;Manali Patel","doi":"10.1016/j.pec.2025.109315","DOIUrl":"10.1016/j.pec.2025.109315","url":null,"abstract":"<div><h3>Objective</h3><div>To examine how communication needs regarding prognosis, treatment options, and palliative care evolve over time for patients with advanced cancer and their family caregivers, particularly as patients approach the end-of-life.</div></div><div><h3>Methods</h3><div>This mixed-methods study surveyed 272 patients at a California healthcare system from October 2019-November 2021 at 1, 4, 8, and 12 months after identification of advanced cancer. Additionally, 24 family caregivers were interviewed between March 2021-May 2022. We used descriptive and bivariate methods to analyze changes over time and by survival status. Qualitative data were analyzed using practical thematic analysis.</div></div><div><h3>Results</h3><div>Overall, patients reported high satisfaction with communication. Despite improvements in patients reporting the right amount of prognostic information between the first and last surveys (p &lt; 0.05), 17–30 % still desired more prognostic information at each timepoint. On the 4-month survey, patients subsequently deceased within 12 months of their index date wanted less prognostic information and a better understanding of their treatment compared to those still alive. Qualitative findings highlighted preferences for information and patients’ hopes to “prolong life” or “cure cancer.” Family caregivers noted unmet needs for earlier palliative and hospice care discussions and more support from social workers. Communication challenges prompted mistrust or second opinions. Positive communication strategies were also identified.</div></div><div><h3>Conclusions</h3><div>Although satisfaction with communication was high, a subset of respondents experienced ongoing challenges. Many patients’ communication needs shifted from early challenges with prognostic awareness to a later desire for better understanding of treatment options and palliative care. Across the illness trajectory, respondents emphasized the need for clear, accessible information and proactive, supportive communication from clinicians.</div></div><div><h3>Practice implications</h3><div>Critical points in the cancer journey, such as after diagnosis, during treatment decisions, and at recurrence/progression, present opportunities to support patients and family caregivers through structured follow-up visits, early palliative care introduction, normalization of second opinions, and tailored resources.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"141 ","pages":"Article 109315"},"PeriodicalIF":3.1,"publicationDate":"2025-08-29","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144996130","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Self-management decision-making in spinal cord injury after initial rehabilitation: A thematic narrative analysis","authors":"Enxhi Qama ,&nbsp;Nicola Diviani ,&nbsp;Clara Häfliger ,&nbsp;Xavier Jordan ,&nbsp;Anke Scheel-Sailer ,&nbsp;Claudia Zanini ,&nbsp;Sara Rubinelli","doi":"10.1016/j.pec.2025.109318","DOIUrl":"10.1016/j.pec.2025.109318","url":null,"abstract":"<div><h3>Objective</h3><div>This study examines how individuals with spinal cord injury (SCI) make decisions regarding their self-management (SM) in the first six months after initial rehabilitation. Specifically, it explores the decision-making styles and the factors that influence their choices.</div></div><div><h3>Methods</h3><div>We conducted semi-structured interviews with 32 individuals with SCI at three- and six-months post-discharge, resulting in 64 interviews. Data collection spanned from November 2022 to August 2024. We used thematic analysis to identify the decision-making styles and their influencing factors.</div></div><div><h3>Results</h3><div>Our findings reveal that individuals do not rely on a single, stable decision-making style but instead adapt their ways based on the demands of a given situation. Five distinct decision-making styles emerged: 1) <em>Delayed decision-making:</em> postponing action until necessary, often due to emotional barriers or perceived low urgency; 2) <em>collaborative decision-making</em>: seeking input from healthcare professionals, family, or peers to reduce uncertainty; 3) <em>reflexive decision-making</em>: relying on internal cues and body feedback without pre-planning and past experience to guide SM choices; 4) <em>impulsive decision-making</em>: making quick, spontaneous decisions based on immediate emotions or circumstances; and 5) <em>strategic decision-making:</em> planning, testing, and use of external tools to optimize outcomes. Participants shifted between styles based on the context, suggesting that decision-making is not a fixed trait but a dynamic process.</div></div><div><h3>Conclusions</h3><div>Decision-making in SCI varies across situations, influenced by personal, emotional, and external factors. Unlike traditional decision-making models, these findings highlight that individuals adapt their ways rather than relying on a single decision-making style.</div></div><div><h3>Practical implications</h3><div>Understanding how individuals make SM decisions can help healthcare providers tailor interventions. Personalized strategies, such as behavioral activation for delayed decision-makers or decision aids for strategic thinkers, may enhance engagement, adherence, and long-term SM success. Future research should explore longitudinal shifts in decision-making styles and their impact on health outcomes.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"141 ","pages":"Article 109318"},"PeriodicalIF":3.1,"publicationDate":"2025-08-28","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144918032","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Shared decision-making, the working alliance, and patient-centered care: A simultaneous concept analysis and review of the literature","authors":"Kyla G. Lee ,&nbsp;Anna R. Gagliardi ,&nbsp;Aisha K. Lofters ,&nbsp;Andrew D. Pinto ,&nbsp;Robert G. Maunder","doi":"10.1016/j.pec.2025.109316","DOIUrl":"10.1016/j.pec.2025.109316","url":null,"abstract":"<div><h3>Objective</h3><div>To identify the conceptual similarities, differences, and interrelationships between shared decision-making (SDM), the working alliance, and patient-centered care (PCC) in primary care.</div></div><div><h3>Methods</h3><div>This study is a simultaneous concept analysis based on the method of Walker and Avant (2005) and Haase et al. (1992). First, a systematic search was conducted for articles published between 2012 and 2022 to identify those describing definitions, antecedents, attributes, consequences, and empirical referents of any of the three concepts. Then, data was extracted and organized into a validity matrix for comparison.</div></div><div><h3>Results</h3><div>Shared decision-making is a procedural communicative process involving both providers and patients in making clinical decisions. The working alliance between the patient and provider serves as a relational model foundational to the patient-provider relationship. Patient-centered care is an approach or philosophy adopted by clinicians (dyadic PCC) or organizations (organizational PCC) that shapes how care is conceptualized and delivered. Collaboration, common ground, integration of patient preferences, and information exchange are integral to all three concepts but are emphasized to varying degrees. PCC can be applied unilaterally, while SDM and the working alliance are always relational. Overall, the working alliance establishes the context in which providers adopt a patient-centered approach and can practice SDM.</div></div><div><h3>Conclusions</h3><div>Shared decision-making, the working alliance, and patient-centered care are distinct concepts but are intrinsically interrelated in both theory and practice. The working alliance can be described as a relational “setting” where PCC (an approach to care) can be applied and SDM (a conversational model) can be practiced.</div><div><em>Practice implications</em></div><div>This study contributes to enhancing the conceptual clarity of the three concepts in the primary care, which may facilitate better operationalization and subsequent care design.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"141 ","pages":"Article 109316"},"PeriodicalIF":3.1,"publicationDate":"2025-08-26","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144903741","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Can metaphors in patient information materials improve comprehension and attitudes regarding innovative treatment? The case of personalized immunotherapy for sepsis","authors":"Nynke Bos ,&nbsp;W. Gudrun Reijnierse ,&nbsp;Anke J.M. Oerlemans ,&nbsp;Frank L. van de Veerdonk ,&nbsp;Mihai G. Netea ,&nbsp;Marlies E.J.L. Hulscher ,&nbsp;Lisa Vandeberg","doi":"10.1016/j.pec.2025.109314","DOIUrl":"10.1016/j.pec.2025.109314","url":null,"abstract":"<div><h3>Objectives</h3><div>Effective communication is essential for patients and their relatives to comprehend and accept novel treatments, such as personalized immunotherapy for sepsis in the ICU. However, communication in the ICU is challenging. Written information materials can supplement conversations with healthcare providers, enabling patients and their relatives to consult information later. Metaphors are often employed to explain complex medical concepts. The aim of this study was to investigate whether and how the use and choice of metaphors in patient information materials improves people’s comprehension and attitudes regarding personalized immunotherapy for sepsis.</div></div><div><h3>Methods</h3><div>We performed a single-factor between-subjects experiment with four different texts explaining personalized immunotherapy for sepsis: one control and three metaphorical texts using the source domains of <span>war</span>, <span>journey</span> and <span>natural phenomenon</span>. Participants (<em>N</em> = 1098) were native English U.K. citizens recruited through Prolific. They read a scenario about their relative being admitted to the ICU with sepsis, followed by one of the four texts. Participants then completed questions assessing comprehension and attitudes towards the treatment.</div></div><div><h3>Results</h3><div>Scores on all variables were generally high, but no significant differences were found between the metaphor and non-metaphor groups, nor between the source domains. Exploratory analyses suggested differences in effectiveness of metaphorical source domains based on education level and topic familiarity.</div></div><div><h3>Conclusion</h3><div>Participants demonstrated a good comprehension and a positive attitude regarding personalized immunotherapy for sepsis, regardless of metaphor use. For specific audiences, tailoring metaphors might enhance comprehension and attitudes.</div></div><div><h3>Practice implications</h3><div>This study informs the use of metaphors in patient information materials for personalized immunotherapy for sepsis. While the findings suggest that metaphors do not improve comprehension or attitudes, they also do not backfire. Exploratory findings suggest it is important to consider individual differences in how people prefer to receive and process information.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"141 ","pages":"Article 109314"},"PeriodicalIF":3.1,"publicationDate":"2025-08-22","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144911530","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"This conversation is being recorded: A focus group study exploring cancer patients’ perspective on routinely audio-recording outpatient visits","authors":"Debby Damen ,&nbsp;Saar Hommes ,&nbsp;Marjolijn Antheunis ,&nbsp;Emiel Krahmer ,&nbsp;Jan Erik Bunt","doi":"10.1016/j.pec.2025.109308","DOIUrl":"10.1016/j.pec.2025.109308","url":null,"abstract":"<div><h3>Background</h3><div>Patients facing a cancer diagnosis may decide to record the consultation with their clinician to ensure the recall of healthcare information. In current practice, the initiative of audio recording a consultation lies with the patient. To our knowledge, no hospital has the policy to offer routinely audio recordings.</div></div><div><h3>Objective</h3><div>This qualitative study aims to outline cancer patients’ perspective and expectations on the barriers, facilitators, and expected clinical effects they perceive regarding the routine recording of audio recording outpatient consultations and saving these recordings in the electronic health record.</div></div><div><h3>Methods</h3><div>We recruited Dutch patients from an online panel on cancer. In total, 23 patients with various stages in their cancer disease were interviewed in four focus group sessions. The audio-recorded sessions were transcribed ad verbatim, and a thematic analysis was used to identify important patterns in the data.</div></div><div><h3>Results</h3><div>All patients found it difficult to remember information from their outpatient visit. Almost all patients expressed the need for routinely audio recording their healthcare consultations for storage of personalized information and later relistening to the consultation. Many patients expect that audio recordings could allow a more smooth and efficient transfer of information between healthcare specialists. Most patients stressed the need for a standard procedure, with special regards to explicit informed consent procedures and the assurance of the privacy and confidentiality of the recordings.</div></div><div><h3>Conclusions</h3><div>There is a need to routinely offer audio recordings of outpatient visits. These recordings should be securely stored and made available through the electronic health record. Such recordings support patient empowerment by providing both informational and emotional support, helping patients to become equal partners in discussions and decision-making regarding their care. This, in turn, enhances the patient-centeredness of healthcare services.</div></div><div><h3>Practice Implications</h3><div>This study demonstrates that patients with cancer expect positive effects on different domains in their health care process by audio recording conversations with the clinician.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"141 ","pages":"Article 109308"},"PeriodicalIF":3.1,"publicationDate":"2025-08-19","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144926025","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Exploring the cultural factors affecting E-cigarette use among young adults in China: Utilizing the PEN-3 cultural model","authors":"Jingzhong Xie ,&nbsp;Mingyang Zhang","doi":"10.1016/j.pec.2025.109311","DOIUrl":"10.1016/j.pec.2025.109311","url":null,"abstract":"<div><h3>Objective</h3><div>Cultural identity shapes individuals’ health priorities and decision-making processes. This study aimed to explore cultural factors affecting e-cigarette use and related behaviors among young adults.</div></div><div><h3>Methods</h3><div>This study employed descriptive phenomenological approach using semi-structured interviews with 43 young adlut vapers in China. Thematic analysis of the interview data, guided by the PEN-3 cultural model, explored participants' personal experiences and culturally relevant beliefs regarding e-cigarette use.</div></div><div><h3>Results</h3><div>Nine sub-themes were organized within the domains of the PEN-3 cultural model matrix. These sub-themes coalesced into three key themes: 1) perceptions: beliefs, knowledge, and values about e-cigarette use, 2) enablers: social impacts and regulations on e-cigarette use, and 3) nurturers: social network resources for e-cigarette users. Each key theme demonstrated positive, existential, and negative factors influencing young adults' vaping behaviors.</div></div><div><h3>Conclusion</h3><div>Factors promoting young adult vaping included perceived benefits, social acceptability, accessibility, and peer/friend motivation. Conversely, inhibiting factors encompassed perceived barriers, control policies, and family norms. Existential factors—consideration of future consequences, materialism, ritualism, and self-construction—were identified as less mutable influences. All factors exhibited variation between single and dual users.</div></div><div><h3>Practice implication</h3><div>This research advances understanding of culturally situated young adult vaping. Distinctions between user groups offer an actionable foundation for targeted interventions—informing distinct strategies for single-users and dual-users based on their unique cultural contexts and risk profiles.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"141 ","pages":"Article 109311"},"PeriodicalIF":3.1,"publicationDate":"2025-08-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144864985","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Effectiveness in physical activity levels of proactive behavior-based programs in prostate cancer survivors. A systematic review and meta-analysis","authors":"Javier Martín-Núñez ,&nbsp;Alejandro Heredia-Ciuró ,&nbsp;Andrés Calvache-Mateo ,&nbsp;Laura López-López ,&nbsp;Alba Navas-Otero ,&nbsp;María Granados-Santiago ,&nbsp;Marie Carmen Valenza","doi":"10.1016/j.pec.2025.109312","DOIUrl":"10.1016/j.pec.2025.109312","url":null,"abstract":"<div><h3>Objective</h3><div>The aim of this study was to assess the effects of proactive behavior-based programs on physical activity levels of prostate cancer patients.</div></div><div><h3>Methods</h3><div>A literature search through Pubmed, Scopus, Web of Science and Cochrane Library were performed (last search January 2025). The GRADE System and the Cochrane tool were applied to quality assessment. The included studies focused on the application of proactive behavior-based programs among prostate cancer survivors compared to usual care or programs without proactive behavior-based programs. Additionally, we performed a meta-analysis addressing physical activity levels.</div></div><div><h3>Results</h3><div>We selected 15 studies, which included 1623 prostate cancer patients. Significant results in favor of proactive behavior-based programs were observed for physical activity levels (MD=0.74, CI95 %=0.3,1.18; p = 0.0009). These results indicated high heterogeneity (I₂=91 %), which cannot be attributed to chance. The publication bias risk was low. Despite the results obtained in quality assessments, the heterogeneity presented may have impacted the study´s overall quality.</div></div><div><h3>Conclusions</h3><div>The results of this study indicated a significant improvement in physical activity levels of prostate cancer survivors after implementing proactive behavior-based programs.</div></div><div><h3>Clinical implications</h3><div>Proactive behavior-based interventions can optimize the timing and setting of physical activity management in prostate cancer survivors.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"141 ","pages":"Article 109312"},"PeriodicalIF":3.1,"publicationDate":"2025-08-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144864986","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"COVID-19 misinformation and healthcare workers: A scoping review","authors":"Hannah Holzer ,&nbsp;Nicola Diviani ,&nbsp;Sara Rubinelli","doi":"10.1016/j.pec.2025.109309","DOIUrl":"10.1016/j.pec.2025.109309","url":null,"abstract":"<div><h3>Objective</h3><div>The Covid-19 pandemic was accompanied by an infodemic characterised by widespread misinformation and disinformation, particularly concerning the virus's origin, treatments, and vaccines. Healthcare workers (HCWs) were uniquely positioned at the intersection of clinical care and public communication. This scoping review aims to map and synthesise the existing literature on HCWs' experiences and engagement with Covid-19-related misinformation, identifying recurring themes across qualitative and quantitative studies.</div></div><div><h3>Methods</h3><div>A scoping review was conducted following PRISMA-ScR guidelines. Four scientific databases (PubMed, Science Direct, Web of Science, and Wiley Online Library) were searched for studies published between 1 January 2020 and 31 August 2024, yielding 55 eligible publications that included surveys and interviews with HCWs, employing both qualitative and quantitative approaches. The analysis focused on identifying common themes related to HCWs' experiences with misinformation.</div></div><div><h3>Results</h3><div>Five key themes emerged: (1) belief in misinformation, shaped by trust and uncertainty; (2) frustration with inconsistent and overwhelming official communication; (3) strained patient–provider relationships due to eroded trust; (4) social media as both a source of misinformation and professional support; and (5) mental health impacts, including anxiety and exhaustion.</div></div><div><h3>Conclusion</h3><div>The review highlights the significant burden that Covid-19 misinformation placed on HCWs, contributing to professional dissatisfaction, strained patient relationships, and emotional distress. Despite their lower susceptibility to misinformation, HCWs expressed a need for reliable information channels and training to manage misinformation in clinical interactions.</div></div><div><h3>Practice implications</h3><div>To enhance pandemic preparedness, targeted infodemic management training for HCWs is crucial, focusing on misinformation detection, effective communication strategies, and patient education. Strengthening public health communication efforts can help alleviate the burden on HCWs by reducing the spread of misinformation, thereby supporting their well-being and professional efficacy during future public health crises.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"141 ","pages":"Article 109309"},"PeriodicalIF":3.1,"publicationDate":"2025-08-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144864987","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}