Patient Education and Counseling最新文献

{"title":"From consensus to action: Innovative assessment strategies for interprofessional communication in health professions education","authors":"Peter Pype , Kristien Coteur , Claudia Kiessling , Maria Magdalena Bujnowska-Fedak , Yvonne Finn , Zoi Tsimtsiou , Wiebke Frerichs","doi":"10.1016/j.pec.2026.109495","DOIUrl":"10.1016/j.pec.2026.109495","url":null,"abstract":"","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"145 ","pages":"Article 109495"},"PeriodicalIF":3.1,"publicationDate":"2026-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146173725","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Cancer progression and shared decision-making: Crossed","authors":"Julia Kolly ,&nbsp;Sophie Lelorain ,&nbsp;Nicolas Penel ,&nbsp;Pierre-Yves Dietrich ,&nbsp;Lisa Laroussi-Libeault ,&nbsp;Kristopher Lamore","doi":"10.1016/j.pec.2025.109464","DOIUrl":"10.1016/j.pec.2025.109464","url":null,"abstract":"<div><h3>Objective</h3><div>When cancer progresses, changes of treatment are proposed and discussed with patients and their family caregivers (P&amp;Cs). However, there has been insufficient research on these consultations. The objective of this study was to explore how decision-making in cancer progression consultations relates to shared decision-making (SDM) from the perspective of healthcare professionals (HCPS) and P&amp;Cs.</div></div><div><h3>Methods</h3><div>A qualitative study was conducted based on 35 semi-structured interviews with HCPs (n = 20) and P&amp;Cs (n = 10 patients and n = 5 family caregivers).</div></div><div><h3>Results</h3><div>Five themes emerged: (1) overview of the decision-making process; (2) a key consultation: discussing progression and treatment options; (3) the central role of the relationship between healthcare professional, patient, and family caregiver; (4) the perception of choice in cancer progression consultations; and (5) participants’ perceptions of the elements needed for decision-making. The findings revealed an imbalance in decision-making roles, with physicians primarily making treatment decisions in interdisciplinary meetings, before presenting them to P&amp;Cs in consultation.</div></div><div><h3>Conclusions</h3><div>While cancer progression consultations meet the conditions for SDM, adjustments are needed to enhance the involvement of P&amp;Cs, who often feel passive. Strengthening communication strategies and more actively integrating P&amp;Cs could foster a more balanced, patient-centered approach.</div></div><div><h3>Practice implications</h3><div>Strengthening team cohesion and optimizing interdisciplinary collaboration, systematically involving nurses, and expanding SDM training to include HCPs can foster patient-centered care, enhance communication, and improve decision-making efficiency. An approach that actively integrates patients’ values and caregivers’ experiential knowledge, combined with a discussion of treatment options, can improve participation without prolonging consultation time.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"145 ","pages":"Article 109464"},"PeriodicalIF":3.1,"publicationDate":"2026-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145886108","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"A mixed methods systematic review of cancer treatment decision-making in vulnerable populations","authors":"Charmaine L. Blanchard ,&nbsp;Patricia McInerney ,&nbsp;Maureen Joffe ,&nbsp;Moosa Patel ,&nbsp;Holly G. Prigerson ,&nbsp;Shane Norris","doi":"10.1016/j.pec.2026.109491","DOIUrl":"10.1016/j.pec.2026.109491","url":null,"abstract":"<div><h3>Introduction</h3><div>Vulnerable cancer patients are at risk of making uninformed treatment decisions. Most patient decision aids (PtDAs) have been developed for high-income country (HIC) populations, with limited testing or adaptation for use in vulnerable populations, either contextually or geographically. This review aimed to understand how PtDAs address the treatment decision-making needs of vulnerable cancer patients.</div></div><div><h3>Methods</h3><div>We conducted a mixed-methods systematic review of RCTs and other effectiveness studies of PtDAs as well as qualitative studies on the treatment decision-making experiences of vulnerable adults (≥18 years) with cancer. Eight databases were searched. Following PRISMA guidelines, we screened for eligible studies and appraised their methodological quality. Qualitative and quantitative findings were synthesized separately and then integrated to identify gaps and alignments between PtDA design and patient-reported decision support needs.</div></div><div><h3>Results</h3><div>Twenty-six studies met the inclusion criteria (14 quantitative, 11 qualitative, and one mixed method). Qualitative synthesis showed that vulnerable patients experienced high emotional and psychosocial burdens, preferred in-person support, and often encountered mismatches between their preferred and actual decision-making roles. The narrative synthesis of quantitative studies showed that most PtDAs improved knowledge (5/7 studies) and reduced decisional conflict (6/7), while their effects on shared decision-making were mixed (3/5).</div></div><div><h3>Discussion</h3><div>PtDAs that provided clear, concise information and were delivered face-to-face better addressed the needs of vulnerable patients than self-administered tools. Although patients reported significant emotional and psychosocial burdens, no PtDAs included structured counselling.</div></div><div><h3>Practice implications</h3><div>Patient decision aids should be tailored to meet the informational, emotional, and role-support needs of vulnerable cancer patients, particularly in resource-constrained settings.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"145 ","pages":"Article 109491"},"PeriodicalIF":3.1,"publicationDate":"2026-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146023490","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"The utility of artificial intelligence in plain language writing: A scoping review","authors":"Mohamed Ugas ,&nbsp;Jimmy Huynh ,&nbsp;Ashley Lenarcik-Packham ,&nbsp;Anjali Kukan ,&nbsp;Angad Deol ,&nbsp;Rouhi Fazelzad ,&nbsp;Stephanie Fernando ,&nbsp;Eleni Giannopoulos ,&nbsp;Meredith Elana Giuliani ,&nbsp;Karen Lawrie ,&nbsp;Naa Kwarley Quartey ,&nbsp;Rhys Ralliaram ,&nbsp;Anujah Thankarajah ,&nbsp;Janet Papadakos","doi":"10.1016/j.pec.2026.109483","DOIUrl":"10.1016/j.pec.2026.109483","url":null,"abstract":"<div><h3>Background/Purpose</h3><div>The prevalence of medical and technical jargon makes the dissemination of healthcare information to patients challenging. Plain language (PL) writing, a style of written communication that strives to employ clear and concise language, is a critical tool for overcoming these hurdles, but is hindered by resource constraints. The emergence of generative Artificial Intelligence (AI) has led to research aimed at assessing its PL writing capacity. The aim of this scoping review was to explore what is known about the use of generative AI platforms for writing in PL.</div></div><div><h3>Methods</h3><div>A scoping review was conducted via searches across nine databases in Summer 2024. Studies were included if they evaluated a generative AI platform for the use of writing patient education materials (PEMs) in PL and measured best practices (e.g. readability).</div></div><div><h3>Results/Findings</h3><div>In total, 47 articles were included. Most studies were conducted in the United States (n = 29, 61.7 %). Prompt engineering strategies included specifying a reading grade level, audience, health condition, and resource type. AI-generated PEMs improved readability in 28.3 % of the 46 studies that measured Reading Grade level and in 46.2 % of the 26 studies that measured Reading Ease.</div></div><div><h3>Discussion and conclusion</h3><div>This review highlights the potential of generative AI for writing PEMs and assisting in the promotion of health literacy in patient care. AI models varied in their ability to generate or edit PEMs into plain language. Further research is needed to determine whether this can be done to industry standards and outside English-language contexts.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"145 ","pages":"Article 109483"},"PeriodicalIF":3.1,"publicationDate":"2026-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146019958","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"How do physiotherapists include patients’ perspectives into their decision making – cross-sectional study using the Four Habit Coding Scheme","authors":"Sijmen Hacquebord ,&nbsp;Philip van der Wees ,&nbsp;Jorn Veenstra ,&nbsp;Veerle Siebinga ,&nbsp;Edward Krupat ,&nbsp;Henri Kiers ,&nbsp;Thomas J. Hoogeboom","doi":"10.1016/j.pec.2026.109478","DOIUrl":"10.1016/j.pec.2026.109478","url":null,"abstract":"<div><h3>Objectives</h3><div>Patient-centered communication together with evidence-based practice is seen as the underlying pillars of shared decision making (SDM). However, the application of patient-centered communication in physiotherapy practice has not yet been studied from an observer-based point of view. The purpose was to determine to what extent physiotherapists use patient-centered communication in the first physiotherapy consultations of people with shoulder problems, and to what extent patient-centered communication is related to the level of SDM.</div></div><div><h3>Methods</h3><div>In this secondary analysis, 100 audio-recorded initial physiotherapy consultations with people with shoulder problems, obtained through convenience sampling, were analyzed for the level of patient-centered communication using the Four Habit Coding Scheme (4HCS) (0–100, higher 4HCS scores indicate higher level of patient-centered communication). The relation between the level of patient-centered communication and the SDM was analysed in multiple steps.</div></div><div><h3>Results</h3><div>A total of 100 initial physical therapy consultations of 41 participating physical therapists were included. The mean 4HCS score was 45(range 18–90). The correlation between the 4HCS and the OPTION-5 scores was 0.610(CI95 % 0.470 – 0.720). The four categories in the relation between patient-centered communication and SDM show that the most consultations are in the group of low patient-centered communication and low SDM and that there are only two consultations in the low patient-centered communication and high SDM.</div></div><div><h3>Conclusion</h3><div>Our results show that there is room for improvement in the application of patient-centered communication in physiotherapy practice although physiotherapists do apply patient-centered communication more than SDM. Patient-centered communication does not guarantee the application of SDM, although a higher level of SDM does indicate a higher degree of patient-centered communication.</div><div>Practice implications</div><div>This study offers clinical guidance on how to improve the integration of patient’s perspective, values, and preferences in the decision making.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"145 ","pages":"Article 109478"},"PeriodicalIF":3.1,"publicationDate":"2026-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145927929","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"What matters most: A Q-methodology study of the viewpoints of women diagnosed with a BRCA gene mutation on person-centred care","authors":"Leonie Emilia Witte ,&nbsp;Cornelia van Diepen ,&nbsp;Jane Murray Cramm","doi":"10.1016/j.pec.2026.109488","DOIUrl":"10.1016/j.pec.2026.109488","url":null,"abstract":"<div><h3>Objectives</h3><div>Women diagnosed with BRCA mutations face elevated risks of breast and ovarian cancer. Managing inherited risk involves complex, value-laden decisions, yet health services frequently overlook the distinct challenges these women encounter. Person-centred care (PCC) may complement medical management by addressing what matters most to patients. To inform PCC delivery for women diagnosed with BRCA, this study examined which care aspects women themselves prioritize in their trajectory and how perspectives vary within this population.</div></div><div><h3>Methods</h3><div>We applied Q-methodology to investigate the perspectives of 23 cancer-unaffected, female BRCA carriers in the Netherlands. Participants ranked statements reflecting PCC principles by personal importance, and elaborated on their choices in interviews. Factor analysis with varimax rotation identified shared viewpoints, which were interpreted using factor arrays and enriched with qualitative data.</div></div><div><h3>Results</h3><div>Three distinct viewpoints were identified, explaining 51 % of the data variance: (1) ‘The Informed Journey’ in which women prioritized comprehensive information to enable decision-making; (2) ‘Care Rooted in Compassion’ whereby women emphasized the importance of empathic, respectful interactions in building trust; and (3) ‘Acknowledging Intimacy and Loss’ in which women prioritized clinicians’ attention to the embodied impacts of their care trajectory, including reproductive and post-surgical or menopausal challenges.</div></div><div><h3>Conclusions</h3><div>Our findings support the relevance of person-centred approaches in care for women living with genetic cancer risk. Women with BRCA mutations differ in what they value most in their care, yet shared priorities emerge.</div></div><div><h3>Practice implications</h3><div>Understanding whether a woman emphasises information, compassion, or bodily concerns can guide clinicians in tailoring communication and counselling. Such alignment helps ensure that risk management strategies are inherently responsive to women’s lived experiences and support their broader well-being.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"145 ","pages":"Article 109488"},"PeriodicalIF":3.1,"publicationDate":"2026-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146023558","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"The story beneath the scores: A mixed methods study of communication skills self-assessment","authors":"Ghaith Alfakhry ,&nbsp;Ariel Lindorff ,&nbsp;Abdul Karim Ismail ,&nbsp;Osama Alrikabi Alsuccari ,&nbsp;Omar Hamadah ,&nbsp;Issam Jamous","doi":"10.1016/j.pec.2026.109477","DOIUrl":"10.1016/j.pec.2026.109477","url":null,"abstract":"<div><h3>Objectives</h3><div>Communication skills are universally recognised as a core competency in clinical education. This study aimed to investigate the impact of self-assessment on the development of communication skills and to understand the underlying meanings of self-assessment scores at the Faculty of Dental Medicine, Damascus University, Syria.</div></div><div><h3>Methods</h3><div>Based on the well-established Calgary-Cambridge Guide, an assessment instrument was developed, translated, and cross-culturally validated for the Syrian Arabic context. The assessment approach comprised one consultation with each of six patients in a clinical setting. After each consultation, the student and patient completed an assessment form. Fifty-four final-year dental students completed all six sessions. A mixed-methods design was employed, beginning with a quantitative phase that investigated the psychometric properties of the assessment instrument and tested for change in communication performance. In the qualitative phase, semi-structured interviews were conducted with a purposive subsample (n = 12) based on quantitative findings. Thematic analysis explored the educational impact and factors influencing self-assessment.</div></div><div><h3>Results</h3><div>There was a significant improvement in patient assessments over time, with a large effect size (<em>P</em> &lt; 0.001, Partial η² = 0.184). Qualitative results supported these findings, revealing increased self-awareness and self-control due to self-assessment. Subjective self-assessment practices, patient – dentist dynamics, and self-reflection all influenced self-assessment scoring.</div></div><div><h3>Conclusions</h3><div>This rigorous mixed-methods research makes an original and substantive contribution through in-depth exploration of meanings and intentions underlying self-assessment results. Although the findings warrants cautious generalisation, this research provides valuable recommendations for students, clinical educators, and curriculum developers to optimise self-assessment and use its data to improve communication performance.</div></div><div><h3>Practical implications</h3><div>This study highlights that using structured self-assessment can be an effective educational practice to improve communication skills and provides insight for educators into what self-assessment scores could mean.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"145 ","pages":"Article 109477"},"PeriodicalIF":3.1,"publicationDate":"2026-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145927930","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Improving diagnosis-specific knowledge of people with differences of sex development (DSD): Evaluation of the two-day Empower-DSD training course in Germany","authors":"Ralph Schilling ,&nbsp;Sabine Wiegmann ,&nbsp;Mirja Winter ,&nbsp;Martina Ernst ,&nbsp;Katja Wechsung ,&nbsp;Ute Kalender ,&nbsp;Barbara Stöckigt ,&nbsp;Annette Richter-Unruh ,&nbsp;Olaf Hiort ,&nbsp;Ulla Döhnert ,&nbsp;Louise Marshall ,&nbsp;Julia Rohayem ,&nbsp;Klaus-Peter Liesenkötter ,&nbsp;Martin Wabitsch ,&nbsp;Gloria Herrmann ,&nbsp;Gundula Ernst ,&nbsp;Stephanie Roll ,&nbsp;Thomas Keil ,&nbsp;Uta Neumann","doi":"10.1016/j.pec.2026.109482","DOIUrl":"10.1016/j.pec.2026.109482","url":null,"abstract":"<div><h3>Objectives</h3><div>Differences of sex development (DSD) include rare diagnoses such as congenital adrenal hyperplasia, Turner syndrome, Klinefelter syndrome and other chromosomal, 46,XX- and 46,XY-DSD. Patient education is an essential aspect of an empowerment approach. This analysis evaluated a new training concept with regard to knowledge acquisition for individuals with DSD and their families to make self-determined decisions about treatment options.</div></div><div><h3>Methods</h3><div>Two-day diagnosis-specific, and age-homogeneous group training sessions were evaluated in a five-centre, single-arm intervention study in a pre-post design conducted in Germany from 07/2020–09/2022. Participants answered six multiple-choice questions before, three and six months after the training concerning biological-genetic principles, physiological and endocrinological effects, as well as recommendations for therapy and treatment. Points were assigned for correct answers and total scores were then evaluated. A sufficient result was defined as achieving at least 75 % of the total score. Furthermore, a change of 10 % compared to baseline was defined as relevant.</div></div><div><h3>Results</h3><div>A total of 609 subjects were eligible. Participation rates at baseline and 6-month-follow-up were 75 % vs. 39 % (n = 173 children/adolescents), 84 % vs. 46 % (n = 56 young adults), and 89 % vs. 54 % (n = 380 parents).</div><div>After six months, the proportion of achieving a sufficient test result had increased by 40 %age points in children/adolescents, and by 20 %age points among young adults and parents. Approximately 60 % of children/adolescents and young adults, as well as 44 % of parents, showed relevant improvements in DSD-specific knowledge.</div></div><div><h3>Conclusions</h3><div>The first and so far only training concept tailored to the specific needs of people with DSD can enhance individuals’ ability to make self-determined decisions about treatment options.</div></div><div><h3>Practice Implications</h3><div>In order to improve patient education for individuals with DSD and their families, the presented training concept should be an integral part of the regular medical care as a component of multidisciplinary care in the future.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"145 ","pages":"Article 109482"},"PeriodicalIF":3.1,"publicationDate":"2026-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146023487","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"What is said, meant, heard: Practitioner-patient understanding during delivery of diagnoses in the emergency department","authors":"Sarah N. Fuller,&nbsp;Lourah M. Kelly,&nbsp;Lukas A. McNaboe,&nbsp;Xenia G. Bradley,&nbsp;Charlotte J. Winkler,&nbsp;Caroline E. Wolek,&nbsp;Amber L. Wilkes,&nbsp;Patrick C. Bogui,&nbsp;Perpetual E. Taylor,&nbsp;Geetha R. Nichanametla,&nbsp;David P. Patrick,&nbsp;Matthew Babcock","doi":"10.1016/j.pec.2026.109490","DOIUrl":"10.1016/j.pec.2026.109490","url":null,"abstract":"<div><h3>Background</h3><div>Effective communication between patients and practitioners is essential for patient satisfaction, adherence to the medical plan, and improved health outcomes. Delivering a diagnosis is a necessary component of patient care in the emergency department; however, these conversations can have risk for misunderstandings. This study investigated patient understanding of a new diagnosis in the emergency department and factors that modified this understanding.</div></div><div><h3>Methods</h3><div>Patients and practitioners completed surveys following delivery of a new diagnosis, and descriptions of the diagnosis by both parties were compared and graded for agreement by three external physicians. We examined whether the severity of diagnosis or adhering to a communication framework class influenced patient-practitioner agreement on the new diagnosis.</div></div><div><h3>Results</h3><div>Among 196 encounters, 83.7 % described the same diagnosis given by their practitioner (patient-practitioner agreement). Patient-practitioner agreement was correlated with the patient’s full understanding of their diagnosis (<em>r</em> = .17). Patient and practitioner-rated medical severity were inversely related (ρ=-.39). Practitioner-rated illness severity was related to difficulty receiving the diagnosis (ρ=-.38), difficulty delivering the diagnosis (ρ=.18), and adherence to a communication protocol (ρ=-.16). Multivariable Poisson regressions showed significantly increased practitioner-patient agreement on the new diagnosis when the patient self-reported full understanding of the diagnosis (RR=1.18, <em>p</em> &lt; .05), and significantly decreased practitioner-patient agreement within certain diagnostic classes, specifically cardiac (RR=.71, <em>p</em> &lt; .05) and gastrointestinal (RR=.77, <em>p</em> &lt; .05) relative to musculoskeletal diagnoses.</div></div><div><h3>Conclusion</h3><div>Most patients correctly described a new diagnosis given in the emergency department. However, in cases with misunderstanding, patients were significantly less likely to correctly describe a new diagnosis when they received cardiac and gastrointestinal diagnoses and when they reported anything less than full understanding.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"145 ","pages":"Article 109490"},"PeriodicalIF":3.1,"publicationDate":"2026-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146023489","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"EngageEMR: Codesigning resources to promote patient and carer engagement with their hospital electronic medical record","authors":"Reema Harrison ,&nbsp;Corey Adams ,&nbsp;Guncag Ozavci ,&nbsp;Nilmini Wickramasinghe ,&nbsp;Kathleen Gray ,&nbsp;Mashreka Sarwar ,&nbsp;Ian Dennis ,&nbsp;Eileen Lam ,&nbsp;stacey Lewis ,&nbsp;Vicky Yuan ,&nbsp;Tracey Bucknall ,&nbsp;Elizabeth Manias","doi":"10.1016/j.pec.2026.109486","DOIUrl":"10.1016/j.pec.2026.109486","url":null,"abstract":"<div><h3>Background</h3><div>The digitisation of patient medical records through electronic medical records (EMRs) has significant implications for healthcare delivery. One key opportunity is enabling patients and families to actively engage with and contribute to their own health information. However, despite this potential, recent evidence shows that patient and family engagement with EMRs remains low. This study used a codesign approach to develop strategies aimed at enhancing patient and family involvement with the EMR.</div></div><div><h3>Methods</h3><div>A two-part project was conducted comprising codesign and a qualitative feasibility and acceptability consultation. 1) Codesign was conducted in two Australian states with patients and carers, healthcare providers, health information specialists, and health system representatives. Online and in-person facilitation of codesign sessions employed synchronous and asynchronous workshops, and asynchronous prototyping to create and refine two prototype resources to promote engagement with EMRs. 2) Focus groups and interviews subsequently assessed the feasibility and acceptability of the codesigned strategies.</div></div><div><h3>Results</h3><div>In all, 47 consumers and 22 healthcare providers participated (n = 69); 31 in codesign and 38 in the feasibility study. Two resources were codesigned: the EngageEMR Consumer Information Video and the EngageEMR Infographic to provide information about EMRs for consumers. The EngageEMR Consumer Information Video provides visual, brief information about EMRs, their purpose and the ways in which consumers can interact with and use these systems in their care. The EngageEMR Infographic provides in-depth content about a range of aspects of EMRs and their distinction from other clinical information systems and services. Focus group and interview participants indicated the tools are valued and feasible for use.</div></div><div><h3>Conclusions</h3><div>Accessible, consumer-facing information about the purpose of EMRs and opportunities for their use during care is limited. The codesigned strategies provide an opportunity for people accessing hospital care to better understand and utilise their health information. Using such tools may enhance safety and quality of care, particularly among populations who are at greater risk of low-quality care. Evaluative studies are required to determine the effectiveness of the resources for improving knowledge about EMRs, self-efficacy arising from their use, and their contribution to better quality care.</div></div>","PeriodicalId":49714,"journal":{"name":"Patient Education and Counseling","volume":"145 ","pages":"Article 109486"},"PeriodicalIF":3.1,"publicationDate":"2026-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146020419","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}