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Seminars in Neurology最新文献

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Flexibly Incorporating the Dyad into Psychosocial Intervention: Considerations for Neuropalliative Care. 在社会心理干预中灵活地融入 "家庭"：神经姑息治疗的考虑因素。
IF 1.8 4区 医学
Seminars in Neurology Pub Date : 2024-10-01 Epub Date: 2024-10-03 DOI: 10.1055/s-0044-1791568
Evan Plys, Claire L Szapary, Ana-Maria Vranceanu
{"title":"Flexibly Incorporating the Dyad into Psychosocial Intervention: Considerations for Neuropalliative Care.","authors":"Evan Plys, Claire L Szapary, Ana-Maria Vranceanu","doi":"10.1055/s-0044-1791568","DOIUrl":"10.1055/s-0044-1791568","url":null,"abstract":"<p><p>This paper reviews dyadic psychosocial intervention approaches that flexibly incorporate both dyad members despite challenges to equitable involvement due to cognitive limitations or limited availability. We provide an overview, analysis, and examples for the following dyadic intervention approaches: (1) shared interventions that involve each dyad member equitably (i.e., higher care recipient cognition, higher care-partner availability); (2) patient-focused interventions that primarily engage care recipients with early stages of neurocognitive disorders, yet include care-partners in select sessions and target dyadic and relationship needs (i.e., higher care recipient cognition, lower care-partner availability); and (3) care-partner focused interventions that primarily engage care-partners, yet still address care recipient and relationship needs (i.e., lower care recipient cognition, higher care-partner availability). In our review, we propose a flexible definition of dyadic psychosocial intervention that considers the continuum of individuals' involvement, measurement, content, and conceptual background. We conclude with a discussion of implications for neuropalliative care.</p>","PeriodicalId":49544,"journal":{"name":"Seminars in Neurology","volume":" ","pages":"559-566"},"PeriodicalIF":1.8,"publicationDate":"2024-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142373353","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Neuropalliative Care. 神经姑息治疗。
IF 1.8 4区 医学
Seminars in Neurology Pub Date : 2024-10-01 Epub Date: 2024-10-17 DOI: 10.1055/s-0044-1790587
Maisha T Robinson, Claire J Creutzfeldt
{"title":"Neuropalliative Care.","authors":"Maisha T Robinson, Claire J Creutzfeldt","doi":"10.1055/s-0044-1790587","DOIUrl":"https://doi.org/10.1055/s-0044-1790587","url":null,"abstract":"","PeriodicalId":49544,"journal":{"name":"Seminars in Neurology","volume":"44 5","pages":"483"},"PeriodicalIF":1.8,"publicationDate":"2024-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142478995","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Communication in Neuropalliative Care. 神经姑息治疗中的沟通
IF 1.8 4区 医学
Seminars in Neurology Pub Date : 2024-10-01 Epub Date: 2024-06-25 DOI: 10.1055/s-0044-1787791
Jessica Besbris, Jessica Baker, Neha M Kramer
{"title":"Communication in Neuropalliative Care.","authors":"Jessica Besbris, Jessica Baker, Neha M Kramer","doi":"10.1055/s-0044-1787791","DOIUrl":"10.1055/s-0044-1787791","url":null,"abstract":"<p><p>Serious illness communication needs are high among patients with neurological conditions, from the time of diagnosis to the end of life. This article will highlight unique needs among these patients, strategies for optimizing communication, and techniques to learn and teach these skills along the continuum of a career in neurology.</p>","PeriodicalId":49544,"journal":{"name":"Seminars in Neurology","volume":" ","pages":"484-492"},"PeriodicalIF":1.8,"publicationDate":"2024-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141451953","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Sustaining Joy in Serious Neurologic Illnesses. 在严重神经系统疾病中保持快乐
IF 1.8 4区 医学
Seminars in Neurology Pub Date : 2024-10-01 Epub Date: 2024-08-02 DOI: 10.1055/s-0044-1788725
Sandhya Seshadri, Joshua Hauser, Benzi M Kluger
{"title":"Sustaining Joy in Serious Neurologic Illnesses.","authors":"Sandhya Seshadri, Joshua Hauser, Benzi M Kluger","doi":"10.1055/s-0044-1788725","DOIUrl":"10.1055/s-0044-1788725","url":null,"abstract":"<p><p>The goals of medicine tend to be framed around addressing suffering, pathology, and functional deficits. While this is a natural orientation when dealing with serious illness, it is also incomplete and neglects significant opportunities to improve the quality of life of patients, families, and clinicians. The \"total enjoyment of life\" is a multidimensional framework that can serve as a positive counterbalance to the \"total pain of illness.\" It allows clinicians, researchers, policymakers, and other stakeholders to take a systematic and comprehensive approach to the active promotion of well-being. The five opportunities for enhancing well-being in this framework are meaning, social connections, happiness/contentment, spiritual transcendence, and pleasure. Applying these concepts in clinical settings, patients, families, and clinicians can together find opportunities to increase the total enjoyment of life in the face of incurable and intractable illnesses. For family care partners, these concepts can be applied to improve self-care, enhance relationships, and develop more creative approaches to supporting a loved one living with illness. Clinicians working with these concepts may find their clinical work more satisfying and impactful and can also apply these concepts to their own lives to increase wellness. In clinical research, this framework can be applied to improve intervention effectiveness and relevance of outcome measures. Lastly, these concepts have the potential to impact public health approaches that focus on well-being and flourishing as the goal and metric of a healthy society.</p>","PeriodicalId":49544,"journal":{"name":"Seminars in Neurology","volume":" ","pages":"551-558"},"PeriodicalIF":1.8,"publicationDate":"2024-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141879657","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Emerging Trends in Neuropalliative Care: A Palliative Approach to Epilepsy and Seizure Management in Adults. 神经姑息治疗的新趋势：成人癫痫和癫痫发作的姑息治疗方法》（A Palliative Approach to Epilepsy and Seizure Management in Adults）。
IF 1.8 4区 医学
Seminars in Neurology Pub Date : 2024-10-01 Epub Date: 2024-06-24 DOI: 10.1055/s-0044-1787808
Anna-Christin Willert, Alexander Bernhard Kowski
{"title":"Emerging Trends in Neuropalliative Care: A Palliative Approach to Epilepsy and Seizure Management in Adults.","authors":"Anna-Christin Willert, Alexander Bernhard Kowski","doi":"10.1055/s-0044-1787808","DOIUrl":"10.1055/s-0044-1787808","url":null,"abstract":"<p><p>Management of severe (drug-resistant) epilepsy and epilepsy in other serious illnesses is multidimensional and requires consideration of both physical symptoms and psychosocial distress that require individualized treatment. Palliative care offers a holistic approach to disease that focuses on all dimensions of suffering to maintain quality of life. Integration of a palliative care mind- and skillset in the management of severe epilepsy and epilepsy in other serious illnesses can provide person-centered care and support for families and caregivers.</p>","PeriodicalId":49544,"journal":{"name":"Seminars in Neurology","volume":" ","pages":"567-573"},"PeriodicalIF":1.8,"publicationDate":"2024-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141447453","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Outcomes and Issues Addressed by Palliative Care in the Neurology Clinic. 神经病学门诊中姑息治疗的效果和解决的问题。
IF 1.8 4区 医学
Seminars in Neurology Pub Date : 2024-10-01 Epub Date: 2024-07-31 DOI: 10.1055/s-0044-1788770
Yaowaree Leavell, Emma Meyers, Ali Mendelson, Sarah Penna, Kate Brizzi, Ambereen K Mehta
{"title":"Outcomes and Issues Addressed by Palliative Care in the Neurology Clinic.","authors":"Yaowaree Leavell, Emma Meyers, Ali Mendelson, Sarah Penna, Kate Brizzi, Ambereen K Mehta","doi":"10.1055/s-0044-1788770","DOIUrl":"10.1055/s-0044-1788770","url":null,"abstract":"<p><p>Patients with neurological illnesses have many palliative care needs that need to be addressed in the outpatient clinical setting. This review discusses existing models of care delivery, including services delivered by neurology teams, palliative care specialists, telehealth, and home-based programs. We review the existing literature that supports these services and ongoing limitations that continue to create barriers to necessary clinical care for this vulnerable patient population.</p>","PeriodicalId":49544,"journal":{"name":"Seminars in Neurology","volume":" ","pages":"493-502"},"PeriodicalIF":1.8,"publicationDate":"2024-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141861423","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Maisha T. Robinson, MD, and Claire J. Creutzfeldt, MD. Maisha T.罗宾逊（Robinson）医学博士和克莱尔-J-克雷兹费尔特（Claire J. Creutzfeldt）医学博士。
IF 1.8 4区 医学
Seminars in Neurology Pub Date : 2024-10-01 Epub Date: 2024-10-17 DOI: 10.1055/s-0044-1790540
David M Greer
{"title":"Maisha T. Robinson, MD, and Claire J. Creutzfeldt, MD.","authors":"David M Greer","doi":"10.1055/s-0044-1790540","DOIUrl":"https://doi.org/10.1055/s-0044-1790540","url":null,"abstract":"","PeriodicalId":49544,"journal":{"name":"Seminars in Neurology","volume":"44 5","pages":"481-482"},"PeriodicalIF":1.8,"publicationDate":"2024-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142478994","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Navigating Neurologic Illness: Skills in Neuropalliative Care for Persons Hospitalized with Neurologic Disease. 导航神经系统疾病：神经系统疾病住院患者的神经姑息治疗技巧》。
IF 1.8 4区 医学
Seminars in Neurology Pub Date : 2024-10-01 Epub Date: 2024-07-25 DOI: 10.1055/s-0044-1788723
Andrew P Huang, Robert G Holloway
{"title":"Navigating Neurologic Illness: Skills in Neuropalliative Care for Persons Hospitalized with Neurologic Disease.","authors":"Andrew P Huang, Robert G Holloway","doi":"10.1055/s-0044-1788723","DOIUrl":"10.1055/s-0044-1788723","url":null,"abstract":"<p><p>Persons hospitalized for neurologic illness face multidimensional care needs. They can benefit from a palliative care approach that focuses on quality of life for persons with serious illness. We describe neurology provider \"skills\" to help meet these palliative needs: assessing the patient as a whole; facilitating conversations with patients to connect prognosis to care preferences; navigating neurologic illness to prepare patients and care partners for the future; providing high-quality end-of-life care to promote peace in death; and addressing disparities in care delivery.</p>","PeriodicalId":49544,"journal":{"name":"Seminars in Neurology","volume":" ","pages":"503-513"},"PeriodicalIF":1.8,"publicationDate":"2024-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141762022","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Exploring Ethical Dimensions in Neuropalliative Care. 探索神经姑息治疗中的伦理问题。
IF 1.8 4区 医学
Seminars in Neurology Pub Date : 2024-10-01 Epub Date: 2024-06-24 DOI: 10.1055/s-0044-1787775
Annie L Gula, Jennifer K Walter, Wynne Morrison, Matthew P Kirschen
{"title":"Exploring Ethical Dimensions in Neuropalliative Care.","authors":"Annie L Gula, Jennifer K Walter, Wynne Morrison, Matthew P Kirschen","doi":"10.1055/s-0044-1787775","DOIUrl":"10.1055/s-0044-1787775","url":null,"abstract":"<p><p>Neurologic illnesses can be challenging to diagnose, involve changes in consciousness, and are often complicated by prognostic uncertainty. These disorders can affect how individuals interact with their environment, and as a result, many ethical concerns may arise related to their medical care. Key ethical issues in neuropalliative care include shared decision-making, evolving autonomy and capacity, best interest and harm principles, beneficence and nonmaleficence, futile and inappropriate care, justice and equity, and ableism. The four core principles of medical ethics, beneficence, nonmaleficence, justice, and autonomy, are foundational in considering approaches to these ethical challenges. Shared decision-making is rooted in the principle of autonomy. Evolving autonomy and capacity evoke autonomy, beneficence, and nonmaleficence. The best interest and harm principles are rooted in beneficence and nonmaleficence. Questions of futility and inappropriate care are founded in the principles of nonmaleficence, autonomy, and justice. Ableism invokes questions of nonmaleficence, autonomy, and justice. Practitioners of neurology will encounter ethical challenges in their practice. Framing decisions around the core ethical principles of beneficence, nonmaleficence, autonomy, and justice will help clinicians navigate challenging situations while acknowledging and respecting each patient's individual story.</p>","PeriodicalId":49544,"journal":{"name":"Seminars in Neurology","volume":" ","pages":"534-542"},"PeriodicalIF":1.8,"publicationDate":"2024-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141447398","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Pathways to Neuropalliative Care Practice. 神经姑息治疗实践之路。
IF 1.8 4区 医学
Seminars in Neurology Pub Date : 2024-10-01 Epub Date: 2024-07-02 DOI: 10.1055/s-0044-1787807
Eileen Harrigan, Hannah L Kirsch, Kwame Adjepong, Rita Caroline Crooms
{"title":"Pathways to Neuropalliative Care Practice.","authors":"Eileen Harrigan, Hannah L Kirsch, Kwame Adjepong, Rita Caroline Crooms","doi":"10.1055/s-0044-1787807","DOIUrl":"10.1055/s-0044-1787807","url":null,"abstract":"<p><p>As neuropalliative care is better recognized and more widely utilized, there is as great a need for clinicians trained in the field as there is for disease-specific symptom management, advance care planning, and end-of-life care. In this manuscript, we describe potential career trajectories in neuropalliative care. For clinicians, this includes educational and training opportunities within primary neuropalliative care (integrating palliative care principles into usual neurology practice), specialty neuropalliative care (completing a hospice and palliative medicine fellowship), and hospice. We also describe considerations for establishing new clinical neuropalliative practices and highlight neuropalliative education and research as key areas for advancing the field.</p>","PeriodicalId":49544,"journal":{"name":"Seminars in Neurology","volume":" ","pages":"543-550"},"PeriodicalIF":1.8,"publicationDate":"2024-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141494036","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
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