Disability and Health Journal最新文献

{"title":"The adaptation of the GameSquad exergaming intervention for young adults with Down syndrome: A pilot feasibility study","authors":"Kameron Suire ,&nbsp;Brian C. Helsel ,&nbsp;April Bowling ,&nbsp;Amanda E. Staiano ,&nbsp;Joseph R. Sherman ,&nbsp;Anna Rice ,&nbsp;Lauren T. Ptomey","doi":"10.1016/j.dhjo.2024.101766","DOIUrl":"10.1016/j.dhjo.2024.101766","url":null,"abstract":"<div><h3>Background</h3><div>Exergames may be a feasible alternative to in-person exercise that is adaptable for adults with Down Syndrome (DS).</div></div><div><h3>Objective</h3><div>The purpose of this study was to conduct a 12-week pilot trial to assess the feasibility of exergames for adults with DS.</div></div><div><h3>Methods</h3><div>Adults with DS were provided Ring Fit Adventure™ which uses a resistance ring and body weight to perform cardiovascular and strength exercises. Participants were instructed to play Ring Fit Adventure™ for 120 min/week and attend 30-min weekly virtual coaching sessions where a health educator encouraged gameplay via goal setting, helped troubleshoot technological issues, and collected self-reported minutes of gameplay. Intervention outcomes included attendance, adherence to weekly gameplay goals, retention, safety, and exercise intensity captured via heart rate and indirect calorimetry.</div></div><div><h3>Results</h3><div>Twenty adults with DS (age 23.5 years, 89 % non-Hispanic white, 61 % female) enrolled and 19 participants completed the trial. Participants attended 93 % of coaching sessions and 90 % met the weekly gameplay goals. The average gameplay duration was 39 min/session and 123 min/week at 67.3 % of the participants’ estimated maximum heart rate. Both the average heart rate during the intervention and metabolic equivalents (3.4 ± 1.0) during the indirect calorimetry assessment were suggestive of moderate intensity exercise.</div></div><div><h3>Conclusions</h3><div>Attendance and adherence to the weekly gameplay goal were high among adults with DS who were able to reach and sustain moderate intensity during the exergame sessions. Exergaming represents a home-based option for accumulating minutes of moderate-to-vigorous physical activity that is feasible for and acceptable to adults with DS.</div></div>","PeriodicalId":49300,"journal":{"name":"Disability and Health Journal","volume":"18 2","pages":"Article 101766"},"PeriodicalIF":3.7,"publicationDate":"2024-12-06","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142819996","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Feasibility and preliminary efficacy of a skill-based lifestyle intervention for enhancing cooking abilities and physical fitness in young adults with intellectual disabilities","authors":"Jessica C. Danon ,&nbsp;Lyndsie Koon ,&nbsp;Joseph R. Sherman ,&nbsp;Anna M. Rice ,&nbsp;Scott Quaife ,&nbsp;Brian C. Helsel ,&nbsp;Amy Bodde ,&nbsp;Lauren T. Ptomey","doi":"10.1016/j.dhjo.2024.101767","DOIUrl":"10.1016/j.dhjo.2024.101767","url":null,"abstract":"<div><h3>Background</h3><div>Individuals with intellectual disabilities (ID) often experience poorer diet quality and lower physical fitness levels as they transition from adolescence to adulthood.</div></div><div><h3>Objective</h3><div>The purpose of this study was to assess the initial feasibility and efficacy of Chef-ID, a 12-week intervention designed to improve cooking skills and physical function in young adults with ID.</div></div><div><h3>Methods</h3><div>Young adults with ID attended weekly group sessions which provided hands-on cooking skills, nutrition education, and exercise. Participants were also asked to attend monthly, virtual, goal setting sessions. Feasibility outcomes included attendance, retention, and safety. Preliminary efficacy outcomes included cooking skills, lower body muscle strength, grip strength, aerobic capacity, and body weight. Paired t-tests were used to assess the differences in cooking skills, strength measures, aerobic capacity, and weight after the 12-week intervention.</div></div><div><h3>Results</h3><div>Study retention was 95 %, attendance exceeded 85 % for all sessions, and no serious adverse events were reported. The number of cooking skills participants could do independently (p = 0.005), the number of cooking skills requiring only a verbal prompt (p = 0.01) and lower body strength (p = 0.004) significantly improved across the 12-week intervention. The number of cooking skills participants had no exposure to (p = 0.01) and weight (p = 0.036) significantly decreased across the intervention. No significant changes were observed for upper body strength or aerobic capacity.</div></div><div><h3>Conclusions</h3><div>The Chef-ID intervention was feasible with desirable initial effects on cooking skill independence, exposure to cooking skills, lower body strength, and weight. The Chef-ID intervention holds promise in enhancing cooking skills and physical function among young adults with ID.</div></div><div><h3>Trial registration number</h3><div>Clinicaltrials.gov, NCT05385016.</div></div>","PeriodicalId":49300,"journal":{"name":"Disability and Health Journal","volume":"18 2","pages":"Article 101767"},"PeriodicalIF":3.7,"publicationDate":"2024-12-04","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142796368","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Natural disaster vulnerability among people with disabilities: Insights from the 2024 Household Pulse Survey","authors":"Danielle Xiaodan Morales","doi":"10.1016/j.dhjo.2024.101763","DOIUrl":"10.1016/j.dhjo.2024.101763","url":null,"abstract":"<div><h3>Background</h3><div>Natural disasters pose global challenges, with their frequency and severity increasing annually, impacting communities worldwide. People with disabilities are disproportionately vulnerable to experiencing adverse mental health outcomes in the aftermath of such events, yet this critical issue remains inadequately studied.</div></div><div><h3>Objective</h3><div>This paper examines the impact of natural disasters on people with disabilities, focusing on their displacement patterns and mental well-being, to enhance our understanding of health vulnerabilities and the specific needs in emergency response.</div></div><div><h3>Methods</h3><div>Data from the nationally representative 2024 Household Pulse Survey were analyzed to assess the duration of displacement and the severity of mental distress among individuals with and without disabilities following natural disasters. Generalized Estimating Equations were employed to predict post-disaster outcomes, adjusting for demographic characteristics, socioeconomic factors, and household structure.</div></div><div><h3>Results</h3><div>Individuals with vision disabilities (CI: 0.024–0.137) and those with multiple disabilities (CI: 0.020–0.068) experienced significantly longer periods of displacement compared to non-disabled people. Additionally, people with cognitive disabilities reported significantly higher levels of mental distress than their non-disabled counterparts (CI: 0.149–0.236).</div></div><div><h3>Conclusion</h3><div>Findings from this study demonstrate the need for specialized disaster response protocols that prioritize accessibility, mental health support, and targeted assistance for different disability types. Future emergency preparedness policies should incorporate disability-specific considerations, including enhanced evacuation planning, accessible mental health services, and strengthened community support systems. Disaster response frameworks must evolve to address these documented vulnerabilities, ensuring equitable support for all community members during and after natural disasters.</div></div>","PeriodicalId":49300,"journal":{"name":"Disability and Health Journal","volume":"18 2","pages":"Article 101763"},"PeriodicalIF":3.7,"publicationDate":"2024-12-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142792699","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Intersectional inequities in maternal mortality: Examining the compounded risks for black birthing individuals with physical disabilities","authors":"Ilhom Akobirshoev ,&nbsp;Sarah Jerome ,&nbsp;Jonathan M. Snowden ,&nbsp;Jaime Slaughter-Acey ,&nbsp;Anne Valentine ,&nbsp;Willi Horner-Johnson ,&nbsp;Monika Mitra","doi":"10.1016/j.dhjo.2024.101765","DOIUrl":"10.1016/j.dhjo.2024.101765","url":null,"abstract":"<div><h3>Background</h3><div>People who are Black and have physical disabilities likely face a dual burden of risk for maternal mortality due to enduring systemic oppression rooted in racism and ableism.</div></div><div><h3>Objective</h3><div>To investigate maternal mortality risks among Black birthing individuals with physical disabilities in the United States and assess the potential compounding effect when these marginalized identities intersect.</div></div><div><h3>Methods</h3><div>We conducted a historical cohort study using the 2004–2021 Healthcare Cost and Utilization Project Nationwide Inpatient Sample. The study included 8,263,997 delivery hospitalizations. We used modified Poisson regression to estimate unadjusted and adjusted relative risks (RR) of maternal mortality by race and physical disability status. We calculated the Relative Excess Risk due to Interaction (RERI) and Attributable Proportion (AP) to assess additive interaction between Black race and physical disability status.</div></div><div><h3>Results</h3><div>After adjusting for covariates, compared to their White birthing individuals, their Black peers experienced about 2.5 times (RR = 1.48,95%CI:2.08–2.96) the risk of maternal mortality. Compared to birthing individuals without physical disabilities, those with physical disabilities experienced nearly 11 times the (RR = 10.72,95%CI:8.15–14.10) risk of maternal mortality. Our adjusted additive interaction analysis revealed a significant super-additive effect (RERI = 11.3; AP = 0.47); suggesting that the combined effect of having both marginalized identities was greater than the sum of the individual effects of each identity.</div></div><div><h3>Conclusions</h3><div>Our findings provide evidence for substantial inequities in maternal mortality by Black race and physical disability status, with evidence of a compounding effect when these marginalized identities intersect. These results underscore the urgent need for intersectional approaches in maternal health interventions and policies.</div></div>","PeriodicalId":49300,"journal":{"name":"Disability and Health Journal","volume":"18 2","pages":"Article 101765"},"PeriodicalIF":3.7,"publicationDate":"2024-12-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142792696","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Social validity of Research Ethics for All: Social-behavioral research ethics education for community research partners with developmental disabilities","authors":"Ariel E. Schwartz ,&nbsp;Katherine McDonald","doi":"10.1016/j.dhjo.2024.101762","DOIUrl":"10.1016/j.dhjo.2024.101762","url":null,"abstract":"<div><h3>Background</h3><div>Training in research ethics supports community research partners with developmental disabilities to take on additional research responsibilities. We worked with an academic-community partnership to develop an accessible research ethics training tailored to the roles of community research partners with developmental disabilities that leads to certification: Research Ethics for All.</div></div><div><h3>Objective</h3><div>We evaluated the social validity of the educational activities and certification process.</div></div><div><h3>Methods</h3><div>We shared the training via a webinar and gathered feedback from attendees using polls (138 attendees; 92 respondents). In addition, four research teams composed of academic researchers and community research partners with developmental disabilities completed Research Ethics for All. Teams provided feedback on a series of surveys as they prepared to use the training, completed each of the 5 learning units, and after completing the training. We calculated descriptive statistics and used a pragmatic content analysis approach to analyze open-ended data.</div></div><div><h3>Results</h3><div>Teams were satisfied with the training and felt it supported learning. They endorsed the videos and learning activities but thought videos should be shorter. 68.5% of webinar attendees felt that Research Ethics for All covers essential information in social-behavioral research ethics. Several IRBs have approved the use of Research Ethics for All.</div></div><div><h3>Conclusions</h3><div>Research Ethics for All is an acceptable research ethics training that may support community research partners with developmental disabilities to take on important research responsibilities in social-behavioral research.</div></div>","PeriodicalId":49300,"journal":{"name":"Disability and Health Journal","volume":"18 2","pages":"Article 101762"},"PeriodicalIF":3.7,"publicationDate":"2024-11-28","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142808365","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Rural disability, self-reliance, and the utilization of mental health services","authors":"Luke Santore ,&nbsp;Catherine Ipsen ,&nbsp;Gilbert Gimm","doi":"10.1016/j.dhjo.2024.101761","DOIUrl":"10.1016/j.dhjo.2024.101761","url":null,"abstract":"<div><h3>Background</h3><div>The intersection of rurality, disability, self-reliance values, and utilization rates of mental health services (MHS) is under-researched.</div></div><div><h3>Objective</h3><div>To better understand the differences between <em>unmet need</em> and <em>no perceived need</em> for MHS between noncore, micropolitan, and metropolitan adults with disabilities.</div></div><div><h3>Methods</h3><div>We conducted logistic regression analyses of the 2022 National Survey on Health and Disability (NSHD) to identify associations between demographic characteristics and odds of reporting <em>unmet need</em> for MHS or <em>no perceived need</em> for MHS.</div></div><div><h3>Results</h3><div>Living in a noncore area, being male, lower educational attainment, older age, vision disability, and ambulatory disability were significantly associated with increased odds of reporting <em>no perceived need</em> for MHS. Being LGBTQIA+, poor transportation access, and cognitive disability were significantly associated with decreased odds of reporting <em>no perceived need</em> for MHS.</div><div>Cognitive disability, cohabitation, and poor transportation access were significantly associated with increased odds of reporting <em>unmet need</em> for MHS. Conversely, being male, having some college and/or a two-year degree were significantly associated with decreased odds of reporting <em>unmet need</em> for MHS. There were not significant differences in <em>unmet need</em> for MHS across rural indicators.</div></div><div><h3>Conclusion</h3><div><em>No perceived need</em> of MHS is an underexplored factor among rural and urban adults with disabilities. Solutions include policies to expand MHS access, tailored public health outreach, and provider communication training.</div></div>","PeriodicalId":49300,"journal":{"name":"Disability and Health Journal","volume":"18 2","pages":"Article 101761"},"PeriodicalIF":3.7,"publicationDate":"2024-11-26","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142755727","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Intellectual disabilities and risk of cardiovascular diseases: A population-based cohort study","authors":"In Young Cho ,&nbsp;Hye Yeon Koo ,&nbsp;Yoo Jin Um ,&nbsp;Yong-Moon Mark Park ,&nbsp;Kyung Mee Kim ,&nbsp;Chung Eun Lee ,&nbsp;Kyungdo Han","doi":"10.1016/j.dhjo.2024.101754","DOIUrl":"10.1016/j.dhjo.2024.101754","url":null,"abstract":"<div><h3>Background</h3><div>While intellectual disability is associated with higher mortality rates due to circulatory diseases, it is unclear whether intellectual disability is associated with higher risk of myocardial infarction (MI) and stroke than the general population.</div></div><div><h3>Objectives</h3><div>We aimed to analyze the risk of cardiovascular diseases (CVD), specifically myocardial infarction (MI) and ischemic stroke, and death due to circulatory diseases in individuals with disability.</div></div><div><h3>Methods</h3><div>This retrospective cohort study used data from the National Disability Registration System linked to the Korean National Health Insurance Service database. Individuals who underwent national health examinations in 2009 were followed until 2020. Cox-proportional hazard analyses were performed to estimate the risk of CVD, MI, ischemic stroke, and circulatory disease deaths with adjustment for covariates.</div></div><div><h3>Results</h3><div>A total of 3642 individuals with intellectual disability (mean [SD] age 39.1 [12.6], 28.8 % female) and 3,889,794 individuals without intellectual disability (mean [SD] age 47.1 [13.9], 45.6 % female) were included. Compared to those without intellectual disability, those with intellectual disability had higher risk of CVD (adjusted hazard ratio [aHR] 1.71, 95 % confidence interval [CI] 1.45–2.02), ischemic stroke (aHR 2.21, 95 % CI 1.81–2.69), and death due to circulatory diseases (aHR 4.20, 95 % CI 3.24–5.45), and a non-significant risk for MI (aHR 1.24, 95 % CI 0.95–1.63) after full adjustment for covariates.</div></div><div><h3>Conclusions</h3><div>Individuals with intellectual disability were at increased risk of CVD, in particular ischemic stroke, and death due to circulatory diseases. Healthcare professionals should be aware of increased CVD risk in individuals with intellectual disability.</div></div>","PeriodicalId":49300,"journal":{"name":"Disability and Health Journal","volume":"18 2","pages":"Article 101754"},"PeriodicalIF":3.7,"publicationDate":"2024-11-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142677638","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Comparison of the prevalence of metabolic syndrome between individuals with spinal cord injury and the general population based on the cutoff values of abdominal obesity","authors":"Jisun Lim ,&nbsp;Hyun-Jin Kim ,&nbsp;Onyoo Kim","doi":"10.1016/j.dhjo.2024.101753","DOIUrl":"10.1016/j.dhjo.2024.101753","url":null,"abstract":"<div><h3>Background</h3><div>Metabolic syndrome (MetS) is a cluster of cardiovascular disease (CVD) risk factors. Accurate diagnosis, in spinal cord injury (SCI) patients, is vital for effective CVD prevention.</div></div><div><h3>Objective</h3><div>This study aimed to identify factors related to MetS prevalence by comparing MetS prevalence trends in SCI and the general population (GP) and to examine differences in MetS prevalence in patients with SCI according to the cutoff reference value for abdominal obesity.</div></div><div><h3>Methods</h3><div>This retrospective cohort study analyzed data from the National Health Insurance Corporation from 2015 to 2019. MetS was defined using the National Cholesterol Education Program criteria with an adjusted waist circumference of 81.3 cm for patients with SCI. Data were collected on age, gender, smoking, alcohol consumption, BMI, waist circumference, lipid profiles, blood pressure, fasting glucose, and socioeconomic status. Each year, SCI patients (n = 3,140, n = 3,201, n = 3,503, n = 1,590, n = 1544) were matched with GP individuals (m = 31,400, m = 32,040, m = 35,030, m = 15,900, m = 15,440).</div></div><div><h3>Results</h3><div>Over 5 years, MetS prevalence increased in both groups, consistently higher in the SCI group. Older age and lower income were risk factors in both groups (<em>p</em> &lt; 0.05). Smoking and alcohol intake were significant only in the GP (<em>p</em> &lt; 0.0001). Using the adjusted obesity criterion, MetS prevalence was 1.4 times higher in SCI patients than in the GP (<em>p</em> &lt; 0.0001).</div></div><div><h3>Conclusions</h3><div>Exclusively relying on GP criteria for diagnosing MetS in patients with SCI may lead to an underestimation of MetS prevalence and overlooked opportunities for CVD prevention. Therefore, the development of diagnostic and preventive strategies for MetS considering SCI characteristics is needed.</div></div>","PeriodicalId":49300,"journal":{"name":"Disability and Health Journal","volume":"18 2","pages":"Article 101753"},"PeriodicalIF":3.7,"publicationDate":"2024-11-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142792692","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Examining the impact of the COVID-19 pandemic among staff and consumers at Florida centers for independent living","authors":"Acquel Allen-Mitchell ,&nbsp;Nichole E. Stetten ,&nbsp;Kashif Basaria ,&nbsp;Lauren Cox ,&nbsp;Nicole M. Marlow","doi":"10.1016/j.dhjo.2024.101751","DOIUrl":"10.1016/j.dhjo.2024.101751","url":null,"abstract":"<div><h3>Background</h3><div>People with disabilities (PWD) face health disparities due to barriers that limit their access to essential healthcare services. During the COVID-19 pandemic, health disparities among PWD increased as stay-at-home mandates and other safety measures interrupted access to healthcare and social services. Community-based and consumer-driven Centers for Independent Living (CILs) attempt to reduce disparities faced by <span>PWD</span> by providing information and referrals, peer counseling, and advocacy.</div></div><div><h3>Objective</h3><div>Despite funding to utilize public health workers to respond to the COVID-19 pandemic and prepare for future crises, the literature currently lacks examinations of the impact of the COVID-19 pandemic on <span>CIL</span> consumers and staff.</div></div><div><h3>Methods</h3><div>This qualitative study employed a directed content analysis to evaluate 6 consumer focus groups (N = 35) and 4 staff focus groups (N = 14).</div></div><div><h3>Results</h3><div>Through data analysis, staff themes included Resource Gaps, COVID-19 Concerns, Impact on Independence, Impact on <span>Health</span>, Work Demand Changes, and Work/Life Balance. Among consumers, themes of CIL Service Experiences, CIL Benefits, COVID-19 Concerns of Using CILs, COVID-19 Barriers to Using CILs, Impact on Independence, Impact on Health, Resource Gaps, and Recommendations for CILs were present.</div></div><div><h3>Conclusions</h3><div>This study demonstrates the diverse experiences among PWD during the COVID-19 pandemic. However, there are similarities in the impact of environmental factors on the severity of disability experienced by consumers and staff. This study highlights the benefits of independent community living resource centers and the need to better understand the experiences of PWD to prepare for future pandemics.</div></div>","PeriodicalId":49300,"journal":{"name":"Disability and Health Journal","volume":"18 2","pages":"Article 101751"},"PeriodicalIF":3.7,"publicationDate":"2024-11-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142717361","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Needs beyond coverage: Health care inequities among children with disabilities of parents with disabilities","authors":"Christy Pu ,&nbsp;Shu-Fang Shih ,&nbsp;Yiing-Jenq Chou","doi":"10.1016/j.dhjo.2024.101755","DOIUrl":"10.1016/j.dhjo.2024.101755","url":null,"abstract":"<div><h3>Background</h3><div>Family aggregation of disability is not uncommon. Research on children with disabilities has often overlooked a specific group facing health disparities: children with disabilities of parents with disabilities.</div></div><div><h3>Objective</h3><div>To determine whether children with disabilities, whose parents also have disabilities, experience limited access to health care.</div></div><div><h3>Methods</h3><div>This is a dynamic cohort study. The data used in this study were the 2017–2021 Taiwan's National Disability Registry and the National Health Insurance claims data. All children were matched to their biological fathers and mothers using a unique anonymous identification number to identify the disability status of the children and their parents and the receipt of health care services by the children.</div></div><div><h3>Results</h3><div>In 2021, a total of 2 834 870 pairs of children and parents were identified, of whom 53,419 were children with disabilities. Of these, 5188 had at least one parent with disabilities. Compared with children whose parents did not have disabilities, those whose parents both had disabilities had 1.71 fewer outpatient visits per year (<em>P</em> = .013). Compared with children whose parents had no disabilities, those whose parents had disabilities had 5.0 and 4.2 fewer general outpatient visits at birth (<em>P</em> &lt; .001) and at the age of 2 years (<em>P</em> &lt; .001), respectively. The magnitude of this effect decreased as the children's age increased.</div></div><div><h3>Conclusions</h3><div>Children with disabilities whose parents also have disabilities may underutilize health care even in settings such as Taiwan, where universal health coverage is available. Standard health programs do not eliminate health care utilization disparities for such children.</div></div>","PeriodicalId":49300,"journal":{"name":"Disability and Health Journal","volume":"18 2","pages":"Article 101755"},"PeriodicalIF":3.7,"publicationDate":"2024-11-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142856372","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}