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Health literacy in adults with a spinal cord injury or disorder: An updated and expanded systematic review 成人脊髓损伤或疾病的健康素养:一项更新和扩展的系统评价。
IF 3.7 2区 医学
Disability and Health Journal Pub Date : 2025-03-03 DOI: 10.1016/j.dhjo.2025.101821
Georgina Edwards, Diana Dorstyn, Melissa Oxlad
{"title":"Health literacy in adults with a spinal cord injury or disorder: An updated and expanded systematic review","authors":"Georgina Edwards,&nbsp;Diana Dorstyn,&nbsp;Melissa Oxlad","doi":"10.1016/j.dhjo.2025.101821","DOIUrl":"10.1016/j.dhjo.2025.101821","url":null,"abstract":"<div><h3>Background</h3><div>The importance of health literacy in personal health management is widely recognised in the general population, yet remains poorly understood in some patient groups, including people with spinal cord injury or disorder (SCI/D).</div></div><div><h3>Objectives</h3><div>The systematic review had two objectives: (1) to determine the health literacy levels of individuals with SCI/D, and (2) to identify facilitators and barriers to developing health literacy in this group.</div></div><div><h3>Methods</h3><div>Seven databases (CINAHL, Embase, Emcare, ProQuest, PsycINFO, PubMed, and Web of Science) were searched from inception, with an updated search completed on January 21, 2025. Study quality was evaluated (QualSyst Checklist) and both quantitative and qualitative research narratively summarised by our research aims.</div></div><div><h3>Results</h3><div>Seven quantitative studies and one qualitative study (<em>N =</em> 2471 participants) published from 2005 to 2022 were included. All demonstrated good methodological rigour. Most participants reported having sufficient health literacy. Those with higher health literacy were more likely to have higher education and socio-economic advantage, and to experience better physical and mental health outcomes. Evidence regarding the role of SCI/D variables in developing health literacy capacity was limited.</div></div><div><h3>Conclusions</h3><div>Health literacy remains an under-researched topic in the SCI/D literature. Further studies are needed to examine how health literacy can impact health behaviours and overall health for this group. This research would also benefit from focusing on personal experiences of health literacy development.</div></div>","PeriodicalId":49300,"journal":{"name":"Disability and Health Journal","volume":"18 3","pages":"Article 101821"},"PeriodicalIF":3.7,"publicationDate":"2025-03-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143617814","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Author Information 作者信息
IF 3.7 2区 医学
Disability and Health Journal Pub Date : 2025-03-03 DOI: 10.1016/S1936-6574(25)00022-6
{"title":"Author Information","authors":"","doi":"10.1016/S1936-6574(25)00022-6","DOIUrl":"10.1016/S1936-6574(25)00022-6","url":null,"abstract":"","PeriodicalId":49300,"journal":{"name":"Disability and Health Journal","volume":"18 2","pages":"Article 101794"},"PeriodicalIF":3.7,"publicationDate":"2025-03-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143534820","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
“This is life”: An interpretative phenomenological analysis of the lived experience of working-age adults with inherited retinal diseases in Singapore “这就是生活”:对新加坡患有遗传性视网膜疾病的工作年龄成年人生活经验的解释性现象学分析。
IF 3.7 2区 医学
Disability and Health Journal Pub Date : 2025-03-01 DOI: 10.1016/j.dhjo.2025.101819
Qin Xiang Ng , Hwei Wuen Chan , Raymond Boon Tar Lim , Gerald Choon Huat Koh
{"title":"“This is life”: An interpretative phenomenological analysis of the lived experience of working-age adults with inherited retinal diseases in Singapore","authors":"Qin Xiang Ng ,&nbsp;Hwei Wuen Chan ,&nbsp;Raymond Boon Tar Lim ,&nbsp;Gerald Choon Huat Koh","doi":"10.1016/j.dhjo.2025.101819","DOIUrl":"10.1016/j.dhjo.2025.101819","url":null,"abstract":"<div><h3>Background</h3><div>Inherited retinal diseases (IRDs) are a heterogeneous group of genetic disorders that progressively impair vision, affecting millions globally. Despite advancements in gene therapy, treatment options remain limited. The impact of IRDs on patients' psychological and social well-being, however, remains underexplored, especially in Asia.</div></div><div><h3>Objective</h3><div>This study investigates the lived experiences of working-age adults in Singapore with IRDs, focusing on how the condition influences their identity, social engagement, and coping mechanisms.</div></div><div><h3>Methods</h3><div>Following the traditions of Interpretative Phenomenological Analysis (IPA) and informed by the theories of biographical disruption and embodiment, semi-structured interviews were conducted with six adults (aged 21–65 years old) formally diagnosed with IRDs. Participants were recruited through a genetic eye service, and in-depth, one-on-one interviews explored the impact of diagnosis, occupational and social lives, coping strategies, and future outlook. Transcripts were analyzed to identify key experiential themes.</div></div><div><h3>Results</h3><div>Four major themes emerged: (1) Embodied Experience – Navigating a Shifting Relationship with the Body, (2) The Self in Flux – Redefining Identity and Purpose, (3) Social Negotiations – Visibility, Invisibility, and Stigma, and (4) Coping and Resilience – Strategies for Adapting to Uncertainty. Participants described ongoing negotiations of self-identity, perceived social stigma, and internal struggles with acceptance of their conditions, amidst their faltering visual abilities and blending efforts to adapt to progressive vision loss.</div></div><div><h3>Conclusions</h3><div>Vision loss profoundly affects individuals’ bodies, identities and social engagement. The findings emphasize holistic care that incorporates genetic and psychological counseling, along with public education initiatives to reduce stigma and support individuals in maintaining their independence.</div></div>","PeriodicalId":49300,"journal":{"name":"Disability and Health Journal","volume":"18 3","pages":"Article 101819"},"PeriodicalIF":3.7,"publicationDate":"2025-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143568665","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Navigating a hidden disability: Lived experiences and challenges of adults with early stage inherited retinal diseases 导航一个隐藏的残疾:生活经验和成人早期遗传性视网膜疾病的挑战。
IF 3.7 2区 医学
Disability and Health Journal Pub Date : 2025-02-27 DOI: 10.1016/j.dhjo.2025.101820
Mariam Bakir , Eden G. Robertson , Ruofei Trophy Chen , Bao N. Nguyen , Bronwyn McFadyen , Eve Makrai , Leighton Boyd , Rosemary Boyd , Sally Karandrews , Lauren N. Ayton , Alexis Ceecee Britten-Jones
{"title":"Navigating a hidden disability: Lived experiences and challenges of adults with early stage inherited retinal diseases","authors":"Mariam Bakir ,&nbsp;Eden G. Robertson ,&nbsp;Ruofei Trophy Chen ,&nbsp;Bao N. Nguyen ,&nbsp;Bronwyn McFadyen ,&nbsp;Eve Makrai ,&nbsp;Leighton Boyd ,&nbsp;Rosemary Boyd ,&nbsp;Sally Karandrews ,&nbsp;Lauren N. Ayton ,&nbsp;Alexis Ceecee Britten-Jones","doi":"10.1016/j.dhjo.2025.101820","DOIUrl":"10.1016/j.dhjo.2025.101820","url":null,"abstract":"<div><h3>Background</h3><div>Inherited retinal diseases (IRDs) are genetic conditions that typically cause vision loss in working-age adults, representing a unique hidden disability characterised by variable progression rates.</div></div><div><h3>Objective</h3><div>This qualitative study explored the lived experiences of adults in the early stages of IRDs, when vision loss is not outwardly apparent.</div></div><div><h3>Methods</h3><div>Semi-structured interviews were conducted with 15 individuals with IRDs (mean age 37 ± 17 years) with experiences of progressive vision loss in the last 10 years, exploring participants’ experiences and challenges following their IRD diagnosis. Interviews were transcribed verbatim and analysed using thematic analysis method.</div></div><div><h3>Results</h3><div>Analysis yielded five overarching themes: 1) Adapting to the diagnosis: “The journey can be harder than the actual disease”, describing challenges in coming to terms with the diagnosis. 2) Daily obstacles: “Accepting what I have, adapting where I can”, describing lifestyle and behavioural changes to accommodate for changing vision. 3) A roller-coaster of emotions: “I feel like I'm not in control of the journey”, highlighting emotional challenges managing the uncertainty of a variable, progressive disease. 4) Navigating society: “it's invisible, so people forget”, capturing interpersonal challenges stemming from a hidden disability. 5) The road ahead: Finding an identity within uncertainty, describing struggles with identity and the future.</div></div><div><h3>Conclusion</h3><div>Beyond vision impairment, individuals with IRDs face numerous personal and interpersonal challenges due to the hidden nature of their disability. These challenges are not always immediately apparent, highlighting the importance of raising awareness to assist in developing targeted resources, diagnostic support, and broader societal understanding for hidden disabilities.</div></div>","PeriodicalId":49300,"journal":{"name":"Disability and Health Journal","volume":"18 3","pages":"Article 101820"},"PeriodicalIF":3.7,"publicationDate":"2025-02-27","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143587650","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Disparities in COVID-19 vaccine coverage and risk factors among individuals with disabilities 残疾人中COVID-19疫苗覆盖率和风险因素的差异。
IF 3.7 2区 医学
Disability and Health Journal Pub Date : 2025-02-25 DOI: 10.1016/j.dhjo.2025.101817
HeeKyoung Choi , Boyoung Jeon , Euna Han
{"title":"Disparities in COVID-19 vaccine coverage and risk factors among individuals with disabilities","authors":"HeeKyoung Choi ,&nbsp;Boyoung Jeon ,&nbsp;Euna Han","doi":"10.1016/j.dhjo.2025.101817","DOIUrl":"10.1016/j.dhjo.2025.101817","url":null,"abstract":"<div><h3>Background</h3><div>Vaccination is a crucial strategy in responding to infectious diseases. We investigated the COVID-19 vaccination coverage among people with disabilities compared to people without disabilities. We identified risk factors of under-vaccination and vulnerable subgroups.</div></div><div><h3>Objectives</h3><div>To assess COVID-19 vaccination coverage in individuals with disabilities compared with individuals without disabilities and identify risk factors for under-vaccination.</div></div><div><h3>Methods</h3><div>This cross-sectional study analysed the Korea Disease Control and Prevention Agency-COVID-19-National Health Insurance Service (K-COV-N) cohort, which registered adults with disabilities in 2020 and age and sex-matched individuals without disabilities were included. Vaccination records from the rollout through March 31, 2022 were analysed. Multivariable ordinal logistic regression models were employed.</div></div><div><h3>Results</h3><div>This study included 4,811,866 participants after exclusions. Within the same disability type, individuals with severe disabilities had higher non-vaccination rates than those with mild disabilities. Individuals with pulmonary, brain and cardiac disabilities exhibited higher age-standardized non-vaccination rates (16.7 %, 15.1 % and 12.5 %, respectively). individuals with disabilities were more likely to be under-vaccinated than those without disabilities, with an adjusted odds ratio (aOR) of 1.01 (95 % CI 1.01–1.02). Females consistently exhibited a higher likelihood of non-vaccination in all subgroups. The impact of age differed based on the disability subgroups. The likelihood of under-vaccination was low in employee-insured individuals.</div></div><div><h3>Conclusions</h3><div>Individuals with disabilities were less likely to receive COVID-19 vaccination compared with those without disabilities and variations were observed by disability types. Tailored strategies considering identified risk factors are required to ensure equal vaccination access for individuals with disabilities in future pandemics.</div></div>","PeriodicalId":49300,"journal":{"name":"Disability and Health Journal","volume":"18 3","pages":"Article 101817"},"PeriodicalIF":3.7,"publicationDate":"2025-02-25","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143544057","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Bimodality in life satisfaction: The role of social support in individuals with long COVID 生活满意度的双峰性:社会支持在长冠状病毒感染者中的作用。
IF 3.7 2区 医学
Disability and Health Journal Pub Date : 2025-02-20 DOI: 10.1016/j.dhjo.2025.101813
Jina Chun , Joonbum Lee , Katelyn Matkin , Constance Richard , Uzma Khan , Susan Smedema
{"title":"Bimodality in life satisfaction: The role of social support in individuals with long COVID","authors":"Jina Chun ,&nbsp;Joonbum Lee ,&nbsp;Katelyn Matkin ,&nbsp;Constance Richard ,&nbsp;Uzma Khan ,&nbsp;Susan Smedema","doi":"10.1016/j.dhjo.2025.101813","DOIUrl":"10.1016/j.dhjo.2025.101813","url":null,"abstract":"<div><h3>Background</h3><div>Long COVID, characterized by persistent symptoms following SARS-CoV-2 infection, poses substantial challenges to individuals’ physical and mental health, yet its impact on life satisfaction remains underexplored.</div></div><div><h3>Objective</h3><div>This study aimed to investigate variations in life satisfaction among individuals with Long COVID and identify associated predictors using a mixture model approach.</div></div><div><h3>Methods</h3><div>Participants (<em>N</em> = 212) were recruited via Prolific and completed surveys assessing life satisfaction, stress, resilience, social support, and hope. A mixture model analysis categorized participants into two clusters based on the relationship between life satisfaction and contributing factors (e.g., social support).</div></div><div><h3>Results</h3><div>Cluster 1 (<em>n</em> = 153) exhibited lower life satisfaction scores, while Cluster 2 (<em>n</em> = 59) reported higher scores. Social support emerged as a significant predictor of life satisfaction in Cluster 2 (<em>p</em> &lt; .001), with correlations indicating its positive association with life satisfaction and negative association with stress levels. However, social support was not significantly associated with life satisfaction in Cluster 1.</div></div><div><h3>Conclusions</h3><div>The findings highlighted the heterogeneous nature of life satisfaction among individuals with Long COVID. Social support, particularly from family and friends, was identified as a critical factor influencing well-being outcomes. Tailored interventions focusing on enhancing social support networks could mitigate the adverse impacts of Long COVID and improve overall quality of life for individuals with Long COVID.</div></div>","PeriodicalId":49300,"journal":{"name":"Disability and Health Journal","volume":"18 3","pages":"Article 101813"},"PeriodicalIF":3.7,"publicationDate":"2025-02-20","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143516991","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Sexual violence victimisation among deaf adolescents: A multi-school-based cross-sectional study from Ghana 失聪青少年的性暴力受害:一项来自加纳多所学校的横断面研究。
IF 3.7 2区 医学
Disability and Health Journal Pub Date : 2025-02-14 DOI: 10.1016/j.dhjo.2025.101812
Emmanuel Nii-Boye Quarshie , Daniel Fobi , Cyril Mawuli Honu-Mensah , Emma Eyison Appiah , Ethel Obeng , Irene Nyarkoah Bokpin , Curwyn Mapaling , Kwaku Oppong Asante
{"title":"Sexual violence victimisation among deaf adolescents: A multi-school-based cross-sectional study from Ghana","authors":"Emmanuel Nii-Boye Quarshie ,&nbsp;Daniel Fobi ,&nbsp;Cyril Mawuli Honu-Mensah ,&nbsp;Emma Eyison Appiah ,&nbsp;Ethel Obeng ,&nbsp;Irene Nyarkoah Bokpin ,&nbsp;Curwyn Mapaling ,&nbsp;Kwaku Oppong Asante","doi":"10.1016/j.dhjo.2025.101812","DOIUrl":"10.1016/j.dhjo.2025.101812","url":null,"abstract":"<div><h3>Background</h3><div>Deaf adolescents and other young people with sensory disabilities are at elevated risk of sexual violence victimisation. However, there is scant published evidence on the epidemiology of sexual violence victimisation among deaf adolescents from African countries, including Ghana.</div></div><div><h3>Objective</h3><div>To describe the 12-month prevalence and associated factors of sexual violence victimisation among school-going deaf adolescents in Ghana.</div></div><div><h3>Methods</h3><div>This is a cross-sectional self-report survey involving a nationally representative sample of 422 school-going deaf adolescents. Multivariable logistic regression was used to examine the sociodemographic, personal-level, family-related, school-based, and interpersonal-level factors associated with sexual violence victimisation.</div></div><div><h3>Results</h3><div>The 12-month prevalence estimate of sexual violence victimisation was 17.4% (95% confidence interval [CI] = 14.0–21.3%). Comparable estimates were found between females (16.6%; 95%CI = 11.3–23.0%) and males (17.9%; 95%CI = 13.6–23.0%). Deaf adolescents from polygynous families, those who did paid work, those having a single-parent caretaker, those whose primary caretakers were unemployed, and those in romantic relationships were at increased odds of sexual violence victimisation. Family-related factors such as parental divorce, and conflict with parents were also associated with increased odds of sexual violence victimisation. No (putative protective) factors were identified to be associated with reduced odds of sexual violence victimisation.</div></div><div><h3>Conclusions</h3><div>The prevalence estimates and associated factors of sexual violence victimisation among school-going deaf adolescents in the current study are comparable to what is known about in-school hearing adolescents in Ghana. The evidence highlights the need to strengthen preventive efforts against the offence in both deaf and hearing adolescents.</div></div>","PeriodicalId":49300,"journal":{"name":"Disability and Health Journal","volume":"18 3","pages":"Article 101812"},"PeriodicalIF":3.7,"publicationDate":"2025-02-14","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143469718","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Physical activity type and duration in disabled and non-disabled adults 残疾和非残疾成人的身体活动类型和持续时间。
IF 3.7 2区 医学
Disability and Health Journal Pub Date : 2025-02-13 DOI: 10.1016/j.dhjo.2025.101786
Shelby Carr , Andrew J. Atkin , Karen Milton
{"title":"Physical activity type and duration in disabled and non-disabled adults","authors":"Shelby Carr ,&nbsp;Andrew J. Atkin ,&nbsp;Karen Milton","doi":"10.1016/j.dhjo.2025.101786","DOIUrl":"10.1016/j.dhjo.2025.101786","url":null,"abstract":"<div><h3>Background</h3><div>Disabled people are more likely to be physically inactive than non-disabled people, yet limited research has explored the types of physical activities that disabled people participate in.</div></div><div><h3>Objectives</h3><div>This study describes the types of physical activities that disabled people participate in, and compares activity frequency and duration to non-disabled people.</div></div><div><h3>Methods</h3><div>Using cross-sectional data from the 2018/19 Sport England Active Lives survey, participants were categorised into three groups (disability – substantial effect on daily activities; disability – non-substantial effect on daily activities; no disability), and activity types were grouped into 17 categories including athletic, leisure, and swimming. Chi-squared tests and multivariable linear regression were used to compare participation in each activity category across the sub-groups.</div></div><div><h3>Results</h3><div>Of 158,995 participants, 18% (n=29,057) had a disability that had a substantial effect on daily activities, 21% (n=33,004) had a disability with a non-substantial effect on daily activities, and 61% (n=96,934) had no disability. Leisure was the most frequently reported activity type and of longest duration (median (interquartile range) mins/day: disability – substantial effect on daily activities: 315 (120–700); disability – non-substantial effect on daily activities: 390 (180–750); no disability: 375 (165–750)). Whilst activity duration was typically higher among people with no disability, artistic activities and swimming were higher for people with a disability that had a substantial effect on daily activities.</div></div><div><h3>Conclusions</h3><div>Activity choices were similar among sub-groups, however participation rates and activity duration were typically lower among disabled people. Reducing inequalities in physical activity participation will require improved access, opportunities, and support.</div></div>","PeriodicalId":49300,"journal":{"name":"Disability and Health Journal","volume":"18 3","pages":"Article 101786"},"PeriodicalIF":3.7,"publicationDate":"2025-02-13","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143450794","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Assessing STI and HIV risks among autistic individuals: Implications for healthcare access and intervention 评估自闭症个体中的性传播感染和艾滋病毒风险:对医疗保健获取和干预的影响。
IF 3.7 2区 医学
Disability and Health Journal Pub Date : 2025-02-13 DOI: 10.1016/j.dhjo.2025.101780
Kiley J. McLean , Molly Sadowsky , Arina Chesnokova , Kyle Chvasta , Wei-Lin Lee , Jonas Ventimiglia , Lindsay Shea
{"title":"Assessing STI and HIV risks among autistic individuals: Implications for healthcare access and intervention","authors":"Kiley J. McLean ,&nbsp;Molly Sadowsky ,&nbsp;Arina Chesnokova ,&nbsp;Kyle Chvasta ,&nbsp;Wei-Lin Lee ,&nbsp;Jonas Ventimiglia ,&nbsp;Lindsay Shea","doi":"10.1016/j.dhjo.2025.101780","DOIUrl":"10.1016/j.dhjo.2025.101780","url":null,"abstract":"<div><h3>Background</h3><div>Sexually transmitted infections (STIs) are prevalent in the general population. Autistic individuals, both with and without intellectual disability (ID), are potentially at increased risk due to gaps in sexual health education, increased vulnerability to sexual abuse, victimization, and disparities in access to primary and reproductive health care.</div></div><div><h3>Objective</h3><div>This study aims to identify the prevalence of STIs and HIV among a national sample of Medicaid-enrolled autistic individuals and their peers, identifying opportunities for intervention.</div></div><div><h3>Methods</h3><div>Characteristics of autistic Medicaid beneficiaries with and without ID were stratified to compare individuals with and without chlamydia, gonorrhea, syphilis, and HIV. Period prevalence of outcomes among Medicaid enrollees with autism spectrum disorder (ASD) only, ID only, and both (ASD and ID) were compared.</div></div><div><h3>Results</h3><div>Among autistic individuals, the prevalence of STIs and HIV was highest in the 22–30 age group and among Black enrollees, underscoring the importance of prioritizing their care through screening and preventive health measures.</div></div><div><h3>Conclusions</h3><div>The results emphasize gaps in addressing the sexual and reproductive health needs of autistic individuals. Policymakers should prioritize funding for clinician training and increased healthcare access to address the sexual health needs of this population, especially those from additionally marginalized communities. It is vital to provide inclusive care that addresses the unique challenges faced by autistic individuals in accessing appropriate sexual health resources.</div></div>","PeriodicalId":49300,"journal":{"name":"Disability and Health Journal","volume":"18 3","pages":"Article 101780"},"PeriodicalIF":3.7,"publicationDate":"2025-02-13","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143442556","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Quality of life, physical activity, and social determinants in teenagers with cerebral palsy: A cross-sectional study in Sweden 青少年脑瘫患者的生活质量、身体活动和社会决定因素:瑞典的一项横断面研究。
IF 3.7 2区 医学
Disability and Health Journal Pub Date : 2025-02-11 DOI: 10.1016/j.dhjo.2025.101785
Frida Degerstedt , Birgit Enberg , Nawi Ng , Britt-Inger Keisu , Martin Björklund
{"title":"Quality of life, physical activity, and social determinants in teenagers with cerebral palsy: A cross-sectional study in Sweden","authors":"Frida Degerstedt ,&nbsp;Birgit Enberg ,&nbsp;Nawi Ng ,&nbsp;Britt-Inger Keisu ,&nbsp;Martin Björklund","doi":"10.1016/j.dhjo.2025.101785","DOIUrl":"10.1016/j.dhjo.2025.101785","url":null,"abstract":"<div><h3>Background</h3><div>The associations between physical activity and various social determinants with quality of life (QoL) among teenagers with cerebral palsy (CP) are inconclusive.</div></div><div><h3>Objective</h3><div>To explore associations between perceived QoL among teenagers with CP in Sweden and participation in physical leisure activity and physical education in school, as well as sex, gross motor function, pain and bother, caregivers’ birth country and socioeconomic status.</div></div><div><h3>Methods</h3><div>A cross-sectional study with teenagers who have CP, aged 15–18 years. The survey, including the assessment form Cerebral Palsy Quality of Life-teenager (CP QoL-teen), was sent to all youths in the national patient registry held by the Swedish National Board of Health and Welfare (n = 900). Survey data was complemented with data from other national health registries containing information on demographics, physical leisure activity, physical education, and gross motor function. Multivariable linear- and quantile regression analyses were performed.</div></div><div><h3>Results</h3><div>The survey was answered by 149 participants. Physical leisure activity was positively associated with the QoL-domain Communication and physical health. Gross motor function was associated with domains referring to physical function and participation; more severe motor difficulties indicated lower QoL. Pain was negatively associated with all QoL domains. Low caregiver educational levels were associated with higher social well-being domain.</div></div><div><h3>Conclusion</h3><div>Minimizing pain and facilitating physical activity may enhance QoL for teenagers who have CP. To improve participation for teenagers with severe disabilities, with non-Nordic caregivers, and caregivers without postgraduate education, targeted measures to facilitate participation are needed.</div></div>","PeriodicalId":49300,"journal":{"name":"Disability and Health Journal","volume":"18 3","pages":"Article 101785"},"PeriodicalIF":3.7,"publicationDate":"2025-02-11","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143450765","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
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