Disability and Health Journal最新文献

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Exhibiting lived experiences of disability in a hospital workplace: A qualitative evaluation 在医院工作场所展示残疾人士的生活经历:定性评估。
IF 3.7 2区 医学
Disability and Health Journal Pub Date : 2024-11-15 DOI: 10.1016/j.dhjo.2024.101752
Nina Michelle Worthington, Charlotte Grainger
{"title":"Exhibiting lived experiences of disability in a hospital workplace: A qualitative evaluation","authors":"Nina Michelle Worthington,&nbsp;Charlotte Grainger","doi":"10.1016/j.dhjo.2024.101752","DOIUrl":"10.1016/j.dhjo.2024.101752","url":null,"abstract":"<div><h3>Background</h3><div>Beyond the Stigma (BTS) was an exhibition of stories about staff with physical and hidden impairments at the Royal Orthopaedic Hospital NHS Foundation Trust, Birmingham, UK.</div></div><div><h3>Objective</h3><div>Evaluative research aimed to examine BTS's long-term impact on participants who publicly shared lived experiences of disability in their hospital workplace. It also sought to discover how arts-based interventions can effectively identify and promote nuanced disability understandings and the wellbeing of disabled people working in healthcare.</div></div><div><h3>Methods</h3><div>Interpretative Phenomenological Analysis (IPA) interviews were conducted with six hospital staff. Transcripts were analyzed in depth.</div></div><div><h3>Results</h3><div>Three superordinate themes emerged from the data, <em>Process of Hesitancy and Comfort</em>, <em>Perceptions of Impact and Contribution</em>, and <em>Journeying with Disability Understandings.</em> These captured personal narratives of how it felt to disclose impairment and perceptions of the project's impact. Long-term benefits of taking part in BTS were identified as increased self-confidence, openness, self-acceptance, and empowerment. Shifts in participants' personal disability views pointed to improved quality of life inside and outside the workplace through new awareness of diverse and shared experiences, new ease with disability definitions, language, self-identity, and community participation.</div></div><div><h3>Conclusion</h3><div>Study findings exposed levels of risk, resilience, and compromise associated with sharing personal experiences of disability, and how these can be managed effectively in the workplace. BTS offers a model for health promotion and community participation across disabled and non-disabled communities that can be repeated and adapted to support employment strategies, shift understandings, and promote notions of disability gain and disability pride across healthcare settings.</div></div>","PeriodicalId":49300,"journal":{"name":"Disability and Health Journal","volume":"18 2","pages":"Article 101752"},"PeriodicalIF":3.7,"publicationDate":"2024-11-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142689334","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
How does the environmental inadequacy mediate the effect of functional limitations on participation restrictions in young adults with cerebral palsy? 环境不足如何介导功能限制对年轻脑瘫患者参与限制的影响?
IF 3.7 2区 医学
Disability and Health Journal Pub Date : 2024-11-14 DOI: 10.1016/j.dhjo.2024.101736
Célia Perret , Virginie Ehlinger , Jason Shourick , Joaquim J.M. Alvarelhão , Kate Himmelmann , Malika Delobel-Ayoub , Nicolas Vidart d’Egurbide Bagazgoïtia , Catherine Arnaud
{"title":"How does the environmental inadequacy mediate the effect of functional limitations on participation restrictions in young adults with cerebral palsy?","authors":"Célia Perret ,&nbsp;Virginie Ehlinger ,&nbsp;Jason Shourick ,&nbsp;Joaquim J.M. Alvarelhão ,&nbsp;Kate Himmelmann ,&nbsp;Malika Delobel-Ayoub ,&nbsp;Nicolas Vidart d’Egurbide Bagazgoïtia ,&nbsp;Catherine Arnaud","doi":"10.1016/j.dhjo.2024.101736","DOIUrl":"10.1016/j.dhjo.2024.101736","url":null,"abstract":"<div><h3>Background</h3><div>Adults with cerebral palsy (CP) face various functional limitations and comorbidities, that prevent them from participating fully in social life. Disability models suggest that an environment not tailored to their needs could partly explain the link between functional limitations and participation restrictions. However, there is still insufficient knowledge about how the environment hinders participation.</div></div><div><h3>Objective</h3><div>To investigate the mediating role of environmental inadequacy in the relationship between functional limitations and participation restrictions in young adults with CP.</div></div><div><h3>Methods</h3><div>Cross-sectional study, which included 310 young adults with CP, aged 22–27 years at interview (2018–2020) and recruited in well-defined geographical areas in France, Germany, Italy, Portugal and Sweden. Environmental inadequacy was assessed using the EAEQ and participation restrictions using the QYPP-YA. A theorical model was tested with a partial least squares structural equation model.</div></div><div><h3>Results</h3><div>Functional limitations had a significant direct effect on participation restrictions (β = 0.62, p &lt; 0.001). A small part of the total effect was mediated by the “inadequacy of services, systems and policies” environmental latent variable (β = 0.10, p &lt; 0.001). “Inadequacy of support and relationships” and “inadequacy of attitudes” environments demonstrated no mediating effect. Unexpectedly, a higher “inadequacy of products and technology” environmental score appeared to reduce participation restrictions (β = −0.10, p = 0.025).</div></div><div><h3>Conclusions</h3><div>The environment considered as suggested by the ICF had only a minimal mediating effect in our study. However, public health policies must give priority to improvements at the macro-environmental level, particularly in terms of availability and access to the “services, systems and policies”.</div></div>","PeriodicalId":49300,"journal":{"name":"Disability and Health Journal","volume":"18 2","pages":"Article 101736"},"PeriodicalIF":3.7,"publicationDate":"2024-11-14","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142752173","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Disability and intimate partner violence experience among women in rural Samoa: A cross-sectional analysis 萨摩亚农村妇女的残疾与亲密伴侣暴力经历:横断面分析。
IF 3.7 2区 医学
Disability and Health Journal Pub Date : 2024-11-13 DOI: 10.1016/j.dhjo.2024.101735
Hattie Lowe , Mata'afa Fa'atino Utumapu , Pepe Tevaga , Papali’i Ene , Jenevieve Mannell
{"title":"Disability and intimate partner violence experience among women in rural Samoa: A cross-sectional analysis","authors":"Hattie Lowe ,&nbsp;Mata'afa Fa'atino Utumapu ,&nbsp;Pepe Tevaga ,&nbsp;Papali’i Ene ,&nbsp;Jenevieve Mannell","doi":"10.1016/j.dhjo.2024.101735","DOIUrl":"10.1016/j.dhjo.2024.101735","url":null,"abstract":"<div><h3>Background</h3><div>Women with disabilities experience higher rates of intimate partner violence (IPV). Evidence suggests this violence often manifests in more subtle and severe forms over longer periods of time. There is limited evidence on this association in the Pacific Islands region, despite facing one of the highest global prevalences of IPV.</div></div><div><h3>Objective</h3><div>Examine the prevalence of disability and the association between disability and types of IPV experience among women in rural Samoa as part of the EVE Project.</div></div><div><h3>Methods</h3><div>This study analysed cross-sectional data collected with nine communities in rural Samoa between December 2022 and February 2023. Enumerators collected data with 707 women on tablets using REDCap. IPV was measured using the standardised Demographic and Health Survey (DHS) domestic violence methodology. Disability was assessed using the Washington Group questions. Logistic regression was conducted to examine the association between disability and experiences of IPV (physical, sexual, emotional and economic violence) among women.</div></div><div><h3>Results</h3><div>Having a disability was significantly associated with increased IPV experience among women in this study. When controlling for age and education, women with severe disability were significantly more likely to experience sexual (OR 4.31; p = 0.01) and emotional (OR 2.87; p = 0.02) IPV, when compared to women with no disability.</div></div><div><h3>Conclusions</h3><div>Our findings point towards a greater vulnerability of women with disabilities to IPV, and particularly sexual and emotional IPV, in rural Samoa. Qualitative research in partnership with women with disabilities is essential to inform the design of measurement tools and prevention programmes that are grounded in the context-specific experiences and needs of all women with disabilities.</div></div>","PeriodicalId":49300,"journal":{"name":"Disability and Health Journal","volume":"18 2","pages":"Article 101735"},"PeriodicalIF":3.7,"publicationDate":"2024-11-13","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142644798","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Exploring the physical, psychological, and social benefits of adaptive outdoor cycling in persons with stroke using a mixed methods approach 采用混合方法,探索适应性户外自行车运动对中风患者的身体、心理和社交益处。
IF 3.7 2区 医学
Disability and Health Journal Pub Date : 2024-11-13 DOI: 10.1016/j.dhjo.2024.101737
Alexandra L. Terrill , Anne V. Kirby , Nicole Nagata , Steven Bell , Steven Edgley
{"title":"Exploring the physical, psychological, and social benefits of adaptive outdoor cycling in persons with stroke using a mixed methods approach","authors":"Alexandra L. Terrill ,&nbsp;Anne V. Kirby ,&nbsp;Nicole Nagata ,&nbsp;Steven Bell ,&nbsp;Steven Edgley","doi":"10.1016/j.dhjo.2024.101737","DOIUrl":"10.1016/j.dhjo.2024.101737","url":null,"abstract":"<div><h3>Background</h3><div>Stroke is a leading cause of disability world-wide. Community-based adaptive recreation programs may offer a way to enhance quality of life in persons with stroke.</div></div><div><h3>Objective</h3><div>Explore the association between community-based adaptive outdoor cycling program participation and physical, psychological, and social outcomes in persons with stroke using both quantitative and qualitative data collection.</div></div><div><h3>Methods</h3><div>Mixed methods design, using prospective longitudinal quantitative data collection during a 16-week adaptive outdoor cycling program (Part 1) and a semi-structured interview/focus group (Part 2). Part 1 included baseline, 8- and 16-weeks assessments of physical, psychological, and social outcomes. Repeated measures analyses of variance (ANOVA) were used to examine within-group changes and effect sizes were calculated. Part 2's transcriptions were coded for physical, psychological, and social outcomes.</div></div><div><h3>Results</h3><div>30 individuals post-stroke (ages 25–72) were enrolled in Part 1 of the study. ANOVA results showed statistically significant changes in all three areas: physical (resting heart rate, 10-m walk test), psychological (well-being), and social (satisfaction with social roles) outcomes, all with large effect sizes. All other outcomes showed changes in the expected direction but did not reach statistical significance. Findings from qualitative analyses explained and expanded upon quantitative findings.</div></div><div><h3>Conclusions</h3><div>The results highlight the importance of exploring the influence of adaptive recreation on not only physical but psychological and social outcomes. Due to the exploratory design of this pilot, future research is warranted.</div></div>","PeriodicalId":49300,"journal":{"name":"Disability and Health Journal","volume":"18 2","pages":"Article 101737"},"PeriodicalIF":3.7,"publicationDate":"2024-11-13","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142644817","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
A year of disability health equity milestones: Why disability data is still needed 残疾健康公平里程碑之年:为什么仍然需要残疾数据?
IF 3.7 2区 医学
Disability and Health Journal Pub Date : 2024-10-23 DOI: 10.1016/j.dhjo.2024.101723
Scott D. Landes , Bonnielin K. Swenor
{"title":"A year of disability health equity milestones: Why disability data is still needed","authors":"Scott D. Landes ,&nbsp;Bonnielin K. Swenor","doi":"10.1016/j.dhjo.2024.101723","DOIUrl":"10.1016/j.dhjo.2024.101723","url":null,"abstract":"<div><div>Three milestone disability health equity related decisions occurred between September 2023 and May 2024. Though each is to be celebrated in its own right, the continued failure to collect and/or limitations with disability data block the path to achieving disability health equity in the US.</div></div>","PeriodicalId":49300,"journal":{"name":"Disability and Health Journal","volume":"18 2","pages":"Article 101723"},"PeriodicalIF":3.7,"publicationDate":"2024-10-23","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142548552","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
The intersection of systemic lupus erythematosus with social and occupational environments among black adults: A qualitative study 黑人成年人中系统性红斑狼疮与社会和职业环境的交集:定性研究。
IF 3.7 2区 医学
Disability and Health Journal Pub Date : 2024-10-23 DOI: 10.1016/j.dhjo.2024.101713
Deena Aboul-Hassan , Johari Summerville , Bhaavna Yalavarthi , Nikki Farahani , Christine Yu , Lillian Z. Xiao . , Sia Rajgarhia , Daniel J. Clauw , J. Michelle Kahlenberg , Melissa DeJonckheere , Rachel S. Bergmans
{"title":"The intersection of systemic lupus erythematosus with social and occupational environments among black adults: A qualitative study","authors":"Deena Aboul-Hassan ,&nbsp;Johari Summerville ,&nbsp;Bhaavna Yalavarthi ,&nbsp;Nikki Farahani ,&nbsp;Christine Yu ,&nbsp;Lillian Z. Xiao . ,&nbsp;Sia Rajgarhia ,&nbsp;Daniel J. Clauw ,&nbsp;J. Michelle Kahlenberg ,&nbsp;Melissa DeJonckheere ,&nbsp;Rachel S. Bergmans","doi":"10.1016/j.dhjo.2024.101713","DOIUrl":"10.1016/j.dhjo.2024.101713","url":null,"abstract":"<div><h3>Background</h3><div>Black people have disproportionately high morbidity and mortality due to systemic lupus erythematosus (SLE). Features of social and occupational environments can protect against poor health outcomes.</div></div><div><h3>Objective</h3><div>We aimed to characterize how SLE intersects with interpersonal relationships and employment among Black adults to inform tailored care approaches and public policies that could alleviate racial inequities in SLE.</div></div><div><h3>Methods</h3><div>We used a qualitative, interpretive description approach that involved semi-structured interviews with Black adults who had SLE. The interview guide included questions about SLE diagnosis, impacts on day-to-day life, and symptom management. We analyzed the de-identified transcripts using inductive, thematic analysis with input from representatives of the study population. Our theme development focused on how SLE (i.e., symptoms, severity, management) intersected with interpersonal relationships and employment.</div></div><div><h3>Results</h3><div>This study included 30 interviews (97 % female, age range = 18–65 years). Among participants, 30 % were not working due to unemployment or disability and 23 % reported a lack of emotional support. Our analysis resulted in three main themes: 1) The bi-directional relationship between employment and SLE; 2) The positive and negative effects of connecting with other people who have SLE; and 3) The moderating role of relationships with family and friends, and the impact on self-identity.</div></div><div><h3>Conclusions</h3><div>This study describes features of social and occupational environments that influence SLE management and wellbeing. Our results highlight directions for further study that could identify and address how systemic racism affects race-based inequities in SLE.</div></div>","PeriodicalId":49300,"journal":{"name":"Disability and Health Journal","volume":"18 2","pages":"Article 101713"},"PeriodicalIF":3.7,"publicationDate":"2024-10-23","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142523462","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Patient-provider relationships and long COVID: A cross-sectional survey about impact on quality of life 患者与医疗服务提供者的关系和长期 COVID:关于对生活质量影响的横断面调查。
IF 3.7 2区 医学
Disability and Health Journal Pub Date : 2024-10-22 DOI: 10.1016/j.dhjo.2024.101722
Jeanine P.D. Guidry , Linnea I. Laestadius , Candace W. Burton , Carrie A. Miller , Paul B. Perrin , Celeste Campos-Castillo , Thomas Chelimsky , Raouf Gharbo , Kellie E. Carlyle
{"title":"Patient-provider relationships and long COVID: A cross-sectional survey about impact on quality of life","authors":"Jeanine P.D. Guidry ,&nbsp;Linnea I. Laestadius ,&nbsp;Candace W. Burton ,&nbsp;Carrie A. Miller ,&nbsp;Paul B. Perrin ,&nbsp;Celeste Campos-Castillo ,&nbsp;Thomas Chelimsky ,&nbsp;Raouf Gharbo ,&nbsp;Kellie E. Carlyle","doi":"10.1016/j.dhjo.2024.101722","DOIUrl":"10.1016/j.dhjo.2024.101722","url":null,"abstract":"<div><h3>Background</h3><div>In the United States (U.S.), it is estimated that 17.6 % of adults have experienced Long COVID, a condition where symptoms newly develop and linger after initial COVID-19 infection. Long COVID is associated with significantly reduced quality of life (QoL), and patient-provider relationships have been shown to influence QoL for patients in general.</div></div><div><h3>Objective</h3><div>The objective for this study was to better understand the role of patient-provider relationships in shaping QoL among U.S. adults with Long COVID.</div></div><div><h3>Methods</h3><div>This study carried out an online survey among U.S. adult with Long COVID (N = 792).</div></div><div><h3>Results</h3><div>Respondents with at least a bachelor's degree reported higher QoL, and older respondents were more likely to report lower QoL; trust in providers was a significant predictor of higher QoL, while dismissal of Long COVID symptoms was associated with lower QoL (all p &lt; .05).</div></div><div><h3>Conclusions</h3><div>Healthcare providers should be aware of the importance of trust in the relationship with their Long COVID patients and the impact this may have on patients’ QoL. Researchers and policy makers should include an increasing focus on training for providers who treat patients with Long COVID in order to strengthen patient-provider relationships.</div></div>","PeriodicalId":49300,"journal":{"name":"Disability and Health Journal","volume":"18 2","pages":"Article 101722"},"PeriodicalIF":3.7,"publicationDate":"2024-10-22","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142548553","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
“Too few, too far away, for what is paid”: Consumer voices about the personal assistance worker crisis "太少,太远,付出的代价太大":消费者对个人助理危机的呼声。
IF 3.7 2区 医学
Disability and Health Journal Pub Date : 2024-10-19 DOI: 10.1016/j.dhjo.2024.101721
Catherine Ipsen, Rayna Sage, Krys Standley
{"title":"“Too few, too far away, for what is paid”: Consumer voices about the personal assistance worker crisis","authors":"Catherine Ipsen,&nbsp;Rayna Sage,&nbsp;Krys Standley","doi":"10.1016/j.dhjo.2024.101721","DOIUrl":"10.1016/j.dhjo.2024.101721","url":null,"abstract":"<div><h3>Background</h3><div>The growing gap between demand and supply of personal assistance service (PAS) workers presents a significant burden to those who use services. The intensity and duration of hardship is growing, and consumer voices need to be heard and incorporated into the national dialogue.</div></div><div><h3>Objective</h3><div>This paper explores how PAS worker shortages manifest themselves in the daily lives of people with disabilities using or needing PAS services in the United States.</div></div><div><h3>Methods</h3><div>We used thematic coding of qualitative data from the 2022 National Survey on Health and Disability. Respondents (n = 330) provided open-ended responses to the prompt “Briefly explain the types of problems or issues you have had finding PAS or support workers.”</div></div><div><h3>Results</h3><div>Three themes emerged regarding consumer perspectives and experiences with worker shortages (1) <em>low pay, few benefits, and undervalued work</em>, (2) <em>demanding working conditions and logistics,</em> and (3) <em>low quality workers.</em> In combination, these themes informed a fourth theme (4) <em>impacts for PAS consumers</em> characterized by substandard care and additional stress and workload for those who direct their own care.</div></div><div><h3>Conclusions</h3><div>As a society, we have taken steps to increase opportunities for community living and created policies to uphold choice and independence for people with disabilities. In the absence of an adequate workforce to support these policies, however, we convey an empty promise. Without tangible steps to resolve these problems at the policy level, such as improved worker pay and protections, hope for resolution to these issues remains elusive.</div></div>","PeriodicalId":49300,"journal":{"name":"Disability and Health Journal","volume":"18 2","pages":"Article 101721"},"PeriodicalIF":3.7,"publicationDate":"2024-10-19","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142511461","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Providing accessible health information for people with disability in a public health crisis: A qualitative study of the experiences of Australian accessible information provider organizations during the COVID-19 pandemic 在公共卫生危机中为残疾人提供无障碍健康信息:澳大利亚无障碍信息提供机构在 COVID-19 大流行期间的经验定性研究。
IF 3.7 2区 医学
Disability and Health Journal Pub Date : 2024-10-17 DOI: 10.1016/j.dhjo.2024.101720
Ariella Meltzer , Emma Barnes , Ayah Wehbe
{"title":"Providing accessible health information for people with disability in a public health crisis: A qualitative study of the experiences of Australian accessible information provider organizations during the COVID-19 pandemic","authors":"Ariella Meltzer ,&nbsp;Emma Barnes ,&nbsp;Ayah Wehbe","doi":"10.1016/j.dhjo.2024.101720","DOIUrl":"10.1016/j.dhjo.2024.101720","url":null,"abstract":"<div><h3>Background</h3><div>During the COVID-19 pandemic, people with disability had a right and an acute need to access accessible COVID-19 information, in formats such as sign language, Braille, large print and Easy Read/English. Yet such information was not always provided and many people with disability were without sufficient accessible information.</div></div><div><h3>Objective</h3><div>This paper explores the experiences of Australian accessible information provider organizations of producing accessible information during the pandemic. The intent is to understand why insufficient accessible information reached people with disability.</div></div><div><h3>Methods</h3><div>In-depth interviews were conducted with 17 accessible information provider organizations and one other stakeholder in Australia, and thematically analyzed.</div></div><div><h3>Results</h3><div>The findings show that accessible information provider organizations felt an immense depth and breadth of responsibility for providing accessible information to people with disability during the pandemic. However, they were hampered by constantly changing information; workforce challenges; and a lack of financial, logistic and partnership assistance. Other notable difficulties included having no source of clear/accurate information to translate to accessible formats and not having medical/health expertise themselves.</div></div><div><h3>Conclusion</h3><div>The findings have implications for better preparation for accessible information access in future public health crises. There should be greater funding and logistic support for accessible information provider organizations. Provision of clear/accurate information and subject matter checks of accessible products would be helpful. Responsibility for this should be scoped into existing outreach, education and communications roles – for example, in local health services, general practice clinics and government health departments.</div></div>","PeriodicalId":49300,"journal":{"name":"Disability and Health Journal","volume":"18 2","pages":"Article 101720"},"PeriodicalIF":3.7,"publicationDate":"2024-10-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142511462","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Qualitative analysis of Portuguese-language YouTube videos about autism spectrum disorders 对有关自闭症谱系障碍的葡萄牙语 YouTube 视频进行定性分析。
IF 3.7 2区 医学
Disability and Health Journal Pub Date : 2024-10-12 DOI: 10.1016/j.dhjo.2024.101719
Isabella Paixão , Leticia Fleig dal Forno , Leonardo Pestillo de Oliveira , Lucas França Garcia
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