{"title":"Author Information","authors":"","doi":"10.1016/S1936-6574(24)00181-X","DOIUrl":"10.1016/S1936-6574(24)00181-X","url":null,"abstract":"","PeriodicalId":49300,"journal":{"name":"Disability and Health Journal","volume":"18 1","pages":"Article 101732"},"PeriodicalIF":3.7,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143129144","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Covid-19 Pandemic's impact on socio-emotional problems experienced by victims of violence with disabilities","authors":"Yasemin Irvin-Erickson Ph.D. , Auzeen Shariati Ph.D.","doi":"10.1016/j.dhjo.2024.101710","DOIUrl":"10.1016/j.dhjo.2024.101710","url":null,"abstract":"<div><h3>Background</h3><div>Studies on the emotional well-being of individuals with disabilities during the Covid-19 pandemic focused on the beginning of the pandemic and omitted the experiences of victims with disabilities.</div></div><div><h3>Objective</h3><div>We compared socio-emotional problems experienced by victims of violence with and without disabilities before and during the Covid-19 pandemic.</div></div><div><h3>Methods</h3><div>We conducted regression analysis using data from the National Crime Victimization Survey to examine the differences in socio-emotional problems experienced by violent crime victims with and without disabilities before and during the Covid-19 pandemic. We conducted descriptive analyses to explore patterns of receiving victim services.</div></div><div><h3>Results</h3><div>Male victims without disabilities had lower odds of socio-emotional problems than female and male victims with disabilities before and throughout the pandemic. Female victims with disabilities had higher odds of socio-emotional problems than male victims with disabilities and female victims without disabilities before and during the first year of the pandemic. After the first year of the pandemic, female victims with and without disabilities and male victims with disabilities had no significant differences in their odds of experiencing socio-emotional problems. A higher percentage of victims received services during the pandemic in comparison to these patterns before the pandemic. After the first year of the pandemic, there was a notable increase in the percentage of female victims with and without disabilities and percentage of male victims with disabilities receiving victim services.</div></div><div><h3>Conclusions</h3><div>Our findings underline the disproportionate effect of the Covid-19 pandemic on socio-emotional well-being of victims with disabilities and especially female victims with disabilities.</div></div>","PeriodicalId":49300,"journal":{"name":"Disability and Health Journal","volume":"18 1","pages":"Article 101710"},"PeriodicalIF":3.7,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142330807","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Yuyang Deng MEd , Xuecheng Li MEd , Jiafu Huang MEd , Justin A. Haegele PhD , Brett Smith PhD , Toni Louise Williams PhD , Chunxiao Li PhD
{"title":"School-based factors influencing physical activity participation in children and adolescents with disabilities: A qualitative systematic review and meta-synthesis","authors":"Yuyang Deng MEd , Xuecheng Li MEd , Jiafu Huang MEd , Justin A. Haegele PhD , Brett Smith PhD , Toni Louise Williams PhD , Chunxiao Li PhD","doi":"10.1016/j.dhjo.2024.101707","DOIUrl":"10.1016/j.dhjo.2024.101707","url":null,"abstract":"<div><h3>Background</h3><div>Children and adolescents with disabilities (CAD) frequently encounter barriers to participation in physical activity (PA). Schools play a vital role in promoting PA, making it crucial to understand the school-based factors influencing CAD's PA participation.</div></div><div><h3>Objective</h3><div>This qualitative systematic review and meta-synthesis aims to identify and elucidate the school-based factors influencing PA engagement among this population.</div></div><div><h3>Methods</h3><div>A comprehensive search across six databases—Web of Science, PsycINFO, Scopus, SPORTDiscus, and Embase, CNKI—was conducted in August 2023, and subsequently updated in April 2024. English or Chinese peer-reviewed journal articles that contained substantial qualitative data regarding school-based factors affecting PA in CAD were included. The methodological quality of included studies was evaluated utilizing the Critical Appraisal Skills Program Qualitative Checklist. Qualitative data were analyzed through thematic synthesis.</div></div><div><h3>Results</h3><div>A total of 16 studies (12 qualitative studies and 4 mixed-methods studies) were included, all of which were of moderate to high quality. Thematic synthesis identified four major themes: (a) physical environment (provision of facilities, specialized and adapted equipment, space for activities); (b) social environment (peers, school leaders, teachers and other school staff); (c) opportunities for PA (physical education, classroom movement integration, extra-curricular activities); and (d) characteristics of PA (adaption of rules and task difficulty, competition components, diversified activities, fun).</div></div><div><h3>Conclusions</h3><div>This review reveals the complex interplay of different school-based factors affecting PA participation among CAD. The findings provide valuable insights for educators, policymakers, and health professionals to enhance PA participation in this population.</div></div>","PeriodicalId":49300,"journal":{"name":"Disability and Health Journal","volume":"18 1","pages":"Article 101707"},"PeriodicalIF":3.7,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142330809","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Margaret A. Turk MD (Co-Editor-in-Chief), Monika Mitra PhD (Co-Editor-in-Chief)
{"title":"History and future directions of DHJO","authors":"Margaret A. Turk MD (Co-Editor-in-Chief), Monika Mitra PhD (Co-Editor-in-Chief)","doi":"10.1016/j.dhjo.2024.101725","DOIUrl":"10.1016/j.dhjo.2024.101725","url":null,"abstract":"","PeriodicalId":49300,"journal":{"name":"Disability and Health Journal","volume":"18 1","pages":"Article 101725"},"PeriodicalIF":3.7,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142631343","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Disability's absence from admissions nondiscrimination and recruitment initiatives in Top-Tier US allopathic medical schools","authors":"Allison Kessler MD, MSc , Samantha L. Schroth BS , Leslie Rydberg MD","doi":"10.1016/j.dhjo.2024.101679","DOIUrl":"10.1016/j.dhjo.2024.101679","url":null,"abstract":"<div><h3>Background</h3><div>Diversity in medical school students is essential to ensure that future physicians can care for a range of patients from different backgrounds. However, disability is often overlooked and there are potential examples of discrimination in US medical schools.</div></div><div><h3>Objective</h3><div>To determine if students with disabilities are included in online recruitment, diversity equity and inclusion (DEI), or nondiscrimination materials for US allopathic medical schools.</div></div><div><h3>Methods</h3><div>In this descriptive study, the authors reviewed publicly available data from websites of the top ranked 51 US allopathic medical schools to assess inclusion of disability in recruitment efforts or antidiscrimination statements.</div></div><div><h3>Results</h3><div>The results showed that just under one third of these schools (31 %) mention disability within their DEI or published recruitment efforts. Most commonly (27.5 %), disability is mentioned in a general diversity statement.</div></div><div><h3>Conclusions</h3><div>These findings suggest that there is a need for greater inclusion of disability in US medical schools' recruitment efforts. This is essential to ensure that people with disabilities are not discriminated against in medical school applications and is one of many factors that will contribute to future physicians being prepared to care for patients with disabilities.</div></div>","PeriodicalId":49300,"journal":{"name":"Disability and Health Journal","volume":"18 1","pages":"Article 101679"},"PeriodicalIF":3.7,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141996763","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Julia Fuchs Jun.-Prof. Dr. , Sarah Ohnuseit Bachelor of Arts
{"title":"Incorporating Easy Language in the ICF: Benefits, opportunities, and challenges","authors":"Julia Fuchs Jun.-Prof. Dr. , Sarah Ohnuseit Bachelor of Arts","doi":"10.1016/j.dhjo.2024.101689","DOIUrl":"10.1016/j.dhjo.2024.101689","url":null,"abstract":"<div><div>The World Health Organization's International Classification of Functioning, Disability and Health (ICF), the international standard for the description of functioning and disability, completely ignores a specific form of accessible communication despite its potential to improve functioning and reduce disability: Easy Language, a form of standard language with substantially reduced linguistic complexity. Starting with a proposal for how and where Easy Language could be appropriately integrated into the ICF, the commentary then outlines the various benefits and opportunities for social policy that could be associated with doing so. It also notes several potential challenges involved in this process. If used correctly, the integration of Easy Language into the ICF could prove useful for both professional users of the ICF and Easy Language target groups.</div></div>","PeriodicalId":49300,"journal":{"name":"Disability and Health Journal","volume":"18 1","pages":"Article 101689"},"PeriodicalIF":3.7,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142047369","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
G Chiri, J N Howard, L Palmer, K Robinson, S Rafiuddin
{"title":"Understanding HCBS utilization: The role of disability onset age and length of disability.","authors":"G Chiri, J N Howard, L Palmer, K Robinson, S Rafiuddin","doi":"10.1016/j.dhjo.2024.101771","DOIUrl":"https://doi.org/10.1016/j.dhjo.2024.101771","url":null,"abstract":"<p><strong>Background: </strong>Younger adults aging with and older adults aging into disability often need support to remain in their homes and communities. However, researchers and policymakers lack sufficient understanding of their differing needs for home and community-based services (HCBS), largely due to limitations in existing data.</p><p><strong>Objectives: </strong>This study addresses this gap by exploring select HCBS utilization among adults with disability onset before age 60 and those with onset after age 60, focusing on how aging and disability intersect.</p><p><strong>Methods: </strong>We used data from multiple waves of the Health and Retirement Study (HRS), the HCBS HRS module and the Health Care Mail Survey. Using these data, we identified individuals by their disability onset (before and after age 60) and measured the duration of their disability. We then examined the use of select HCBS and its association with the onset and duration of disability.</p><p><strong>Results: </strong>Multivariate regression analysis found no significant differences in service utilization based on the timing of disability onset. Instead, a longer disability duration was associated with increased odds of utilizing HCBS, regardless of when the disability began.</p><p><strong>Conclusion: </strong>As the population continues to age, more individuals will live with disabilities, including both those who acquire them earlier in life and older adults who develop them in later years. This analysis emphasizes the critical role of disability duration in understanding service needs and resource allocation. By combining perspectives from aging and disability research, this study underscores the need for integrated policies and programs that address shared challenges. Such an approach can bridge existing gaps, leading to better outcomes for all individuals living with disabilities.</p>","PeriodicalId":49300,"journal":{"name":"Disability and Health Journal","volume":" ","pages":"101771"},"PeriodicalIF":3.7,"publicationDate":"2024-12-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142984753","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Hooyun Lee , Kyua Kim , Hyelim Kim , Eun Kyoung Choi
{"title":"Experiences of siblings of individuals with developmental disabilities: A meta-synthesis of qualitative studies","authors":"Hooyun Lee , Kyua Kim , Hyelim Kim , Eun Kyoung Choi","doi":"10.1016/j.dhjo.2024.101770","DOIUrl":"10.1016/j.dhjo.2024.101770","url":null,"abstract":"<div><h3>Background</h3><div>While the impact of developmental disabilities (DD) on the entire family is increasingly recognized, the experiences of typically developing (TD) siblings often remain overlooked. Recently, an understanding of siblings’ experiences has been developed through <span><span>qualitative studies</span><svg><path></path></svg></span>.</div></div><div><h3>Objective</h3><div>This review aims to synthesize existing qualitative evidence regarding the experiences of TD siblings of individuals with DD.</div></div><div><h3>Methods</h3><div>A systematic search across four databases (PubMed, <span><span>CINAHL</span><svg><path></path></svg></span>, <span><span>PsycINFO</span><svg><path></path></svg></span>, and Web of Science) identified studies reporting empirical qualitative data on the experiences of TD siblings of adolescents and young adults with DD, including English studies from 2014 to 2023. A quality appraisal was performed using the Critical Appraisal Skill Programme (CASP) checklist. The data were synthesized using thematic synthesis.</div></div><div><h3>Results</h3><div>Nine studies met the inclusion criteria. Six key themes and 13 subthemes were identified from the included articles. These themes included (i) encountered difficulties, (ii) intrapersonal response, (iii) interpersonal interaction, (iv) challenging family dynamics, (v) strategies and support, and (vi) accepting and adapting to my reality.</div></div><div><h3>Conclusions</h3><div>This review synthesizes qualitative evidence on the experiences of TD siblings, highlighting how their situation shapes their lives. The findings suggest that TD siblings of individuals with DD experience difficulty due to their sibling's disability. These experiences influence various aspects of their lives, including personal, school/work, and family dynamics, ultimately affecting TD siblings' adaptation processes. Our findings emphasize the need for targeted interventions to support the psychological well-being of TD siblings of individuals with DD.</div></div>","PeriodicalId":49300,"journal":{"name":"Disability and Health Journal","volume":"18 2","pages":"Article 101770"},"PeriodicalIF":3.7,"publicationDate":"2024-12-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142972937","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Prevalence of food and housing insecurity among direct support professionals in New York","authors":"Jennifer Cohen , Yana van der Meulen Rodgers","doi":"10.1016/j.dhjo.2024.101769","DOIUrl":"10.1016/j.dhjo.2024.101769","url":null,"abstract":"<div><h3>Background</h3><div>Low earnings are associated with household insecurity. Direct Support Professionals (DSPs) provide support for people with intellectual and developmental disabilities, typically for wages close to state minimums, and may experience insecurity.</div></div><div><h3>Objective</h3><div>The purpose of the study was to evaluate the prevalence of food and housing insecurity among DSPs.</div></div><div><h3>Methods</h3><div>We conducted a statewide, cross-sectional survey of DSPs in New York State (2022–2023). Measures included detailed questions about food and housing insecurity. We used chi-square analyses and logistic regressions to examine relationships between insecurity and demographic characteristics as proxies for social determinants of health. A total of 4503 DSPs responded to the survey. The analytic sample contained 2766 respondents with complete data for all relevant variables.</div></div><div><h3>Results</h3><div>Overall, 62.6 % experienced food and/or housing insecurity, with over half of those respondents experiencing both. Insecurity was highest among DSPs with a disability (76.2 %), DSPs of color (75.7 %), and those with lower income (72.4 %), but over 50 % of DSPs across demographic groups experienced insecurity.</div></div><div><h3>Conclusions</h3><div>The widespread insecurity this study demonstrates is an occupational hazard that reduces worker welfare. At the macro-level, household insecurity is a critical threat to the stability of the care and support delivery system. The human services sector is projected to grow rapidly in the future. If growth continues along low wage lines, it implies an equally rapid expansion of worker insecurity. Government action to raise pay and interventions that enhance food and housing security are needed to support workers in the care delivery system for people with intellectual and developmental disabilities.</div></div>","PeriodicalId":49300,"journal":{"name":"Disability and Health Journal","volume":"18 2","pages":"Article 101769"},"PeriodicalIF":3.7,"publicationDate":"2024-12-12","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142928569","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Gray Babbs , Abby Mulcahy , Jacqueline Ellison , Hiren Varma , David R. Pletta , Kim Yee , Landon D. Hughes , Theresa I. Shireman , Jaclyn M.W. Hughto
{"title":"Chronic conditions among transgender Medicare beneficiaries: Variation by race, ethnicity, and Medicaid dual-enrollment","authors":"Gray Babbs , Abby Mulcahy , Jacqueline Ellison , Hiren Varma , David R. Pletta , Kim Yee , Landon D. Hughes , Theresa I. Shireman , Jaclyn M.W. Hughto","doi":"10.1016/j.dhjo.2024.101764","DOIUrl":"10.1016/j.dhjo.2024.101764","url":null,"abstract":"<div><h3>Background</h3><div>Transgender and gender diverse (TGD) adults experience disability at twice the rate of cisgender (non-TGD) adults in the US. TGD people of color and low-income TGD people experience intersecting discrimination that may compound chronic conditions and disability. To our knowledge, no research has focused on chronic conditions among TGD Medicare beneficiaries with disabilities.</div></div><div><h3>Objective</h3><div>We compared the probability of chronic conditions among TGD adults with disability-based eligibility for Medicare across race, ethnicity, and dual Medicaid-Medicare enrollment.</div></div><div><h3>Methods</h3><div>We used cross-sectional Medicare enrollment and claims data between 2008 and 2017 for fee-for-service beneficiaries eligible based on disability. We applied a claims-based algorithm to identify TGD beneficiaries. We assessed differences in beneficiaries' age-adjusted predicted probability of chronic conditions across race, ethnicity, and dual eligibility.</div></div><div><h3>Results</h3><div>Dual-eligible TGD beneficiaries (N = 8041) had a higher predicted probability of nine out of ten health condition categories relative to Medicare-only TGD beneficiaries (N = 6237). For each race and ethnicity category, the most prevalent condition categories were mental health, cardiovascular conditions, and non-cardiovascular-related physical health conditions. Hispanic and non-Hispanic Black TGD beneficiaries had over two and three times the probability of infectious disease as non-Hispanic White TGD beneficiaries, respectively.</div></div><div><h3>Conclusions</h3><div>TGD adults with disabilities have high rates of chronic conditions with additional disparities by race, ethnicity, and dual eligibility status. Our findings offer potential directions for mixed-methods and intervention research aimed at identifying and ameliorating the drivers of these disparities among TGD Medicare beneficiaries with disabilities.</div></div>","PeriodicalId":49300,"journal":{"name":"Disability and Health Journal","volume":"18 2","pages":"Article 101764"},"PeriodicalIF":3.7,"publicationDate":"2024-12-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142866034","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}