Disability and Health Journal最新文献

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Intersectional inequities in maternal mortality: Examining the compounded risks for black birthing individuals with physical disabilities. 产妇死亡率的交叉不平等:检查身体残疾的黑人生育个体的复合风险。
IF 3.7 2区 医学
Disability and Health Journal Pub Date : 2024-12-03 DOI: 10.1016/j.dhjo.2024.101765
Ilhom Akobirshoev, Sarah Jerome, Jonathan M Snowden, Jaime Slaughter-Acey, Anne Valentine, Willi Horner-Johnson, Monika Mitra
{"title":"Intersectional inequities in maternal mortality: Examining the compounded risks for black birthing individuals with physical disabilities.","authors":"Ilhom Akobirshoev, Sarah Jerome, Jonathan M Snowden, Jaime Slaughter-Acey, Anne Valentine, Willi Horner-Johnson, Monika Mitra","doi":"10.1016/j.dhjo.2024.101765","DOIUrl":"https://doi.org/10.1016/j.dhjo.2024.101765","url":null,"abstract":"<p><strong>Background: </strong>People who are Black and have physical disabilities likely face a dual burden of risk for maternal mortality due to enduring systemic oppression rooted in racism and ableism.</p><p><strong>Objective: </strong>To investigate maternal mortality risks among Black birthing individuals with physical disabilities in the United States and assess the potential compounding effect when these marginalized identities intersect.</p><p><strong>Methods: </strong>We conducted a historical cohort study using the 2004-2021 Healthcare Cost and Utilization Project Nationwide Inpatient Sample. The study included 8,263,997 delivery hospitalizations. We used modified Poisson regression to estimate unadjusted and adjusted relative risks (RR) of maternal mortality by race and physical disability status. We calculated the Relative Excess Risk due to Interaction (RERI) and Attributable Proportion (AP) to assess additive interaction between Black race and physical disability status.</p><p><strong>Results: </strong>After adjusting for covariates, compared to their White birthing individuals, their Black peers experienced about 2.5 times (RR = 1.48,95%CI:2.08-2.96) the risk of maternal mortality. Compared to birthing individuals without physical disabilities, those with physical disabilities experienced nearly 11 times the (RR = 10.72,95%CI:8.15-14.10) risk of maternal mortality. Our adjusted additive interaction analysis revealed a significant super-additive effect (RERI = 11.3; AP = 0.47); suggesting that the combined effect of having both marginalized identities was greater than the sum of the individual effects of each identity.</p><p><strong>Conclusions: </strong>Our findings provide evidence for substantial inequities in maternal mortality by Black race and physical disability status, with evidence of a compounding effect when these marginalized identities intersect. These results underscore the urgent need for intersectional approaches in maternal health interventions and policies.</p>","PeriodicalId":49300,"journal":{"name":"Disability and Health Journal","volume":" ","pages":"101765"},"PeriodicalIF":3.7,"publicationDate":"2024-12-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142792696","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Social validity of Research Ethics for All: Social-behavioral research ethics education for community research partners with developmental disabilities. 面向全体的研究伦理的社会效度:发展性残疾社区研究伙伴的社会行为研究伦理教育。
IF 3.7 2区 医学
Disability and Health Journal Pub Date : 2024-11-28 DOI: 10.1016/j.dhjo.2024.101762
Ariel E Schwartz, Katherine McDonald
{"title":"Social validity of Research Ethics for All: Social-behavioral research ethics education for community research partners with developmental disabilities.","authors":"Ariel E Schwartz, Katherine McDonald","doi":"10.1016/j.dhjo.2024.101762","DOIUrl":"https://doi.org/10.1016/j.dhjo.2024.101762","url":null,"abstract":"<p><strong>Background: </strong>Training in research ethics supports community research partners with developmental disabilities to take on additional research responsibilities. We worked with an academic-community partnership to develop an accessible research ethics training tailored to the roles of community research partners with developmental disabilities that leads to certification: Research Ethics for All.</p><p><strong>Objective: </strong>We evaluated the social validity of the educational activities and certification process.</p><p><strong>Methods: </strong>We shared the training via a webinar and gathered feedback from attendees using polls (138 attendees; 92 respondents). In addition, four research teams composed of academic researchers and community research partners with developmental disabilities completed Research Ethics for All. Teams provided feedback on a series of surveys as they prepared to use the training, completed each of the 5 learning units, and after completing the training. We calculated descriptive statistics and used a pragmatic content analysis approach to analyze open-ended data.</p><p><strong>Results: </strong>Teams were satisfied with the training and felt it supported learning. They endorsed the videos and learning activities but thought videos should be shorter. 68.5% of webinar attendees felt that Research Ethics for All covers essential information in social-behavioral research ethics. Several IRBs have approved the use of Research Ethics for All.</p><p><strong>Conclusions: </strong>Research Ethics for All is an acceptable research ethics training that may support community research partners with developmental disabilities to take on important research responsibilities in social-behavioral research.</p>","PeriodicalId":49300,"journal":{"name":"Disability and Health Journal","volume":" ","pages":"101762"},"PeriodicalIF":3.7,"publicationDate":"2024-11-28","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142808365","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Rural disability, self-reliance, and the utilization of mental health services. 农村残疾、自力更生和利用精神卫生服务。
IF 3.7 2区 医学
Disability and Health Journal Pub Date : 2024-11-26 DOI: 10.1016/j.dhjo.2024.101761
Luke Santore, Catherine Ipsen, Gilbert Gimm
{"title":"Rural disability, self-reliance, and the utilization of mental health services.","authors":"Luke Santore, Catherine Ipsen, Gilbert Gimm","doi":"10.1016/j.dhjo.2024.101761","DOIUrl":"https://doi.org/10.1016/j.dhjo.2024.101761","url":null,"abstract":"<p><strong>Background: </strong>The intersection of rurality, disability, self-reliance values, and utilization rates of mental health services (MHS) is under-researched.</p><p><strong>Objective: </strong>To better understand the differences between unmet need and no perceived need for MHS between noncore, micropolitan, and metropolitan adults with disabilities.</p><p><strong>Methods: </strong>We conducted logistic regression analyses of the 2022 National Survey on Health and Disability (NSHD) to identify associations between demographic characteristics and odds of reporting unmet need for MHS or no perceived need for MHS.</p><p><strong>Results: </strong>Living in a noncore area, being male, lower educational attainment, older age, vision disability, and ambulatory disability were significantly associated with increased odds of reporting no perceived need for MHS. Being LGBTQIA+, poor transportation access, and cognitive disability were significantly associated with decreased odds of reporting no perceived need for MHS. Cognitive disability, cohabitation, and poor transportation access were significantly associated with increased odds of reporting unmet need for MHS. Conversely, being male, having some college and/or a two-year degree were significantly associated with decreased odds of reporting unmet need for MHS. There were not significant differences in unmet need for MHS across rural indicators.</p><p><strong>Conclusion: </strong>No perceived need of MHS is an underexplored factor among rural and urban adults with disabilities. Solutions include policies to expand MHS access, tailored public health outreach, and provider communication training.</p>","PeriodicalId":49300,"journal":{"name":"Disability and Health Journal","volume":" ","pages":"101761"},"PeriodicalIF":3.7,"publicationDate":"2024-11-26","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142755727","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Intellectual disabilities and risk of cardiovascular diseases: A population-based cohort study. 智障与心血管疾病风险:一项基于人群的队列研究。
IF 3.7 2区 医学
Disability and Health Journal Pub Date : 2024-11-17 DOI: 10.1016/j.dhjo.2024.101754
In Young Cho, Hye Yeon Koo, Yoo Jin Um, Yong-Moon Mark Park, Kyung Mee Kim, Chung Eun Lee, Kyungdo Han
{"title":"Intellectual disabilities and risk of cardiovascular diseases: A population-based cohort study.","authors":"In Young Cho, Hye Yeon Koo, Yoo Jin Um, Yong-Moon Mark Park, Kyung Mee Kim, Chung Eun Lee, Kyungdo Han","doi":"10.1016/j.dhjo.2024.101754","DOIUrl":"https://doi.org/10.1016/j.dhjo.2024.101754","url":null,"abstract":"<p><strong>Background: </strong>While intellectual disability is associated with higher mortality rates due to circulatory diseases, it is unclear whether intellectual disability is associated with higher risk of myocardial infarction (MI) and stroke than the general population.</p><p><strong>Objectives: </strong>We aimed to analyze the risk of cardiovascular diseases (CVD), specifically myocardial infarction (MI) and ischemic stroke, and death due to circulatory diseases in individuals with disability.</p><p><strong>Methods: </strong>This retrospective cohort study used data from the National Disability Registration System linked to the Korean National Health Insurance Service database. Individuals who underwent national health examinations in 2009 were followed until 2020. Cox-proportional hazard analyses were performed to estimate the risk of CVD, MI, ischemic stroke, and circulatory disease deaths with adjustment for covariates.</p><p><strong>Results: </strong>A total of 3642 individuals with intellectual disability (mean [SD] age 39.1 [12.6], 28.8 % female) and 3,889,794 individuals without intellectual disability (mean [SD] age 47.1 [13.9], 45.6 % female) were included. Compared to those without intellectual disability, those with intellectual disability had higher risk of CVD (adjusted hazard ratio [aHR] 1.71, 95 % confidence interval [CI] 1.45-2.02), ischemic stroke (aHR 2.21, 95 % CI 1.81-2.69), and death due to circulatory diseases (aHR 4.20, 95 % CI 3.24-5.45), and a non-significant risk for MI (aHR 1.24, 95 % CI 0.95-1.63) after full adjustment for covariates.</p><p><strong>Conclusions: </strong>Individuals with intellectual disability were at increased risk of CVD, in particular ischemic stroke, and death due to circulatory diseases. Healthcare professionals should be aware of increased CVD risk in individuals with intellectual disability.</p>","PeriodicalId":49300,"journal":{"name":"Disability and Health Journal","volume":" ","pages":"101754"},"PeriodicalIF":3.7,"publicationDate":"2024-11-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142677638","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Comparison of the prevalence of metabolic syndrome between individuals with spinal cord injury and the general population based on the cutoff values of abdominal obesity. 基于腹部肥胖截断值的脊髓损伤个体与普通人群代谢综合征患病率的比较
IF 3.7 2区 医学
Disability and Health Journal Pub Date : 2024-11-17 DOI: 10.1016/j.dhjo.2024.101753
Jisun Lim, Hyun-Jin Kim, Onyoo Kim
{"title":"Comparison of the prevalence of metabolic syndrome between individuals with spinal cord injury and the general population based on the cutoff values of abdominal obesity.","authors":"Jisun Lim, Hyun-Jin Kim, Onyoo Kim","doi":"10.1016/j.dhjo.2024.101753","DOIUrl":"https://doi.org/10.1016/j.dhjo.2024.101753","url":null,"abstract":"<p><strong>Background: </strong>Metabolic syndrome (MetS) is a cluster of cardiovascular disease (CVD) risk factors. Accurate diagnosis, in spinal cord injury (SCI) patients, is vital for effective CVD prevention.</p><p><strong>Objective: </strong>This study aimed to identify factors related to MetS prevalence by comparing MetS prevalence trends in SCI and the general population (GP) and to examine differences in MetS prevalence in patients with SCI according to the cutoff reference value for abdominal obesity.</p><p><strong>Methods: </strong>This retrospective cohort study analyzed data from the National Health Insurance Corporation from 2015 to 2019. MetS was defined using the National Cholesterol Education Program criteria with an adjusted waist circumference of 81.3 cm for patients with SCI. Data were collected on age, gender, smoking, alcohol consumption, BMI, waist circumference, lipid profiles, blood pressure, fasting glucose, and socioeconomic status. Each year, SCI patients (n = 3,140, n = 3,201, n = 3,503, n = 1,590, n = 1544) were matched with GP individuals (m = 31,400, m = 32,040, m = 35,030, m = 15,900, m = 15,440).</p><p><strong>Results: </strong>Over 5 years, MetS prevalence increased in both groups, consistently higher in the SCI group. Older age and lower income were risk factors in both groups (p < 0.05). Smoking and alcohol intake were significant only in the GP (p < 0.0001). Using the adjusted obesity criterion, MetS prevalence was 1.4 times higher in SCI patients than in the GP (p < 0.0001).</p><p><strong>Conclusions: </strong>Exclusively relying on GP criteria for diagnosing MetS in patients with SCI may lead to an underestimation of MetS prevalence and overlooked opportunities for CVD prevention. Therefore, the development of diagnostic and preventive strategies for MetS considering SCI characteristics is needed.</p>","PeriodicalId":49300,"journal":{"name":"Disability and Health Journal","volume":" ","pages":"101753"},"PeriodicalIF":3.7,"publicationDate":"2024-11-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142792692","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Examining the impact of the COVID-19 pandemic among staff and consumers at Florida centers for independent living. 研究 COVID-19 大流行病对佛罗里达独立生活中心员工和消费者的影响。
IF 3.7 2区 医学
Disability and Health Journal Pub Date : 2024-11-16 DOI: 10.1016/j.dhjo.2024.101751
Acquel Allen-Mitchell, Nichole E Stetten, Kashif Basaria, Lauren Cox, Nicole M Marlow
{"title":"Examining the impact of the COVID-19 pandemic among staff and consumers at Florida centers for independent living.","authors":"Acquel Allen-Mitchell, Nichole E Stetten, Kashif Basaria, Lauren Cox, Nicole M Marlow","doi":"10.1016/j.dhjo.2024.101751","DOIUrl":"https://doi.org/10.1016/j.dhjo.2024.101751","url":null,"abstract":"<p><strong>Background: </strong>People with disabilities (PWD) face health disparities due to barriers that limit their access to essential healthcare services. During the COVID-19 pandemic, health disparities among PWD increased as stay-at-home mandates and other safety measures interrupted access to healthcare and social services. Community-based and consumer-driven Centers for Independent Living (CILs) attempt to reduce disparities faced by PWD by providing information and referrals, peer counseling, and advocacy.</p><p><strong>Objective: </strong>Despite funding to utilize public health workers to respond to the COVID-19 pandemic and prepare for future crises, the literature currently lacks examinations of the impact of the COVID-19 pandemic on CIL consumers and staff.</p><p><strong>Methods: </strong>This qualitative study employed a directed content analysis to evaluate 6 consumer focus groups (N = 35) and 4 staff focus groups (N = 14).</p><p><strong>Results: </strong>Through data analysis, staff themes included Resource Gaps, COVID-19 Concerns, Impact on Independence, Impact on Health, Work Demand Changes, and Work/Life Balance. Among consumers, themes of CIL Service Experiences, CIL Benefits, COVID-19 Concerns of Using CILs, COVID-19 Barriers to Using CILs, Impact on Independence, Impact on Health, Resource Gaps, and Recommendations for CILs were present.</p><p><strong>Conclusions: </strong>This study demonstrates the diverse experiences among PWD during the COVID-19 pandemic. However, there are similarities in the impact of environmental factors on the severity of disability experienced by consumers and staff. This study highlights the benefits of independent community living resource centers and the need to better understand the experiences of PWD to prepare for future pandemics.</p>","PeriodicalId":49300,"journal":{"name":"Disability and Health Journal","volume":" ","pages":"101751"},"PeriodicalIF":3.7,"publicationDate":"2024-11-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142717361","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Needs beyond coverage: Health care inequities among children with disabilities of parents with disabilities. 覆盖范围之外的需求:残疾儿童或残疾父母之间的医疗保健不平等。
IF 3.7 2区 医学
Disability and Health Journal Pub Date : 2024-11-16 DOI: 10.1016/j.dhjo.2024.101755
Christy Pu, Shu-Fang Shih, Yiing-Jenq Chou
{"title":"Needs beyond coverage: Health care inequities among children with disabilities of parents with disabilities.","authors":"Christy Pu, Shu-Fang Shih, Yiing-Jenq Chou","doi":"10.1016/j.dhjo.2024.101755","DOIUrl":"https://doi.org/10.1016/j.dhjo.2024.101755","url":null,"abstract":"<p><strong>Background: </strong>Family aggregation of disability is not uncommon. Research on children with disabilities has often overlooked a specific group facing health disparities: children with disabilities of parents with disabilities.</p><p><strong>Objective: </strong>To determine whether children with disabilities, whose parents also have disabilities, experience limited access to health care.</p><p><strong>Methods: </strong>This is a dynamic cohort study. The data used in this study were the 2017-2021 Taiwan's National Disability Registry and the National Health Insurance claims data. All children were matched to their biological fathers and mothers using a unique anonymous identification number to identify the disability status of the children and their parents and the receipt of health care services by the children.</p><p><strong>Results: </strong>In 2021, a total of 2 834 870 pairs of children and parents were identified, of whom 53,419 were children with disabilities. Of these, 5188 had at least one parent with disabilities. Compared with children whose parents did not have disabilities, those whose parents both had disabilities had 1.71 fewer outpatient visits per year (P = .013). Compared with children whose parents had no disabilities, those whose parents had disabilities had 5.0 and 4.2 fewer general outpatient visits at birth (P < .001) and at the age of 2 years (P < .001), respectively. The magnitude of this effect decreased as the children's age increased.</p><p><strong>Conclusions: </strong>Children with disabilities whose parents also have disabilities may underutilize health care even in settings such as Taiwan, where universal health coverage is available. Standard health programs do not eliminate health care utilization disparities for such children.</p>","PeriodicalId":49300,"journal":{"name":"Disability and Health Journal","volume":" ","pages":"101755"},"PeriodicalIF":3.7,"publicationDate":"2024-11-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142856372","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Exhibiting lived experiences of disability in a hospital workplace: A qualitative evaluation. 在医院工作场所展示残疾人士的生活经历:定性评估。
IF 3.7 2区 医学
Disability and Health Journal Pub Date : 2024-11-15 DOI: 10.1016/j.dhjo.2024.101752
Nina Michelle Worthington, Charlotte Grainger
{"title":"Exhibiting lived experiences of disability in a hospital workplace: A qualitative evaluation.","authors":"Nina Michelle Worthington, Charlotte Grainger","doi":"10.1016/j.dhjo.2024.101752","DOIUrl":"https://doi.org/10.1016/j.dhjo.2024.101752","url":null,"abstract":"<p><strong>Background: </strong>Beyond the Stigma (BTS) was an exhibition of stories about staff with physical and hidden impairments at the Royal Orthopaedic Hospital NHS Foundation Trust, Birmingham, UK.</p><p><strong>Objective: </strong>Evaluative research aimed to examine BTS's long-term impact on participants who publicly shared lived experiences of disability in their hospital workplace. It also sought to discover how arts-based interventions can effectively identify and promote nuanced disability understandings and the wellbeing of disabled people working in healthcare.</p><p><strong>Methods: </strong>Interpretative Phenomenological Analysis (IPA) interviews were conducted with six hospital staff. Transcripts were analyzed in depth.</p><p><strong>Results: </strong>Three superordinate themes emerged from the data, Process of Hesitancy and Comfort, Perceptions of Impact and Contribution, and Journeying with Disability Understandings. These captured personal narratives of how it felt to disclose impairment and perceptions of the project's impact. Long-term benefits of taking part in BTS were identified as increased self-confidence, openness, self-acceptance, and empowerment. Shifts in participants' personal disability views pointed to improved quality of life inside and outside the workplace through new awareness of diverse and shared experiences, new ease with disability definitions, language, self-identity, and community participation.</p><p><strong>Conclusion: </strong>Study findings exposed levels of risk, resilience, and compromise associated with sharing personal experiences of disability, and how these can be managed effectively in the workplace. BTS offers a model for health promotion and community participation across disabled and non-disabled communities that can be repeated and adapted to support employment strategies, shift understandings, and promote notions of disability gain and disability pride across healthcare settings.</p>","PeriodicalId":49300,"journal":{"name":"Disability and Health Journal","volume":" ","pages":"101752"},"PeriodicalIF":3.7,"publicationDate":"2024-11-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142689334","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
How does the environmental inadequacy mediate the effect of functional limitations on participation restrictions in young adults with cerebral palsy? 环境不足如何介导功能限制对年轻脑瘫患者参与限制的影响?
IF 3.7 2区 医学
Disability and Health Journal Pub Date : 2024-11-14 DOI: 10.1016/j.dhjo.2024.101736
Célia Perret, Virginie Ehlinger, Jason Shourick, Joaquim J M Alvarelhão, Kate Himmelmann, Malika Delobel-Ayoub, Nicolas Vidart d'Egurbide Bagazgoïtia, Catherine Arnaud
{"title":"How does the environmental inadequacy mediate the effect of functional limitations on participation restrictions in young adults with cerebral palsy?","authors":"Célia Perret, Virginie Ehlinger, Jason Shourick, Joaquim J M Alvarelhão, Kate Himmelmann, Malika Delobel-Ayoub, Nicolas Vidart d'Egurbide Bagazgoïtia, Catherine Arnaud","doi":"10.1016/j.dhjo.2024.101736","DOIUrl":"https://doi.org/10.1016/j.dhjo.2024.101736","url":null,"abstract":"<p><strong>Background: </strong>Adults with cerebral palsy (CP) face various functional limitations and comorbidities, that prevent them from participating fully in social life. Disability models suggest that an environment not tailored to their needs could partly explain the link between functional limitations and participation restrictions. However, there is still insufficient knowledge about how the environment hinders participation.</p><p><strong>Objective: </strong>To investigate the mediating role of environmental inadequacy in the relationship between functional limitations and participation restrictions in young adults with CP.</p><p><strong>Methods: </strong>Cross-sectional study, which included 310 young adults with CP, aged 22-27 years at interview (2018-2020) and recruited in well-defined geographical areas in France, Germany, Italy, Portugal and Sweden. Environmental inadequacy was assessed using the EAEQ and participation restrictions using the QYPP-YA. A theorical model was tested with a partial least squares structural equation model.</p><p><strong>Results: </strong>Functional limitations had a significant direct effect on participation restrictions (β = 0.62, p < 0.001). A small part of the total effect was mediated by the \"inadequacy of services, systems and policies\" environmental latent variable (β = 0.10, p < 0.001). \"Inadequacy of support and relationships\" and \"inadequacy of attitudes\" environments demonstrated no mediating effect. Unexpectedly, a higher \"inadequacy of products and technology\" environmental score appeared to reduce participation restrictions (β = -0.10, p = 0.025).</p><p><strong>Conclusions: </strong>The environment considered as suggested by the ICF had only a minimal mediating effect in our study. However, public health policies must give priority to improvements at the macro-environmental level, particularly in terms of availability and access to the \"services, systems and policies\".</p>","PeriodicalId":49300,"journal":{"name":"Disability and Health Journal","volume":" ","pages":"101736"},"PeriodicalIF":3.7,"publicationDate":"2024-11-14","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142752173","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Disability and intimate partner violence experience among women in rural Samoa: A cross-sectional analysis. 萨摩亚农村妇女的残疾与亲密伴侣暴力经历:横断面分析。
IF 3.7 2区 医学
Disability and Health Journal Pub Date : 2024-11-13 DOI: 10.1016/j.dhjo.2024.101735
Hattie Lowe, Mata'afa Fa'atino Utumapu, Pepe Tevaga, Papali'i Ene, Jenevieve Mannell
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