Disability and Health Journal最新文献

{"title":"History and future directions of DHJO","authors":"Margaret A. Turk MD (Co-Editor-in-Chief), Monika Mitra PhD (Co-Editor-in-Chief)","doi":"10.1016/j.dhjo.2024.101725","DOIUrl":"10.1016/j.dhjo.2024.101725","url":null,"abstract":"","PeriodicalId":49300,"journal":{"name":"Disability and Health Journal","volume":"18 1","pages":"Article 101725"},"PeriodicalIF":3.7,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142631343","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Disability's absence from admissions nondiscrimination and recruitment initiatives in Top-Tier US allopathic medical schools","authors":"Allison Kessler MD, MSc ,&nbsp;Samantha L. Schroth BS ,&nbsp;Leslie Rydberg MD","doi":"10.1016/j.dhjo.2024.101679","DOIUrl":"10.1016/j.dhjo.2024.101679","url":null,"abstract":"<div><h3>Background</h3><div>Diversity in medical school students is essential to ensure that future physicians can care for a range of patients from different backgrounds. However, disability is often overlooked and there are potential examples of discrimination in US medical schools.</div></div><div><h3>Objective</h3><div>To determine if students with disabilities are included in online recruitment, diversity equity and inclusion (DEI), or nondiscrimination materials for US allopathic medical schools.</div></div><div><h3>Methods</h3><div>In this descriptive study, the authors reviewed publicly available data from websites of the top ranked 51 US allopathic medical schools to assess inclusion of disability in recruitment efforts or antidiscrimination statements.</div></div><div><h3>Results</h3><div>The results showed that just under one third of these schools (31 %) mention disability within their DEI or published recruitment efforts. Most commonly (27.5 %), disability is mentioned in a general diversity statement.</div></div><div><h3>Conclusions</h3><div>These findings suggest that there is a need for greater inclusion of disability in US medical schools' recruitment efforts. This is essential to ensure that people with disabilities are not discriminated against in medical school applications and is one of many factors that will contribute to future physicians being prepared to care for patients with disabilities.</div></div>","PeriodicalId":49300,"journal":{"name":"Disability and Health Journal","volume":"18 1","pages":"Article 101679"},"PeriodicalIF":3.7,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141996763","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Incorporating Easy Language in the ICF: Benefits, opportunities, and challenges","authors":"Julia Fuchs Jun.-Prof. Dr. ,&nbsp;Sarah Ohnuseit Bachelor of Arts","doi":"10.1016/j.dhjo.2024.101689","DOIUrl":"10.1016/j.dhjo.2024.101689","url":null,"abstract":"<div><div>The World Health Organization's International Classification of Functioning, Disability and Health (ICF), the international standard for the description of functioning and disability, completely ignores a specific form of accessible communication despite its potential to improve functioning and reduce disability: Easy Language, a form of standard language with substantially reduced linguistic complexity. Starting with a proposal for how and where Easy Language could be appropriately integrated into the ICF, the commentary then outlines the various benefits and opportunities for social policy that could be associated with doing so. It also notes several potential challenges involved in this process. If used correctly, the integration of Easy Language into the ICF could prove useful for both professional users of the ICF and Easy Language target groups.</div></div>","PeriodicalId":49300,"journal":{"name":"Disability and Health Journal","volume":"18 1","pages":"Article 101689"},"PeriodicalIF":3.7,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142047369","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Understanding HCBS utilization: The role of disability onset age and length of disability.","authors":"G Chiri, J N Howard, L Palmer, K Robinson, S Rafiuddin","doi":"10.1016/j.dhjo.2024.101771","DOIUrl":"https://doi.org/10.1016/j.dhjo.2024.101771","url":null,"abstract":"<p><strong>Background: </strong>Younger adults aging with and older adults aging into disability often need support to remain in their homes and communities. However, researchers and policymakers lack sufficient understanding of their differing needs for home and community-based services (HCBS), largely due to limitations in existing data.</p><p><strong>Objectives: </strong>This study addresses this gap by exploring select HCBS utilization among adults with disability onset before age 60 and those with onset after age 60, focusing on how aging and disability intersect.</p><p><strong>Methods: </strong>We used data from multiple waves of the Health and Retirement Study (HRS), the HCBS HRS module and the Health Care Mail Survey. Using these data, we identified individuals by their disability onset (before and after age 60) and measured the duration of their disability. We then examined the use of select HCBS and its association with the onset and duration of disability.</p><p><strong>Results: </strong>Multivariate regression analysis found no significant differences in service utilization based on the timing of disability onset. Instead, a longer disability duration was associated with increased odds of utilizing HCBS, regardless of when the disability began.</p><p><strong>Conclusion: </strong>As the population continues to age, more individuals will live with disabilities, including both those who acquire them earlier in life and older adults who develop them in later years. This analysis emphasizes the critical role of disability duration in understanding service needs and resource allocation. By combining perspectives from aging and disability research, this study underscores the need for integrated policies and programs that address shared challenges. Such an approach can bridge existing gaps, leading to better outcomes for all individuals living with disabilities.</p>","PeriodicalId":49300,"journal":{"name":"Disability and Health Journal","volume":" ","pages":"101771"},"PeriodicalIF":3.7,"publicationDate":"2024-12-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142984753","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Experiences of siblings of individuals with developmental disabilities: A meta-synthesis of qualitative studies.","authors":"Hooyun Lee, Kyua Kim, Hyelim Kim, Eun Kyoung Choi","doi":"10.1016/j.dhjo.2024.101770","DOIUrl":"https://doi.org/10.1016/j.dhjo.2024.101770","url":null,"abstract":"<p><strong>Background: </strong>While the impact of developmental disabilities (DD) on the entire family is increasingly recognized, the experiences of typically developing (TD) siblings often remain overlooked. Recently, an understanding of siblings' experiences has been developed through qualitative studies.</p><p><strong>Objective: </strong>This review aims to synthesize existing qualitative evidence regarding the experiences of TD siblings of individuals with DD.</p><p><strong>Methods: </strong>A systematic search across four databases (PubMed, CINAHL, PsycINFO, and Web of Science) identified studies reporting empirical qualitative data on the experiences of TD siblings of adolescents and young adults with DD, including English studies from 2014 to 2023. A quality appraisal was performed using the Critical Appraisal Skill Programme (CASP) checklist. The data were synthesized using thematic synthesis.</p><p><strong>Results: </strong>Nine studies met the inclusion criteria. Six key themes and 13 subthemes were identified from the included articles. These themes included (i) encountered difficulties, (ii) intrapersonal response, (iii) interpersonal interaction, (iv) challenging family dynamics, (v) strategies and support, and (vi) accepting and adapting to my reality.</p><p><strong>Conclusions: </strong>This review synthesizes qualitative evidence on the experiences of TD siblings, highlighting how their situation shapes their lives. The findings suggest that TD siblings of individuals with DD experience difficulty due to their sibling's disability. These experiences influence various aspects of their lives, including personal, school/work, and family dynamics, ultimately affecting TD siblings' adaptation processes. Our findings emphasize the need for targeted interventions to support the psychological well-being of TD siblings of individuals with DD.</p>","PeriodicalId":49300,"journal":{"name":"Disability and Health Journal","volume":" ","pages":"101770"},"PeriodicalIF":3.7,"publicationDate":"2024-12-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142972937","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Prevalence of food and housing insecurity among direct support professionals in New York.","authors":"Jennifer Cohen, Yana van der Meulen Rodgers","doi":"10.1016/j.dhjo.2024.101769","DOIUrl":"https://doi.org/10.1016/j.dhjo.2024.101769","url":null,"abstract":"<p><strong>Background: </strong>Low earnings are associated with household insecurity. Direct Support Professionals (DSPs) provide support for people with intellectual and developmental disabilities, typically for wages close to state minimums, and may experience insecurity.</p><p><strong>Objective: </strong>The purpose of the study was to evaluate the prevalence of food and housing insecurity among DSPs.</p><p><strong>Methods: </strong>We conducted a statewide, cross-sectional survey of DSPs in New York State (2022-2023). Measures included detailed questions about food and housing insecurity. We used chi-square analyses and logistic regressions to examine relationships between insecurity and demographic characteristics as proxies for social determinants of health. A total of 4503 DSPs responded to the survey. The analytic sample contained 2766 respondents with complete data for all relevant variables.</p><p><strong>Results: </strong>Overall, 62.6 % experienced food and/or housing insecurity, with over half of those respondents experiencing both. Insecurity was highest among DSPs with a disability (76.2 %), DSPs of color (75.7 %), and those with lower income (72.4 %), but over 50 % of DSPs across demographic groups experienced insecurity.</p><p><strong>Conclusions: </strong>The widespread insecurity this study demonstrates is an occupational hazard that reduces worker welfare. At the macro-level, household insecurity is a critical threat to the stability of the care and support delivery system. The human services sector is projected to grow rapidly in the future. If growth continues along low wage lines, it implies an equally rapid expansion of worker insecurity. Government action to raise pay and interventions that enhance food and housing security are needed to support workers in the care delivery system for people with intellectual and developmental disabilities.</p>","PeriodicalId":49300,"journal":{"name":"Disability and Health Journal","volume":" ","pages":"101769"},"PeriodicalIF":3.7,"publicationDate":"2024-12-12","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142928569","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Chronic conditions among transgender Medicare beneficiaries: Variation by race, ethnicity, and Medicaid dual-enrollment.","authors":"Gray Babbs, Abby Mulcahy, Jacqueline Ellison, Hiren Varma, David R Pletta, Kim Yee, Landon D Hughes, Theresa I Shireman, Jaclyn M W Hughto","doi":"10.1016/j.dhjo.2024.101764","DOIUrl":"10.1016/j.dhjo.2024.101764","url":null,"abstract":"<p><strong>Background: </strong>Transgender and gender diverse (TGD) adults experience disability at twice the rate of cisgender (non-TGD) adults in the US. TGD people of color and low-income TGD people experience intersecting discrimination that may compound chronic conditions and disability. To our knowledge, no research has focused on chronic conditions among TGD Medicare beneficiaries with disabilities.</p><p><strong>Objective: </strong>We compared the probability of chronic conditions among TGD adults with disability-based eligibility for Medicare across race, ethnicity, and dual Medicaid-Medicare enrollment.</p><p><strong>Methods: </strong>We used cross-sectional Medicare enrollment and claims data between 2008 and 2017 for fee-for-service beneficiaries eligible based on disability. We applied a claims-based algorithm to identify TGD beneficiaries. We assessed differences in beneficiaries' age-adjusted predicted probability of chronic conditions across race, ethnicity, and dual eligibility.</p><p><strong>Results: </strong>Dual-eligible TGD beneficiaries (N = 8041) had a higher predicted probability of nine out of ten health condition categories relative to Medicare-only TGD beneficiaries (N = 6237). For each race and ethnicity category, the most prevalent condition categories were mental health, cardiovascular conditions, and non-cardiovascular-related physical health conditions. Hispanic and non-Hispanic Black TGD beneficiaries had over two and three times the probability of infectious disease as non-Hispanic White TGD beneficiaries, respectively.</p><p><strong>Conclusions: </strong>TGD adults with disabilities have high rates of chronic conditions with additional disparities by race, ethnicity, and dual eligibility status. Our findings offer potential directions for mixed-methods and intervention research aimed at identifying and ameliorating the drivers of these disparities among TGD Medicare beneficiaries with disabilities.</p>","PeriodicalId":49300,"journal":{"name":"Disability and Health Journal","volume":" ","pages":"101764"},"PeriodicalIF":3.7,"publicationDate":"2024-12-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142866034","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"The adaptation of the GameSquad exergaming intervention for young adults with Down syndrome: A pilot feasibility study.","authors":"Kameron Suire, Brian C Helsel, April Bowling, Amanda E Staiano, Joseph R Sherman, Anna Rice, Lauren T Ptomey","doi":"10.1016/j.dhjo.2024.101766","DOIUrl":"https://doi.org/10.1016/j.dhjo.2024.101766","url":null,"abstract":"<p><strong>Background: </strong>Exergames may be a feasible alternative to in-person exercise that is adaptable for adults with Down Syndrome (DS).</p><p><strong>Objective: </strong>The purpose of this study was to conduct a 12-week pilot trial to assess the feasibility of exergames for adults with DS.</p><p><strong>Methods: </strong>Adults with DS were provided Ring Fit Adventure™ which uses a resistance ring and body weight to perform cardiovascular and strength exercises. Participants were instructed to play Ring Fit Adventure™ for 120 min/week and attend 30-min weekly virtual coaching sessions where a health educator encouraged gameplay via goal setting, helped troubleshoot technological issues, and collected self-reported minutes of gameplay. Intervention outcomes included attendance, adherence to weekly gameplay goals, retention, safety, and exercise intensity captured via heart rate and indirect calorimetry.</p><p><strong>Results: </strong>Twenty adults with DS (age 23.5 years, 89 % non-Hispanic white, 61 % female) enrolled and 19 participants completed the trial. Participants attended 93 % of coaching sessions and 90 % met the weekly gameplay goals. The average gameplay duration was 39 min/session and 123 min/week at 67.3 % of the participants' estimated maximum heart rate. Both the average heart rate during the intervention and metabolic equivalents (3.4 ± 1.0) during the indirect calorimetry assessment were suggestive of moderate intensity exercise.</p><p><strong>Conclusions: </strong>Attendance and adherence to the weekly gameplay goal were high among adults with DS who were able to reach and sustain moderate intensity during the exergame sessions. Exergaming represents a home-based option for accumulating minutes of moderate-to-vigorous physical activity that is feasible for and acceptable to adults with DS.</p>","PeriodicalId":49300,"journal":{"name":"Disability and Health Journal","volume":" ","pages":"101766"},"PeriodicalIF":3.7,"publicationDate":"2024-12-06","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142819996","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Feasibility and preliminary efficacy of a skill-based lifestyle intervention for enhancing cooking abilities and physical fitness in young adults with intellectual disabilities.","authors":"Jessica C Danon, Lyndsie Koon, Joseph R Sherman, Anna M Rice, Scott Quaife, Brian C Helsel, Amy Bodde, Lauren T Ptomey","doi":"10.1016/j.dhjo.2024.101767","DOIUrl":"10.1016/j.dhjo.2024.101767","url":null,"abstract":"<p><strong>Background: </strong>Individuals with intellectual disabilities (ID) often experience poorer diet quality and lower physical fitness levels as they transition from adolescence to adulthood.</p><p><strong>Objective: </strong>The purpose of this study was to assess the initial feasibility and efficacy of Chef-ID, a 12-week intervention designed to improve cooking skills and physical function in young adults with ID.</p><p><strong>Methods: </strong>Young adults with ID attended weekly group sessions which provided hands-on cooking skills, nutrition education, and exercise. Participants were also asked to attend monthly, virtual, goal setting sessions. Feasibility outcomes included attendance, retention, and safety. Preliminary efficacy outcomes included cooking skills, lower body muscle strength, grip strength, aerobic capacity, and body weight. Paired t-tests were used to assess the differences in cooking skills, strength measures, aerobic capacity, and weight after the 12-week intervention.</p><p><strong>Results: </strong>Study retention was 95 %, attendance exceeded 85 % for all sessions, and no serious adverse events were reported. The number of cooking skills participants could do independently (p = 0.005), the number of cooking skills requiring only a verbal prompt (p = 0.01) and lower body strength (p = 0.004) significantly improved across the 12-week intervention. The number of cooking skills participants had no exposure to (p = 0.01) and weight (p = 0.036) significantly decreased across the intervention. No significant changes were observed for upper body strength or aerobic capacity.</p><p><strong>Conclusions: </strong>The Chef-ID intervention was feasible with desirable initial effects on cooking skill independence, exposure to cooking skills, lower body strength, and weight. The Chef-ID intervention holds promise in enhancing cooking skills and physical function among young adults with ID.</p><p><strong>Trial registration number: </strong>Clinicaltrials.gov, NCT05385016.</p>","PeriodicalId":49300,"journal":{"name":"Disability and Health Journal","volume":" ","pages":"101767"},"PeriodicalIF":3.7,"publicationDate":"2024-12-04","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142796368","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Natural disaster vulnerability among people with disabilities: Insights from the 2024 Household Pulse Survey.","authors":"Danielle Xiaodan Morales","doi":"10.1016/j.dhjo.2024.101763","DOIUrl":"https://doi.org/10.1016/j.dhjo.2024.101763","url":null,"abstract":"<p><strong>Background: </strong>Natural disasters pose global challenges, with their frequency and severity increasing annually, impacting communities worldwide. People with disabilities are disproportionately vulnerable to experiencing adverse mental health outcomes in the aftermath of such events, yet this critical issue remains inadequately studied.</p><p><strong>Objective: </strong>This paper examines the impact of natural disasters on people with disabilities, focusing on their displacement patterns and mental well-being, to enhance our understanding of health vulnerabilities and the specific needs in emergency response.</p><p><strong>Methods: </strong>Data from the nationally representative 2024 Household Pulse Survey were analyzed to assess the duration of displacement and the severity of mental distress among individuals with and without disabilities following natural disasters. Generalized Estimating Equations were employed to predict post-disaster outcomes, adjusting for demographic characteristics, socioeconomic factors, and household structure.</p><p><strong>Results: </strong>Individuals with vision disabilities (CI: 0.024-0.137) and those with multiple disabilities (CI: 0.020-0.068) experienced significantly longer periods of displacement compared to non-disabled people. Additionally, people with cognitive disabilities reported significantly higher levels of mental distress than their non-disabled counterparts (CI: 0.149-0.236).</p><p><strong>Conclusion: </strong>Findings from this study demonstrate the need for specialized disaster response protocols that prioritize accessibility, mental health support, and targeted assistance for different disability types. Future emergency preparedness policies should incorporate disability-specific considerations, including enhanced evacuation planning, accessible mental health services, and strengthened community support systems. Disaster response frameworks must evolve to address these documented vulnerabilities, ensuring equitable support for all community members during and after natural disasters.</p>","PeriodicalId":49300,"journal":{"name":"Disability and Health Journal","volume":" ","pages":"101763"},"PeriodicalIF":3.7,"publicationDate":"2024-12-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142792699","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}