Disability and Health Journal最新文献

{"title":"Adverse childhood experiences among deaf and hard-of-hearing adults","authors":"Jamie Egbert MPH","doi":"10.1016/j.dhjo.2024.101711","DOIUrl":"10.1016/j.dhjo.2024.101711","url":null,"abstract":"<div><h3>Background</h3><div>The adverse childhood experiences (ACEs) screening tool is a research measure that has not been frequently employed within the scientific literature addressing deaf and hard-of-hearing (DHH) populations.</div></div><div><h3>Objective</h3><div>To evaluate whether those who are DHH are more likely to cross-sectionally report a high-risk number of ACEs than those who are not DHH.</div></div><div><h3>Methods</h3><div>Data consisting of a weighted total of n = 24,797,770 US adults’ responses to the 2021 BRFSS survey were utilized for this study.</div></div><div><h3>Results</h3><div>The DHH-ACE association was effect modified by age group. In the 25-to-34 (aOR = 2.98; 95 % aOR CI: 1.81, 4.92; <em>P</em> &lt; 0.0001), 35-to-44 (aOR = 3.17; 95 % aOR CI: 1.98, 5.08; <em>P</em> &lt; 0.0001), 45-to-54 (aOR = 1.74; 95 % aOR CI: 1.23, 2.45; <em>P</em> = 0.0016), and 55-to-64-year-old (aOR = 1.85; 95 % aOR CI: 1.41, 2.42; <em>P</em> &lt; 0.0001) age groups, those who are DHH were significantly more likely than their same-age hearing peers to report a high-risk number of ACEs. The findings for the 18–24 years and 65+ age groups were not statistically significant.</div></div><div><h3>Conclusion</h3><div>The results of this study highlight the need for trauma-informed care and improved early intervention and ACEs screenings for the DHH population.</div></div>","PeriodicalId":49300,"journal":{"name":"Disability and Health Journal","volume":"18 1","pages":"Article 101711"},"PeriodicalIF":3.7,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142394705","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Does the PedsQL reflect the real-time quality of life in autistic adolescents? A comparison with the experience sampling methodology","authors":"Hui-Jen Shyu MS ,&nbsp;Yu-Wei Ryan Chen PhD ,&nbsp;Daphne Yih Ng MS ,&nbsp;Anita Bundy ScD ,&nbsp;Mei-Hui Tseng ScD ,&nbsp;Reinie Cordier PhD","doi":"10.1016/j.dhjo.2024.101690","DOIUrl":"10.1016/j.dhjo.2024.101690","url":null,"abstract":"<div><h3>Background</h3><div>The PedsQL is widely used to retrospectively evaluate quality of life (QoL) in autistic adolescents. However, concerns have arisen regarding its ability to reflect real-time QoL, considering their challenges in recollecting past experiences.</div></div><div><h3>Objective</h3><div>We examined the <em>overall</em> and <em>social</em> QoLs of autistic adolescents compared to neurotypical peers using the PedsQL and the experience sampling method (ESM), an ecological momentary assessment of QoL in real-time. Additionally, we explored the relationship between these measures in each group.</div></div><div><h3>Methods</h3><div>A total of 175 participants, including 117 autistic and 58 neurotypical adolescents aged 10–16, completed the PedsQL and an ESM protocol with a mobile device to record their real-time experiences seven times a day for seven days. We performed multiple linear regression and multilevel analyses to compare QoLs between groups and the association between the two measures.</div></div><div><h3>Results</h3><div>Autistic adolescents scored significantly lower than neurotypical peers on PedsQL <em>overall</em> and <em>social</em> QoL but not on the real-time experiences collected with ESM. Among neurotypical adolescents, we found significant associations between the Social Functioning score of the PedsQL and various aspects of real-time social experiences recorded with ESM. For autistic adolescents, only the real-time experience of 'loneliness' during social engagement was associated with Social Functioning on the PedsQL.</div></div><div><h3>Conclusions</h3><div>The retrospective PedsQL does not entirely capture the real-time QoL via ESM. However, relying solely on ESM may overlook situations where participants opt out or could not complete surveys. Thus, using both retrospective and real-time assessments to examine QoL among autistic adolescents is recommended.</div></div>","PeriodicalId":49300,"journal":{"name":"Disability and Health Journal","volume":"18 1","pages":"Article 101690"},"PeriodicalIF":3.7,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142037523","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Research ethics for all: Development of a social-behavioral research ethics education program for community research partners with developmental disabilities","authors":"Ariel E. Schwartz PhD, OTR/L ,&nbsp;Katherine McDonald PhD","doi":"10.1016/j.dhjo.2024.101675","DOIUrl":"10.1016/j.dhjo.2024.101675","url":null,"abstract":"<div><h3>Background</h3><div>People with developmental disabilities make important contributions to research. However, inaccessible research ethics trainings present a barrier to them taking on some research roles.</div></div><div><h3>Objectives</h3><div>We developed a social-behavioral research ethics training that leads to certification tailored to the accessibility needs and roles of community research partners with developmental disabilities.</div></div><div><h3>Methods</h3><div>We collaborated with diverse partners (people with developmental disabilities, a disability service provider, health researchers, human research participant protections experts) to develop the research ethics training. To identify potential training content, we conducted a rapid scoping review of ethical, legal, and social issues in social-behavioral research with adults with developmental disabilities and reviewed national research ethics curricula. Through discussions and a modified Delphi process, we worked with partners to identify content to teach; partners also provided guidance on accessibility.</div></div><div><h3>Results</h3><div>The training and rapid scoping reviews and input from partners resulted in 93 potential educational content elements to include. After completing the modified Delphi process, partners recommended inclusion of 83 of these content elements in the educational training and provided input on depth and approach to teaching this content. Research Ethics for All is a freely available training that includes 5 units, delivered via didactic and active learning, and assessment activities to verify understanding. Research Ethics for All should be facilitated by an experienced researcher.</div></div><div><h3>Conclusions</h3><div>Research Ethics for All includes foundational social-behavioral research ethics content designed to support community research partners with developmental disabilities to take on new research responsibilities.</div></div>","PeriodicalId":49300,"journal":{"name":"Disability and Health Journal","volume":"18 1","pages":"Article 101675"},"PeriodicalIF":3.7,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141983685","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"The role of perceived social support in subjective wellbeing among working-age U.S. adults with and without limitations in activities of daily living","authors":"Nastassia Vaitsiakhovich MA ,&nbsp;Scott D. Landes PhD ,&nbsp;Shannon M. Monnat PhD","doi":"10.1016/j.dhjo.2024.101705","DOIUrl":"10.1016/j.dhjo.2024.101705","url":null,"abstract":"<div><h3>Background</h3><div>Perceived social support may enhance subjective wellbeing (SWB) for adults with activities of daily living (ADL) limitations. However, little is known about how social support may mediate (explain) and/or moderate SWB differences among U.S. working-age adults with versus without ADL limitations.</div></div><div><h3>Objective</h3><div>This study examines the role of perceived emotional and instrumental support in hedonic, eudaimonic, and evaluative wellbeing among adults with and without ADL limitations.</div></div><div><h3>Methods</h3><div>Data were from the 2021 National Wellbeing Survey – a national survey of U.S. working-age adults aged 18–64 (N = 3775). We used regression analyses to investigate differences in hedonic, eudaimonic, and evaluative wellbeing between individuals with versus without ADL limitations, as well as the roles of emotional and instrumental social support in explaining observed differences. We used interaction terms to examine whether social support moderated the observed associations.</div></div><div><h3>Results</h3><div>Adults with ADL limitations reported lower SWB than those without limitations across all three dimensions. Depending on the degree of limitations, the associations between ADL limitations and SWB decreased in magnitude or were no longer statistically significant after accounting for emotional and instrumental support. While both types of support were associated with better SWB among the three ADL groups, those with ADL limitations may benefit less from emotional support on both eudaimonic and evaluative wellbeing than those without limitations.</div></div><div><h3>Conclusions</h3><div>Lower social support may contribute to worse SWB among adults with ADL limitations. Although this subpopulation may benefit from high social support, improving their SWB may require systemic interventions beyond simply enhancing social support.</div></div>","PeriodicalId":49300,"journal":{"name":"Disability and Health Journal","volume":"18 1","pages":"Article 101705"},"PeriodicalIF":3.7,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142146658","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Relationships of self-reported opioid and benzodiazepine use with health-related quality of life among adults with spinal cord injury","authors":"James S. Krause PhD ,&nbsp;Nicole D. DiPiro PhD ,&nbsp;Clara E. Dismuke-Greer PhD ,&nbsp;Jon Laursen-Roesler PhD","doi":"10.1016/j.dhjo.2024.101668","DOIUrl":"10.1016/j.dhjo.2024.101668","url":null,"abstract":"<div><h3>Background</h3><div><span>There is limited understanding of the relationships between prescription opioid and benzodiazepine<span> use and indices of health-related quality of life (HRQOL) among those with </span></span>spinal cord injuries (SCI).</div></div><div><h3>Objective</h3><div>To identify the relationships between self-reported prescription opioid and benzodiazepine use and two indicators of HRQOL, number of days in poor physical health and poor mental health in the past 30 days among adults with SCI.</div></div><div><h3>Methods</h3><div><span>A cross-sectional cohort study of 918 adults with chronic (&gt;1 year), </span>traumatic SCI living in the Southeastern United States was conducted. Participants completed a self-report assessment (SRA).</div></div><div><h3>Results</h3><div>In the preliminary model, both opioid and benzodiazepine use were associated with a greater number of days in poor physical health and poor mental health in the past month. After controlling for health conditions (pain intensity, spasticity, anxiety and perceived sleep insufficiency), opioid use was associated with 2.04 (CI = 0.69; 3.39) additional poor physical health days in the past 30 days, and benzodiazepine use was associated with 2.18 (CI = 0.70; 3.64) additional days of poor mental health. Age was associated with greater number of poor physical health days and fewer poor mental health days. Lower income was associated with poor mental health days. Most of the health conditions were significantly related to the number of past month poor physical and mental health days.</div></div><div><h3>Conclusions</h3><div>Opioid and benzodiazepine use are associated with poor physical and mental HRQOL, even after controlling for health conditions. Treatment strategies should consider potential unanticipated negative consequences of pharmacological interventions.</div></div>","PeriodicalId":49300,"journal":{"name":"Disability and Health Journal","volume":"18 1","pages":"Article 101668"},"PeriodicalIF":3.7,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141581312","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Fetal alcohol syndrome and population level health care usage in British Columbia, Canada","authors":"Sandra Marquis PhD ,&nbsp;Yona Lunsky PhD ,&nbsp;Kimberlyn M. McGrail MPH, PhD ,&nbsp;Jennifer Baumbusch RN, PhD","doi":"10.1016/j.dhjo.2024.101684","DOIUrl":"10.1016/j.dhjo.2024.101684","url":null,"abstract":"<div><h3>Background</h3><div>The literature indicates that youth with Fetal Alcohol Syndrome (FAS) may experience high rates of both physical and mental health issues compared to youth without FAS. However, there is little population level health data available for youth with FAS, particularly for youth transitioning from pediatric to adult healthcare services.</div></div><div><h3>Objective</h3><div>The objective of this study was to compare health care usage of youth with Fetal Alcohol Syndrome to youth without any intellectual/developmental disabilities (IDD).</div></div><div><h3>Methods</h3><div>This study used a retrospective cohort design and population-level administrative health data to examine five aspects of health care usage by youth with FAS and compare them to youth with no intellectual/developmental disability. The variables were medically required dental care, visits to emergency departments and visits for mental health issues. In addition, the study stratified data by age groups and examined the difference between youth aged 15–19 and youth aged 20–24.</div></div><div><h3>Results</h3><div>Youth with FAS had higher adjusted odds of medically required dental care, visits to the emergency department and visits for anxiety/depression, psychotic illnesses and substance use disorders compared to youth with no IDD. The odds of a medically required dental visit, emergency department visit and visit for psychotic illness or substance use disorder were also higher for youth aged 20–24 years compared to youth aged 15–19 years.</div></div><div><h3>Conclusions</h3><div>These findings indicate that youth with FAS require urgent attention for each of the medically-related variables included in this study. The need for attention to their health care needs may increase as these youth transition from pediatric to adult health care services.</div></div>","PeriodicalId":49300,"journal":{"name":"Disability and Health Journal","volume":"18 1","pages":"Article 101684"},"PeriodicalIF":3.7,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141996764","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Relation between work hours, work control, work stress, and quality of life in persons with spinal cord injury","authors":"Renée van Dinter MSc ,&nbsp;Michiel F. Reneman PhD ,&nbsp;Marcel W.M. Post PhD","doi":"10.1016/j.dhjo.2024.101682","DOIUrl":"10.1016/j.dhjo.2024.101682","url":null,"abstract":"<div><h3>Background</h3><div>Work participation is related to a better quality of life (QoL) for people with spinal cord injury (SCI), however, the specific work characteristics that are related to QoL in people with SCI are largely unknown.</div></div><div><h3>Objectives</h3><div>To investigate which work characteristics are related to QoL in people with SCI.</div></div><div><h3>Methods</h3><div>Cross-sectional survey of people with SCI in the Netherlands. The survey consisted of demographic, SCI-related, and work-related items. Work control was measured with the short Job Content Questionnaire and work stress with the effort-reward imbalance (ERI). People of working age with at least 1 h of paid work per week were included. Hierarchical regression analysis was performed to examine the contribution of work characteristics to QoL while controlling for potential clinical and demographic confounders.</div></div><div><h3>Results</h3><div>The study included 169 persons with SCI (74.6 % male, 47.8 ± 9.3 years, time since injury 18.9 ± 11.1 years). The final hierarchical regression model explained 31 % of the variance in QoL. The number of SCI-related health complications contributed the strongest to QoL (ß = −.36), followed by work hours (β = .24), and work stress (β = .24). However, work control did not contribute significantly to QoL in our final model.</div></div><div><h3>Conclusion</h3><div>Work hours and work stress contributed to QoL in people with SCI, but the number of SCI-related health complications was the strongest contributor. Future research and vocational rehabilitation should be directed to both medical and work-related variables to enhance the QoL of working people with SCI.</div></div>","PeriodicalId":49300,"journal":{"name":"Disability and Health Journal","volume":"18 1","pages":"Article 101682"},"PeriodicalIF":3.7,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141996766","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Author Information","authors":"","doi":"10.1016/S1936-6574(24)00181-X","DOIUrl":"10.1016/S1936-6574(24)00181-X","url":null,"abstract":"","PeriodicalId":49300,"journal":{"name":"Disability and Health Journal","volume":"18 1","pages":"Article 101732"},"PeriodicalIF":3.7,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143129144","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Covid-19 Pandemic's impact on socio-emotional problems experienced by victims of violence with disabilities","authors":"Yasemin Irvin-Erickson Ph.D. ,&nbsp;Auzeen Shariati Ph.D.","doi":"10.1016/j.dhjo.2024.101710","DOIUrl":"10.1016/j.dhjo.2024.101710","url":null,"abstract":"<div><h3>Background</h3><div>Studies on the emotional well-being of individuals with disabilities during the Covid-19 pandemic focused on the beginning of the pandemic and omitted the experiences of victims with disabilities.</div></div><div><h3>Objective</h3><div>We compared socio-emotional problems experienced by victims of violence with and without disabilities before and during the Covid-19 pandemic.</div></div><div><h3>Methods</h3><div>We conducted regression analysis using data from the National Crime Victimization Survey to examine the differences in socio-emotional problems experienced by violent crime victims with and without disabilities before and during the Covid-19 pandemic. We conducted descriptive analyses to explore patterns of receiving victim services.</div></div><div><h3>Results</h3><div>Male victims without disabilities had lower odds of socio-emotional problems than female and male victims with disabilities before and throughout the pandemic. Female victims with disabilities had higher odds of socio-emotional problems than male victims with disabilities and female victims without disabilities before and during the first year of the pandemic. After the first year of the pandemic, female victims with and without disabilities and male victims with disabilities had no significant differences in their odds of experiencing socio-emotional problems. A higher percentage of victims received services during the pandemic in comparison to these patterns before the pandemic. After the first year of the pandemic, there was a notable increase in the percentage of female victims with and without disabilities and percentage of male victims with disabilities receiving victim services.</div></div><div><h3>Conclusions</h3><div>Our findings underline the disproportionate effect of the Covid-19 pandemic on socio-emotional well-being of victims with disabilities and especially female victims with disabilities.</div></div>","PeriodicalId":49300,"journal":{"name":"Disability and Health Journal","volume":"18 1","pages":"Article 101710"},"PeriodicalIF":3.7,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142330807","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"School-based factors influencing physical activity participation in children and adolescents with disabilities: A qualitative systematic review and meta-synthesis","authors":"Yuyang Deng MEd ,&nbsp;Xuecheng Li MEd ,&nbsp;Jiafu Huang MEd ,&nbsp;Justin A. Haegele PhD ,&nbsp;Brett Smith PhD ,&nbsp;Toni Louise Williams PhD ,&nbsp;Chunxiao Li PhD","doi":"10.1016/j.dhjo.2024.101707","DOIUrl":"10.1016/j.dhjo.2024.101707","url":null,"abstract":"<div><h3>Background</h3><div>Children and adolescents with disabilities (CAD) frequently encounter barriers to participation in physical activity (PA). Schools play a vital role in promoting PA, making it crucial to understand the school-based factors influencing CAD's PA participation.</div></div><div><h3>Objective</h3><div>This qualitative systematic review and meta-synthesis aims to identify and elucidate the school-based factors influencing PA engagement among this population.</div></div><div><h3>Methods</h3><div>A comprehensive search across six databases—Web of Science, PsycINFO, Scopus, SPORTDiscus, and Embase, CNKI—was conducted in August 2023, and subsequently updated in April 2024. English or Chinese peer-reviewed journal articles that contained substantial qualitative data regarding school-based factors affecting PA in CAD were included. The methodological quality of included studies was evaluated utilizing the Critical Appraisal Skills Program Qualitative Checklist. Qualitative data were analyzed through thematic synthesis.</div></div><div><h3>Results</h3><div>A total of 16 studies (12 qualitative studies and 4 mixed-methods studies) were included, all of which were of moderate to high quality. Thematic synthesis identified four major themes: (a) physical environment (provision of facilities, specialized and adapted equipment, space for activities); (b) social environment (peers, school leaders, teachers and other school staff); (c) opportunities for PA (physical education, classroom movement integration, extra-curricular activities); and (d) characteristics of PA (adaption of rules and task difficulty, competition components, diversified activities, fun).</div></div><div><h3>Conclusions</h3><div>This review reveals the complex interplay of different school-based factors affecting PA participation among CAD. The findings provide valuable insights for educators, policymakers, and health professionals to enhance PA participation in this population.</div></div>","PeriodicalId":49300,"journal":{"name":"Disability and Health Journal","volume":"18 1","pages":"Article 101707"},"PeriodicalIF":3.7,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142330809","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}