Journal of Communication Disorders最新文献

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Addressing disparities in speech-language pathology and laryngology services with telehealth 通过远程医疗解决语言病理学和喉科服务的差异
IF 1.7 3区 医学
Journal of Communication Disorders Pub Date : 2023-09-01 DOI: 10.1016/j.jcomdis.2023.106349
Anaïs Rameau , Steven R. Cox , Scott H. Sussman , Eseosa Odigie
{"title":"Addressing disparities in speech-language pathology and laryngology services with telehealth","authors":"Anaïs Rameau ,&nbsp;Steven R. Cox ,&nbsp;Scott H. Sussman ,&nbsp;Eseosa Odigie","doi":"10.1016/j.jcomdis.2023.106349","DOIUrl":"10.1016/j.jcomdis.2023.106349","url":null,"abstract":"<div><p>The COVID-19 pandemic disproportionately affected the health and well-being of marginalized communities, and it brought greater awareness to disparities in health care access and utilization. Addressing these disparities is difficult because of their multidimensional nature. Predisposing factors (demographic information, social structure, and beliefs), enabling factors (family and community) and illness levels (perceived and evaluated illness) are thought to jointly contribute to such disparities. Research has demonstrated that disparities in access and utilization of speech-language pathology and laryngology services are the result of racial and ethnic differences, geographic factors, sex, gender, educational background, income level and insurance status. For example, persons from diverse racial and ethnic backgrounds have been found to be less likely to attend or adhere to voice rehabilitation, and they are more likely to delay health care due to language barriers, longer wait times, a lack of transportation and difficulties contacting their physician. The purpose of this paper is to summarize existing research on telehealth, discuss how telehealth offers the potential to eliminate some disparities in the access and utilization of voice care, review its limitations, and encourage continued research in this area. A clinical perspective from a large volume laryngology clinic in a major city in northeastern United States highlights the use of telehealth in the provision of voice care by a laryngologist and speech-language pathologist during and after the COVID19 pandemic.</p></div>","PeriodicalId":49175,"journal":{"name":"Journal of Communication Disorders","volume":"105 ","pages":"Article 106349"},"PeriodicalIF":1.7,"publicationDate":"2023-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10239150/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10204304","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 1
A novel non-word speech preparation task to increase stuttering frequency in experimental settings for longitudinal research 一项新颖的非单词语音准备任务,用于在纵向研究的实验环境中增加口吃频率。
IF 1.7 3区 医学
Journal of Communication Disorders Pub Date : 2023-09-01 DOI: 10.1016/j.jcomdis.2023.106353
Farzan Irani , Jeffrey R. Mock , John C. Myers , Jennifer Johnson , Edward J. Golob
{"title":"A novel non-word speech preparation task to increase stuttering frequency in experimental settings for longitudinal research","authors":"Farzan Irani ,&nbsp;Jeffrey R. Mock ,&nbsp;John C. Myers ,&nbsp;Jennifer Johnson ,&nbsp;Edward J. Golob","doi":"10.1016/j.jcomdis.2023.106353","DOIUrl":"10.1016/j.jcomdis.2023.106353","url":null,"abstract":"<div><h3>Purpose</h3><p>The variable and intermittent nature of stuttering makes it difficult to consistently elicit a sufficient number of stuttered trials for longitudinal experimental research. This study tests the efficacy of using non-word pairs that phonetically mimic English words with no associated meaning, to reliably elicit balanced numbers of stuttering and fluent trials over multiple sessions. The study also evaluated the effect of non-word length on stuttering frequency, the consistency of stuttering frequency across sessions, and potential carry-over effects of increased stuttering frequency in the experimental task to conversational and reading speech after the task.</p></div><div><h3>Methods</h3><p>Twelve adults who stutter completed multiple sessions (mean of 4.8 sessions) where they were video-recorded during pre-task reading and conversation, followed by an experimental task where they read 400 non-word pairs randomized for each session, and then a post-task reading and conversation sample.</p></div><div><h3>Results</h3><p>On average, across sessions and participants, non-word pairs consistently yielded a balanced distribution of fluent (60.7%) and stuttered (39.3%) trials over five sessions. Non-word length had a positive effect on stuttering frequency. No carryover effects from experimental to post-task conversation and reading were found.</p></div><div><h3>Conclusions</h3><p>Non-word pairs effectively and consistently elicited balanced proportions of stuttered and fluent trials. This approach can be used to gather longitudinal data to better understand the neurophysiological and behavioral correlates of stuttering.</p></div>","PeriodicalId":49175,"journal":{"name":"Journal of Communication Disorders","volume":"105 ","pages":"Article 106353"},"PeriodicalIF":1.7,"publicationDate":"2023-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10207626","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Telepractice in speech-language pathology: Assessing remote speech discrimination 语言病理学中的远程练习:评估远程语言辨别
IF 1.7 3区 医学
Journal of Communication Disorders Pub Date : 2023-09-01 DOI: 10.1016/j.jcomdis.2023.106350
Erika Squires, Margaret Greenwald
{"title":"Telepractice in speech-language pathology: Assessing remote speech discrimination","authors":"Erika Squires,&nbsp;Margaret Greenwald","doi":"10.1016/j.jcomdis.2023.106350","DOIUrl":"10.1016/j.jcomdis.2023.106350","url":null,"abstract":"<div><h3>Purpose</h3><p>To evaluate adult remote performance in speech discrimination on the Temple Assessment of Language and Short-term Memory in Aphasia (TALSA), and to compare to remote performance in NU-6 word repetition and participant ratings of self-perceived hearing ability obtained via remote session.</p></div><div><h3>Method</h3><p>Sixty older adults completed TALSA speech discrimination of concrete, low frequency words and of non-words via telephone. Remote repetition of words controlled for sound frequency was assessed using the Northwestern University (NU-6) word lists administered in live voice and recorded voice conditions. Forty-six of the participants completed questionnaires about their hearing via Zoom videoconference.</p></div><div><h3>Results</h3><p>Mean performance in TALSA speech discrimination for words was similar to performance in NU-6 word repetition. Word repetition of NU-6 lists did not differ significantly for live voice versus recorded voice conditions. TALSA non-word speech discrimination was significantly worse than TALSA speech discrimination for words and was associated with age and self-reported hearing ability.</p></div><div><h3>Conclusions</h3><p>TALSA speech discrimination can be administered remotely to evaluate potential perceptual influences on auditory comprehension. In remote assessment, participants demonstrated the expected pattern of more accurate speech discrimination for word stimuli than for non-words. The non-word TALSA condition may be particularly useful for detecting speech perception impairment, both in face-to-face and telepractice sessions. Similar performance of participants in both live voice and recorded conditions of the NU-6 word lists suggests that recordings used in SLP receptive language or memory assessment, including the TALSA, need not be abandoned in favor of live voice to support audition during telepractice.</p></div>","PeriodicalId":49175,"journal":{"name":"Journal of Communication Disorders","volume":"105 ","pages":"Article 106350"},"PeriodicalIF":1.7,"publicationDate":"2023-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10204826","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Speech and phonological impairment across Alzheimer's disease severity 阿尔茨海默病严重程度的言语和语音障碍
IF 1.7 3区 医学
Journal of Communication Disorders Pub Date : 2023-09-01 DOI: 10.1016/j.jcomdis.2023.106364
Maysa Luchesi Cera , Karin Zazo Ortiz , Paulo Henrique Ferreira Bertolucci , Tamy Tsujimoto , Thaís Minett
{"title":"Speech and phonological impairment across Alzheimer's disease severity","authors":"Maysa Luchesi Cera ,&nbsp;Karin Zazo Ortiz ,&nbsp;Paulo Henrique Ferreira Bertolucci ,&nbsp;Tamy Tsujimoto ,&nbsp;Thaís Minett","doi":"10.1016/j.jcomdis.2023.106364","DOIUrl":"10.1016/j.jcomdis.2023.106364","url":null,"abstract":"<div><h3>Introduction</h3><p>Phonetic-phonological impairments have been described in dementia due to Alzheimer's disease (AD). However, whether the likely phonological-linguistic changes progress with the evolution of the disease or whether phonetic-motor manifestations occur in all three stages of AD (mild, moderate, and severe) has not yet been clarified. Thus, the aim of this study was to verify whether phonological-linguistic and phonetic-motor speech manifestations occur in the mild, moderate, and severe stages of AD.</p></div><div><h3>Methods</h3><p>Thirty participants in each stage of probable AD (mild, moderate, and severe) and 30 healthy older adults underwent cognitive, instrumental activities of daily living and phonetic-phonological assessments. Phonetic-phonological manifestations were classified into three types: likely phonetic-motor, likely phonological-linguistic, and manifestations that may occur in disorders of both phonetic and phonological origin.</p></div><div><h3>Results</h3><p>The manifestations analyzed in this study occurred rarely. The manifestations that may occur in disorders of both phonetic and phonological origin were the most common in all stages of the disease. The likely phonetic-motor manifestations emerged during the mild stage of the disease (distortions, prolonged intersegment duration, and vowel prolongations), while the likely phonological-linguistic manifestations were present mainly in the moderate (substitutions and attempts at the word level) and severe stages (substitutions, attempts at the word level, self-corrections, and anticipations). The occurrence of phonetic-phonological manifestations increased with disease progression.</p></div><div><h3>Conclusions</h3><p>The type of phonological and phonetic manifestations in the individuals with AD differed according to the dementia stage and were statistically more frequent as dementia worsened.</p></div>","PeriodicalId":49175,"journal":{"name":"Journal of Communication Disorders","volume":"105 ","pages":"Article 106364"},"PeriodicalIF":1.7,"publicationDate":"2023-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10208694","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Satisfaction with life in a sample of prelingually deaf cochlear implant users with a good command of spoken Polish as the primary language 对以波兰语口语为主要语言的聋人人工耳蜗使用者的生活满意度调查
IF 1.7 3区 医学
Journal of Communication Disorders Pub Date : 2023-09-01 DOI: 10.1016/j.jcomdis.2023.106370
Joanna Kobosko , W.Wiktor Jedrzejczak , Joanna Rostkowska , D.Beata Porembska , Małgorzata Fludra , Henryk Skarżyński
{"title":"Satisfaction with life in a sample of prelingually deaf cochlear implant users with a good command of spoken Polish as the primary language","authors":"Joanna Kobosko ,&nbsp;W.Wiktor Jedrzejczak ,&nbsp;Joanna Rostkowska ,&nbsp;D.Beata Porembska ,&nbsp;Małgorzata Fludra ,&nbsp;Henryk Skarżyński","doi":"10.1016/j.jcomdis.2023.106370","DOIUrl":"10.1016/j.jcomdis.2023.106370","url":null,"abstract":"<div><h3>Introduction</h3><p>This study investigated the level of satisfaction with life (SWL) in a group of cochlear implant (CI) users who had been prelingually deaf but were orally educated. They had received one or two CIs (as a child, adolescent, or adult) and were highly competent Polish speakers. This study looked at three factors that may affect SWL – psychosocial, deafness/hearing and communication related, and sociodemographic.</p></div><div><h3>Methods</h3><p>The participants were prelingually deaf CI users who had learned highly competent spoken Polish as their primary language. They had been educated in mainstream or integrated schools (not schools for the deaf), and had no other disability or severe illness. Measurements were done with 5 questionnaires: the <em>Satisfaction With Life Scale</em> (SWLS), the <em>I–Others Questionnaire</em>, the <em>Patient Health Questionnaire</em> (PHQ-9), the <em>Deaf Identity Development Scale</em> (DIDS), and the <em>Nijmegen Cochlear Implant Questionnaire</em> (NCIQ).</p></div><div><h3>Results</h3><p>The SWL level of the group was similar to that of the standard Polish population. SWL was positively related to positive self-perception, acceptance of oneself as a deaf person, and to perceiving the benefits of having a CI (as measured by three NCIQ domains: self-esteem, activity limitations, and social interactions). On the other hand, negative self-perception, marginal deaf identity, and depressive symptoms were negatively related to SWL. There was no relationship between SWL and knowledge of sign language. Lower depressive symptoms and greater hearing loss were both significant predictors of SWL, although those who used two CIs generally had a lower SWL.</p></div><div><h3>Conclusions</h3><p>Prelingually deaf CI users with low SWL require psychological support in many spheres, including working through problems of deaf identity, self-acceptance, and depression. Additional research should involve diverse DHH CI users, including those with limited spoken Polish competency or sign language skills, as well as members of the Polish Deaf community.</p></div>","PeriodicalId":49175,"journal":{"name":"Journal of Communication Disorders","volume":"105 ","pages":"Article 106370"},"PeriodicalIF":1.7,"publicationDate":"2023-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10265737","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Language abilities, not cognitive control, predict language mixing behavior in bilingual speakers with aphasia 语言能力,而不是认知控制,预测双语失语症患者的语言混合行为
IF 1.7 3区 医学
Journal of Communication Disorders Pub Date : 2023-09-01 DOI: 10.1016/j.jcomdis.2023.106367
Alina Bihovsky , Michal Ben-Shachar , Natalia Meir
{"title":"Language abilities, not cognitive control, predict language mixing behavior in bilingual speakers with aphasia","authors":"Alina Bihovsky ,&nbsp;Michal Ben-Shachar ,&nbsp;Natalia Meir","doi":"10.1016/j.jcomdis.2023.106367","DOIUrl":"10.1016/j.jcomdis.2023.106367","url":null,"abstract":"<div><h3>Purpose</h3><p>Language Mixing (LM) occurs among neurotypical bilinguals as well as among bilingual persons with aphasia (BiPWAs). The current study aimed to investigate whether LM in BiPWAs stems from a linguistic impairment, an impairment in cognitive control, or both.</p></div><div><h3>Method</h3><p>Twenty Russian-Hebrew-speaking BiPWAs were split into two groups based on aphasia severity (Severe/Moderate vs. Mild). Frequencies and patterns of LM in narrative production by BiPWAs in L1-Russian and in L2-Hebrew were analyzed. To investigate the underlying mechanisms of LM, all participants completed linguistic background questionnaires, the Bilingual Aphasia Test (BAT) in both languages, and a battery of 10 cognitive tests.</p></div><div><h3>Results</h3><p>The results indicated an effect of aphasia severity and an effect of language. Higher LM frequency was observed in BiPWAs with severe/moderate aphasia symptoms as compared to BiPWAs with mild symptoms. In both groups, higher LM frequency was observed in L2-Hebrew narratives, the weaker post-stroke language for most participants in the sample. The results also showed qualitative LM differences in L1-Russsian and L2-Hebrew contexts. In L1-Russian narratives, BiPWAs mainly switched to L2-Hebrew nouns, while in L2-Hebrew narratives, they mainly inserted L1-Russian discourse markers and function words.</p></div><div><h3>Conclusions</h3><p>Linguistic factors such as pre- and post-stroke self-rated language proficiency and level of language impairment due to aphasia were found to predict LM frequency in L1-Russian and in L2-Hebrew. Cognitive abilities did not predict LM frequency. Based on our findings, we suggest that LM behavior in BiPWAs might be primarily related to language skills in L1 and L2, rather than to cognitive control impairments.</p></div>","PeriodicalId":49175,"journal":{"name":"Journal of Communication Disorders","volume":"105 ","pages":"Article 106367"},"PeriodicalIF":1.7,"publicationDate":"2023-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10211802","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Perspectives of U.S. speech-language pathologists on supporting the psychosocial health of individuals with aphasia 美国语言病理学家在支持失语症患者的社会心理健康方面的观点
IF 1.7 3区 医学
Journal of Communication Disorders Pub Date : 2023-09-01 DOI: 10.1016/j.jcomdis.2023.106365
Haley Hayashi, Michelle Gravier, Kristen Gustavson, Ellen Bernstein-Ellis
{"title":"Perspectives of U.S. speech-language pathologists on supporting the psychosocial health of individuals with aphasia","authors":"Haley Hayashi,&nbsp;Michelle Gravier,&nbsp;Kristen Gustavson,&nbsp;Ellen Bernstein-Ellis","doi":"10.1016/j.jcomdis.2023.106365","DOIUrl":"10.1016/j.jcomdis.2023.106365","url":null,"abstract":"<div><h3>Introduction</h3><p>Individuals living with aphasia (IWA) are more likely than stroke survivors without aphasia to experience depression, anxiety, stress, and social isolation due to communication difficulties, social and life barriers, and neurobiological changes (Hilari, 2011). Researchers in the U.K., Australia, and elsewhere have surveyed speech-language pathologists (SLPs) to ascertain their training and confidence in addressing the psychosocial well-being of IWA (Northcott et al., 2017; Sekhon et al., 2015). To date, no similar survey has been performed in the U.S. The aim of this study was to survey the perspectives of U.S. SLPs on addressing the psychosocial well-being of IWA.</p></div><div><h3>Methods</h3><p>The survey questions were drawn from Northcott et al. (2017), with adjustments for a U.S. audience and additional questions. We conducted a Qualtrics survey which remained open from November 2021 through May 2022 and collected 101 responses. Responses to the closed questions were analyzed using descriptive statistics and open-ended responses were analyzed with qualitative content analysis.</p></div><div><h3>Results</h3><p>Some of the most significant findings of this survey include the low levels of confidence in addressing psychological health, lack of training among SLPs, and rarity of successful collaboration with mental health professionals. In comparison to surveys conducted in other countries, many overarching themes were similar, but there was some variation in specific responses and patterns. Categories emerging from the open-ended responses included the need for more trained mental health professionals, improved collaboration, and emphasis on the importance of the topic.</p></div><div><h3>Conclusions</h3><p>This research highlights the necessity of increased training, as well as improved interprofessional collaboration between SLPs and mental health professionals. Limitations of the study include the potential bias of respondents, as well as the number and scope of the questions and responses. Future studies can employ interviews, trial models for collaboration, and partner with IWA to explore their experiences with psychosocial health support and services.</p></div>","PeriodicalId":49175,"journal":{"name":"Journal of Communication Disorders","volume":"105 ","pages":"Article 106365"},"PeriodicalIF":1.7,"publicationDate":"2023-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10575167","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 2
Intersectional sociodemographic and neurological relationships in the naming ability of persons with post-stroke aphasia 脑卒中后失语症患者命名能力的交叉社会人口学和神经学关系
IF 1.7 3区 医学
Journal of Communication Disorders Pub Date : 2023-09-01 DOI: 10.1016/j.jcomdis.2023.106352
Molly Jacobs , Elizabeth Evans , Charles Ellis
{"title":"Intersectional sociodemographic and neurological relationships in the naming ability of persons with post-stroke aphasia","authors":"Molly Jacobs ,&nbsp;Elizabeth Evans ,&nbsp;Charles Ellis","doi":"10.1016/j.jcomdis.2023.106352","DOIUrl":"10.1016/j.jcomdis.2023.106352","url":null,"abstract":"<div><h3>Introduction</h3><p>Significant attention has been given to the role of brain function and disruption in determining performance on naming tasks among individuals with aphasia. However, scholarly pursuit of a neurological explanation has overlooked the fundamental cornerstone of individual health—the underlying social, economic, and environmental factors that shape how they live, work, and age, also known as the social determinants of health (SDOH). This study examines the correlation between naming performance and these underlying factors.</p></div><div><h3>Methods</h3><p>Individual level data from the 2010 Moss Aphasia Psycholinguistic Project Database (MAPPD) was matched with the 2009–2011 Medical Expenditure Panel Survey (MEPS) using a propensity score algorithm based on functional, health, and demographic characteristics. Multilevel, generalized, nonlinear regression models were applied to the resulting data set to assess the correlation between the Boston Naming Test (BNT) percentile score and age, income, sex, race, household size, marital status, aphasia type, and region of residence. Poisson regression models with bootstrapped standard errors were used to estimate these relationships</p></div><div><h3>Results</h3><p>Discrete dependent variable estimation with non-normal prior specification included individual level (age, marital status, years of education), socioeconomic (family income), health (aphasia type), household (family size), and environmental (region of residence) characteristics. Regression results indicated that, relative to individuals with Wernicke's, individuals with Anomic (0.74, SE = 0.0008) and Conduction (0.42, SE = 0.0009) aphasia performed better on the BNT. While age at the time of testing was not significantly correlated, higher income level (0.15, SE = 0.0003) and larger family size (0.002, SE = 0.002) was associated with higher BNT score percentiles. Finally, Black persons with aphasia (PWA) (-0.0124, SE = 0.0007) had lower average score percentiles when other factors were held constant.</p></div><div><h3>Conclusions</h3><p>The findings reported here suggest higher income and larger family size are associated with better outcomes. As expected, aphasia type was significantly associated with naming outcomes. However, poorer performance by Black PWA and individuals with low income suggests that SDOH can play a critical role (positive and negative) in naming impairment in some populations with aphasia.</p></div>","PeriodicalId":49175,"journal":{"name":"Journal of Communication Disorders","volume":"105 ","pages":"Article 106352"},"PeriodicalIF":1.7,"publicationDate":"2023-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10207625","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 2
Using bibliotherapy to rebuild identity for people with aphasia: A book club experience 用阅读疗法重建失语症患者的身份认同:一次读书俱乐部的经历
IF 1.7 3区 医学
Journal of Communication Disorders Pub Date : 2023-09-01 DOI: 10.1016/j.jcomdis.2023.106363
Elizabeth Hoover , Ellen Bernstein-Ellis , Debra Meyerson
{"title":"Using bibliotherapy to rebuild identity for people with aphasia: A book club experience","authors":"Elizabeth Hoover ,&nbsp;Ellen Bernstein-Ellis ,&nbsp;Debra Meyerson","doi":"10.1016/j.jcomdis.2023.106363","DOIUrl":"10.1016/j.jcomdis.2023.106363","url":null,"abstract":"<div><h3>Background</h3><p>Aphasia book clubs were developed to support connecting with literature and reading for pleasure within an aphasia-friendly environment. Bibliotherapy is an evidence-based therapeutic approach, in which a book is selected to address the challenges facing the reader. Its aim is to facilitate a deeper understanding of a lived experience in order to promote healing, strategy development, and adjustment. Aphasia book clubs provide an opportunity to discuss books about the challenges associated with aphasia. A recent book, <em>Identity theft: Rediscovering ourselves after stroke</em> recounts the stroke recovery story of Dr. Debra Meyerson and 22 other stroke survivors. <em>Identity Theft</em> focuses on the need to reconstruct positive identities despite remaining disabilities to facilitate rebuilding rewarding lives. The purpose of this study is to understand the impact of reading <em>Identity Theft</em> in an aphasia book club for people with aphasia (PwA).</p></div><div><h3>Method</h3><p>27 PwA read the book <em>Identity Theft</em> in one of four online aphasia book clubs offered by two universities. Weekly discussions were facilitated by graduate SLP students under the supervision of experienced clinicians. At the end of the 10 week program, semi-structured qualitative interviews were conducted with participants to understand the lived experience. Interviews were analyzed using reflexive thematic analysis.</p></div><div><h3>Results</h3><p>Analysis of the interview data generated four main themes and 13 subthemes. The main themes included: Mechanism for Reflection, Power of Community, Engaged Learning, and Therapeutic Environment. Interview extracts illustrate the way these themes support increasing self-efficacy and rebuilding a positive identity.</p></div><div><h3>Conclusion</h3><p>The themes align positively with outcomes associated with the bibliotherapy process. Themes also integrate into a self-management model that promotes self-efficacy through education, support, awareness, problem solving and goal setting. Caveats included determining participant readiness to examine recovery issues and facilitator preparation. Aphasia book clubs surrounding psychosocial texts may help PwA reconstruct a positive post-stroke identity.</p></div>","PeriodicalId":49175,"journal":{"name":"Journal of Communication Disorders","volume":"105 ","pages":"Article 106363"},"PeriodicalIF":1.7,"publicationDate":"2023-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10207899","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 1
Language impairments in people with autoimmune neurological diseases: A scoping review 自身免疫性神经疾病患者的语言障碍:范围界定综述
IF 1.7 3区 医学
Journal of Communication Disorders Pub Date : 2023-08-26 DOI: 10.1016/j.jcomdis.2023.106368
Janine Rook , Sara Llufriu , Dörte de Kok , Adrià Rofes
{"title":"Language impairments in people with autoimmune neurological diseases: A scoping review","authors":"Janine Rook ,&nbsp;Sara Llufriu ,&nbsp;Dörte de Kok ,&nbsp;Adrià Rofes","doi":"10.1016/j.jcomdis.2023.106368","DOIUrl":"10.1016/j.jcomdis.2023.106368","url":null,"abstract":"<div><h3>Introduction</h3><p>Autoimmune neurological diseases (ANDs) are a specific type of autoimmune disease that affect cells within the central and peripheral nervous system. ANDs trigger various physical/neuropsychiatric symptoms. However, language impairments in people with ANDs are not well characterized. Here we aimed to determine the kinds of language impairment that most commonly emerge in 10 ANDs, the characteristics of the patients (demographic, neurological damage), and the assessment methods used.</p></div><div><h3>Methods</h3><p>We followed the PRISMA Extension for Scoping Reviews (PRISMA-ScR). PubMed and Google Scholar were searched. We used a list of search terms containing 10 types of ANDs (e.g., multiple sclerosis, acute disseminated encephalomyelitis) in combination with the terms aphasia, dysphasia, fluency, language, listening, morphology, phonology, pragmatics, reading, semantics, speaking, syntax, writing. The reference lists and citations of the relevant papers were also investigated. The type of AND, patient characteristics, neurological damage and examination technique, language tests administered, and main findings were noted for each study meeting the inclusion criteria.</p></div><div><h3>Results</h3><p>We found 171 studies meeting our inclusion criteria. These comprised group studies and case studies. Language impairments differed largely among types of ANDs. Neurological findings were mentioned in most of the papers, but specific language tests were rarely used.</p></div><div><h3>Conclusions</h3><p>Language symptoms in people with ANDs are commonly reported. These are often not full descriptions or only focus on specific time points in the course of the disease. Future research needs to assess specific language functions in people with ANDs and relate their language impairments to brain damage at different stages of disease evolution.</p></div>","PeriodicalId":49175,"journal":{"name":"Journal of Communication Disorders","volume":"106 ","pages":"Article 106368"},"PeriodicalIF":1.7,"publicationDate":"2023-08-26","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10634058","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
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