BMC Palliative Care最新文献

{"title":"Exploring the influencing factors of spiritual well-being in patients with advanced cancer undergoing chemotherapy: a latent profile analysis.","authors":"Ao Tang, Haiyan Liao, Huiru Zeng, Ying Zheng, Qing Li, Fangyi Li, Tian Xiao, Linyu Zhou, Jinlian Wu, Biao He, Nianfei Tang, Xiaoju Chen","doi":"10.1186/s12904-026-02058-4","DOIUrl":"10.1186/s12904-026-02058-4","url":null,"abstract":"","PeriodicalId":48945,"journal":{"name":"BMC Palliative Care","volume":" ","pages":""},"PeriodicalIF":2.5,"publicationDate":"2026-03-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13104549/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147469833","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Children's palliative care in Ghana: a situational analysis.","authors":"Julia Downing, Emmanuel A Adongo, Patrick Kuma-Aboagye, Lorna A Renner, Nihad Salifu, Vivian Paintsil, Wallace A Odiko-Ollennu, Alex Daniels, Lizzie Chambers, Barbara O Sekyere","doi":"10.1186/s12904-026-02053-9","DOIUrl":"10.1186/s12904-026-02053-9","url":null,"abstract":"<p><strong>Background: </strong>There is a growing recognition of the worldwide unmet need for children's palliative care (CPC) with over 21 million children globally needing access to palliative care. This unmet need means that children are subject to needless suffering and that their families are lacking the care and support that they need. Thus, the first ever CPC situational analysis was undertaken in Ghana to assess the need for CPC, along with current provision in Ghana, in order to make recommendations for service development.</p><p><strong>Methods: </strong>A qualitative approach was used. Two focus group discussions were held with 21 participants, followed by 17 interviews with a view to understanding the current situation for CPC in Ghana, the challenges for provision and to make recommendations for future developments.</p><p><strong>Results: </strong>Three overall themes, with associated sub-themes were identified: (1) CPC in Ghana, which included: understanding of palliative care; the background; need for CPC; and funding. (2) The WHO Conceptual model, which included: empowered communities; health policy; research; access to medicines; education and training; and service provision. (3) Going Forward, which included: challenges, commitment, roles and recommendations. Recommendations are aimed at: the Ministry of Health and Ghana Health Services; hospitals and service providers; education providers; researchers; and donors.</p><p><strong>Conclusion: </strong>There was widespread commitment for the development of CPC, with this study providing a baseline for CPC development, building the evidence base and providing insight into CPC development and it's challenges within Ghana. The recommendations provide a roadmap for CPC development aligned with Ghana's five-year palliative care strategy. Implementing these recommendations can transform CPC in Ghana, ensuring that all children in need, and their families, receive high-quality care that improves quality of life and reduces suffering.</p>","PeriodicalId":48945,"journal":{"name":"BMC Palliative Care","volume":" ","pages":""},"PeriodicalIF":2.5,"publicationDate":"2026-03-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13104209/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147469813","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Specialist palliative care in different intensive care unit populations: a retrospective longitudinal study.","authors":"Theresa Tenge, Laura Bosbach, Manuela Schallenburger, Marc Stefaniak, Jacqueline Schwartz, Susanne Feit, Stefan Meier, René M Pembele, Alexandra Stroda, Sebastian Roth, Jan Gaertner, Rainer Kram, Christian Jung, Detlef Kindgen-Milles, Martin Neukirchen","doi":"10.1186/s12904-026-02061-9","DOIUrl":"10.1186/s12904-026-02061-9","url":null,"abstract":"<p><strong>Background: </strong>Integration of specialist palliative care (PC) in intensive care units (ICUs) is recommended but remains underutilized. Understanding differences among ICU populations (i.e., medical vs. surgical) is crucial to overcome barriers and guide optimized care.</p><p><strong>Methods: </strong>Retrospective longitudinal analysis of surgical, medical-neurological and COVID-19 ICU patients receiving specialist PC consultations at a tertiary care center between 2018 and 2022. Measures and outcomes included patient characteristics, timing of PC involvement, PC triggers according to ICU and PC teams, multi-dimensional symptom assessments and care trajectories.</p><p><strong>Results: </strong>518 cases were included, 268 (51.7%) from surgical, 174 (33.6%) from medical-neurological and 76 (14.7%) from COVID-19 ICUs. 39.0% of patients (mean age 67 years, 38.6% female) had cancer, pronounced in the surgical population, while medical ICU patients were older and more often female. The first PC encounter was in median 5 (interquartile range [IQR] 1-14) days after ICU admission with an ICU length of stay of 11 (IQR 5-26) days. ICU mortality was 77.2%, hospital mortality 87.6% with 11.6% of all patients were admitted to PC unit. While ICU teams predominantly saw malignancy, lack of curative treatment options and the need to care for next-of-kin as PC triggers, the PC teams mainly the need to care for next-of-kin and symptom burden. In the surgical ICU, malignancy was more often present as a trigger (maximum standardized mean difference [mSMD]: 0.676), for the medical ICU no curative options (mSMD: 0.256) and cardiopulmonary resuscitation (mSMD: 0.375). Symptom assessment regarding pain (mSMD: 0.676), depressive mood (mSMD: 0.552) and dyspnea (mSMD: 0.468) differed between ICU populations. 28.6% of patients had advance directives (p = 0.16 between ICUs), 48.1% a power of attorney (p = 0.22 between ICUs).</p><p><strong>Conclusions: </strong>In this pandemic-era cohort, ICU patients receiving specialist PC showed high mortality and symptom burden but differed regarding PC triggers and symptom assessments between ICUs. Further, perceptions of PC triggers and symptoms vary between ICU and PC teams. Future studies in non-pandemic settings are needed to determine the broader applicability of these observations.</p>","PeriodicalId":48945,"journal":{"name":"BMC Palliative Care","volume":" ","pages":""},"PeriodicalIF":2.5,"publicationDate":"2026-03-14","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13064263/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147460631","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Challenges and suffering of people with advanced illness in rural Nepal: a mixed method multiple case study in four municipalities.","authors":"Arati Poudel, Daniel Munday, Sunita Bhandari, Adipti Pantha, Amrita Thapa, Purnima Timilsina, Namuna Shrestha, Maya Jane Bates, Farzana Khan, Genevie Fernandes, Liz Grant, David Fearon","doi":"10.1186/s12904-026-02055-7","DOIUrl":"10.1186/s12904-026-02055-7","url":null,"abstract":"","PeriodicalId":48945,"journal":{"name":"BMC Palliative Care","volume":" ","pages":""},"PeriodicalIF":2.5,"publicationDate":"2026-03-14","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13064330/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147460636","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"A cognitive accessibility review of national palliative care resources with people with cognitive disabilities.","authors":"Niima Er-Raji, Munazza Tahir, Lynn Martin","doi":"10.1186/s12904-026-02067-3","DOIUrl":"10.1186/s12904-026-02067-3","url":null,"abstract":"","PeriodicalId":48945,"journal":{"name":"BMC Palliative Care","volume":" ","pages":""},"PeriodicalIF":2.5,"publicationDate":"2026-03-14","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13101393/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147460662","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Patient, family, and healthcare provider experiences in advance care planning: a qualitative study.","authors":"Apiradee Pimsen, Nedruetai Punaglom, Anuwat Taweesuwanakrai, Wanida Winyoohatthakit, Siriluk Winitchayothin, Supinda Ruangjiratain, Virapun Wirojratana, Ahmad Rifai","doi":"10.1186/s12904-026-02065-5","DOIUrl":"10.1186/s12904-026-02065-5","url":null,"abstract":"","PeriodicalId":48945,"journal":{"name":"BMC Palliative Care","volume":" ","pages":""},"PeriodicalIF":2.5,"publicationDate":"2026-03-14","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13101121/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147460603","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Developing information material to support the assessment of palliative care needs in dementia: a qualitative participatory approach.","authors":"Daniela Gesell, Julia Wikert, Katerina Hriskova, Arianita Veliqi, Claudia Bausewein","doi":"10.1186/s12904-026-02066-4","DOIUrl":"10.1186/s12904-026-02066-4","url":null,"abstract":"","PeriodicalId":48945,"journal":{"name":"BMC Palliative Care","volume":" ","pages":""},"PeriodicalIF":2.5,"publicationDate":"2026-03-13","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13063761/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147460625","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Factors associated with participation in advance care planning among people with different degrees of cognitive impairment: a systematic review.","authors":"Xing Wu, Wenqian Zhao, Xinyu Yao, Junhong Wu, Yutong Huang, Yuanxin Han, Huale Zhuang, Yayi Zhao","doi":"10.1186/s12904-026-02050-y","DOIUrl":"10.1186/s12904-026-02050-y","url":null,"abstract":"","PeriodicalId":48945,"journal":{"name":"BMC Palliative Care","volume":" ","pages":""},"PeriodicalIF":2.5,"publicationDate":"2026-03-13","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13097882/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147445624","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"What models of community palliative rehabilitation exist for adults in the United Kingdom? - a national cross-sectional survey.","authors":"Jane Manson, Paul Taylor, Susan Mawson, Alicia O'Cathain","doi":"10.1186/s12904-026-02027-x","DOIUrl":"10.1186/s12904-026-02027-x","url":null,"abstract":"","PeriodicalId":48945,"journal":{"name":"BMC Palliative Care","volume":" ","pages":""},"PeriodicalIF":2.5,"publicationDate":"2026-03-13","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13085448/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147460623","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Assessing unstated assumptions of patient and public involvement in palliative care with story completion and typology analysis.","authors":"Zijian Wang, Michael Chapman, Conal Monaghan, Vinh N Lu, James O'Connor, Shannon Calvert, Brenda Happell, Imogen Mitchell, Brett Scholz","doi":"10.1186/s12904-026-02039-7","DOIUrl":"10.1186/s12904-026-02039-7","url":null,"abstract":"","PeriodicalId":48945,"journal":{"name":"BMC Palliative Care","volume":" ","pages":""},"PeriodicalIF":2.5,"publicationDate":"2026-03-12","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13112636/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147445091","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}