BMC Palliative Care最新文献

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The meaning of culture in nursing at the end of life - an interview study with nurses in specialized palliative care. 生命末期护理中文化的意义--对姑息治疗专科护士的访谈研究。
IF 2.5 2区 医学
BMC Palliative Care Pub Date : 2024-07-06 DOI: 10.1186/s12904-024-01493-5
Rasha Mian, Åsa Rejnö
{"title":"The meaning of culture in nursing at the end of life - an interview study with nurses in specialized palliative care.","authors":"Rasha Mian, Åsa Rejnö","doi":"10.1186/s12904-024-01493-5","DOIUrl":"10.1186/s12904-024-01493-5","url":null,"abstract":"<p><strong>Background: </strong>The countries of the world are becoming increasingly multicultural and diverse, both as a result of growing migration, of people fleeing countries at war but also due to increased mobility related to labour immigration. Culture is a broad concept where the definitions focus on learned and shared values, traditions, and beliefs of a group of individuals. People's culture affects health and perceptions of illness as well as treatment, symptoms, and care. Moreover, people who are at the end of life, live and exist within all levels and contexts of care. Specialized palliative care requires that the nurse has sufficient knowledge and skills to be responsible for meeting the patient's nursing needs also on a cultural level, regardless of cultural affiliation. The aim of the study was to highlight nurses' experiences of the meaning of culture when caring for patients at the end of life in specialized palliative care.</p><p><strong>Methods: </strong>The study was conducted with a qualitative design and inductive approach. Semi-structured interviews were conducted with twelve nurses in western Sweden. Data were analysed using qualitative content analysis.</p><p><strong>Results: </strong>The nurses had an awareness of culture as a phenomenon and how it affected palliative care at the end of life. The results showed two categories, Awareness of the impact of culture on nursing and Culture's impact and influence on the nurse's mindset and approach, consisting of seven subcategories that highlight the nurse's experience. It emerged that there are differences between cultures regarding notions of dying and death, who should be informed, and treatments. There were also challenges and emotions that arose when cultural preferences differed among everyone involved. A person-centred approach allowed for recognition of the dying person's culture, to meet diverse cultural needs and wishes.</p><p><strong>Conclusion: </strong>Providing culturally competent care is a major challenge. There are often no routines or methods prescribed for how nurses should relate to and handle the diversity of cultural notions that may differ from the values and cornerstones of palliative care. Having a person-centred approach as strategy can help to better manage the situation and provide equitable care on terms that respect cultural diversity.</p>","PeriodicalId":48945,"journal":{"name":"BMC Palliative Care","volume":null,"pages":null},"PeriodicalIF":2.5,"publicationDate":"2024-07-06","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11227218/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141538867","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
The knowledge, attitude and behavior on the palliative care among neonatal nurses: what can we do. 新生儿护士对姑息治疗的认识、态度和行为:我们能做些什么?
IF 2.5 2区 医学
BMC Palliative Care Pub Date : 2024-07-03 DOI: 10.1186/s12904-024-01470-y
Yilan Yan, Jiahui Hu, Fei Hu, Longyan Wu
{"title":"The knowledge, attitude and behavior on the palliative care among neonatal nurses: what can we do.","authors":"Yilan Yan, Jiahui Hu, Fei Hu, Longyan Wu","doi":"10.1186/s12904-024-01470-y","DOIUrl":"10.1186/s12904-024-01470-y","url":null,"abstract":"<p><strong>Background: </strong>Neonatal nurses should provide timely and high-quality palliative care whenever necessary. It's necessary to investigate the knowledge, attitude and behavior of palliative care among neonatal nurses, to provide references and evidences for clinical palliative care.</p><p><strong>Methods: </strong>Neonatal intensive care unit (NICU) nurses in a tertiary hospital of China were selected from December 1 to 16, 2022. The palliative care knowledge, attitude and behavior questionnaire was used to evaluate the current situation of palliative nursing knowledge, attitude and behavior of NICU nurses. Univariate analysis and multivariate logistic regression analysis were used to analyze the influencing factors.</p><p><strong>Results: </strong>122 nurses were finally included. The average score of knowledge in neonatal nurses was 7.68 ± 2.93, the average score of attitude was 26.24 ± 7.11, the score of behavior was 40.55 ± 8.98, the average total score was 74.03 ± 10.17. Spearman correlation indicated that score of knowledge, attitude and behavior of palliative care in neonatal nurses were correlated with the age(r = 0.541), year of work experience(r = 0.622) and professional ranks and titles(r = 0.576) (all P < 0.05). Age (OR = 1.515, 95%CI: 1.204 ~ 1.796), year of work experience (OR = 2.488, 95%CI: 2.003 ~ 2.865) and professional ranks and titles (OR = 2.801, 95%CI: 2.434 ~ 3.155) were the influencing factors of score of knowledge, attitude and behavior of palliative care (all P < 0.05).</p><p><strong>Public contribution: </strong>NICU nurses have a positive attitude towards palliative care, but the practical behavior of palliative care is less and lack of relevant knowledge. Targeted training should be carried out combined with the current situation of knowledge, attitude and practice of NICU nurses to improve the palliative care ability and quality of NICU nurses.</p>","PeriodicalId":48945,"journal":{"name":"BMC Palliative Care","volume":null,"pages":null},"PeriodicalIF":2.5,"publicationDate":"2024-07-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11220974/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141499379","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Palliative care national plan implementation through stakeholder analysis. 通过利益相关者分析,实施姑息关怀国家计划。
IF 2.5 2区 医学
BMC Palliative Care Pub Date : 2024-07-01 DOI: 10.1186/s12904-024-01427-1
Miguel Antonio Sánchez-Cárdenas, Marta Ximena León-Delgado, Lina María Vargas-Escobar, Sofia Elizabeth Muñoz Medina, Paula Milena Buitrago Florian, David Andrade Fonseca, Juan Esteban Correa-Morales
{"title":"Palliative care national plan implementation through stakeholder analysis.","authors":"Miguel Antonio Sánchez-Cárdenas, Marta Ximena León-Delgado, Lina María Vargas-Escobar, Sofia Elizabeth Muñoz Medina, Paula Milena Buitrago Florian, David Andrade Fonseca, Juan Esteban Correa-Morales","doi":"10.1186/s12904-024-01427-1","DOIUrl":"10.1186/s12904-024-01427-1","url":null,"abstract":"<p><strong>Background: </strong>National palliative care plans depend upon stakeholder engagement to succeed. Assessing the capability, interest, and knowledge of stakeholders is a crucial step in the implementation of public health initiatives, as recommended by the World Health Organisation. However, utilising stakeholder analysis is a strategy underused in public palliative care.</p><p><strong>Objective: </strong>To conduct a stakeholder analysis characterising a diverse group of stakeholders involved in implementing a national palliative care plan in three rural regions of an upper-middle-income country.</p><p><strong>Methods: </strong>A descriptive cross-sectional study design, complemented by a quantitative stakeholder analysis approach, was executed through a survey designed to gauge stakeholders' levels of interest and capability in relation to five fundamental dimensions of public palliative care: provision of services, accessibility of essential medicines, palliative care education, financial support, and palliative care vitality. Stakeholders were categorised as promoters (high-power, high-interest), latent (high-power, low-interest), advocates (low-power, high-interest), and indifferent (low-power and low-interest). Stakeholder self-perceived category and knowledge level were also assessed.</p><p><strong>Results: </strong>Among the 65 surveyed stakeholders, 19 were categorised as promoters, 34 as advocates, 9 as latent, and 3 as indifferent. Stakeholders' self-perception of their category did not align with the results of the quantitative analysis. When evaluated by region and palliative care dimensions the distribution of stakeholders was nonuniform. Palliative care funding was the dimension with the highest number of stakeholders categorised as indifferent, and the lowest percentage of promoters. Stakeholders categorised as promoters consistently reported a low level of knowledge, regardless of the dimension, region, or their level of interest.</p><p><strong>Conclusions: </strong>Assessing the capability, interest, and knowledge of stakeholders is a crucial step when implementing public health initiatives in palliative care. It allows for a data-driven decision-making process on how to delegate responsibilities, administer financial resources, and establish governance boards that remain engaged and work efficiently.</p>","PeriodicalId":48945,"journal":{"name":"BMC Palliative Care","volume":null,"pages":null},"PeriodicalIF":2.5,"publicationDate":"2024-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11218343/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141477778","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Evaluation of interactive web-based tools to stimulate reflection and communication about advance care planning with people with dementia and their family caregivers. 对基于网络的互动工具进行评估,以激发痴呆症患者及其家庭照顾者对预先护理计划的思考和交流。
IF 2.5 2区 医学
BMC Palliative Care Pub Date : 2024-06-28 DOI: 10.1186/s12904-024-01486-4
Fanny Monnet, Lara Pivodic, Charlèss Dupont, Tinne Smets, Aline De Vleminck, Chantal Van Audenhove, Lieve Van den Block
{"title":"Evaluation of interactive web-based tools to stimulate reflection and communication about advance care planning with people with dementia and their family caregivers.","authors":"Fanny Monnet, Lara Pivodic, Charlèss Dupont, Tinne Smets, Aline De Vleminck, Chantal Van Audenhove, Lieve Van den Block","doi":"10.1186/s12904-024-01486-4","DOIUrl":"https://doi.org/10.1186/s12904-024-01486-4","url":null,"abstract":"<p><strong>Background: </strong>People with dementia and their family caregivers often encounter challenges in engaging in advance care planning (ACP), such as a lack of information and difficulties in engaging in ACP conversations. Using a user-centred design, we developed two interactive web-based tools as part of an ACP support website to stimulate ACP reflection and communication: (1) the 'Thinking Now About Later' tool, with open-ended questions about 'what matters most', and (2) a digital version of the 'Life Wishes Cards', a card tool with pre-formulated statements that prompt reflection about wishes for future care. This study aimed to evaluate the use of and experiences with two web-based tools by people with dementia and their family caregivers.</p><p><strong>Methods: </strong>During an eight-week period, people with dementia and family caregivers were invited to use the ACP support website in the way they preferred. The mixed-methods evaluation of the ACP tools involved capturing log data to assess website use and semi-structured qualitative interviews to capture experiences. Analyses included descriptive statistics of log data and framework analysis for qualitative data.</p><p><strong>Results: </strong>Of 52 participants, 21 people had dementia and 31 were family caregivers. The 'Thinking Now About Later' tool and 'Life Wishes Cards' were accessed 136 and 91 times respectively, with an average session duration of 14 minutes (SD = 27.45 minutes). 22 participants actively engaged with the tools, with the majority using the tools once, and seven revisiting them. Those who used the tools valued the guidance it provided for ACP conversations between people with dementia and their family caregivers. Participants reported that people with dementia experienced barriers to using the tools on their own, hence family caregivers usually facilitated the use and participation of people with dementia. Some highlighted not knowing what next steps to take after completing the tools online.</p><p><strong>Conclusions: </strong>Although less than half the people used the ACP tools, those who used them found them helpful to facilitate communication between people with dementia and their family. Family caregivers of people with dementia played a crucial role in facilitating the use of the web-based tools.</p>","PeriodicalId":48945,"journal":{"name":"BMC Palliative Care","volume":null,"pages":null},"PeriodicalIF":2.5,"publicationDate":"2024-06-28","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11212172/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141471877","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Correction: Development and psychometric evaluation of the death risk perception scale for advanced cancer patients. 更正:晚期癌症患者死亡风险认知量表的开发与心理测量学评估。
IF 2.5 2区 医学
BMC Palliative Care Pub Date : 2024-06-25 DOI: 10.1186/s12904-024-01491-7
Guojuan Chen, Xiaoling Zhang, Zhangxian Chen, Shangwang Yang, Jianwei Zheng, Huimin Xiao
{"title":"Correction: Development and psychometric evaluation of the death risk perception scale for advanced cancer patients.","authors":"Guojuan Chen, Xiaoling Zhang, Zhangxian Chen, Shangwang Yang, Jianwei Zheng, Huimin Xiao","doi":"10.1186/s12904-024-01491-7","DOIUrl":"10.1186/s12904-024-01491-7","url":null,"abstract":"","PeriodicalId":48945,"journal":{"name":"BMC Palliative Care","volume":null,"pages":null},"PeriodicalIF":2.5,"publicationDate":"2024-06-25","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11201355/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141452009","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Decreased aggressive care at the end of life among advanced cancer patients in the Republic of Korea: a nationwide study from 2012 to 2018. 大韩民国晚期癌症患者生命末期积极护理的减少:2012年至2018年全国性研究。
IF 2.5 2区 医学
BMC Palliative Care Pub Date : 2024-06-25 DOI: 10.1186/s12904-024-01459-7
Sara Kwon, Kyuwoong Kim, Bohyun Park, So-Jung Park, Hyun Jung Jho, Jin Young Choi
{"title":"Decreased aggressive care at the end of life among advanced cancer patients in the Republic of Korea: a nationwide study from 2012 to 2018.","authors":"Sara Kwon, Kyuwoong Kim, Bohyun Park, So-Jung Park, Hyun Jung Jho, Jin Young Choi","doi":"10.1186/s12904-024-01459-7","DOIUrl":"10.1186/s12904-024-01459-7","url":null,"abstract":"<p><strong>Background: </strong>This study aimed to investigate the trends of aggressive care at the end-of-life (EoL) for patients with advanced cancer in Korea and to identify factors affecting such care analyzing nationwide data between 2012 to 2018.</p><p><strong>Methods: </strong>This was a population-based, retrospective nationwide study. We used administrative data from the National Health Insurance Service and the Korea Central Cancer Registry to analyze 125,350 patients aged 20 years and above who died within one year of a stage IV cancer diagnosis between 2012 and 2018.</p><p><strong>Results: </strong>The overall aggressiveness of EoL care decreased between 2012 and 2018. In patients' last month of life, chemotherapy use (37.1% to 32.3%; p < 0.05), cardiopulmonary resuscitation (13.2% to 10.4%; p < 0.05), and intensive care unit admission (15.2% to 11.1%; p < 0.05) decreased during the study period, although no significant trend was noted in the number of emergency room visits. A steep increase was seen in inpatient hospice use in the last month of life (8.6% to 26.6%; p < 0.05), while downward trends were observed for hospice admission within three days prior to death (13.9% to 11%; p < 0.05). Patients were more likely to receive aggressive EoL care if they were younger, women, had treatment in tertiary hospitals, or had hematologic malignancies. In the subgroup analysis, the overall trend of aggressive EoL care decreased for all five major cancer types.</p><p><strong>Conclusion: </strong>The aggressiveness of EoL care in stage IV cancer patients showed an overall decrease during 2012-2018 in Korea.</p>","PeriodicalId":48945,"journal":{"name":"BMC Palliative Care","volume":null,"pages":null},"PeriodicalIF":2.5,"publicationDate":"2024-06-25","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11201316/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141452010","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Understanding barriers and facilitators to palliative and end-of-life care research: a mixed method study of generalist and specialist health, social care, and research professionals. 了解姑息治疗和临终关怀研究的障碍和促进因素:一项针对全科和专科医疗、社会护理及研究专业人员的混合方法研究。
IF 2.5 2区 医学
BMC Palliative Care Pub Date : 2024-06-25 DOI: 10.1186/s12904-024-01488-2
Catherine Walshe, Lesley Dunleavy, Nancy Preston, Sheila Payne, John Ellershaw, Vanessa Taylor, Stephen Mason, Amara Callistus Nwosu, Amy Gadoud, Ruth Board, Brooke Swash, Seamus Coyle, Andrew Dickman, Andrea Partridge, Jaime Halvorsen, Nick Hulbert-Williams
{"title":"Understanding barriers and facilitators to palliative and end-of-life care research: a mixed method study of generalist and specialist health, social care, and research professionals.","authors":"Catherine Walshe, Lesley Dunleavy, Nancy Preston, Sheila Payne, John Ellershaw, Vanessa Taylor, Stephen Mason, Amara Callistus Nwosu, Amy Gadoud, Ruth Board, Brooke Swash, Seamus Coyle, Andrew Dickman, Andrea Partridge, Jaime Halvorsen, Nick Hulbert-Williams","doi":"10.1186/s12904-024-01488-2","DOIUrl":"10.1186/s12904-024-01488-2","url":null,"abstract":"<p><strong>Background: </strong>Palliative care provision should be driven by high quality research evidence. However, there are barriers to conducting research. Most research attention focuses on potential patient barriers; staff and organisational issues that affect research involvement are underexplored. The aim of this research is to understand professional and organisational facilitators and barriers to conducting palliative care research.</p><p><strong>Methods: </strong>A mixed methods study, using an open cross-sectional online survey, followed by working groups using nominal group techniques. Participants were professionals interested in palliative care research, working as generalist/specialist palliative care providers, or palliative care research staff across areas of North West England. Recruitment was via local health organisations, personal networks, and social media in 2022. Data were examined using descriptive statistics and content analysis.</p><p><strong>Results: </strong>Participants (survey n = 293, working groups n = 20) were mainly from clinical settings (71%) with 45% nurses and 45% working more than 10 years in palliative care. 75% were not active in research but 73% indicated a desire to increase research involvement. Key barriers included lack of organisational research culture and capacity (including prioritisation and available time); research knowledge (including skills/expertise and funding opportunities); research infrastructure (including collaborative opportunities across multiple organisations and governance challenges); and patient and public perceptions of research (including vulnerabilities and burdens). Key facilitators included dedicated research staff, and active research groups, collaborations, and networking opportunities.</p><p><strong>Conclusions: </strong>Professionals working in palliative care are keen to be research active, but lack time, skills, and support to build research capabilities and collaborations. A shift in organisational culture is needed to enhance palliative care research capacity and collaborative opportunities across clinical and research settings.</p>","PeriodicalId":48945,"journal":{"name":"BMC Palliative Care","volume":null,"pages":null},"PeriodicalIF":2.5,"publicationDate":"2024-06-25","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11202245/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141452011","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Physicians' understandings and experience of advance care planning in Norwegian nursing homes: a qualitative study. 挪威养老院中医生对预先护理计划的理解和经验:一项定性研究。
IF 2.5 2区 医学
BMC Palliative Care Pub Date : 2024-06-24 DOI: 10.1186/s12904-024-01481-9
Liv Ødbehr, Reidun Hov, Harald Sanaker, Åsa Serholt Jensen, Aina Korup, Tuva Sandsdalen
{"title":"Physicians' understandings and experience of advance care planning in Norwegian nursing homes: a qualitative study.","authors":"Liv Ødbehr, Reidun Hov, Harald Sanaker, Åsa Serholt Jensen, Aina Korup, Tuva Sandsdalen","doi":"10.1186/s12904-024-01481-9","DOIUrl":"10.1186/s12904-024-01481-9","url":null,"abstract":"<p><strong>Background: </strong>Advance care planning is a way of facilitating conversations with patients about future health care, values, and preferences at end of life. Nursing home physicians have the medical responsibility and the main obligation to facilitate planned meetings with patients. Although there has been a great deal of focus on establishing advance care planning in Norwegian nursing homes, it has yet to be widely implemented. Stated reasons are that the work routines in a nursing home do not include such meetings or that implementation seems complex due to frail patients. The aim of this study is thus to explore how physicians understand and experience advance care planning and follow-up of care plans in Norwegian nursing homes.</p><p><strong>Methods: </strong>The study has a qualitative research design with a phenomenological-hermeneutic approach based on interviews of twelve nursing home physicians working in community care. Interviews were conducted in February 2023 to May 2023, using a semi-structured interview guide. All interviews were recorded on audio files, transcribed, and analyzed using structural text analysis.</p><p><strong>Results: </strong>The findings are presented based on the following themes: (1) advance care planning is a dialog and a process, (2) advance care planning implies clarifying mutual expectations, and (3) advance care planning that brings relief and hope to patients is a medical art.</p><p><strong>Conclusions: </strong>Advance care planning is a complex and dynamic process that implies medical treatment, decisions on treatment level, pain relief, and formulation of care plans where the patient's self-determination and personal values are respected. It implies an ongoing dialogue between physicians, patients, and their relatives about values such as dignity, self-understanding, social relations, and existential questions at end of life. Advance care planning requires a holistic approach that meets patients' psychological and existential needs such as comfort, trust, hope, and respect as well as their preferences and concerns.</p>","PeriodicalId":48945,"journal":{"name":"BMC Palliative Care","volume":null,"pages":null},"PeriodicalIF":2.5,"publicationDate":"2024-06-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11194902/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141447341","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
End-of-life care needs in cancer patients: a qualitative study of patient and family experiences. 癌症患者的临终关怀需求:对患者和家属经历的定性研究。
IF 2.5 2区 医学
BMC Palliative Care Pub Date : 2024-06-21 DOI: 10.1186/s12904-024-01489-1
Mario López-Salas, Antonio Yanes-Roldán, Ana Fernández, Ainhoa Marín, Ana I Martínez, Ana Monroy, José M Navarro, Marta Pino, Raquel Gómez, Saray Rodríguez, Sergio Garrido, Sonia Cousillas, Tatiana Navas, Víctor Lapeña, Belén Fernández
{"title":"End-of-life care needs in cancer patients: a qualitative study of patient and family experiences.","authors":"Mario López-Salas, Antonio Yanes-Roldán, Ana Fernández, Ainhoa Marín, Ana I Martínez, Ana Monroy, José M Navarro, Marta Pino, Raquel Gómez, Saray Rodríguez, Sergio Garrido, Sonia Cousillas, Tatiana Navas, Víctor Lapeña, Belén Fernández","doi":"10.1186/s12904-024-01489-1","DOIUrl":"10.1186/s12904-024-01489-1","url":null,"abstract":"<p><strong>Background: </strong>Cancer is a disease that transcends what is purely medical, profoundly affecting the day-to-day life of both patients and family members. Previous research has shown that the consequences of cancer are greatly aggravated in patients at the end of life, at a time when they must also grapple with numerous unmet needs. The main objective of this study was to obtain more in-depth insight into these needs, primarily in patients with end-stage cancer nearing death.</p><p><strong>Methods: </strong>Semi-structured interviews were conducted in Spain with cancer patients at the end of life (n = 3) and their family members (n = 12). The findings from the interviews were analyzed using qualitative thematic analysis and a grounded theory approach.</p><p><strong>Results: </strong>Four major themes emerged from the interviews that explored the needs and concerns of patients with cancer at the end of life: (1) physical well-being (2) emotional well-being (3) social well-being and (4), needs relating to information and autonomous decision-making. The interviews also shed light on the specific needs of family members during this period, namely the difficulties of managing increased caregiver burden and maintaining a healthy work-life balance.</p><p><strong>Conclusions: </strong>A lack of support, information and transparency during a period of immense vulnerability makes the end-of-life experience even more difficult for patients with cancer. Our findings highlight the importance of developing a more in-depth understanding of the needs of this population, so that informed efforts can be made to improve palliative healthcare and implement more comprehensive care and support at the end of life.</p>","PeriodicalId":48945,"journal":{"name":"BMC Palliative Care","volume":null,"pages":null},"PeriodicalIF":2.5,"publicationDate":"2024-06-21","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11191331/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141437688","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Feasibility of an exercise-nutrition-psychology integrated rehabilitation model based on mobile health and virtual reality for cancer patients: a single-center, single-arm, prospective phase II study. 基于移动医疗和虚拟现实技术的癌症患者运动-营养-心理综合康复模式的可行性:单中心、单臂、前瞻性 II 期研究。
IF 2.5 2区 医学
BMC Palliative Care Pub Date : 2024-06-20 DOI: 10.1186/s12904-024-01487-3
Yuan Qi, Mengjie Wang, Ya Xue, Jingyan Yue, Chunjian Qi, Weihu Shang, Weifen Meng, Wenyu Zhu, Xiaolin Pu, Dongqing Li, Hua Jiang
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