BMC Palliative Care最新文献

{"title":"Relational dynamics in dementia care: a qualitative study of Australian and Japanese family experiences.","authors":"Xue Li, Akari Kikuchi, Hiroshi Ohata, Yuki Inoue Nakata, Takuya Niikawa","doi":"10.1186/s12904-026-02085-1","DOIUrl":"10.1186/s12904-026-02085-1","url":null,"abstract":"<p><strong>Background: </strong>Dementia is a progressive condition that disrupts not only the cognitive and functional abilities of those diagnosed but also the quality of their closest relationships. Family carers often face profound emotional, relational, and cultural challenges as they adapt to these changes. While past studies have highlighted the grief and uncertainty associated with caregiving, less is known about how relational dynamics evolve over the dementia trajectory or how cultural contexts shape this process. This study aimed to explore how family caregivers in Australia and Japan experience and navigate relational change.</p><p><strong>Methods: </strong>We conducted semi-structured, in-depth interviews with 38 family carers of people living with dementia (18 in Australia, 20 in Japan). Participants were recruited through community organisations, carer networks, and support groups. Interviews were transcribed verbatim in the original language (English or Japanese) and translated as required. Data were analysed thematically using Braun and Clarke's framework, with bilingual researchers ensuring cultural nuance and analytic fidelity. Rigour was supported through triangulation, peer debriefing, reflexive journaling, and adherence to the COREQ checklist.</p><p><strong>Results: </strong>Four key themes were generated: (1) Dealing with Loss: carers described relational and personhood losses, including role reversals and the erosion of reciprocity; (2) Evolving Relational Practices: carers adapted activities, communication, and routines to sustain connection; (3) Reconciling with a Transformed Relationship: carers negotiated ambivalent states of grief, gratitude, and acceptance; and (4) Motivation to Care: carers identified drivers of care, including relational closeness, duty and reciprocity, health-related rationales, and cultural negotiation between collectivist and individualist norms.</p><p><strong>Conclusions: </strong>Relational change is a central yet under-recognised aspect of dementia caregiving. This study builds on previous literature around the impact of dementia on carers by showing how cultural logics and caregiving motivations shape relational adaptation. These findings indicate that caregiving support may benefit from greater attention to relational wellbeing, duty, and cultural meanings attached to caregiving. Culturally responsive approaches that recognise relational continuity may contribute to improving the quality of life of both carers and people living with dementia.</p>","PeriodicalId":48945,"journal":{"name":"BMC Palliative Care","volume":" ","pages":""},"PeriodicalIF":2.5,"publicationDate":"2026-04-28","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13141287/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147786601","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Palliative care symptoms of people living with rapidly progressive prion diseases: a systematic review.","authors":"Rachel T Williams, Nicola White, Joshua Kearns, Kirsty McNiven, Ann Rochelle Marasigan, Elizabeth L Sampson, Catherine J Evans, Simon Mead, Nuriye Kupeli","doi":"10.1186/s12904-026-02107-y","DOIUrl":"https://doi.org/10.1186/s12904-026-02107-y","url":null,"abstract":"","PeriodicalId":48945,"journal":{"name":"BMC Palliative Care","volume":" ","pages":""},"PeriodicalIF":2.5,"publicationDate":"2026-04-27","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147786651","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"CARE-HOUSE: developing a framework for conceptualizing social implications of digital health technologies in palliative care.","authors":"Natalie Öhl, Tobias Steigleder, Eva Maria Hille, Matthias Braun, Alina Weisser, Felix Mühlensiepen, Martin Vossiek, Björn Eskofier, Alexander Kölpin, Peter Dabrock, Cynthia C Forbes, Christoph Ostgathe, Maria Heckel","doi":"10.1186/s12904-026-02114-z","DOIUrl":"https://doi.org/10.1186/s12904-026-02114-z","url":null,"abstract":"","PeriodicalId":48945,"journal":{"name":"BMC Palliative Care","volume":"25 1","pages":""},"PeriodicalIF":2.5,"publicationDate":"2026-04-27","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13112699/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147786589","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Experiences, perspectives and preferences for home-based palliative and supportive care: a qualitative study of individuals with heart failure and their carers.","authors":"Madhurangi Perera, William Parsonage, Patsy Yates, Gursharan K Singh","doi":"10.1186/s12904-026-02097-x","DOIUrl":"https://doi.org/10.1186/s12904-026-02097-x","url":null,"abstract":"","PeriodicalId":48945,"journal":{"name":"BMC Palliative Care","volume":" ","pages":""},"PeriodicalIF":2.5,"publicationDate":"2026-04-27","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147786646","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Palliative care and vascular surgery: status quo, needs, barriers and current challenges from the perspective of vascular surgery specialists.","authors":"Michael Rechenmacher, Annette Schnell, Martina Schulz, Wolfgang Herr, Wilma Schierling, Karin Pfister, Ruth Mair","doi":"10.1186/s12904-026-02113-0","DOIUrl":"https://doi.org/10.1186/s12904-026-02113-0","url":null,"abstract":"","PeriodicalId":48945,"journal":{"name":"BMC Palliative Care","volume":"25 1","pages":""},"PeriodicalIF":2.5,"publicationDate":"2026-04-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13107823/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147786557","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"The general public's perceptions of advance care planning (ACP) in the Asia-Pacific region: a systematic review.","authors":"Piyawan Pokpalagon, Shirley Chambers, Gursharan K Singh, Patsy Yates","doi":"10.1186/s12904-026-02109-w","DOIUrl":"https://doi.org/10.1186/s12904-026-02109-w","url":null,"abstract":"","PeriodicalId":48945,"journal":{"name":"BMC Palliative Care","volume":" ","pages":""},"PeriodicalIF":2.5,"publicationDate":"2026-04-23","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147786586","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"The LiverCare intervention: implementing structured palliative care in hepatology - a multicenter mixed-methods feasibility study in patients with cirrhosis.","authors":"Lea Ladegaard Grønkjær, Birgitte Gade Jacobsen, Ane Søgaard Teisner, Palle Bager, Marie Louise Hamberg, Janni Mendahl, Kristoffer Marsaa, Mai-Britt Guldin, Nina Kimer, Mette Munk Lauridsen, Malene Barfod O Connell","doi":"10.1186/s12904-026-02104-1","DOIUrl":"https://doi.org/10.1186/s12904-026-02104-1","url":null,"abstract":"","PeriodicalId":48945,"journal":{"name":"BMC Palliative Care","volume":" ","pages":""},"PeriodicalIF":2.5,"publicationDate":"2026-04-22","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147786652","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"SPICT as a predictive tool for outcomes of 1-year in patients with neurological disorders: a cohort study.","authors":"Mengyun Peng, Xiuying Cai, Fen Wang, Yicheng Liu, Wenyu Shi, Sheng Huang","doi":"10.1186/s12904-026-02090-4","DOIUrl":"https://doi.org/10.1186/s12904-026-02090-4","url":null,"abstract":"","PeriodicalId":48945,"journal":{"name":"BMC Palliative Care","volume":" ","pages":""},"PeriodicalIF":2.5,"publicationDate":"2026-04-20","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147730438","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Full title of the manuscript: early diagnostic tools in palliative care in Morocco: healthcare professionals' knowledge, perceptions, and barriers at Ibn Sina University hospital centre.","authors":"Rida Zguiouar, Meryem Hamdoune, Abdellah Gantare","doi":"10.1186/s12904-026-02100-5","DOIUrl":"https://doi.org/10.1186/s12904-026-02100-5","url":null,"abstract":"<p><strong>Background: </strong>Palliative care (PC) in Morocco is still developing, with limited integration of standardised assessment and diagnostic tools in clinical practice. This study aimed to explore healthcare professionals' knowledge, perceptions, and use of early diagnostic tools in PC at Ibn Sina University Hospital Centre, Rabat, and to identify contextually appropriate tools and barriers to their implementation within the Moroccan healthcare context.</p><p><strong>Methods: </strong>A qualitative, descriptive study was conducted at Ibn Sina University Hospital Centre between March and September 2025. Semi-structured, face-to-face interviews were held with 56 healthcare professionals involved in palliative and end-of-life care across multiple departments. Participants were recruited through purposive sampling. Data were transcribed verbatim and analysed thematically following Braun and Clarke's framework.</p><p><strong>Results: </strong>Fifty-six healthcare professionals (43 nurses, 13 physicians) participated. Six major themes emerged. Most interviewers reported limited knowledge and irregular use of early diagnostic tools such as Pallia 10 and PICT, mainly due to insufficient training, lack of standardised protocols, heavy workload, and cultural factors. While Pallia 10 was preferred for its simplicity and compatibility with clinical routines, PICT was valued for its psychosocial and multidimensional perspective. Participants highlighted the need for cultural and linguistic adaptation, multidisciplinary collaboration, and institutional support.</p><p><strong>Conclusions: </strong>Integrating early diagnostic tools into Moroccan PC could enhance early identification, care coordination, and quality of life for patients. However, successful implementation requires national strategies, continuous professional training, and culturally sensitive adaptation to bridge the gap between theoretical recognition and practical use.</p>","PeriodicalId":48945,"journal":{"name":"BMC Palliative Care","volume":" ","pages":""},"PeriodicalIF":2.5,"publicationDate":"2026-04-18","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147718699","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Echoes of the burdened souls: psycho-social and spiritual turmoil in advanced cancer patients receiving palliative care.","authors":"Nadia Farheen, Afroja Alam, A K M Motiur Rahman Bhuiyan, Md Khalequzzaman, Md Razib Mamun, Mostofa Kamal Chowdhury","doi":"10.1186/s12904-026-02087-z","DOIUrl":"https://doi.org/10.1186/s12904-026-02087-z","url":null,"abstract":"","PeriodicalId":48945,"journal":{"name":"BMC Palliative Care","volume":" ","pages":""},"PeriodicalIF":2.5,"publicationDate":"2026-04-18","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147718655","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}