Qualitative Health Research最新文献

{"title":"\"Because of HIV, It Opened My Mind\": Intersectional Stigma Experiences Among Filipino Gay and Bisexual Men Living With HIV.","authors":"Aron Harold G Pamoso, Brett Scholz, Austin Ferolino","doi":"10.1177/10497323241280213","DOIUrl":"10.1177/10497323241280213","url":null,"abstract":"<p><p>Previous work has demonstrated that gay, bisexual men, and other men who have sex with men (GBM) living with HIV are likely to experience intersectional stigma. However, mainstream systems often fail to recognize how power and privilege shape this experience. Such a complex psychological phenomenon requires an in-depth reflective inquiry that acknowledges individuals as experts in their own experiences. To explicate this matter, this study aimed to develop an understanding of how intersectional stigma impacts the experiences of GBM living with HIV and to illuminate how contexts (un)fuel inequities. The semi-structured interviews with five Filipino GBM living with HIV were analyzed using interpretative phenomenological analysis (IPA). Exploration of their accounts elucidated how cultural elements fueled power dynamics and privilege, which in turn shaped intersectional stigma and their experiences. Narratives accentuated how Filipino GBM living with HIV situate themselves from victims to agents of change who empower and liberate others in the community. Insights from this study underscore the critical role of collective actions in bridging gaps in inequities and guiding the improvement of policies and interventions that are well-suited to the context and culturally appropriate for people living with HIV and other multiply marginalized populations.</p>","PeriodicalId":48437,"journal":{"name":"Qualitative Health Research","volume":" ","pages":"1037-1052"},"PeriodicalIF":2.6,"publicationDate":"2025-08-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12202831/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142630746","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Cultures of Activity, Cultivating Resistance.","authors":"Katherine Kenny, Alex Broom, Michelle Peterie, Juliet Bennett, Jennifer Broom","doi":"10.1177/10497323241271915","DOIUrl":"10.1177/10497323241271915","url":null,"abstract":"<p><p>The problem of antimicrobial resistance (AMR) is often viewed through biomedical and/or behavioral lenses, with the underlying economic principles and \"headwinds\" shaping resistance less visible. In this paper, we focus on how healthcare funding models structure the ways AMR is perceived and addressed as an institutional priority. Specifically, we explore how activity-based funding reflects and operationalizes ingrained assumptions about what is valuable and/or worthwhile within the organizational ecology of the hospital. Drawing on interviews with 36 executives from several hospital clinical care settings across two Australian states, we illuminate the ways the activity-based funding paradigm works against efforts to combat AMR. Concerningly, we further observe how activity-based funding models can inadvertently position rising rates of resistance as a benefit-at least in the short term-as the new and intensified interventions required to address resistant infections require more \"activity\" and thus deliver higher reimbursement at the level of annualized budgets. In failing to recognize the (social and economic) value of <i>reduced</i> activity, activity-based funding risks contributing to AMR, rather than working to resolve it.</p>","PeriodicalId":48437,"journal":{"name":"Qualitative Health Research","volume":" ","pages":"980-991"},"PeriodicalIF":2.6,"publicationDate":"2025-08-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12202817/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142510591","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"How Advocates Can Support Young Adults Living With Cancer and Their Transition to Palliative Care.","authors":"Emily K Drake, Lori E Weeks, Michael van Manen, Dani Taylor, Ian Ricci, Janet Curran","doi":"10.1177/10497323241279083","DOIUrl":"10.1177/10497323241279083","url":null,"abstract":"<p><p>While the cancer advocacy community has been pivotal in progressing oncology care, supporting young adults with advanced cancer transitioning to palliative care continues to be a complex challenge. Palliative care services may not be offered by healthcare providers or engaged by young people themselves. This is in the face of the recognized value that palliative care can provide young people and their families. The purpose of this study was to explore what cancer advocates can do to support young adults (18-39 years of age) with advanced cancer in their transition to palliative care. A community-based research perspective supported engagement with members of the #AYACSM (Adolescent and Young Adult Cancer Societal Movement) from the United States and Canada through social media. Analysis was guided by a reflexive thematic analysis approach to articulate four action-oriented themes: advocate for advances in the delivery of care; support healthcare provider education; mobilize knowledge and share stories; and leverage technology for advocacy efforts. Young adult cancer advocacy must span the continuum of cancer care from prevention to end-of-life. There exist gaps in advocacy efforts surrounding support for young people in their transition to and the integration of palliative care services. Creative and innovative advocacy approaches are needed. This study also showed opportunities for conducting qualitative research through an existing online community as an approach conducive to community-based research.</p>","PeriodicalId":48437,"journal":{"name":"Qualitative Health Research","volume":" ","pages":"1007-1018"},"PeriodicalIF":2.6,"publicationDate":"2025-08-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12202822/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142584421","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"The Morality of Care: Female Family Caregivers' Motivations for Providing Care to Older Migrants.","authors":"Sunita Shrestha, Sanjana Arora, Alistair Hunter, Jonas Debesay","doi":"10.1177/10497323241280239","DOIUrl":"10.1177/10497323241280239","url":null,"abstract":"<p><p>Finding suitable long-term care arrangements for older migrants in Europe, including Norway, has been a major concern for healthcare policymakers in the last decade. However, many older people with migrant backgrounds, and to a certain extent their descendants, often prefer that care arrangements are managed within the family. Although caring for family members may be personally satisfying, it can also be a source of distress. This study explores the motivations of care among female family caregivers of older Pakistani migrants within the Norwegian Ahmadiyya community. Our data are derived from a qualitative study including individual and group interviews with 19 female family caregivers. The study participants were aged 25-62 and resided in Norway. The interviews were conducted in Urdu and English and later transcribed verbatim in English. Our findings resulted in four main themes regarding motivations for caregiving: (1) \"Who else, if not the family?\": care perceived as a family obligation; (2) The divine duty of caregiving; (3) Women are better at caregiving; and (4) \"What will people say?\": fear of judgments. The intersection of culture, religion, gender, and migration shaped caregiving as a moral practice, and those providing care were considered individuals with high moral identity. The moral identity assigned to the role of family caregivers appears to exacerbate rather than alleviate the care burden on women of migrant origin. Understanding the motivations for caregiving can shed light on ways in which better support can be provided to ethnic minority families with aging members.</p>","PeriodicalId":48437,"journal":{"name":"Qualitative Health Research","volume":" ","pages":"992-1006"},"PeriodicalIF":2.6,"publicationDate":"2025-08-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12202816/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142584447","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"\"Instead of Building More Buildings, They Should Plant More Trees\", a Photovoice Study of Determinants of Happiness and Sadness Among East London Adolescents.","authors":"Madison Stephens, Nargis Rahmanfard, Maev Conneely, Victoria Bird, Alec Knight, Paul Heritage, Laiba Waseem, Sopnil Nath, Ariba Ansar, Rida Choudhury, Holly Larkin, Wahaj Ali, Mariam Lassoued, Lakshana Vasanthakumar, Meagan Jade Sanchez, Ali Ullah, James Richard Kiernan, Roxanne De Padua-Johnson, Amsika Kandasamy","doi":"10.1177/10497323241291667","DOIUrl":"10.1177/10497323241291667","url":null,"abstract":"<p><p>Globally, mental health problems in adolescents, alongside associated morbidity and mortality, have never been higher. Local living, working and environmental conditions, socio-economics, and intra-individual and inter-individual processes impact mental health. The risk of developing mental health problems is higher in certain areas, including East London. However, limited research explores East London adolescents' experiences of mental health. An in-depth and locally situated understanding of determinants shaping East London adolescents' happiness and sadness is needed. This study used Photovoice, a qualitative method within a community-based participatory research methodology, to generate photographic and textual data, which was analyzed using reflexive thematic analysis. This method allows participants to be part of knowledge production and authors to present the data. Our findings underscore the bidirectional interplay between environmental factors and adolescents' happiness and sadness. Gratitude for nature was described as increasing happiness: adolescents connected to nature to memories, appreciation, and leisure opportunities. Adolescents were concerned about the fragility of nature in response to urban development. The urban environment was perceived as imposing, inspiring, and offering therapeutic benefits blighted by pollution. Beautiful areas were described as paradisical and lacking, revealing urban development and economic productivity disparities. Our research documents the voices of an under-researched group, revealing novel insights while empowering adolescents as co-producers of mental health research. This study indicates participatory research is valuable for granting adolescents autonomy and addressing misrepresentation. The findings implicate multiple stakeholders, including \"Health in All Policies.\" By deepening our understanding of adolescent mental health in East London, our study can be leveraged to bolster the effectiveness and relevance of interventions for East London adolescents.</p>","PeriodicalId":48437,"journal":{"name":"Qualitative Health Research","volume":" ","pages":"1068-1090"},"PeriodicalIF":2.6,"publicationDate":"2025-08-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12202830/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142630747","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Narrative Coherence and Relational Agency: Unraveling Transitions Into and Out of Alberta Correctional Facilities for People Living With HIV.","authors":"Morgan Wadams, Jana Grekul, Sean Lessard, Anthony de Padua, Vera Caine","doi":"10.1177/10497323241278537","DOIUrl":"10.1177/10497323241278537","url":null,"abstract":"<p><p>Incarcerated populations in Canada face significant health and social challenges during transitions into and out of correctional facilities. These transitions around facilities pose disproportionate barriers to care for people living with HIV. Further research is crucial to comprehend these challenges and reimagine care concepts for people who experience structural marginalization. In this article, experiences of transitions into and out of Alberta correctional facilities for people living with HIV are explored using narrative inquiry. Conducted in a Western Canadian city from 2021 to 2022, the inquiry revolved around two men living with HIV and a history of incarceration. Through co-creating field texts and narrative accounts, their unique experiences of transitions were explored through a collaborative process of analysis. Narrative threads from Bruce and Kyle showcased a lack of narrative coherence and the presence of tensions in their lives, while also emphasizing relational agency. The findings provide avenues for health, social, and justice practitioners who support and care for individuals living with HIV and a history of incarceration to think differently about transitions. By highlighting the importance of attending to the unique identities of individuals and relationships from a position of relational agency, the study advances our understanding of transitions. Recommendations for practice and policy include (a) fostering relational agency among practitioners; (b) challenging conventional views of transitions around correctional settings; (c) incorporating peer-based programming into support services; and (d) reconsidering health, justice, and social systems to better support communities disproportionately affected by high rates of incarceration and HIV.</p>","PeriodicalId":48437,"journal":{"name":"Qualitative Health Research","volume":" ","pages":"1019-1036"},"PeriodicalIF":2.6,"publicationDate":"2025-08-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12202835/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142584422","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Shaping Prostate Cancer Across the Care Continuum Among Black Men: The Role of Culture and Family Dynamics.","authors":"Dottington Fullwood, Shannon Pressey, Opeyemi Bolajoko, JoAnn Oliver, Jada Melton, Quincy Wimberly, Mary Ellen Young, Folakemi T Odedina","doi":"10.1177/10497323251359953","DOIUrl":"https://doi.org/10.1177/10497323251359953","url":null,"abstract":"<p><p>Prostate cancer represents a significant health disparity among Black men, who experience higher rates of both incidence and mortality compared to other racial groups. Understanding the complex interplay of cultural, familial, and socioeconomic factors that shape health behaviors is essential for the development of effective interventions. This study sought to explore the lived experiences of ethnically diverse Black men with prostate cancer, focusing on how cultural context, family history, and spirituality influence health decisions and engagement with care. Through a secondary analysis of existing data, personal narratives from 32 Black prostate cancer survivors, primarily U.S.-born Black men, were examined to identify recurring themes that revealed the multifaceted challenges and motivations these men face. The analysis uncovered eight key themes that reflect a complex landscape, including medical distrust fueled by cultural perceptions and past negative experiences, the dual influence of family history on seeking early care versus hesitation, and the role of spirituality as a guiding force in health decisions. Additionally, financial constraints and limited access to comprehensive health information emerged as critical factors affecting engagement with preventive care. The findings underscore the need for culturally sensitive approaches that acknowledge the diverse experiences of Black men in their prostate cancer journey. By understanding the influence of family dynamics, spirituality, and socioeconomic challenges, future research can create targeted interventions that promote informed decision-making and help reduce disparities in prostate cancer outcomes.</p>","PeriodicalId":48437,"journal":{"name":"Qualitative Health Research","volume":" ","pages":"10497323251359953"},"PeriodicalIF":2.4,"publicationDate":"2025-07-31","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144761846","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"A Qualitative Investigation Into the Experiences of Medicinal Cannabis Use Among Chronic Pain and PTSD Patients in Israel.","authors":"Or Gliksberg, Amany Hulaihel, Sharon R Sznitman, Silviu Brill, Ben H Amit, Shaul Lev-Ran, Talma Kushnir, Daniel Feingold","doi":"10.1177/10497323251361328","DOIUrl":"https://doi.org/10.1177/10497323251361328","url":null,"abstract":"<p><p>In the last two decades, the use of cannabis for medical purposes has become legal in many countries and its use is steadily increasing. One of the most frequently cited reasons for prescribing medicinal cannabis (MC) is management of chronic pain, and in recent years MC has also been used as a treatment of psychiatric conditions such as post-traumatic stress disorder (PTSD). However, little is known about patients' experiences of the long-term physiological and psycho-social effects of MC use. In this study, we focused on Israeli MC patients' experiences in order to gain further understanding of the long-term effects of MC and explore narratives evolving from chronic pain and PTSD patients regarding their MC treatment. In-depth semi-structured interviews were conducted among participants prescribed MC for chronic pain or PTSD (<i>n</i> = 25), predominantly men. Thematic analysis was applied to characterize content, semantics, experience, and narratives of participants regarding their MC use. Two main themes were developed: (1) <i>Coping mechanisms</i> related to the adverse effects of MC use, which included <i>Concealment, Justification, Protective behavioral</i> strategies, and <i>Rejection of \"pothead\" identity</i>; and (2<i>) Utilization</i> of MC's positive effects, which included <i>Forget/Disconnect, Helplessness/Despair</i>, and <i>Camaraderie against authorities</i>. MC patients described coping strategies with experienced negative effects of MC use and utilization of MC treatment for various psychiatric, psychological, and social needs.</p>","PeriodicalId":48437,"journal":{"name":"Qualitative Health Research","volume":" ","pages":"10497323251361328"},"PeriodicalIF":2.4,"publicationDate":"2025-07-30","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144754914","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"The Stories We Tell: Black Women's Narratives of Agency, (Dis)Respect, and Resistance During Prenatal Care.","authors":"Nicole L Harris, Kimberly Fryer, Aisha Durham","doi":"10.1177/10497323251357215","DOIUrl":"https://doi.org/10.1177/10497323251357215","url":null,"abstract":"<p><p>More than 30% of Black women report experiencing disrespect and mistreatment, such as being dismissed, ignored, or verbally abused, and up to 40% endure racism during pregnancy, labor, and delivery. Epidemiological studies of disrespectful care are beneficial to understanding the scope of the problem but fall short of exploring how mistreatment can reproduce historical harm and function to control, coerce, and render Black women invisible during their care. This qualitative study used narrative inquiry and Black Feminist Thought to examine stories of (dis)respectful care for narratives of power, agency, and oppression at two Central Florida clinics. Semi-structured phone interviews with 16 Black women who were 3-12 weeks postpartum were conducted. Five meta-themes emerged: (1) intersectional oppression deepens dehumanization; (2) institutional conditions create power imbalances; (3) patient resistance demonstrates agency; (4) provider training reinforces medicalization; and (5) an ethic of care ensures visibility. These findings highlighted Black women's unique social location in the United States, their current and historical relationship to power within healthcare institutions, and their will to resist these forces. Resistance occurred when Black women faced invisibility, misrecognition, and paternalistic relationships with providers. However, for some women, prenatal care was liberatory and created an environment where they were seen, valued, and trusted.</p>","PeriodicalId":48437,"journal":{"name":"Qualitative Health Research","volume":" ","pages":"10497323251357215"},"PeriodicalIF":2.4,"publicationDate":"2025-07-30","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144745555","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Moving Beyond Red Flags for Imposter Participants: A Novel Screening Strategy to Enhance Data Integrity.","authors":"Yan S Zhu, Abigail Wilpers, Kara L Hansen, Judith L M McCoyd","doi":"10.1177/10497323251359207","DOIUrl":"10.1177/10497323251359207","url":null,"abstract":"<p><p>Health research guides health practice and policy; therefore, data integrity is of the utmost importance. The use of incentives to compensate respondents for their discomfort and inconvenience in sharing their lived experiences has unfortunately drawn imposter participants, posing significant threats to the trustworthiness and transferability of qualitative data. A growing literature provides \"red flags\" and methods for identifying imposters, such as inconsistent narratives, suspicious IP addresses, and duplicate submission, but little systematic guidance exists for how to determine which data to discard and what to keep once one suspects imposters provided data. Drawing on a study where imposters were suspected early in the process of interviewing, despite many precautions taken, we propose a structured data verification strategy. This strategy involves retrospectively contacting previously interviewed participants to confirm their authenticity without soliciting additional private health information. Further, we suggest how this same method can be used proactively as part of an enhanced screening process just prior to officially starting the interview as a way of further enhancing data integrity.</p>","PeriodicalId":48437,"journal":{"name":"Qualitative Health Research","volume":" ","pages":"10497323251359207"},"PeriodicalIF":2.4,"publicationDate":"2025-07-30","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144754915","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}