Aids Care-Psychological and Socio-Medical Aspects of Aids/hiv最新文献_第2页

Navigating the dual role of physician and clinician investigator in end-of-life research.

IF 1.2 4区医学

Aids Care-Psychological and Socio-Medical Aspects of Aids/hiv Pub Date : 2025-04-01 Epub Date: 2025-02-03 DOI: 10.1080/09540121.2025.2458629

Robert Deiss, Sara Gianella, Cheryl Dullano, Stephanie Solso, Susan J Little, Andy Kaytes, Jeff Taylor, Patricia K Riggs, Elizabeth Hastie, Davey Smith, Karine Dubé

{"title":"Navigating the dual role of physician and clinician investigator in end-of-life research.","authors":"Robert Deiss, Sara Gianella, Cheryl Dullano, Stephanie Solso, Susan J Little, Andy Kaytes, Jeff Taylor, Patricia K Riggs, Elizabeth Hastie, Davey Smith, Karine Dubé","doi":"10.1080/09540121.2025.2458629","DOIUrl":"10.1080/09540121.2025.2458629","url":null,"abstract":"ABSTRACTThe challenges of recruiting participants for end-of-life (EOL) research are multifaceted. The Last Gift study at the University of California San Diego, an observational study for people with HIV (PWH) with terminal illness, appeals to the altruism of potential participants and community of allied health providers. Involvement of the latter group highlights a potential ethical conundrum of a \"dual role\", as primary care providers (PCPs) navigate between clinical responsibilities to their patients, along with opportunities to discuss clinical research. To explore this conundrum and better understand study recruitment dynamics of the Last Gift study, we analyzed screening and enrollment data for a 12-month period (2022-2023). We found that PCPs can play an important role in the recruitment of PWH into EOL research, as having PCPs discuss the study with potential participants yielded more successful enrollments than contact by the study team alone. Our manuscript proposes considerations to mitigate dual role conflicts, including ensuring ethical awareness, prioritizing clinical care and offering strategies to involve PCPs in recruitment without causing unnecessary burden or coercion. These insights aim to guide similar EOL research efforts, emphasizing the need for balanced, ethical recruitment processes in the sensitive context of terminal illness.","PeriodicalId":48370,"journal":{"name":"Aids Care-Psychological and Socio-Medical Aspects of Aids/hiv","volume":" ","pages":"618-625"},"PeriodicalIF":1.2,"publicationDate":"2025-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11955293/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143123826","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Understanding viral non-suppression among people with HIV engaged in a mobile health program.

IF 1.2 4区医学

Aids Care-Psychological and Socio-Medical Aspects of Aids/hiv Pub Date : 2025-04-01 Epub Date: 2025-01-28 DOI: 10.1080/09540121.2025.2457504

Hannah Zaveri, Lisa Mayevsky, Tabor E Flickinger, Helen Reed, Karen Ingersoll

{"title":"Understanding viral non-suppression among people with HIV engaged in a mobile health program.","authors":"Hannah Zaveri, Lisa Mayevsky, Tabor E Flickinger, Helen Reed, Karen Ingersoll","doi":"10.1080/09540121.2025.2457504","DOIUrl":"10.1080/09540121.2025.2457504","url":null,"abstract":"By consistently taking medication, people with HIV (PWH) can attain viral suppression, improving their health and reducing transmission risk. PositiveLinks (PL) is a clinic-deployed mobile platform designed to improve engagement in care for PWH by enabling them to track their medications, connect with peers, and communicate with providers. This project investigated the experience of PL users who had recent periods of viral non-suppression to understand how these high-risk episodes can be predicted and prevented. Fifteen participants completed mental health measures and in-depth interviews. Two members of the study team independently coded interview transcripts and resolved any discrepancies. The codebook was developed iteratively until thematic saturation and intercoder reliability were achieved. Participants revealed mental health and substance use concerns. Frequent stressors highlighted were relationship challenges, financial difficulties, and unstable living situations. Relationship challenges were a common barrier to care, along with competing priorities, transportation and finances. In contrast, positive relationships, motivation, positive interactions with clinic staff, and social programs facilitated regaining viral suppression. Participants highlighted the importance of strong patient-provider relationships and social support in overcoming barriers to care. We identified factors that impact medication adherence, which will inform efforts to mitigate and prevent viral non-suppression and thus improve health outcomes.","PeriodicalId":48370,"journal":{"name":"Aids Care-Psychological and Socio-Medical Aspects of Aids/hiv","volume":" ","pages":"608-617"},"PeriodicalIF":1.2,"publicationDate":"2025-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143053907","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

"I'm too young to be frail!". HIV and attitudes on ageing, quality of life and being assessed for frailty.

IF 1.2 4区医学

Aids Care-Psychological and Socio-Medical Aspects of Aids/hiv Pub Date : 2025-04-01 Epub Date: 2025-02-03 DOI: 10.1080/09540121.2025.2458633

Denise Cummins, Daniel O'Raw, Kurt Andersson, Samantha Bennett

{"title":"\"I'm too young to be frail!\". HIV and attitudes on ageing, quality of life and being assessed for frailty.","authors":"Denise Cummins, Daniel O'Raw, Kurt Andersson, Samantha Bennett","doi":"10.1080/09540121.2025.2458633","DOIUrl":"10.1080/09540121.2025.2458633","url":null,"abstract":"The attitudes of People Living with HIV (PLWH) towards frailty and maintaining quality of life (QOL) whilst ageing is largely unknown. This study examines how PLWH perceive being assessed for frailty and ageing, and the importance of QOL as they age. 40 semi-structured interviews were conducted. Many of the participants voiced that ageing was unexpected and were unprepared for this. Main themes for ageing included self-determination and loss of independence; concern for the future including care provision, services required for ageing and fear of admission into aged care. Themes associated with frailty were, future loss of physical function and the assessment process reflecting both positive (proactive) and negative (confronting) responses regarding ageing and frailty as many participants felt they were too young to be considered frail. Themes for quality of life included the importance of self-expression and independence; connection to others, having adequate finances to enjoy life, having baseline needs met such as housing and having a positive outlook on the future. This study highlighted the importance of talking about ageing and how frailty is framed in discussions to develop individualised strategies for PLWH to decrease risk factors for frailty.","PeriodicalId":48370,"journal":{"name":"Aids Care-Psychological and Socio-Medical Aspects of Aids/hiv","volume":" ","pages":"626-634"},"PeriodicalIF":1.2,"publicationDate":"2025-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143081687","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

B-OK: a visual and tactile tool for improving HIV mental models in a United States urban center.

IF 1.2 4区医学

Aids Care-Psychological and Socio-Medical Aspects of Aids/hiv Pub Date : 2025-04-01 Epub Date: 2025-02-04 DOI: 10.1080/09540121.2025.2458643

Aaron Richterman, Tamar Klaiman, Daniel Palma, Eric Ryu, Laura Schmucker, Katherine Villarin, Gabrielle Grosso, Kathleen A Brady, Harsha Thirumurthy, Alison Buttenheim

{"title":"B-OK: a visual and tactile tool for improving HIV mental models in a United States urban center.","authors":"Aaron Richterman, Tamar Klaiman, Daniel Palma, Eric Ryu, Laura Schmucker, Katherine Villarin, Gabrielle Grosso, Kathleen A Brady, Harsha Thirumurthy, Alison Buttenheim","doi":"10.1080/09540121.2025.2458643","DOIUrl":"10.1080/09540121.2025.2458643","url":null,"abstract":"Lack of adherence to antiretroviral therapy (ART) and poor retention in care are significant barriers to ending HIV epidemics. Treatment adherence support effectiveness may be constrained by limited understanding of the benefits of ART. We evaluated a visual and tactile tool, the B-OK Bottles (\"B-OK\"), that incorporates human-centered design and behavioral economics principles and is designed to change and strengthen mental models about HIV. We enrolled 118 adults living with HIV who were clients of medical case managers in Philadelphia. All participants completed a pre-intervention survey, a B-OK intervention and a post-intervention survey. A subset (N = 52) completed qualitative interviews. Co-primary outcomes were differences pre- to post-intervention for 11 questions about HIV awareness, knowledge, attitudes, intentions and perception. Qualitative interviews were assessed using an integrated analysis approach. Participants had a median age of 55 years (IQR 47-60), 65% were male sex (N = 77), and 72% identified as non-Hispanic Black (N = 85). B-OK was associated with improved awareness and understanding of HIV terminology, changes in HIV treatment attitudes, and increased intention to rely on HIV treatment for transmission prevention. Qualitative interview results aligned with the quantitative findings. These findings provide a strong rationale to further evaluate the potential for B-OK to improve HIV treatment adherence support.","PeriodicalId":48370,"journal":{"name":"Aids Care-Psychological and Socio-Medical Aspects of Aids/hiv","volume":" ","pages":"565-576"},"PeriodicalIF":1.2,"publicationDate":"2025-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11955294/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143123824","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Experiences with HIV stigma, among other barriers, in oral healthcare settings in Türkiye.

IF 1.2 4区医学

Aids Care-Psychological and Socio-Medical Aspects of Aids/hiv Pub Date : 2025-04-01 Epub Date: 2025-01-28 DOI: 10.1080/09540121.2025.2458632

Sinan Kınay, Şevkat Bahar Özvarış

{"title":"Experiences with HIV stigma, among other barriers, in oral healthcare settings in Türkiye.","authors":"Sinan Kınay, Şevkat Bahar Özvarış","doi":"10.1080/09540121.2025.2458632","DOIUrl":"10.1080/09540121.2025.2458632","url":null,"abstract":"Oral healthcare settings can be a challenging environment for people with HIV. Combined with problematic insurance policies, insufficient health literacy, and higher treatment fees, HIV stigma contributes to barriers when accessing oral healthcare. We conducted a descriptive study via an online survey with open-ended questions to understand the experiences of people with HIV in oral healthcare settings. The survey was administered by non-governmental organizations. Thematic analysis was used to analyze the data via a critical realist approach. Seventy-five participants responded to survey between August and September 2023. Thematic analysis yielded three main themes: occurrences of stigma in healthcare, coping with HIV stigma and anxiety, and barriers beyond stigma. Participants reported a problematic understanding of HIV literature and stigma among dentists, which was manifested as excessive precaution measures, denial of care, unnecessary referrals, gossiping, discriminatory remarks and disclosure of HIV status without consent. This was reflected in people with HIV as self-stigma, fear of healthcare workers and avoidance of healthcare services. Advancements in dental education and post-qualification training are needed in infection control and ethics, while people with HIV need health education to preserve their rights and sustain good health and well-being to prevent adverse outcomes.","PeriodicalId":48370,"journal":{"name":"Aids Care-Psychological and Socio-Medical Aspects of Aids/hiv","volume":" ","pages":"669-684"},"PeriodicalIF":1.2,"publicationDate":"2025-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143060920","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Perinatal HIV exposure and infection and child executive function.

IF 1.2 4区医学

Aids Care-Psychological and Socio-Medical Aspects of Aids/hiv Pub Date : 2025-04-01 Epub Date: 2025-02-10 DOI: 10.1080/09540121.2025.2458642

Sarah Brewer, Nicole Talge, Claudia Holzman, Alla Sikorskii, Sarah Zalwango, Amara Ezeamama

{"title":"Perinatal HIV exposure and infection and child executive function.","authors":"Sarah Brewer, Nicole Talge, Claudia Holzman, Alla Sikorskii, Sarah Zalwango, Amara Ezeamama","doi":"10.1080/09540121.2025.2458642","DOIUrl":"10.1080/09540121.2025.2458642","url":null,"abstract":"ABSTRACTIn the combined antiretroviral therapy era, limited information exists about cognitive function in children exposed perinatally to human immunodeficiency virus (HIV). To address this, we evaluated executive function (EF) among groups with known HIV exposure status during the perinatal period and at ages 6-10 years: children HIV-infected perinatally (CPHIV, n = 99), children born to HIV-infected mothers, but were HIV negative at enrollment (CPHEU, n = 97), and HIV unexposed, uninfected community controls (CHUU, n = 98). Caregivers completed the Behavior Rating Inventory of Executive Function (BRIEF) to assess two dimensions of child EF (BRI: Behavioral Regulation Index; MCI: Metacognition Index) and a combination of these dimensions (General Executive Composite). We derived Z-scores for BRIEF measures using the CHUU group as the reference and used generalized linear models to estimate mean differences among the groups. The CPHIV and CPHEU groups did not differ from the CHUU group on the GEC or MCI. However, the CPHIV group scored lower than CHUU on the BRI, which is indicative of better functioning in this domain (β = -0.40, 95% CI -0.77, -0.03). Results were unaffected following adjustment. EF scores did not differ substantially across perinatal HIV exposure groups, though we observed evidence that CPHIV may thrive in the BRI domain.","PeriodicalId":48370,"journal":{"name":"Aids Care-Psychological and Socio-Medical Aspects of Aids/hiv","volume":" ","pages":"555-564"},"PeriodicalIF":1.2,"publicationDate":"2025-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143391940","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Identification of risk factors for suboptimal adherence in people living with HIV through measurement of medication possession ratio: a cross-sectional study.

IF 1.2 4区医学

Aids Care-Psychological and Socio-Medical Aspects of Aids/hiv Pub Date : 2025-04-01 Epub Date: 2025-01-29 DOI: 10.1080/09540121.2025.2457503

Julieth Carolina Castillo-Cañón, Diana Consuelo Acero Torres, Ángela Viviana Pérez Gómez

{"title":"Identification of risk factors for suboptimal adherence in people living with HIV through measurement of medication possession ratio: a cross-sectional study.","authors":"Julieth Carolina Castillo-Cañón, Diana Consuelo Acero Torres, Ángela Viviana Pérez Gómez","doi":"10.1080/09540121.2025.2457503","DOIUrl":"10.1080/09540121.2025.2457503","url":null,"abstract":"The most significant progress in addressing the HIV/AIDS epidemic has been the development of antiretroviral therapy (ART). However, ensuring a high degree of treatment adherence is necessary to prevent resistance and disease progression. We conducted a cross-sectional study to evaluate adherence to ART through the calculation of the medication possession ratio (MPR) and to identify risk factors for suboptimal adherence in a cohort of HIV-positive patients receiving care at a Colombian healthcare institution across 16 cities. Records of 12,145 users were analyzed, and a multivariate logistic regression model was performed, considering optimal adherence (MPR > = 95%) versus suboptimal adherence (MPR < 95%) as the reference. Suboptimal adherence to ART was identified in 29% of users. Residence region, presence of HIV-defining illnesses, chronic kidney disease (CKD), co-infections such as hepatitis C, tuberculosis, and sexually transmitted infections, treatment duration of more than 5 years, and non-suppressed viral load were identified as risk factors for non-adherence. This underscores the need to identify interventions for those vulnerable groups to minimize the likelihood of non-adherence and to intervene in care models focused on the medical needs of these patients.","PeriodicalId":48370,"journal":{"name":"Aids Care-Psychological and Socio-Medical Aspects of Aids/hiv","volume":" ","pages":"577-587"},"PeriodicalIF":1.2,"publicationDate":"2025-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143060924","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

HIV and hospitals between knowledge and stigma.

IF 1.2 4区医学

Aids Care-Psychological and Socio-Medical Aspects of Aids/hiv Pub Date : 2025-04-01 Epub Date: 2025-01-30 DOI: 10.1080/09540121.2025.2453123

Rosaria Iardino, Luisa Brogonzoli, Elisa Sala, Mario Cascio, Antonella d' Arminio Monforte

{"title":"HIV and hospitals between knowledge and stigma.","authors":"Rosaria Iardino, Luisa Brogonzoli, Elisa Sala, Mario Cascio, Antonella d' Arminio Monforte","doi":"10.1080/09540121.2025.2453123","DOIUrl":"10.1080/09540121.2025.2453123","url":null,"abstract":"The advent of effective antiretroviral treatments has led to the reclassification of HIV as a chronic disease for those on an effective treatment plan. However, the well-being of individuals with HIV is adversely affected by a number of factors, including stigma and discrimination, which hinder access to healthcare. To address this issue, it is first necessary to understand the current levels of knowledge and stigma surrounding HIV, and consequently, HIV Outcomes Italy has created a survey with the aim of assessing these levels.A total of 914 healthcare professionals, comprising clinicians, obstetricians, nurses and LPNs (licensed practical nurses) participated in an anonymous online survey with questions pertaining to knowledge on HIV, stigma, and training on STIs (sexually transmitted infections). The survey was conducted in Italy between August 2022 and February 2023.The results show a reasonable level of knowledge regarding HIV-related topics among healthcare workers. However, a notable minority exhibited deficiencies. The findings indicate the presence of stigma, both in the form of observed discriminatory practices and in the form of personal enactment of discriminatory behaviour.The results of the survey indicate an inverse relationship between knowledge and stigma, emphasising the need for ongoing and specific education on HIV.","PeriodicalId":48370,"journal":{"name":"Aids Care-Psychological and Socio-Medical Aspects of Aids/hiv","volume":" ","pages":"654-668"},"PeriodicalIF":1.2,"publicationDate":"2025-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143069007","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Disparities in HIV testing, STI testing, and associated risk factors in high school-aged youth: findings from the youth risk behavior survey.

IF 1.2 4区医学

Aids Care-Psychological and Socio-Medical Aspects of Aids/hiv Pub Date : 2025-04-01 Epub Date: 2025-02-02 DOI: 10.1080/09540121.2025.2458637

Ronald D Williams, James Matthew Bishop, Jeff M Housman

引用次数: 0

Food consumption and cardiovascular risk in children and adolescents living with HIV: a systematic review.

IF 1.2 4区医学

Aids Care-Psychological and Socio-Medical Aspects of Aids/hiv Pub Date : 2025-04-01 Epub Date: 2025-01-31 DOI: 10.1080/09540121.2025.2456675

Monyque H T de Jesus Espinosa, Maria I S de Andrade, Maria S M da Silva, Yara M F Moreno, Luiz R A de Lima

{"title":"Food consumption and cardiovascular risk in children and adolescents living with HIV: a systematic review.","authors":"Monyque H T de Jesus Espinosa, Maria I S de Andrade, Maria S M da Silva, Yara M F Moreno, Luiz R A de Lima","doi":"10.1080/09540121.2025.2456675","DOIUrl":"10.1080/09540121.2025.2456675","url":null,"abstract":"ABSTRACTThe aim of this systematic review was to summarize the dietary intake of children and adolescents living with HIV and its association with cardiovascular risk factors. PubMed/MEDLINE, Scopus, Web of Science, BIREME and LILACS were searched for original observational studies. The studies were extracted between June and August 2021, in addition to a manual search of references. Twelve studies involving 1,805 participants aged 6.5 to 17.3 years were included. An association between energy intake, low sugar and fat intake and the presence of lipodystrophy syndrome was reported in 1 of the 12 (8.3%) studies, between fat intake and plasma lipid levels in 1 (8.3%), and between low fiber intake and high z-scores for BMI in 1 (8.3%); there was a positive correlation between cholesterol intake and plasma triglyceride levels in 1 study (8.3%). In conclusion, a dietary pattern of low consumption of fruits and vegetables was identified, but few studies have reported associations between dietary intake and cardiovascular risk factors. Thus, there is a need for nutritional guidance strategies aimed at changing inappropriate eating habits in order to reduce cardiovascular risk factors in this population.","PeriodicalId":48370,"journal":{"name":"Aids Care-Psychological and Socio-Medical Aspects of Aids/hiv","volume":" ","pages":"535-545"},"PeriodicalIF":1.2,"publicationDate":"2025-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143069006","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0