Scandinavian Journal of Caring Sciences最新文献

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Traces of spiritual care in nursing records: A qualitative study of cancer care. 护理记录中的精神关怀痕迹:癌症护理定性研究。
IF 1.9 4区 医学
Scandinavian Journal of Caring Sciences Pub Date : 2024-08-26 DOI: 10.1111/scs.13294
Ingerd Irgens Hynnekleiv, Tove Giske, Kristin Heggdal
{"title":"Traces of spiritual care in nursing records: A qualitative study of cancer care.","authors":"Ingerd Irgens Hynnekleiv, Tove Giske, Kristin Heggdal","doi":"10.1111/scs.13294","DOIUrl":"https://doi.org/10.1111/scs.13294","url":null,"abstract":"<p><strong>Background: </strong>Serious illnesses, such as cancer, bring the threat of loss of health and life closer. This may compromise spiritual well-being. Addressing patients' spirituality is essential in nursing care. Therefore, nursing records should reflect, clarify, and enable spiritual-care follow-up.</p><p><strong>Aim: </strong>The aim of this study is to explore how spiritual care is expressed in nursing records in cancer care.</p><p><strong>Method: </strong>This study adopted a hermeneutic approach, and a qualitative content analysis was used to explore the nursing records of 43 inpatients with cancer from Norway. Ethical approval was obtained, and the privacy of the patients and healthcare professionals was safeguarded in line with the applicable legislation.</p><p><strong>Results: </strong>Spiritual care was rarely reported in the nursing records (i.e., the nursing care plans and the progress notes). However, traces of spiritual care appeared in the records of everyday nursing. Four themes emerged from the analysis: (1) relieving life pain and mitigating loss, (2) facilitating faith support, (3) welcoming family and friends, and (4) sustaining normality and sharing joy.</p><p><strong>Conclusions: </strong>This study showed that the nursing records of cancer care seldom expressed spiritual care concerning patients' life pain, loss, or faith support. Increasing nurses' competencies in mapping, documenting, and attending to spiritual care, as well as overcoming the limitations of documentation systems, could help address the spiritual needs of cancer patients.</p>","PeriodicalId":48171,"journal":{"name":"Scandinavian Journal of Caring Sciences","volume":null,"pages":null},"PeriodicalIF":1.9,"publicationDate":"2024-08-26","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142074175","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Effect of post-discharge online kangaroo care training on breastfeeding self-efficacy in mothers with preterm infants: A randomised controlled study. 出院后在线袋鼠式护理培训对早产儿母亲母乳喂养自我效能的影响:随机对照研究
IF 1.9 4区 医学
Scandinavian Journal of Caring Sciences Pub Date : 2024-08-19 DOI: 10.1111/scs.13293
Serap Kaynak, Sibel Ergün
{"title":"Effect of post-discharge online kangaroo care training on breastfeeding self-efficacy in mothers with preterm infants: A randomised controlled study.","authors":"Serap Kaynak, Sibel Ergün","doi":"10.1111/scs.13293","DOIUrl":"https://doi.org/10.1111/scs.13293","url":null,"abstract":"<p><strong>Background: </strong>Preterm newborns face many health problems due to their incomplete intrauterine development and the immaturity of their systems. One of these problems concerns nutrition. This study aimed to determine the effect of online kangaroo care (KC) training provided post-discharge on breastfeeding self-efficacy in mothers with preterm infants.</p><p><strong>Methods: </strong>This research was conducted as an experimental study with a randomised control group. Two groups were formed: kangaroo care and control. The sample of the study consisted of 68 mothers of preterm infants. The mothers in the KC group were given online KC training after discharge from the hospital. The mothers were asked to perform KC regularly, at least once a day, for 20 min, 7 days a week. The Breastfeeding Self-Efficacy Scale was administered to the mothers before and after training.</p><p><strong>Results: </strong>The results of the study revealed that the difference between the pre-test and post-test breastfeeding self-efficacy scores was statistically significantly higher among the mothers who received online KC training compared with the controls (p < 0.001).</p><p><strong>Conclusion: </strong>According to the results of our research carried out in this context, the mothers who received online KC training had increased breastfeeding self-efficacy compared to those in the control group.</p>","PeriodicalId":48171,"journal":{"name":"Scandinavian Journal of Caring Sciences","volume":null,"pages":null},"PeriodicalIF":1.9,"publicationDate":"2024-08-19","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142001090","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Nurses' values when caring for persons suffering from substance use disorder: A hermeneutical study. 护士在护理药物使用障碍患者时的价值观:诠释学研究。
IF 1.9 4区 医学
Scandinavian Journal of Caring Sciences Pub Date : 2024-08-13 DOI: 10.1111/scs.13290
Kari Marie Thorkildsen, Linda Rykkje, Kari Kaldestad
{"title":"Nurses' values when caring for persons suffering from substance use disorder: A hermeneutical study.","authors":"Kari Marie Thorkildsen, Linda Rykkje, Kari Kaldestad","doi":"10.1111/scs.13290","DOIUrl":"https://doi.org/10.1111/scs.13290","url":null,"abstract":"<p><strong>Background: </strong>Persons suffering from a substance use disorder (SUD) in need of help from low-threshold centres have complex and severe conditions together with uncontrolled use of mainly illicit substances. Their sufferings are all-encompassing and demand ethically aware nurses with competence to take care of somatic, existential and spiritual needs.</p><p><strong>Aim: </strong>To explore and describe a new understanding of the ethical and ontological values upon which nurses base their work when caring for persons suffering from SUD.</p><p><strong>Methodology: </strong>The study had a hermeneutical approach. A focus-group interview was conducted with five nurses working at a low-threshold centre in Norway. Data analysis was carried out through a hermeneutical reading based on Gadamer's hermeneutics.</p><p><strong>Ethical considerations: </strong>The study was approved by the Norwegian Agency for Shared Services in Education and Research (SIKT). Oral and written consent was obtained from the participants.</p><p><strong>Results: </strong>The hermeneutical reading revealed three dimensions; A wish to be useful; Nurses' motive for caring for persons suffering from SUD is a wish to be useful and needed. Nurses are fighting a battle against injustice and stigmatisation. Neighbourly love, the core value; Neighbourly love serves as the basis for the nurses` work. Nurses feel humble towards their clients, they feel privileged to have the opportunity to help others through compassionate care. The value of being clients` advocate; Nurses are trying to ensure that clients receive the help they need. A large part of nurses` job is to monitor and take care of the clients` condition. This involves working close to death, trying to save lives.</p><p><strong>Conclusion: </strong>Nurses wish to care in accordance with their ethos of usefulness. Sacrifice stands out as the ultimate form of neighbourly love, empowering nurses with moral authority to act as advocates for their clients.</p>","PeriodicalId":48171,"journal":{"name":"Scandinavian Journal of Caring Sciences","volume":null,"pages":null},"PeriodicalIF":1.9,"publicationDate":"2024-08-13","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141972108","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
First-line managers´ perceptions of missed nursing care in community health care for older people-A phenomenographic study. 一线管理人员对老年人社区医疗护理中护理遗漏的看法--一项现象学研究。
IF 1.9 4区 医学
Scandinavian Journal of Caring Sciences Pub Date : 2024-08-12 DOI: 10.1111/scs.13291
Ingrid Andersson, Anna Josse Eklund, Jan Nilsson, Carina Bååth
{"title":"First-line managers´ perceptions of missed nursing care in community health care for older people-A phenomenographic study.","authors":"Ingrid Andersson, Anna Josse Eklund, Jan Nilsson, Carina Bååth","doi":"10.1111/scs.13291","DOIUrl":"https://doi.org/10.1111/scs.13291","url":null,"abstract":"<p><strong>Introduction: </strong>First-line managers in Swedish communities have responsibility for that care to older people is provided, staffing is sufficient and the budget is balanced in their unit. It is a struggle with limited resources due to a growing population in need of care. This can lead to missed nursing care. The aim was to describe first-line managers´ perceptions of missed nursing care in community health care for older people.</p><p><strong>Methods: </strong>A qualitative design with a phenomenographic approach, interviewing 24 first-line managers. Ethics approval for the study was received from the Research Ethics Committee at Karlstad University (Dnr HNT 2020/566).</p><p><strong>Results: </strong>The results are shown in six descriptive categories containing 15 perceptions. The descriptive categories are 'occurrence of missed nursing care', 'becoming aware of missed nursing care', 'reasons for missed nursing care', 'missed nursing care has consequences for the older persons', 'missed nursing care has consequences for the staff' and 'taking action to decrease missed nursing care'.</p><p><strong>Conclusions: </strong>It is important for first-line managers to become aware of the existence and reasons for missed nursing, as it has consequences for older people and staff. Managers need to take missed nursing care seriously in order to work with improvements for maintaining good quality of care and patient safety.</p>","PeriodicalId":48171,"journal":{"name":"Scandinavian Journal of Caring Sciences","volume":null,"pages":null},"PeriodicalIF":1.9,"publicationDate":"2024-08-12","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141917848","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
"He is changing, but I'm changing too": An interpretative phenomenological analysis of spouse caregivers' identity in the context of dementia. "他在变,但我也在变":对痴呆症背景下配偶照顾者身份的解释性现象学分析。
IF 1.9 4区 医学
Scandinavian Journal of Caring Sciences Pub Date : 2024-08-12 DOI: 10.1111/scs.13287
Nicolas Westrelin, Catherine Denève, Pierre Gérain, Emmanuelle Zech
{"title":"\"He is changing, but I'm changing too\": An interpretative phenomenological analysis of spouse caregivers' identity in the context of dementia.","authors":"Nicolas Westrelin, Catherine Denève, Pierre Gérain, Emmanuelle Zech","doi":"10.1111/scs.13287","DOIUrl":"https://doi.org/10.1111/scs.13287","url":null,"abstract":"<p><strong>Objective: </strong>This study explores the process through which informal caregivers, particularly spouses, construct their identity within the context of caregiving for individuals with dementia. Despite extensive research in psychology aimed at defining caregiving (e.g. tasks, consequences), few informal caregivers identify themselves as such. For instance, the affective bond shared between caregivers and care-recipients often imbues caregiving responsibilities with a sense of \"naturalness,\" especially if the care-recipient is a spouse.</p><p><strong>Methods: </strong>To investigate the nature of caregiver identity construction, eight semi-structured interviews were conducted with spouse caregivers of dementia patients. The collected data underwent interpretative phenomenological analysis (IPA).</p><p><strong>Results: </strong>Three interconnected themes emerged from the analysis: (1) Perceiving changes in my partner, which involves recognising alterations in the care-receiver's characteristics due to dementia; (2) Processing changes, encompassing the experience of grieving losses and reminiscing about the past; and (3) Perceiving changes in myself, referring to the acknowledgement of personal changes due to caregiving.</p><p><strong>Conclusion: </strong>The study emphasises the dynamic and ongoing nature of caregiver identity construction, which begins with the early recognition of changes in the care-receiver. Interestingly, spouse caregivers oscillate between their identity as a spouse and caregiver, influenced by how they process changes undergone by their partner. Contrasting with previous theories on caregivers' identity, our results focus of caregivers' perceptions rather than their relationship with the care-recipient or caregiving tasks.</p>","PeriodicalId":48171,"journal":{"name":"Scandinavian Journal of Caring Sciences","volume":null,"pages":null},"PeriodicalIF":1.9,"publicationDate":"2024-08-12","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141917847","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Parents' comprehensive health literacy and child health after attending extended home visiting in Swedish multicultural settings-A case-comparison study. 瑞典多元文化背景下父母参加扩展家访后的综合健康素养与儿童健康--案例比较研究。
IF 1.9 4区 医学
Scandinavian Journal of Caring Sciences Pub Date : 2024-08-05 DOI: 10.1111/scs.13292
Kirsi Tiitinen Mekhail, Bo Burström, Anneli Marttila, Josefin Wångdahl, Lene Lindberg
{"title":"Parents' comprehensive health literacy and child health after attending extended home visiting in Swedish multicultural settings-A case-comparison study.","authors":"Kirsi Tiitinen Mekhail, Bo Burström, Anneli Marttila, Josefin Wångdahl, Lene Lindberg","doi":"10.1111/scs.13292","DOIUrl":"https://doi.org/10.1111/scs.13292","url":null,"abstract":"<p><strong>Background: </strong>Parents' low health literacy (HL) has negative impacts on child health. Parental interventions may improve parents' HL and thus impact child health positively.</p><p><strong>Objectives: </strong>This study aimed to gain knowledge about associations between parents' comprehensive HL (CHL) and child health after an extended postnatal home visiting program in Swedish multicultural, disadvantaged settings compared to parents receiving regular child healthcare (CHC).</p><p><strong>Materials and methods: </strong>This quasi-experimental study used a case-control sampling method to recruit first-time parents through two CHC centres in Stockholm (2017-2020). Participants (N = 151) were interviewed twice through structured questionnaires when their child was <2 months and 15-18 months old. HLS-EU-Q16 assessed parents' CHL. Children's medical records (0-18 months) were reviewed regarding breastfeeding, children's exposure to smoking, language development and healthcare utilisation. Data were analysed with regression models and non-parametric tests.</p><p><strong>Results: </strong>No significant association was found between parents' CHL and child health. However, significantly fewer unplanned visits to the CHC centre were observed among children (0-18 months) in the intervention group irrespective of CHL, compared with children to parents with improved CHL in the comparison group (F = 3.856, p = 0.011).</p><p><strong>Conclusions: </strong>Postnatal home visiting interventions practicing proportional universalism and family-centred care may reduce unplanned visits within CHC in disadvantaged settings despite parents' CHL. Further studies with long-term follow-up are suggested to explore associations between parents' CHL and child health.</p><p><strong>Trial registration: </strong>As a clinical study (not a clinical trial) with appropriate ethical permission with participants' consents, this study was retrospectively registered (18 February 2020) in the ISRCTN registry (ISRCTN10336603).</p>","PeriodicalId":48171,"journal":{"name":"Scandinavian Journal of Caring Sciences","volume":null,"pages":null},"PeriodicalIF":1.9,"publicationDate":"2024-08-05","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141890491","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Effectiveness of caring behaviours course on decision-making and caring behaviours in undergraduate nursing students: An experimental study. 关爱行为课程对护理本科生决策和关爱行为的影响:一项实验研究。
IF 1.9 4区 医学
Scandinavian Journal of Caring Sciences Pub Date : 2024-08-02 DOI: 10.1111/scs.13288
Cahide Ayik, Gülşah Gürol Arslan
{"title":"Effectiveness of caring behaviours course on decision-making and caring behaviours in undergraduate nursing students: An experimental study.","authors":"Cahide Ayik, Gülşah Gürol Arslan","doi":"10.1111/scs.13288","DOIUrl":"https://doi.org/10.1111/scs.13288","url":null,"abstract":"<p><strong>Background: </strong>Although caring is a core principle of the nursing profession, students often lack the knowledge, comprehension and ability to integrate care into all aspects of nursing practice. Students may have few opportunities to practise caring behaviours on patients who create the impression of providing care and elicit a feeling of receiving care. Studies of strategies to enhance caring behaviours in nursing education are limited.</p><p><strong>Aim: </strong>This experimental study aimed to examine the effect of nursing caring behaviours course based on interactive learning strategies on the caring behaviours and decision-making abilities of nursing students.</p><p><strong>Methods: </strong>A purposive sample of 50 undergraduate students was recruited from a faculty of nursing. Students in the intervention group (n = 24) received 2 h of training per week for 14 weeks in accordance with caring behaviours course based on interactive learning strategies including discussion, brainstorming, concept mapping, reflection and simulation training. Nursing students in the control group (n = 26) received training according to other elective courses in the curriculum. Data were measured at the baseline time point, 7th week and 14th week with the Caring Behaviours Inventory and Nursing Decision-Making Instrument. Chi-square test, Mann-Whitney U-test, Friedman test and mixed repeated measures ANOVA were used to assess the data.</p><p><strong>Results: </strong>No significant difference was determined in terms of baseline caring behaviours and decision-making scores between the intervention and control groups (p > 0.05). A significant difference in caring behaviours between the two groups and time effect was not found (p > 0.05). However, there was a significant interaction between time and groups (F = 3.484, p = 0.047). There was a significant increase in the decision-making in intervention groups over time (F = 9.372, p < 0.001) and interaction between time and groups (F = 4.160, p = 0.019).</p><p><strong>Conclusions: </strong>A deliberate strategy to raise students' awareness of caring behaviours and incorporate interactive learning methods into education enhances both caring behaviours and clinical decision-making.</p>","PeriodicalId":48171,"journal":{"name":"Scandinavian Journal of Caring Sciences","volume":null,"pages":null},"PeriodicalIF":1.9,"publicationDate":"2024-08-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141876297","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Catalysts for change: A qualitative study of middle managers' perception of nursing professional competence in primary healthcare. 变革的催化剂:中层管理人员对基层医疗机构护理专业能力的定性研究。
IF 1.9 4区 医学
Scandinavian Journal of Caring Sciences Pub Date : 2024-07-29 DOI: 10.1111/scs.13286
Choi Kristian Wiik, Anne Vifladt, Sevald Høye
{"title":"Catalysts for change: A qualitative study of middle managers' perception of nursing professional competence in primary healthcare.","authors":"Choi Kristian Wiik, Anne Vifladt, Sevald Høye","doi":"10.1111/scs.13286","DOIUrl":"https://doi.org/10.1111/scs.13286","url":null,"abstract":"<p><strong>Aim: </strong>This study aims to explore middle managers' perception of nursing professional competence within the Norwegian primary healthcare service, a sector vital for managing complex patient needs.</p><p><strong>Design/methods: </strong>Semi-structured interviews were conducted with four middle managers across different municipalities in Norway. Qualitative content analyses, following Graneheim and Lundman, were used for analysing the transcription of the interviews and the data collected.</p><p><strong>Findings: </strong>The qualitative content analysis revealed three main themes: the significance of advanced competence, challenges related to competence development and the necessity for defining advanced competence. The findings indicate that middle managers recognise the importance of advanced nursing competence in providing comprehensive patient care, notwithstanding challenges in manpower and competence enhancement.</p><p><strong>Conclusion: </strong>This research underlines the significance of investing in increased competence and improved management in primary healthcare and offers valuable insights for healthcare policy and practice to enhance patient care.</p>","PeriodicalId":48171,"journal":{"name":"Scandinavian Journal of Caring Sciences","volume":null,"pages":null},"PeriodicalIF":1.9,"publicationDate":"2024-07-29","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141793803","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Meaning-oriented thematic analysis grounded in reflective lifeworld research-A holistic approach for caring science research. 以反思性生活世界研究为基础的意义导向主题分析--关爱科学研究的整体方法。
IF 1.9 4区 医学
Scandinavian Journal of Caring Sciences Pub Date : 2024-07-12 DOI: 10.1111/scs.13284
Elisabeth Lindberg, Lina Palmér, Ulrica Hörberg
{"title":"Meaning-oriented thematic analysis grounded in reflective lifeworld research-A holistic approach for caring science research.","authors":"Elisabeth Lindberg, Lina Palmér, Ulrica Hörberg","doi":"10.1111/scs.13284","DOIUrl":"https://doi.org/10.1111/scs.13284","url":null,"abstract":"<p><strong>Background and aim: </strong>The aim of the present article is to describe meaning-oriented thematic analysis grounded in reflective lifeworld research and to illustrate how the thematic analysis can be integrated in the research process. The article is a methodological paper, including ontological and epistemological assumptions for lifeworld theory. Research based on lifeworld theory is directed towards lived experiences and meanings in everyday life. Research that is founded on the epistemology of the lifeworld can present existential issues important for caring and qualitative research can in particular contribute to existential knowledge needed to understand the world of the patient.</p><p><strong>Design: </strong>Theoretical paper.</p><p><strong>Results: </strong>Starting with a phenomenon of relevance for caring science, the article argues for lifeworld interviews as a data collection method that can contribute to depth and meaning, and then presents a description of how structures of meaning can be outlined through a meaning-oriented thematic analysis. The research of lived experiences in caring science demands an approach that includes a reflective attitude during the methodological considerations. This article highlights the importance of ontological and epistemological considerations when conducting a meaning-oriented thematic analysis.</p><p><strong>Conclusion: </strong>The article places meaning-oriented thematic analysis in a wider research process, considering all aspects from collection of data to the creation of meaning-oriented themes.</p>","PeriodicalId":48171,"journal":{"name":"Scandinavian Journal of Caring Sciences","volume":null,"pages":null},"PeriodicalIF":1.9,"publicationDate":"2024-07-12","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141601920","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Exploring young adults' experiences with food allergy during their teenage years: A practice research study. 探索青少年时期的食物过敏经历:实践研究
IF 1.9 4区 医学
Scandinavian Journal of Caring Sciences Pub Date : 2024-07-11 DOI: 10.1111/scs.13283
Britt Egmose, Lotte Huniche, Carsten Bindslev-Jensen, Dorthe S Nielsen, Charlotte G Mørtz
{"title":"Exploring young adults' experiences with food allergy during their teenage years: A practice research study.","authors":"Britt Egmose, Lotte Huniche, Carsten Bindslev-Jensen, Dorthe S Nielsen, Charlotte G Mørtz","doi":"10.1111/scs.13283","DOIUrl":"https://doi.org/10.1111/scs.13283","url":null,"abstract":"<p><strong>Introduction: </strong>Symptoms of anxiety, eating disorders and social isolation are prevalent among teenagers with food allergy compared to peers without. Treatment of teenagers with food allergy focus on preventing anaphylactic reactions, with little attention to promoting social and emotional well-being. The aim of the study was to explore young adults' perspectives on everyday life with food allergy during their teenage years to improve future clinical practice.</p><p><strong>Methods: </strong>Critical psychological practice research. During a 2-day camp the perspectives of 10 young adults (18-23 years) were explored through participant observation and informal interviews. Three follow up interviews were conducted. A co-researcher group discussed preliminary results, clinical challenges and ways forward.</p><p><strong>Results: </strong>Being together with peers with food allergy was crucial, fostering belonging and normalisation. The shift in responsibility of managing the risk feels overwhelming and stressful during teen age. Self-understanding was influenced when managing food allergy in social contexts, inducing feelings of burden and isolation. Acceptance and understanding from social relations became important for all participants, and they all underlined desire for being viewed as individuals rather than being defined by their allergy.</p><p><strong>Conclusion: </strong>Support from other peers with food allergy is crucial for the participants. Transition to independently managing risks introduces uncertainty and social constraints, affecting self-understanding and interactions. Clinicians should prioritise peer support and empower teenagers in managing the risk and psychosocial challenges.</p>","PeriodicalId":48171,"journal":{"name":"Scandinavian Journal of Caring Sciences","volume":null,"pages":null},"PeriodicalIF":1.9,"publicationDate":"2024-07-11","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141581197","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
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