Clarene E Brown-King, Beth A Pratt, Kyndall Mammah, Wanda Morancy
{"title":"Exploring the experience of family members caring for a relative with alcohol use disorder: A phenomenological inquiry.","authors":"Clarene E Brown-King, Beth A Pratt, Kyndall Mammah, Wanda Morancy","doi":"10.1111/scs.13306","DOIUrl":"10.1111/scs.13306","url":null,"abstract":"<p><strong>Introduction: </strong>Alcohol use disorder (AUD) is a global concern with negative physical, psychological and social consequences. The ramifications of AUD extend beyond the individual and affect their family caregivers. Yet, the majority of existing research has primarily focused on individuals with AUD and interventions to encourage their abstinence rather than on their support systems.</p><p><strong>Aim: </strong>In order to advance a holistic approach, research to address this gap is imperative to understand family caregiver concerns and needs for added support.</p><p><strong>Method: </strong>We conducted a qualitative study using van Manen's hermeneutic phenomenological approach to uncover the meaning of family caregivers' lived experiences and capture the essence of their involvement in caring for a relative with AUD. A purposeful and snowball sample of family members (N = 10) living within the United States participated in a face-to-face or virtual, one-on-one audio-recorded interview and a second meeting for member checking the transcribed data. Participants received a $20.00 gift card as a token for their participation.</p><p><strong>Results: </strong>Six major themes emerged from the description of participants' lived experiences: (1) traversing the peaks and valleys, (2) wandering in the unknown, (3) pointing fingers, (4) weathering the storm, (5) drawing a line and (6) looking back, looking in. Although participants experienced many challenges, they never relinquished and remained committed to their caregiver role. Steadfastly staying with their relatives through crises exemplifies commitment as described by Sister Simone Roach's Theory of Caring. Through the ups and downs, each participant found meaning from the experience, which aligned closely with Starck's Theory of Meaning.</p><p><strong>Conclusion: </strong>This study has implications for nursing practice, public health policy and highlights the need for collaboration to address the existing challenges for family caregivers of relatives with AUD.</p>","PeriodicalId":48171,"journal":{"name":"Scandinavian Journal of Caring Sciences","volume":" ","pages":"e13306"},"PeriodicalIF":1.9,"publicationDate":"2025-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142630609","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Anna Drakenberg, Ann-Sofie Sundqvist, Bengt Fridlund, Elisabeth Ericsson
{"title":"Family Involvement in Relation to Elective Open-Heart Surgery: A Critical Incident Technique Study From a Family Member Perspective.","authors":"Anna Drakenberg, Ann-Sofie Sundqvist, Bengt Fridlund, Elisabeth Ericsson","doi":"10.1111/scs.70003","DOIUrl":"10.1111/scs.70003","url":null,"abstract":"<p><strong>Background: </strong>As open-heart surgery can be stressful for the patient and their family, the objective of this study was to generate knowledge on how to support families in relation to open-heart surgery based on important situations.</p><p><strong>Aim: </strong>The aim was to explore and describe the experiences and actions of important situations of family involvement as expressed by family members of patients who underwent elective open-heart surgery in Sweden.</p><p><strong>Methodological design and justification: </strong>The critical incident technique used is a qualitative method appropriate for identifying issues relating to clinical problems.</p><p><strong>Ethical issues and approval: </strong>Ethical approval was obtained from the Swedish Ethical Review Authority. Allowance was made for the unexpected presence of the patient.</p><p><strong>Research methods: </strong>Individual interviews with 29 family members of patients who underwent open-heart surgery in Sweden in 2023 were analysed using the critical incidence technique, as applied in nursing and healthcare sciences.</p><p><strong>Results: </strong>The family members experienced being-or not being-seen as significant and were fearing the loss of normal life in relation to open-heart surgery. Actions taken during important situations were building confidence to relinquish control and relieving burdens to improve well-being.</p><p><strong>Conclusions: </strong>Family involvement, in terms of being informed and welcomed, led to an improved ability to care for their loved ones. Emotionally supportive interventions targeting families should be considered in relation to a loved one's open-heart surgery.</p>","PeriodicalId":48171,"journal":{"name":"Scandinavian Journal of Caring Sciences","volume":"39 1","pages":"e70003"},"PeriodicalIF":1.9,"publicationDate":"2025-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11848118/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143484531","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"'It's a Balancing Act'. A Qualitative Study of the Everyday Management of Type 1 Diabetes Among People with Unexplained Persistent Hyperglycaemia.","authors":"Berit Kjærside Nielsen, Annesofie Lunde Jensen, Anna Ryberg, Steen Bønløkke Pedersen, Sten Lund, Stina Lou","doi":"10.1111/scs.70001","DOIUrl":"10.1111/scs.70001","url":null,"abstract":"<p><strong>Background: </strong>Despite advances in diabetes care, many people with Type 1 Diabetes (T1D) still experience persistent hyperglycaemia, leading to reduced quality of life and increased risk of long-term complications. For some, this hyperglycaemia is linked to factors like co-morbidities, socio-economic challenges, or low health literacy. However, for many, persistent hyperglycaemia remains clinically unexplained, indicating a gap in understanding the contributing factors.</p><p><strong>Aim: </strong>To explore the lived experiences and everyday management of T1D among adults with clinically unexplained persistent hyperglycaemia (HbA1c ≥ 70 mmol/mol), with the goal of informing caring practices that support better health outcomes.</p><p><strong>Methods: </strong>Using an anthropological approach, we conducted in-depth interviews with 19 adults. The interviews were digitally recorded and transcribed. Data was analysed using reflexive thematic analysis.</p><p><strong>Results: </strong>The analysis identified four themes: (1) 'Embodied diabetes' described how the risk of low blood sugar shaped daily management as it could impact productivity and social interactions, highlighting the need for empathetic support. High levels were more tolerable, yet frustratingly unpredictable and perceived as 'unruly.' (2) 'Inescapable diabetes' described diabetes as a presence that had to be navigated alongside life's complexities and how the participants sought to balance immediate concerns that were often prioritised over perfect glucose levels, underscoring the importance of holistic care approaches. (3) 'Desire for normalcy' described the weighing between concealment and disclosure of T1D and the detailed planning required to integrate diabetes seamlessly into everyday life, suggesting a need for personalised care strategies. Finally, (4) 'Diverse interactions with the diabetes clinic' described experiences from sincere interactions to feelings of resignation. Clinical advice was sometimes dismissed due to perceived ineffectiveness or lack of relevance, indicating opportunities for improving patient-provider relationships.</p><p><strong>Conclusion: </strong>This study highlights the complexities of daily diabetes management and emphasises the importance of a caring and holistic approach that incorporates the myriad obligations, concerns and desires that adults with T1D navigate and prioritise alongside or in competition with their disease. By understanding these lived experiences, healthcare professionals can better support patients through patient-centred care practices that address both medical and personal dimensions of living with T1D.</p>","PeriodicalId":48171,"journal":{"name":"Scandinavian Journal of Caring Sciences","volume":"39 1","pages":"e70001"},"PeriodicalIF":1.9,"publicationDate":"2025-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11880960/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143558439","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"How Adults Make Meaning of a Childhood Hospitalisation That Excluded Their Parents: A Retrospective Study.","authors":"Hildegunn Sundal","doi":"10.1111/scs.70015","DOIUrl":"10.1111/scs.70015","url":null,"abstract":"<p><strong>Introduction: </strong>Parents were routinely excluded when a child was hospitalised, a practice that continued from the end of the 19th century until the mid-20th century. The inclusion of parents became more frequent in the period leading up to the 1970s and 1980s, marking a gradual change from previous practice. Children whose parents were excluded during a hospitalisation were in a vulnerable situation. Today, those children are adults, and some have died. This study explores how these adults find meaning in their past experiences of having been hospitalised as children without their parents.</p><p><strong>Method: </strong>The study employed a qualitative design with a hermeneutic phenomenological approach. Eleven adults provided written narratives.</p><p><strong>Results: </strong>The findings show that the participants' adult lives are characterised to varying degrees by attachment and separation challenges. They also vacillate between trust and mistrust and have issues related to loneliness as a companion, being vulnerable, mastery of vulnerability and a life with physical limitations.</p><p><strong>Conclusion: </strong>To varying degrees, the participants linked their emotional challenges to having been hospitalised without their parents when they were children. The majority described their adult lives as being different from the lives of other people, who do not have similar feelings.</p>","PeriodicalId":48171,"journal":{"name":"Scandinavian Journal of Caring Sciences","volume":"39 1","pages":"e70015"},"PeriodicalIF":1.9,"publicationDate":"2025-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143587495","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"An Innovative Approach to Patient Education in Gynaecology and Obstetrics; Spotify.","authors":"Tuğba Öz","doi":"10.1111/scs.70010","DOIUrl":"10.1111/scs.70010","url":null,"abstract":"<p><p>Today, healthcare services in gynaecology and obstetrics aim for women to be independent in care and to provide self-management. At this point, the nurse's role as an educator in gynaecology and obstetrics has gained importance, and the patient education process should be carried out in line with the needs and characteristics of women. Therefore, using new technologies in the planning and implementation of patient education will increase the quality of education by providing practical education in a systematic, fast, and easy way. The use of Spotify, one of the new technologies, in patient education in gynaecology and obstetrics will enable women to access education easily at any time, place, and even position. Preferring Spotify in patient education in gynaecology and obstetrics will enable women to gain independence and healthy behaviour by respecting themselves. The preference for Spotify as an innovative approach to patient education in gynaecology and obstetrics is of great importance in digital health applications. This commentary draws attention to the use of digital learning platforms (Spotify, podcasts, YouTube) in obstetrics and gynaecology.</p>","PeriodicalId":48171,"journal":{"name":"Scandinavian Journal of Caring Sciences","volume":"39 1","pages":"e70010"},"PeriodicalIF":1.9,"publicationDate":"2025-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143606685","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Tomi Malmström, Antti Peltokorpi, Perttu Kontunen, Paulus Torkki
{"title":"System-Level Effects of an Outreach Service Focusing on Continuity of Care in Nursing Homes: A 12-Month Before and After Cost-Benefit Analysis.","authors":"Tomi Malmström, Antti Peltokorpi, Perttu Kontunen, Paulus Torkki","doi":"10.1111/scs.70008","DOIUrl":"10.1111/scs.70008","url":null,"abstract":"<p><strong>Aim: </strong>An ageing population increases the demand for emergency department (ED) visits and hospitalisations, and people living in nursing homes in particular are impacted by burdensome transfers and hospitalisations. As such, several onsite-provided care services have been developed to reduce hospitalisations, but more evidence of their cost-effectiveness is needed. An outreach service (OS) was thus developed for nursing homes to increase the quality of care and to decrease avoidable transfers of patients to ED examinations and treatments in hospitals by promoting continuity of care. The model consists of a patient-centred care plan followed by a responsible doctor, an easy-to-use patient information system, 24/7 geriatric teleconsultation for acute problems and nurse training. Thus, this mixed-methods study evaluates the system-level effects of the service model.</p><p><strong>Methods: </strong>The study was conducted in 12 nursing homes, comprising 401 patients in total for both cohorts. The costs and benefits of the OS, including the use of health care services in other institutions, were analysed during the 12-month periods both before and after the implementation. An independent sample Mann-Whitney U-test was used at the patient level, and eight semi-structured interviews were conducted with the healthcare personnel concerning the benefits and challenges of the new model.</p><p><strong>Results: </strong>The system-level costs decreased in all 12 nursing homes and, in total, 21.7% after the implementation. The biggest monetary savings were accrued from inpatient stays, both in primary and secondary care, as the new OS patients needed remarkably less frequent care in hospital ward units. Ambulance transfers and acute visits at primary care decreased by more than 50%, and patient-level decreases in total costs and in the costs of inpatient care and acute visits were all statistically significant (p < 0.01). Nurses and municipality officials considered the OS to be invariably positive.</p><p><strong>Conclusions: </strong>The OS was effective, as it led to remarkable decreases in system-level costs for society across nursing homes during the 12-month follow-up. Nurses appreciated the OS, as it improved their ability to maintain control over their work.</p>","PeriodicalId":48171,"journal":{"name":"Scandinavian Journal of Caring Sciences","volume":"39 1","pages":"e70008"},"PeriodicalIF":1.9,"publicationDate":"2025-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143606746","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Allogeneic Haematopoietic Stem Cell Transplantation Recipients' Experiences of Outdoor Physical Activity: A Qualitative Study.","authors":"Kristin Lien Selvaag, Siren Eriksen, Marte Nickelsen, Grethe Solvang, Kristoffer Vemøy, Geir Erland Tjønnfjord, Ellisiv Lærum-Onsager","doi":"10.1111/scs.70016","DOIUrl":"10.1111/scs.70016","url":null,"abstract":"<p><strong>Aims and objectives: </strong>To explore the allogeneic haematopoietic stem cell transplantation recipients' experiences of outdoor physical activity while admitted to the hospital.</p><p><strong>Method: </strong>The study is a descriptive, qualitative study. Fourteen first-time allogeneic stem cell transplantation recipients were included. After going through a tailored outdoor physical activity programme, the participants took part in individual in-depth interviews to describe their experiences of the physical activity programme. The interviews were analysed in accordance with the manifest level of content analysis by Graneheim and Lundman.</p><p><strong>Results: </strong>The participants had different starting points, but the majority experienced taking part in physical activity as positive. The data analysis resulted in five categories: (1) Physical activity is positive; (2) Health condition might challenge activity; (3) Tailored activity; (4) Social aspects and (5) Feeling well. The interest in adherence to the programme seemed to be related to the participants' physical activity prior to admission to the hospital. Furthermore, somatic symptoms were the major challenges to participation.</p><p><strong>Conclusions: </strong>Our findings suggest that participants viewed the physical outdoor programme as a positive reprieve from the hospital setting. The results demonstrate that an outdoor physical activity programme tailored to patients' health conditions is feasible and can have physical and social benefits.</p>","PeriodicalId":48171,"journal":{"name":"Scandinavian Journal of Caring Sciences","volume":"39 1","pages":"e70016"},"PeriodicalIF":1.9,"publicationDate":"2025-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143617645","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Marice Bäckström, Katarina Leijon-Sundqvist, Lise-Lott Lundvall, Karin Jonsson, Åsa Engström
{"title":"Team behaviour in interprofessional collaboration during trauma alerts: A critical incident study from the perspective of radiographers.","authors":"Marice Bäckström, Katarina Leijon-Sundqvist, Lise-Lott Lundvall, Karin Jonsson, Åsa Engström","doi":"10.1111/scs.13308","DOIUrl":"10.1111/scs.13308","url":null,"abstract":"<p><strong>Introduction: </strong>Challenges in mutual awareness in interprofessional collaboration (IPC) along with relational and cultural barriers among professionals disrupt flow and delay decision-making in trauma care. Thus, this study explores team behaviours within IPC in trauma teams during trauma alerts from the perspective of radiographers.</p><p><strong>Methods: </strong>A qualitative approach was used with a critical incident technique (CIT) design applying interviews with radiographers within three hospitals in Sweden from May 2022 to May 2023. CIT analysis was conducted with an abductive approach, applying an IPC core competency framework.</p><p><strong>Results: </strong>The results present collaborative requirements in trauma care from radiographers' perspective narrating a distribution of team behaviours within trauma team collaboration and fundamental skills in IPC. Behaviours within interprofessional values and ethics were the most reported incidents related to valuing radiographers' contributions to IPC in acute trauma care.</p><p><strong>Conclusion: </strong>Exploring behaviour through critical incidents associated with core competencies of IPC highlights the importance of interprofessional values as a foundation for successful IPC in the trauma team. The results show deficiencies in inclusive behaviour, influenced by the hierarchical environment of IPC. Power imbalances in this setting are traced to differences in perceived value and shared understanding among team members, possibly rooted in professional identity and culture. A dedicated leader is argued, as the recognition of radiographers' scope of practice in trauma imaging, emphasising the significance of shared decision-making.</p><p><strong>Clinical implications: </strong>The findings highlight organisational and relational coordination challenges for optimising competencies in IPC. IPC's success requires reinforcing values and ethics by empowering members' contributions and shared decision-making. This involves clarifying and recognising responsibilities, particularly for radiographers, ensuring their role in trauma imaging is respected and integrated into decision-making.</p>","PeriodicalId":48171,"journal":{"name":"Scandinavian Journal of Caring Sciences","volume":" ","pages":"e13308"},"PeriodicalIF":1.9,"publicationDate":"2025-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11686041/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142592091","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Kirsi Myllykangas, Henna Härkönen, Maria Kääriäinen, Mikko Kärppä, Miia Jansson
{"title":"Facilitators, Barriers, and Possible Solutions to Improve the Quality of Counselling in Patients With Cerebrovascular Diseases: A Descriptive Qualitative Study.","authors":"Kirsi Myllykangas, Henna Härkönen, Maria Kääriäinen, Mikko Kärppä, Miia Jansson","doi":"10.1111/scs.70024","DOIUrl":"10.1111/scs.70024","url":null,"abstract":"<p><strong>Introduction: </strong>Cerebrovascular diseases, such as transient ischaemic attack and stroke, are mainly caused by behavioural and metabolic risk factors. Effective patient counselling can address these risk factors and reduce the burden of stroke.</p><p><strong>Methods: </strong>We aimed to describe the facilitators, barriers and possible solutions to improve the quality of counselling in patients with cerebrovascular diseases using a descriptive, qualitative approach. Semi-structured face-to-face interviews were conducted with 26 healthcare professionals at a single university hospital in Finland between August 2021 and March 2022. The data were analysed using deductive content analysis.</p><p><strong>Results: </strong>The healthcare professionals identified facilitators, barriers and possible solutions to support the quality of counselling in five main categories: (1) background factors, (2) resources, (3) implementation, (4) sufficiency and (5) effects of counselling, and seven generic categories.</p><p><strong>Conclusions: </strong>To improve the quality of counselling, new digital counselling solutions need to be developed. Solutions should be high-quality, consider the special needs of patients with cerebrovascular diseases, ease the process of information exchange between stakeholders and facilitate the workflow of healthcare professionals. Patients' access to health-related information, availability of electronic devices, patients' eHealth literacy skills and healthcare professionals' counselling skills should be supported to reduce the burden of stroke.</p>","PeriodicalId":48171,"journal":{"name":"Scandinavian Journal of Caring Sciences","volume":"39 1","pages":"e70024"},"PeriodicalIF":1.9,"publicationDate":"2025-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143665145","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"'You Have to Start All Over Again…' Stories About Life With Alcohol-Related Liver Cirrhosis-A Narrative Interview Study.","authors":"Dorthe Wiinholdt Christensen, Mette Kildevæld Simonsen, Frank Vinholt Schiødt, Berit Lilienthal Heitmann, Helle Timm","doi":"10.1111/scs.70013","DOIUrl":"10.1111/scs.70013","url":null,"abstract":"<p><strong>Background: </strong>Alcohol-related liver cirrhosis (ALC) is a life-threatening disease and both physically and mentally challenging. At diagnosis, ALC is often at an advanced stage, and symptoms of liver decompensation may be present. Life may be challenged by substance abuse, social problems, limited networks and stigma by the public and the healthcare system. Research on living with ALC is sparse.</p><p><strong>Aim: </strong>To explore people's stories about life before and after diagnosis with ALC.</p><p><strong>Methods: </strong>The study is empirical and inspired by a phenomenological approach. Six explorative narrative interviews about everyday life were conducted. The participants told their individual stories guided by one main question: 'What matters to you - tell me about yourself and your life'. Interviews were analysed using an inductive approach, identifying and describing main themes of the six stories.</p><p><strong>Results: </strong>Six informants participated; four men and two women aged 46-76 years. Four participants were alcohol abstinent and for two, status was unknown. Number of years living with ALC varied from 1.5 to 16. One main theme, 'social life - social loss', and five sub themes 'alcohol stories', 'guilt and shame', 'the cirrhosis sequelae', 'moving on' and 'care and security' were identified. Themes were interrelated.</p><p><strong>Conclusion: </strong>Stories about life with ALC mainly concern social losses and managing daily life and the physical consequences of the disease. In general, the participants seemed to live in the present and did not bring up the future. Though living with a life-threatening disease, they did not talk about death or dying.</p>","PeriodicalId":48171,"journal":{"name":"Scandinavian Journal of Caring Sciences","volume":"39 1","pages":"e70013"},"PeriodicalIF":1.9,"publicationDate":"2025-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143587586","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}