Scandinavian Journal of Caring Sciences最新文献

{"title":"Effects of Nurse-Led Interventions on Quality of Life and Self-Care Among Patients With Heart Failure: A Systematic Review.","authors":"Rozainah Mat Yusoff, Wan Ling Lee, Imran Zainal Abidin","doi":"10.1111/scs.70227","DOIUrl":"10.1111/scs.70227","url":null,"abstract":"<p><strong>Background: </strong>Nurses are pivotal in promoting self-care among patients with heart failure (HF), particularly by educating them on how to prevent potential complications and rehospitalisations. Meanwhile, optimal self-care in patients with heart failure is a positive predictor of improved physical and mental health, which are core domains of quality of life (QOL). This systematic review aims to identify available evidence on the effectiveness of nurse-led education on the QOL and self-care in patients with HF.</p><p><strong>Methods: </strong>A detailed literature search was performed in six electronic databases (PubMed, Scopus, ScienceDirect, ProQuest and PsycNet) guided by the PRISMA guidelines to retrieve relevant articles published between 2015 and 2022. The results were checked for eligibility criteria, followed by performing quality appraisal and data synthesis.</p><p><strong>Results: </strong>Overall, 19 articles were found to be eligible and relevant for the analysis. Descriptively, the interventions comprised different components, including self-care knowledge and skills, illness representation, cognitive behavioural intervention, motivation, social and emotional support, coping strategies, setting goals, problem-solving and action planning. The delivery methods were mainly face-to-face interaction, verbal education and the use of written materials, while follow-ups entailed telephone calls and home visits. Most nurse-led interventions, particularly those combining educational and psychological components, led to significant improvement in self-care and QOL.</p><p><strong>Conclusion: </strong>The findings imply that nurse-led interventions can be provided by utilising diverse methods to improve self-care and QOL among patients with HF. Further studies are required to ascertain the long-term effect and the most effective component of these educational interventions.</p>","PeriodicalId":48171,"journal":{"name":"Scandinavian Journal of Caring Sciences","volume":"40 3","pages":"e70227"},"PeriodicalIF":2.1,"publicationDate":"2026-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13459748/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148708150","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Fear of Being Judged: A Phenomenological Hermeneutical Study of Encountering Ambulance Staff When Living in Stigmatized Neighbourhoods.","authors":"Sara Björklund, Peter Hagell, Petra Lilja Hagell, Mats Holmberg","doi":"10.1111/scs.70311","DOIUrl":"10.1111/scs.70311","url":null,"abstract":"<p><strong>Aims and objectives: </strong>To elucidate meanings of encountering ambulance staff when living in stigmatized neighbourhoods.</p><p><strong>Methodological design and justification: </strong>The study was conducted using a phenomenological hermeneutical approach based on narrative interviews.</p><p><strong>Ethical issues and approval: </strong>The study was approved by the Swedish Ethical Review Authority and conducted in accordance with the Declaration of Helsinki.</p><p><strong>Research methods: </strong>A phenomenological hermeneutical analysis was conducted. Interviews were performed with 18 persons living in stigmatized neighbourhoods who had lived experiences of encountering ambulance staff, either as relatives or as patients.</p><p><strong>Results: </strong>These encounters carry meanings of being dependent on how the staff act in situations marked by fear, involving fear for one's own or a relative's health, or fear of being judged based on ethnicity, culture, or place of residence.</p><p><strong>Study limitations: </strong>The participants shared similar demographic backgrounds, and recruitment through gatekeepers may have constrained the range of perspectives. As an interpretive method, the findings represent one possible understanding, and other interpretations may emerge from different backgrounds or theoretical lenses.</p><p><strong>Conclusions: </strong>Encounters with ambulance staff carried meanings of fear of being judged and of dependence, while ambulance staff's interpersonal actions could either reinforce or alleviate these meanings.</p>","PeriodicalId":48171,"journal":{"name":"Scandinavian Journal of Caring Sciences","volume":"40 3","pages":"e70311"},"PeriodicalIF":2.1,"publicationDate":"2026-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13534936/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148876160","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"The Systemic Lottery - A Field Observational Study on the Detection and Management of Acute Events in Care Homes.","authors":"Trine Lenskjold Rudebeck, Dorthe Nielsen, Annmarie Touborg Lassen, Dagmar Andersen, Christina Østervang","doi":"10.1111/scs.70315","DOIUrl":"https://doi.org/10.1111/scs.70315","url":null,"abstract":"<p><strong>Aims and objectives: </strong>Care home residents represent some of the frailest and most vulnerable members of society due to impaired physical and cognitive functions. In acute situations specifically, residents often rely heavily on others to speak and act on their behalf. This places significant demands on organizational preparedness within care homes and across sectors. However, the contextual and structural processes in these situations are underexplored, potentially overlooking important contextual and clinical processes to support person-centered care in acute situations. We sought to obtain a comprehensive understanding of the circumstances surrounding acute events among residents.</p><p><strong>Methodological design and justification: </strong>A qualitative study was performed with a phenomenological and hermeneutic approach. Field observations (180 h) were conducted in four care homes in one large Danish urban municipality between October 2024 and February 2025. Purposive sampling included care homes of different sizes and districts, and acute events were included based on a predefined definition. Data analysis was inspired by Paul Ricoeur's interpretation theory.</p><p><strong>Ethical issues and approval: </strong>This study is registered with the Danish Data Protection Agency (24/30952).</p><p><strong>Findings: </strong>Based on 38 acute events, we identified three themes: (1) Care home staff have a crucial but challenged role, (2) Organizational structures in care homes shape the response, and (3) Care home residents rely on mutually dependent systems. Detection and management of acute events were strongly shaped by contextual factors, including staffing, resources, and intersectoral collaboration.</p><p><strong>Conclusions: </strong>Detection and management of acute events among residents are a systemic lottery, as resident care depends more on circumstances than personal needs and preferences. This misalignment produces a structural vulnerability that puts residents at risk of compromised autonomy and integrity in acute situations and undermines visions of person-centered care.</p>","PeriodicalId":48171,"journal":{"name":"Scandinavian Journal of Caring Sciences","volume":"40 3","pages":"e70315"},"PeriodicalIF":2.1,"publicationDate":"2026-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148892420","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Patient Involvement as Understood by Healthcare Professionals: A Multi-Methods Study in a Danish University Hospital.","authors":"Frederikke Andsbjerg Johansen, Lotte Ørneborg Rodkjær, Hilary Louise Bekker, Anna Holm","doi":"10.1111/scs.70244","DOIUrl":"10.1111/scs.70244","url":null,"abstract":"<p><strong>Aim: </strong>Although patient involvement is widely promoted in healthcare policy, there is limited understanding of how healthcare professionals interpret and implement it in practice. This study explores healthcare professionals' perceptions of patient involvement and how their understanding influences interactions with patients, addressing a gap in knowledge about its enactment in clinical practice.</p><p><strong>Design and methods: </strong>A multi-methods design was used to capture both the breadth and depth of healthcare professionals' experiences. Quantitative survey data (n = 1214) were collected from multiple hospital departments and analysed descriptively. Semi-structured interviews (n = 12) were conducted between April and November 2022 and analysed using hermeneutic content analysis. The survey assessed healthcare professionals' perceptions of patient involvement, while interviews explored how these perceptions were enacted in everyday practice.</p><p><strong>Ethics statement: </strong>According to The Danish Healthcare Act §42, studies of this type do not require formal ethical approval. All participants provided informed consent, and data were anonymized and securely stored.</p><p><strong>Results: </strong>Survey findings indicated that 69% emphasized patients' role in influencing care decisions, 60% highlighted addressing patients' needs and preferences, and 37% noted patient education. Interviews revealed four central themes: patient involvement as shared decision-making, fostering partnerships, integrating patients' lifeworlds into care, and recognizing the influence of healthcare professionals in guiding decisions. These illustrate how patient involvement is enacted through tailored communication and ethical management of professional influence.</p><p><strong>Study limitations: </strong>Although the qualitative interviews were limited by a small sample, they offered rich insights into professionals' interactions with patients, whereas survey responses reflected self-reported perspectives and may be subject to selection bias.</p><p><strong>Conclusions: </strong>Patient involvement is shaped by both professional actions and interaction dynamics. Healthcare professionals foster meaningful engagement through communication, shared decision-making, ethical management of power asymmetries, and individualized support tailored to patients' circumstances and needs. The findings highlight the need for training, organizational strategies, and further research incorporating patient perspectives.</p>","PeriodicalId":48171,"journal":{"name":"Scandinavian Journal of Caring Sciences","volume":"40 2","pages":"e70244"},"PeriodicalIF":2.1,"publicationDate":"2026-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13069166/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147655219","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Health Outcomes Following the Health-Promoting \"Reflective STRENGTH-Giving Dialogue\" Intervention Among Community-Dwelling Older Adults.","authors":"Cecilia Åberg, Catharina Gillsjö, Mia Berglund, Jenny Hallgren","doi":"10.1111/scs.70280","DOIUrl":"10.1111/scs.70280","url":null,"abstract":"<p><strong>Background: </strong>Effective health-promoting interventions can support older adults in maintaining and regaining good health and can foster healthy aging. The Reflective STRENGTH-Giving Dialogues (STRENGTH) intervention was created to optimise a holistic healthcare delivery that supports older adults in learning to live with long-term musculoskeletal pain. Findings from previous studies indicate that the dialogues contributed to an increased sense of well-being and had an immediate pain-alleviating effect. The aim of this extended study was to explore the health effects of the STRENGTH intervention among older community-dwelling adults living with long-term health problems.</p><p><strong>Methods: </strong>Older adults (n = 47) in Sweden completed questionnaires inquiring about levels of well-being, impact of health problems on daily life, depression symptom occurrences, health-related quality of life, physical performance, and consumption of care using a quasi-experimental design. Descriptive statistics were used to explain and compare results within groups. Data were collected before, during, and after the STRENGTH intervention in autumn 2017 and spring 2018. It consisted of health-care professionals engaging in recurrent dialogues to guide and support older adults in ways that increase sense of well-being, joy, strength, and meaning in life through carrying out small and large life projects.</p><p><strong>Results: </strong>According to self-reports, the STRENGTH intervention had immediate positive effects on perceived well-being and health problems. From a longitudinal perspective, although no significant differences in health outcomes were found based on comparisons of baseline and follow-up data within groups, positive effects were shown.</p><p><strong>Conclusions: </strong>To contribute to healthy aging, HCPs need favourable conditions for conversations in care encounters, extensive knowledge about the importance and potential of dialogues, and an understanding of how to integrate dialogues into health and social care.</p>","PeriodicalId":48171,"journal":{"name":"Scandinavian Journal of Caring Sciences","volume":"40 2","pages":"e70280"},"PeriodicalIF":2.1,"publicationDate":"2026-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13254495/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148220380","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Being There: Danish Nurses' Lived Experiences of Companionship With Families in Home-Based Paediatric Palliative Care in Regional Settings.","authors":"Anne Alm, Malene Beck","doi":"10.1111/scs.70239","DOIUrl":"10.1111/scs.70239","url":null,"abstract":"<p><strong>Background: </strong>Paediatric palliative care (PPC) is a relatively new field in many countries, including Denmark, where regional home-based PPC teams were established between 2015 and 2016. While research on PPC is growing, the lived experiences of nurses providing care in the family home remain underexplored. Understanding how nurses experience this form of care is essential for developing practices that support both families and professionals in this demanding field.</p><p><strong>Aim: </strong>This study asks what it is like for nurses to accompany children and families through illness, dying, and bereavement in the context of home-based PPC.</p><p><strong>Method: </strong>A qualitative phenomenological-hermeneutical approach informed by Max van Manen guided the study. Ten nurses from the Danish regional PPC teams participated in individual phenomenological interviews. Analysis followed van Manen's holistic, selective, and detailed reflection, allowing meaning to emerge through attentive engagement with the lived experiences expressed in the interviews.</p><p><strong>Results: </strong>The analysis brought forward three ways in which the experience showed itself: The experience of coming close by walking alongside families; The experience of letting care arise through presence rather than action; The experience of sensing what is at stake.</p><p><strong>Conclusions: </strong>Nurses' accounts show that home-based PPC unfolds through ways of being that move between doing and being present. Their care is shaped by the ability to come close as relationships develop, to remain with families when no further action is possible, and to sense what is lived but not spoken. These forms of attentiveness draw on professional experience as well as an openness to what the situation calls for, supporting families through illness, dying, and the time that follows.</p>","PeriodicalId":48171,"journal":{"name":"Scandinavian Journal of Caring Sciences","volume":"40 2","pages":"e70239"},"PeriodicalIF":2.1,"publicationDate":"2026-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13088930/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147700074","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Mental Health, Coping Strategies and Self-Care Practices Among Professionals Who Work With People Who Experience or Have Experienced Domestic Violence: A Quantitative Study.","authors":"Elisabete Ferreira, Rafaela Monteiro, Janete Borges, Sofia Barros, Cláudia Oliveira, Mariana Salafranca-Alves, Ana Maia, Anita Santos","doi":"10.1111/scs.70264","DOIUrl":"10.1111/scs.70264","url":null,"abstract":"<p><strong>Background: </strong>Domestic violence (DV) profoundly affects not only those who experience or have experienced it but also the professionals who support them, exposing workers to trauma narratives and operational pressures that may harm mental health.</p><p><strong>Objective: </strong>This study examined depressive (PHQ-9) and generalised anxiety (GAD-7) symptoms among Portuguese DV-service professionals (n = 251) and assessed whether coping domains and self-care are associated with-and may condition-the links between burnout, secondary traumatic stress (STS) and symptoms.</p><p><strong>Methods: </strong>Participants completed ProQOL-5 (compassion satisfaction [CS], burnout, STS), PHQ-9, GAD-7, the Brief COPE (higher-order: avoidant, self-sufficient, socially supported) and a self-care capacity scale (EACAC). Analyses comprised correlations and three-step hierarchical regressions, with interaction terms between burnout, STS and theoretically selected coping and self-care variables entered at Step 3 to test moderation.</p><p><strong>Results: </strong>DV professionals reported moderate levels of burnout, STS and CS, along with mild depressive and generalised anxiety symptoms. Across correlations and regressions, burnout and STS were positively associated with both symptom domains; avoidant coping aligned with higher symptoms, and self-care aligned with lower symptoms. The hierarchical regressions explained 61.7% (PHQ-9) and 54.9% (GAD-7) of variance in Step 2. Evidence for moderation was limited and exploratory: although the interaction block did not reach conventional significance for either outcome, one individual interaction term-Burnout × Avoidant coping-was significant for generalised anxiety symptoms, suggesting that the positive association between burnout and generalised anxiety symptoms may be stronger at higher levels of avoidant coping.</p><p><strong>Conclusion: </strong>Findings consolidate robust correlational signals-higher burnout/STS and greater avoidance co-occur with higher symptoms, while self-care co-occurs with lower symptoms-and motivate longitudinal and intervention research to test causal leverage and evaluate whether targeting avoidance and routine self-care can improve mental-health outcomes in DV services.</p>","PeriodicalId":48171,"journal":{"name":"Scandinavian Journal of Caring Sciences","volume":"40 2","pages":"e70264"},"PeriodicalIF":1.8,"publicationDate":"2026-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148018251","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"The DORR Framework: Reframing Trustworthiness Criteria for Hermeneutic Research.","authors":"Linda S Estman","doi":"10.1111/scs.70286","DOIUrl":"10.1111/scs.70286","url":null,"abstract":"<p><strong>Background: </strong>This article introduces a reflexive methodological framework for evaluating the quality of hermeneutic research, grounded in interpretive epistemologies and a reinterpretation of Lincoln and Guba's classic trustworthiness criteria. While hermeneutic inquiry has become increasingly significant, few frameworks explicitly align quality evaluation with its ontological and epistemological foundations. Existing standards often reflect post-positivist ideals of neutrality and replicability, creating tension with the philosophical assumptions of hermeneutics.</p><p><strong>Aim: </strong>The aim of this article was to develop and present the DORR Framework, a hermeneutically grounded and philosophically coherent structure for assessing interpretive rigour in hermeneutic research as a whole.</p><p><strong>Design: </strong>The framework synthesizes insights from philosophical hermeneutics caring science and qualitative methodology. Lincoln and Guba's trustworthiness criteria, credibility, transferability, dependability, and confirmability are reinterpreted through hermeneutic principles, resulting in four dimensions: Depth, Openness, Resonance, and Reflexivity.</p><p><strong>Results: </strong>Each dimension is operationalised through reflective questions designed to support researchers in demonstrating interpretive depth, dialogical openness, contextual resonance, and reflexive accountability, while avoiding procedural reductionism.</p><p><strong>Conclusion: </strong>The DORR Framework offers a philosophically coherent yet practically applicable approach to evaluating hermeneutic inquiry. By fostering epistemological transparency, ethical integrity, and scholarly reflexivity, it equips researchers, supervisors, and reviewers with a means of assessing quality that is consistent with the philosophical and ethical foundations of caring science, including attentiveness to human dignity, suffering, and responsible knowledge development in health-related research.</p>","PeriodicalId":48171,"journal":{"name":"Scandinavian Journal of Caring Sciences","volume":"40 2","pages":"e70286"},"PeriodicalIF":2.1,"publicationDate":"2026-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148303568","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"The Relationship Between Nurses' Moral Courage and Caring Behaviours: A Cross-Sectional Study in Türkiye.","authors":"Emine Korkmaz, Emine Üstün Gökçe, Fatma Gönül Burkev","doi":"10.1111/scs.70271","DOIUrl":"10.1111/scs.70271","url":null,"abstract":"<p><strong>Background: </strong>Moral courage is a fundamental professional trait that enables nurses to uphold ethical principles, protect patient rights and provide safe and compassionate care. Care behaviours constitute the essence of nursing practice and reflect the ethical, humanistic and professional dimensions of care. Although it is assumed that moral courage influences the quality of care, empirical evidence directly examining this relationship is limited.</p><p><strong>Aim: </strong>This study aimed to determine nurses' levels of moral courage and caring behaviours and to examine the relationship between these two concepts.</p><p><strong>Methods: </strong>This cross-sectional, correlational study was conducted among nurses working at three public hospitals in Turkey between March and July 2025. The sample consisted of 328 nurses selected from a population of 1800 nurses using a stratified proportional sampling method. Data were collected online using the Nurses' Ethical Courage Scale and the Nursing Care Behaviours Inventory-30. The data were analysed using descriptive statistics, Pearson correlation analysis, the independent samples t-test, one-way ANOVA and linear regression.</p><p><strong>Results: </strong>It was determined that nurses' levels of moral courage (83.51 ± 12.53) and care behaviours (144.39 ± 19.62) were high. A moderate, positive and statistically significant relationship was found between moral courage and total care behaviours (r = 0.407, p < 0.01). Regression analysis results indicated that moral courage is a predictor of care behaviours and explains 16.3% of the variance (R² = 0.163, p < 0.001). Additionally, it was found that nurses with a lower patient load, aged ≥ 41, with ≥ 16 years of professional experience and who believe the nursing profession is care-focused had significantly higher care behaviour scores (p < 0.05).</p><p><strong>Conclusion: </strong>The findings indicate a significant positive relationship between moral courage and nursing caring behaviours and demonstrate that moral courage is a predictor of caring behaviours. These results suggest that moral courage may contribute to the delivery of ethical, holistic and high-quality nursing care. In this context, enhancing ethics education and fostering supportive organisational environments are recommended to strengthen nurses' moral courage. Future research should examine contextual and organisational factors influencing moral courage and caring behaviours using larger and more diverse samples.</p>","PeriodicalId":48171,"journal":{"name":"Scandinavian Journal of Caring Sciences","volume":"40 2","pages":"e70271"},"PeriodicalIF":2.1,"publicationDate":"2026-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148044227","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Care Partners' Information Needs When Caring for a Family Member With Parkinson's Disease: An Explorative Study.","authors":"Helena Larsson, Maria Haak, Peter Hagell, Carina Hellqvist","doi":"10.1111/scs.70277","DOIUrl":"10.1111/scs.70277","url":null,"abstract":"<p><strong>Background: </strong>Parkinson's disease (PD) is a progressive neurodegenerative disorder that increasingly impacts many aspects of everyday life for those affected. The involvement of family members becomes increasingly important as PD progresses. Although family members are often willing and ready to help and support as a care partner, their role can be demanding, with consequences for their own health and well-being. One way to offer care partners support could involve providing information to increase insight into the progress of PD.</p><p><strong>Aim: </strong>To explore care partners' information needs when caring for a family member with Parkinson's disease.</p><p><strong>Methods: </strong>Fifteen care partners were interviewed in focus groups, dyadic or individually, with open-ended questions. The interviews were recorded and transcribed. Data were analysed using reflexive thematic analysis.</p><p><strong>Results: </strong>The analysis revealed four themes reflecting care partners' information needs in their caregiving role: (1) to be prepared when symptoms limit daily life; (2) to preserve participation and social life; (3) to find reassurance together with others; and (4) to cope with feelings of uncertainty.</p><p><strong>Conclusions: </strong>The results demonstrate the need for personalised information meeting the care partners' physical, social, emotional and existential needs. This calls for holistic information-based interventions built on collaboration between healthcare professionals, the person with PD and the care partner, aimed at promoting care partners' well-being and helping them support their family member with PD. The themes identified here may be seen as a framework for such information-based interventions.</p>","PeriodicalId":48171,"journal":{"name":"Scandinavian Journal of Caring Sciences","volume":"40 2","pages":"e70277"},"PeriodicalIF":2.1,"publicationDate":"2026-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13241751/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148177037","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}